Is this a side effect of clozapine? It’s very annoying. It feels like the demon is trying to take control over my mouth and force me to say bad stuff.

After a schizophrenic break a decade ago (20yo), my daughter still has anosognosis. She has gotten well enough now to recognize that she has memories that aren’t real… but she can’t discuss. She takes the clozapine and that’s about it.

She is stable. She has been on clozapine for ~8 years.

Our psychiatrist is nice but inexperienced—no other patients on clozapine. I want to find a doctor who will think it all through with me and consider her case in light of the latest research.

Can anyone recommend a doctor in the United States (preferably Pacific Northwest, preferably Seattle) who is knowledgeable and caring? Ideally I could pay out of pocket to just get consultations without my relative in the room. She can’t remember her own medical history, and I think it could be very distressing to think it all through. I don’t know if that’s possible, private consultations with just me in the room?

But the main thing is if anyone loves their clozapine doctor and can make a recommendation for how to get in.

Does anyone have an increased feeling of sedation after a dose change, even if the new dose is lower ?

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I’m on week two nearly week three is it too early to have a change because I don’t feel anything

Hi all, I've been taking clozapine for a couple of months, building up to the current dosage of 250 mg. There are a couple of things I would like to talk about. For starters, I'm not even sure my psychiatrist's diagnosis was fully accurate; to describe what I was going through, it was as if my mind would take control of my energy and vibrations that I would put out into the world. For example, and this is from a note I wrote a good while ago before I had a procedure done to restore a significant portion of my sanity, "My friend invited me to get lunch and instead of feeling happy about it I sent out a strong vibration that they felt guilty about me being alone and inviting me. A song I was listening to said the word 'Bitch' and so my brain sent out a concentrated vibration towards one of my friends as if they were the bitch the song was referring to. I would envision getting r**ed by men I worked with. When I would feel a certain frustration, it would be as if my brain was it's own sentient being that controlled and manipulated my emotions, and negate those emotions, essentially suppressing them without my wanting to. Instead of having hallucinations, and hearing things, the thing I was experiencing was as if satan was controlling the energy I put out into the world without my consent." That being said, I got a certain procedure done, and it honestly kind of cured like 60-64% of my issues. One of the positives of it is that it could stimulate and form different pathways in the brain to allow medication to work if you happened to be treatment resistant. But it was not like I was fully cured, and eventually my doctor put me on clozapine. Since starting this medication, I have not really experienced an improvement in my symptoms, they've stayed about the same. At my most recent appointment with my doctor, I described my symptoms to them, and asked them if they have ever heard of the things I've experienced in other patients. They replied no. That made me wonder if I even needed this medication. Since starting it, I've been sleeping like 10-12 hours, and it really doesn't feel like it's made a difference. I've messed up my sleep schedule, and have gone without taking the medication a day, various times, in an attempt to fix my sleep. I don't want to fall into an episode or something because I began taking this medication. I don't really know what to do, if there is possibly anything that could help me.

When do you start to understand

I’ve just started and see no affect Can anyone tell me more about how you view your delusions while on clozapine or anything in general would be good

My son takes clozapine multiple times through out the day. And the heartburn/GERD is terrible for him. I know that's a common side effect of clozapine, was just wondering if anybody else had found anything that helps or 'kinda' helps with it. Ideally he'd come off of it to help but we are not there yet.

I talked about being sick as a dog on this medicine a few days ago. Well, Doctor wanted me to go back to it, but start it slower and remove the Abilify oral and half the shot I receive. I'm back up to 150mg and I'm miserable. I already called my doctor's office and spoke to his PA. Throwing up and horrible heartburn and are not what I was hoping for.

I feel like this Dose is way to low. My doctor will not be increasing it further. Anyone else on a super low dose?

My memory has gotten worse and worse. I can see a movie today and won’t remember it tomorrow. In a simple conversation I’ll forget what I was saying. I’ll go to therapy and the next visit it is completely forgetting. I mean I don’t remember the building or the way I got there. I walk in and I don’t remember the lobby or the secretary. I don’t remember what we talked about the last time. My psychiatrist has prescribed Topomax but I had a bad reaction to it.

I went up 25mg of cloz so I'm on 475mgs. Last night I wet the bed and I think it was because I was so sedated I didn't wake up when I needed to pee. I'm seeing my psych on Monday and will ask him to drop the dose back to 450mg. Has anyone else had this problem?!?!

My lo is on clozapine and has the flu. What can he take or what does he need to avoid ? I’m guessing NiQuil is a bad option ?

I got flu-like symptoms about a week ago. I had my blood work done just a couple of day's before I started developing a fever so my psych said not to worry about Clozapine being the issue. I had my blood taken again yesterday, I still have high fevers from time to time and flu-symptoms. My psych called me and said my white blood count or something is under the level they should be at. I'm not to take Clozapine tonight and then take new tests tomorrow, including an ECG. I'm afraid I'll have to stop Clozapine, don't know what other med will work, I've tried so many.. My psych is hoping it will get better if I stay off the med for a day or two, have anyone else had the same experience?

How long did it take for the medication to work

Came off last 2.5mg of Olanzapine and upped Clozopine from 225 to 250 mg. Is dizzy just side effect that should go away over time?

So, recently I posted here about my bad experience with Clozapine. My doctor said I had two options at my most recent appointment: immediately start me on Clozapine at a lower level of titration or wait and see how I do ...well, here I am a week later and I've traded paranoia for hearing voices... I'm calling tomorrow about restarting the Clozapine at a lower level. If you are the praying type, please pray for my psychiatrist and me. I'm going tomorrow to get the blood work done again to restart the shenanigans of weekly blood work for six months...

I started Clozapine this summer. I'm like the definition of a morning person, liked to be up before 6 am since I was born. I really enjoy early mornings. This is not happening on these meds. I'm so tired and can't get up before 10 am, and that's often after having gone to bed at 8 pm. Anyone have any advice for being able to get up in the morning?

I was meant to have my meds at lunchtime but it's 9oclock at night and I just remembered. I will take my evening meds at midnight but will I be fine or will I become psychotic again. I've been fine for around atleast 3 years and I would hate to lose my mind again.

Oh man. This drooling. I’ll raise. Sea levels if I eat this pill. I told the doctor I drool at night. But I drool day and night. I need a bib.

Is it a side effect to completely lose hunger on this medication?

I ate little. Very little when I ended up on psych ward. At least I ate! Now, a week into Clozapine treatment, my hunger disappeared completely.

I force myself to eat. Lost 3 kg in two weeks. My cloths are larger.

I can’t eat. I have eaten very little last month and now I eat nothing. Voices tell me I can’t eat. They are angry with me because I started Clozapine.

When does hunger come?

I’m on 50 mg

Started Clozapine on Tuesday. My voices scream fowl language at me. I guess they’re in panic.

How long will this last? I try to cope but it’s hard. They have threatened me to quit Clozapine 3 times already.

They’re like actors. Screaming in agony to get attention. Play hurt. I don’t buy it.

On what dose does the sleepiness come? On 25 mg now. Last night was spent on internet buying stuff.

Also, do you have any health issues because of clozapine?

Is this combo safe? Kratom used to really help me with emotional stability and comforting me when I was experiencing negative emotions.

Recently started clozapine, currently on 50mg. I really want to go back to Kratom but I fear interactions with clozapine because clozapine interactions seem to be pretty dangerous from what I've heard.

Kava doesn't work for me anymore and makes me physically shake and my breathing goes manual. I get the feeling that I'm floating which is really disconcerting. So Kratom is a better option as the only problem I've ever had with Kratom was occasional mild dysphagia. Far less severe than the dysphagia I get from zyprexa.

Currently tapering from abilify and zyprexa to just clozapine potentially augmented with abilify but in a lower dose.

Ability alone used to work but then I quit it cold. Turkey did mushrooms and DXM, so far so good. Then a month later I tried smoking weed again and went manic for like three months. Ever since that manic episode my medication stopped working and no longer controls the voices. I now am also struggling with feeling disconnected from my bodily sensations. It's getting better but for two months I was having panic attacks every day or every other day and worrying the DXM permanently screwed up my brain and I'd be artificially dissociated for the rest of my life and it'd get progressively worse until I was convulsing and stuck in a hell trip until I died. I also worried the voices and demons on my eyelids would suck me into another realm and torture me for eternity. Luckily that phase is over though.

After Christmas or new year they will have the staff to process my bloods and get me on clozapine for other people on it how has it changed your life and how much