Hi,

Daughter is 3 and weighs 29 lbs. She isn't potty trained at all. She hates being on her back and hates having her diaper changed. She kicks a lot, tries to grab the diaper and throw it away, rolls around, tries to stand up on the changing mat...

Problem is, my left arm has been damaged years ago and I have trouble containing her. Plus I'm petite and cannot always avoid her kicks (my arms are short...). Yesterday she kicked me in the plexus and it still hurts.

I'll take any advice you can give me...

I'm 16f and my boyfriend is 16m and I'm going to meet his family soon. He has a little sister that is in the 10-12 age range that has Down syndrome. This is meant to be in no way ableist (I have mild cp and my older brother is high functioning autistic) and I just want to know how to talk and handle her. Do I talk to her like someone in her age range or is there specific things I need to watch out for? Also I know she tends to scream and yell a lot and I have damaged hearing from working at high school welding and auto shops so loud screams hurt a lot. Is there some kind of boundary I can set about it or should I just wear hearing protection or just ignore it? Any advice is appreciated to make the best possible impression. I know my boyfriend loves his sister and I want to be good friends with her too. She's heard about me and loves me already and I just want to treat her the best I can.

My 3-year-old, Brixton, is dealing with the usual cold-weather issues—lots of mucus and congestion. He gets really boogery and phlegmy, but since he’s still too young for most medications, we’re a bit limited in what we can do. He lets us wipe his nose occasionally, but we can tell it’s starting to make his nose sore. He can’t blow his nose yet, and using a suction tool is a definite no-go for him.

We’ve tried a few different approaches, but I was wondering—what have you found that works to help your little ones with all the snot and phlegm? Any tips would be much appreciated!

I have a 3 month old baby who surprised us with a birth diagnosis of Down syndrome. He has quite a few medical needs including open heart surgery next week and a recently placed Gtube amongst a few other needs. Our original childcare plan after maternity leave is looking less and less of an option. Between therapies, surgeries and his many specialty appointments I am realizing going back to my full time teaching position is unlikely in order to get his needs met safely. However, we can’t afford to be a one income household. Any advice on getting IHSS (CA resident) for your own child with Down syndrome? Won’t qualify for SSI. Bonus if you have advice for navigating signing up for Medicaid or whatever resource he would qualify for. If that doesn’t look promising looking to see if there are daycares I can get a job at and take him or something flexible or something from home. I’m struggling to make sense of how to stay afloat and care for him. This is all foreign to us and any advice or experience is greatly appreciated. Trying to find a part time job is seeming challenging as well given his feeding schedule his nutritionist is requiring. Thanks for any help!!

From the biggest accomplishment to the smallest moment, share a moment of celebration this week!

Please remember this is a thread to celebrate, not compare.

New Grandma here with our little nugget due in early March. DD would like the combo. I understand Trisomy 21 babies often have low muscle control and we anticipating an early birth due to Placenta issues. Would appreciate any suggestions or recommendations. With CyberMonday approaching…any deal is a win. Thanks!

I’m currently 14 weeks pregnant with an IVF baby girl. Our genetic testing before the embryo transfer was normal. My 12 week genetic testing came back with a high chance of Down Syndrome. I’m really worried. What do you do if your child with Down syndrome outlives you and you have no one to take care of your child? I know some people are not even lucky enough to have a baby… this was our one and only surviving embryo that passed genetic testing. Our miracle baby.

Hi everybody!

I adore my brother in law, this year for some reason I am finding it hard to think of a Christmas gift for him.

He is 41, mostly non-verbal and would not be considered high-functioning. He now has arthritis in his back so he finds it very difficult to move.

He loves wolves, vampires, superheroes and some video games (though he finds it very difficult to play anything that with more complexity than say a Mario game). I have bought him every sort of toy from those categories over the years, but he is not able to do much with them anymore.

I had thought of getting him something like a mobility scooter because he finds driving games fun and as I mentioned his mobility is not good due to arthritis, but unfortunately he is not able to operating anything motorised.

I would really appreciate any suggestions - thanks so much!

My friend is her care giver and I gave the okay for her to have my number. She is very sweet and always wants to play pretend that we are her favorite movie characters. Issue is she repetitively calls to the point that I’ll have 20ish missed phone calls a day (with voicemails), coming in spurts of 5 - 8 calls. I understand now why my friend said she gets blocked by a lot of her phone friends. I had to make a special do not disturb setting just for her contact. She is super sweet and well intentioned, I think she just gets lonely and loves connecting. Any ideas on how she could make more friends? Perhaps that share her passion for phone calls.

Hi everyone,

Our daughter was diagnosed with Down syndrome after birth. She has what the doctor described as a small to medium VSD (~4-5mm) and high pulmonary resistance. Since day 2, she has been on oxygen at 1 lpm, and she’s now down to 0.2 lpm. We’re in week 6 of her NICU stay.

We want her home so much, even if that means she stays on oxygen, but we also want to make the safest choice for her. The doctors are planning to wean her off oxygen completely before discharge, but we’ve read here about many babies being discharged at 0.5 lpm or even higher.

If your baby had similar complications, we’d love to hear about your experiences—especially about transitioning home on oxygen or decisions around discharge criteria.

Thank you in advance for sharing your insights—it means a lot to us.

Been such a whirlwind few months since the diagnosis but this little girl is such a trooper she even flipped over for the first time this week. Every time we feel low or scared she gives us such a beautiful smile all negative feeling just evaporate away.

Hi,

My partner and I will be going through a separation in the near future. I am wondering if there are any words of wisdom on ways to support my 8 year old kiddo with DS through this?

Thank you!

Hello everyone,

I am 32M with a little brother 29M that has DS. We have always been close and I love him with all of my heart but think that it might be time for me to leave the nest in the near future. That being said, I am feeling guilty about leaving, because we currently live with my 70 year old mother and my brother does require quite a lot of assistance with ADLs (Specifically meals, toileting, and bathing).

I would like to explore getting supports in place at home but I am hesitant of agencies due to the fact that my brother can be behavioural at times and refuse care. I worry that agency caregivers usually have multiple clients in a work day, and may just take the refusal as a cue to leave for their next client(s), as they would not have the luxury of time to re-approach when his behavioural episode has subsided.

Wondering if anyone is/has been in the same boat? I would like to explore a private care giver that is solely dedicated to him but I don't really know how to approach that. The only avenues I can think of are Facebook and Craigslist, which don't always yield reliable results. Would like to get some advice.

Thanks in advance!

From the biggest accomplishment to the smallest moment, share a moment of celebration this week!

Please remember this is a thread to celebrate, not compare.

I am a 3-year-old DS, and I guess this question might be a normal question coming from any other toddler. He does have speech delay and speaks in one word. He goes to the daycare from 8am - 5pm. He is usually a very sweet and loving kid, but he gets angry when another kid is annoying him or snatches something away from him etc, and in retaliation, he bites them. This is the third time the daycare has called us about this, I have tried biting toys and other interventions over the internet. I’ve asked the teachers to just distract him and separate him from the kid who’s bothering him, what else can I do? FYI he doesn’t bite us at home, he is our only child so no other kids at home either.

Navigating the complexities of parenting has always been a challenge, but lately, it feels like I’m on a whirlwind journey. My daughter, 13, and I have been through some rocky patches in our relationship over the last two years. After 15 years with her mother, I made the tough decision to leave—not just for my well-being, but for my daughter’s, too. Unfortunately, this choice has limited my time with her; I only get to see her twice a week, under close monitoring.

While I cherish each moment I spend with her, I can’t shake the feeling of frustration over how much I’m missing. It’s bittersweet to witness her transition into adolescence. The days of playing with dolls, dance parties, and impromptu wrestling matches seem to be fading away, and I can’t help but feel a sense of loss. But on the flip side, I adore seeing her mature and grow into her person—it's a beautiful transformation that I wholeheartedly embrace.

Communication between us is becoming more of a challenge, which often leaves me feeling disconnected. Yet despite the difficulties, our love remains a powerful constant. During our visits, the strength of our bond shines through. She often reminds me of how much she loves me, and it fills my heart to hear her say I'm a great dad. However, she also expresses her frustration with our current situation, and it breaks my heart to see her suffer.

I’m reaching out for recommendations: are there any books focused on improving communication with a teenager with Down syndrome?

Additionally, I’d love suggestions on literature dealing with divorce and navigating this new chapter as a father with a daughter who has unique needs. Your insights would mean the world to me!

For context: I (38f) had my son(18) when I was 20 years old. I had no idea he had Downs until he was born because all of my prenatal testing came back normal. When I first saw him I knew something was off but was in love anyways. (Thank god for libraries back then lol). His "sperm donor* - not so much. Within a moth after receiving confirmation that he was DS, he split..he wanted nothing to do with him because he was disabled.. And I don't have a great support system either way so I pulled up my big gal pants and took care of my child. Was it easy, hell no! Open heart surgery at 2 months (6 weeks being an hour from home) 3 in-home therapies a week, schooling and managing to work full time 😳 Looking back it's actually a very rewarding feeling, I was a bad-ass lol 😆

Ffd 8 years I meet my now husband. My kiddo has adored him since day 1. I got pregnant with our son at 29, but even before that he (husband) stepped up to the plate (100% on his own accord) and once said "that's my son and nobody will tell me different". They've always had a great relationship and we've been happy.

Now, here we are with a disabled 18 year old (I have guardianship of him) and an 8 year old. Before becoming an "adult" our son was a delight! Ups and downs the last few years due to puberty but nothing crazy. That was a turning point tho. He turned 18 in August, and the "adult" thing is going to his head waayyy too much! The last 3 weeks have been the worst...he's breaking simple rules at home, rarely talks to us without an attitude and has been soo mean to his brother. He recently stole a beer from our fridge, snuck it upstairs and drank it! Hubby saw it in the can outside bc it wasn't tied.. When I found out, I went off on him! This was also on the heels of me seeing a ton of candy wrappers and empty juice boxes in the bag he brought down so he was already in trouble for that. I'll admit I went too far with the yelling, but I was soo pissed! I removed myself but went up to his room after I calmed down and explained why I was so mad because he not only broke more rules but he broke the law! And in doing so, his dad and I could have got in trouble too for contributing to a minor. Ended the night on a good note, or so I thought. I was gone the whole afternoon today but got home to my husband telling me that our son was mad all day because we hurt his feelings, and now he wants to move to my mother's in CA (we're in MI). Huh?? He doesn't like "grandma"! My mother is a legit Horrible person btw! I went NC with that woman for many reasons and one was to protect my kids from the monster I know. She has crushed my sons heart multiple times by coming back then dipping on him (I'm used to it), doesn't know him or gaf about him. I could go on & on but I kinda already have. Bottom line, I was crushed when I heard this..Obviously this will NOT happen! I wouldn't never allow that. But idk why he would say that or has been acting like an ass lately. Talking to him anymore is like talking to a wall and I don't know what else to do/try. TYIA for any advice at this point..

Tl;Dr My "ride or die" DS son is taking the adult title way too literally and now feels he doesn't have to follow any rules (or laws apparently) in our home and is treating us all like crap. I've tried talking to him but he won't engage and I don't know what to do..pls help

Do you all recommend speech therapy for newborns with T21? Our son is a twin. His sister does not have T21. He spent time in the hospital for an omphalocele correction and hydronephrosis after birth and is home now doing well. We were taught a lot of tips by the speech therapist there. Now I’m getting quotes for twice a week at home $150 each for newborn strategies. This seems extremely expensive when we are just working on his suck with his feedings. My husband and I are both in healthcare. My husband being a dentist. Are these sessions necessary right now?

I just wanted to thank you all for being so open and positive about this diagnosis. It’s helped me to process my situation about my baby testing positive for t21. I am 17w6d pregnant with my 4th child. A baby girl. I wrestled with so many emotions you all have expressed so clearly. Down to denial, grief, fear, and finally acceptance. I was afraid there wouldn’t be any support or there would be too much judgements to handle and I blamed myself. Seeing the posts on here and the beautiful children you have, those special moments, has given me strength to accept things and go on, hoping for nothing but the best health for my girl. I am so interested to see and read about more experiences so I can get a better idea of what to expect for the future.

I just wanted to say thank you.

My wife and I welcomed the birth of our first child on 11/6 however it was not anything we saw coming he was 3 1/2 weeks early shockingly we were told he had some swelling and the recommended a delivery today and we had no signs or worrisome markers prior to his emergency delivery we originally planned on only having one child and only wished for happy we are angry we mourn and don’t know how to feel considering what happened she hemorrhaged lost lots of blood could have died our son came out incredibly swollen and did not breathe well we thought we were out of the woods then she bled a lot and was admitted to the icu while our son was admitted to the nicu we were told he has no heart defects and the swelling around his head and heart look better so we thought we would be okay then came a increased white blood cell count and the fear it could be leukemia or a transient disease he went on chemo for 4 days and he has been improving but we have no idea when he will be able to go home they have diagnosed him from his blood with trisomy 21 I just hurt for him and my wife we had a very different picture I know I should be thankful they are both here with me I’m just hurt seeing others go home or have typical births especially friends I’m happy but wrestle with emotions however walking around the hospital we see others who are dealing with worse or something else I just don’t know how to handle these feelings sorry for the huge rant or if this is too much I just don’t know what to do

My (F43) sister (F40) has Down’s Syndrome and is currently experiencing psychomotor and behavioral issues. Forgive how extensive and long this post is; I don’t want to forget anything that may speak to how to proceed.

If anyone in this or the medical/mental health community has any direction to give, it would be much appreciated:

History: B was born with DS and congenital heart defects. Apart from the contant runny nose, cough and frequent illness, she was an engaged and fairly independent spirit. She had open heart surgery before age 5 to repair multiple holes in her heart, which tempered regular physical illness. She has always stuck out her tongue and rocked.

She enjoyed school and learned to read for comprehension and write well, even in cursive. When B started high school, she began digressing significantly: she would stare into space, stare at her hand for long stretches and could no longer feed of bathe herself for a time.

Due to the high crisis nature of her switch, doctors ended up highly medicating B for mental health issues like OCD, depression, etc. Serious medicines like Geodon, Buspar, and Abilify.

In addition, doctors spoke about a stroke B experienced at about 16, though it was in a historical context. It took some time, then, for my parents to focus in on this event as monumental in B’s overall shift. And, as behavioral issues and other complications cropped up, we were forced to reevaluate our approach and direction in her treatment.

Present (the last few years): B began showing stress, aggression and rage symptoms when distressed by authority figures or her other handicapped roommates or coworkers. Things began digressing to the point we wanted to reevaluate if the mental health medication was helping or actually masking other problems.

Last year, We began slowly tapering down her large medication list to get back to square one and this process has revealed the following:

• Psychomotor symptoms similar to tardive dyskinesia: ticks, clicks, stretching of the neck/jaw and extreme stuttering. Parkinson’s was ruled out.

• Also, The obsessive/compulsive nature of some behaviors emerged. Recently, her staff cleaned up her closet and within 5 minutes, B had pulled everything down off the hangers. She rocks so intensely in the shower it’s difficult for staff to bathe her and she used to be able to bathe herself.

• She experiences distress and has breakdowns and emotional outbursts with interpersonal relationships, mainly with disabled roommates and those in the community performative alternatives group she attends daily.

• She stutters terribly and it’s painful as she MUST complete a thought when her mouth will not cooperate.

I’ve only scratched the surface with literature on Down’s Syndrome and repetitive patterns and affect, but I know much of this is not uncommon. Any resources on specific DS and Mental Health research is welcome.

Considerations and Future Plans: I appreciate that permanent/semi-permanent “tick” behavior can occur after years of heavy medication and after a clean MRI, we’ll be taking B to a neurologist in January. Any medication attempts to address her high energy and anxious behavior has not been helpful.

She was diagnosed with thyroid issues years ago and has gone from being quite overweight to not being able to keep weight on. She is constantly going.

While B’s psychiatrist has been a positive influence, it may be time to seek out more specialized psychiatric care from someone with specialization (does that exist for DS?) and a more aggressive stance vs maintenance-based approach.

B is also heavily involved with her group home’s behavioral plans, works a local behavioral solutions group for disabled people, has a case worker, music therapy, etc, etc.

So, our approach is 3-prong: a fresh look from neurology and psychiatry with in-home and community behavioral solutions for disabled people from local media programs and through her case worker.

My Take and Family Involvement: Feel free to skip my following opinion; it is well meaning and investigative but there’s much I don’t know. I am deeply grieved and bordering on desperate for B’s quality of life. This is echoed in a united family front: my parents and B’s Case manager with the legal and time commitment; me attending appointments and taking on tasks to ease my parent’s load or if I’m most qualified, along with participation a d support from my 2 other sisters (36 and 29) who loop in as they are able.

I will freely admit that I, as her sister, I have no medical training and am not an official legal guardian. Now that I’ve moved close by to our family, I do attend her appointments, am the historian and note keeper I am deeply invested in B’s quality of life and my 2 other sisters and I understand the weight of carrying on B’s care after my parents pass.

Currently, my input carries some weight in decisions for her care and I offer my experiences in mental health as best I can: I suffer from PTSD, GAD, ADHD and OCD that has been highly, if not overmedicated over the years. So, I speak from a place of appreciation for the experience with many of these meds and my commitment to engagement and participation in her care. I’ve tried 40-50 different medications in the mental health vein; I am not sure the genetic component along with my own resistance and sensitivity to treatment speaks in any way to the direction we should go for B in the future. I continue to offer my experience as things have changed, often for the worse, with B.

To me, it seems to be a combination of fallout from her stroke as a teen, combined with OCPD and Dependent PD-type behaviors that may or may not be due to her Down’s Syndrome, along with concerning psychomotor symptoms that may or may not be due to years of serious psychiatric and psychotropic medication. But, I’m clearly out of my league, thus why I’m here for any and all folks may share.

TL/DR: My sister with Down’s Syndrome has been digressing mentally and physically as of late. Mental Health and Pyschomotor Problems stand out and must be addressed. If this post gains any traction, advice or direction, I’ll be sharing with my parents and if pertinent, with B’s staff. The strain of seeing B fight to get a sentence out, flying into a rage or breaking down weeping with interpersonal dynamics combined with her obsessive and compulsory behavior is heightened and difficult to process.

Our family has and continues to have high hopes for B’s quality of life and are committed to finding solutions, but every new try becomes another rabbit hole. We cannot waste time if misdirected and we need clarity and support; real resources and steps.

B is a beautiful soul; she and I are inextricably bound by family, the trauma of her condition and a deep love and commitment. Please, if you can speak to any of what I’ve presented, I would be deeply grateful. Thank you.

Sincerely, B’s older sister, L

Hello, i just joined the group seeking some advice/guidance here. Im not familiar with anything Down syndrome related other than my experience (for the past 15 years) with my wife’s cousin. But I only see him about 10 times a year. But here are my questions. My Mother in law has an older sister with a son with down syndrome. And by older, she is almost 80 and I believe her son is 44. Long story short, my mother in laws sister has been in the hospital for an extended period of time. We thought she was going to get out soon, but that not be the case. Her son as been staying at my mother in laws house while her sister has been in the hospital. My mother in law is a single woman with her own medical issues (69 years old) and is literally getting worse by the month. My cousin (the one with Down syndrome) has no idea what’s going on. He doesn’t ask about his mom. He doesn’t ask about his house. He literally has a routine every day that consists of watching TV to talk to his GF ( Selena Gomez) pretend to play drums, and play video games. He does do whatever you ask him to do like take the trash can out etc. And I’m sorry if I’m offending anyone. I don’t know the different layers to this. But what I do know is that is seriously taking a burden on my mother in law. Unfortunately, we (meaning me and wife or brother) don’t have the room or time to have him live with us full time. Is there a place, a group home, anything like that for people with Down syndrome? Willing to pay as well. Just trying to see what’s out there for people like him. Any insight would be appreciated!

I'm from North west Europe, my wife is from Latin America. Both 40ish. Daughter 7 yo with Down Syndrome, with thankfully near to no medical issue (successful open heart surgery 2 years ago but that's all). Education and behavior wise she does okay, but the DS is noticable. What's important is: she loves reading and educating herself. If I let her choose between a doll and a book, she chooses the book. Her brother is 1,5 years younger.

We've been living in Europe, with me as the sole provider. More and more we're encountering the limits of bureaucracy - our daughter is, and has been, enrolled in schools where she doesn't receive adapted or ambitious care - it looks more like daycare even in regular schools. Attempts to open up discussions we run into "that's the way it is", "leave it to us", no possibility for exceptions like homeschooling or selecting your own therapist (yes you can, but in the evening or weekends when our daughter is exhausted from playing in school). My wife being from a more flexible culture and thus not able to connect herself, complicates things further.

We were already considering relocation because we both don't feel really at home in this literally and figuratively cold climate, but our latest conflict is really putting us to the choice. We've tried nearly everything here.

My job is in IT and I think I could grow higher in a country with more opportunities in my niche. We own a house now so we'd carry some money with us to make a start. If we feel better about the care for our daughter I think my wife could also get a job and thus make financing a lesser issue.

A Spanish or English county would be most fitting because of language. UK, US, Mexico, Spain...

Any ideas on above list? We're mostly looking for a more flexible and accomodating place.

Edit: I know I actually don't have a right to complain and we are relatively lucky. But I feel so sad looking at my girl's potential and no one really picking up on it.

Hello, I have a 5 month old son with Down syndrome, and I just wanted to share something that might encourage those who just found out their child has Down syndrome.

He's our first (maybe only, who knows) child. We decided not to do any prenatal testing, because we didn't want to feel extra worried during the pregnancy. We didn't think it was likely to have a child with Down syndrome, since neither my wife nor myself have any known blood relatives with Down syndrome. However, my wife being in her late 30s supposedly did increase that likelihood. She had the easiest pregnancy I've ever heard of. No morning sickness, no excessive weight gain, no gestational diabetes, no heartburn, no swollen ankles. Just a little bit of lower back soreness in the last few weeks. Because of this, we thought this was a good sign that the baby would be healthy.

Then came the day he was born. The birth was also uncomplicated. My wife decided not to use any anesthesia, except for some nitrous oxide towards the end. The contractions were pretty intense for her, but nothing out of the ordinary. He came out in just one or two pushes. When I first laid eyes on him, I immediately noticed something different. One of his ears was folded over at the top, and he had the almond shaped eyes typical of Down syndrome. I asked the midwife if she thought he had Down syndrome. She said she wasn't sure, but that he definitely has some of the common features of it.

I lost it. I had to go outside to get some fresh air and felt like crying. My mind started racing. Will be have a difficult life? Will we have a difficult life as parents? Will he have a lot of health problems? Will he ever be able to speak, dress himself, feed himself, go to the bathroom by himself, get a job, live independently, or drive a car? Will we one day be 90 years old still struggling to take care of a 60 year old adult baby who needs 24/7 attention? How could this happen to us? Why us?

Up until then, I had very little experience with Down syndrome. I remember one boy with Down syndrome in elementary school, but I didn't interact with him much. My uncle (not a blood relative) has a sister with Down syndrome, but I hardly ever saw her, since she lives in a group home. That's about it. So I decided to do some research. I learned that everyone with Down syndrome is different. While there are some who are nonverbal and totally dependent on parents/caretakers for almost everything, there are also some who can live independently, drive, work full time, and even get married. I immediately started to feel a little better and went back to the room. I held my son for the first time, and he looked straight into my eyes. I felt peace, and felt like everything was going to be okay.

We got genetic testing done and he was officially diagnosed with trisomy 21. My only real concern at this point was the risk of congenital heart defects. We took him to a cardiologist and had an ECG and echocardiogram done, and they found no real cause for concern. Thank God, what a relief! I've heard stories of babies with Down syndrome having to be rushed into open heart surgery, and that terrifies me. We also got his hearing checked by an audiologist last month since he failed his hearing check at birth. It turns out, he actually has normal hearing. He likely failed the post natal hearing check because of some fluid that hadn't yet drained out of his ears at that time.

He's now 5 months old, and he truly has been the best baby I've ever met. He usually sleeps through the night! Typically, he'll go to sleep around 7 pm, and only wake up around 5:30 or 6:00 am. He doesn't sleep much during the day, but that's okay, we all get a full night's sleep most nights. He's not fussy, and hardly ever cries. I think he's only really cried maybe 10 times so far. He loves smiling and giggling. I love how he looks into my eyes and gently caresses my hand/arm while feeding him. So far, he hasn't seemed to miss any milestones yet. He doesn't seem to have poor muscle tone, as he mastered tummy time pretty quickly, and has no trouble supporting his head by himself.

I feel so guilty for having those thoughts when he was first born. I wish I knew then how great of a baby he would end up being. I love him so much, and I am so excited to watch him grow!

Hi everyone.

First I want to say that a lot of your posts have helped me on this journey so far. So thank you.

I am 20 weeks pregnant with a boy positive for t21. His 16 week anatomy scan was good, with no concerns. But doctors being doctors let us know that things start showing up 20 weeks and beyond. We have had a hard time finding moments to celebrate this pregnancy and I feel robbed a little bit.

A little backstory - we had to tfmr in March for a condition not compatible with life. So I have a lot of trauma in regard to loss.

Anyway, my question comes about celebrating and about telling people. After the 16 week, we decided to take our good news and share that we were pregnant. But our doctors keep reminding us that he could die. It’s heartbreaking and so stressful.

I’m a teacher. When do I tell my students? I got so jealous that a coworker felt comfortable sharing at 12 weeks!

Our next scan is Wednesday and I feel like I’m just waiting for bad news. Can anyone relate?