/r/disability

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News, resources, and perspectives pertaining to individuals with disabilities.

Disability

News, resources, and perspectives pertaining to individuals with disabilities.

Feel free to edit your flair to reflect whatever disability you identify as having. This doesn't have to be a medical diagnosis either. You can identify as "Deaf," "wheelchair-user" or just plain "crip," as some folks do. And, if you don't have a disability, no worries! Just mark it up however you like.


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Rules

1: Always follow:

Reddit Content Policy & Redditquette

2: We enforce a standard of common decency and civility here.

All users are expected to be respectful to other users at all times. Personal attacks, bigotry, fighting words, otherwise inappropriate behavior or content, and comments that insult or demean a specific user or group of users will be removed and offenders banned.

3: No promotion or self-promotion!

Posts pertaining to any kind of product, service, or publication or social medium are unwelcome. Do not promote your app, channel, disability service, youtube, blog, facebook, discord, or anything of the kind in the sub. This includes fundraising appeals.

For financial support, see /r/Assistance, /r/Care or other subreddits that can help.

4: Surveys (Academic, non profit, commercial, homework, etc) are not permitted here. To post surveys please visit:

Disability Survey


Mods reserve the right to remove content or restrict users' posting privileges as necessary if it is deemed detrimental to the subreddit or to the experience of others.


NEWS

BBC's Ouch! (UK)

Disability News (US)

Disabled World (International)


RESOURCES

Casual Coonversation's Mega List

National Council on Independent Living (US)

Independent Living (UK)

Disability Resource Centre (UK)

Independent Living Canada

Service Canada

Independent Living Centres (AU)

Disability Information and Resource Centre (AU)

Family Village (International)

Success for College Students with Disabilities (US)

Centers for Independent Living (US)

211 (U.S. / Canada)


PERSPECTIVES

Chronic World Adventure

Chronic Illness Humor

Disability Fun

Universal Design Style

Ramp Your Voice


RELATED HELPFUL SUBS

Message the mods to have a sub added

Head on over to /r/disability_survey - to post or participate in surveys relating to disability


HELPFUL SUBREDDITS

Access

Accessibility

AccessibleNaut

Amputee

Anxiety

Aspergers

Athritis

Audio description

Autism

AutismInWomen

Bipolar

Bipolar Reddit

Blind

Body Acceptance

Cerebralpalsy

Chrisability

Chronicpain

Deafblind

Depression

Diabetes

Disability Fitness

Disability Survey

Disabled Gamers

Disabled Sex

Disabled Sex Workers

Down Syndrome

Dwarfism

DWPhelp (UK)

Dysautonomia

Dyslexia

Dyspraxia

Enrich My Enclosure for Bed & Home Bound Individuals

Ehlersdanlos

Epilepsy

Etudiant_e_sHandi

FASD

Hirayama Disease

Interstitial Cystitis

Keratoconus

MEAction

Muscular Dystrophy

Multiple Sclerosis

Narcolepsy

Neurodiversity

Personality Disorders

PTSD - Post Traumatic Stress Disorder

Rehabtherapy

SBSK

Schizoaffective

Section8listshoppers - disability housing (US)

Service Dogs

Spinalcord Injuries

Spinal Muscular Atrophy

Stutter

Wheelchairs


IMPORTANT POSTS

Non-US Disability Post

SSDI and SSI are two different things Post


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/r/disability

72,868 Subscribers

2

What does this mean?

(Sorry I screenshotted this from a different post lol, but it’s still my own post)

4 Comments
2025/02/01
22:10 UTC

38

Anyone else sick with worry due to everything coming out of the news???

Am seeing/hearing so many news articles/stories about husk wanting to take over or get into the treasury department, to hijack and modify crucial help and distributing systems for those on services like disability or get to the funds in the treasury department. Am starting to be convinced everything will be taken away like Thanos snap of a finger and its a terrible timeline. Am not sure what to do and honestly not sure how to feel any better about anything. Know its something so many people are now being threatened with which is nightmare fuel in itself certainly not comforting. How is everyone else dealing with the news, is there anything we can do??

5 Comments
2025/02/01
21:16 UTC

1

All in all FNSD is awful

Chatting and laughing with sistegr this morning and sure enough visual trigger nabbed me. Almost fell oveer with dizziness. With fuzzi body. Blech.

0 Comments
2025/02/01
21:09 UTC

20

Disabled Gods - Free zine - Link in comments

3 Comments
2025/02/01
21:00 UTC

1

Any idea on how to keep cats out of my room?

I have very bad balance issues. For my safety, I stopped letting my roommate's cats into my room. But my roommates have five cats. They just got a kitten a few weeks ago (cat number 5) and my life is miserable. She thinks my rollator wheels are toys. She loves to attack my cane. She keeps climbing my legs and leaving me bleeding. I can't leave my room without being harassed. Not to go to the bathroom. Not even to get food. I'm exhausted every day and crying in frustration. My roommates only solution so far is to spray my room with vinegar or citrus smells. I'm going to go with it cause I hope it works. But I'm super sensitive to smells so I have a feeling it will still end up punishing me.

Anyone have ideas for how to keep the cats out of my room? I just want to exit my room peacefully. The only thing I've done so far that sometimes works is a shoe lace. I can sometimes lead them out of my room.

0 Comments
2025/02/01
17:18 UTC

19

I'm probably going to be homeless by May

I have Audhd, fibromyalgia, CFS, and for an unknown reason I vomit frequently unless medicated. I can only work 10 hrs/ week before it starts really kicking my butt. I've been trying for years to get approved for SSI, my parents kicked me out of their home for my "lifestyle choices" (basically boiled down to being disabled and unable to work full time), and I've been busting my butt to find financial aid or housing with no luck.

My parents are currently paying my rent but that stops in May.

I'm terrified of being homeless. It's already difficult to take my meds and eat, even in a stable environment with a care taker. Without housing I can't have a care taker. I'm terrified that without the stability that comes with housing, my physical and mental health are going to decline and that I'm going to just stop functioning all together and rot away on a park bench or in my car if I'm lucky enough to keep it.

I don't know what else to do other than to panic.

5 Comments
2025/02/01
19:19 UTC

13

I didn't knew that October is the disability month.

3 Comments
2025/02/01
19:12 UTC

1

Has anyone used the Ticket to Work Program?

I'm looking for what people's experiences are/we're with the ticket to work program.

0 Comments
2025/02/01
18:20 UTC

50

Is there anyone else here who's ugly?

Being disabled and ugly is very difficult. I'm ugly and disabled myself. I have a feeling that people only feel sorry for beautiful disabled people. They can only feel sorry for ugly disabled people if they have something like Down syndrome. Can anyone relate to this?

40 Comments
2025/02/01
18:09 UTC

2

TBD System Outage

DisabilityDischarge.com is no longer in service.

Alert: There will be a pause in the processing of discharges for Total and Permanent Disability (TPD) beginning Dec. 20, 2024, as we update and streamline our systems for a better user experience. You can continue to submit your TPD forms during the pause but some borrower discharges may not be finalized until the update is complete in Spring 2025.

What does this mean for those whose loans were already processed and are currently in the monitoring period?

1 Comment
2025/02/01
16:53 UTC

92

Can we make like a mobility aid question megathread or something so we can avoid the overflow of “can I use a mobility aid” posts

  1. were not a doctor.

  2. you should never make these decisions without speaking with a doctor or physio bc you can injure yourself and there may be other options that are better to explore first. We cannot do that for you.

  3. I’m sorry you’re going through this. We’re here for your support but three people post this every day and it’s always the same answers. Please speak to a medical professionals. We’re great for support, but not to answer questions that actually can negatively impact your body.

  4. these posts are flooding this sub.

With that being said if you are in this dilemma I am wishing you the best and we can offer great support but we shouldn’t make these decisions for you

37 Comments
2025/02/01
16:11 UTC

16

I feel like often people understand problems that people encounter who don't have disabilities, but then get mad when a disabled person cant do something on a normal basis.

2 Comments
2025/02/01
16:02 UTC

1

Cheap apps / watches to track fatigue / other symptoms?

How to deal with the struggles of the fatigue. How do I manage it, is there any cheap like apps or watches that could help me manage my symptoms and how I feel???

I've seen Visible on Instagram and some people swear by it but some just say it's a cash grab, it's also really expensive for a disabled teen so is there any recommendations that you guys could give ??

0 Comments
2025/02/01
15:48 UTC

0

When is it ok to use mobility aids?

Do you need to get a doctor appointment? It's super hard to get in where I'm at. Eventually I'm going to get in for ehlers danlos but I'm in so much pain right now.

15 Comments
2025/02/01
15:45 UTC

0

Forearm crutches

I've seen two different types of forearm crotch. There is the normal one where the top is straight and then the smart one where the arm is bent at a right angle. I'm sorry if I didn't describe it well. What are the pros subs cons of each type. I'm looking for something that doesn't put a lot of stress on my wrists and elbows.

1 Comment
2025/02/01
15:42 UTC

0

What are forearm crutches used for?

Are they used for stability or to help with pain? Also do forearm crutches pIt a lot of stress on your wrists and elbows? If anyone has any forearm crutch recommendations it would help.

5 Comments
2025/02/01
15:37 UTC

3

Is it normal to be in pain when standing for more than an hour?

When I stand for too long everything starts to hurt. It's mostly my knees and hips. For context im 16f. I shouldn't be feeling like this.

7 Comments
2025/02/01
15:32 UTC

4

Love Advice Please

Hi.

So I'm a t10-t11 paraplegic (complete). I live in the Philippines. I had an accident in 2022, so more than 2 years now. I was in a relationship during the accident. My girlfriend took care of me aside from my family. She helped me a lot. Physically, mentally, everything. She was there when everything was so down. We had rough and happy days, then got to a point where we always argued and fight. Maybe I was not so mentally stable as well. To keep the long story short, I caught her cheating. That was 8 months ago. And I can't even explain how painful it was to know you are being betrayed by the one you truly love. Until now, it's always in my head. I broke up with her many times but she doesn't want to.

But just tonight, I ended everything. I broke up with her. I just don't like the thought that I'll be paranoid for the rest of my life if she ever goes out or does something outside. I want peace of mind. I want to be free.

Being in love was the best thing I have ever experienced, I could say. But I feel sorry for myself because my perspective on love will never be the same again.

Going abroad has been my dream since. I know it's likely impossible in my situation now - being in a wheelchair. But can I ever live abroad as a wheelchair user?

0 Comments
2025/02/01
15:19 UTC

0

Social Security Must See

I started following this guy on YouTube for expert advice. He's a PhD, former SS manager and does daily updates on his channel about what you need to know and do to protect yourself and your benefits. @myGovExpert on YouTube Dr. Ed Weir https://youtu.be/-y_aXUgKIcw?si=mRYfYc-4bZEsNaOf

0 Comments
2025/02/01
14:09 UTC

0

Are companies like Nvidia discriminating against disabled people by not adding a mechanism for disabled people to participate in product launches that are intentionally designed to sell out in under a minute?

0 Comments
2025/02/01
13:28 UTC

0

Does this resonate with you?

I’ve been trying to write as a way of processing and reflecting on living with a disability. I’ve been looking for a community to share my writing with and I’m wondering if this resonates with others, and any feedback welcomed!

What does it mean to have crip kin? To know yourself through a lineage of others who move, think, or feel as you do? And what does it mean when you don’t? When there is no thread to follow, no story to unravel that helps you define who you are?

My understanding of kin has always been shaped by whiteness. Kin is family. This is why I turn to my lineage first, as if the only way to understand myself is through the eyes of my own blood.

But as I search for the threads of my disability a recognition, an understanding. I draw a blank. Just as I do not have the stories to understand myself, perhaps my ancestors never had them either. I wonder if my ancestors might have been disabled in ways that were never named, never understood, never embraced. Perhaps they felt the weight of difference but had no language for it, no stories to explain their struggles.

There’s a silence in my history, a silence that leaves me questioning what could have been, if only the recognition had been there, if only they had known what to call it.

And yet, in the present, I feel the possibility of finding it. I feel the shift, the threads of connection forming now, not from the blood that’s come before me, but from the community that stands beside me, waiting to embrace me as I am.

What does it mean to have crip kin?

I’m used to finding answers by searching within, but maybe this journey is one I cannot walk alone. This is an opportunity to define crip kin on my own terms, to create the stories that help me understand who I am.

Crip kin is the ones who celebrate with me when I go a month without losing my glasses who share in my joy, replacing shame and embarrassment with celebration.

Crip kin is the validation that my presence is enough, no pressure to contribute, no judgment when I don’t.

Crip kin is those who accept that I need time alone to recharge space to breathe, to be.

Crip kin is the patience I’m given as I slowly learn to share parts of myself, embracing vulnerability and meeting acceptance in return.

Crip kin is sitting quietly, sharing space, finding comfort in stillness together.

Crip kin is embracing the messiness of life laughing, crying, shouting in anger.

As I redefine what crip kin means, I realize my life is full of it. Full of these moments of joy, connection, and discovery. Thank you, my kin, for walking with me in this. May we share many more.

What does Crip kin mean to you?

0 Comments
2025/02/01
13:19 UTC

5

Therapists/psychologists with disability, how do you handle judgment from clients?

Hello. This is my first post as a Redditor. So, to give you a little context. I am a person with disability on the way to get trained as a therapist or a psychologist. And I am the first person in my family to pursue this path, and they are quite unaware about this field due to lack of exposure. Since I chose this path soon after my high school, my families only question is, "How can you treat clients considering your disability? What if they don't come to you? What if they are not satisfied with you?" ETC ETC. I have tried countless times, explaining to them that yes, I will have challenges, but people are in need of therapist. And now that I am here and have a chance to ask question, I’m curious to know the challenges, judgement, pity, and Dismissal if you have faced any. Thank you.

8 Comments
2025/02/01
12:58 UTC

32

How do people with deformities break the ice when people notice?

I made a post an hour ago on r/socialskills talking about how I can see expressions change in someone's eyes when they notice my hands. I'm in university so I try to talk to a lot of girls. Sometimes I will have really good conversations with her, and then she will notice my hands and I see the spark in her eyes die. I feel like I am a good-looking man, but I always feel like my disabilities hold me back. To make matters worse, I also have autism, right-side facial paralysis, and I am heard of hearing. Learning to be interpersonal has been hard for me, but its even harder with the missing fingers and facial deformities. Some of the recs I got on the other post were to "lead the vibes". I try to, and I would say I do a lot of the time, but in the end I know these girls think there's something wrong with me.

I absolutely hate when people want to shake my hand. It feels like I'm in the plagues of despair. When someone reaches out to shake my hand, I feel like the world shuts out around me, and its me and this person frozen in space, sounds get muted out, and I need to make a decision to escape this scenario. I feel so weird and awkward, if I shake their hand with my deformed hand, they won't say anything, but they'll sure think about something. I guess they would anyway, so I just ask them to do a fist bump instead, and I guess people seem to be OK with it. I hate how I just know that I become a topic of conversation when I'm not in the room. I hate being talked down to. I wish I wasn't born at all.

20 Comments
2025/02/01
11:12 UTC

2

Filing a lawsuit against the state of NC

My mom had two strokes 1 day apart from each other in 2020. She eventually learned to speak again and fend for herself but she had a burning sensation in her nerves all through her right side of her body as a result of the strokes. She told her doctor and her doctor told her that what she was feeling was "psychosomatic". That angered me to watch my mom cry in pain daily and be told that she's imagining her symptoms. She couldn't stand for long periods of times and would often cry herself to sleep because of how much pain she was in. She applied for disability 3 times because of this condition and was denied all 3 times. In 2023 she was diagnosed with multiple myeloma and plasma cell leukemia. She was hospitalized multiple times for lengthy periods due to complications of her cancer. She applied for disability this time with a lawyer & was denied once again for the reason that disability claimed that she still had a able body to work. Her cancer went into remission for a little under a month until they told her it came back. This time it was a 7 cm tumor on her brain & I was devestated. She passed 9/18/2024 ,exactly 3 weeks before I gave birth to her second grandchild. I was curious if I would be able to file a lawsuit against the state of NC. I watched my mom struggle and suffer mentally, emotionally, psychically, and financially due to her health conditions. My mom worked all the way up until she had her strokes which angers me because disability claimed that she still had a able working body even AFTER proof of long term effects from her strokes and cancer. Later on during one of her hospital stays, a neurologist confirmed my mom having nerve pain, the same nerve pain that another doctor told my mom it was "psychosomatic". How do I go about filing the lawsuit if I can and would it be helpful to ask the doctors for notes and letters confirming that she could not work ? Thank you so much.

I live in VA & would make frequent trips when I could to see my mom. In November of 2023 she was hospitalized and she didn't want to fight back. I quit my job I had at that moment to spend a week in the hospital with my mom & it meant so much to her. To hear my momma say I helped gave her strength to fight still brings tears to my eyes. My mom went from barely speaking to by the time I left she started walking again, glowing, & went on to fight for another 9 months until she couldn't anymore. I get angry thinking about how my mom was treated. I get angry when I think about the lack of support. I get angry knowing that she passed. I miss my mom. I'd do anything to have her back.

0 Comments
2025/02/01
10:30 UTC

0

At what point did you start using a cane?

I have a lot of cartilage erosion in both my knees but especially my right since my legs are uneven and it's longer. It does cause pain but usually I just suck it up and but a lil knee brace on when it's unbearable. My mom has a cane in her closet that she got once when there was some paralysis she had a couple years back and the other day I was curious and decided to try it since my knee was bugging me a bit. It actually helped a lot but I'm also worried it's coddling the knee too much?

I rarely see people use canes so I figured it's more like a use it if you really need it not just cuz it hurts a bit less thing. I have physical therapy for strengthening the muscles around the joint so I guess since I can walk without a cane I should. But I just wonder when that point is that it's better to use a cane than to just push through and I know I can talk to my physical therapist about it and she's def my deciding opinion but I'm scared to ask and I just wanna gather as much info about it as possible before asking someone irl and they think I'm melodramatic.

5 Comments
2025/02/01
09:25 UTC

0

Hello, F (18) What can I Add?

Hello, i’m diagnosed with Borderline,Bipolar,Anxiety,Ptsd,Panic Disorder, GAD and SAD. I’ve had Disability since i was 12, been hospitalized around 13 times, i visit a psychiatrist Monthly. Since i’ve just turned 18 they are calling for a review , I’m not sure how to prove i can’t work since i’ve never worked before, all i’ve got is a Ged. In this review ive put all my hospital stays and the dates and i’ve included my Psychiatrist contact info is this all I can do? Is there anything y’all think i should add? I’ll be honest i can’t function in social settings which is why i have a ged, i dropped out of high school because id have panic attacks about going everyday and wouldn’t go. I had missed almost all of the school year before i dropped out. What did y’all make sure to include in y’all’s? Thank you Much Love to y’all!

1 Comment
2025/02/01
08:36 UTC

3

I have a strange question

Is it alright to have a crush on my support worker or not we’re very close in age

3 Comments
2025/02/01
08:08 UTC

1

Do I have to Apply for ADA at Work or is Disclosing My Disability to HR Sufficient?

1 Comment
2025/02/01
07:39 UTC

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