I’ve seen the same doctor for over 3 years now and I’ve always had an issue with getting my medication refilled. I used to go through Walgreens and I would order it online and then have to immediately message my doctor a reminder so my order wouldn’t get cancelled. My doctor’s office actually set up a new system where you just click the medication you want refilled and they automatically get a notification that a refill needs approval, which made the process a lot easier for me.

I’ve recently switched to a different pharmacy that does home deliveries and automatic refill requests so I don’t have to keep track of all of my prescriptions. This unfortunately means I’m not aware of exactly when the pharmacy is going to reach out to my doctor so I am not really able to send reminder messages anymore. This has been really difficult for me. I keep getting medication put on hold and orders cancelled. I’ve luckily been able to reorder the cancelled orders through Walgreens for that month or else I would be missing several of my meds. I’ve been out of my nausea meds for about a month now because it keeps getting put on hold. I sent my doctor a message explaining this multi year long problem and asked if I needed to do anything different, as well as emphasize that it’s making it hard to actually get my medication.

His exact response was “Hi (blank). Frankly I am not sure. On our end we get medication refill requests via fax, phone, or electronically. I try to refill any requests I get within 24-48 business hours, but if I don’t receive the request then obviously that is a different story entirely.”

A few minutes after reading my doctor’s message I got this email from my pharmacy about the med I’ve been missing for a month: “We contacted your doctor for approval of your (pharmacy) Home Delivery order again but have not heard back. If your doctor does not respond, we will need to close your order.”

I’m truly at a loss. Because this isn’t the first pharmacy that has had problems with my doctor I don’t think it’s their fault. When I used Walgreens I went one day to complain about how they never contacted my doctor and they showed me documented attempts to get ahold of my doctor. I’ve been thinking of switching to a new doctor but it would be a lot of work getting another doctor up to speed. Plus my husband uses the same doctor I and I feel it would be uncomfortable for him if I switched. Has anyone else been in this situation? Am I making a mountain out of a molehill? Any advice would be appreciated!

Looking to switch my stock wheels for something that can actually handle sidewalks, any advice?

I’m a 20 year old with back disability..I’ve had 2 major spinal fusions performed in the past 3 years, and I’ve have back problems ever since I was 14. I’ve been to physical therapy a lot and do exercises to help strengthen my core but i still hurt. My problem is that I can’t stand or walk for too long without having pain and needing to sit down. I’ve tried working in fast food last year, only 6 hour shifts, but had to quit shortly after because it was causing me too much pain (I was at the window taking money from customers and they did give me a chair to sit, but took it away soon after because some coworkers didn’t believe I needed it 😕)

so, I’m curious if anyone who has the same type of problems as me has suggestions on what they do for work?? Again, I’m only 20 so I just have a high school degree and very few work experience. Like if anyone knows any places that will let me work short shifts or just a few days a week that’d be great 🫶 any suggestions will be helpful.

Hi. So I'm an autistic male 32 years old and I just started a job in February. I live in a supported living arrangement due to my disability. I did not inform my employer of my disability or SSI status because I require a prompt for certain things (this being one of them). I'm always told there's a certain way to go about telling an employer you have a disability, but no one ever told me what that process was. I have been scheduled more latel.y Last week I worked 37 hours. My staff are concerned that I'm earning too much and I will have to pay more rent as a result. I don't know if I can afford to do that since working 37 hours last week was kind of a fluke. I have a ton of anxiety over the situation and don't know how to find out if I'm actually earning too much or if my staff are paranoid due to past experiences with their other clients. Any suggestions would be appreciated.

So. I have worked 2 volunteer jobs and have failed massively. I would litterally/practically hide away from my coworkers. I genienly couldn't handle more than 2 hours, before i began to snap a bit.

How on earth do I get proof of this?

I can't get people to sht talk me, all they say is that I'm a quiet person. Everyone always leaves out the fact that they need to be directly next to me the whole time because i can't do things by myself.

How do I do this?

How is employment through the DOR? Is it primarily retail jobs that are provided through the program?

After kicking the can down the road, and with symptoms that are good on most days and horrible on others, I finally decided to get my disability permit. Thing is, I broke my neck at 15, have CRPS/AMPS, a TBI, POTS, BPPV, Occipital Nueralgia with Trigeminal Neuralgia, and spasmodic torticollis that when it acts up, I actually loose feeling in my arms,

So I decided to fill out the Florida DHSMV 83039 Form and have my neurologist fill it out. He refused saying "I won't fill this out because you might need it once a week." Thing is, I don't want it because I am disabled, I need it because there are days when I have had to park in Garage A on the top floor at UCF which is four stories tall and it has no elevators, and then walk 4-5 miles to get to class which was at Trevor Coulburn Hall in 90-degree weather. Because of my condition, I don't tolerate heat well, and as a result, I tend to fall over like a tree trunk.

Heck, I couldn't get a temporary placard for when I broke three toes in six different places. I taped them together as I didn't meet the requirement for a boot because the breaks were in a weird spot. I was able to walk more than 200 feet unaided, but in agonizing pain.

My condition has gotten to the point that I am probably going to buy myself a pair of crutches, as guaranteed my insurance will deny my request for them, but I honestly don't care if I do buy it myself.

I don't know if it's my neurologist is too lazy to fill out the 11 lines or if he just is being kind of ableist because my disability is constant, but not severe enough. I am one of his youngest patients, his average patient is above the age of 60 with strokes and Parkinson's, and I am his first and only CRPS patient, and before he saw me had never heard of CRPS, problem is my county doesn't have a dedicated neuroscience unit, and the other nuerologist office sucks and don't carry my insurance.

I honestly am just kind of done at this point. My MRI's are all normal looking, even though my first one you can see the fractures of my lamina, and the lesions on my brain, yet I function normally on most days because I just so happened to be the 1 in 1,000,000 case that managed to avoid severe symptoms (my neurosurgeon who consulted on my case, couldn't figure out why I am functioning, that is how severe my TBI is).

I guess I will have to get my GP to fill it out, or wait until I get in to Orlando Health Neuroscience Institute in 2025 to get it done.

My boyfriend was recently in a motorcycle accident that broke his femurs and fractured his hips. He will be wheelchair bound for 4-6 weeks, what can I do to make our apartment more accessible/making sure he’ll be okay while I’m at work? We luckily live in a downstairs apartment, but not everything is accessible like our shower. I plan on getting him a shower chair and likely uninstalling the shower door. Any and all advice is appreciated!!

I've been on disability since my late 20s. Im in my late 30s now.

One of the biggest challenges I face is with dating. Its always one of the first questions people ask "What do you do?"

In the past I've been honest. But because i am not visibly disabled (its an organ nobody can see from the outside) I've faced alot of ridicule. It's almost always a debate where the person insinuates im not "THAT" disabled. Like they immediately have a say in how I live my life.

Sure, i could brush them aside and I do. I keep on trucking.

But im also poor obviously. Thats what they focus on. Thats what everyone seems to focus on. And i know some of you get this, that without another income im almost always on the verge of homelessness again. That I can't support myself enough to get by. People look at that and they see someone who can't live and do the fun outings/vacations and so on

Society teaches ableism and people dont see the person beyond the lack of career. How do I maintain my confidence in dating, how do I answer that dreadful question?

Hi folks of this sub.

I myself do not have a disability but I have a question.

I like to write google reviews of restaurants, hotels etc that I’ve visited. Google will sometimes ask for additional information, like about “kid friendliness”, “adapting to dietary needs” and also “accessibility” or “features for people with a disability”.

To be honest I never add additional info in these latter categories because I never make a conscious effort while im at the restaurant or hotel to look for these features. I’d like to start doing that so I can hopefully add some valuable info to my reviews.

What are some of the things to look out for? What do you look for when you read reviews of a place that you might visit? How can I train my eyes to look at a place from the perspective of someone with a disability and assess it?

I know that there are a ton of different disabilities so it would be impossible to cater to all, but there must be some basic things to look out for, like whether there is an elevator or only stairs, if the bathroom is wheelchair accessible, etc. Please teach me the basics!

Hi all. I have chronic back pain that makes dishes somewhat impossible. I've tried a few different options but I'm still struggling. I don't have a dishwasher and can't afford a table top one or disposable dishes. I've tried sitting and a back brace but neither helps with the pain. Anyone have any other ideas?

I feel like abled people just kinda assume that we don't have things we want badly out of life as if we are not human. Or that we wish for things related to our disabilities only. And no one ever holds space for the dreams and wishes that we had to leave behind or can't achieve (I often can't stand the "anything is possible if you try hard enough" narrative).

I also have been feeling really isolated and alone and I just know that I can't be the only one like this. There's nothing new under the sun after all. We are human beings.

Here are some of my dreams. Most I had to give up as impossible but I like to think about them or daydream them sometimes:

• Waking in a public garden at dusk on a late spring night with the one I love in the country she lives in.
• Having a farm and distributing/selling/donating produce and farm-made products to my community.
• Travelling to places like Istanbul, Santorini, Dublin, etc.
• Participating in a renaissance fair as a member of staff.
• Writing a sci-fi fantasy book.

Trans girl working IT in Kansas. I have like every type of repetitive stress injury and have had no luck with doctors for years. It really hurts to work and I don't think I can do it much longer. I'm diagnosed bipolar as well. Anyone have any guidance? I can't even start applying for disability if I'm at my job right? Then how do I pay rent while I wait? IDK. I feel lost. My ability to use technology with my hands declines each day.

I(24f) been married to my wife(25f) for three years now, together for 7. I’ve worked one job for 2.5 years before quitting do to a mental break. Since then I’ve been diagnosed with PTSD and autism. Working just isn’t possible for me, but I’ve been denied benefits due to the money my spouse makes ( she works full time at a grocery store, the one income is definitely not enough for both us ). I’m considering pursuing divorce to receive benefits, as I feel like my relationship is strong enough to handle it and I need them. What do you think? Does anyone have a similar experience?

Does Vocational Rehabilitation pay for school? I am trying to get into a bootcamp for UX/UI Design that cost around $11,000-$13,000. My goal is to go to school and hopefully get a Job as a UX/UI Designer. I was wondering has anyone got their schooling pay for by Vocational Rehabilitation?

My whole family makes me feel like crap all the time like I’m lazy and making excuses. I’ve had severe mental health issues since I was a kid and now have chronic illness as well. But the mental health issues were disabling enough alone. I can’t hold down a job and haven’t been employed in two years and I feel worthless. I’ve been trying not to let people’s words get to me but a few things lately have made me spiral. I’m on Medicaid but my state only covers a certain amount in dental and I have very very bad teeth and horrible genetics. I was told I needed braces medically but the state still refused to pay for them. I ended up getting really upset because I haven’t been able to eat on the right side of my mouth for years because I run out of benefits so fast every year. I have to pay out of pocket if my insurance won’t cover it which they probably won’t because they are very strict. I have nowhere near enough to cover it and am stressed about being in pain for the rest of the year.

My mom today told me while I was crying over this that this is why people work and made it sound like I’m sol by my own doing. I also had an appointment with my nurse practitioner who prescribes my psych meds and he asked me if I was looking to find a part time job and I said no I physically can’t and he said “you can’t or you don’t want to?” Which I had to hold back the tears and just tell him I can’t because of my physical pain even though the emotional pain is just as bad. He’s the best nurse practitioner I’ve had because the mental healthcare around me is absolute garbage like horrific how bad it is. My therapist randomly left the practice he was at and joined another where he no longer takes my insurance. I need a therapist so bad but I dread trying to find someone else. Every therapist I get says some wild out of pocket stuff which I try to ignore because I need help, but it makes me end up no longer trusting them. This turned into a whole rant I just need to get this out. I am so emotionally broken down right now and so incredibly hopeless.

I'm flying next week for the first time with my motorized wheelchair. Do you have any tips to help it go smoothly?

I am struggling tremendously to manage these kinds of issues, and find support or advocacy, because of my competing disabilities. Can anyone please help share any free advocacy services/groups that might be able to help me? I am having sessions with a free non-profit that is trying to help me find a job that I can do around my disabilities (remote, flexible), and they are supposed to help with some other resources, but not much is happening yet, or there is a lot of miscommunication/there are a lot of delays. I'm not too sure if they're going to be able to help me find anything or get the services I need just yet.

I am struggling to work out issues with:
-Covered CA, health insurance
-Completing my degree with no income (I was laid off from my remote job) and large student loans
-Trying to find legitimate work-from-home jobs that offer flexible scheduling (I have debilitating symptoms that come out of nowhere almost daily and prevent me from having a set schedule)
-Figuring out how to increase my financial literacy and tackle my bills when I have no income yet
-Figuring out how to navigate disability--Whether I should/can apply if I am still trying to find some kind of remote/flexible work (hard to find), whether I can have disability as I try to launch an at-home flexible business (until I make enough from the business to live off of)
-Executive dysfunction and PTSD; finding tools and a therapist for that
-Finding nutritional/dietician support with no income (I also have ARFID and lost 30 pounds)

Any recommendations? Thank you so much for any advocates/orgs you can point me to. <3 It's hard to realize you truly cannot manage everything, and accept that you're disabled.

I am in MN and have PCA services for my disabilities. I have been through over 5 care providers in the past year. I've gone through what my CADI Case manager has sent me and sought my own caregivers through PCA Choice. Care.com has said my account is under review for the past 3 weeks now. I have no friends or family to care for me. I am suffering so hard right now. What do I do? Please, someone help me!

Rant - based heavily on personal experience but just need to scream it somewhere.

Okay, so I've been scheduled an appointment with a psychiatrist. After having a bad experience with a psychiatric nurse who I knew nothing about or what to expect, I looked up the person im going to be seeing this time online, and also asked people I know have been to her. All of my worst fears about your stereotypically abusive psychiatrist were true, both from in person reviews and online. In a panic, I called my dad, he calmed me down and reminded me I haven't even met her yet, so I don't know, and should go in with an open mind.

I'm terrified she's going to put me on medication. I'm going to her for trauma, and part of that trauma was from dealing with my mum and sister becoming abusive and blaming it on their medication (HEAVILY condensed version, not to get into it) but I don't think she'll listen to me when I try to explain why I'm terrified of it.

Medical malpractice caused my mum's lifelong chronic pain and is the reason why she's bedbound. Her being bedbound lead her to feel a lack of control over her immediate surroundings and to lash out and become abusive towards me and my siblings. She had a carpel tunnel get operated on, the operation got botched and the pain spread throughout her whole body, leading to her becoming bedbound within 5 years.

Doctors will hear about this and say "the surgeon was just having a bad day" or "it was just an accident, don't get so out of shape about it" while being willfully ignorant, or just not caring about the fact that they caused a perfectly fit individual to deteriorate in 5 years down to a bedbound abusive narc who lives through her kids and enjoys exerting what little power she has over them. Sure, the tendencies were there already, but without the ability to go out and get it out of her system on other people, she turned to the only people in her vicinity. Me and my siblings. Literal children at the time.

The reason I bring this up is because I don't want to use medication as a crutch, I don't want it to be an excuse for abuse, I don't want to be given that as an easy fix for the lazy psychiatrist who doesn't want to do her job and will just medicate away a problem that needs therapy, deep internal healing work. Not a pill to placate the symptoms. I want to fix the root of the problem instead of living with guilt and shame but having a pill keep me in a tolerable level of discomfort. I want that discomfort to be gone.

For other problems, pills are fine. But not mine. Not this one. I need to adress the root issue of my trauma and a pill won't do that for me.

No hate to people who use meds, I, myself use paracetamol and ibuprofen, I'm just scared, because of my personal trauma, of taking pills that mess with my head. Its a personal thing, not judging anyone here cuz I don't know you or your life or your story. Peace ✌️

Most ableism is covert coercion of “equality” Ignoring the fact that not all bodies are equally capable of the things they think we should be able to do

So I started using a cane for balance for my vertigo (I fell at work twice) and it has been helping. The issue is that almost everyone I see asks me for updates for my health and how I’m doing. It’s sweet and everything because it shows they care but it’s just like everyday and I don’t have anything more to say. It’s like being in Groundhog Day:

Them: hey, woah the cane? Me: yeah it’s for the vertigo Them: yeah I heard you fell, how you holding up? Me: I’m doing okay, you know going to physical therapy Them: oh yeah physical therapy is the worst, my grandma had to go for her stroke and it was a lot good luck

Next day

Them: hey how you feeling? Me: doing okay I’m here! Them: and how’s the dizziness Me: yeah taking it day by day

Rinse repeat

What are some places , businesses, or programs available that offer discounts and perks for disabled people? For example I (39m from USA) was able to figure out I can get half off amazon subscription for having snap or Medicare, and was also able to get a disability card to get discounted bus fare from the transit authority.

What other hidden discounts and perks have any of you been able to find?

Can a person who just got full disability go back to school full or part time and still collect disability? Relative lives in Wisconsin and just became fully disabled and gets the maximum disability. They are looking into going back to school to either get a second bachelors degree or to get a masters degree. Would this be allowed? Would if affect their disability payment or food stamps?

Hello, I’ve had hidden mental/physical disabilities for most of my life. I’ve been officially diagnosed with Autism/OCD and Fibromyalgia. I also have a 21 year history of eating disorders and have cracked my pelvis once and injured it again in 2022. For the last few years my health has really declined to being non-functional. My stamina is non-existent and it doesn’t improve with exercise. Lately I’ve realised that if I ever want to get out of the house again/improve my mental health and be independent I need to go via Powerchair. And it’s been a life changer because lately I feel like a human being again. However my old imposter syndrome is back telling me I’m not disabled enough to use my chair. That I can stand up…so I must not deserve to have a powerchair. The Imposter Syndrome really starts screaming when I’m now looking into supportive housing for the future…due to the fact I really can’t live alone. Currently I live with my Mother. I always think “oh people have it worse, you can tough it out” or “You’re not Autistic enough to deserve any accommodation or you really could fight through that muscle pain…you’re just weak.”

So…now I question all my diagnosis and disability and it’s really playing with my head. Because it’s like I’m split between knowing reality but fighting these thoughts. How do you overcome this and am I considered a disabled person? 😳 Thank you

All of my adult life I have always struggled with maintaining any type of job. It always ended with a traumatic event and me shutting down, never to return again. After years of this behavior, criticism from my family, I finally found a job that I thought could be the one.

It was an office job, in a small, family owned company. Very low-key, relaxed, and seemingly the perfect fit for me. Until the person who had my position before me, came back, wanting their old position back, and they were unfortunately related to my supervisor. This lead to my supervisor creating conflict where there was none, saying she told me to do something when she hadn’t, and then blowing up on me. I did my best to remain professional and not get emotional (I normally would have just quit or walked out) and tried my hardest. Eventually she gathered enough “evidence” and I was terminated a few weeks shy of my 6 month employment there. I was devastated. I had never tried so hard to do the right thing. I had never masked so hard to fit in. I tried so hard. It didn’t matter.

After quite literally laying in my bed for what seemed like months, having my family back to criticizing me for being “unemployed yet again”, I decided that I needed help or I was going to do something stupid (self harm). So I started therapy. Eventually was screened and I was diagnosed with autism and adhd. I went 38 years of not knowing what was wrong. Now I knew. Things started making so much sense, I now knew why I felt the way I did, why things affected me the way it does, and why I respond to things the way I do. It’s like I’m relearning who I am. I don’t really know who I am. I’ve tried to be what everyone wanted me to be that I forgot what I wanted.

So now I need a job. It’s been two years since that firing and I can’t bring myself to even accept an interview. I get scared. The moment I get an email or phone call asking for an interview, I panic, and ignore it. Then I beat myself up for passing it by. I’m terrified of a repeat of what happened the last time, happening again. I’m tired of being an absolute failure. I don’t know what I’m good at, the things I am good at, isn’t an employable trait at least where I live (East Tennessee). Sending in applications are nerve wracking, the few interviews I have done, I bombed so hard because of my anxiety and awkwardness. I can’t mask anymore. I’ve literally used up every ounce of energy I have all these years, that I just can’t do it. So I would imagine I come off weird and off putting. I don’t know what to do.

Has anyone been in a similar situation? How did you overcome it? Helpful suggestions and ideas are welcome.