/r/schizoaffective

Photograph via snooOG

Schizoaffective disorder is a chronic condition that affects approximately .3% of the American population. We often experience psychosis and mood instability. Symptoms can happen independently or overlap. To fight the isolation, fear, and confusion around this condition, we created a place for schizoaffective individuals, caregivers for schizoaffective individuals, and those curious about schizoaffective disorder. This is a place without judgement where one can vent, discuss symptoms, look for

Welcome to the schizoaffective subreddit.

Check out our Wiki here, Build a Wellness Plan and Build a Crisis Plan!

We have an IRC channel and a Mumble server

Here are some other subreddits you may find helpful

Here's a list of mental health related subreddits.

Please do be aware, we are not medical professionals in any shape or form. We cannot diagnose you with any disorder or recommend meditations. It is always recommended that you always consult with a doctor before engaging in any activity, therapy or medication as advised on this subreddit. What we can do and are is a peer to peer support where we can share our stories and find common ground to build and work upon for the better

/r/schizoaffective

22,374 Subscribers

2

Feeling anxious

Hi I just started hearing voices 2months ago and I’m panicking about hearing them forever. I’m on meds and starting to feel better. Is there any people that fought the voices and got better over time? I’m scared of being stuck like this forever

How do you guys keep the delusions at bay?

0 Comments
2025/02/01
22:07 UTC

2

I’ve noticed my auditory hallucinations are based on past rumination or thoughts that were emotionally charged

Currently on Rexulti 1.5g & moving to 2mg in 4 days. Going to start a job skills course soon and hoping to rid hallucinations by March.

If I get into a low mood and worry about a situation, then either right away or later that day there will be 3rd person voices attacking me based on the topic I worried about but not in the exact way I thought it. And it plays back on a loop randomly. And if I have a negative emotion it will trigger those same phrases.

This also happens with words and music. Like just a few minutes ago it was mean voices (as I typed ‘mean’ I heard “you’re a mean lady” and I certainly am not mean lol I’m actually very intentionally loving and kind) but I’ve been practicing mindfulness so I just ignored the mean voices and let it pass then this song I was listening to early (in a happy mood) started blaring in my head and automatically playing.

I’m sharing this as a means to comfort anyone who may be stressed about voices potentially being real & not just mental illness.

Schizophrenia runs in my family on both sides and I had a very traumatic childhood and I distinctly remember dissociating as a young child to block out what was going on around me.

But it can still be confusing sometimes. Hopefully my new dosage eliminates the voices soon. If the Rexulti doesn’t work then I will go back on the Abilify shot.

Sending you all love 💕

1 Comment
2025/02/01
22:01 UTC

5

My life makes no sense

I'm not good in expressing myself, but, I have to say it's being hard to find a reason to live. My mind feels sick, I'm always sad. I feel hard to deal with my emotions, I don't know what to do with myself.

Sometimes I feel like I can't cope with reality, so I lie to myself about what I feel.

What you guys feel, it's like that?

2 Comments
2025/02/01
21:40 UTC

2

Please respond to the updated survey

Hi again everyone, my name is Anna and I am writing an AP research paper on schizophrenia and the Reticular Activating System. I am writing this because I have had a family member struggle with schizophrenia in the past which was extremely difficult, and would appreciate if you all could fill out the updated survey using the link to Google Forms below as it can potentially help determine one of the causes of this mental disorder. Thank you so much! 

https://docs.google.com/forms/d/1sRuxZn2LCcG8F7_gCTMog7kU6_dbPK2ZqIpfMQBgpjw/edit

2 Comments
2025/02/01
21:25 UTC

5

Do you worry about not being believed when something bad happens?

I have been diagnosed with shizoaffective disorder but I don't agree with the diagnosis. I don't hear voices, have pecursatory delusions or some of the other symptoms. I've been through alot in my life and have a diagnosis of complex ptsd as well. That I do agree with. I'm concerned that my trauma is going to be viewed as being delusional as a result. The last time I saw a psychiatrist that wasn't my usual one all they wanted to know about was my sex life and how many partners I've had. It felt invasive and unnecessary. I've been married for 15 years so why the interest in this I have no idea. I used to be a spiritual person and I no longer talk about my beliefs because that's the primary reason for my diagnosis. That and a psych medication gave me delusions which is the basis of the diagnosis. I'm very frustrated with the whole experience. I do take my medication but it's honestly just to appease them. I don't feel any difference in taking it.

0 Comments
2025/02/01
20:50 UTC

22

Today I feel good

A good friend, nice videogames, good food... I feel happy :)

8 Comments
2025/02/01
18:19 UTC

0

Please respond to this survey

Hi everyone, my name is Anna and I am writing an AP research paper on schizophrenia and the Reticular Activating System. I have had a family member struggle with schizophrenia in the past which was extremely difficult, and would appreciate if you all could fill out this survey using the link to Google Forms below as it can potentially help determine a cause of this mental disorder. Thank you so much! https://docs.google.com/forms/d/1sRuxZn2LCcG8F7_gCTMog7kU6_dbPK2ZqIpfMQBgpjw/edit

15 Comments
2025/02/01
18:16 UTC

1

please respond to this survey

Hi everyone, my name is Anna and I am writing an AP research paper on schizophrenia and the Reticular Activating System. I have had a family member struggle with schizophrenia in the past which was extremely difficult, and would appreciate if you all could fill out this survey using the link to Google Forms below as it can potentially help determine a cause of this mental disorder. Thank you so much! https://docs.google.com/forms/d/1sRuxZn2LCcG8F7_gCTMog7kU6_dbPK2ZqIpfMQBgpjw/edit

1 Comment
2025/02/01
18:16 UTC

3

Finding New job

Recently i changed therapy and was in psych ward 4 months ago, im still anxious and sometimes depresssing and i dont think i would function at a New job just yet. How long do you guys think i should wait until i go job hunting. I have unspecified psychosiss so far as diagnosed.

9 Comments
2025/02/01
16:48 UTC

1

Memory loss in a relationship

Heyyy I just want to start my thanking all of you who read this. I really have no one else to turn to. I recently entered a relationship with someone. I’ve noticed that since starting my brexpiprazol I may have started to have some gaps in my memory. I spend maybe 50% of my time with my partner. We’ve recently been getting into some arguments or just some passing comments where he will say something happened or I said something or he said something and I have absolutely no memory of it. I actually have a photographic memory (just had it my whole life, hereditary from my father) but recently I feel like I’ve been having big gaps in my memory. However, I’ve noticed that it seems like these gaps ONLY happen in relation to a conversation I’ve had with my partner. I’m honestly starting to doubt if I’m actually not remembering or if he’s making stuff up. Sometimes it’s harmless, but other times these “gaps” will conveniently put me in a position where IM the bad guy. He really genuinely doesn’t seem like the kind of person who would do that but at this point I just don’t know. This most recent altercation he said that I said something that sounded INCREDIBLY out of character for me to say/do and doesn’t make sense so now I’m starting to worry. I’m wondering if any of you have experienced this?

1 Comment
2025/02/01
14:41 UTC

8

Are all doctors like this??

I have had my symptoms for OVER TEN YEARS... And finally when the mental deterioration got unbearable (Not even kidding, I am probably down atleast 15 IQ points) and I decided to get diagnosed, all the doctor said is "Schizophrenia is a pretty rare condition, I think you're too depressed" because my family tree doesn't have "enough schizophrenics"??? Has this happened to anyone else, And did you get properly diagnosed?

11 Comments
2025/02/01
11:44 UTC

1

Problems

I am not well. Hallucinations, depression. Suicidal and meds are not working. I know I need to go to the ward. But I can't.

19 Comments
2025/02/01
11:01 UTC

1

Does the angle even matter?

I'm about to get fucked over from some angle really soon. I don't know which or why, but it is coming. I can feel it. The walls are closing in, the ceiling is unstable. I can't fight fate forever. I'm trapped with no way out. just don't get yourself in this position

5 Comments
2025/02/01
09:10 UTC

1

Any good 18+ discord servers for SZA / Bipolar1? I'm in a low spot rn

I tried looking on disboard and elsewhere for a MH server, every single one I joined was just not it. I'm not picky but half of them were just dead.. And the others were either full of the annoying 'label collecting' crowd if you know what I mean or they were full of minors. Usually both. I just wanna have one space I can talk to people who understand and I can relate to.. Maybe even just make friends to play games with or whatever. Esp hoping to make another female friend with either disorder

Anyway if you have something please DM me the link

Sry if this ain't allowed btw, idk where else to ask cuz I give up on disboard now

4 Comments
2025/02/01
09:02 UTC

6

Voices

What are your voices like? What do they say to you?

41 Comments
2025/02/01
03:04 UTC

30

After months of not having a job, I finally got one!

I was fired from my high paying job in October the day after Hurricane Milton hit us. Talk about shitty. I made $70k. But due to my mental illness, I had a breakdown and lost it.

Now I found a part time medical receptionist job that’s two days a week at $19/hr. It allows me to go to IOP during the week but also have some income.

I miss the high pay, but I don’t miss the stress of it. I think I can handle this two day a week thing.

My parents are like slightly disappointed it’s not more hours so I can make more money. But honestly, I think this is a right fit for my mental capabilities of handling stress.

2 Comments
2025/02/01
01:54 UTC

2

Good charities / organisations with support groups

My mum (58F) has had schizoaffective disorder for 34 years, and since I have moved out, she has felt really lonely. She gets paranoid and worries a lot about everything. She lives w my dad but he is very restrictive and snaps at her/sulks a lot which doesn’t help.

I am looking for a organisation online which you recommend is helpful for someone who has schizoaffective disorder, I want her to be able to talk to other people who have experienced it or have someone able to listen to her and support her. I know there is the NHS or doctors or social workers etc but I am not looking for that, I’m looking for something that won’t be attached to her medical record and she can do when she pleases.

Let me know your suggestions, thank you.

2 Comments
2025/02/01
00:40 UTC

7

Idk how tohave conversations or make friends I never really had any friends growning up and spent alot of time in isolation.

I feel like I'm a freak or just isk hard to deal with or something. Because like it's so hard for me to connect with others really on a close level almost because idk how to talk or I don't really talk well and my bpd and schizoaffective disorder makes it even harder and I feel like I'm to weird for anyone to be truly a freind or anything to me.

7 Comments
2025/02/01
00:34 UTC

1

Voices, hallucinations, and spiritual causality

Hey guys, I'm Bipolar 1 and suspecting Schizo affective, I take lithium and risperidone. Sometimes I have visual hallucinations at night and get paranoid I am also diagnosed with PTSD. Sometimes I think I hear someone calling my name when I am listening to music, or like I'll take off my head phone and check to see if I heard something from the outside environment. My last psychiatrist said schizo affective was in my medical chart, but My diagnosis still says Bipolar and trauma related stressor. When I brought up my suspicion about schizo affective she implied it was because of my PTSD and more common or had some sort of causal relationship.

My current psychiatrist denied my schizo affective diagnosis and said my diagnoses were "up to date". When I looked in my chart I saw instances of psychosis documented.

Voices - I think I hear voices, they are not actual voices like that people make but they are psychological or spiritual in essence. They happen inside of my brain but they are different than my thoughts, they usually have a motive and emotion or personality. For awhile I thought I just had multiple dialogues going all at the same time but I can interact with these things and talk to them. They also tell me things or what to think. Like it doesn't feel like I am thinking a the thought it feels like an outside entity is speaking a thought into my mind but it manifest as a different voice, they have a different frequency or vibration than my own thoughts. Like the essence and quality of them is different. I can hear them chattering as I think or have my own internal narrative, sometimes it's just whispers but other times when I "summon" them or become "possessed" by them I go into a hypomanic creative hyper focus.

Usually I summon them when I am working on music or writing a song. I am a rapper and when I go into my creative mania I am taken over by this obsession and blur. I lose my identity and become the voices, like I just let them in and write down what they say, I will think a thought like "what rhymes with erratic" and I listen for the voices. When I am writing essays I am using my own voice and thinking about what to write, but when I do this creative writing I am like transported to another realm where I channel it. Hard to explain. Its like I am a frequency or vibrational conductor for these voices and once I attune myself to match their energy I can channel all their energies. Other times they can project visuals onto me where I will hear a beat then I can visualize the atmosphere or feel the energy an frequency the beat summons. Hmmm. It's like my voices match the frequency of the beats and then they paint a picture and help me describe it, it's like a really intesne day dream but it like consumes me and I forgot what I'm doing or what's going on. I like go into a flow state and lose all sense of identity.

Its similar to the observation during meditation, or the experience while reading fiction. Its like words and images but they are external and I am stepping into them. Rather than me generating them and creating them. It's a very spiritual experience to me and I am not sure what to think of it, I have a very spiritual personality, I meditate and practice magick so I don't know if this is affecting it. And I am not sure if I am just a very creative person with a spiritual interest so I am perceiving it as this. I am also not too sure what my psychiatrist would say if I told her this. It's always been "normal" for me so I just figured it was normal. I am not too sure how other nuerotypical people would describe this.

Sorry if this made no sense...

0 Comments
2025/01/31
22:03 UTC

6

Feeling a lot less sexual arousal after invega shot

Has anyone experienced this? I feel like my sexuality and instincts are supressed.

24 Comments
2025/01/31
21:14 UTC

5

Lithium

I finally start a mood stabiliser after 10 years of being diagnosed as a schizophrenic and no medication working for me I will be telling you how it effected me soon stay tuned

3 Comments
2025/01/31
18:41 UTC

5

Schizoaffective disorder and job

I had a psychotic episode 3 months ago and have a diagnosis now which is sczhizoaffective disorder. I have been out of work for 3 montxs now and it is killing me. Im tons better now and taking my medication but doing nothing, sitting at home is unbearably hard. I have always been a proctive person, doing a lot and keeping busy. I feel like having a job would definitely make me feel better and more positive, as it did when i had my first episode 10 years ago - it made me stable and i know exactly the job that is suitable for me, which is being in a stressfree environment and working independetly.

Now.. my question is this. My doctor thinks I am unable to work and I get benefits for a year, but I believe I am ready to work again. Should I tell my future employer about my mental health and that I take medication? Honestly, I have shame for that for some reason, altough in the past it didnt stop me from working. Should i explain why I was not working for the last 3-4 months (due to mental health), I was actually in a mental health unit for 1 month but have terrible shame for that, at the same time I do not want to be dishonest.

Would you say about your mental health/conditions to a future employer?

12 Comments
2025/01/31
17:34 UTC

3

Lonely

Im in different situation, my so called close friends are treating me like i Dont Even exist after i told them about my 3 psyh ward stays and ive been strugling with alcoholism since the age of 21,but i kinda understand them since when we would hang out there would always be alcohol involved and i would be the one to get most shitfaced. I admited my problems to a doctor at the age of 27 Now its been 3 years since im in recovery, lost like 5 jobs and anxeity and depresssion are high.

4 Comments
2025/01/31
16:09 UTC

3

Geodon and waking up at 3am

So my New antipyschotics are Geodon twice a day 60mg, im also on mood stabilizers, Valium and Zolpidem(Ambien) which isnt working for sleep any more. Im addicted to nicotine and caffeine(i have like 3 to 4 cups a day) Sometimes i sleep during the day to make up for my lost sleep over the night. Overall my sleep cycle is ruined. What should i change to get it back to normal

3 Comments
2025/01/31
15:56 UTC

10

Being alone perpetuates lonliness

I'm on disability. I have a lot of time to myself. I have some friends and family. There's some people I talk to.

But it's hard to get new people in my life. I move too quickly. I never quite have a gage on time. Like... not talking to someone for a few days or even a week is a long time for me. Most people when I first meet them, they maybe only wanna talk to me every 3 weeks or so.

For someone who doesn't work, 3 weeks is an eternity. Especially if it's someone you really like talking to.

A lot of people I'll check on them like once a week, and it's somehow too much.

Maybe just nobody likes me.

18 Comments
2025/01/31
15:31 UTC

4

Voices

My voices NEVER stop. They are worse at night. I would love a nights sleep without hearing them or having lucid dreams.

5 Comments
2025/01/31
14:41 UTC

6

Cobenfy

Does anyone have any experience with this med? I’m on latuda right now but it’s doing nothing to help me in school. I’m having trouble focusing and sitting down and completing important tasks.

Also for the copay coupon, what are the parameters? I know something they only cover up to a certain amount per year. Has anyone tried using it? I have crappy insurance and I doubt they cover much of the medication.

2 Comments
2025/01/31
14:23 UTC

1

Overwhelmed by positivity/big emotions?

Hey everyone,

Not sure what this actually is. But often, in the afternoon/evening I'll start to get overwhelmed. I think when I'm more vulnerable after the day. It's triggered by different things but sometimes it's from my art. I'll do something I really love, then the positivity of it becomes overbearing. I feel this intense energy in my core that builds up and takes me far enough away from my "baseline" that I get overwhelmed. I try to not react, think small, don't want to go out, isolate, relax, lay down, "be boring" on purpose, and hope it subsides. Typically I'll sleep and it goes away in the morning...

Part of me is like seriously? I can't feel good? How should I deal with this? Should I try to get into it? Should I express it?

1 Comment
2025/01/31
13:59 UTC

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