17 female, 5'5, 90 pounds, USA, possible lyme disease, prozac, no drug use, no smoking, numbness for my whole life, neuropathy feeling

17 year old having these symptoms since I was 4 years old, slowly getting worse over time.

neuropathy like sensation no tingling just NUMBNESS making it hard to eat and stuff like that because I CANT feel the food in my mouth, especially in the mouth, fingetips, and and whole body in general. like when I pee I cant feel it come out and years ago i had like sharp pains on my fingertips that is completely numb now. 10 years ago i had like sharp pain where i pee and its the exact feeling.

spinal tap normal. no autoimmune disorders, mri and nerve conduction tests normal, neuro cannot find anything, symptoms started when I was super young like 4 years old, facial and body numbness for years, slowly getting worse.

no endocrinology issues, no vitamin issues, no asthma and allergy issues at least of what i know of, have slight ashtma issues, nothing else can be found. other than neuro said I was in contact with lyme disease in the past before. oTHER than that, nothing else is found and neuro dosent think its lyme causing my symptoms and DOSENT think its related to nerve problems. Another neuro also said that as well.

They think that i need to do functional medicine. what do yall think this could be.

Saw my rheumatologist for the first time today. He diagnosed me with fibromyalgia. Also doing labs and X-rays to rule out Lupus, Lyme and ankolysing spondylitis. No relief given. I hurt so bad after he examined me. Not sure I will ever be able to fully accept that diagnosis. I'm exhausted physically and mentally.

Looking for fidget toys which also double as a thing to reduce pain in the arms and hands

I love fidget toys but sometimes my hands hurt too much and I wished I had fidget toys which also removed pain or helped as light hand exercises.

I have heard that apparently some people use theraputty as slime.

Hello everyone! I'm a beginner writer and I am looking for beta-readers for a story I've worked on called "The Old Me".

The lead character is representative of my disability, and there are other characters with disabilities and I want to make sure they are represented correctly, as I can only give the perspective from my own disability.

I want the people with disabilities to be that, people, not just token characters. I want to avoid harmful tropes, but again, I don't want people being “the good guys” purely because they have a disability. This means I have a variety of characters in the story with and without disabilities over the spectrum of morality.

And of course, any other feedback on the story will be appreciated! Any feedback on how to improve this story or my writing overall would be appreciated I'm mainly looking for general feedback on the story and characters as a whole, with some questions prepared.

Title: The Old Me

Some bounty hunts can have life-altering consequences. For young city guard Joan Qro this has never been truer. Having awakened alone in a non-familiar place, he discovers he has somehow lost the last 40 years of his life and memories. Not only have 40 years passed, but magic has also become more abundant in everyday life than ever before. The story follows Joan Qro as he struggles to adjust to this new ageing body, a sensational world of high magic while also following Joan's life before the sudden transformation.

THE OLD ME is a 108K word adult high fantasy with young adult crossover. Based on my home-brew/original setting for Dungeon and Dragons there are comparisons with the Critical Role franchise with the fantasy elements and Six of Crows and Crooked Kingdom for their themes of family bonds, trauma, and recovery from it. The novel serves as a stand-alone with series potential.

I'm looking for a one to two-month turnaround. If May will work better for you that will also work. Thank you for reading my pitch please leave a comment and let me know if you're interested and thank you in advance for your time!

Content warning: Pain, depression

Do you suspect that it's weather related?

female 17

Symptoms: Numbness, dizziness, tingling when turning body, dizzy when walking, dizzy when standing up, fatigue, trouble breathing

did ALL sorts of blood work and eliminated autoimmune diseases. WENT TO them again today and they said it is fibromyalgia. I dont have any tender spots. She pressed on some places and asked if it hurt but she pressed pretty hard and I am sensitive.

When it started: when I was like 4 years old, getting worse as I age. wHEN I was younger i had like extreme SHARP shock PAIN in fingertips and extremeties. NOT SURE if related. numbness started at EXTREMETIES for likle really long (i thot it was MASTRUBATION CAUSED?) i DO HAVE flexible like arms and stuff NO food allergies, NO environmental allergies, BUT FEELS LIKE ALLERGIES LIKE? numbness MAINLY in the mouth and throat, had this since i was literally BORN. i cant eat anything because numb so need to blend food!

Trouble swallowing, numbness of the body including the mouth, tongue throat, fingers, feet, etc, dizzy when walking. Cant eat solid food because I cant feel the food in my mouth. Extreme fatigue which is very werid. Weakness and trouble breathing from the numbness it seems like. Feel like want to go to sleep when eating, cant think right. NO food allergies, no environmental allergies

Records: Been to all areas of doctors, all blood tests. Went to Neuro and did Mri CLEAR, both 2 neurologists says numbness is anxiety and wont let me do any other tests. last year i went and did all blood work possible and there is nothing found. I tried to push for EMG or other things but the doctors will not let me. My symptoms last for around 2 months and goes away it seems like but the numbness is always there (just milder after some time). Is this Chronic fatigue syndrome or AUTONOMIC issue or FIBRO? something else? I have no vitamin deficiencies other than a slight vitamin D which I take everyday and antidepressants that has no help, symtoms get worse and better, come and go but numbness is always there.

is this fibromyalagia?

After going through the ringer of referrals and waiting months for an appointment getting blood work done and then finally being evaluated by a rheumatologist and going over test results - it is official - I have been diagnosed with fibromyalgia and psoriatic arthritis at the age of 25. I’m feeling… a lot right now. I’m glad I found this subreddit and egar to learn more on how to manage this - not just the physical pain of fibro but the mental aspect as well. I’ve been struggling for SO long now and to finally have an answer.. its a relief.. but I know the long road ahead of me won’t be easy and I’ll be honest, I’m terrified for my future, Im already dealing with so much in my personal life that isnt even related to this disease but it just makes it that much harder to cope because I have like.. no real support system and I’m just afraid, I still haven’t even really figured out what I wanted to do with my life and now it feels like its been taken away from me, like any experiences, any opportunities I could have in the future will always be dictated by what state my health is in, and having to rest and recover after flair ups. I wanted to travel I wanted to see the world I want to hike and see beautiful sights, but I can barely walk down my homes flight of stairs sometimes! It makes me feel so limited. Im so angry with my body. why couldn’t I just have a few more years of being able bodied? I’m only 5 years away from 30, fibro couldn’t wait till then? geez… well I guess at least I have a valid excuse to be “lazy” and I’m hoping to be able to get on disability soon I’ve been having trouble applying online and there’s no current in-person appointment available at my state’s disability office- keeping my fingers crossed I can get help with that soon, Im also autistic so that really doesn’t help with anything I have such a hard time figuring these kinds of things out, if anyone has ant experience with filing for disability or if anyone just has any other comments insights or advice Im open to any and all help, thanks for reading my little vent if you did

My Dr gave me a referral for a rheumatologist. For the last two years or so my skin has been super sensitive to the sun. A burning feeling I call cut glass and ice. It also makes me feel like I have sores on my scalp but I do not. This happens also when I get hot.

I also have had a soap/ perfume sensitivity forever.

I also have had my clothes driving me insane since I had my baby. I can't wear anything that isn't cotton or that pulls at hairs or is itchy like wool or kitted sweaters.

I cannot stand light touch. the only time I didn't have pain in my legs is during my epidural. i was so relieved I cried. But in a altercation I have had high pain tolerance unfortunately.

most medications don't work right for me or I have alot of side effects.

I have super sensitivity to sound, lights and I can only process one sound at a time. If I watch TV I need subtitles or I can't understand what they are saying.

I have chronic body pain, nerve pain. and chronic fatigue. I was on modifinil but had a terrible experience and my body couldn't get rid of excess dopamine. Was prescribed for insomnia and ADHD symptoms. (Almost killed me) and caused massive stimming and tics. I normally don't have dyskinesia.

I am in recovery, I have been in major accidents and have head injuries.

It could be both? What is your experience? Me In an omelette lol

Thankxxx guys.

Started looking up what it might be. Now I’m here.

I assume I have a shit ton to learn. But here is where I start and will research more.

I assume I don’t have “flat feet” but I’ve worn sambas for the better part of 3 decades.

My feet hurt. I’d almost rather a foot massage than a bj if I’m honest.

I’m on my feet 14+ hours a day between bare foot, flip flops, sambas and work boots. I’m barefoot as much as possible if I’m honest.

I recently found a “nugget” in my right foot in the arch. I assume it’s a calcium build up or something. I just want to know it’s not cancer to start. After that I want to know if I need to do something about it. It doesn’t hurt, but it does feel good to massage out. My nugget is about 1/4” and feel very circular like a small marble.

TLDR; I’m new here, I have some reading to do but above is where I am at.

I have been living with fibro since I was roughly 17 years old, i'm now 34, and dealing with it has been difficult.

I want to ask if anyone has ever made a possible connection between celiac and fibro, celiac can experience extremely similar symptoms, muscle and joint pain, brain fog, neuropathy, etc.

I am currently waiting for a doctors appt but it isn't until the 23rd of feb, i'm hoping to ask for a celiac blood test.

my biggest reason for this post is to ask if any doctor has ever mentioned celiac or if ALL of my doctors and specialists have have just completely dropped the ball with me, its never been mentioned.

started researching it myself due to years of bad diarrhoea and stomach problems I just attributed to the fibromyalgia.

​

EDIT: Thanks for everyones input, its been really helpful :)

I had a flight and the check-in machines were down and ran to gate...I had a pleasant trip but woke up in the morning with fibro. I've never thought I could experience raging pain head to toe. My feet were numb and immediately went to an acupuncturist, he worked on points to calm down cortisol and adrenaline in back of brainstem, I was able to eliminate alot of pain. But had serious nutrient deficiencies and really bad IBS. I followed up with a chiropractor and had amazing results, with his hands he just smashed the pressure points and pain out. By this time my butt was sore and had to get seat pads, pain would shoot to my legs. Arms had hidden pain. I took amagatine, B-complex injections to support nerves B1, B6 & B12 for myelin support. I still need to work on mold as this was the beginning of condition, my ANS was out of balance and the bodywork really help my cells rebalance with the support of antioxidants. I hadn't read about this disease much, but have CFS and no pain issues before my experience. Fibro is so much worse than CFS. I hope this may help someone else. Don't give up.

Fibromyalgia, a chronic condition characterized by widespread pain, fatigue, and cognitive difficulties, can feel like a relentless storm cloud hovering over your life. But amidst the downpours, there are rays of sunshine – self-care strategies that can empower you to manage your symptoms and reclaim your well-being.

Understanding the Fibro Fog:

Fibromyalgia symptoms (shown in the image below) often intertwine into a complex web, making it difficult to pinpoint the source of discomfort. The hallmark feature is widespread pain that migrates throughout the body. This pain can be achy, throbbing, burning, or even shooting, leaving you feeling drained and irritable.

​

Fibro Fog

Fatigue is another constant companion, sapping your energy reserves and making even simple tasks feel monumental. Then there's the fibro fog, a cognitive cloudiness that affects memory, concentration, and focus, leaving you feeling like you're wading through mental molasses.

Self-Care: Your Anchor in the Storm:

While there's no cure for fibromyalgia, self-care is your life raft in navigating its choppy waters. Here are some strategies to anchor your well-being:

1. Move Your Body, But Listen to It: Exercise may sound counterintuitive when you're constantly fatigued, but gentle movement can be your ally. Low-impact activities like yoga, swimming, or tai chi can improve flexibility, reduce pain, and boost mood. Remember to listen to your body and avoid pushing yourself too hard.

2. Sleep Hygiene is Your Sanctuary: Erratic sleep patterns can exacerbate fibromyalgia symptoms. Prioritize good sleep hygiene by establishing a regular sleep schedule, creating a relaxing bedtime routine, and avoiding caffeine and alcohol before bed. A good night's sleep can be your daily dose of rejuvenation.

3. Stress Less, Live More: Stress is a notorious trigger for fibromyalgia flares. Practice relaxation techniques like meditation, deep breathing, or progressive muscle relaxation to manage stress and find moments of inner peace. Remember, a calm mind is a body less susceptible to pain.

4. Fuel Your Body with Nourishment: What you eat impacts how you feel. Opt for a balanced diet rich in fruits, vegetables, whole grains, and lean protein. Limit processed foods, sugary drinks, and unhealthy fats, as they can contribute to inflammation and worsen symptoms.

5. Connect and Share: Feeling isolated can amplify the challenges of fibromyalgia. Join a support group, connect with other patients online, or confide in trusted friends and family. Sharing your experiences and receiving support can make you feel less alone and empower you to cope.

Remember: Fibromyalgia is a journey, not a destination. There will be good days and bad days, but with self-care as your compass, you can navigate the ups and downs and build a life of resilience and well-being.

Bonus Tip: Keep a symptom tracker to identify your triggers and patterns. This can help you tailor your self-care strategies and communicate more effectively with your doctor.

By embracing these self-care strategies, you can transform fibromyalgia from a storm cloud into a gentle rain shower, reminding you that even amidst the downpours, there's always the possibility of a rainbow.

Hi all, I feel like I need some advice.

I typed into Google “why fatigue causes pain” and fibromyalgia was first thing to pop up in search. I’ve heard of this before, considered even could I have it. My symptoms could be many many other things as well and that’s why I feel lost and not knowing what to do.

I’m 28, slithly underweight but close to normal size. I’ve been feeling tension and pain in my body practically forever, so much so that I can’t put in to realistic scale anymore. I’ve always been sensitive to it, but but over time my pain tolerance has increased, so the mild everyday pain often goes unnoticed on good days if I don't focus on it. It can be anywhere , but my legs are the main issue, always in pain, mild tension at least (restless leg syndrome).

What bothers me most is the fatigue. I’m kinda bad sleeper, difficult going to sleep and hard to get up in the morning. But if anything, even a little thing interrupts my sleep, even if I do sleep after that, the next day is ruined because I feel sore and anxious. It is hard since I can’t control everything in my enviormet to get best night sleep as possible for examle the neighbours kid can wake me up like 6 in the morning by screaming.

There is many other things in me that sound like Fibromyalgia (and if it’s not that what could it be?). Ibs, pain in shoulders/neck occasionally, getting headaches easily, weird skin issues, list possibly goes on… Symptoms for which no proper explanation or help has been offered. The reason why I have delayed seeking treatment is that my somatic symptoms have been ignored before since on their own they don’t sound that serious. I would just like to limit possible reasons for these things so that I could focus on treatment that really help.

I understand that it is possible that the biggest reason for these symptoms is my mental health (depression and anxiety), adhd and bad eating habits, but I would need help with those as well, to get them right. My blood values ​​have been checked from time to time and they have been almost normal, so nothing too alerting. Iron levels are the biggest issue to correct, but I've been trying to keep an eye on it by reminding myself to eat regularly. I'm constantly stressing that I might be the only reason why I have these issues in the first place and I just can’t find the backbone to fox it.

I try to shape up, if it just me who’s been lacking but honestly I’m not super sure its just me. I feel like I’m trying my best. My appetite is bad, I eat too little but I am constantly trying to improve it. It’s just hard when I have to balance with everything else too like stress, pain, fatigue, adhd… People around me won’t take me seriously. I once asked my mom does she feel constant pain on her legs and she looked at my like I was crazy.

Doctors have blamed a lot of my symptoms on mental health issues (and me), and I'm not saying they're wrong. It is possible, but I would like confirmation and perhaps a concrete reason for my symptoms so that I know where to prioritize my treatment. Now this just feels like I'm trying a little bit of everything and nothing is working. I would like someone, preferably an expert, to listen to me without leaving the matter too much for me to carry alone, so that I could improve my life and feel better.

How likely am I to have fibromyalgia? What else could it be? How to start a conversation with a doctor so that the matter is not immediately dismissed as mental problems? If the fault is ultimately in my own head, how could I get guidance to get my life on the right track?

As an added bonus, if you want to share what fibromyalgia means to you.

Thanks for the answers, I need them when I start to get pretty tired of this life. Despite the fact that I cope better with depression these days, life is still difficult

TLDR Would a way to manage all of your labs be helpful?: www.labtracker.io

Hi!

A few years back I got diagnosed with Fibro. I was getting tested for dozens of labs and bouncing around between doctors. I would print out my labs and bring a binder with me whenever I saw a new doctor. This system seemed CRAZY to me and I looked everywhere to find a better way to organize them. I couldn't find anything that did quite what I wanted so a friend and I (who’s also struggling with a chronic illness) decided to build a prototype to see if other people have this issue and would find an app like this to be helpful.

Here it is: www.labtracker.io

Please check it out, play around with the data, and fill out the feedback form or sign up for our email list. I’d love to know if this would be helpful for you in your health journey!

My goal is to make my life and others who are managing their chronic illness with multiple doctor visits and hundreds of labs easier to manage. Hopefully, this can help with that!

Also, eventually a doctor asked me if I had ever been tested for Lyme. I hadn't, so that doc gave me the test and it came back positive. My fibro diagnosis ended up turning into a Lyme diagnosis. I wonder how many people that's happened to?

I’m 19 F and was formally diagnosed with fibromyalgia a few days ago, although doctors have been toying with the idea for about a year. My immunoglobulin levels M and G are low, 30 and 647 mg/dL, my C-reactive protein is almost 17 mg/L, and I struggle with severe depression, anxiety, and PTSD. My doctors recommend PT and now are looking into IVIG. I’m in a DBT program for my mental health and I’m on some psychiatric medications as well. I’m struggling to enjoy anything and my body hurts all the time, new symptoms popping up constantly. I’m working on scheduling weekly massages and I need to find a female PT asap.

I need help. Any realistic suggestions for someone with very low motivation and will to live would be appreciated. I feel so hopeless.

I’ve had two normal MRIs, lots of other normal tests, and am currently in the process of seeing a cardiologist for high BP.

Medicines: • Aimovig 70mg injection once a month • Nurtec ODT 75 mg tablet as needed • Larin 21 1-20 birth control (skip placebo) • Mounjaro 5 mg injection once weekly • Prazosin 3 mg once nightly • Losartan potassium 25 mg once daily • Duloxetine 120 mg once nightly • Etodolac 400 mg tablet as needed • Adderall XR 20 mg once daily • Seroquel 100 mg once nightly • Probiotics 10 billion CFU twice daily • Vitamin B-12 500 mcg once daily • Magnesium glycinate 200 mg once daily • L-glutamine 500 mg once daily • Vitamin D-3 25 mcg once daily • Vitamin B-2 100 mg one daily Lion’s mane supplement as well

Even if under prescription, what did you tried and worked (or supplements)

Spouse of a fibromite here. We're both in our early thirties, already pretty used to 'life as a pair of addled adults that stand zero chance of being as productive and consistent as our parents were'. I'm keeping things more or less balanced between keeping my fulltime job,not letting the household go to shit and doing things that let me recharge and make me enjoy being alive, even if without medication (and even with it) my executive function and energy is barely enough to do the dishes once a week.

SO struggles significantly more, with nonstop fibro pain, OCD ruminations and ADHD scatteresness and depression and anxiety and guilt and frustration about how little his mind and body allow him to do. Most days are a gamble between managing small bits of helpful efforts that contribute to maintaining things, and being physically and/or mentally too deep in the shitter to do more than try to tolerate existence.

This started in his mid-teens and has been steadily getting worse, locking off more and more of his life the more we've tried to respect his limits and exempt him from things that let him achieve important things but also were searing torture every time he's done it - ie education and paid work. He has a master's degree in chemistry but gets nothing out of that.

Almost every time his efforts have a practical payoff, his experience with the labour makes him more and more miserable, and stressed out about the possibility of having to go through it again. He regrets having done them because they made him worse/were proof of how unfit and incapable he is (which is complete bullshit, but he believes it and talk therapy does nothing to shift his self-image).

We're now at a point where he's talking about feeling forced to give up even his last lifelines: his creative efforts, hopes of starting a family, and making memories with friends. If I somehow just let that happen I'm pretty sure he'll go under completely.

I'm at the end of my limited wits. I'm not a caretaker. I'm not a doctor or a physical therapist or a fulltime researcher or social worker. I'm an awkward nerd with a barely functioning brain, and I hate how I can't realistically be his friend, wife, physician, daily operations manager and the boss setting deadlines and enforcing consequences all at once. I don't WANT TO.

On his own, the very reality of how disappointed he is in himself triggers him into inactivity. Instead of doubling down on finding ways to help himself, he starts drowning in negativity to circle back around to 'I want to do better but I should basically not exist, I'm too broken to get better'.

He doesn't really maintain any positive habits, he's too used to failing at it and ADHD is a bitch. He doesn't follow through on possibly helpful things I find. He has no real support group he actively learns from bc everyone's situation is too specific, commiseration and compassion aren't practically helpful, and everything he tries in his mind has turned out ineffective and not worth pouring a lot of his limited energy into.

He needs some kind of breakthrough to escape from this swamp of depression and physical discomfort. He deserves to beat this thing down enough to at least feel like there's a point to living.

I want that for him but I can't give him that. I can't create the kind of structure I think he needs, I barely manage to get things done bc if I don't, we'd have no income and our home would be a garbage heap.

I can't drag him to doctors or drag him through intensive treatment or checkups as a constant demand on top of just getting through each week without losing my marbles. I don't know what to even focus on first and I struggle to push more than one Big Cumbersome Project at a time, myself.

He's not setting himself reminders, he's not tracking his mood or pain level or taking supplements and medication as consistently as he probably should, his sleep schedule's been worse but it's still abysmally all over the place, no matter whether I do or do not remind him those things matter.

He tries. He really does. I know he does.

If he were entirely on his own, I expect he'd have the external pressure to Do Something, Anything to keep moving. He's smart, he's kind, he's generous - but he can't seem to help himself.

But what should we even prioritise? How?

How would you create the external structure when other than slowly wasting away, there are no real consequences to basically playing possum most of the time?

I recently upped my lyrica dosage to 150 twice a day. (I’m not on for fibro but general chronic pain) with the increase I’ve noticed that the end of spicy time doesn’t happen for me anymore. No matter what. Alone. With a partner. Nothing. Anyone else experience this?

(Also sorry for the wording. Don’t wanna get flagged)

So I'm on painkillers which have allowed me to become active again. I've built up to doing martial arts a few times a week and I do get a little pain here and there but it's mostly manageable as long as I take my medication at the right time. But two weeks ago I went and the pain for the entire following 24 hours in my legs specifically was unbearable, like I wanted to die. I thought it might be a one time thing so I went again yesterday and it's the exact same. I was wondering if anybody has any idea on whether I should look into checking if there's something else wrong or whether it's just a new level of fibro I'm gonna have to just suck it up and deal with it?? Im just sooo scared I'm gonna have to give up my sports which are the only thing making me feel kinda happy for the first time in years. So yeah, any advice is appreciated ✌️✌️✌️

Does anyone here live in Australia, and happen to see a doctor or specialist that is for fibromyalgia? My mum has had it for years and is so sick of not getting any help from any of the people we have tried.

Vent

I’m not having a good brain day. Living in the Midwest is hurting my chronic pain and I can’t move because of joint custody of a child. I’m feeling really incompetent and uncomfortable in my body. I feel completely exhausted and useless. My hands and feet hurt bad I want to cut them all off so it will stop. But obviously that doesn’t work. And obviously I won’t actually do that but sometimes I sit in the bathroom with the door locked and think about it. To give context so things make more sense I self harmed for ten years straight and then spent a few years trying to stop. I’ve been clean from harm for six years this time and I don’t plan on relapsing but sometimes the voices get so strong when my scoliosis and fibromyalgia are hurting me. I just graduated from college online and it was very hard but I’m so proud of myself for doing it despite all my struggles and pain. But now I’m worried. My fibromyalgia brain fog is getting worse and I also have ADHD 😆 so I feel like I don’t remember everything I should to be able get a work from home job because there is no way I can work outside of my home with my pain the way it is. I just want to cry and give up but I have a wonderful partner who takes care of me and I child who needs me. I’m on medication for my issues, I have a wonderful therapist, I’ve tried physical therapy,etc and I just still feel so awful sometimes. Like I know others with chronic pain have succeeded but everyone’s pain is different so I don’t feel like it’s right to even compare myself to what others can do.