/r/cancer

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This is a place for people with cancer and caregivers who are asking specific questions to come together and provide support for each other.

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This reddit is a place for people with cancer and caregivers to come together and provide support for one other.

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1

I feel stuck in time

I got diagnosed very young at around 15 and it was during peak covid thankfully i’m healthy and well now but i feel as if i’ve been stuck at that age and era mentally(?) it’s been years and I don’t feel like i’ve evolved or changed as a person since that time i don’t know what it is exactly but it just sucks to see all my friends grow up and act like adults meanwhile i feel like i was robbed of my teenage years and i’m so behind experience wise it just feels like the years keep passing by but i’m still there can anyone relate?

0 Comments
2024/11/02
02:57 UTC

1

What can I do to help make the days better for my Mother during the time she has got left?

So for context here, I'm going to have to quickly explain the situation (not sure if this is accidental blogspam or not so apologies to the mods in advance). My mother was diagnosed with Stage 4 Bowel Cancer on the 7th of October, had a biopsy done on the 14th, was told that her cancer cannot be cured on the 21st, and was moved to a hospice on the 29th. It is a lot to deal with - honestly I think I might have whiplash from how quickly all of this has happened. We do not know how long she has left, but at the rate in which this has all developed... We want to do what we can to make each day count.

Besides visiting her daily, bringing flowers/food/clothing, the usual stuff... What can I do to try and help make the days left slightly better for her?

She is on oxygen and has a pump attached to her stomach giving her constant pain medication to make her comfortable. She sadly cannot walk far, and is generally unable go to outside as it will cause her to have coughing fits. She is still able to drink alcohol, looks relatively good all things considered, and if not for the coughing fits you'd never realise that she has such an extreme form of cancer.

TLDR; suggestions needed for non-typical things to parent staying in hospice better/more comfortable.

0 Comments
2024/11/02
02:52 UTC

8

Freedom

I took my last chemo infusion two weeks ago and the last pills yesterday, ironically on Dia de los muertos. The day of the dead. I be a poetic motherfucker.

Six months of my life with a daily struggle with pain. That’s nothing compared with most of the struggles many of you have experienced and shared. At times I have been truly humbled by the endurance that you have and how much I really didn’t experience in comparison.

I expect that many of you like myself come in and out of this group because it becomes overwhelming to hear that some struggles become too much and that comforting those who are succumbing this disease can be heartbreaking, especially when you find they are young. I have to thank cancer for one thing in all of this because it has broadened my sense of empathy in many different forms.

I have been fortunate to find I have very good friends. If you knew me personally just five years ago you wouldn’t expect that I was interested in even knowing people. Now I know how many people were here to say, we value you, you must continue. Again, a humbling experience.

Finally, I want to thank all of you that put up with my rants though I know we all support each other in this way it has meant the difference between trudging through the process and approaching my daily life with a desire to get better and continue to be really alive. Thank you so very much.

3 Comments
2024/11/02
02:04 UTC

1

Chek2

I was recently informed by my genetic counselor that I have the Chek2 gene mutation. I also have 2 cancers, and cancer runs in my family (especially breast).

Does anyone else here have this mutation? How have you treated it, by surveillance (mammogram then MRI every 6 months), double mastectomy or are you taking medication such as Tamoxifen?

Thanks for sharing your experience.

0 Comments
2024/11/02
00:11 UTC

9

Angry

Recently, I've been feeling angry. Angry at everything. I’m scheduled for CRS-HIPEC surgery next week, and I can’t stand the thought of it. I was diagnosed with LAMN with peritoneal spread after nearly three years of fighting for an answer to my excruciating abdominal pain. You wouldn’t believe how many doctors tried to explain—very patiently—that as a 24-year-old woman, I should expect abdominal pain now and then, that it’s just part of being a woman. Oh, how I would like to talk to them now.

I’m angry about the surgery because, after my last operation, when they removed the stump of my appendix, I felt so healthy and strong. I go hiking, cook for my friends and family, and travel. I don’t know how long it will take for me to get back to all of that. I know I need this surgery and that I’m living in an illusion of health while the tumor grows. But some part of me feels like I’m betraying myself, willingly letting someone take my health and strength away by cutting me open and removing whatever parts they think I can live without.

I’m also angry because I was just accepted into a job I’ve tried for a year—my dream position at a company I admire—and I had to resign. Now, instead of my first day at work, that day will be my first day in the hospital. It feels like a cruel joke.

I’m angry because I was just one semester away from finishing my master’s, and I had to take a whole year off since my program doesn’t allow a one-semester break. Even two weeks ago, I thought maybe I could still manage, and I tried to do everything in advance, but it just didn’t work. I study at a university six hours away from my family. I can’t be on my own after surgery, and I can’t keep up with school when I already spend at least two days each week shuttling between doctors.

I’m angry because I had to move back in with my parents. I love them, and I’m so grateful for the support they’ve given and will continue to give, but it feels like a failure. I was supposed to become financially independent this year so that my dad could find a job closer to home, instead of having to work in delegation and only coming home occasionally. He’s not getting younger, and I can see how tired he is every time he comes back. And now, I’m going to be an even bigger burden for who knows how long.

I’m angry about the scars, too. I already have so many from previous surgeries, and now my stomach will look like a strainer. I’m fighting the urge to burn all my bikinis in the garden while howling at the moon. And I’m angry because I feel like I have to hold everything together for my family and friends when I’m just exhausted.

I’m angry at the doctors, too, because they only tell me what I specifically ask about. And how am I supposed to know what I don’t know if they won’t explain things proactively? When I ask, they respond with answers that don’t mean anything. What are the chances of eliminating the tumors completely? – 'We’ll see after the operation.' How long will recovery take? – 'It depends on the person.' How are you planning to cut me open? – 'The surgeon will decide during the operation.' I feel like I know nothing. They give me the basics, and everything else, I’ve had to learn on my own. Then they ask me to sign a form saying that everything has been explained and that I understand what’s going to happen.

I'm angry because I'm loosing my friends. They're life is still going forward while mine stopped. They are scared to talk to me as if I will burst out crying every time they call (I really don't, I don't even talk about my health until they ask, because I understand that not everyone wants to know everything).

I’m angry because I know I’ll spend the next several weeks in pain and frustration I can’t yet even imagine. And I’m angry because I don’t know if this will ever end.

2 Comments
2024/11/01
23:04 UTC

18

Had a very good day!

I just wanted to share something positive today. I actually had a very good day health-wise! I felt a little bit weak/wooden-legged (if you know, you know ugh right?) but basically okay! I stayed awake for the whole day today too! I go to a Partial Hospitalization Program 2 days a week from 9 am to 3 pm but lately in the past couple weeks maybe, I've been sleeping most of the day there away, especially yesterday, which was my first day for the Program. I was so sickly I could barely walk...pale and nauseous, hardly ate all day (I've lost 3 lbs in a couple days, but it's ok bc I had gained quite a few pounds from my period starting and from constipation, so it was just mostly water weight)...but today (my 2nd day at Program), it was the exact opposite! I felt happy all day. I can't guarantee tomorrow I will be happy and feel well enough to run errands, but right now I'm tired as heck, but still very happy and content.

I had a good health day and I am grateful. I had an appetite today too! I had a small bowl of salad...but I was still hungry so I had 2nds with a little potato salad on top too! I also had 1/2 a bottle of Pepsi and a half of a coffee and water ... A lot of water. The counselors at the Counseling Center were so happy to see me eat. Kinda made me feel weird but it was nice to have an appetite!♥️♥️

Thanks for reading! Did you have a good or bad day today? Comment...let me know. ♥️♥️

5 Comments
2024/11/01
23:01 UTC

12

Cisplatin and hearing loss

Hello, I was recently diagnosed with palatine tonsil cancer in my right tonsil. As part of the radiation/chemo combo they want to administer cisplatin has been chosen in a dosage of 40mg x m/2, 1x per week for 6 weeks.

I am a lifelong musician, engineer and producer of music. Music means more to me than almost anything. Losing my hearing in any substantial way would be devastating. Tinnitus I can deal with, I already have that, but outright hearing loss or deafness with destroy me.

So the choice of cisplatin scares me as it has a fairly high percentage of causing hearing damage and loss which all appear to be permanent in the case studies I read.

Both my medical and radiation oncologist have said because we caught mine so early that the chemo in my case is more of a supporting role to the radiation than anything else. Because if this I’m requesting an alternative with less of a chance to ruin my hearing.

For anyone that’s had cisplatin chemotherapy what as your experience with your hearing? How is it long term?

Greatly appreciate any and all feedback.

Thanks.

26 Comments
2024/11/01
18:41 UTC

10

Misdiagnosed

So for almost a year now I’ve had “Hodgkin’s lymphoma” only to be diagnosed with Pmbcl two days ago. I go in today to discuss the new diagnosis more. TBH I’m completely annoyed because I feel like they knew it didn’t seem like Hodgkin’s lymphoma as I had no symptoms of it. 2”weeks could’ve been treating this but instead they gave me the treatment plan for HL that was unsuccessful. I’m annoyed and quite frankly I want a second opinion.

9 Comments
2024/11/01
14:04 UTC

5

Free Talk Friday!

Hey everyone!

Noticed things have been especially dour here in the last few days (imagine that?). Thought we could use some off-topic conversation to remind ourselves that life outside of cancer exists. Read any good books recently? Seen any good movies? How's the weather out there today?

6 Comments
2024/11/01
12:02 UTC

14

Did you decide to end treatment for a loved one to prevent further suffering?

After my 76-year-old husband of 37 years suffered intensely from unending complications of bone marrow cancer for 12 years, he was in ICU on a ventilator (again) after unexpected upper GI internal bleeding. His cancer treatments had stopped working. His ICU physician said he agreed with me "one thousand percent" to discontinue life support so my husband would no longer suffer; we had prepared advance directives and medical power-of-attorney years earlier after discussing this potential scenario. Two days earlier in the hospital my husband said he "wished he were dead" so he did not have to face what was ahead. He died about 9 hours after the unexpected onset of upper GI bleeding that led to intubation and multiple other "life support/death prolonging" measures.

I was his sole carer for those twelve years of endless treatments, hospitalizations, decline, and suffering. Making this decision for him was the most sorrowful experience of my life, but I did it to honor his wishes and to prevent him further agony. His longtime oncologist for those twelve years told me it was the right call because my husband would have had "a rough road ahead." Still, I am crushed and heartbroken, while grateful his suffering is over.

From those of you who made a similar decision not to prolong your loved one's suffering and dying process, I would appreciate, if it is not too painful for you, learning about your experience in coming to this decision and coping with it afterwards. Thank you with my wishes for your peace and comfort.

6 Comments
2024/11/01
10:59 UTC

200

Reaching the end.

About 4 years ago I found out I had a glioblastoma (incurable) and about 8 months to live.

I’m hard to kill and kind of mean so I’ve been able to hold it off, but I’m at the point of being unable to live a normal life and the pain can’t be controlled so I’ve elected MAID which I luckily qualify for.

Seriously fuck cancer though. It took everything from me. I had worked so hard to get to where I was in life just for my body to kill itself.

I’m angry, I’m sad, I’m confused. I’ve done the “why me?” Many times.

To anybody succumbing to this evil or caretaking or watching a loved one I am so sorry. This is literally the worst.

24 Comments
2024/11/01
07:55 UTC

1

Advice

So today I found out my mom has Stage 3 stomach cancer. I don't know any more details as of right now. But I am looking for advice on how to support my mom when she starts chemo. I don't live close, but plan on visiting the few days after chemo to help with all the stuff around the house. My dad is around the house but I am not sure how helpful he will be. I am wondering what I can pack the house full of while I am there. Or any other advice you have for me. Thank you in advance.

2 Comments
2024/11/01
04:31 UTC

81

As a Mum with terminal cancer, what can I buy and prep for my family when I'm gone? (Fuzzy feels only!)

Hi all, firstly a massive shout out to this subreddit. Like a lot of people my (33F, Australia) cancer journey has been a whirlwind; just being able to search this sub for similar stories from all over the world has made the process easier to swallow. My immediate family is just my husband (31M), my kiddo (1F), and myself and being the only people with children in our friends lives has made me navigating this extra hard.

5 weeks ago I woke up with a swollen leg, thinking that I'd done an odd sprain while mucking around with my kiddo. After a few days when it didn't return to size, I went to my GP and so the whirlwind began - I'm now part of the synovial sarcoma club with 'innumerous' mets in my lungs and a 30cm tumour in my leg likely starting near my hip joint several years ago and had assumed my soreness was just post-partum healing. I'm home this week after my first round of AIM protocol at Peter Mac Cancer Centre in Melbourne, Australia and are managing okay. The hardest thing has been being fully isolated from my family due to the daycare germs floating around in my house, so I'm trying to keep my mind occupied on the good things to try and do in these quiet times.

My prognosis is terminal ('between 24 - 36 months depending on how successful we see the chemo's results') which hasn't gotten me down - as an individual I'm pretty fucking stubborn lol (FUCK CANCER) and have taken these discussions as a challenge rather than a sentence, I know there's a million things that can be done. But what I'm trying to brain storm with the time and energy I have is how I can start prepping comfort for my family. My daughter and husband are both so young and them having to join this journey with me has been so heartbreaking, so I'm trying to ensure when the time happens, they will have some comfort knowing I was thinking of them.

I'd love to know any 'comforts' you'd recommend for your loved ones to make both the journey and the end easier, or at least more comfortable, for them. I'm extremely mindful of my daughter and what I can make or give for her to know that she's never alone. I'm not talking the 'life admin' side of things (e.g. insurance payouts, finance prep, emotional support - all that is under control!), but more the things that I can purchase, make, write in advance for my family to have as keepsakes or learn from when the time is right.

What could I think about or make that would bring a smile to their face when, or long after, I'm gone? If you're a caregiver, what do you wish your family member had done for you?

Some ideas I have:

  • Doing recordings of reading my daughters favourite books
  • Buying toys that can 'record' my voice
  • Buying Christmas and birthday presents in advance, writing birthday cards well in advance
  • Keeping up with my journal writing
  • Writing a 'cook book' of all my favourite treats and meals growing up and now
  • Doing some recordings of 'life' stories (e.g. when I met your father, what I wished I knew before finishing school, how my first job was, what were my favourite music and movies - like a get to know me series?)
  • Taking as many photos and videos as possible of the day to day mundane stuff

Thank you all for your thoughts, I'm both sad but grateful to be a part of this club with you.

48 Comments
2024/11/01
02:58 UTC

23

After Life

I’m bumming my friends and family out constantly talking about death, lol. I don’t really believe in anything. I think when you die you’re just dead and that’s it. I’m really curious to read others thoughts on death and the afterlife. I was raised Jehovah’s Witness they believe one day everyone who shared their beliefs will be resurrected and live on an earth transformed into a paradise. I’m also aware of course in the belief that if you’re good you go to heaven and if you’re bad you go to hell. What are some other beliefs? What do you guys think happens when you die? I have pancreatic cancer, fyi.

48 Comments
2024/11/01
01:23 UTC

4

24 lipo sarcoma

24 with lipo sarcoma

I’m a 24-year-old woman recently diagnosed with aggressive liposarcoma in my hip region. I’m currently undergoing 18 rounds of radiation therapy in preparation for surgical removal. My diagnosis came as a shock, as the tumor appeared suddenly and grew rapidly. I have had to leave most of what I know behind to end get treatment and I’m sure many other patient feel the same, looked out lives have been turned upside down. My treatment plan went very fast and I’ve hardly had time to think about much. I don’t have much energy or appetite and I mainly sleep In between the 3 hour drive to my chosen hospital for treatment. If you have any questions, feel free to ask!

4 Comments
2024/11/01
01:19 UTC

45

Made to feel good.

I'm in Cleveland right now visiting family. I live out of state. Today is Halloween. My sister took her little ones out so I stayed behind to pass out candy.

A young lady about 14 15 years old. Whom has down syndrome comes to the door. I have her some candy and she hears me talk.

I have cancer of the throat. I had major surgeries last year and now I have a fake voicebox to talk with. She hears me and asks what wrong.

No I'm not mad. I explain the easy way I know how I'm fighting cancer.

The young lady then give me a hug and tells me in her hero. I started crying right away. I'm 46 Male. I'm not a little guy and she had me balling like I was a 5 year old who was told no for the first time.

I wanted to say to everyone. If you are the one battling or you are the support system for someone whom is battling YOU ARE ALL MY HEROES.

7 Comments
2024/10/31
22:51 UTC

12

Edibles While Immunocompromised

Hi, M20 here. I am currently quite sick and my WBC and hemoglobin counts are really low. Its caused me to be basically bedridden with no appetite whatsoever. I have had a low grade fever, and usually I take myself to the hospital by now, but my oncologist thinks as long as it doesn’t exceed a low grade fever I should be fine.

I havent really eaten anything in the past 2-3 days and its starting to take a toll on me. I’m not the biggest fan of the protein drinks like Boost or Ensure, and I was thinking about taking edibles to help, but I am nervous it will make me sicker.

Anyone have input or have done this before?

24 Comments
2024/10/31
22:15 UTC

10

Picc line

Does it hurt to have a picc line put in?

32 Comments
2024/10/31
22:15 UTC

24

I’m having a rough day

I just found out I have a pulmonary embolism. I’m so close to being done with chemo and I have/had? Surgery coming up. Now I don’t know if I’m getting surgery. Now I don’t know a lot of things. My cancer wasn’t even “that bad” I guess, or I have been playing it off. Not as bad of a prognosis. I’m fine! Things are just fine. Don’t worry about me. And now my doctor says I have something life threatening?

I’m just upset right now and I have a lot of thoughts and I just wanted to get it out.

9 Comments
2024/10/31
21:18 UTC

21

How to cope with losing friends?

20f diagnosed last year at 19 and I've lost basically every single one of my friends since my diagnosis. My best friend prior to diagnosis directly texted me that she couldn't deal with my negativity and couldn't continue the friendship. She texted me this a day after my hysterectomy while I was barely conscious in the hospital on painkillers, still unsure of how far the cancer had spread. The day of the surgery I had texted her about how anxious I am and she knew what state my mental health was in when she decided to end the friendship just like that. We'd known eachother since we were 6. My other friends didn't say anything directly but drifted off and slowly stopped checking in. They're all in college and have moved on with their lives while I'm basically stuck. Right now I'm at a point where the few friends that I've kept up contact with mostly leave me on delivered or seen, or otherwise take days to respond dryly to my texts. I can just imagine them rolling their eyes at another text from me. I know it must be exhausting talking to someone who's always depressed and anxious and has nothing good in their life, but I do try to talk about them and their lives instead of just venting. It just shocks me how the people who I thought were closest to me care so little about me in the end. It makes me sad that I'll die from this disease and nothing will change for them. How do people do these things without guilt?

10 Comments
2024/10/31
21:07 UTC

104

Mom passed away

I believed I posted here a little under a year ago. Well wanted to give an update that my mom passed away last Wednesday. She fought hard but the cancer just came back so aggressive and it was all over the stomach. Part of me is relieved that she’s not here but ofc there’s good and bad days. She was so sick these past couple months she was in the ICU and had so many health issues.

44 Comments
2024/10/31
17:15 UTC

13

Life is Precious. ( Ignite the NNN )

Hey guys,

Uhm, there’s a lot to say, it can be boring cuz it would be long and of course will test your patience. But I think it can motivate somebody, even if 1 person gets helped from this, I will be very glad.

I was an introvert boy, was sometimes bullied, till I was in middle school, things became a lil bit good when I went to high school, but I was still socially awkward, was afraid of many things, cared too much about what others think. Even, I didn't had the courage to talk to my crush. And worst of all I became a porn addict. Consequently, I lost my confidence.

But I was good enough at studies, and got a loving family, so I wanted to do something for my family, therefore I started preparing for JEE ADV ( entrance exam for admission in IITs ). It’s a 2 year journey, in the 1st year (2023), I put my everything in it, studied 10+ hours a day, left games, movies, friends (though I don’t have many), pushed my limits. The 2nd year (2024) started quite well.

Here comes the turning point in my life, one day it was my lunch break, I was excited for the break, I went to washroom, and I saw blood in my urine, it was all RED like some color, I am still scared to think about it. Then, after diagnosis, it turned out to be **CANCER**. I am kinda stoic, it was difficult but I had to accepted it. We went to another city for treatment, 1 week before my birthday I got to know that it was **STAGE 4**. Huh, that was hell of a birthday GIFT. They did a surgery and **I lost my one kidney**. That was really difficult to accept but again I am a stoic. Then I went to home. It's been 3 months since then. And now it reoccurred, I am taking a targeted therapy and yesterday I got my first dose of immunotherapy. Doctor said it can be cured, but life is very uncertain and we can just hope that I will be fit once again.

Now, I realized that there were many things I could do better than I did and there are many things I want do in future. I am ready for changing my whole life. I just want a chance, one last chance. I want to go to college, work for a good physique, quit addiction, get back my confidence, spend some quality time with my family, do something for my family. I don't know whether I will get that chance or not. But YK, I never gave up, I didn't left my studies during the treatment, I wasn't able to do my best but still I did what I was able to do. The fire within me isn't extinguished yet, I won't stop until I win or lose, no matter what. I hope I will be able to make everything right.

But you guys have that chance, so please don't become weak, do what you wanted to do, live the life to fullest. Some people say there's nothing in their life, open your eyes, there was always something and there will be always something, just find it. Problems are in everyone's life, small or big, we have to tackle it, we can't run from that.

Thanks for reading, and sorry for the grammatical mistakes, I'm not a native English speaker.

Happy Diwali to all.

And I am starting NNN. Who's with me?

SIGNING OUT! 999

3 Comments
2024/10/31
16:34 UTC

46

I hate this so much right now...

I hate this so much...

I hate my phone right now. Yes, I'm aware that I am using it to type this. Thank you in advance to the Captain Obvious-es out there. I hate how I was sobbing just a few minutes ago bc I'm just tired and overwhelmed right now, then my son texted me and it was funny as hell...so I was laughing my ass off. I felt nothing otherwise, just a brief moment of hilarity...

After I'd finished texting with him, I put my head back down on the table...and it was tears all over.

I hate how the phone pulls me out of my head for a short time, and it's like the emotions (real) shut off and I just feel the emotion I'm "supposed" to feel in that moment. It's hard to explain. Whenever I'm done with whatever it was I was doing on the phone, I'm right back up into my head ... Depression just overtakes me again.

I'm not clever enough (nor do I have the energy) to figure out how to stop this from happening bc I can't be on my phone the whole day...as much fun as thst seems to be, im sure i would get tired of it quickly anyhow. I'm too tired mentally and physically to do anything, work on any mental health stuff, nothing. I literally am a vegetable today...and I feel so guilty about that.

I was crying bc I was thinking of how healthy I was just a few years ago. I was robust, heavier than I am now so I had a good body weight (albeit a slightly overweight one) ... I had energy, vitality...I was depressed and a drunk, but I had some happiness in things I was doing. I could at least get around easily. My kids knew the healthy me. I am starting to have this all sinking in just a little bit now. I am sick. I have a disease. I don't want my kids to see me like this, all pale as milk, exhausted and sickly looking all the time, so I put more and more fancy and normal masks on...and each one gets tighter and tighter to wear until I feel like I'm trapped and I can't move or scream...

Sorry for that word salad.

They see the act I put on. Everyone does, except maybe at my Group Therapy Program. The masks come off there--just a couple of them, though...they (the people at my Group) see more of the pain than anyone besides my bird (my cockatiel Coffee) and my many stuffies. My bird sees it at night when I cry myself to sleep. My stuffies see the panic attacks and anxiety and then medicating and being ok again.

I dunno where I am going with this or what I want. I'm done whining. Back to work for me...putting on that mask again (how ironic that I actually DO have to wear a mask in real life?) and making as if I am fine and dandy. Here I go. Wish me luck!😭

9 Comments
2024/10/31
14:28 UTC

3

Picky eater post chemo trouble eating?

Duh. So of course a life of picky eating was terrible prep for stage 4 pancreatic cancer on chemo. Sitting for hours at the kitchen table as a kid refusing to eat corn beef was not good preperstion.

I now find myself unable to chew pretty much anything I used to eat. What I can put in my mouth I chew to nothing and cannot swallow without gathering it from around my teeth and seallowing with some drink.

Eating was so simple I have no idea how it worked so automatically anymore? If it wasnt for some soylent and protien drinks I ‘d starve.

11 Comments
2024/10/31
14:18 UTC

3

Starting chemo on Monday but I feel like I'm getting a cold

Hi! Just as the title says. I'm worried if I need to call this in to my oncologist or not because as far as I'm aware, the chemo makes me immuno-compromised. I'm mainly feeling congested but I'm worried it will progress like it has in my husband. He has a sore throat along with being congested. Suggestions? Thank you!

6 Comments
2024/10/31
00:56 UTC

3

Itching after chemo

Does anyone else experienced this? About 3 days after chemo my hands and arms start itching horribly. Is this due to the chemo going through the pores? It's worse on my arms and hand. sometimes it's on my upper chest.

What do you do for it? I soak a washcloth in a baking soda solution and wipe it on the itchy areas. I also apply lotion. Is there anything else I can do?

20 Comments
2024/10/31
00:51 UTC

2

Signatera tests after given the all clear by oncologist

Hey guys,

My mom had colorectal cancer in 2022, and had it removed in January of 2023. She’s been extremely proactive in her health since then, and she feels great, but her signatera tests keep popping a positive reading. Her oncologist is comfortable saying that he was able to remove her cancer completely, and she’s had scans done to see other areas of her body as well as exploratory surgery, but they can’t find any evidence of lingering cancer. Has anyone experienced this, and if so what was the result?

November: .64 February: .32 May: .45 July: .41 October: 1.01

We’ve got another pet scan next week but everyone seems baffled at the results of this test vs what they’ve been able to see.

6 Comments
2024/10/31
00:45 UTC

1

VDC/IE

Looking for others experience with this treatment protocol. Confirmed today that my Spindle Cell Rhabdomyosarcoma has metastasized to my lungs and there are multiple nodules noted with the biggest being 10mm. I was on Vivtravki as I'm NTRK positive but it didn't touch the tumor growth and I've been moved onto this protocol. My doctors struggle a bit because my cancer is a soft tissue cancer that showed up in the bone. They say it's extremely rare so we are using the protocol of Ewing Sarcoma. I'm just looking for positive stories of others who beat similar odds. I am only 30 with a 4 year old daughter and I can't imagine leaving her. My doctor is particularly tight lipped about how well I will respond.

4 Comments
2024/10/30
23:39 UTC

5

Still don’t know what treatment will be

Hello! My road to diagnosis and treatment has been frustrating, multiple tests, scans, and doctors since the beginning of June. I have NETs of unknown primary, with one large lymph node one near my pancreas, and a few other nearby lymph nodes. The tumor is grade 1, a slow grower, I am lucky. I do not seem to have carcinoid syndrome, glad for that. No surgery, since they don’t know where the primary is. I’m wondering if they are going to put me on lanreotide monthly, or will it be watch and wait? Waiting for something to grow seems nerve wracking! Does anyone with no neuroendrocrine carcinoid symptoms still get lanreotide or occetide (sp)? And how long has it kept your NET stable? Thanks you

12 Comments
2024/10/30
22:31 UTC

9

Resources for my dad to read.

My dad is in the process of dying of pancreatic cancer. He's wanting some resources to read about the process of dying specific to what he will experience.

It's a fine line to walk and don't want him to obsees over it and driving ng himself crazy anticipating things that may be awful and not happen, but I also want him to be informed and maybe there is some peace of mind to be had by knowing more.

Are there good shirt books? Website resources anyone can recommend for him?

The other challenge is that he's having difficulties cognitively speaking. So a long book would just frustrate him.

My research in some ways has been too much for me. I think I have a good idea of what's to come but I also know it can be pretty different for different people.

So yeah, looking for things for him to read about what to expect when dying of pancreatic cancer.

Thank you.

30 Comments
2024/10/30
19:45 UTC

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