Tricks tips?

Im struggling to walk today.

But need to be standing up the whole day.

Any quick tips?

Okay this might be a weird one, but ever since my fibromyalgia I have this recurring nightmare about being somewhere and suddenly my legs stop working properly. I fall down and try to get up constantly, walking is like I'm doing the ministery of silly walks from Monty Python with very slow and exceggarated movements in hopes I won't fall down again. People around me either ignore me or laugh at my struggle and the place I have to be seems harder and harder to reach. Usually I also have a cold/frozen bones kind of feeling in my dreams. I've started noticing a pattern with this dream and that it's usually a pretty good indicator that a flare is either happening soon or happens the moment I open my eyes. Anyone else have this dream or something like that? Or other recurring nightmares that are an indication of a flare?

Hallo friends,

I don't even know where to start so I will try my best to stay brief.

I am 49M, 78Kg, 1.80m, have body pain without apparent cause since many years. Pain comes and goes, hits in different areas of my body: lower back (standard lower back pain but also more muscular and "internal"), between chest and rib cage, bilateral (and not) rib cage, neck, sometimes but less intense in wrists, knees, ankles. Pain can go well for a few weeks (pretty much disappear) and come back without any apparent reason, in multiple spots or only one .. who knows.

As far as I can tell from my body, quite often pain could happen because of wrong posture due to a first, initial pain that in turns cause other pain because, to compensate, I walk or make things trying to not use that part of the body, overusing the "sane" part.

Since 3 weeks this pain got much, much worse in multiple areas (bilateral rib cage specifically) and I can't even sleep (not that I could very well before, because I have restless legs too) .. changing multiple positions to try sleeping, cause much pain.

I went to the doctor last week and I performed multiple blood tests looking for rheumatic issues and/or a wide range of autoimmune conditions. I am waiting for the results. In the meantime, I read a lot about all the conditions my doctor is looking for but I cannot strongly relate to anyone of them, based on symptoms.

I am here mainly because as far as I understand, it seems that fibro could be the catch-all pain cause that is not otherwise understood. Maybe one of you can resonate with my description and give a name to my condition too... I really hope that.

I would like to specify that 99% of the times, my pain responds well to Diclofenac pills. I don't know if that helps. If I read well on the Internet, this could diagnose as a no-fibro ... making me even more sad because I don't fit in any condition and as such don't know what to do !

Any help much much appreciated, thanks <3

My knee constantly feels like it needs to be cracked and keeps cracking. Hard to go up stairs or down even tiny amounts. Going from sitting to standing. It comes and goes lasts 2-3 weeks and disappears for maybe 2 weeks but each time it gets worse and worse. Now it’s making it even harder to walk and the cracking and popping sensation is driving me crazy. The pain is overwhelming and no painkillers seem to help or heating pads. Started this last year. Anybody else experiencing this? Or has and gotten help or answers?

I tick every symptom box on Google, but I want to talk to real people and listen to their stories. How they found out and what it’s like to live with the condition. Google isn’t great for expanding on the topic.

Thanks so much everyone

Our 11 year old daughter suddenly started complaining of tooth pain/jaw pain and a painful burning sensation in her foot at night about 3 weeks ago. We have gone to the doctor, dentist, and ortho and they all said everything looks fine. We've ruled out any sort of injury to her feet and no cavities. The only thing that helps is ibuprofen every 4 hours, or the pain comes back viciously. We just got bloodwork done and are waiting for the pediatric rheumatologist appointment in March. I have been doing non stop researching which has lead me here. Is there anything else we should be looking for to report to the doc if this is intact fibromyalgia? TIA

Every day I have a problem with my right shoulder where it's like my shoulder is stuck in the upright locked position. It hurts. I spend a lot of time trying to get it to "drop."

Eventually I can get it improved after enough stretching, meds, etc. But it takes a while to improve it and then it gets stuck up again within a few hours.

I'd like to have a foolproof go-to for this or prevent it altogether.

Anybody found any strategy?

How do you all date online or even date in general? I don't know how to give more context on this but... I want to date and get into a rs. But it seems bleak with the medical condition. I mean, I know those cliche sayings but.... realistically speaking, how do you all go on online dating (if you guys are)?

Blood work has been done, ive seen doctors and no answers have been given to me.

My muscles hurt or are tense all the time, im usually always nauseas, headache, stomach ache, diarrhea, constipated, gurgling stomach etc. I drink lots of water, exercise moderately, have an active job, I eat healthy meals.. I am SO tired. I could sleep all day if I was able to and survive. I go to work, come home and do bare minimum. I thought it was a mental thing, thought it was due to being overweight, but my lord, I can't get this feeling to go away I feel like I can't do anything anymore

This has been going on for a few months now on and off. First when i picked up guitar, second when i started gaming more again. Was having pain throughout my hands, sometimes elbows, rarely shoulders, but also feet occasionally. The hands can feel like a dull ache, a throbbing ache, sharp pain, or just general pain. It feels like its in the joints sometimes, the outside of my wrist, halfway up my forearm, the fleshy parts of my hands, sometimes along the side of a finger near the joint, etc. If im doing something that involves use of my hands a lot it gets a lot worse for a few days. Not constant pain but when it hurts, it hurts a lot more. Doctors didnt see anything tendinitis related or anything of concern, rheumatologist recommended OT and for me to get an MRI to see if theres chronic damage. My fear is that its nerve related or something chronic where I just wont be able to recover and wont be able to indulge much in my hobbies anymore. I’m a 24 year old male and this is absolutely sucking

Hi everyone, hoping someone here can help or shed some light.

My girlfriend has been dealing with sudden onset of paresthesia symptoms for about a month now. She’s experiencing numbness and tingling on one side of her body, along with a constant, pressing headache. She also has numbness in her arm and leg on the same side, and occasionally feels dizzy. It’s really worrying because these symptoms are affecting her daily life, and we haven’t been able to get any answers.

She already had an MRI done, and surprisingly, it came back normal, so we’re pretty confused about what might be causing all of this. Has anyone experienced something similar or have ideas on what else we could ask her doctors to investigate? We were advised to see neurology specialists, but I’d really appreciate any advice or experiences anyone here can share.

Thanks in advance for any help or suggestions!

Good day I was just wondering has anyone had bariatric surgery and also have fibromyalgia and found that their fibromyalgia flared or just got worse maybe even became more widespread in their body as they lost weight?

I’ve lost 72 pounds and my body hurts more than when I had the 72 pounds on and I don’t understand why now does it feel like it’s move from my upper extremities to my lower extremities and of course Tylenol does not help and I’m not really open to The other medication‘s biologically which would impact how I am as a person.

If you have TMJ, how long does a TMJ flareup or episode episode last for you?

I was diagnosed with TMJ before diagnosis with fibromyalgia and for the most part, the TMJ has been a minor nuisance. However, I’ve had a problem with my right jaw for about a month now. it sure feels like the TMJ and I don’t feel any other dental sort of issues going on, but this is the longest I’ve experienced jaw pain.

So I’m curious about how others with TMJ experience it. Thanks!

I am 24 and diagnosed fibro about a year or so ago, my symptoms didnt just suddenly appear overnight its been a progression over the last two years or so (so i am in a much worse place than i was when it all started as basic aches and pains) my mom keeps claiming its non progressive, so i shouldn't be this bad bc i wasnt like this when symptoms first started showing, and doesnt want me to even try to seek more help or treatment because shes scared of me getting hooked on pills, and is also convinced the current treatment im on is the thing making me worse, but i literally cant sleep most days due to pain and other symptoms, can anyone help me find the words, or even help explain it to me? despite it being non progressive how do i know when itll stop getting worse

My dr thinks I have fibro but I'm awaiting a rheumatologist appointment in February. For about 10 years I've had allodynia flares on and off in random patches on body, but lately it's more frequent and intense. I also deal with days of extreme fatigue, body aches, etc.

About 5 days ago I went for an iron infusion and they put the IV in the top of my hand. They would check for pain periodically but I told them it felt fine besides some stinging. The following days since I've had the worst and longest flare of allodynia yet from my hand to my elbow, including my fingers

For the following couple days my hand/forearm was extremely sensitive to cold and physical stimulus, even clothes brushing on my arm or holding my partners hand would be painful. I'd say it was 6 or 7/10 for pain for 2-3 days, and the last 2 days it has still been present but much milder, maybe 2/10- barely noticeable

Does this sound familiar to any of you out there? I was thinking the IV could have triggered a fibro flare as I was having other symptoms during this time like IBS issues and fatigue/brain fog! Have any of you had fibro flares triggered by physical injury or medical procedure in general?

Thanks so much for the info, hope everyone is feeling ok today 🫶

So I normally prefer to wear sandals, thongs or no shoes at all because of my foot pain (which also translates to leg pain I think). I do need extra arch support. But I find so many shoes get so tight across the top that it can get super painful being in them for three hours. They also can't be too loose though either.

I got convinced into buying brooks by a podiatrist which were good for a while but only three months in are pretty worn out and painful. She also said I needed Orthotics but I was pretty wary of that because it's a hell of a lot of money for something that may not work.

Problem is I have to have shoes for most shifts at work (disability support) because of manual handling. Weirdly enough some of the most comfortable shoes I've ever work were my steel caps for work but its not super appropriate for work.

Does anyone have ideas for styles of shoes? I'm in Australia so specific brands might be different but I just want to not be in pain after only three hours on my feet.

I also technically haven't been diagnosed with fibro but it's suspected.

I have been experiencing recurring fever of 99-100°F (or ~38°C). It comes on 2-4 times a day, starts with chills, leaves with me feeling hot, and generally lasts 1-2 hours.

Could it be because of methotrexate/follitrax?

So i've had fibro for a while but recently ive been really annoyed and angry towards myself. Like I've just been frustrated about things that aren't even usually frustrating, angry at things i actively like about myself etc

biggest example is, i dont really have self esteem issues regarding my appearance, i think im hot as fuck (idc if anyone thinks otherwise but they dont). but right now i have this intense feeling of hatred about what i look like, i want to drastically change something about myself and its just an urge to just have something different in life. Now it'll probably go away within a day but i think its an interesting discussion since i think it might be related to fibro.

anyone else experience anything like this before? i just thought it was odd because i never really get angry or annoyed, and im fully satisfied with my appearance, yet i just had this explosive urge for change

idk just yappin bruh

I've recently been diagnosed with Fibromyalgia, I'm coming to terms with the condition myself.

I've been married for 5 yrs, but my spouse struggles to understand my situation. It feels as if I'm on trial and every couple of weeks. I have to explain myself, my pain and my limitations. I try to be understanding but I feel like my spouse triggers me to have bad flares.

Most of the time, when I am questioned about my limitations and my spouse gets frustrated with it. I get chest pains and feel bad fatigue.

Is it possible for this to be the case or is it solely coincidental? How can I make things easier for my spouse to understand, or should I just focus on my own mental and physical wellbeing?

I love cabbage but eating it makes me feel nauseous and gives me a migraine. It also bloats me for days. I don;t struggle this way with broccoli, brussel sprouts, or broccoli. Is this a me only issue?? Advice??

So, I was diagnosed with Fibromyalgia in 2018. I get the worst headaches, my body feels numb, sometimes it hurts to walk. Everything, everything hurts always. I was so sure that MRI of the brain would show something, anything. It was normal (thank god), but this makes me feel crazy, like this pain is made up. Have you ever felt this way? How do you move on?

Is this typical? Is this a typical bodily response?! On 8/01 I had Achilles surgery and was non-weight bearing for 6 weeks. I was then placed in a CAM boot for 4 weeks. For the past two weeks I started physical therapy and walking without the boot but using a cane. Never in my life have I felt as if I’d been hit by a truck!! The fatigue is awful, my incision site hurts , all my joints and muscles aching. My hips hurt, my lower back hurts, my neck is stiff. Is this a typical response to surgery for a person with fibromyalgia? I am worried that it is serious because the response was so long after surgery.

Just prescribed this and I just want to know others experience.

Which one was more effective in pain relief for you?

For years I didn't get the flu vaccine because well, honestly I forgot why I stopped getting them. I have a TBI from an assault in '06 and there are potholes in my memory. I got a flu vaccine last week and I feel like ass. I have noticed that when I get sick it hits harder and seems to last longer than before I had fibro. Same with surgeries. I swear it takes me longer to recover from basically anything. I think part of the reason I feel so badly now is because I HAD to clean off my patio for inspection from the landlord. The coolest part of the morning I had to clean the patio was still 80°F with over 60% humidity. I got overheated but had to keep going in order to finish. I'm wondering if the combination of the flu vaccine and the heat is causing this latest flare. Sorry for rambling. You know how it goes. Flare-brained. And I want to add that so many of my symptoms I didn't realize were fibro related until this sub. I'm truly grateful for y'all.

Hey all!! I want to detox my meds because I think it’s causing me a lot of issues. I’m on gapapentin,LDN, lexapro and celecoxib.

I want to detox gapapentin and stop taking celecoxib because the Gabapentin is making me sick I think.

I’ve been pooping ALOT!! Like I’m having bowel movements 7 times a day but not diabetes. My stomach is upset and I feel nauseous and dizzy.

I don’t even think the gabapentin is helping I think it’s destroying my gut and causing me nightmares as well.

Thoughts?

Fibro is the most "serious" diagnosis i have, but the pain is unmanageable. I'm about to lose my job because I can't drive anymore. Doc says if he tries to help me get disability he could lose his license. I am really desperate at this point for any advice. Thanks

Hi All! My husband has been dealing with chronic pain (among other symptoms) for years. We talked to our family doctor about it and he did the trigger point test and said it wasn't fibro. About a year later he was in hospital for a mental health issue. While there, he was seen by a pain specialist who diagnosed him with fibro. She did prescribe him a few medications which help some, but when he flares, it's pretty bad. Unfortunately that specialist only sees people that are admitted to hospital. Our family doctor is being no help at all. I just want him to be able to see a specialist who understands fibro. Any suggestions on what we should do? Thanks!!

Edited to add: We're in London Ontario, Canada

So, I got into an argument with my new therapist who told me isolation makes my fibro symptoms worse and that a pet isn’t a proper companion. She told me I should try and find a partner since I’m over friendships. I told her that because of how limiting my symptoms are, no one would date someone like me. She claims that’s not true.

So a couple of times I have tried eating slightly more because everybody said I should on my post asking if you’re supposed to have 3 meals a day with fibro. Last couple of times I tried though, I ended up being super nauseous and having tummy ache. This seems to happen any time I eat anyway, but it gets worse the more I eat. Sometimes I even get sick. Little and often doesn’t work. Forcing myself to eat doesn’t work.

I’ve just had enough of all these problems and having to make allowances and go more slowly and everything at this point. I don’t know what to do anymore.