It seems that I’m prone to withdrawals due to having the MTHFR homozygous gene.

I’m currently going through a medication withdrawal and actually have post acute withdrawal syndrome. I have gone through three withdrawals.

My insurance is giving me problems and it seems that they may not cover my Xywav in 2025 and I’m terrified. I was on Xyrem for over 14 years and have been on Xywav almost 4 years.

Additional question. If you take Xyrem/Xywav for something other than narcolepsy are you likely to have withdrawal or is withdrawal not likely?

I have been diagnosed with Narcolepsy with cataplexy, Type 1, about 10 years ago. I am currently an American on an amazing trip to Italy! I came across this reddit looking for answers about Xywav and alcohol. I read this page's explanation of cataplexy and realized that I have a different experience than most! Never realized this until now.

When I have a cataplexy attack, I get this sensation in my head (I honestly feel like my brain), that is very close to pain but not quite. Similar to the feeling of when my leg majorly falls asleep, but in my brain. I will speak to my doctor about this again in more depth, but I was wondering if anyone else experiences this?? I had no idea most people don't even know a cataplexy attack is happening! I know right away because of this wave of sensation in my brain.

The feeling is so strong and weird, that I often get panic attacks whole cataplexing. I get so scared and am afraid I am dying or something. Again, my doctor said I am totally fine and it's not totally uncommon for people to get panic attacks whole cataplexing. But now I'm wondering if I should get another sleep study done, or a Brian scan done when I have cataplexy.

Anyway, let me know your experiences with cataplexy!!

I'm about at rock bottom again and running out of ways to make money with this debilitating disease. I have 3 "part time" jobs and I'm struggling so hard.

I called a disability lawyer the other day and he just flatly told me "oh you are under 50, yeah unless you have terminal cancer, they aren't going to approve you and it will take years anyways" This was so disappointing to hear. I'm in the US fyi

I'd like to hear from others who have gone this route and how you did it?

I'm getting hopeless again.

I have generalized anxiety disorder and C-PTSD. It's been worse in the past two months. I need to try medication again. To complicate things, I just got diagnosed with narcolepsy. I cannot fathom how to treat narcolepsy while struggling with severe anxiety. Anyone deal with this? Any tips? We're trying Wellbutrin but day one has been a little bit rough. I do have some depression, but it's secondary to the anxiety. I tried Buspar earlier this year, but it made me more anxious on the lowest dose - lucky me...

Was diagnosed a few months ago and at first my sleep specialist just upped my stimulant meds to see if that did anything but has not been effective.

Then last month he suggested we skip trying modafinil since I have a hormonal IUD (mirena) and it causes issues with contraception. He planned to try and get a preauthorization for Wakix for me. But at my appt today he told me there’s newer evidence that Wakix also causes problems with hormonal contraception.

I’ve tried doing a little research and looking at some old threads but have been getting confused by the different reports. I do plan to see my gyno and discuss this, it will just be a while before I can get an appointment and it’s on my mind. My sleep specialist seems well informed and said pregnancy/contraception is one of his main considerations with medications, but I still feel like I will need to speak to both a pharmacist and my gynecologist.

Anyone here take Wakix or modafinil and also have a Mirena IUD? Did your sleep specialist give you the same warning, and do you have extra steps you take to avoid pregnancy? Also, if you are someone who didn’t get their period because of the IUD, did starting these medications make your period return?

I have loved my IUD and am really bummed at the prospect of having to find an alternative. I’m open to a copper IUD but hate the idea of getting my period again due to sensory issues. Obviously the simplest solution here would be to just keep my IUD to avoid my period and combine with internal or external condoms, but I really have loved the security of the 99% effective rate that IUDs have.

My mom wasn’t familiar w mental conditions, until my sister was born. I went undiagnosed until coming to the US as they have a dif idea of mental health back home. I was always called lazy, pretending, was told I spoke back I j don’t wanna go to school. Then, it got worse. I started falling asleep by standing suddenly regardless of how hard I’ve tried to stay awake. Years later, since my sister also has mental issues (not diagnosed, refuses help) she’s more familiar w it, although addresses it the way people do back home

I started taking Adderall and it helped. I was finally relieved, nothing ever worked. I started waking up more easily, stopped having headaches, didn’t get overstimulated at home or doing assignments, no more sleepiness during the day. It was a starting dose, so by the time I had a follow up with the np, I was back w the same problems. She said she will stick w the 10mg XR… the world was crushed around me. Knowing I’ll have to deal w this again for at least 30 days and her setting me up for midterm & finals felt evil. I was working so hard to get a 4.0 and I missed alr several classes due to not waking up on time, hiding my phone, or bc I couldn’t finish the work on time.

My mom always gets angry & says I’m lazy j like before, I do it on purpose or I responded to her but I don’t remember I was asleep. I wanted to study yesterday but was helping her w online forms for hours, then had to get ready to go somewhere. While getting ready I was on a call w my friend & she kept bothering to get ready alr. She did the same later when she asked me to look for something at the store. She believes I can’t look & talk to her at the same time.

Today she woke me up a few times asking how to cook something, but I can’t think when I wake up (god forbid you wake her up). She called me lazy again, how I don’t do anything and as a punishment I have go to the unconscious. Yesterday I couldn’t study, bc I was helping out. I planned to study today, I have to do punishment chores. She is calling me useless & lazy when I do student leadership, will get a 3.9-4.0 gpa (depends on attendance) and got an internship at the big 4. I’m so happy when on campus, there’s so much opportunities but I come home & feel like trash… I never talk about my achievements, I let people do their own judgement so my mom doesn’t know about any of this. She thinks I’m going to class, struggling but here I am. There’s no parent teacher conference in college, she can’t tell.

I have tried to educate her, so she has an easier time to approach me & my sister, but doesn’t seem to understand. Any recommendations what should I do? There’s obv a lot more isssues than this, but I’m pretty sure this will make you exhausted alr lol

I was finally diagnosed with Type 2 N May of 2023 after a new doctor took my 15+ years of fatigue seriously and sent me to a sleep neurologist. Though it felt extremely validating and I’ve never doubted it at all, I guess I still feel like “I’m not Narcoleptic enough”.

I know N can vary in severity and symptoms from person to person, but I sometimes feel like I’m taking up space in communities or I’m overreacting. Never had issues staying awake while driving, never felt like I had to sleep 12+ hours a day, just a pervasive sense of tiredness regardless of what I do or don’t do. I’ve always described my sleep attacks as feeling almost zombified - yeah I’m most always able to push through them if I choose to and not nap, but it’s like my brain completely shuts down and I can’t clearly think about anything other than how tired I am until it goes away. I seem to have a lot of triggers for this.

Logically I know this is the impostor syndrome talking, but that doesn’t help the irrational & emotional part of my brain. :(

Hi all,

I’m just wondering what and how other people deal with keeping up their social and professional life. I do my best, but being so constantly tired limits my ability to maintain conversations, both in a professional/work context, as well as in private social situations. Sometimes I want so badly to make conversation and meet people, but I am so drained that I can’t think of anything to say, or that no conversation comes to mind.

I have always struggled with shutting down when I feel exhaustion and being unable to strike up new friendships/conversations because of this. Does anyone have any strategies or ideas that have helped them be more social when exhausted? Thank you in advance!

I was a kid and also not in the US when the ACA was passed so I don't really know life without it. With a possible Trump presidency on the horizon I've been worrying/wondering what life might look like if he repeals it. Especially considering that I'm on Xyrem which is so expensive I'm sure insurances will use any excuse to not have to cover it lol. So what was life for you before then? Did not having it and then the change impact a lot? Just trying to get some perspectives here. Thanks so much!

Basically the title, but if you have other badass job reccomendations I can do if I can't do that then let me know😄I want to be pushed to my limit

Ok first off it's so annoying that when I'm sick it makes me so much more tired than the normal sick tired.

So I have been sick the last week and I'm exhausted at this point and had to go to the grocery store for supplies and meds . Mind you also because I'm sick bur recovering I using a mask which can make me more tired. I went for one of the motorized carts. I was so worried of judgment I got none . They even had someone help me out to my car and help load it. Was great even if frustrating that it was necessary. Totally took a nap after .

Growing up, I never thought I was a morning or evening person. But now that I’m 17, I noticed that I am miraculously more productive in the morning, like the first 5 waking hours of my day. Is this the experience for everyone with narcolepsy? I just wanted to know and see how I could deal with this problem.

My first PSG was ordered by a nurse practitioner pulmonologist. The results came back recommending a second PSG + MSLT to check for narcolepsy and excessive day time sleepiness. The nurse practitioner escalate my case to the doctor pulmonologist but I can get in to see him for months. I then had an appointment with my neurologist so I asked him if he could order the follow-up testing because the sleep problems lower my seizure threshold. He agreed and put in the order. However, the neurology referral team told me they had no idea how to fill out the paperwork and advised me to ask my PCP or pulmonologist instead. I emailed the pulmonology office and basically begged them and asked if they could please get the prior authorization process started as soon as possible so I could at least get on the sleep lab schedule. This has been a frustrating experience and I feel like I am getting the runaround. How did you advocate for yourself to successfully to get thing down in a timely manner? Or, have you had an experience like this and did you eventually get what you needed?

I’ve been taking Sunosi for ~5 years and just this month my insurance declined it stating I need to explore alternatives like armodafinil or modafinil.

The problem? I’ve had lapses in Sunosi in the past and it’s not good, despite the fact I still currently take armodafinil too.

I want to get educated about different alternatives that are not habit forming in case Sunosi takes a while to get re-approved.

Any advice?

Edit: thanks for the responses! I might start by filling it and using the discount card without insurance.

I have been a caffeine fiend for my entire teen/adult life (like a lot of you here I’m sure). I have been trying to reduce my daily caffeine intake and most recently have been consuming around 500-600mg everyday. I started taking 200mg armodafinil about a month ago and since then I’ve definitely noticed that caffeine exacerbates the negative side effects of the armodafinil. I quit caffeine cold turkey around 2.5 days ago (65ish hours) and my goodness this has been waaaay worse than I expected. I am sooooo sleepy. I took an hour long nap at 7:30am yesterday morning (plus many others spread throughout the day) I don’t think I’ve ever done that and I suspect that Ive had narcolepsy since middle school. My husband commented that he has never seen me this sleepy in our 12 years being together. Please! Someone who has gone through this before tell me it gets better! I know the caffeine withdrawal will be over at some point but I’m curious about the armodafinil. Will I feel the effects of the stimulant again or is it just the wrong drug for me? Also I was convinced that caffeine barely did anything for me that it was more of a habit at this point, but obviously it was doing something lol.

I had been finding myself in the middle of an activity only to suddenly no longer be in that activity. Example, I was on the phone with my dad then all of the sudden I'm no longer on the phone... don't even have a phone in my hand.. Wait? I don't talk to my dad on the phone ever. This isn't real!! Or... I'll be at the mall shopping only to discover .. wait.. no.. I'm not at the mall. I'm in the kitchen. We'll how did i get home? Ok. OK. No you didn't go to the mall, you would have remembered going there and coming home. This isn't a real memory and you're just confused. Or.. I'm washing my hands but then I look at my hands and they are just moving around in the air and I'm in bed watching TV. Why did i think I was washing my hands? What is happening? I literally thought i was losing my mind and it was terrifying. Turns out I was falling asleep while operating my body but I wasn't collapsing. It was like I was awake-dreaming .... These episodes are leading me to be investigated for narcolepsy. I had never felt my sanity slipping so quickly. I thought "I can't tell anyone they'll lock me up if they know I'm hallucinating." But then it happened while I was driving and I knew it was critical. Edit to add. These episodes are only a few moments long but dreams have a way of distorting time. I'm essentially sleep walking but it happens in an instant. I've learned to recognize when it's happening because my body will start twitching like most people do as they're falling asleep or my teeth will start grinding and I know I need to stop what I'm doing and lay down and get some sleep To stop the awake- dreaming flashes

Update: Finished 3rd nap with REM in all three. Tech said that should be good for a diagnosis of narcolepsy, but hospital policy is i have to complete all 5...

Spent last night in the sleep lab. Nap #1 just ended and I think I fell asleep within the first 5 minutes. Was surprised how quickly the tech came in to wake me up. I am really craving caffeine and just want to get back into the bed for another nap.

Feels like it's gonna be a long day, but so glad I am finally at this point in the process after struggling daily for the last 30 years! Praying i can get some clarity on whether I have narcolepsy or IH and the start the process to see if we can successfully treat some of the symptoms and improve life going forward.

Hey, I have N2 no cataplexy and haven’t had any substantial cataplexy symptoms since being diagnosed about 10 years ago. (N.B I have had a couple of weird experiences that I think could be cataplexy- droopy face for a couple of seconds when laughing. This has only happened twice in my life though)

For the past 2 weeks my eye has started twitching uncontrollably. Lasting a couple of seconds about 10 times an hour every hour. I’m not more stressed or tired than usual but obviously I am tired all day. I’ve been racking my brain trying to figure out what stressors could be causing this and wondered if any of you have had cataplexy symptoms that manifest in this way? I know it’s not a typical symptom but just in case it’s worth bringing up to my doc!

hi! i got diagnosed with narcolepsy about a month ago, but it’s something i believe i’ve dealt with for years now. however, i just started a program to teach english in another country and i believe that the stress of the situation has triggered my narcolepsy to become much worse than before, prompting me to see a doctor about it.

however, i made a rant post on this program’s reddit talking about all of the difficulties i’ve been having since starting the job. they really screwed me over in multiple ways. i won’t go into details but it’s been incredibly difficult, especially with the worsening symptoms of narcolepsy.

if you have the time or energy, id love some words of encouragement. my entire life ive been called lazy, useless, pitiful etc. and i even got called some of these things on the replies of that post that i made on the program’s reddit. i’m just feeling so worthless and really beating myself up because it’s so hard for me to get through this job.

i’ve missed so many days of work because i can’t get myself out of bed, i’ve fallen asleep at work multiple times, and getting things like banking, housing, residential matters, etc. all figured out in my second language that i’m only conversational in (not entirely fluent) has been so difficult. i just need someone to tell me that im not a bum. i’m trying so hard to be an adult. i’m 22 and im the first person in my family to graduate college and make a real life for myself, no one taught me how to do this stuff and i’m completely on my own here with no friends or family. i miss my partner so, so much because he is always so understanding of my health situation and so helpful, it’s been so hard without him here.

anyways, if you read this thank you :) i just needed to get stuff off my chest. narcolepsy sucks

I was wondering if anyone would be able to help me out. As i have Narcolepsy Type 1 I also have Cataplexy, my family don't exactly understand it, so whenever i go into a cataplexy episode, most of the time it seems like they dont even notice that i need help.

what do you do that helps you?

Hello, 

I just got my Idiopathic Hypersomnia diagnosis on October 30th, and honestly, I just need a little bit of support and to vent. 

To start way back, my symptoms started when I was around 13 (I am now 27). I was unable to stay awake in my last class of the day, to the point that my schedule was changed. I’ve been Type 1 Diabetic since I was 5, and it wasn’t uncommon for me to experience low blood sugars towards that time of the day, so everyone kind of waved it away as that. 

Fast forward to my freshman year in high school. I was only awake long enough to go to school. I’d wake up late, go to school, and then come back home and usually sleep until the next morning. Only occasionally would I wake up late at night and eat something. My parents got doctors involved after I slept for over 22 hours during a break from school. They said my vitamin D was low (shocker, always has been) and that I was depressed. They tried to prescribe me a high dose of antidepressants, but my mom pushed back. 

For the rest of my high school career, I would fall asleep in classes and sometimes wake up in the middle of taking notes and be left with a page of scribbles (I stayed inside the lines pretty ok tho. slay.) the sleeping was much worse during my afternoon classes. I’d fall asleep during the car ride home, then sleep again until morning.

Anyways, skipping a bunch of bullshit - started working retail straight out of school,  and I honestly didn’t notice anything because I’d thoroughly fucked my sleep schedule up so bad. I was part time, so I would sleep up to 30m-1hr before my shift started, then come back home, play games with friends for bit, then sleep.. Being a physical job, it made it easier for me. I was falling asleep during Discord calls to the point it became a pretty regular thing to my friends. 

Three years ago, I moved to a full time position in animal rescue. Because massive amounts of stress is just what I needed!! It's a very physically active job, at least. I developed a habit of going and getting Starbucks directly after my shift and then sitting in the larger parking lot nearby to ‘destress’, destressing my ass, I was too fucking tired to drive and didn’t realize it. In fact, I’ve retroactively noticed that behavior when I had first started driving. I would just sit in parking lots all the time. I wrote it off as being bored and not knowing what to do next. I still do it, because driving can be difficult for me.  I just call it parking lot hopping now. If I have to run an errand after work, I can spend as much as 30m-1hr before I feel like I can get out of my car. On days off, after running errands, it can take me as long as 2-3 hours before I can wake up enough to make it home.

By March, I came to the sudden realization that sleeping has been ruling my life. No one around me planned their day around sleep, or woke up regularly feeling so terrible like I did every morning. That they didn’t have to sleep all day in preparation to go out with friends, or drop out of plans because they were too exhausted to go. I missed out on a lot. I’m so incredibly lucky that the GP I went to took me seriously. Several appointments and long ass waits later, I had my sleep study on the 15th. Which then leaves my tale at my appointment on the 30th. 

I was just waiting for my diagnosis. I don’t know what I expected because I didn’t feel relieved. There’s just so little to read about it. I felt vindicated, because something was up, and now I finally have a name for that monster that lives in me that wants nothing but sleep. I have proof that I wasn’t lying to my family and that I really, truly, couldn’t wake up. We fought over that often. 

That’s worn off now, and I’m left with a lot of ugly feelings. I feel like I’m doomed to be a slave to sleep. I already slept through a chunk of my childhood, and most of my 20s, and now I know that it’ll be my normal. I don’t even play games with my friends anymore. I’m too tired. If I do, they have to repeat themselves often because I get so tired it sounds like they’re speaking Simlish, I start making a ton of mistakes, or just simply fall asleep. 

I have been on Nuvigil (50mg). I need to restart it because I stopped before my sleep study. My doctor gave me the go ahead to adjust the dose as needed, either in the morning, or a second dose later in the day. I can split pills,  but do have to talk to her if I need to go above 100mg. Some days I can feel the difference, other days I can’t, and it’s really upsetting. 

All of that being said, I’d love to hear from some other people - I just want to know, what does it feel like to you? Was anyone else kind of… disappointed by their diagnosis?

hello, i've never really suspected i could have narcolepsy because i always thought it was a very intense sleeping in the road kind of thing.

for context ever since i was a child i always been very sleepy, i needed like 14 hours to feel slightly okay but i was still in my personality and still am energetic & productive but it just that my body doesn't follow.

for instance one time i was alone at home without my family for a week and i spent the entire week asleep without once not feeling sleepy because no one was there to wake me up.

recently i slept without realizing during my whole birthday party, in classes ever since i was a child i would come home and realize my notes does not make any sense and my pupils are always so heavy throughout the day.

the thing is i do sleep all nights so i don't understand why when i wake up i'm still constantly sleepy at all times, my family just thinks i'm lazy but it just doesn't match with who i am,i don't feel sad or lazy or anything it's all body related.

to resume my eyes always feels heavy, i'm always sorta cold, always tired, always foggy, always drained even when i sleep and when i'm not sick.

Found this video today and haven’t found a better way to describe how narcolepsy effects me personally. Figured I’d share and see if there is anyone else that can relate.

https://youtu.be/Vi4UMFJhsdI?si=XyE8CMHtTFw10Tt8

I currently take only Ritalin LA and IR for weekdays and don’t take it on weekends for school which has been very effective. Grades have gone from all Cs to As and Bs. Now I have another issue which won’t be very fun to work with which is working on the weekends. I was told by my doctor to not take Ritalin on weekends to try to keep the meds effective long term. I really hope I will have weekends off for work later in life.

Right now, I’m 16 and will look for a job since my parents require it since I’m not currently in in-school sports. I workout but that’s not the same thing. I also would like to start making money for myself. I live relatively close to many places to work and it seems dunkin will hire me. Not a very bad start to work in an environment with coffee, but coffee really does nothing for me. On weekends in general I am super lazy, no motivation, and have no energy to do anything which is not good. Not because of the med, I’ve always been like this. I meet with my doctor Monday for a check in and might talk with him about just taking on more tasks and see what he has to say. Hopefully I’ll figure something out.

I’m currently in the process of being diagnosed and am feeling the dread of going to the doctor to only be told nothing is wrong and it’s all in my head, like I have for the last decade. I have an upcoming appointment on the 6th, and in the meantime have been trying to track my sleep cycles with my Apple Watch. I’ve only recorded a few night time sessions so far, and haven’t noticed a super early onset of REM sleep, but also haven’t tracked any naps or really tracked enough sessions yet to make any definitive pattern analysis. I’m curious about 2 main questions:

1. Have any of you tracked your cycles on an Apple Watch, and if so, have they been accurate after you had gotten an official sleep study done?

2. Worst case scenario, if I’m not quickly entering into REM on a regular basis (the normal criteria they look for) does that absolutely rule out a diagnosis for narcolepsy T2?

I’ll post my rant here for those that don’t feel like reading anymore past my main questions lol. I’m 31F, late diagnosed with ADD at age 28, and just ruled out any other autoimmune disorders or deficiencies via bloodwork. I do have lowish iron and ferritin levels, but they aren’t at the lowest of the range they could be, just under the average. I am just so defeated knowing that I don’t feel okay and am constantly so beyond sleepy that it’s affected so much of my life I just want to give up. It’s so defeating seeing doctor after doctor just to be told “you’re fine, everything looks great”. I only recently in the last few months discovered what narcolepsy really was and did in depth research, and actually cried because it just validates everything I’ve felt for so long, and know it’s not just me being lazy or over dramatic.

My symptoms have gotten drastically worse over the last few years, to the point that I’m not even able to work anymore. Between being unable to stay awake, the brain fog, the subsequent depression bc of it, it’s just been a lot. I had a couple pretty traumatic events that I think probably exacerbated my symptoms. To keep it as short as possible leaving out a ton of additional trauma from these events; My best friend of 15 years was murdered with her boyfriend in May of 2021, and my little brother died in a freak motorcycle accident 5 months later in November 2021. I also had my first daughter in 2020, and recently had my second about a year ago. I took the ESS test and scored 22 out of 25, and have been writing down all of my symptoms over the last couple weeks to make sure I sound logical and calmly explain all of my symptoms instead of anxiously blurting out random things that don’t do a good job of describing how I feel trying to prove it’s not in my head. I’m sure I just have a lot of trauma or whatever you want to call it, from being brushed off by countless doctors and told I’m fine, and just being made to feel over dramatic like I do from everyone in my life as well.

Here’s the symptoms I’ve written down (not looking for a diagnosis, I know that’s not able to be done other than via sleep specialist)

Narcolepsy Symptoms:

• ADD
• Low iron/ferritin
• Chronic daytime sleepiness since as long as I can remember (starting around 6th grade)
  • Would crash immediately after school and nap 2-3 hours.
  • Constantly falling asleep in school around lunch time & last period.
  • Problems staying awake while driving & totaled car in 2022 passed out at the wheel 2 min from my house.
  • Constantly falling asleep at work in cubicle and during group work training meetings.
  • Would always try to nap during lunch at work.
  • Extremely irritable if I don’t take a nap.
  • Unable to perform normal daily tasks because of being so tired & needing to nap: cleaning, exercising, work calls & emails.
  • Unable to keep up with others on trips and vacations due to being so exhausted and needing to nap.
• Insomnia
  • Having an irregular sleep/wake schedule my whole life.
  • Being a “night owl” unable to fall asleep until 3-4 am.
  • Used to only functioning on 3-4 hours of sleep.
  • Extended insomnia lasting 2-3 days during traumatic events & stress.
• Extreme brain fog
• Occasional sleep paralysis
• Vivid/lucid dreams almost every night
• Sleep attacks
• Interrupted nighttime sleep
• Automatic behavior
• Auditory hallucinations upon falling asleep
• No matter how much sleep I get, never feel refreshed in the morning
• Extremely hard to wake back up after falling asleep for a short amount of time (sleep drunkenness).
  • Husband has to come & wake me up several times after I put my daughter to bed.
• Chronic headaches
• Can fall asleep anywhere at any time
• Cannot stay awake if I’m a passenger in a car
• Would fight falling asleep daily on my way home from work (had to yell and slap myself to stay awake)
• Have to wear an earpiece walkie talkie and harness while hunting bc I immediately fall into a deep sleep can’t can’t be woken up otherwise (have almost fallen out of tree stand multiple times)

How this has negatively impacted my life:

• Being called “lazy” at work or socially with friends or in relationships because of how sleepy I am.
• Been accused of being on drugs for falling asleep in social settings & at work.
• Missing several alarms in the morning and missing work meetings or other obligations.
• Marital issues due to my irregular sleep schedule or insomnia.
• Constant anxiety because of being so tired and needing to nap and feeling self conscious about what others are thinking because of this.
• Unable to fully perform at work and more so after traumatic events.
• Letting down family/friends due to being so sleepy.
• Isolation due to depression and feeling like I let down others around me.
• Always hesitant to make plans based off of knowing how tired I will be and whether I am able to nap or not prior.
• Feeling like a failure of a mother because of how exhausted I always am.
• Constantly feeling crazy & being told by doctors it’s just in my head bc all of my tests look fine.
• Had to become unemployed while pregnant because of the extent of how exhausted I was.
• Severe drop in income due to exhaustion and brain fog and being unable to meet expectations.

Recently, I've been having some weird hallucinations that are past memories. Usually, these hallucinations happen around the time I'm waking up for my second dose of Xywav. Every time, I will wake up feeling like I'm in my childhood home. I haven't lived at that place in about 7yrs, although I visit often. It's concerning because they feel very real. It's terrifying to wake up and feel with a high level of assurance that I'm in my childhood bedroom when I'm hours away from there.

The first time this happened was about a year ago. I had woken up thinking I was home, so I just laid back down and waited to let myself remember where I was. It's happened quite a few times since then. Another variation of this is how I sometimes wake up in my apartment bedroom and open the door expecting to see the hallway of my childhood home. Again, I'm hours away and the set-up is very different

Has anything had any similar experiences? I've notified my pharmacist and will be making an appointment with my sleep doc to further discuss this. I'm getting scared because it's happening a lot more frequently than I'm comfortable with..

yesterday I slept around 2:30 AM tired. but then around 4:30 AM I woke up randomly and my eyes were wandering left and right thought I was dreaming realizing that I was awake. I sat up promptly and my heart started rising like crazy, I knew I was awake but it felt like i was still asleep. I genuinely felt really disoriented, and I was so close on calling 911 because of how I felt.

it felt really weird and I started panicking, I started feeling really cold. good thing I keep water by my bed incase I get thirsty, so I took a sip and I decided to scroll through my phone to somewhat calm me down, but it didn’t help. every time I watched a video I felt like I wasn’t understanding what the video was about and I was just staring at it blankly. and I tried reading some reddit posts and again I felt like I wasn’t retaining any of the information. I was too focused being anxious and wondering why I felt like this and at this point I was already scared to fall back to sleep.

I don’t know what this is. I experienced something like this before but it was due to me being high, I ate an edible and slept and it woke up me feeling really anxious and same thing my eyes were wandering left and right.

I’m not sure if me eating some chocolate being heading to bed is what caused it (since it was Halloween, I wanted some treat while I was watching a movie before falling asleep).

I’m really anxious/worried as to why this happened and if this ever happened to anybody before.

Consuming caffeine is as effective as defibrillating a dead body 😢😒🫥