I have a KC since 2020 on one eye only. Do you use medical drops in your eyes to wet them ? I have been prescribed some but I'm afraid they will sting my eyes. TIA

hi! so i was diagnosed with KC in my right eye last August'23 after it appearing suddenly at the end of June'23. for context, i'm 25 and relatively healthy. my dr said that the KC has been stable (and as such i haven't been able to get CX covered) and that my left eye is still just suspect. he did mention that the eye with KC is a glaucoma suspect... ever since being diagnosed with KC in my right eye though, I've felt a bit of eye pressure near it. I'm not sure what it is or what's causing it, and i brought it up with my dr and he said KC doest cause that, and that besides KC my eyes were fine. I was wondering if anyone else has experienced pressure in the eye they have KC in, especially if you also only have it in one eye. my thought was that it could maybe be eye strain? but i'm not too sure and sometimes its incredibly noticeable and makes me a bit anxious.

edited to add: during my routine visits to the dr my eye pressure is always normal.

I was diagnosed with keratoconus and recently had a cornea transplant 23F. It's been 2weeks and my surgeon said I would be good to go to work after 2 weeks. But clearly not because my vision got worse, can't drive. Anyone here who had cornea transplant pls how long did it take for your vision to get better and get back to your normal routine??

Hello! I am on a short weekend trip and I'm in a pinch- I forgot to pack my saline solution to fill my scleral contacts, and I had only packed the boston simplus lense solution. At the advise of my optometrist, I typically put a few small drops of the boston simplus with the saline solution to fill my contacts to make it easier and more comfortable when I put them in, as I've only been wearing sclerals for about a month now. I desperately did not want to wear my glasses today so I used the boston simplus to fill my contacts and put them in. Its been a few hours and everything seems fine, but I'm getting a little nervous that I could be damaging my eyes. Has anyone else done this before? Should I take them out?

I was wondering if i Can shower with my scleral lenses in as long as my face doesn’t go under the water? Is it too risky and is the steam bad? I’ve been doing it quite a lot of times even though I’ve been paranoid but it’s mostly to save money so I’m not using double the saline I would else wise. So far it hasn’t done me any harm.

Hi, I've just been diagnosed with keratoconus, I live in Brazil and I'm 27 yo and have myopia on both eyes.

I just got my contact lens, and I felt from the first time I put them that one of eyes were not seeing as far away as the another one. I thought I messed up and switched, used for a couple of hours, everything was much better it but since it could be an effect of using it for the first time I switched it back again afraid of messing up.

But now with one eye I can't see far away and with the another one I can't see close. With both eyes open everything is "fine" I feel something awkward but I can see 20/20.

I will be able only to get on Monday, but I'm kinda scared since I used common contact lens years ago and never had this issue. Did I messed something up or I might've got them switched from the very beginning? Or is just normal from getting used to it?

It was actually very easy

Hi, what are the treatment options after cxl. My KC has stabilised in my right eye 8 years after receiving cxl. I wear standard scleral lenses at the moment. They provide ok vision but have residual ghosting.

Thight Scleral lens

I wear sclerals. I noticed some redness in my eye so did go to my optometrist.

He said the lens s a bit thight but he can not make it more loose than it already is so its fine!

But after a wear of some hours i can see a difference between both eyes one more darker than the other.

And after removing them i can see a red ring around my iris which obviously is from being thight.

I was wondering can this be bad and worsen the situation? Optometrist told its fine but somewhere im still concerned!

I had a corneal transplate in late 2013 and so far so good. My sight has been solod for a while, but I am considering getting a transplant on my other eye.

Should I be concerned/ worried?

Hey guys! Just successfully got both of my sclerals in for the first time today! 🥳

When I put them in at the office they were also off center and my doctor said they would slowly move into place over an hour or two but that never happened. He also said not to move them or slide them into the correct position but to let them naturally adjust.

Now I’m having the same issue, slightly off center. Is this okay??

Side note: warming up the scleralFil solution before putting them in helped SO MUCH. I’ve gotten so many tips from this sub!!

Hello!

I have relatively mild keratoconus and have had cross-linking in both eyes already. My ophthalmologist and optometrist both have said I could go on with soft lenses and there should be no issues. I'm just wondering if anyone here has been advised from not using soft lenses due to them possibly causing further progression since they do sit on the cornea.

Thank you in advance!

Hello people of Reddit!

I'm 27 yr old male Indian living in the Netherlands.

Sadly I have been diagnosed with Keratoconus today (attached my left eye pics for reference). My right eye is fine.

What is this complication? Does it worsen with time?

The optometrist tried with a few contacts lenses and later referred me to a higher speciality clinic where they specialise in medical lens or something called as scleral lens and asked me to go there. Should I go for it?

I'm very scared. Can anyone who has undergone this please help me? 🙏 😔😭

Have a nice day.

Hi, may I know if anyone uses this eye drop with RGP lens? Is it suitable with rgp lens?

Read online it helps with dry eye when wearing lenses

Many thanks 🙏🏻

Hi, I was just wondering what are people thoughts on the future of wavefront guided optics on scleral lenses. I understand from current studies, 40-60percent of HOAs are eliminated with this new technology. Do you think this can be further improved to let's say 90 percent?

I just got contacts yesterday. Didn’t get sclerals but hybrids instead and they work well I think. At first everything is in HD then it fades over time. Maybe that will improve as my brain gets used to it? Putting them in and taking them out is what it is. Day 2 was better than expected in that regard. The irritation and dryness I’m sure will pass as I get used to them. But I took the contacts out after a 12 hour shift because of the irritation and now I can barely see. If it weren’t for autocorrect this would all be gibberish. Idk what I expected but vision this poor after the fact was not it. It’s just a giant bummer that I’m going to have to deal with this for the rest of my life. I guess things could always be worse but man. This crap blows. I was diagnosed about a year ago. I thought maybe I had eye strain from working on a computer so much as a nurse. My original complaint was not being able to read the score bug on hockey games. And now I’m here.

Hello everyone!

Hoping someone here has been through it may be able to offer some advice.

My partner had her cross-linking procedure today and has been struggling with the pain after. She was prescribed Proxymetacaine up to 6 times a day for 2 days, but has burned through 3 minims in 6 hours. Is this normal?

She has also taken a Nuramol (big paracetamol and ibuprofen combo) which hasn’t had any affect it would seem.

For context we had a baby 18 months ago and she has said she’d pick labour pains every time… I would phone but the main hospital line is closed and it’s a long weekend and I’d rather not fill up the emergency out of hours line unless we need to.

Thanks all

Has anyone else had prolonged inflammation in the eye after epi on crosslinking? I've been out on my 3rd wave of steroid drops. The first wave was 2 weeks including the taper second was 3 weeks and now 2 weeks again. I'm told its uveitis but the doctor doesn't suspect it's systemic.

Hello,

Did you have to face challenges in the eye test for the G1 license in Ontario?

Did you clear the exam? What was it all like?

TIA.

Has anyone here had any experience with alternative treatments to significant corneal scarring, other than just using custom scleral lenses?

I have significant scarring on my right cornea due to trauma / freak accident and it has caused significant astigmatism and KC. Most doctors have told me a scleral is the only option, but curious if anyone has a similar experience and had laser resurfacing or other novel treatment options. Thanks!

Need advice—my special needs son is getting trans-epithelial crosslinking on both eyes next Friday. (It’s a type of epi-on that just removes 5-6 microns of the epithelium.) He will be undergoing general anesthesia and they will give him contact bandages and Vicodin afterwards, as they said it will feel like a sunburn on the eyes. We come back the next day to have the bandages removed.

Other than sunglasses, is there any thing else I need to bring? Will my son be ok on the half hour drive back to the condo if it’s a sunny day? Will the Vicodin be enough (we also have Valium, but I was told to watch his breathing, so maybe we won’t use that.) Will he try to scratch the contacts out?

I know this is a unique situation. I am hoping and praying all goes well and he just sleeps most of that first day. Any advice is appreciated!

Completly new to this. He has it in both eyes worse in one. We live in SC. The ophthalmologist here recommended Corneal crosslinking surgery. No one takes my insurance here. We are traveling to New York (in Network Dr.). The Dr. here was recommending to get special contacts. He said that glasses would be difficult to adjust too. Since we have to travel, when did you have to see the doctor after post op? Can we fly? Are we better off driving after surgery? What advise, questions should we ask? Thank you in advance.

Hello fellow KC folks , i have recently been diagnosed with KC and during the consultation, one of the doctors said "eyes shouldn't be dry".

This led me to think if smoking weed is advisable. Any advice/experience would be of great help.

Thanks

Hi all. I just got my sclerals yesterday. And today, upon wearing them, my double vision worsened. It became amplified. I wore them today for only 3-4 hours. Upon removing them, my vision especially on the right eye became foggy as if I just had my cxl done. Is this normal or is the fitting of the lens not quite right?

I'm sorry im just venting, but it is just so damn annoying. I know staring at someone with a messed up eye is just a nartural response, but I feel a combination of embarrased and angry and just want to lash out! Show some f'ing maners and don't just stare at people

Hey, so quick question for scleral lens wearers…

So, I have been wearing the lens for just over a year, but since the beginning I’ve had issues with the lens liquid/saline getting dirty almost immediately after application. I have tried BioTrue and now I use Boston Simplus for overnight and for cleaning before application. I have been prescribed Restasis for dry eye and Pataday for allergies. I also was recommended to add 2-3 drops of Refresh Celluvisc eye drops to the saline to thicken the solution which was supposed to help. Still, I struggle daily with dirty lens that require reapplication and this requires more use of all my eye products. Any recommendations? I have to set up an appointment with the doctor, but just wondering if any of you struggle with this or is this an issue that shouldn’t be happening?