I know it’s not late yet but with Musk having an unprecedented amount of access I’m still scared.

Has anyone gotten their deposit yet? I’m hoping to pay rent this month and not be homeless

So, I have hypermobile joints, but I'm not diagnosed with anything formally. All I know right now is that I've partially/rapidly dislocated and relocated one knee at least twice, and the other knee is starting to sting and burn a bit. I think I need to get a walking cane, to reduce the stress on my knees (I walk a lot, no car) but I'm nervous to look for one since I really don't know much about canes. Does anyone have advice? I'm worried I'm just overreacting to my knees but the pain's getting more prominent...I'm not sure about cane sizes compared to my own (5'1") and I'm not sure what the different handles are for?

To preface,

I have BPD, amd whatever else I have, because Im more severely impaired cognitively than the average person with BPD. I have severe Cognitive impairments. I cannot work anymore. When I'm upset, I become a completely different person. I have chronic passive suicidal thoughts, that I often really feel like acting on. I am very socially impaired. I have memory issues. Major boundary issues. Ive been in the hospital for 3 months for programs to help me.

Some armchair therapist on Facebook decided to comment on one of my spiral posts about how I'm just playing the victim, and I need to love myself before anyone can love me, and im a prisoner to my victim complex, and that I obviously don't have any Cognitive impairments because I can type in complete sentences and understand that I have impairments. And she knows all about psychology because her daughter studies psychology in college. And that I'm posting spiraling posts on fb because I want "handouts. " And that her uncle had downs syndrome, and she was abused as a kid, so she knows all about cognition, and was able to work, and raised a kid, and have a husband and build a life, so I can too. And that im wrong to assume she doesn't have Cognitive impairments, becsuse I don't live in her shoes, and that she was able to make a life for herself so I should be able to too. And that I don't want help, and will never be loved because im not a good partner, etc. And she's one of those maga people.

People just get on my nerves. You can't really fix Cognitive impairments by "loving yourself" and "making moves." I've spent 10 years trying.

I'm now at a point where I am understanding and accepting my deficits, and working around them to the best of my ability.

Im just so tired of people like that.

Hey. I'm on disability for a series of mental conditions. I'm also a heavy smoker with a gambling addiction. Just wondering... is there a future for me? Can I ever overcome these horrible circumstamces and at least get paid better? Invest, maybe?

I am thinking that there's a 50/50 chance of my job letting me go. If that happens, i have a plan to sue the white house, and NOT my work. They're not to blame in my option there victims just like me.

I myself have a disability, and love my job. The idea of doing anything else is killing me, and i feel like fighting back. If it comes to it!

https://preview.redd.it/r7i22emuynge1.png?width=1272&format=png&auto=webp&s=3ee8674bb5660e5db36c87998b82a927234739f3

https://preview.redd.it/ze56emgvynge1.png?width=1140&format=png&auto=webp&s=140997b3336234de9ecad4cfc627e93ce14ab40c

First of all, I ask this question because I am disabled by CMV and I would like to know and get to know people affected by this virus in their daily lives because in my country I do not know any so I would like to know if there in the US there will be someone affected by this disease. Viral

I'm 18, I've had pain in my legs and lower spine for nearly two years now. It's constant in one leg, and occasionally flares really badly to where I temporarily can't walk/put weight on it but usually it's just a dull soreness almost? I've gone to multiple doctors and basically been told that everything looks fine so I should be okay I just don't know if using a cane would make walking/standing for long time easier on me

I feel like I'm watching my body slowly fade away. My mobility in the past few years has been growing less and less. The pain is growing more. I'm only 16. I shouldn't be in this much pain. I can't stand for more than an hour without pain. I know eventually I'll be needing forearm crutches and a wheelchair if the worsening doesn't stop. There is no cure there is nothing I can do. I'm trying to get into the doctor. My mind is fine and I'm watching as my limbs slowly loose there functioning. Everything hurt so the time. No one seemed to care. No one notices. As long as I smile everything is fine.

Thanks for listening to my rant.

I am disabled. I have an unknown neurological condition (still in the process of being diagnosed after a year due to doctors being stupid af) as well as sleep apnea and peripheral neuropathy. I am a 22 year old woman, and I have my RN license and plan to work a full time nursing job. I have an ex friend who is also disabled, who was constantly bitching at me about how I’m not “really disabled” because I have been able to hold a job (barely, I’ve been on disability for months now), and because I don’t have symptoms “as bad” as hers. I do have awful fucking symptoms, they’re just different because we have different disabilities. Also, in group therapy, one of the members was taken aback when I said I had been sleeping 22+ hours daily and basically called me lazy and was like “you don’t know what life is, you don’t even work”. It’s such a no win situation. I don’t feel disabled enough to be considered disabled, but I am not able enough to be abled. Why the fuck are people like this? Why does the world, and everyone, even other disabled people, have to hate us bc we show symptoms differently/quietly/invisibly?????

And by super rare I mean super rare. I’m the only person in the world with my condition, so I often don't feel like I have a community anywhere, but I think if I were to interact with other people with rare conditions (realistically not quite as rare, but still) I'd be able to find a place for me somewhere? I don't even have an official name for my condition because you can't make a diagnosis with only one person.

I have severe nerve pain/damage that prevents me from walking or standing for more then a few minutes at a time. There was missing paperwork about my disability that my case manager didn't provide my work which he was supose to and I just found out about this. I have worked at this job for almost 6 months now. I no longer have that case manager or any services to help me with this matter. My work knew I had the nerve pain disabilty and their excuse was they didn't know how severe it is. I had a doctor's note and I was approved to bring my own chair in. Work said I should walk around the store exc as seen in the image but no one talked to me about this ahead of time. This could've been easily dealt with in a simple conversation without being written up for. Work has my phone number and email and could've reached out but didn't. I honestly feel discriminated against because I can't fix having disabilites. I hate being disabled and have been suicidal in the past becouse of it. Any advice on what to do would be great and appreciated. Thank you for listening to me.

reposting here bc it got taken down on r/MultipleSclerosis bc im not officially diagnosed yet (in the process, main hypothesis of my medical team and i)

Ive been having MS symptoms for around 5 years now, and i my episodes were relapsing remitting. I was hospitalized so we could get to the root of my problems in 2022. My main hypothesis, which my doctors seemingly agreed with was MS. i did an mri, which i was told was a full body mri. after my mri, i was told ms was ruled out because my mri "didnt show any brain abnormalities", and was diagnosed with "conversion disorder"(thats what they called it and how they explained it to me. they basically said well u rlly feel the symptoms but theyre not actually real theyre all in your head and caused by anxiety). No eeg and no emg, no spinal tap, no csf analysis.

Right away i felt like something was off but i figured they did the tests and didnt find anything so i kinda forced myself to accept it as FND. I tried to get treatment for my "FND" but the only thing my doctors would prescribe me was psychotherapy with a "professional" who not only had never heard of FND but also would just tell me to "just stop it" and yell at me and also randomly put in my file to NEVER let me from use one my safety accommodations when i was hospitalized (chair in shower bc of fall risk) bc she thought it would "encourage it". Took me 2 yrs to finally be able to see a neurologist after begging for one since my diagnosis.

Fast forward to a couple weeks ago, i am no longer an occasional case user but a full time crutch user who really should be using an electric wheelchair but cant afford it. I cant work or go to school anymore and am mostly bedridden. The progression of my symptoms is now progressive relapsing. i finally got access to some of my medical reports, so i went and looked at the report for the one and only mri i ever did. It was a lumbar mri. for over 2 years, all my doctors would tell me to stop bringing it up bc of this mri not showing brain abnormalities. the reason it didnt is that it didnt fucking show my brain at all. not only that, but the areas they did scan had a lot of abnormalities including a subchondral cyst (a cyst in a FRACTURE) which they never told me about as well as a fusion, a bulging disc and spondylosis in 2 places. they said there was no causes to my pain in that exact spot and that my scans were perfectly normal (they very much werent, i had a fracture with a cyst in it which they knew about as well as other shit they also didnt tell me about).

Obviously, i am pissed. i would not be this disabled had they taken me seriously from the start. they lied to me and told me my mri was a full body mri with a detailed brain scan, which i now know for a fact is not true. they used that mri to justify being ass to me for years bc well my scan is "normal" so im fine. they would not refer me to neurology OR pain clinic OR FND specialists. they blamed the progression of my symptoms on deconditioning and most importantly kept insisting all of it was my own fault. i am seeing my neurologist for the 1st time since finding out all this (and the 2nd time ever) on monday and im scared. we already did an emg which was very positive

do any of you guys have any tips on what i should tell/ask her? i know im gonna request an mri and stuff but yeah :/ im rlly glad she seems to really take me seriously which is giving me hope!!!!

TLDR: just found out my doctors never actually tested me for ms and just lied about it for 2+yrs saying it had been ruled out when it hasnt

Hi! We are in Keilor East, Melbourne for 3 weeks. My daughter uses a wheelchair and cannot walk. She is 10 years old. We are from China. I want to look for friends for her to play together. Any friend near us? Thank you!

hi yall; Had a question I wanted to ask.

What's everyone's favorite mobility aid; Either one you have now, or the ideal one you could get if insurence/money/space weren't the problem.

I'm a very big fan of my rollator, but I think ideally (and if my issues keep progressing as they are with no diagnosis; nerve problems have damned me); I'd love a mixed manuel + power chair, as an example.

Do you take them out of the bottles and put them into a storage container or bags? Is there a product you use to organize them? I need ideas. I have like 16 OTC and prescription meds and cannot keep them all in a cabinet because I can never find what I’m looking for. Any ideas?

(Sorry I screenshotted this from a different post lol, but it’s still my own post)

Am seeing/hearing so many news articles/stories about husk wanting to take over or get into the treasury department, to hijack and modify crucial help and distributing systems for those on services like disability or other helpful programs by getting into the funds in the treasury department. Am starting to be convinced everything will be taken away like Thanos snap of a finger and its a terrible timeline. Am not sure what to do and honestly not sure how to feel any better about anything. Know its something so many people are now being threatened with which is nightmare fuel in itself certainly not comforting. How is everyone else dealing with the news, is there anything we can do??

edit: update to this it was confirmed/has happened.

Chatting and laughing with sistegr this morning and sure enough visual trigger nabbed me. Almost fell oveer with dizziness. With fuzzi body. Blech.

I have very bad balance issues. For my safety, I stopped letting my roommate's cats into my room. But my roommates have five cats. They just got a kitten a few weeks ago (cat number 5) and my life is miserable. She thinks my rollator wheels are toys. She loves to attack my cane. She keeps climbing my legs and leaving me bleeding. I can't leave my room without being harassed. Not to go to the bathroom. Not even to get food. I'm exhausted every day and crying in frustration. My roommates only solution so far is to spray my room with vinegar or citrus smells. I'm going to go with it cause I hope it works. But I'm super sensitive to smells so I have a feeling it will still end up punishing me.

Anyone have ideas for how to keep the cats out of my room? I just want to exit my room peacefully. The only thing I've done so far that sometimes works is a shoe lace. I can sometimes lead them out of my room.

I have Audhd, fibromyalgia, CFS, and for an unknown reason I vomit frequently unless medicated. I can only work 10 hrs/ week before it starts really kicking my butt. I've been trying for years to get approved for SSI, my parents kicked me out of their home for my "lifestyle choices" (basically boiled down to being disabled and unable to work full time), and I've been busting my butt to find financial aid or housing with no luck.

My parents are currently paying my rent but that stops in May.

I'm terrified of being homeless. It's already difficult to take my meds and eat, even in a stable environment with a care taker. Without housing I can't have a care taker. I'm terrified that without the stability that comes with housing, my physical and mental health are going to decline and that I'm going to just stop functioning all together and rot away on a park bench or in my car if I'm lucky enough to keep it.

I don't know what else to do other than to panic.

I'm looking for what people's experiences are/we're with the ticket to work program.

Being disabled and ugly is very difficult. I'm ugly and disabled myself. I have a feeling that people only feel sorry for beautiful disabled people. They can only feel sorry for ugly disabled people if they have something like Down syndrome. Can anyone relate to this?