We have an official Discord server!

We are looking for someone, or someone's, to help with video and audio editing for us. I created Chronic Pain Warriors United to fight for the right to pain relief. Our Elders, along with millions of others, are suffering because we allowed government agents and beaurocrats with badges invade our healthcare.

(DEAD FUCKING SERIOUS):

Is Euthanasia legal in any of the 50 states?

Or Europe? Anywhere?

Life is so hard! I’ve had 18 migraines in a row. my head is always pounding. the aura, dizziness, nausea and lightheadedness is agonizing. I have to stop everything I’m doing to lay in a dark room wishing I was normal! medicine isn’t working anymore and I can’t get an appointment with my doctor until march. what a bitch! I’m physically and mentally unwell because of this stuff. I’m so sick of being unwell and missing out on things and being in constant pain … all I wanna do is sleep and try to ignore it

I am funding, running, and developing Chronic Pain Warriors United on my own, mostly. A few friends help when they can. I really need someone, or a couple of someone's, that have lost too much to chronic illness and pain, like me, to help with video and audio editing. You can always reach me at ChronicPainWarriorsUnitedOrg@gmail.com

That is all.

Thank you and have a nice day.

Hi There!

I've been struggling with daily headaches and back pain for years. I found that medical massages help significantly but they only help for a day or maybe half a day then it goes back. What I really need is someone who can work with me daily until I get better. But I don't know if that exists (they always seem to push out my appointment) or how to make it affordable. Teaching regular massage therapists where I get relief from seems to be ineffective. Any suggestions as to what I could do next? Thanks!

Being a parent to small children, especially toddlers, is so incredibly challenging, and it’s even more difficult when you're dealing with chronic pain. Lately, I’ve been struggling with severe pain, insomnia, and a sense of mom burnout that’s starting to take a toll on my energy and my ability to fully enjoy time with my sweet girl. I know that the stress is making the pain feel even worse, and it’s tough to push through each day. I sometimes feel like I’m just going through the motions, doing my best to keep up with her, but it’s hard when I feel like I’m running on empty.

I try to stay active and keep us both busy, but right now, it feels like everything takes so much more effort, simple things like walking up the stairs or picking her up. and it’s been hard to find the balance. I know it's normal to have tough days, and I wouldn't want to take away from the moments I share with her, but I’m just really struggling right now. I wanted to reach out and ask if anyone else has experienced similar challenges with pain and parenting. How do you cope during those overwhelming times?

Hello. I was reading about my pain med (Tramadol) and came across opioid-induced hyperalgesia. My question is: do you feel worse pain while med is in your system? Or between doses?

How does opioid-induced hyperalgesia feel and WHEN would you feel it? At which point in your daily routine of meditation?

I have no idea if that made sense… I have MS and a very bad brain fog day.

Thank you for your time, I appreciate you all.

Hey team, I was just wondering if anyone here has any advice for me to travel to Singapore for about a month with my mum but I will need to declare a lot of info for all my pain meds as I have psoriatic spondylitis, CFS and fibro.

Would love any insight, tips or tricks on how to navigate this as smoothly as possible. I haven’t travelled via plane for over 20 years.

Tysm ❤️

I deal with a lot of facial pain and a feeling of pressure behind my eyes. I have gotten MRI, CT scan, etc and there is nothing they can see. I think most of my pain is referral pain and comes from my shoulders and neck. Has anyone here tried trap tox? I'm scared because I don't want to make my situation worse. Long term I need to do vestibular rehab, and posture correction but short term this pressure feeling behind my eyes and the constant feeling of someone sitting on my shoulder is really taking it's toll on me. Traditional nerve blocks are not working on me as well

I was just wondering if anyone else does this? I know it’s probably not healthy but I have radiator against my bed and sometimes I push my knees or back against it for 10-20 minutes and it gives me incredibly short term pain relief when meds won’t touch it.

Growing up my dad was the eViL parent. He’d yell, hit me, go off the handle for seemingly no reason. Mom was just “overwhelmed” poor woman had 3 kids and dad was “never home”. She was a saint.

When she was 47 she came home early from work and threw me her purse. Told me to hide it. Then she got my dad. She was having trouble breathing. Went to the hospital. Told pneumonia. 2am phone call from hospital saying it’s actually her heart and needs to be heliported to another hospital for emergency open heart surgery.

Some days later I went through that purse. There were all these blister packs of pill samples and blank prescription pads.

Fast forward a couple months later, I come home. Dad’s away at a meeting. I go upstairs to find mom and she’s unconscious in the hall between the bathroom and her room. I call 911. Get all her pill bottles and go.

Docs say she took too much ambien and also broke her ankle. She denies it. Older brother arrives. They’re whispering in her room when I walk in. He goes apeshit on me. Screaming and calling me names. Grabs me by my shirt and throws me so hard out of her hospital room I hit the wall. I end up walking the 12 miles home from the hospital.

They get home. Dad’s on a plane heading back. Brother forcibly removes me from the house. Not even allowing me to get my shoes on. I walk a couple more miles barefoot to a friends house.

Dad gets home. I come home.

No one even acknowledges what the fuck happened. Dad is despondent for months.

Mom has to get another heart surgery.

This time the hospital makes a mistake and gives her insulin the next night. She goes into a coma for 3 months.

When she wakes up she’s now a mute, can’t swallow consistently, has to relearn how to walk.

There’s a lawsuit.

I’m now 21 and get engaged. We get married a year later. Another year passes and I’m now pregnant.

Mom’s sending me hateful messages through the computer the entire time. Making me feel just awful for not being more available to take care of her. How could I be happy when she’s suffering?

Around 7 months pregnant that thanksgiving we’re at mom and dads. Dad offers to pay me to come by 5 days a week to help with mom. That way I’d have more time with my son too instead of rushing back to working in an office. I had already been spending every weekend and stopping in after work so yeah I’ll do it.

My son arrives 💜

Dad is mellowed. I’m not afraid of him anymore. Watched him turn into an absolute marshmallow the moment he held my son for the first time. Then mom started crying…she had a headache and NEEDED her Vicodin. They left.

For the first 6 weeks dad let me just be with my son and husband. But he needed help at home. My brothers weren’t around. And when they were home they didn’t help.

The messages from mom continued through the aol messenger.

2 years later dad gets sick. It’s cancer. We move in because I need to be there round the clock.

Before we move, my aunt calls me. We weren’t that close anymore since mom’s brain injury. She wasn’t around to help and I felt abandoned by her and the rest of mom’s family. I was FINE without them. Totally had my mind made up there.

Then she tells me things about mom from the past. In like a half joking tone. She tells me how mom lost her nursing license in the 80s because she was stealing patients meds at a LTC facility she worked at. Then goes on telling me how at my cousins christening she had taken around 30 Valium that morning and threw up in the middle of the church and passed out in the pew. Dad locked her in their bedroom to detox her, had all our bags packed. Called my grandma told her he was leaving but she begged him to stay.

Mom was always “sleeping” when we were growing up. Always giddy and shit around other people but when we’d get home she would…ignore us. Wouldn’t cook/clean/care for us in anyway. Wouldn’t talk to me, would just pick me apart. She just wasn’t present if that made sense. But her family always made excuses for her. She was a “hard working woman” and was “trapped” in an abusive relationship.

Even stuff like class trips. I remember being jealous how she would braid other girls hair on the bus rides to those places. But she never did mine. She would laugh with other people talking shit about me. It was cruel.

But I had blocked all that out until that phone call with my aunt.

Dads sick. He’s actively dying. She’d wake me up at 2am because she’d have a headache and need a Vicodin. Or I’d hear a crash and walk in on her pouring alcohol down her feeding tube.

A month before he died he makes me promise not to put her in a home. He knows how the staff at those places would treat her. Because she was one of those staff.

We spent a lot of time talking in his final days. He wasn’t home when we were kids because he worked 3 jobs to support us all after mom lost her nursing license. He’d lose his temper when he’d come home and she’d be sleeping again. None of us fed or cleaned. Nothing done in the house. He admitted he didn’t know what to do. He didn’t want to be seen as a bad father or husband. So he stuck it out. And yes. He lost his temper frequently.

He died Christmas Day under the tree.

Mom stole all his pain medicine that I didn’t get to return to the pharmacy right away.

When I found the pills in her room I flushed them. I was up for 36hrs straight dealing with her on the heals of losing dad. The only help I had.

It was a long consistent living hell of her nonsense after dad died.

She died 7 years ago.

I’m still married. I have 2 kids (19,12).

In summer of 23 I hurt my knee pretty badly. I didn’t want any pain medicine. Turns out I have moderate OA in my knees and am missing cartilage in my left knee causing nearly bone on bone wear. Just as I’m getting used to the daily pain, my left foot begins burning. Some nights so bad that I cannot walk upstairs after working 12+ hours.

I’m riddled with pain nearly 24/7 now. Legitimate maddening pain. I have to FORCE myself to take ibuprofen. I’m mortified by my mother’s behavior all that time I don’t want to ask for anything stronger.

Last night after work it was so bad. I had already taken 3200mg of ibuprofen during the day, 1500mg of Tylenol already. Everything from the waist down was on fire. I stood in the shower and just cried. I don’t want to let my kids down. I don’t want to be a burden on my husband or anyone else.

But I’m hurting. How can I get help without turning into her?????

I did take a medicine called skelaxin my husband gave me from when he hurt his back in 2020. I spent over an hour reading about it online first. I felt so…dirty taking it? It’s not a narcotic/opioid/benzo or anything, but it just felt wrong.

I don’t even know what the point of this post was. I’m just a wreck of a person right now and no one else understands why.

I thought I might have suffered a burn from MRIs in the past but I thought it might be due to metal getting under my skin when I'm doing stuff in the barn. The two times before it happened in my right under arm area. This time I developed 2 large blisters, about 1 inch x 2-3 inches, on the back of right arm near my armpit within a couple hours of my MRI.

I know I need to let my PCP know but I wonder what this means for future MRIs.

I've been on opiate pain meds for years. About 6 months ago I got a new job, which came with new benefits. I had to switch all of my doctors, including pain management. My new primary doctor gave me a script to hold me over until I can see a new pain management doctor. But it's only half the dose I usually get. I'm not complaining though, it's better than just having nothing.

I saw the new pain management doctor and he was pretty awful to me. He called me an addict, told me I need Suboxone, said he never prescribes opiates, they don't work, etc etc etc.

And the things is, I never once brought up the pain meds or discussed anything with him at this point, I only shared with the medical assistant what medications I'm taking. He made all of these assumptions about me before even walking through the door.

He complained about my doctor sending me to him, and said he was going to write him a "strongly worded letter about the compromising position he put him in".

He ended the visit by saying that "as a courtesy only" he is sending 1 rx for me to the pharmacy, and that there was better options to manage pain and ended the appointment.

As I followed him out of the room I asked what my other options are, and he said if I was actually interested he would do injections and order physical therapy. I've done the injection and physical therapy route before, for years and years. They didn't work. I didn't have a chance to tell him that, though he probably would have seen that as drug seeking behavior. He said to call the office if I want to go that route and he walked away.

I walked out of the appointment in tears, feeling very judged and not good about myself. He made me feel like it's a terrible moral failing to take opiates for pain.

I am going to make an appointment with my PCP to talk to him about this. I hope he refers me to a different pain management who will talk to me a little before making judgments, and hopefully be a little kinder.

Or should I just stop taking the pain meds? Am I really in the wrong here? I take my meds as prescribed, I never run out early. My drug tests are always clear. I don't drink or use mj. Not that there's anything wrong with drinking or mj, I'm just following my pain contract. The worst thing I ever did was take an extra couple pills when I had kidney stones.

I just need some words of wisdom, maybe a little compassion. I'm open to constructive criticism, maybe I need it. Thanks for hearing me out either way.

My mom is dealing with intense nerve pain from her neck and upper spine. She tries to put on a brave face, but she's mentioned that the pain is 10/10 and making it hard to sleep at night. She is allergic to most types of pain meds and is just waiting for the next couple weeks for an MRI at the moment while trying to deal with this intense pain. She's of modest means but has good health insurance. Not sure why the doctors couldn't figure out something to give her to ease the pain. In the meantime, I'd really really like to send her something that might be able to help her manage the pain and wondered if any of you may have ideas or tips. I saw this "NeuroMD Whole Body" device - wondering if that could help? Seems like it's more designed for muscles/arthritis though? Anyway, thank you for reading and I appreciate any advice.

I came across videos on YouTube from a guy named Chris Stepien and he practices a method called Adhesion release.

Adhesion is like a glue or scar tissue that can stick between tissues and nerves. He palpate with his fingers and if he finds Adhesion manually tears away the glue and it helps with pain relief.

Unfortunately there's not a lot of practitioners but it seems like it's starting to gain traction. I'm in Cleveland and I'm going to see a woman in Buffalo who does this since she's the closest to me who is certified.

I guess Adhesion is pretty under diagnosed and can be a pretty common cause of pain. So I thought I'd throw it out there to spread awareness.

I still remember what's like not having pain, i Deal with 24/7 nerve pain and neuropathy, life sucking, from my bloods only complement C4 is alot higher than the limits, that means a few but Its nothing to doctors, aside from that.

just now 4 years later i managed to get a referral for a lumbar puncture, olygloconal bands, and other markers, now that money for such a thing Is gone due to multitude of doctors visits and trials of stuff by myself instead of proper effective immunotherapies which you need a diagnosis to be candidate, they could have helped me earlier at the best window of opportunity

Its unlivable, tried many stuff, opioids most doesnt work for neuropathy, and theres that thing that you take opioids then you become even more in pain due to central sensitization

Pregabalin, i was taking pregabalin at onset, from exactly these kind of drugs that It all started

Venlafaxine, does a bit but doesnt cut it, not enough

Waiting for ifenprodil and probenecid to see If It does something to bare the pain, Protocatechuic acid that i will order and try as i the risk bennefits are enough to trial without any paper aside animal models

I wish i hád these referrals sooner, but kept suffering abuse and medical negligency, "the best window of oporttunity to prevent major damage to the nerves is to get IVG, steroids and what not soon as possibile" its writen all over in a bunch of articles

Aside, i have some sort of chronic spondylodiscitis, inflammation at the intravertebral discs, its nothing... I tought that once diagnosing such a thing i would get some sort of treatment for such pathology, but no... Not the case

4 years later, just now i have a referral, imagine how long to even try stuff that might improove this, If It does, treatment that i will just be able to try If something gets back positive

Wish we had compassionate treatment, we have maid in some places, but not compassionate treatment to see If It helps

I'm glad I did this for myself but I am just so tired you know? back to being bedridden

I am shopping around for my spring garderobe and I decided I am gonna buy some (fun) pain-themed shirts to possibly make my pain more visible and raise some awareness. I already found some great ones online, but I am also curious if you guys have any fun shirt(s)? ☺️

A combination of high pain, monotony and loneliness piled on today. I wasn't really enjoying things and pain seemed all consuming. I was sitting there and tears started to flow. That's normal despite what society says. I'm a 46 year old man reacting normally in an abnormal situation. I let it out and I'm feeling better than when I was putting on my tough face. 😊

Hang in there friends, hope you have a happy and low pain weekend

Hi all, had an implant placed at C3 yesterday for chronic neck pain from EDS and have some Oxycodone for postop pain. I feel so damn productive when I’m not sleepy from the meds. The last time I took these I taught myself how to sew and made several dresses and projects and read about 10 books in 3 weeks.

My initial thoughts are “is this how normal people feel all the time??” But now I’m wondering if I’m just high from the meds.

Any thoughts?? Not looking for medical advice or anything, just wondering if this is a normal feeling!

Has anyone used Adderal for opioid withdrawal? Or do you think it’s a good idea?

Has anyone used Adderal for opioid withdrawal? Or do you think it’s a good idea?

I have the worst memory and could never remember if I took my belbuca or not and would end up with “extras” at the end of the month. It took me way too long to figure out that I could number them and that way I will always know. I’ve been doing this for a while now and haven’t missed a dose since. What other tricks do y’all have for your meds (besides a pill box).

Please forgive my weird thumb I have EDS and it’s always hyperextending

The devastating widespread impact of chronic pain is often overlooked. The spotlight is always on demonizing opioids and the chronic pain patient's actual quality of life is frequently ignored. My question is, "Why is there not a Bill of Pain Treatment Rights for intractable pain patients? I'm talking about a law that protects these complex intractable patients and also their physicians from being deliberately persecuted.

The life of an intractable pain patient is often the equivalent of being trapped in an unescapable torture suit that they are forced to wear 24/7. So I feel that there should be some sort of legal protection that allows them to treat their medical disease/injury with a variety of treatment modalities, including high doses of opioids if that's what their illness/injury required. These patients are often extremely vulnerable to the current hostile medical environment that has plagued the American landscape due to the idiotic and bias CDC guidelines. And I feel that their needs to be legal protection so they can get the treatment that allows them to have the best quality of life that they can have. Thoughts?

I live with my parents. They're old enough that they're starting to lose mobility, and if I get a flair up carrying a laundry basket I could pass out on the stairs. Two story place, the laundry machines are downstairs and the bedrooms are upstairs. Looking for any way to make this easier and safer for us moving forward. Thanks in advance!

I'm sure a number of you will recognize that it is me once again posting in my favorite chronic pain sub. I'm the one who had a big post on opioid induced bowel dysfunction; a while back I made a large post on the symptom tenesmus. I last posted about a horrible reaction I had to the drug MOVANTIK. I had been taking it every other day for a month with only mild withdrawal symptoms from it. Then a week ago Thursday, it threw me into such intense opioid withdrawal that I ended up in the emergency room. The best thing to come out of that was a CT scan of my pelvis and abdomen which once again showed me to be full of shit. They gave me a soap suds enema which was essentially non-productive and then sent me home and would have sent me home with my IV still in had I not pointed it out to them. The next day I realized I was on my own and I read all my Reddit buddies responses again and decided that magnesium citrate was the way to go, or basically the only way to go short of another impaction. I've had two colonoscopies and so I know what I'm getting into but it was a shit show that just wouldn't stop. I thought it would be okay to take it out 1:00 p.m. but it didn't kick in until about 5:30 and by 10:30 I will still going but exhausted. I took a lomotil and went to sleep and woke up at 4:00 a.m. laying in you know what. The only upside is that it cleaned out all the solid stuff that was stuck in there. It wasn't just diarrhea and by the next day I felt about 5 to 10 pounds lighter your. I really don't want to have to experience that again and so I bought some regular old magnesium oxide 500 mg caplets.

IS THIS GOING TO HELP? Also doing miralax twice a day and stool softener.

I’ve been in bed all day with horrible stomach pain, I just feel so lonely, I don’t have anyone to talk about the pain, I just feel like suffering in silence… I’m just so fed of this, I wish I had support…