I'm stuck in the tub... I have #ehlers-danlos #Mast Cell Activation syndrome and just got in a car accident.

I don't want to go to the hospital I need a weekend free of the hospital

My mother (62) is pushing me to. I'm in the tub (34F) and my bf 33 (m) is in the driveway fixing his newly bought used truck after a motorcycle slammed into us in Attleboro, MA.

I'm in so much pain but I already have neck trigger points and lower back spasms and severe hip subluxation.

Anyway............ I just want peace y'all I'm so tired 😫 ✌️ ☮️ 🕊 🏳️‍

Also, I might be approximately 10 days pregnant and I'm FREAKING THE FUCK OUT.

#pmdd #cptsd #ptsd #anemia

My appeal was denied. I have a lawyer, but I'm just so frustrated with this whole thing of waiting 7 months to be told "no" again. Just hitting me hard. Any advice on how to cope?

I've head this fallacy a lot. Is it infantilization?

Disability leave income website application asks:

"Have you returned to work or recovered from this period of disability? Yes  No"

"3a. Select the date you returned to work/recovered."

>My question: does "returning to work" mean that you've returned for good because you've recovered, or can this mean that you're still under disability leave but, say, you decided to pick up a few shifts here and there because you're able to? I've "returned" to work since going on disability leave, but only twice during this break. BTW it's a mental health matter so it's not like it's a physical injury that's making me not able to work at all.

Sometimes I wonder if the negative effects of my disability would be close to nonexistent if i just had more money. Im working on a class project to fix problems in the community and automatically think about the disabled community... And i feel like a lot of my problems other than my constant pain could be at least addressed by money. Thoughts? Would money fix a lot of your problems? What problems couldnt be fixed with money?

This is going to be something of a rant so apologies in advance.

FYI, I have congenital hydrocephalus which has left my right side considerably weak and I have arthritis in my knee as a result of a life long limp.

I have recently cut contact with several people in my friend group who consider themselves to be completely ‘woke’ and social justice warriors. I had no problem with their views and I tended to agree with most of what they said on topics such topics as equality and diversity.

It was the topic of diversity that led me to my ‘light bulb’ moment and resulted in the severing of contact. We were discussing how the film/TV industry still had some way to go with diverse casting and that an opportunity was lost by not casting an ethnic minority actor for the role of James Bond now that Daniel Craig is done with the role. As the conversation progressed I happened to mention a particularly frustrating aspect of diversity casting for me was a lack of disabled actors and how I’ve always felt quite angry that Sean Penn, Jamie Foxx, Eddie Redmayne and Russell Crowe all won Oscars for playing real life disabled people when they themselves are able bodied. Things went pretty quiet for a minute or so until one of the group responded with “yeah but it’s not really the same is it”. I asked them to elaborate on what they meant and they said that ethnic minorities had been oppressed for so long and they deserved acknowledgement and success. I reminded them that disabled people used to be used as carnival side shows in the not so distant past. They doubled down on what they were saying about ethnic minorities and completely ignored my last comment. I decided to walk away at that point as my anger was reaching an unmanageable level.

When I got back home I saw several messages from a few of the group saying that actually agreed with me. I still decided to cut contact with them as they chose not to speak up at the time.

So, I guess the moral of the story is that being ‘woke’ is all about choosing specific demographics/topics that are trendy and get you the most likes on Facebook.

Rant over.

I, a disabled teen have many jobs I want. You know, the classic doctor, pilot, whatever. Mom said I can't do any of these, Because of my visual impairment and autism, and then even asked:

"Who'd want a mentally slow doctor like you?!"

She even snapped and said I couldn't get into Harvard, because "you're too mentally challenged" and that:

"You wouldn't do well. It's an Ivy league school" because:

"You won't even go to college anyway. I could see you being a janitor."

Before saying that she was sorry, but that everyone would hate having an autistic and visually impaired doctor taking care of them. And then said it:

"Wasn't about my "issues"

I'm just extremely angry.

Hi, I hope this can help someone who can't tie their shoes or find it difficult to put them on and take them off.

The materials we need are:

• Spring: that it is the thickness and size of the lace, two meters are perfect for almost any shoe and there will be plenty of
• Tape: I recommend the transparent one but you can use any
• Shoe or sneakers: not very poor quality or there could be a problem with the holes in the tapes

Now, here are the steps

Step 1: Remove the original laces from the shoe and keep it in case you want to wear it again. Step 2: At the end of the spring, wrap it with tape to simulate the acetate of the lace and to make step 3 easier for you. Step 3: Position the spring as if it were the laces (make sure to tighten it every time so that it is not too loose) Step 4: Place your foot in the shoe when you are done and tighten the springs as much as you can comfortably fit them and the shoes are not too loose. Tie both ends like this, either with the double-knot reinforced shoe knot or simply a loop knot. It doesn't matter which knot you use, as long as it is very strong. Step 5: When you finish the knot, leave some ends (if the knot comes undone again or you want to loosen the shoes a bit later, the ends can help) and cut to where you think is reasonable. Important: the ends should not touch the floor. Step 6: Put tape on the tips to simulate acetate

And that's it. You have shoes that you will never tie again and that at first glance will look normal. To take them off, simply move the tongue of the shoe up and pull them out or take them off with your feet. They will come off very easily. To put them back on, just lift the tongue of the shoe, insert your foot and then release.

The spring will do its magic and keep your foot inside the shoe. You do not need (and should not) undo the knot to take off your shoes and it will not come undone either.

When the spring feels too loose (usually after 4 to 9 months of use) change it and repeat the process.

" While you are on your life journey, you may need to stop now and then to give chances to those ones who get bored of you to get off your journey train before you start it again "

MY OPINION

#HassanSays

We need to be stroger to keep going ;it seems that that our Journey is still so longer before it comes to an end than we expect .

#chronicillness #LGMD #Disability

Had a gentleman approach me in a store and ask me to do him a favor. I said no, thinking he was going to ask me something shopping related, jokingly. He says oh, ok then and walks off. I turn to ask him what it was stating that I was kidding. He proceeds to tell me that when I park in a handicap spot that I need to hang my placard on the mirror. I told him it was on the dash, and he replied that it has to be on the mirror. So again, I entertain him and tell him it won’t fit, (modern car with a much too narrow mirror). He proceeds to get huffy and tell me again that it HAS to go on the mirror. I ignore him and walk away.

Now I’m pissed off because one, he’s nobody of any authority, two, he didn’t park in a handicap spot, he parked a couple rows back, and three, why is it any of your business where tf I put my placard as long as it’s displayed.

I work night shift. So I’ve been stewing on this for 15 + hours now.

Does this bother anybody?
Has it happened to you? Am I overreacting? why can’t people mind their business?

I'm sure this has been posted about before but I needed to rant

I wish disability aids weren’t always labeled as “for elderly” or “for seniors), I wish they weren’t all hospital depression grey, sanitary white and nurse scrub blue. I want black, red, pink, purple, yellow, green. I’m turning 15 in a couple days, not 75. Fuck even my 71 year old grandma would like fun colored aids. It’s so disheartening, I already see enough of those colors in doctors offices and hospital visits, I don’t want to see them at home too. Everyday of my life up to this point has had something to do with these colors, these "for elderly" aids, all of it. Young people are disabled too, I've been since birth. I was looking for bath lifts and every photo, title, description mentioned it being for the elderly.

Hi, I'm new. I have been temporarily disabled for 1 month due to a still unknown disease. The disease makes me feel dizzy and has a headache at times, and mainly causes my muscles to weaken and makes it difficult for me to move without a lot of pain. I can't sit for long or stay in any position other than lying down because my back starts to hurt and I need to hold on to something or someone to walk. It even seems to be affecting my mind in some way because I feel confused at times.

The thing is, I want to do some exercise so that I don't get sores and my ligaments don't wear out due to lack of mobility. Do you know of an exercise that I can do that would be suitable for this?

So I went to a wild waves fright fest a few weeks ago. At the main scare areas, there's a person at the front, and the actors can't touch you or physically mess with you. At one of the haunted houses, a scare actor completely broke character, asking me "what happened?" Refering to my cane. I was really uncomfortable about this. Because would you ask a random, ablebodied person on the street about their medical history? Personally, I don't think that's normal. But when I talked about it to my dad and sister, they both were claiming I had no reason to be uncomfortable by that. Am I overreacting?

I'm honestly just tired of being treated like I'm a poor helpless animal or like I must be faking it. I feel like an experiment people feel entitled to poke and prod at. Now I'm crying in my room because my ablebodied dad and sister don't get it and refuse to try to understand how I feel. I'll let it go if I'm overreacting, but I'm really not sure if I am or not?

Extra Context: I responded with an awkward laugh and "just disabled I guess" or something like that, just stepping around the question and trying to walk away, further into the haunted experience. Forgot about it until my dad brought up the idea of going back this weekend, which is why I told them.

Edit: Please ignore the guy talking trash in the comments. They came over from another post of mine where they left a rude comment. Thank you! Edit: They're gone now so nevermind lol.

Sometimes I wish I could go back to working in pharmacy, I've tried getting wfh jobs but they suck and I usually end up having to leave because I'm too busy with doctors appointments and other crap. My main disability is my severe bipolar disorder, and PTSD but I also have iron deficiency anemia which no matter what is done stays bad, I also have constant problems with pancreatitis which are insanely painful. When i was a child I always wanted to be a nurse but I can't do that not just cause of money but due to said ailments as well. I feel like a failure, I'm fat and I've lost my perception of time, all I do is be in bed most of the day. How do I cope with these feelings?

I was thinking about using the ticket to work program to try and get into nursing classes. It says you can be on the ticket to work program for 7 years if taking classes and I’d only need around 4. Would I still be getting all my benefits if I did this for the 4 years it would take to get a BSN? How long would I have my benefits for after finishing? I have a call with the ticket to work program setup for Monday but I was wondering if you guys could give me insight or suggestions on things I should ask.

Greetings,

I am seeking Christmas gift recommendations for a loved one who struggles with balancing while standing.

They walk slowly and cannot take on stairs, as they are only able to lift each foot a couple of inches.

They already own items such as automatic lights, voice-controlled devices, and simple things such as a shower bar.

Even with the walker in front of them, I have noticed they have a hard time standing up from a seated position, often trying a few times and falling back into the seat. I know they face this issue often, as they watch TV most evenings.

Perhaps there is something that can assist them in getting from their seat to the walker? I just learned about "hydropneumatic" seats that can aid in standing up. Has anyone any experience with these, or could you kindly provide other gift ideas to improve their QOL - either in this case or in general?

Many thanks in advance.

I’m stuck in a rut. Life holds no meaning or purpose. I feel nothing. Not sadness or anguish, but no joy or pleasure either. I’m not interested in anything and I don’t want to do anything. It’s 4am and I don’t feel tired or hungry or anything. I’m not bored; Spending endless hours on Reddit, you tube, etc fill the time. I have a physical disability and am not employed, it’s difficult for me to get out on my own.

I’m probably actually seriously depressed but I have previously felt much worse being on medication. Feeling numb seems better than feeling lousy. How do I snap out of this and find a reason to want to exist?

One of the main things I've noticed since I became disabled is the fact that people will blatantly avoid me like the plague unless I have a sickenly sweet chippery attitude with a stupid grin plastered on my face. Being treated this way by strangers sucks, but it's unsurprising. However, being treated this way by family is depressing.

I have a family member I used to be close to, but after I became disabled, they started acting differently around me. They stopped interacting with me like they used to and I began noticing that anytime I express sadness they straight up avoid me and distance themselves. However, if I put on a happy mask suddenly they will interact me. Anytime I have to see them at family functions, they talk to me in this weird fake surface-level polite manner and completely ignore me the entire time. I find myself getting increasingly angry and resentful because it makes me feel like my feelings do not matter. It has shown me that people only care if I'M the one making THEM happy and comfortable but they can't return the fucking favor when I'm low. It's like people are just energy vampires. They take and take and take and expect you to be their source of happiness, but when you're at a low point they disappear and your needs don't matter to them.

My relationship with this family member is estranged now. I think it's weird how the very people you considered close will quickly abandon you when something like disability/diagnosis happens. They continue their lives as normal while pretending you don't exist as you deal with this life-changing situation alone. When you express your valid feelings about your situation they further distance themselves. They want you to shut-up and have a happy-go-lucky attitude so that THEY feel comfortable. It's bullshit and it has made me lose respect for this family member and I do not view them the same. If we weren't blood related, I'm convinced this person would completely ghost me and cut ties with me. I just don't think it's fair that people expect people suffering with a disability/diagnosis to make THEM comfortable. I don't even understand the psychology. In my mind, it has always been the opposite. People and loved ones should be the ones extending empathy to those suffering. People with disabilities/diagnoses do not owe anybody "inspiration" or are not obligated to be a source of light/happiness for others.

It's as if people do not see people with disabilities/diagnoses as people with a wide range of complex emotions. Our duty is to make them laugh and smile. Anything outside of that, then YOU'RE the problem.

If you've experienced this, how did you cope?

I am a guy with a mental disability. I look for a casual relationship with a woman.

I understand it's important for a romantic relationship to have a job.

Is it also important for a casual relationship?

I would consider not disclosing this or even to lie but I am not good at coming up with lies about what I do for a living.

Long story short I’m 19 and life alone. I had to move out of my mom’s house for housing subsidy reasons. I suffer from depression and anxiety and have had 13 jobs and the longest I’ve kept one was 8 months. ive been hospitalized twice and have done php twice.

I see other people my age living alone and they work all the time and live in an apartment that’s not the project and I feel like my life is so easy compared to theirs.

Idk if this is the place for this but I feel so isolated because I never meet others in my situation. I want friends but I’m scared they’ll just see me as someone mooching off the government. I never feel like I’m trying hard enough

New account.

I have many issues both physical and mental. But one thing that I have has always stumped me and it's going to take a bit to explain

I dont know when ill need the toilet next. Ill be fine for however long and then suddenly ill need the toilet and be practically desperate immediately which is a huge annoyance and issue.

This doesnt seem right. I already have alot going on so i dont know whether im pulling shit out from nowwhere. As mentioned i have other issues but i dont think they affect toile-tries.

Thoughts?

This applies to non medical services like job services and other resources. Do you try to do things yourself? I’m so fed up with how long it takes to provide service to someone like us even if they have wait lists or other clients ahead of us or those that know their path.

I want to live as a nomad but no one is listening to me nor seems to care and thinks office work is the best option for me. I’m fed up at how they take their sweet time to get around to anything. It’s like they all think I’m helpless when I have mild disabilities but a lack of proper upbringing as to say my family didn’t give a fig about teaching me to survive in this world. So I had to learn on my own.

Has anyone been at step 3 and rechecked a few days later and now all information is unavailable? No calls, emails or letters sent. Is this normal?