/r/PCOS
A place to discuss Polycystic Ovarian Syndrome and all that comes along with it. This sub is a safe space for LGBTQ2A+ folks.
Welcome to /r/PCOS! This subreddit is intended to serve as both an educational resource, as well as a safe place to share and listen. Information in this subreddit should not be a substitute for obtaining medical or pharmaceutical advice from accredited providers. Let's talk and help each other live healthier and happier lives. This sub is a safe space for LGBTQ2A+ folks.
Our sidebar is always a work in progress.
Rules/Guidelines:
This subreddit does not endorse any commercial websites. Links to such websites appear at the bottom of the sidebar.
If you can't be positive, then stay in lurk mode. Don't drag others down simply because you want to be miserable.
Fertility or Infertility is a very sensitive and personal matter. Please keep your personal views to yourself. Do not suggest a person adopt or have an abortion. That's not our place. Explain there are options available whatever the situation may be.
Please use the search tool at the top. You may find the answers to your questions, but if not, feel free to ask.
Newly Diagnosed? Experiencing Possible PCOS Symptoms?
http://www.womenshealth.gov/publications/our-publications/fact-sheet/polycystic-ovary-syndrome.html
http://www.pennmedicine.org/fertility/patient/clinical-services/pcos-polycystic-ovary-syndrome/
More Resources to Explore
Other useful subreddits: /r/loseit, /r/pcosloseit, /r/keto, /r/xxketo, /r/xxfitness, /r/makeupaddiction, /r/fancyfollicles, r/infertility, r/TTC_PCOS, /r/skincareaddiction, /r/femalefashionadvice
Other Medical Conditions That May Relate To PCOS
http://www.eatingdisordersrecoverytoday.com/binge-eating-and-pcos-is-there-a-connection/
http://pcos.about.com/od/relatedconditions/fl/Binge-Eating-Or-Eating-Disorder.htm/
Commercial Websites
These sites have useful articles, though be aware that they may also be trying to sell you something.
/r/PCOS
I really don't like having breakfast, I've never been a breakfast person and if I have it, I'm more likely to binge at night. So, I found something that worked for me. I usually have something small for breakfast and then have my main meal later, but when I started metformin (500mg) with breakfast I'd get hit by dizzy spells. So, I switched to having it with my dinner and it worked a lot better for me.
My doctor still insists on me taking it with breakfast for some reason, she's even halved my dose but I'm still being hit by dizzy spells. I'm still new to this so I'm not sure if it's really that important when you take it as long as it's with a heavier meal.
Has anyone ever been on Ortho-Cyclen?
My gyno put me on it to “put my ovaries to sleep” cause they were over ovulating and crating a ton of follicles/potential cysts. All is fine and dandy until I go off it for my period week and I feel like I’m dying. Lethargic, fatigued, nausea, headaches… I remember she told me it was a heavy hitter BC but holy shit it’s awful during sugar pill week.
Anyone have a similar experience?
I've had wrist issues for ages (my only hobbies are drawing and playing video games), but recently my dominant arm has degraded rapidly out of nowhere and has become almost unusable on bad days. I have also been experiencing mild trigger finger, and I'm starting to worry that this + my carpel tunnel are diabetes/insulin resistance related rather than purely being a repetitive stress injury, because I know there's some association there. I've been eating relatively "normally" for the past few years because my no/low carb diet was unsustainable (college student that's out of the house all the time) so I'm wondering if that has anything to do with it. Sorry that this is so rambly! I'm trying really hard not to do the ol' panic spiral (my signature move at this point), but I'm still stressing about it. Is this a warning sign that my condition has gotten worse, or am I just catastrophizing?
I have this issue where I go months without my period but every month I get the symptoms like pain and sickness. Those can often last for days. Does anyone know what I can do?
PCOS has completely distorted my self esteem. I rapidly gained 90+ lbs in 2 years (I am 5’10” but still). I feel so depressed, and so deeply truly ugly. I graduated from a top university last year and live at home in the suburbs. It is really hard going out to meet new people because I always feel completely and utterly humiliated by my “largeness”. I am in therapy. I don’t know what to do. Please help :(
I’ve been on a “reverse my pcos” journey for the past 6 or 7 months. No weight lost, no body changes, but I did get my period the end of September! I got off birth control 6 months ago in hopes to reverse my pcos and naturally get my period. And after a no show the past 6 months, I got it the last week of September! I visited my doctor a week after my natural period (all my previous periods were induced by bc) and told her how I’ve been trying to go natural and asked for advice. I’m not against what she said, but I do want opinions, she told me to continue what I’m doing and see if I get my period again the following month. She mentioned that if I get my period again naturally, it will be a good sign that my hormones are aligning back to where they should be. I’m listening to her and waiting to see if my period comes back up (I’ll give it until November 10), but I wonder what she’ll end up recommending if I do or don’t get my period.
But, any advice on what I can tell my doctor for my next meeting with her or do for myself since I am trying to go a natural route?
I’m planning a trip from Canada to the US. I have more than half a container of ovasitol and want to bring it with me but I’m worried that I’ll have problems at the airport. I don’t want to purchase a container there and then not be able to finish it before coming home. That would be $60+ down the drain. Anyone travel with it before? Can I put it in my checked luggage with no problem?
Which medication are you one + dosage? What has your experience been. Trying to get on zepbound un Jan.
truly never thought I would post this but today my period came back! I literally felt so incredibly happy. I started a very high protein, low carb, no sugar, and low calorie diet and I was extremely anxious and skeptical about how my diet would affect my life and if it would actually help. I was expecting medicine or something else to change but the diet has truly worked for me. This isn’t to be like “do this!!” But I read many success stories on this sub and it made me feel better and hopeful. So that’s all, just wanted to share my happy celebratory moment :)
To preface this, I (18F) just recently saw a Dr for my unusual periods (only have had 5 since I was 16 all very painful, heavy, and long), and she told me she believes I have pcos and possibly a prolactinoma. I have an mri coming up for the prolactinoma so we’ll see if her hypothesis is correct soon.
I have always had trouble losing weight, and sometimes even being in a calorie deficit where I counted literally every little thing and overestimated on some things wouldn’t work. There have been times where through fasting for a few days I’ve been able to lose weight, and throughout a year my weight will go up or down the same 15-20 lbs. it’s been like this as long as I can remember, and I’ve been unsuccessfully trying to lose weight since the 6th grade.
Recently, I saw some articles and online videos about the benefits of GLP-1 for pcos weight loss, and even some about prolactinomas and GLP-1. Like I said, my weight fluctuates so I’ll be anywhere from a BMI of 24-28. I’m currently at a 27, and If semaglutide could help with food noise and weight loss in general it would be probably one of the best things to happen to me.
I want to ask my doctor about this, but I fear she’ll dismiss me as wanting to take the easy way, or not being overweight enough. How should I word a mychart message to her? Can I just be forward and ask? Thanks in advance!!
Did anybody experience light periods after starting Myoinositol?
Hi guys so i’m ready to tell my story … I was on the implant for exactly a year before I got it removed. While on the implant I bled everyday for that whole year. For a month i was put on another pill to subside the bleeding but i stopped it because i didnt think it was safe to be taking all those hormones. Keep it mind this is 2019. I would bleed during sex as well it looked like a legit murder scene. I emphasized to my doctors and all they said it was normal. Anyways after getting off I realized my lubrication has never come back, i still dont discharge and my libido was non existent. I was told it would take a couple months for my body & hormones to readjust. I let my body breathe for a year and it still ain’t come back. I got on the iud hoping that will help a year later and that only cause me to be prone to bv, yeast, and utis! i was on that for 3 years and got off. Now i’m a year off birth control and i never will GO BACK! My body still hasn’t returned to normal!! I’m only 24!!! still struggling to get wet although my libido finally has returned. I’m still prone to bv .. literally every time i have sex boom i have bv. I tried probiotics, herbs i just don’t know what to do. I got my hormones checked back in february and the only concerning part was that my insulin fasting was high and my estradiol level is super low (25pg/ml) and everybody keeps saying that’s normal. No the hell it’s not!! Vaginal estrogen doesn’t bring back your lubrication it just helps your vaginal tissues. It hurts during sex i have to always use lube. I had zero issues before nexplanon. Now i have ingrowns on my face/neck, i’ve been diagnosed with PCOS even though every other doctor says they believed i’ve been misdiagnosed! I wanted to try shatavari ?? anything that can boost my estrogen naturally possibly. but i heard once stopping it your body returns to it’s symptoms. WHAT should i do ??
Got diagnosed officially the other day and have a 5cm cyst on right ovary, leftie has signs of being polycystic too. I also have pelvic floor dysfunction and endometriosis.
Currently back on hormones (f*cking yay), progesterone only. I'm also on gabapentin to try and retrain my nerves to calm the fook down.
I'm in pain, diarrhea from hell, nauseous, dizzy, fatigued. I want all the pizza and cigarettes. I just want my Mum. At 37 years old. I feel like I could just burst into tears and never stop. I hate this.
Hello! I need some advice and some peace of mind because I am freaking out quite a bit. I had a very stressful pregnancy scare beginning September 22nd because I thought I was experiencing implanted bleeding. It made no sense that it could be implantation bleeding because it was a month after I had unprotected sex (august 25) and I did not have sex in between. I ruled it out as a weird stress period and I tested negative on multiple pregnancy test. I am due for my period today (nov 3) and I have been experiencing spotting for the past week with period symptoms. there was some blood on my underwear today but not a single drop in my urine. Can the stress from my past pregnancy scare affect my period now? also, i have been extremely stressed recently, I am considered morbidly obese, and I may have pcos. Could this simply be symptoms of something else? sorry if i ask any dumb questions, just a college girl that has no one to talk to about this stuff!
I have a two year old daughter that I’m concerned about. I’ve known I had pcos for 8 years. Always had extremely irregular periods. Developed breasts at least six years before I got my first period. Was on birth control before periods began as well. PCP always just said it was normal to “be irregular” until 21ish, after that Obgyn just believed it was from birth control. My period completely stops while I am on birth control, plus I get extra emotional when taking it.
I’m concerned for my daughter, she has some pretty hairy legs and a little bit of a unibrow. Her dad is EXTREMELY hairy as well so I could be completely worrying over nothing. All research that I can find seems like she has a higher chance of having it since a close family member (me) has it. If she does have it what can I do to better help her manage it when she’s younger? I don’t want her to be treated the same as I was if there’s anything to help her I want to make it available for her. I know she’s many years away from puberty still.
I originally posted this to another sub but was recommended to come here, im not sure where else to put it since I don’t believe it has anything to do with my birth control specifically.
So I’ve been on birth control for 2 years due to NEVER getting a period, I never got one naturally and was put on birth control because I ended up having a lot of uterine complications, mostly pcos. I’ve only gotten an actual period a handful of times in my life and they’ve always been extremely heavy or extremely light. Recently I’ve not had one in the past 6 months but only lost my virginity about 2 months ago, with each time I bleed less and less but later on I’ll find like blood clots I would see from a period in my underwear??? Never big always very small but enough for me to get confused??? I don’t know what’s normal and what isn’t, my gp who prescribed everything doesn’t really ask and when she does she suggests I go to a transvaginal ultrasound for my pcos but says it would be undetectable due to the birth control. I’m always way too scared to go to a gyno, i think I’m more capable of it now that I lost my virginity and have been made extremely comfortable being seen by my partner but I’m so scared of the tools and the possible pain
Hi 👋🏻 to preface this I want to say I was diagnosed with PCOS almost three years ago and around the same time my doctors found cysts behind my fallopian tubes (it took them two years to find the cysts though after they kept flinging pills at ne and saying I had a bacteria infection) and it took them way too long to do the surgery. Because of the placement of my surgery periods make my scars ache and sex makes them ache and it's been a year and I'm in so much pain and none of my doctors can find out why. Along with the scar pain the inside of my vagina also feels like it's being scrubbed with an SOS pad and having an orgasm is even worse. It feels like these cysts have ruined my life and I just need to know if anyone has experienced anything like this or knows anyway to help.
I have a hard time staying awake sometimes. Sometimes I even wake up, brush my teeth and do all the usual morning stuff and then fall right back to sleep for another few hours. yesterday i slept for 3 hours nap woke up at 8pm then went back to bed at 11pm. then woke up at 8 am. felt tired. Is it because I am eating carbs? Im not giving up bread and icecream. i eat healthy otherwise. I just feel so ashamed that i fall into these phases of needing to sleep all day. it used to be worse before i took inositol and kariva, i was sleeping any free time i had.. now it goes in phases, usually once a week or every other week. i also have depression and ocd but i take zoloft. idk, does anyone relate so i can feel better about myself. sometimes i gaslight myself into thinking im lazy but i dont think a lazy person could genuinely sleep that deeply this much. i am a hardworker and i know im not lazy. but i feel so ashamed sometimes for sleeping a lot. i am 22 F in college.
Has anyone’s doctor prescribed them Metformin without having glucose or insulin issues? I got my blood tested and I don’t have issues with either but I do have high testosterone and other hormonal issues that have resulted in a PCOS diagnosis. I have struggled to lose weight for years and am wondering if Metformin might help me.
I just found out I got pcos 3 months ago (which explains the no periods) and I been prescribed Metformin 500 and progesterone 100 mg which I been taking on and off I won’t lie. But I have seen no results so far should I up the dosage or just trust the process??
What is your best tip for PCOS?
I have been on Met for a week and just upped it to 1000 mg. Looking for some inspiration from some of you who have been on it or were on it for awhile :)
I’m 26f, TTC our second child for over three years, currently no cycle for 10 months and 240 lb
Would love to hear your dose and the positive effects you’ve seen!
Anyone take the recommended daily dose of 4 grams only once a day? I’m very bad at taking supplements more than once a day. Wondering if it’s only effective that way or if people have seen results taking it all at once?
I am 14 and got diagnosed with PCOS just two months ago despite knowing I've had it for some years. The doctor gave me a birth control to begin when I got my next period and at the moment I can't remember what it was called. I just took it because I haven't had my period in some months until Friday and even then it’s light. I am pretty sure I am insulin resistant and overweight. I am actually terrified of the side effects I could have. I am always nauseous and slightly dizzy, the doctor said I might bleed while my body is getting used to it. I'm not sure how much and I have a very heavy period so I am not too sure what that could mean for me. I also have highly suspected OCD and the compulsions to make sure nothing bad happens while I first take it are bad so some advice on how to handle certain side effects and how likely they are would be nice :3
I have irregular periods since forever ig. I m 20 rn but since I got my periods they have always been irregular. Like they would come one month and won't next and then come again. Most common is me getting periods alternate month but not necessarily always, it's sometimes kinda irregular skipping more than a month ad well. When I do get periods, it has a normal cycle of like 5-6 days and with minimal pain/cramps (more backache than cramps). I don't have any acne and didn't notice any weight gain. I m actually very underweight (35.5 kgs, 5"2). I do feel I have excess hairs on my legs (I m hairy only, indian genes but I feel they are more(longer) than I had before) I was facing depression and struggling mentally a lil before, now I m alright ig.
I once got it checked by a doc like 4-5 years ago and got my ultrasound done and I had like like 7 cysts there and they said I have pcod but didn't gave any medicines or anything. Just gave me some supplements of iron, vit d etc and said I shouldn't worry, it's not a big deal, should just exercise and stress less.
I thought its probably cuz of my mental health and stuff and will get better on its own and I shouldn't think about it much. But time passed, my mental health is much better but it's still the same. Should I see some other doc now? Is being underweight is the issue? (I still struggle with having enough intake of food ig) what is wrong with me??
I’ve been battling with PCOS and Fibroids since I was 17 y/o and I am now 26. This year I was diagnosed with Thyroid Cancer and I just have my whole thyroid removed last oct 22nd. And my gynecologist prescribed me PROVERA to regulate my period well technically I have to take kt if it’s 28 days already and I am not having my period yet, but I am scared taking it. Birth controls pills, patch, and implant is not gonna work for me because I have history of Transient Ischemic Attack.
I searched that this supplement will help does anyone tried this?
The wholesome story myo & d-chiro inositol with MTHF folate and d3. (Please search as I cannot add photos here)
I need other options. Oh man. I can do spearmint tea but it'll get old realllllly fast. Are there other teas that may also benefit testosterone levels?
Since I know I'll get asked, no, can't do spironolactone. No, can't do birth control. No, can't do GLP-1s. No, can't do Metformin or other meds like it. Yes, I'm already doing Ovasitol. Yes, I'm eating a good diet, low sugar, lower carb, high fiber, high protein, no dairy, no gluten/wheat etc. I have a zillion food allergies that I honestly don't feel like listing out, most of the food pyramid. Yes, I'm exercising. So, no advice on these things please, I'm good.
I want natural options. Maybe a few foods I can add that I may not be eating enough of (I don't consider 1 or 2 specific food item suggestions to be diet advice), supplements, tea, etc. I want to avoid meds outside supplements.
Thanks for any help or thoughts y'all may have!
Hello, I just got diagnosed with PCOS and I feel very lost on what to do now. I saw a lot of people saying high protein and low carb diets are the way to go but I don’t think i’d be able to successfully cut out the things I love so much. I also saw something about needing 30g of protein in the morning, is that true? My doctor said that I specifically have a high level of testosterone and DHEA sulfate and I’m not sure on where to go to regulate that. Any and all advice is appreciated, I don’t know anyone in my life with PCOS so I need all the help I can get. Also I would love recommendations for protein shakes that won’t break my wallet haha I’m a broke college student
so i was diagnosed with pcos this february and i was put on progesterone pills that started to work after three months. bc of a family emergency and my life kind of being turned upside down i never got a prescription outside of that first three month one, and by the third month so much was going on i kind of stopped taking them. i never finished it, and i haven’t been to the doctor since so idk what’s going on with my hormones—recently ive had reason to be worried if im pregnant or not and here’s the problem. when i was prescribed the progesterone, my gyno said that i didn’t ovulate and that i could not get pregnant, and im wondering if anybody knows if that short period of me taking that progesterone could’ve changed that, if there’s any chance that it could’ve changed that fast. my period is very irregular (and still heavy bc of the progesterone deficiency) so i don’t even know if im going to be late or not. genuinely im so scared i do not have the funds for an abortion much less a baby😭 pregnancy is my absolute worst #1 fear and risking that really wasn’t my choice when it happened. any advice appreciated, ty. (will be posting in many other communities)