19M with no other current medical issues or medications. However, when I was around 13 I had a successful Orchiopexy to bring down my left testicle. The left testicle still sits much higher than my right after the surgery.

Ever since the surgery, every once in a while, I get a very very dull minor ache in my right testicle (the one that didn't require the orchiopexy). It can't even really be described as pain; it's more like a slight soreness. I've noticed that it happens mostly after sexual activity or masturbation, so I thought it was my testicle creating sperm since it happens on the one that has been healthy my whole life, but it also can happen a day or so after sexual activity so maybe not. Or, maybe it could be due to my right testicle sitting lower than my left, so it's more prone to be hit around. However, I'm not completely sure.

They don't hurt to touch, and I don't feel any lumps or anything. The feeling mostly comes when I'm sitting or, weirdly enough, when my phone is in my right pocket (near the right testicle), but goes away when I move it to the left pocket or back pockets(possibly placebo?) It also has been like this for at least the last few years and the pain hasn't worsened or gone away; it's stayed basically completely the same. My doctors have examined my testicles and have said that they look and feel fine. Honestly, I can's stop thinking about it. What could be causing this? Does anyone else have anything similar?

Mopping the dinning room at work is killing me. I have to mop the place (assisted living facility) there is no other way... Had to do deep cleaning due to mothersday celebration and wanting all the families to see how beautiful the facility is.. Tonight I couldn't see what I was doing through the pain, had to take several breaks (already taken my acitometophin limit) . Running out of time and in a rush to get it all done. It's getting harder and harder to push through, but I keep reminding my self to be grateful for what I CAN do. 🙏❤️🫂

I'm just so tired of being in pain.
Picture of my dog just for tax :)
and remembering to be greatfull for what I have.

For context, I've been with the same doctor since I was 20. My arthritis has slowly progressed to now my spine hips and shoulders. After 8 years of trying almost everything, I've been on the same routine for 10 years. I take a pain med twice a day and ibuprofen to manage symptoms and its worked for these 10 years to atleast have me in only moderate pain every day. Some days are worse than others. My insurance company all of a sudden isn't affiliating with kaiser anymore so I'm forced to go to a local useless chain. Chas clinic, if anyone's heard of it. They don't handle "pain" issues so they send me to a pain clinic, which is great as they supposedly have a myriad of specialists. Every other doctor who I've seen throughout the years has said the same thing. Osteoarthritis. I go to my first appointment at the pain clinic and he looks at a few scans and examines me for 5 seconds and says, well, I don't see a ton of arthritis, it only looks mild so I am not going to recommend you continue taking your pain med and I won't prescribe it for you....Excuse me? So now I'm left drastically cutting my med and within 2 weeks they want me off of it and I'm in more pain than I've ever been with no help from them at all. I'm curious if others have had this experience?

Hey! Has anyone had ulnar shortening and a tfcc repair? I had both done on Jan 16th, it’s now been nearly 4 months and I’m still in ALOT of pain and have pretty bad movement, I’ve had no progress in movement for 2 weeks now because it’s so sore. I’m just wondering how other peoples recovery times were, it’s beginning to get in the way of my job and life now. I kinda thought I’d be good after 3 months but it’s looking grim and I can’t seem to find much online about a real recovery time 🥲 please help. I was also told that my bone healing wasn’t very good last time I saw the specialist a month ago 😭

My wife's mom was in a accident, after being hit by a car she was stuck underneath till the ambulance came. My wife was there and had immediately gotten under the car, and while in gravel, tried for several minutes to lift the car up while her knees were digging into the gravel.

Since then, going on 3 years now, she has had incredible knee pain that only seem to be getting worse. Any information would be great. I'm trying to give it what would be causing this and if there is anything that can be done to help this.

We argue about her going to the doctor and she just hard headed to be refuses. By going to the doctor is there anything they could do short of giving her pain medication?

Getting any information would be great. I would appreciate any help. Thank you

6 days ago I injured myself lifting something too heavy (an oven) since that day I have lower back pain and a weak right leg. I visited the neurologist and I got an MRI scanning. The results were clean, no herniated disc or anything. She diagnosed me with a pinched nerve and prescribed me a muscle relaxant (mydocalm) and a painkiller. The pain in my lower back has reduced 40-50% which is good news I guess but my leg is getting worse. It feels weaker and weaker everyday. I called the hospital and they told me the doctor is not there and she will return tomorrow on Monday. I’m not sure what to do and what it means. Please help.

Hi, I turned 18 in April and for the past like month, I started taking charge of my own medication (like refills and picks, things like that) and everything. I started taking gabapentin in August, and I know from this subreddit and others that its a well known addiction drug if not taken correctly(? I tried to word that differently), and I'm 18, I'm well aware of the drug addicted stereotypes that come with being disabled and a teen.

I'm asking for advice because I think my pharmacy cut my dose? Not in the sense yall are probably thinking, but the quantity of pills? I take 400mg in the morning amd 400mg at night, and have a 3 month prescription. It was last filled Mar 22 and picked up Mar 25. I was supposed to have 180 pills, and divide that by two is of course, 90 days. 90 days after Mar 25 is June 23. Its May 11th and I only have enough to last me until Tuesday. I'm planning on calling my pharmacy tomorrow and maybe my pain management doctor to go back to a monthly pick up. Does anyone know how to confront this? Or have any experience with this?

Its 850pm for me as I'm typing this and I'm gonna call around 12pm CST tomorrow (~16hrs from now), so any advice is greatly appreciated!

Has anyone here had an experience with the Cleveland Clinic for their EDS, POTS, or related conditions? If so, any input? tips?

My body aches so much more than usual and I’m so tired all the time. Its been a few weeks now. I’m out of opioids. I’ve taken more than usual the past month. No doubt my doctor will notice, I’m not so much worried about telling my doc the truth. I’m more worried about them taking my livelihood away from me. I’m 25 and in my country they’re very careful with prescription of opioids. It’s the first time ever I’ve taken more than agreed upon. I don’t know if I dare to call my doc

this is a discord server for anyone dealing with mental health or anything really and want to vent and get it out and to talk about it with other peers like yourselves https://discord.gg/Er4F9UGq join today

Fibromyalgia awareness day

Hey guys I'm typing from the future! Nah not really just from new Zealand. Currently it's the 13th of may. Fibromyalgia awareness day! Even though I've taken over the whole month for it any way by uploading my pain posse characters every day, each one being based ona fibro symptom. Today IV uploaded a painting instead! I hand painted a skateboard full of my pain characters so go check it out. Remember today is about awareness! Take a second to learn a fact about fibro or help someone you know that has it, anything helps. I wanna help and build a safe space for us but I'm rubbish at talking and articulating so I'm leaning into my art skills to spread awareness that way so please follow along and help me out https://linktr.ee/smijillustrations I want to build this into something awesome for us and people like us, so many people in pain out there

I made a post in this sub two weeks ago to express my vitriolic rage. A rheumatologist had recommended I see a psychologist for excruciating lower back/SI joint pain that has woken me up every single night for the last 5~6 months. The MRI shows my L5-S1 desiccated , lopsided and bulging.

I was shown the door with no pain management or follow up plan. She was miffed that I asked for a second opinion but I insisted and she sent me to a neurosurgeon.

Post if anyone is interested (comments are supportive and informative by the way):

https://www.reddit.com/r/ChronicPain/comments/1cgrwcn/rheumatologist_suggested_my_4am_screaming_back/

Today I visited the neurosurgeon. I got a good feeling when I saw dozens of thank you cards on display in his waiting room. Turns out he is an absolute gentleman with a listening ear and a great memory for detail. He believes my suffering is real and that is so validating after being gaslighted by the rheumatologist. In a few minutes he had my recent MRI scans pulled up on his monitor and was intently studying them.

I was encouraged to try PT as he could see my suffering and thinks its worth a shot. Also he needs to put on my record that PT has been explored. This is important should things escalate in the future (possible ADR...)

Also I been booked for steroid shots for pain and this will be done under sedation as an outpatient in 6 weeks time.

An appointment with a pain management clinic has been made too.

Overall I'm feeling much better today and hope this positive story can help you navigate the healthcare system in your neck of the woods.

I've learned to keep a tight reign on my emotions and stick to the facts when dealing with consultants. By all means scream into a pillow later but patience and calm wins the day. Be your own advocate.

Any advice from those who have been through hip replacement surgery would be appreciated. I’ve never had a surgery this big before and am looking for tips that will help during recovery. Thanks in advance!

Married 10 years, no kids. In my fifties, 6 figure job - I'm not laying around expecting someone to support me. Between my military service, a bad car accident, and lots of sports and other injuries, I'm a mess of arthritis, degenerative joint disease, fibromyalgia, nerve pain, and stomach issues. I've slowed way down, my activity level and energy have tanked. I know that's a bad thing. But, I am not an angry / cranky person, and I don't mope around and constantly complain, I just say that I'm not up to doing certain things when my pain level is high. This person I love so much, that I admire and adore, has started making comments that I'm just lazy, I don't care, I'm using this as an excuse to get out of doing things... I broke my L5, had my leg and shoulder re-built, multiple hand, arm, and foot surgeries. I'm now being called a lazy hypochondriac - because of my limitations and random nerve pain flare-ups. I've tried talking, I've printed studies and reports about nerve and chronic pain, but now all I get is dismissive contempt - and my heart is broken. I don't know what to do, and I'm afraid I can't fix this relationship with someone that is so wonderful in so many ways, so many ways but this. We've started counseling, but it's too soon to know if it's going to help. If you made it this far, thank you for letting me vent.

Hello! Ive (23f) recently developed a disability thats gonna progress but isnt visible nor especially debiliating atm. I have become very suicidal and depressed due to my fear and grief. People around me tell me to enjoy the “healthy” time i have left and to not focus on the future. Ive always been a future focused person and trying to focus on present things right now just makes my grief bigger. I do not know what kind of mentality i should have. I have a therapist and shes trying to convince me to not be as pesimistic but thats impossible. Did you manage to start living more day by day when everythings always uncertain? How do you find purpose to keep going? Im very stubborn and believe in the importance of not being naive but it is making living really hard.

This denial was really strange. I thought it was strange in the first place because the judge was saying in his notes. That I could lift, push, pull weight that no medical record or document says I can anywhere. He was also saying I had a range of motion no medical record or document says in my medical charts anywhere. At first I thought he was just making stuff up and pulling it out of this air.

After my husband looked at the denial letter though, he noticed the judge was using medical assessments that were done by doctors I've never seen in my life. The judge denied my disability case based off of assessments that weren't done on me. Assessments made by doctors I've never in my life seen. From places I've never even been to. There were four different doctors he used records and assessments to deny my case that had nothing to do with me or my case or my condition. How is that even legal?

Stranger still, all the doctors he used seem plausible as they are all from the two states I've had my actual medical evaluations and assessments done. One of the doctors names we couldn't pin point exactly. There's three different people this doctor could potentially be that he used. One is an actual MD that is from the area I live and has practiced even where I had my decompression surgery; except this doctor died in 1964; so that can't be it. Another possibility is a guy by the same name from the relative area who died just last month, but would've been alive to write the assessment the judge used. Problem is, that guy isn't a doctor, he's a musician, but mainly, a men's and women's basketball coach; so that can't be it. The third is an actual MD that is from the city and suburb I live in and is actually alive. The problem is, he's a hand surgeon that does plastic surgeries which has nothing to do with my condition. There's only 10 vascular surgeon's that deal with my condition in the US because it's rare and complex. Only effecting 1% of the overall population. Regardless, I've never seen this doctor ever in my life let alone had a medical evaluation performed on me by this guy.

The judge used two psychologists to look over a psych evaluation back in August of 2022. One of these PhD's of from the area I live, but has no pictures, no ratings or anything other than he is a psychologist that specializes in psychotherapy. The other psychologist he used was from, again a place I've never been, but at least in my state. This one works for Zocdoc, a telehealth psychologist which I've never used this service in my life. These two psychologists determined that I had no psychiatric disorders. The problem is, I never had a psych evaluation done in 2022. I've not had a need to because I've been seeing psychologists and psychiatrists since 1992. I've had the same psychiatrist and psychologist since I was 20 years old; I'm 41 now. I recieve regular prescriptions from my psychiatrist for bipolar type two and GAPD for a couple decades now.

The two MD's that he used, one was an orthopedic specialist that works with Saint Luke's. Which is a hospital I've never been to, and I've never met this orthopedic specialist and he's never conducted a medical evaluation or functional capacity test on me in my life. Then the mysterious MD that's either not an MD at all, died before I was even born, or a hand plastic surgeon. None of which I've ever met, or ever had them do a medical evaluation or functional capacity test on me in my entire life. These two sources the judge used were saying according to their assessment (who ever they did an assessment on if these medical evaluations are even real) was not me. Their assessments though was where the judge was getting information that I could "jog, run, do exercises, lift up to 40lbs, climb ropes, latter's and scaffolding's" among other things I can't do.

I know the names and practices of the specialists and other doctors that have actually done medical evaluations on me. I know the name of the person, the company he worked for, and where my actual functional capacity evaluation was done. None of my actual doctors, their notes in my records, or assessments were used in the judges notes to make his denial decision. There are no medical records that say I can even lift up to 20lbs. My weight limit is more like 5 to 10lbs with 7lbs being the actual restriction. I have a DASH of 73 and my ROM measurements are less than half of what they're supposed to be. Out of 180 degrees I only got about 30 degrees, in another direction it's only 90, and the other direction it's only 60 degrees. I can't reach in every which direction at all, I can't even reach my head. I have to sit to bathe to be able to teach my legs and feet by bringing them to my hands to wash them. I struggle lifting a gallon of milk (roughly about 10lbs) my arm shakes and I'll drop it if he's for not even a full minute. My radial, median and ulnar nerves are damaged from finger tip to shoulder. I've got nerve damage in my chest and neck. I've got atrophy, contractures and spasms in my arm, neck and back. All of this has been medically documented. It's even medically documented that I can't do any repetitive motion including sitting at a keyboard for more than 15 to 20 minutes at a time.

I have a disability lawyer, and we are appealing this decision. I just don't know what to think of this denial because everything the judge based his decision on where records, assessments and evaluations that were not mine. Made by doctors that I've never seen in my whole life and have nothing to do with me or my case. Is this legal? Is this fraud? Is there anything a person can even do about it as far as holding the judge accountable? Has anyone else seen anything like that before? How common a occurrence is this to happen?

To be clear, I don't know if the judge did this on purpose just to deny a case. If he was just looking at someone else's file or got mine and another person's medical records confused. I don't know how something like that happens.

I’ve suffered from tailbone pain for years. Typically a steroid injection helps a great bit for a year or two, but nevertheless I can generally come across a chair here and there that presses on the region the wrong way and causes significant pain.

Unfortunately the chairs around our neighborhood pool are my nemesis. They are both upright and lounge chairs with the plastic somewhat stretchy horizontal straps, and even 10 minutes in them causes me the worst pain, to the point I get stuck and can’t get out without yelling almost every time.

Is there a way to make these chairs bearable to sit in?

I walked weird ever since I was younger. I recently learned my mom noticed this and offered to take me to a doctor, but opted not to because I refused. I was seven or eight years old at this time.

The past few months I've been dealing with foot pain, especially after wearing my steel toe shoes at work. I didn't want to spend more money on new shoes, so I decided to deal with it for a little while until about a week ago where it became very severe.

I began experiencing pain in my feet constantly when I was walking sitting, even if I wasn't using my feet. After some quick research and observing my feet, I realized that I was suffering from overpronation looking at my shoes only further confirm this as my right shoe was significantly bent inwords.

In the past three days, my foot pain has gotten debilitating to the point where I can no longer walk. I bought orthopaedic shoes yesterday and I am in the process of getting a referral to get custom made insoles and to see orthopaedic doctor so we can figure out if there's something else wrong going on with my skeleton. I don't know what to do. In the meantime I have school. I have work. I live with my partner and have responsibilities. How am I supposed to do them if I can't even walk?

I am also growing increasingly worried that this is not only overpronation, but that it could be something more severe. I'm experiencing pain in my Achilles tendon, my calves, the back of my knee, my thighs, my hips I have always been very flexible but now I find myself experiencing pain when bending down or pulling my knees towards my chest, just sitting normally causes me pain in my upper back even laying down. I still experience foot pain. This doesn't seem normal to me. That overpronation could lead to such severe symptoms in such a quick time span. I am a 19-year-old woman if that helps at all. Please I need advice I need suggestions. I need other peoples experiences. I don't know what to do. I don't know what's happening to me and I'm scared.

I'm going to try to make this a regular thing as I think we all need it.

How are you?

I was wondering if anyone has a similar condition than me and was able to get better without getting back surgery. I really fear that. I have me so many people that have regretted having it and/or have it have 3-4 times. The 4th time my neighbor did, he said he was finished with it. If you do exercises at home for something like this, and it's helping.could you let me know what they are as well? I am currently on no pain meds, but do have muscle relaxers. Soma and Flexeril.

I've pasted in my MRI:

IMPRESSION: At L4-5 there is a disc bulge eccentric to the right with disc material contacting the right exiting L4 nerve root as described above Mild degenerative changes L1-L2 through L3-L4 without significant spinal canal or foraminal stenosis as discussed above. Electronically Signed By: Dr. Pain MD 12/10/2022 17:47 Workstation: RAD042

Narrative

MRI lumbar spine COMPARISON: 1/12/2018 FINDINGS: Conus terminates at L1-L2. Normal alignment. No fractures L1-L2: Mild degenerative disc disease without stenosis L2-L3: Mild degenerative disc disease with a diffuse disc bulge. No significant spinal canal or foraminal stenosis L3-L4: Mild degenerative disc disease. Annular tear with a diffuse disc bulge that mildly compresses the thecal sac. No significant stenosis L4-L5: Moderate degenerative disc disease. There is a diffuse disc bulge eccentric to the right resulting in moderate right foraminal narrowing with disc material contacting the right exiting L4 nerve root. Bilateral degenerative facet disease. Mild spinal canal narrowing. L5-S1: No significant spinal canal or foraminal stenosis Paraspinal soft tissues are unremarkable

I was doing fairly okay today and took the dog for a walk. I got about 1 block from home and fell reinjuring my right foot and ankle for the billionth time. I've had pain in my right hand and wrist for several months and I landed on that wrist. My right foot, ankle, hand, wrist, lower forearm, and low back now hurt. It's not severe and nothing is broken. I have an MRI on my right wrist on Monday that's been scheduled for a month so if I did anymore damage at least we'll know quickly. I'm laying down with feet elevated and have ice packs. It's just so frustrating. I fall and all my plans for today go down the toilet. The dog needs a bath and I was going to bathe her today. I make my dogs wet food and I was going to make more today. Now I'm stuck resting. I hate it.

Does anyone else also have arthritis and reacts to a solar flare? I feel like my joints need oiling, have sand in them, are achier...I feel like Lurch when walking. (why don't we have Zerk fittings?)

I’ve been dealing with chronic eye pain almost 3 months now. And I feel like I’m getting worse each day my eye aches more and more. I’m on different medicine have seen many doctors that say nothing is wrong with my eye. Other than severe dry eye and that the pain I’m explaining doesn’t show that much in the eye. I have dry eye spots a really TBUT (tears evaporate quickly) messed up oil glands :( but my eye feels like they’re in pain the whole eyeball both eyes. The only peace I get is sleep. With all these drops I feel burning and my eyes just feel like I’m getting worse. I’ve already had awful flares and no gabapentin or Tylenol helps. I feel like I can’t run anywhere to get help when I’m in super pain. I can’t go to the ER anymore, I’ve been twice. I have a very young family, my baby’s 4 months. And I can’t do any special outings to see family cause I’m always aching. I always have to be at home and it just happened all of a sudden one night. No one can really explain me why I got eye pain just one night and it’s stuck. I do think have dry eyes but it shouldn’t just start hurting one day super confused and hurt (physically too by this pain)

So for background, I had a car accident some years ago. Shattered pelvis, broken ribs, broken ankle, liver cut 3/4 in half, head injury causing short term memory loss for over a year. 2 plates, 9 screws and 3 months in a wheelchair, I graduated to a walker and learned to walk again. 2 years after that was diagnosed with stage 3 arthritis in my hip with severe bone loss, (blood loss was too long previously and they didn't realize it) and had a hip replacement. I am over weight due to physical activity being extremely difficult so that compounds the situation. I worked my butt off, went back to college at 34, graduated 5 years later, and have since been blessed with a job I can do sitting down from home. I've refused, so far, to request a handicap permit for parking because there are many who need those spaces more than I do, although I'm beginning to think I'm just being stubborn. In addition to the damage and hardware in my body, my pelvis is not even. This causes me severe pain if I stand for any length of time. If I sit, I have to reposition myself constantly. If I'm laying down, I have to have a pillow between my knees to even tolerate it. The thing is, I know my limitations and try hard not to push my body to the point where I'm either crying or down for 3 days to recuperate. And so I don't appear disabled at first glance. Even even second glance. I, of course, do not walk normally, but it's not overstated. It would be if I pushed, but I'm not into self torture beyond the chronic pain I already deal with. I feel like people treat me like I'm being dramatic or lying because my disability isn't more obvious. Or im just not disabled enough for any sympathy or accommodations. I also have ADHD and ASD which makes it harder because of sensory issues and comorbid conditions like digestive issues and hypermobility. My adult son lives with me and helps me which I am forever grateful for. One situation we had about a year ago was this: My son ensured I had a parking space close to our apartment. He painted it blue (it's not state property), and spoke to the neighbors and they all agreed to let me have it. We had a new person move in who has a permit. Instead of speaking to me rationally about it, she started yelling about how she was disabled and I was not and that the spot was hers forever and I was never parking in it again. I didn't realize she had a permit yet, or I would have approached her first to make sure she was taken care of. I understand she may have been treated badly or unfairly in the past so I calmly handled the interaction and my son created a second spot for her that was even closer to her apartment than the one I was using. Recently, she was screaming at me over a trash can that the trash folks put behind her car and tattled to the landlord saying it was us and made a big to-do over it. We usually get her trash can and bring in back for her but I had not been feeling great and my son hadn't either so we didn't for a couple weeks. This is not something arranged, we just do it to be nice. This is not an isolated incident, it happens to me when I'm out or at work or just in general. Ive lost friends because they invite me to do things I can't and even when I remind them why, they act like I'm just being antisocial or a party pooper. I don't park in handicap spots in public, just my one makeshift spot at home that's "blue" and not really a handicap spot by any standards. The looks I get from leaning down on my grocery cart while shopping are plenty without me trying to use any accommodation available. I don't need much, just kindness and consideration - the same as I give others. Why are people so quick to judge or assume things about others? It makes me depressed sometimes knowing that I miss out because I don't just have to consider my physical limitations but also the interactions I will have with others and making sure I have the energy to deal with that too. Which I don't a lot.

Anyway, thanks for listening.

Hi, my husband has chronic back pain (sciatic nerve) and occasionally he has really bad flair ups. Yesterday he had one. It was so bad he had to leave work early and this morning he was still in pain. I hate seeing him so miserable, and it sucks because apart from just taking care of the domestic responsibilities to let him rest, there really is nothing I can do. Yes, he takes prescription meds and does the stretches. Yes he has tried cannabis (doesn't work for him). Anyways when he gets these flair up he gets so angry, short and snappy with everyone. Me, the kids, the dogs. It's hard for me to understand because I don't ask or expect him to do anything during these periods, I try to be extra nice and gentle and usually i just let him lay in bed and rest till he feels better, and he can't even say I love you back to me. I'm trying not to take it personal but it's hard. I've never had chronic pain but even during times when I have had severe pain I try to communicate with my family and just be like "hey I love you guys, im on pain so it's hard for me to be patient/nice etc." On a normal day, he is totally opposite. He is kind, patient, helpful, understanding and overall just a pleasant person to be around. I guess I'm just writing this to try and gain some understanding. Should I just let it go? Thank you in advance.

Living with chronic pain can be a daily struggle that drastically impacts one's quality of life. Unlike the occasional aches and pains that most people experience, those with chronic pain face constant discomfort and limitations that can make even simple tasks seem insurmountable. As a result, individuals with chronic pain often live very differently from those who are able-bodied.

One major difference for people with chronic pain is the impact it has on their ability to engage in daily activities. Simple tasks such as getting out of bed, showering, and preparing meals can be incredibly challenging and exhausting. This can lead to feelings of frustration, helplessness, and isolation as individuals with chronic pain may struggle to keep up with the demands of everyday life. As a result, many individuals with chronic pain may find themselves housebound, unable to participate in social activities or even leave their home for extended periods of time.

The stigma surrounding chronic pain and being housebound can also be a significant barrier for those living with this condition. Many people with chronic pain face judgment and skepticism from others who may not understand the severity of their condition. This can lead to feelings of shame and self-doubt, as individuals with chronic pain may feel as though they are not believed or supported by those around them.

Additionally, the lack of visibility of chronic pain can make it difficult for others to understand the daily struggles faced by those living with this condition. Unlike a visible disability, chronic pain is often invisible to the outside world, leading to misconceptions and misunderstandings about the severity of the condition. This can further isolate individuals with chronic pain and make it challenging for them to advocate for their needs and seek support from others.

Despite these challenges, individuals with chronic pain demonstrate incredible resilience and strength in navigating their daily lives. Many find ways to adapt and cope with their condition, whether through pain management techniques, support from loved ones, or finding ways to stay connected to the outside world through online communities and support groups.

It is important for society to recognize and validate the experiences of individuals living with chronic pain and to work towards reducing the stigma and barriers they face. By raising awareness about chronic pain and the impact it has on individuals' lives, we can create a more inclusive and supportive environment for those living with this condition. By acknowledging the unique challenges faced by people with chronic pain, we can work towards creating a more compassionate and understanding society for all.

Does anyone have any experience with this treatment method to help Or cure their chronic facial pain syndrome?

I’ve been suffering for months and still no solution. I came across this treatment on YouTube and very curious if anyone has had success with it.

I just started randomly thinking about this a few minutes ago. I've NEVER been a morning person, at least not since I was like 5. The only reason I'd ever be up before 11 or 12 is because I had work or an appointment or something. But since my pain has been increasing over the last year I've noticed m y body almost forcing me to get up by 8am most days. It's like my body reaches its maximum soreness for the night and I have to get up or else my legs and hips will start throbbing. Just wondering if anything similar has happened to anyone else.

I’ve been trying to find any sort of solution to this pain that developed 3 years ago and has essentially left me bed ridden half the time. It’s very localized in a small area of the hip called the ischial tuberoscopy, but unfortunately it’s right where the hamstring and several muscles attach, as well as the sciatic nerve goes right through there. Anyway, after trying about a million different treatments and diagnostics, my last pain doctor said “I think you need an ischial bursectomy”. It turns out nobody in my city, Rochester NY, does it, in spite of there being a teaching hospital here. I asked him for referral to somebody and he basically just googled and gave me two doctor’s names. I called them both, and their staff said they don’t do that procedure. Googled some more and called a total of 8 different doctors and clinics everywhere from Houston to New York City. Many said no, many said they’d get back to me and then never did. Many times the front office staff have no idea what I’m asking about, and several thought I was saying ACL instead of ischial. Finally I get one where the front office staff asked somebody while I was on the line and came back and said “yes, we do that” and made me an appointment. So after spending roughly $1,500 on plane tickets, dog sitting, parking, Ubers, meals, the world’s worst hot dogs in Central Park, etc, my wife and I get there and find out the doctor doesn’t do that procedure, and says that most people don’t because it’s very complex and the possibility of messing things up is very high. So great, that was a colossal waste of time and money which could have been avoided if the front office person hadn’t lied to me.