/r/TTC_PCOS

Photograph via snooOG

This is a supportive community for people trying to conceive with PCOS. Everyone is welcome here, you do not have to be actively trying to conceive in order to post. Partners of people with PCOS are also welcome.

As well as emotional support, this subreddit will also be a resource to learn about PCOS and what you can do to improve your odds of conceiving.

Welcome to TTC_PCOS!

This is a supportive community for people trying to conceive with PCOS. Everyone is welcome here, you do not have to be actively trying to conceive in order to post. Partners of women with PCOS are also welcome.

As well as emotional support, this subreddit will also be a resource to learn about PCOS and what you can do to improve your odds of conceiving. This information will be posted on our wiki page.

All types of posts are welcome but try to keep it TTC related. Also there's no such thing as TMI on this board. Having a baby is ultra-intimate and personal.


Rule #1:

No BFP posts outside of the monthly 'Success Stories' thread. Offenders will be removed with prejudice. Please click here to search for previous months.

You are welcome to make a post asking if a specific treatment resulted in success for others but we require that you make this explicitly clear in the post title so that people can choose to avoid reading. If your post does not meet this criteria it will be removed.

The majority of people here are still trying to conceive and you may receive more responses by asking on a different sub.


Daily Chat Themes:

  • Beta Hell Monday
  • Temping Chart Sharing Tuesday
  • Motivating Wednesday

Related Subs


TTC Graduate Subs


Pregnancy Loss/Support Subs


Acronyms

*BBT | basal body temperature
*CD | cycle day
*CM | cervical mucus
*DPO | days post ovulation
*EWCM | egg white (fertile) cervical mucus
*FF | fertility friend
*FW | fertile window
*HSG | hysterosalpingogram - used to check for tubal patency
*LH | luteinsing hormone - peaks just prior to ovulation, testing for by OPKs
*LP | luteal phase
*MC | miscarriage
*O | ovulation
*OPK | ovulation predictor kit
*PCOS | polycystic ovarian syndrome
*RE | reproductive endocrinologist
*SA | semen analysis
*TI | timed intercourse
*TWW | two week wait (to take a pregnancy test after ovulation)

/r/TTC_PCOS

23,710 Subscribers

1

Letrozole experiences - let's do a poll

Will be interesting to see who it's been helpful for

View Poll

0 Comments
2024/11/02
07:46 UTC

1

Daily Chat - November 02, 2024

Read a good book lately? Pets do something cute? Do you want someone to cheer you on because you have a big presentation at work next week? Share it here in the chat thread!

1 Comment
2024/11/02
08:00 UTC

2

Daily Symptom Spot Thread - November 02, 2024

In the TWW? Got some symptoms you want to share with others in their TWW? This is the thread for you! Share your symptoms and don't forget to update the BFP thread with your result!

6 Comments
2024/11/02
06:01 UTC

1

Should I try medicated cycles or go straight to IVF?

Hi all, I know I should be patient but it’s hard because all my friends are popping babies left right and center. I am 30F with known irregular cycles caused by PCOS (high testosterone and increased ovarian size) and was put on the combined pill for 10 years. I came off the pill in July wanting to conceive. The ideal timeline is to conceive in January after giving my body 6 month to regulate and reach some sort of baseline. However I have not gotten my period at all since then.

I’ve done all the blood tests and all the scans and everything came back normal! Even I was shocked considering the results looked very different 10 years ago.

I really don’t want to waste any time as we would like to grow our family by two before I’m 35. My husband is 34 and he also doesn’t want to wait any longer.

Before anyone says I should have come off birth control earlier, I was too nervous and anxious to because I had very bad symptoms 10 years ago and didn’t want to go back to that unless absolutely necessary. However I am happy to report that those symptoms have not made an appearance, except I have no periods.

In all the blood tests I have done, progesterone remains low throughout. GPs don’t know why I’m not ovulating.

2 Comments
2024/11/01
17:54 UTC

1

Tests Run After Multiple Miscarriages

Do any of you know what tests are done after you’ve had multiple consecutive miscarriages? I’m currently going through my third in a row and just want an idea of what tests can be done to see what’s going on.

10 Comments
2024/11/01
17:56 UTC

2

Overwhelmed

I just did my first cycle with a REI. He diagnosed me with focal adenomyosis and said that I have a cyst on top of my cervix that could make it difficult for me to get pregnant with intercourse. He said that none of that means that I can't get pregnant but that I may need IUI. He suggested a HSG to make sure my fallopian tubes aren't blocked which is scheduled for next week. First cycle we tried with intercourse alone (with the help of letrozole and a trigger shot) because I didn't want to go through with IUI before the HSG. That obviously wasn't successful.

I went in today for blood work and an ultrasound to start a new cycle. They called me after to tell me that my estrogen levels are high which could mean that there is a cyst. I was given the option of taking the letrozole but warned that it may not work as it had the previous month or "resetting" my cycle by taking birth control for the next month. I chose the birth control because I just can't justify wasting the time and money or going through the physical and emotional stuff if there's a lower chance that I'll even ovulate. I'm trying to see the silver lining. I'll get the HSG before trying again so I won't have to continue with the constant blood work and ultrasounds without knowing if there's a chance I can even get pregnant without IVF. I'll have extra time to continue improving my physical health (down 65 lbs so far) which will improve my chances of carrying a pregnancy successfully. Both of those are good things but I'm just so frustrated with my body right now.

0 Comments
2024/11/01
16:03 UTC

8

Is it time for Ivf?

Hello,

I (31f) and my partner (32m) have been trying to conceive for over 1.5 years. I have had one chemical and one pregnancy that ended in a miscarriage around 11 weeks.

Originally, we conceived the first naturally and second on Letrozole after trying for 2 medicated cycles.

After the miscarriage it has been a struggle to get pregnant. We have tried 4 medicated cycles with Letrozole and 3 iui that have all failed. Not able to understand why it’s taking so long this time and all of the iuis have failed. All the testing is normal although I do have pcos. Partners sperm post wash is 5-9mil.

Any advise if it’s time to move onto ivf? We have been on government funded waitlist for next year- how would you say I can prepare my body in advance? Should I continue to do medicated cycles before ivf or just take a break to prepare my body?

Thank you!!

15 Comments
2024/11/01
12:13 UTC

1

Cycle Questions - November 01, 2024

Need to ask a cycle question or have a concern about your cycle? Ask away here! Make sure to include as much relevant information as possible so our users can help as much as possible!

7 Comments
2024/11/01
11:38 UTC

1

Daily Chat - November 01, 2024

Read a good book lately? Pets do something cute? Do you want someone to cheer you on because you have a big presentation at work next week? Share it here in the chat thread!

8 Comments
2024/11/01
08:00 UTC

1

Daily Symptom Spot Thread - November 01, 2024

In the TWW? Got some symptoms you want to share with others in their TWW? This is the thread for you! Share your symptoms and don't forget to update the BFP thread with your result!

11 Comments
2024/11/01
06:01 UTC

2

Try clomid or move to IVF?

I was hoping to get some advice, my husband and I have been trying for a year, I did get pregnant without medication in May but it was a MC. I then moved on two letrozole cycles (5mg and 7.5mg) both failed to grow my follicles. Our next option is to either try a clomid cycle or move straight to IVF. My RE said it’s unlikely the clomid will work bc the letrozole is usually the gold standard for ovulating in PCOS. It’s clear ovulation is a big issue for me, but she said that it’s likely with my high amh that I could either keep miscarrying due to poor egg quality or just not ovulate at all.. idk what to do, I don’t want to waste anymore time with months of different attempts if I am ultimately going to have to do Ivf anyways. I also am currently on birth control to alleviate cysts that the letrozole cycles caused and if I stay on it, I can move into an egg retrieval but if I do the clomid, that’ll be another cycle followed by 6 more weeks of birth control (required for the egg retrieval) so likely 2-3 months wait if I do the clomid and it fails.

Cost aside, any advice on just moving to Ivf? Is it too extreme of a leap? Part of me wonders if the fertility clinics make situations seem worse so you’ll to Ivf quicker. Would love to hear others experiences as well. Thank you!

15 Comments
2024/11/01
05:13 UTC

10

Lost Some Faith in my Fertility Doctor

I was frustrated that my doctor kept saying "let's wait to see if you ovulate on your own."... Which I knew I wasn't going to, because I never do. That's why I am going to a Fertility clinic.

Finally, on cycle day 22 the doctor accepts that my body is not going to ovulate. He puts me on a 5 day dose of letrozole. I was so excited! Until I saw on Google and Reddit that day 22 is far too late to start a letrozole dose, and that it's usually begun on cycle day 3. But, I remained hopeful and trusting in my doctor.

I was really excited for my appointment today, cycle day 29, 3 days after my last dose of letrozole. I was expecting them to discuss timed intercourse. Instead, the nurse said "Your body is responding very unexpectedly. You have 20 follicles on each side, no growth. There are changes to the lining. It looks like you should be beginning your period. We must have missed your ovulation. Have you begun bleeding yet?" (How could we have missed ovulation? I do blood work and ultrasound every 3 days!)

I was so disappointed and confused. Why did the doctor even put me on letrozole so late in my cycle? I began spiralling because I've heard there's a limited number of safe letrozole doses in a row, and now this was a wasted round? I could cry.

But, the nurse was only going off of my ultrasound and the doctor still needed to interpret my blood work.

Later that day they left a voicemail on my phone (Even though I asked them to call my husband, because I was at work all day and knew I wouldn't be able to answer) A nurse said "nevermind! We looked at the blood work and the doctor said this is exactly what we should be seeing after the letrozole dose! Your blood work is showing that we should be seeing changes soon meaning ovulation is coming!" Oh, I was so relieved! Awesome! There's still hope for this cycle....

Then immediately after listening to the voicemail I wiped and had brown discharge.. My period must be coming? Like the first nurse predicted? Now I have no idea what the truth is! Do they have any idea where I am in my cycle? I just want to know if there is still hope this cycle or not? Is there any other reason I could be getting brown discharge? Google says period or implantation, but I haven't ovulated so there couldn't be any implantation- but the doctor said it looked good and not like my period was coming? I can't explain this feeling I'm having other than misunderstood and discouraged.

I called the clinic back to tell them I just started spotting brown. I don't have a direct line to the nurse. Reception said they just finished their last calls of the day and I would have to speak to someone tomorrow or Monday. Now I can't sleep.

I really appreciate you reading what I wrote. I hope you had a great day and luck is coming your way. Xo

28 Comments
2024/11/01
03:15 UTC

1

First IUI

My husband and I have been ttc for 5 years now. Recently diagnosed with PCOS and the hubs has lazy swimmers. I had an mc last year, which was my first and only pregnancy. Haven't conceived since. I completed my first round of iui this cycle with 5mg letrozole and ovidrel trigger shot. I haven't even finished the tww and I just started spotting today and have some cramps.

I'm a numbers person and I work in the medical field, so I can't help but research EVERYTHING. The time between the trigger and iui was almost 45 hours. The day before I triggered, I had a lot of cm, but we were told to abstain until after the iui. The ultrasound before the trigger shot only showed one 16.5mm follicle.

I had a feeling it wouldn't work from the start because the timing was off. Now I'm just sad and feeling discouraged. But also angry at the doctor for timing it that way...

5 Comments
2024/10/31
17:39 UTC

13

Tw: pregnancy loss

We tried and finally got pregnant after close to 3 years. I miscarried about 2 weeks ago im beyond hopeless and heartbroken. Does anyone have advice, stories of hope, can anyone relate, anything?

23 Comments
2024/10/31
17:03 UTC

2

Big follicles but no LH surge yet ?

I had my day 14 ultrasound today after my first medicated cycle didn’t work (didn’t ovulate ) happy to say things looked better this time however I have a few questions I’m hoping someone might be able to answer .

With my first almost 2 years ago when I got the ultrasound done the tech told me she believed I would ovulate the next day as the follicle looked like it could grow a bit more .

This time my lining was I believe 7.25 mm which I was told is a good thing and I had two “big” follicles and one smaller one on the other ovary I came home thinking I’d see an LH peak but no still very very low so I’m a little confused as the follicles looked ready I’m kind of kicking myself right now as I didn’t ask for measurements but If I remember correctly from the screen they were both between 20mm .

Should I be worried they won’t be released?im worried they were maybe cysts that weren’t there last month or at 20mm were still not ready and my LH should be tomorrow ? I’m trying really hard to plan things best I could but this kind of took me by surprise .

5 Comments
2024/10/31
16:41 UTC

1

How long it took to get your period back after getting off bcp

Hi. I want to know how long it took for others to get their period back after getting off birth control pills. I was on sprinter low doses for about 2-3 years. It’ll be almost a year in December of getting off the bcp and I still havent gotten my period back yet. My husband and I are TTC for almost 8 months. I know you can’t really track your ovulation if you do not have your period which is frustrating. Anyone else have the same issue of delayed periods after getting off of their birth control pills?

29 Comments
2024/10/31
16:26 UTC

1

OPK HELP!

i got a flashing smily on CBD OPKs this morning. BUT my easy at home is so so negative….

what the f..?!

5 Comments
2024/10/31
16:19 UTC

2

Question about trigger shot and spotting?!

Hi all, I was given a trigger shot October 19, but I went for follow up blood work and ultrasound and did not ovulate so I triggered again on October 26.
Immediately after I started throwing up, had a huge migraine and diarrhea. I called the clinic and they said it’s not attributed to the trigger shot. On the 30th and 31st I have dark spotting but implantation bleeding doesn’t occur until a week or two after conception. What could this be? My period is not expected for another week. Please help!! I am not taking any other fertility meds.

Thank you

1 Comment
2024/10/31
15:35 UTC

1

Sorry, this may be long and confusing, very mew to this side of stuff!

This may be slightly confusing so I'll try explain as best I can, I need some input from someone knowledgeable with PCOS, my consultant is away until Monday 😭

This is my first cycle on letrozole. I had a scan at 11 days (saturday) and was told no dominant follicles seen, endometrium thickness of 6mm and they diagnosed PCOS. It might be relevant that this was preformed at window to the womb and NOT by my consultant (I'm in stoke, he's Nottingham and has been away so needed somewhere more local / available for this cycle).

My consultant preformed a pelvic ultrasound and then a HyCoSy last month (just over 4 weeks ago) on day 16 of my last cycle and mentioned nothing about PCOS, he found an astral folicle count of 36 (30 one side, 6 the other) and found a dominant follicle. Tubes and everything are clear.

AMH was tested in March and was 14.2. All my GPs fertility bloods came back normal, I'm not sure on numbers as they haven't given me them.

I've been LH testing and the lines are slowly getting darker yesterday and today, still a way off from positive mind.

My question is - if no dominant follicle is seen on day 11 of a cycle, especially if the cycles are slightly longer (around 32 days, give or take a day normally), is there a likelihood of a follicle forming later in that cycle and ovulation still occurring? I can't help but wonder if it was just too early at the scan. The HyCoSy and pelvic scan was done on day 13 last cycle and he said he didn't think the dominant follicle wasn't ready to rupture yet at day 13, I got peak about 6 days later.

I'm not sure what's happening tbh, I've never had PCOS mentioned before Saturday, periods have been 32ish days as long as I remember (consultant knows and didn't mention anything, window to the womb sonographer immediately said "that's irregular as 28 is classed as regular so that's a bigger indication of PCOS" so I have no clue tbh).

5 Comments
2024/10/31
10:32 UTC

1

Provera bloating ??

Day 3 of taking provera woke up this morning with seriously bloated stomach, when I need to urinate it’s so uncomfortable liek the extra pressure of the bloating is pushing on my ladder. I have mild cramping, basically feels like a uti, but it’s not . Anyone else had experience with bloating while on provera ??

3 Comments
2024/10/31
09:20 UTC

1

Daily Chat - October 31, 2024

Read a good book lately? Pets do something cute? Do you want someone to cheer you on because you have a big presentation at work next week? Share it here in the chat thread!

1 Comment
2024/10/31
08:00 UTC

1

8 dpo tests

All day on 8 dpo I took frer tests and I swearrrrr I kept seeing the faintest of lines and with color , I could see it with flash but no one else could see what I was seeing ! And I don’t have line eyes bc I know when a test is negative I’ve taken like 20,000 of them. What do I do ? I’m scared that I could be tripping out and that 9 dpo (today) won’t show up anything. Should I test with fmu on 9dpo (today) or Smu and Evening urine ? The test could be mistaken as negatives but I surelyyyy see something!

Update: opened the test and it’s nothing on the test line, I will keep you guys updated as the days go on for dpo 😢

2 Comments
2024/10/31
07:33 UTC

2

Daily Symptom Spot Thread - October 31, 2024

In the TWW? Got some symptoms you want to share with others in their TWW? This is the thread for you! Share your symptoms and don't forget to update the BFP thread with your result!

9 Comments
2024/10/31
06:01 UTC

1

Follicle Fluid too Thick for Egg Retrieval?

I (F29) started my first round of IVF this month, after TTC for 2 years and being on letrozole for 8 months, and 1 MC.

Everything in preparation seemed to be going well and I went in for my egg retrieval on Tuesday, but they weren't able to get any because they said the fluid in the follicle was "too thick and mucusy" and nothing was draining into the needle from either mature follicle.

I can't find anything online about this. Has anyone experienced anything similar? I have a consultation with my doctor tomorrow but it would put me feel less insane to know this has happened to someone else.

3 Comments
2024/10/31
04:34 UTC

1

CD 21 progesterone level

I have been doing an unmonitored cycle with Letrozole for 3 cycles now and my CD 21 progesterone levels are below. I am doing another cycle of 7.5mg, but I am not very hopeful that this will work. My doctor wants my level to be above 10. Had anyone jumped from around a 7.9 ng/mL to above a 10 with the same dosage?

Cycle 1: 2.5mg Progesterone level: .3

Cycle 2: 5mg Progesterone level: 4.9

Cycle 3: 7.5mg Progesterone level: 7.9

1 Comment
2024/10/31
04:12 UTC

1

Day 11 trigger shot?

My scans showed a 2.1cm and 1.6cm follicles on day 10 and was instructed to do the trigger shot the next day. Is this optimal? This is my first time doing the trigger shot, not sure if the size of my follicles are enough. Any thoughts? Thank you.

6 Comments
2024/10/31
03:51 UTC

2

Progesterone pill question

My doctor prescribed 200mg of Progesterone for me to take starting the day of ovulation. The instructions on the bottle say to take orally, even though I was pretty sure Progesterone was administered as a vaginal suppository.

I sent a message to clarify if I should take these orally or vaginally in my portal and the nurse wrote back to take it vaginally.

These pills have a really hard casing and a code that says PR2 - when I google the pill code, it states it’s oral progesterone.

Can anyone who has been prescribed progesterone suppositories share what theirs looked like? I’m scared of shoving this hard cased pill up there and it not dissolving. Thanks!!

4 Comments
2024/10/31
03:32 UTC

2

thinner lining on letro?

Hello! Me again!

I had a full uterine septum removed in August! Yesterday (CD8) I had my follow up SIS to make sure everything looked good! They told me I have the “perfect roomy womby”. So - that made me SO EXCITED. BUT, I got the report back, and my lining was only measuring 2/3mm. I did take letro 5mg CD3-7. Now I am feeling incredibly discouraged. Does CD8 lining have a HUGE impact…? I am doing this cycle unmonitored - so I’m not sure what to expect… I was expecting a thicker lining :/

I am going to be taking supplemental progesterone 3dpo to 12dpo (or 10wks).

8 Comments
2024/10/31
02:44 UTC

7

Starting on 5th Letrozole cycle…

1st round failed ovulation.. this month is our third cycle on 5mg. 11dpo. Negative. I feel numb. I’ve seen so many people here saying it has worked for them within the third cycle. I start to believe it’s never gonna happen.

12 Comments
2024/10/31
02:41 UTC

10

I think I'm out

Today is 14 days post trigger. We did letrozole days 3-8, had our ultrasound and it showed two really nice, mature follicles. Triggered that day. Tomorrow is our official test day, but I tested out the trigger and it was gone by 4dpo. Did the progesterone suppository every night starting at 3dpo. Took a test this morning and it was a BFN. I was so hopeful. We've been trying since February, did get pregnant in late March and then MC in April. In September I had a hysteroscopy with tissue removal because I had polyps. I was just hope this cycle to finally have help, I can't help but be so... Down. I'm still testing tomorrow, but I don't really have any hope.

9 Comments
2024/10/31
01:20 UTC

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