/r/diabetes

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For humans living with diabetes: discussion, issues, and news.

/r/diabetes

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1

Omnipod issues

I’ve been having some problems with my Omnipod recently. These problems include leakage, running out of insulin on the second day of putting it on, and instantly falling off the second it hits water. For the leaking, at first I thought it was because I was filling my pod to the Max (200 units) when it only needs 100 or if I was putting my pod on the same site for long periods of time. But after I changed my sites and lowered the insulin I put it, it somehow still leaks. It might be because I move around in my sleep but for a device that cost 600$ i expect it not to do that. My next issue is running out of insulin. I don’t eat that much. I don’t even eat breakfast (yes I know that’s bad) and somehow I end up with low units by the second day of putting it on. I thought it was because of my high blood sugar (15-20’s) but now that I’ve gotten my blood sugar back in range (5.4-6.4) I’ve still had the problem. I usually eat around 20-30 carbs for lunch, 10-15 carbs for a snack, and 40-60 carbs for dinner, which sounds pretty reasonable. I’m not quite sure what causes this issue. And my last problem is the pod falling off by water. As soon as I get in the shower it comes right off after I’m finished. I take about 15 minutes which isn’t that long. I’ve done everything to try and solve this issue. For example, buying patches, skin tac, even duct taping my site, but nothing works except for the skin tac, which costs 45$ on Amazon for a 20 pack. It’s been so stressful and frustrating. It’s also been very expensive for me and my family and I’m at my wits end. I’ve considered going back on needles but it’s very inconvenient considering I’m a foodie and with needles I won’t be able to eat freely like I do with the pod. Any advice help!!!

0 Comments
2024/12/04
05:06 UTC

0

I am devastated / insurance woes

I’ve been using Lantus Solar Star and I found out that I have to switch to either Semglee or Toujeo . Never heard of those medications but my doctor will review with me. Anything I should know about either of those medications? I’m also taking Mounjaro and get this, I have to get a prior authorization for it! It cost me $10! Can’t believe this!

I wonder what alternatives they are going to demand for Mounjaro, LMAO. I’m sad right now wholeheartedly though.

0 Comments
2024/12/04
04:49 UTC

5

what is your still good for you stress food/meal?

i had a really stressful day today. i wanted to order some food i know that i shouldn't because it is really bad for me and binge eat my stress. instead i popped a cauliflower pizza in the oven and ate something that was in the realms of okay. so it got me thinking what about you all? what are your foods that make you feel better but are not bad for your diabetes?

7 Comments
2024/12/04
03:52 UTC

7

New A1C result

So 3 months ago I posted for the first time with a new diabetic diagnosis. Had a fasting BG of 265 and an A1C of 11. Thought it was a T1 diagnosis but after further blood tests looks like a T2 due to COVID.

3 months later with a lot of hard work and support from all of you, A1C is 5.7! Average BG in the morning is around 100.

Thank you to everyone here for all of your support and advice!

7 Comments
2024/12/04
02:42 UTC

3

It’s 3am now

It’s 3 am now and I slept for an hour waking up bathed in sweat with a glucose level of 280. Must’ve been because of a failure in the system and I switched up everything. Gave myself a bolus and thinking I can go back to sleep now. Couldn’t fall asleep again and blood glucose didn’t start dropping for another hour. Now at 2:40am got the first alarm of a blockage in the catheter. Me not wanting to deal with this bullshit, ripping it off setting a new one. 5 minutes later same shit. It’s after 3am now and I simply want to sleep and don’t even know what to do anymore then just trial and error. It’s always that for months everything can go okay and well without anything failing. Talked to my colleague (type 1 too) about this as well and we came to the conclusion that when stuff goes wrong, it’ll go the worst possible scenario, like fail after fail after fail. And then the streak somehow ends and everything is normal again. I am not even doing anything differently than usual (same spots as usual switching from belly to arm where I thought it’s usually working better), but this stuff makes me mistrust my system so much and I don’t wanna set a new catheter, where I know it’s not healthy to keep it in for over 3 days. Does anyone else have the same kind of experiences because I’m nearly thinking of going back to pens, if this keeps happening over and over and over again.

5 Comments
2024/12/04
02:22 UTC

5

New diabetic: Went low at night, sensor woke me up, but I didn’t have physical symptoms of a low, until 10 minutes later or so.

Has anyone ever experienced this? It wasn’t until I finger tested and saw 63, stood around in the kitchen a bit that I started to get symptoms. During the day if a low happens, I usually can feel it around anywhere in the 70s. Recently diagnosed so just wondering what the norm is when waking up from a low. Does your body wake you up with actual physical symptoms, Or is there some lag time between your body waking from sleep and then the symptoms kicking in? I’m just trying to figure out what to be mindful of going forward. It kinda scared me.

7 Comments
2024/12/04
02:04 UTC

24

Just want to say thank you.

I’m not sure how many of you remember me, but I came here a few months ago looking for advice because I had lost weight, but my A1c was the same. I got plenty of advice and listen to all of you and today my A1c is down to six. I honestly would not have known what to do if it weren’t for the advice on this sub. I got myself a meter as advised and found out that the peanut butter the nutritionist recommended was not doing me any good. That’s just one example but anyway, I just wanted to thank all of you

3 Comments
2024/12/04
01:53 UTC

159

Just a reminder for the parents - teach your kiddos to advocate for themselves!

7 Comments
2024/12/04
01:45 UTC

4

"Normal levels"

I guess my blood sugar has been high for quite some time, newly diagnosed 3wks ago. Been taking it a bit hard.. but also have soo much bs that has been going on. Just had to put my dog to sleep, husband has total hip replacement surgery coming, and he's been totally dickish. But I've been feeling super crummy at 72 and 99. Like kinda wanna fall over. Is that the normal?

4 Comments
2024/12/04
01:03 UTC

1

It might be me, but its not as hard as it seemed.

I (20M) got diagnosed with type 1 diabetes about 4 weeks ago and the doctors told me it would take some time to adapt and to get my levels back to normal. To give some perspective at time of admission my bloodsugar was almost 30 mmol/l and my HbA1c was nearly 200 mmol/mol.

So i get to stay the night and they give some juice through an IV because i was dehydrated. Next to that i also had an enlarged liver and a small cardiac arrhythmia. Nothing to be scared of, but noticeable. They let me go the next day.

They explained how i need to take my insuline and how to measure with fingerpricks. And after a week or so i got the Freestyle libre sensor (so glad i dont have to Prick myself anymore, fingers where turning blue)

But ever since i got the sensor it has been very easy for me to manage stuff. Dident like bread anyway so that helped. Stopped eating chips and candy, and started eating things like nuts or crackers with some meat on them. And everything zero of course (cola etc.)

My numbers have been really good, my TIR is about 97% since i got the sensor. Might be my honeymoon period but my doctor said its a bit to early for that. Also the blood work showed that my beta cells were not existand.

Long story short, and im not trying to be disrespectfull by saying this because i know diabetes can be really hard to deal with and is different for everybody.

I dont find it bad at all, actually i dont even mind. Im okay with the diet changes i had to make but i can still do everything i did before. I still exercise 3 times a week, work 40 hours and stay up late in the weekend having fun with friends.

Has anybody had a similar experience like this?

And if your reading this because you just got diagnosed, its gonna be OK. Just give it some time to used to it and try to accept it right away, because what choice do you have?

Gr Tom

11 Comments
2024/12/04
00:31 UTC

0

measure glucose/carbs ratio and carbs/insulin ratio

I was eating glucose tablet because of hypoglycemia. It occurs to me that it is very simple to use glucose tablet to measure glucose/carbs ratio and carbs/insulin ratio on the CGM.

It is not easy to estimate the carbs in a meal, but glucose tablet contains exactly 3 or 4 grams of carbs. Eat one or many tablets to see how high is the glucose on the CGM then inject insulin to see how much the BG comes down.

If this is a common knowledge, I am sorry to waste your time.

(u/popsblack has some excellent ideas given in his comment below.)

7 Comments
2024/12/04
00:05 UTC

0

Help with strips for contour next one

My insurance provides me with freestyle lite meter and strips and this is my primary meter. I also have a contour next one that I got a few years ago to use as a back up in case I ever have delays getting strips for the freestyle lite in time. I am in need of more strips for the contour next one, and I am having some trouble finding strips that say they are for the next one. Are the strips labeled simply “next” the same, or compatible with the next one? Also, are there any generic strips that are cheaper?

3 Comments
2024/12/03
23:45 UTC

3

Ozempic stopped working?

I've been on Ozempic for years now. It's been great for me. I used to take 80units of NPH every day until Ozempic made it so I had to take none at all. I even got to watch my last supply of insulin slowly expire in my fridge since i didnt need it anymore.

I was only on the 1mg dose and quite happy until it was time for my very first colonoscopy. I was told to stop taking the Ozempic for two weeks prior and I did. I switched back to NPH for those two weeks, did the colo and went back on.

but after going back on, my glucose was way out of whack. My endo put me up to 2mg and its still out of whack. just constantly, outrageously high.

now i'm back on the 80u of NPH AND 2mg of Ozempic and i'm under control again. I'm about to just drop the Ozempic if it's literally not doing anything. I had to disable alerts on my dexcom cause it was freaking out on my all the time.

Anyone else see this? I can't even properly search for this problem since i get unrelated results. I'm meeting with my endo next week but I'm really perturbed by this right now.

5 Comments
2024/12/03
23:37 UTC

0

Family Practice or Endocrinologist

When I was first diagnosed with type2 diabetes it was with my normal doctor and yearly physical. I feel there is something lacking so the question is should I consider going to an ENDOCRINOLOGIST? Does it really matter? Currently on Synjardy XR but transitioning to Mounjaro.

TIA

14 Comments
2024/12/03
23:21 UTC

7

My last 24 hr ride!

6 Comments
2024/12/03
23:19 UTC

1

blood sugar range

I just used my glucose meter after like 1hour and 30mins almost 2 hours after a meal and it's 136mg/dl, but I don't know if that's okay or not. I recently got diagnosed (one week ago) and since then I feel like my stress level increased immensely and I know that's bad for me too so I just need to know if i'm normal... I'm also not on any meds and tbh except working for the past week I didn't exercise much or eat differently, since my meds will arrive tomorrow and starting tomorrow I will need to change my habits I guess.

It was after my dinner ^ a cup of edamame, eggs. tangerines and some shrimp crackers.

In all honesty I was also super stressed the days before and after my doctors visit, it's always a stressful situation for me to go to a doctor so I also never sleep well because it's hell to wake up at 6am... I would also appreciate any tips to decrease being stressed because the tips from google don't really help

6 Comments
2024/12/03
23:11 UTC

0

Type 2 Diabetes Influencers: Who Pops Into Your Mind First?

Hi everyone! Just curious—when you think of influencers( To put it simply, it refers to individuals who have social media accounts and hold a certain level of influence) in the Type 2 diabetes space, who’s the first person that comes to mind?

9 Comments
2024/12/03
22:33 UTC

3

Got A1C Back amd it has gone down!

Got my A1c done today. It is 6.6! Down from 6.8 in Aug.

My liver values have improved and almost all my blood values are back in normal range. The one that isn't is still going down, too!

I'm pretty happy with that considering the amount of stress I have had in the last couple of weeks with my business.

0 Comments
2024/12/03
22:13 UTC

4

No blood sugar monitor

So, I have type two diabetes but I have no way of checking my blood sugar. My diabetes specialist says it’s not covered under my insurance. Is there anything I can do to measure my blood sugar? I want to be more responsible in taking care of myself.

15 Comments
2024/12/03
22:00 UTC

2

Libre placement when plus size

My doctor has decided to start me on a Libre for a bit and I have a question about placement. I know the only approved spot is on the back of your upper arm but I have an issue due to my size.

I've always had larger upper arms but I've also lost over 40 pounds in the past year so now on top of my already jiggly arms there's also loose skin to deal with. I've had a bandage on the inside of my arm recently and it didn't want to stay in place due to how much the skin moves.

Could I put it on the outside of my bicep? It's still a fatty area but the skin is way tighter.

2 Comments
2024/12/03
21:30 UTC

26

Do I *have* to use the alcohol pads?

It might sound stupid but I just think the alcohol pad is annoying to bother with? Like I know my hands are clean. Does it impact my sugar?

51 Comments
2024/12/03
21:13 UTC

1

Newly Diagnosed Diabetic

At the start of this month, I got sick with what I thought was just a sinus infection. At first, I started to recover pretty quickly, but then things took a sudden turn. Within a day or two of feeling better, my throat swelled up so badly that I began having difficulty swallowing water.

I went to the ER expecting a quick round of antibiotics and to be sent home, but instead they hooked me up to IV antibiotics and steroids right away. Turns out I had infections in my ears, sinuses, and tonsils, plus a developing abscess in my throat. And then came the kicker: because my blood sugar began to rapidly rise from the steroids and antibiotics, the doctors said that I must have diabetes which had gone undiagnosed for who knows how long. Looking bad I can definitely retroactively see the diabetic symptoms - I've had pain all over my body and in my joints for months and had constantly been feeling like I've had brain fog. I started to notice that I'd eat a meal and then pass out for a while afterwords, even in the middle of a work day. A couple weeks before getting sick I had been craving orange juice and water but kept feeling thirsty no matter how much I drank.

Part of me feels like I brought this on myself. I’ve been at my heaviest weight ever, ordering takeout several times a week, and living a completely sedentary lifestyle while working from home. But I also know I’ve been struggling mentally, dealing with stress and anxiety for as long as I can remember. Eating has been my coping mechanism, and I recognize now that I had been abusing it the same way some people turn to drugs or alcohol. Now, I’m trying to see this diagnosis as a wake-up call, and using it as a reason to start exercising and eating better.

I haven’t been officially told if I’m Type 1 or Type 2 yet. For now, they’re treating me as Type 1, and I’ve been prescribed both long-acting (43 units) and short-acting (14 units) insulin pens. I’ve been digging through my test results, and from what I can tell, my negative pancreatic antibodies and high C-peptide levels suggest I might be Type 2. But I’ll need to confirm that with my doctor, who I haven’t seen yet because he’s an hour and a half away and I don't drive. In the meantime, I’ve got an onboarding appointment with my local diabetes clinic on December 9th. The costs are already adding up - insulin and all of the related peripherals are running me about $180-$220 a month in Ontario Canada. I fall into a frustrating middle ground where I make too much to qualify for many assistance programs but don’t have health insurance through work since the company that I work for remotely is a smaller American company that currently only offers national coverage. The doctors at the hospital helped out the best that they could by enrolling me into a program where I can fill prescriptions for lancelets and blood testing strips for 75% off, and gave me a card that I can use to get my long acting insulin at a discount from a different pharmacy, and for that I'm grateful. They also gave me a free OneTouch Verio Reflect blood glucose tester since the arm sensors would be expensive for me. So far it looks like my best bet would be to look into the Trillum Drug Program.

The diagnosis was a tough pill to swallow, but I think I’m doing okay so far, both physically and mentally. I’m experimenting with different foods to figure out what works for me. Potatoes, rice, carrots, sucralose/stevia drinks, and bread seem fine as long as I balance them out and watch my portions. My glucose readings have been mostly in range since coming home, with only two exceptions. Once, I pushed my luck with three slices of pizza and spiked to 11.5 mmol after two hours (though it came back down to 8.5 mmol after three hours). Another time, I hit 10.5 mmol after adding a single McCain hash brown to breakfast. Aside from that I've been consistently between 5-7 mmol fasting & before meals, and between 5-8 mmol after meals. I’m also starting to get more active. It’s been tough transitioning from being completely sedentary since COVID started to being active, but I’m already noticing my endurance improving on walks. It’s a slow process, but I feel like I'm moving in the right direction. It also seems to do wonders for my blood sugar, a 12 minute walk seems to drop my after meal glucose levels by twice as much as just the insulin alone.

Aside from the above, the constant pain I was feeling is gone, the brain fog is gone and my mind feels more active. The me that I see in the mirror looks more alert and aware, instead of half-lidded and tired.

I haven't really been given much formal advice from any doctors yet aside from showing me how to use the insulin pens, but I suspect that I'll hopefully be getting more personalized advice when I have my onboarding appointment on Dec. 9th. Before then, I'd really appreciate any lifestyle tips, or suggestions on things that I may want to bring up with my doctor.

Here are some thoughts/concerns/questions I've had so far:

  • If my C Peptide test was high and my Pancreatic Antibodies test was negative, my uneducated opinion seems to be that I'm likely a Type 2 with insulin resistance. If that's the case, then shouldn't I be prescribed something along the lines of Metformin? Though if I'm understanding correctly, my test results hint towards Type 2 but aren't enough to be definitive, so perhaps they're playing it safe for now. I'm not sure if the hospital assumed that my family doctor was going to test for Type1/Type2, but since I haven't been able to get a ride to my family doctor, this is something that I'd like to bring up to the clinic when I have my appointment.
  • I'd like to get some indoor footwear to protect my feet, does anyone have any suggestions on that? I've read on here that it might be best to consult a foot doctor on the matter (I've heard that the clinic will assign me one if I want one) but I'm not sure how long that'll take with the holidays coming up. My feet are fairly dry at the moment, and even before my diagnosis I've noticed that minor injuries had taken a while to heal.
  • Is there a difference in thread sizes/compatibility on insulin pens? My mom's boyfriend (also a Type 2 diabetic) gave me a box of his NovoFine plus 32g 4mm needle tips claiming that they didn't work on his pens and couldn't return them. They work fine with my pens, but in the future I was looking into buying Nanofine Plus Universal Insulin Pen Needles from Amazon, as they seem to be half the price for twice as many. The Amazon listing boasts universal compatibility, but so does the NovoFine box, so I don't know if there's something that I should be looking out for, or maybe my mom's boyfriend was just mistaken. My two insulin pens are currently Semglee and Admelog.
  • Any favorite meal or snack recommendations? I've been learning to love low carb Greek yogurt with nuts and berries, chicken salads and whole wheat wraps, lots of egg based meals, and I found some yummy turkey pepperoni sticks with only 60 calories and 1 carb each. I've also been enjoying steamed or air fried veggies with a simple homemade cheese sauce (I had never had asparagus before now - it's yummy!). I'd be interested in hearing about any take-out recommendations as well. I'm being careful not to fall into old habits, but I'm pretty sure I caught something new from a family friend that visited and it'd be nice to have healthier options to consider if I don't feel like cooking.
  • Is it common for eyesight to change after being diagnosed and getting blood sugar levels back in normal range? Ever since the second day in the hospital, I've had difficulty reading my phone unless I hold it at arms length, yet my distance vision has significantly improved. Normally I wear glasses for distance vision but at the moment I see distance better without them. I've read around a bit and people have suggested that this is because glucose within the eye takes longer to clear up than in the blood and that it should go back to normal eventually, but it's a bit disconcerting at the moment. I had an eye exam a few months ago was told that my eyes are completely healthy.
9 Comments
2024/12/03
20:53 UTC

1

I haven’t been monitoring my T2D

So back in march I had some medical issues that led to blood work and a bunch more, but my fasting glucose was 130 and my A1C was 8.6. This was after a month of dietary changes which I’m sure brought my A1c down a little bit.

The problem was, that I hadn’t been to a doctor in decades. Typical male, I didn’t have any apparent issues so I didn’t see the need to go.

I was out of shape, eating terrible, but not experiencing any symptoms of ill illness.

I have a feeling I may have had diabetes for a few years without knowing. I did have a high fasting glucose in 2021 for a brief hospital visit.

Anyway, from February until now I completely changed my diet and started exercising and intermittent fasting. In August, I had blood work done and my fasting glucose was around 111 and my A1c was now down to 5.1.

I’ve been treating my T2D with exercise and no/low carb diet. It obviously works as my results proved, and I really haven’t been monitoring it since September I know I’ll always have T2D but I know how to manage it.

Fast-forward this past week or two, I’ve been checking in on my blood sugar again. To my surprise my morning sugar is below 100 now I also tested it after my Thanksgiving meal in which I had potatoes, stuffing, and some sugar filled yams my niece made. I was surprised to see that my BS got no higher than the 130s.

Today I had tea lattes with milk. Combined, the sugar was over 20g. I tested my sugar 30, 60, and 90 minutes after my lattes and my BS never got higher than 116.

I’m tempted to try bread as the last time I had it my sugar went to 230 some months ago.

Needless to say, I’m really surprised by how well my body is responding to sugar now.

3 Comments
2024/12/03
20:44 UTC

1

Freestyle Libre 14 day

Does anyone use the freestyle libre 14 day sensors? I’ve been using it until the meter was in stock. I just received the meter and my readings have been off by around 20mg/dl. I’m not sure if it could be the placement of the sensor or maybe just stop using the sensor and just stick to the finger pricks to test. Has this happened to anyone else?

2 Comments
2024/12/03
19:43 UTC

0

It’s bloody freezing

I’m still new to this and about 3 week on my metering now.

I’m absolutely freezing all the time. Is this normal? Is it just that I was running so hot and now I’m not?

3 Comments
2024/12/03
19:15 UTC

1

Ozempic

My doctor doesn’t tell me crap!! Where do yall store your Ozempic? Ive heard some put it in the fridge, but others say not to…

7 Comments
2024/12/03
19:13 UTC

52

Why can’t I place the alcohol prep pad on wrapper?

Just to see what would happen I did place the prep pad on the wrapper. Nothing happened.

44 Comments
2024/12/03
19:11 UTC

74

My A1C is down almost 7 points!

Got Dx'd about a month ago with an A1C of almost 15. Worked my butt off, changed my diet entirely, lost some weight (thanks metformin), and had a ton of great support from my friends and family. Got my most recent blood work back and my A1C is down to 8.4!

This community is great and I love seeing and sharing our successes and frustrations together.

12 Comments
2024/12/03
19:01 UTC

1

Newly diagnosed

Hi,

23 Female

I am new here but I feel like I need to speak with people who may understand.

I got sent to A&E 3 weeks ago after being diagnosed as diabetic for further testing. They’re unsure as to what type I have (whether it’s type 1/2). I am due to go and have more blood tests before having an appointment to talk about findings from my blood tests but they could potentially be testing me for MODY.

My diabetic nurse has told me that until my appointment in January to eat and drink as I normally would. Since being diagnosed I feel as though everyone is criticising me for following the nurses instructions of eating normally and I keep being told by my parents that my diet is bad even though I eat the same as them.

Has anyone been in a similar situation where they feel as though whatever they eat they’ll be judged for and how did you overcome the feeling of being judged? As all I am doing is following healthcare professionals orders and I feel judged all the time 😞

12 Comments
2024/12/03
18:57 UTC

1

Vent and Advice Needed

Hi There! I got diagnosed with Type 2 about 5 months ago! My A1C was at 6.5. I was given only ozempic and it brought down A1C to 5.7. All was fine until about one month ago, when my legs and arms cramped a lot and I had extreme thirst and blurry vision. Went to get checked and my fasting sugar has been in the 295-315 range and overall sugar is in the 350s (for about 4 weeks now). So yes, this has been going on for a month strait. My primary immediately stopped ozempic and put me on Metformin 750xr and I’m currently finding the dose of SemGlee LLI appropriate for me (I am on day 11 of adding two units of insulin so I am at 30mg of insulin now). I am venting because I am SO OVERWHELMED! I know it hasn’t been two weeks of medication and insulin but I get so devasted that the lowest my sugar can go is 230 at the moment. I am walking daily and eating clean! Anyone been in this road? Or is 11 days still too early to see the results of my insulin and metformin working? I just expected my sugar would be in the 90s fasting by now. I’m scared that I keep adding two more units nightly. I don’t know when I will reach of point of sugar stability. Note: I am taking Prednisone as a immunosuppressive (20mg) and I just started a new job about 5 weeks ago. Maybe it’s all combined? But yes, anyone relate or been the same? I did get referred to an endocrinologist and I am awaiting that appointment.

8 Comments
2024/12/03
18:27 UTC

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