/r/autism

Photograph via snooOG

Autism news, information and support. Please feel free to submit articles to enhance the knowledge, acceptance, understanding and research of Autism and ASD.


Autism news, information and support. Please feel free to submit articles to enhance the knowledge, acceptance, understanding and research of Autism and ASD.
By posting here you agree to all rules and reddit's terms of service.


Please refrain from using slang or derogatory words to describe a condition, symptom, diagnosis or treatment that is negative and hurtful. This includes name calling. Your post will be removed and lead to you being banned. Please review Reddiquette when needed.

It is acceptable to introduce the community to your personal site. Further continued submissions will be reviewed as abuse.


Rules:

Check our wiki before posting with questions. If your question is answered in the wiki, your post will be removed.

  • No personal attacks, hostility, or escalating arguments - be kind. Personal attacks do not contribute to a discussion and only result in creating an unwelcome environment, do not act with hostility towards other users or escalate arguments. Please also be aware that in a largely autistic space, miscommunication and misunderstanding between people is likely to occur, and some comments may come across as rude or offensive without being intended that way. If you're uncertain how to interpret somebody's comments, try asking them to clarify what they mean.

  • No sharing pseudoscience or spreading misinformation, no Autism Speaks, no cure-related posts. Posting pseudoscience or spreading misinformation is not allowed. Sharing content from or creating discussion around harmful organisations such as Autism Speaks is not allowed. Asking for opinions on an autism cure or speculating on alternative causes of autism outside of the scientific research into ASD causes is not allowed.

  • No self-diagnosis debate or discussion, no making arguments in favour of or opposing self-diagnosis. Debate surrounding self-diagnosis, or posts asking for opinions on self-diagnosis, is not allowed. This includes both advocating for or against self-diagnosis. The topic is exhausted, too frequently brought up, while no meaningful discussion on the topic takes place and conversation quickly spirals into chaos.

  • No asking for diagnosis or medical advice for yourself or someone else, no "Am I autistic?" posts. Please don't ask for a diagnosis for yourself or for another person, or word a post in a way that can be interpreted as asking for validation. We cannot diagnose you or offer you advice on medical grounds. Concerns about your health are best discussed with your GP, physician or another qualified health provider. Taking medical advice from strangers who lack the necessary expertise or ability to objectively evaluate you is potentially dangerous.

  • No posting online test results, such as the RAADS-R or AQ. Please don't post results of online tests to the subreddit. Tests such as the RAADS-R, AQ and Aspie Quiz are intended to be used as clinical screeners only to determine if it's worthwhile for a practice to take a person on for a full evaluation, they are not diagnostic tools and their results cannot reliably indicate if a person is autistic or not, nor are there results able to be reliably interpreted outside of a clinical setting.

  • No sharing posts or media with usernames or identifying information. No posting images of children. Please don't share images, posts or screenshots containing visible usernames or any form of personal identifying information. Don't post images of children.

  • No clickbait or vague post titles, no spamming, no posts titled with emojis or symbols. Please ensure posts have a descriptive title that details exactly what the submission is about, vague posts and clickbait where the title does not accurately reflect the main post content may be removed to avoid causing confusion. Posts consisting of emojis and symbols only will also be removed.

  • Correctly flag NSFW topics, and be mindful of the presence of young people on the sub. If you're posting about an NSFW topic or asking a question of that nature, please make sure you have correctly marked it as such. The subreddit has a large number of younger people using it, and posts must be mindful of their presence. You can provide context to the question in the title, but don't be overly explicit.

  • No highlighting arguments within other subreddits or continuing arguments across other subreddits. Please don't post about arguments that occurred within other subreddits or draw attention to other subreddits with the intention of directing people's attention there. Likewise please don't engage in arguments with members of other subreddits or follow them around other subreddits to argue there.

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If you want to do an AMA please do it in /r/IAmA or /r/casualiama. There are more people who will see it there and it would probably do more to increase awareness over there but feel free to link to it here.


Other subreddits you might be interested in:

/r/autism

405,926 Subscribers

1

why is getting diagnosed so hard??????

its so infuriating and humiliating i just cried on the phone wirh the therapy office because my psychiatrist who was supposed to diagnose me hasn’t responded or sent me any tests and i don’t know what to so anymore i need this diagnosis before college and the only other option i have can’t meet until the end of December and college starts in january its too overwhelming and stressing me out i cant do it anymore my parents dont eveb want me to get diagnosed its jusy so hard i dont get why everthing is so hard

1 Comment
2024/11/01
20:07 UTC

1

Is it okay for me (an almost 20-year old Australian autistic person) to consume any media I want?

Things like any movie, any TV show, any music, any online media (e.g. any YouTube video), any video game, any book etc

3 Comments
2024/11/01
20:00 UTC

2

Appropriate age to discuss diagnosis of ASD?

Just wondering how and when is the best time to tell children that they have a diagnosis of Autism Spectrum Disorder? Are there pros and cons of not revealing for reasons such as age etc?

3 Comments
2024/11/01
19:40 UTC

1

Detailed Example of Autism Evaluation?

Hello! I got an appointment for an autism evaluation, and Im wondering what exactly will happen during it? the doctor I am being evaluated by usually evaluates children (Im 20) and I guess im just a little nervous. its over a month away but i find myself having long fake conversations in my head everyday to "prepare" lol.

would anyone be able to give me like a step by step walkthrough of what to expect? i like knowing exactly whats gonna happen and i also wanna know what to do to be prepared. like when i walk in, do i go up to the counter and give my name? im paying by check, do i give that to them before or after the evaluation? what happens during the evaluation? thank you!

2 Comments
2024/11/01
19:37 UTC

3

Does anyone else have their entire body shake with excitement when you're really excited to talk about something or someone.

Exactly what the title says. I just want to know if anyone else experiences shaking with excitement.

1 Comment
2024/11/01
19:34 UTC

2

What accommodations should I ask for?

I just started a new job working at a call center. What kind of accommodations should I request for, need tips from other autistics that also work in that industry, and also need tips on how to mask Proficiently and not be flustered on the phone. Hopefully this job works out..

2 Comments
2024/11/01
19:31 UTC

2

Anyone else have enhances senses except for a couple senses that aren't good in quality?

For me, I have advanced hearing, tasting, and feeling, but my eyesight and smelling skills are terrible. I feel like on the smell thing, my nose just tends to get adapted to certain settings and smells, especially familiar scents very easily, allowing for me to only REALLY be able to smell usual things for a few seconds, if the scent is expected that is.

2 Comments
2024/11/01
19:27 UTC

5

Autism evaluation went really bad.

So I had an autism evaluation today. I was diagnosed with Asperger’s when I was 6 but wanted to confirm it 21 years later. I’m female 28. The evaluated had it out from me from the moment he saw the it test and my history which includes childhood trauma and bipolar disorder. Apparently I didn’t show signs of autism at the appointment even though I couldn’t sit still or look at the guy. He demanded within 15 minutes of meeting me that I had to show him a symptom any symptom and I told him it doesn’t work like that and he’d already acknowledged the two symptoms I’d been dealing with. Part of my childhood trauma was being beat for doing anything not socially normal so you learn to hide a lot when you have no choice. Any symptom I brought up was blamed on bipolar and trauma. He said you can grow out of autism and not have any symptoms of it if you had them as a kid. Like poof no autism for you because you can look at people’s noses sometimes. I had to learn to talk to people and I got pretty okay at it but I struggle a lot all the time and it was disregarded as everyone does symptom - usually right after he asked about that particular symptom and explained what he meant. I do that sometimes so you done have it constantly. I broke down crying 2 times in the office from frustration. It was a 2 hour paper testing with another person which I felt pretty good about and was happy because that guy was encouraging without being judgmental. Then I was taken to the asshole Dr. because I was told by friends that your Dr can’t help you if you don’t communicate what is wrong I tried to be social and now I’m so so tired. He told me if I came in and stared blankly at him (what I wanted to do) he would have diagnosed me with autism. So he tells me I have a lot of autism symptoms but it’s untreated bipolar disorder. I do have treated bipolar disorder but he thinks I should have more meds that he chooses because “if you have all these symptoms then it’s not being treated”. I’m pretty sure not understanding other humans and having a life history of autistic traits isn’t bipolar disorder as I have had it awhile I think I’d know. I don’t want another problem but I do want to manage my problems and if that means knowing it’s something new then that’s fine. So I’m too smart and I care about people and can talk if I need to and that means I don’t have a problem. Not to mention the dude took two calls and left the room twice during my appointment for 15 and 10 minutes. He fought me on everything. And I wasn’t allowed to break for food or restroom breaks in the 5 hours at the office. And when I did get to go to the bathroom after checking out I had to ask for the key and return it. I asked him at the end of the appointment if he had any relationships with anyone who has autism and he said no firmly. I have 3 siblings with autism and a parent and a cousin. None of them are low iq and every one of them are caring people. Should I ever try another evaluation again somewhere else or is it not worth it? He’s the highest rated in my city and one of maybe three that evaluate adults.

3 Comments
2024/11/01
19:24 UTC

4

What was the point?

My boss: staff members must validate their parking ticket if they do not have a pass, we can't just let them out anymore

Me: so if they don't have it validated, charge them and have them request a refund?

My boss: well, no. They get free parking. They just have to have a validation

Me: but what if they don't?

Boss: we let them out but make sure they know to have a validation in the future

Me: well, this conversation was an irritating waste of time since we already do that. Thanks for the ambiguous instructions, they aren't going to make me freaking crazy at all

1 Comment
2024/11/01
19:15 UTC

2

I'm so confused

Hi guys, i hope your all well. I have an autism diagnosis. I have known this boy (he is not neurotypical) for 3 years and I love him, and i'm honestly obsessed with him. We are just friends nothing romantic at all and we don't wish for that. For the whole summer, I didn't hear a thing from him, we had a catch up this week and it was pleasant we both seemed to have not an ok time. I have struggled maintaining friendships my whole life and this guy is a really hardworking and kind person that I want to be friends with and i'm glad we are.

But I have no idea how to read him. When we were talking he leaned forward and fully listened to what I was saying and it was the best moment. But I have no idea if he likes me and wants to be my friend. He barely texts first, never organises plans or leads the conversation, he says he is socially awkward, which is valid. I don't want him to fade away but I don't want to feel like i'm bothering him all the time. It's reslly strange because I can't tell if he wants to be friends, and if i ask him obviously he's gonna say yes to be kind.

I texted him saying i'm more grateful for him than he'd understand and he replied saying he's honoured and he'a grateful for me too. But then I invited him over to my house yesterday via text and he was like i'm busy and didn't bother to schedule for another time. I just have no clue if he wants to be friends with me, and I feel like he doesn't understand me. But to talk about my autism feels like i'm bothering him, how do you guys maintain friendships, and do any of you have any advice? thanks

(me and this person meet up like twice a year, each time organised by me)

1 Comment
2024/11/01
19:14 UTC

49

Autism isn't about getting out of your comfort zone, it's about finding it.

"You need to get out of your comfort zone!"

Living in a world for neurotypicals by neurotypicals, we were taught to constantly say no to ourselves and yes to others. Which is why many of us started masking at the expense of having a comfort zone where we can recharge. Otherwise autistic burnout probably wouldn't be this big of a problem.

Don't get me wrong, getting out of your comfort zone is cool and I think it's actually important. But you need to have one to begin with, right? Especially when tired and in need to recharge, I think we all need to spend some time in it.

Thoughts?

13 Comments
2024/11/01
19:12 UTC

4

Does anyone else struggle showing their love unconditionally ?

When I love someone I definitely know even when I pretend not to but I struggle to show that love if it clashes with other interests and anything I consider strategically important,

For example, they say if you love someone they are first priority, in my head I literally romanticise being a "gentleman" figure to them but in reality I struggle to put down what I am doing immediately when people I love are struggling and think I can't stand up for them when I know consequences of the opponent hitting me back

Its made me prone to sabotaging my relationships with people who may be good for me if I think it would get in the way of part of my future success and power, on the other hand it's made me possibly prone to holding onto abusive or power imbalanced relationships if I see some kind of strategic gain out of it, Eg - an exploitive boss or controlling authority figure, I have the injustice dysphoria that makes me more critical of these things than a neurotypical but my loss aversive psychology and desire for order and stability often takes priority...

I acctually fell in love with a friend this year but almost cut them off and then when I was given another chance I overthought everything and tried to control and dominate them instead of being accepting of their differences because my family wasnt accepting of my relationship ;-;

Maybe it's an Autism thing because we can have very rigid set ways or maybe I'm just a machevelian bitch who only shows love when it's convenient to me idk

2 Comments
2024/11/01
19:11 UTC

3

Do you ever assume what others feel about you?

Like let's say are you ever like ''nah that chick is definitely into me'' or ''fck they don't like me'' or assume someone's impression long term or short term?

Of course I'm not asking if you are getting the cues right but like, do you have first impressions on what others feel like?

3 Comments
2024/11/01
19:07 UTC

3

My husbands family always wants me to hang out but....

I need my little comforts and I dont want to bring them. I am always on my computer either staring at my planner, or my Life plan, or watching YouTube videos or talking to chat gpt or listening to a book on audible, unless I am doing chores, cleaning, cooking, kids, etc. I dont enjoy social interaction, I never have, and I dont understand it or why other people seem to need it so badly. I love being with my partner and my children but other than that its a total hassle. I know they think I am an ass because I am always avoiding them, but why would I go do things I dont want to do, when I could do the things I do want to do......... after all it is my life. I think they mean well wanting me to be there but its kind of creepy like why would you want someone to do something they dont enjoy, for your own enjoyment....

2 Comments
2024/11/01
19:03 UTC

5

If you’ve started a new school without any of your friends, did you get new friends and how long did it take??

I’m starting highschool in a year, and none of my friends will go to the same school as me (most likely). I've already prepared to lose my best friend of ten years cuz I can't keep a friendship to save my life but I’m so scared for high school cuz all my closest friends I've had since first grade and I’m scared all the other people there will get friends and form groups before I even get a chance to help me pls-

3 Comments
2024/11/01
19:02 UTC

0

I really think there is a lot of people that claim to be autisitc

Having REAL autism isn’t fun. I have sensory issues and struggle finding friends and employment. There has been a huge influx of people from tik tok who claim to have autism but don’t. This infuriates me because it almost discredits me when I say I actually have autism with a diagnosis. Nowadays people don’t take me seriously because NTs think most people say they’re autistic. I have an actually diagnosis and had multiple doctors say that I was autistic. Just because you’re socially awkward doesn’t mean you have autism. Like seriously go see a physiatrists or someone who is trained. Please don’t discredit me or people who actually have autism with self diagnosing.

6 Comments
2024/11/01
19:02 UTC

5

doorbell anxiety

when ever someone rings the doorbell or knocks on my door I become super anxious that something bad is going to happen, until I've verified who's at the door

Anyone else?

13 Comments
2024/11/01
18:48 UTC

1

Does anyone else have a problem with knowing what to do with themselves

I have just three different things that interest me and I'll become bored and don't know what to do. Does anyone else feel this way? And if so what do you do to change things up?

2 Comments
2024/11/01
18:47 UTC

1

How do I go about getting my girlfriend SSI checks for having autism?

She's told me she thinks she has autism and from what I've read I think she does. She's been diagnosed with it. I know she has anxiety, depression, and PTSD. She's had trouble keeping a job for longer than a week. She started up on college classes this fall and was working at a nursing home as a dietary aide for a few weeks. I was dropping her off at college and found out she quit taking classes a few weeks ago. I dropped her off at work today and she walked out and told me that she quit. She seemed so happy about getting that job and said she was doing great there. I was so proud of her because my anxiety used to be real bad and I was terrified of working at first.

She wants to make/have her own money and I can tell it's hurting her that she isn't/doesn't.

2 Comments
2024/11/01
18:31 UTC

35

How do you not get embarrassed by your bedroom

I really wanna buy a ton of Star Wars shit and make my entire room Star Wars themed but I think I’d die of embarrassment if someone came over and saw it. If your room is themed does it not embarrass you when people see it

76 Comments
2024/11/01
18:31 UTC

3

Seriously, what is with people singling out autistic people just to bully them, like WTF bro?

It happens to me all too often, I’ll be minding my business, and for whatever reason someone gets the audacity to harass me, despite me hardly knowing them, or not even interacting. It’s like they can sense your autistic, and they come after you. Do any of y’all have this problem.

1 Comment
2024/11/01
18:26 UTC

1

Is anyone from India around here? Please share your experience.

Mental health is a crude joke in india, and awareness is the butt of the joke. Can anyone share their experience of being diagnosed, cost etc?

1 Comment
2024/11/01
18:17 UTC

3

I want to get tested for autism, but it’s so hard to find a doctor willing to do it.

I mean, everything in my area I’ve found is pediatric, and I don’t want to go through a pediatric facility because I’m an adult and that’s awkward (27f here)

4 Comments
2024/11/01
18:11 UTC

3

18f Isolated socially since 12-13

I'm autistic and depressed.

I always felt like college was going to fix my life. i was so depressed, binge eating, having mental breakdowns from being so under stimulated and bored. I started to binge eat heavily which led to more breakdowns and hating myself for sabotaging the weight i lost. However ive been going for weeks and its nothing like my fantasies. I am just in the background. i cant speak or communicate like i do to people in my daydreams.. the constant daydreaming of my ideal life and self led me to believe i was better and more socially advanced than I am...

I had many opportunities to talk to people. The group at college somewhat involves me, they made me download snapchat to enter the group chat (which they just spam snaps for their streak thing?) and i just cant do anything? They compliment my art, bring me into the joke but i just do an awkward chuckle of acknowledgement to whatever the fuck they said..

I feel pathetic sitting hoping they'll involve me yet whenever they do i just sit there... Its not that am holding myself back its that theres nothing inside me. I'm boring.. i have no idea how to interact with people.. Ive been socially isolated for YEARS.. last time i had a friend was in my first year of high school when i was 12-13.. i ended up dropping out cuz of anxiety and undiagnosed autism and ended those friendships by ghosting them.

Ive tried to connect with people on pen pal sites and discord but i just dont know how to interact. I just want to relate and vent with someone..

All i do everyday is go on walks with music, daydream, binge eat, complain in my journal, cry, binge more, create a plan to not binge tomorrow just to do it all over again. My life is a constant loop am tired.

I was 56kg but have sky rocketed to 86kg in a couple months. I hate my body. i hate my personality.

I magically think that moving out my mums will save me. Like having the control over everything will help my autistic desire for control..

3 Comments
2024/11/01
18:09 UTC

350

How do we feel about thumb holes in sleeves? I love them.

I don’t

136 Comments
2024/11/01
17:51 UTC

15

Friend told me he doesn’t recognise autism as a disability since it doesn’t really prevent us for doing anything.

It’s so frustrating to me that this is how a lot of allistics see us and our disability. I wish that they could feel how I feel for even just a week. I hate being autistic. I hate my life.

Side note: He’s literally a cop too. No one supports us.

21 Comments
2024/11/01
17:48 UTC

1

how to help my significant other?

im dating a person that has autism lv2 and also dyscalculia. I don't know how to help them or what to do about it, i just don't want to cause any harm and trigger them into a meltdown or anything of a sort. i love them with all my heart and i just want to be there for them.

and I also wanted to help them study math, which is especially difficult for them. Any tips on how I can help and teach him to convert the calculations to the calculator?

ps: i know every autistic person has their own sensitivities and needs. This comes from a place of genuine concern, im sorry im being rude in any possible way. I'm not trying to stereotype or infantilize them in any way. I just want to learn so i can support and help my loved one. i'm probably autistic myself and im looking foward to being diagnosed, but for now, im more worried about them

1 Comment
2024/11/01
17:34 UTC

4

My friend is too affectionate and she’s making me feel uncomfortable

Hey all! Posting for a friend cause he doesn’t have reddit but he needs help lol, also he wrote this on mobile so apologies in advance if it’s a little wonky

I (M) have an autistic friend (F). I met her through a hobby group and we’ve known each other for less than a month. She’s quite affectionate while I’m the exact opposite. I tend to not express my emotions openly and I don’t really talk about myself as much.

Lately, she’s been much more expressive and telling me that she loves me. I’m never really the type to just blurt it out and have only said it to family and a couple of childhood friends. I understand that maybe she’s just the kind of person who expresses herself as such and that I’m probably just overthinking things but she’s also in a romantic relationship and I don’t want to end up causing a misunderstanding between them. The first instance she said it, I told her that it might get misinterpreted but she just laughed it off so everytime she mentions it during our conversations, I just end up not replying. Problem is, just recently, she started asking me if I love her back and I don’t want to just ignore her again. What do I say?

I have never dealt with something like this before. For added context, I have a hard time socializing as well and I tend to overthink everything so I seriously have no idea what to do in this situation. To be honest, it’s making me a bit uncomfortable but at the same time, I don’t want to hurt her feelings, especially when there’s a possibility that she’s also like this with others. Please help a brother out!

7 Comments
2024/11/01
17:23 UTC

1

Do you ever get a feeling that other people are conscious independent beings just like you?

It is very rare for me, I had it like five times in 30 years but today it happened again. This sudden, intense realization and feeling of "she is just like me. tired, trying to get back home" and suddenly I have a feeling of seeing from her eyes. I never can seem to wrap my head around the idea usually.

They are the same as me. Logically makes sense of course but to actually feel it? It is such a strange feeling and the few times it happened was in the latest 2 years. Something is changing.

15 Comments
2024/11/01
17:15 UTC

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