We are at a loss as to what to do. Mom has stage 4 oral cancer and grows rapidly week by week. It has gotten so bad she can no longer close her mouth. She is on a trach and feeding tube. She is currently in a rehab facility but insurance is forcing her to leave because she’s too sick to remain there. She needs round the clock care. Someone to help assist with suctioning her trach daily. If this isn’t done she will loose the ability to breathe. She will drown in her own secretions. She wants to go home however she’s too sick to be alone. She has insurance through the Tx Teachers retirement system but they don’t cover a whole lot. Does anyone have any ideas as to what to do? She has less than a week to find a place to go.

My husband just got the pathology report of his malignant renal tumor after a nephrectomy. Came in the patient portal ahead of the Dr receiving it. Does anyone on here understand pathology reports?

I’m a 39/f with metastatic cervical cancer and have been bleeding out vaginally for a while now to where it has gotten so bad I’m currently hospitalized for over a week and receiving blood transfusions. They’re giving me radiation in hopes it’ll stop the bleeding but they can’t give too much since I’ve done many rounds last year. So far I’m still bleeding. I’m scared if the radiation doesn’t stop the bleeding. They’ve already tried an embolization months ago which seemed to slow the bleeding then, but now that’s not an option. Anyone else dealt with this?

I’m also scared because the hospital has only been rushing to discharge me than waiting more than a day to monitor anymore blood loss. I have to plead with them and sure enough the numbers keep dropping, yet they still wanna rush discharge after another transfusion. A little over a week ago they discharged me after only a day to where I ended up bleeding so much at home that I fainted and hit my head on the floor then taking an ambulance ride back to the hospital. This doesn’t seem to alarm them. As of yesterday, I’ve already filed a complaint with AHCA because I’ve been dealing with so much negligence here.

31 year old triple negative breast cancer girlie over here! Anyone in the Denver area looking to do some trauma bonding?

Hi, I'm 39f who was diagnosed with Stage IV Squamous Cell Carcinoma in my throat/tongue last year. It was also found in the neck of my femur, which is why it was labeled Stage IV. We didn't do any surgery or radiation, but did do 8 rounds of pretty aggressive chemotherapy and immunotherapy and I'm still doing the same immunotherapy (Keytruda).

I thought when they told us it was uncurable, that meant I would be on some form of chemotherapy for the rest of my life, however long that was. Right around the time I finally came to terms with dying, I got the news that it was no longer showing in the femur and had shrunk a ton in the throat/tongue area. The doctor basically said it would be like treating a chronic illness rather than something that was actively killing me. I have quite a few chronic illnesses that are lifelong, so I'm used to that process.

Last week we got the news that my most recent scans came back with "no evidence of cancer." That's the phrase my doctor used. He said I would continue on the immunotherapy and getting scans for the next 2 years and if things continued to show no evidence, then we were pretty much done. We're still kinda in shock. We didn't think this was possible with the stage IV diagnosis.

I'm sorry if these are dumb questions, but is "no evidence of cancer" the same as NED? I thought I understood I would always have cancer; am I just in remission?

If you went through this, how long did you wait to tell people you were NED? Do they treat you differently? I've told my husband, parents, and close friends but there are more people who don't know. I'm almost afraid to tell people like I'll jinx it. My doctor is great when it comes to treatment and helping fight the disease, but he isn't the best at helping you figure out what's next and expectations.

Anyone who has an only surving parent who has been diagnosed with stage 4 lung cancer? I'll be an orphan after this and it's just a lot to take in

Hello humans. My fiance, 41 year-old male, was diagnosed with Stage 4 melanoma on June 5--metastasized to lungs, ribs, lower spine, psoas. Sudden hospitalization for pleural effusion, back home now.

He seemed to recover fairly quickly after the surgery--somewhat normal within a week. But now he says he feels awful and thinks it might be the cancer itself causing that.

Can anyone tell me how quickly one's health can deteriorate from Stage 4, where one would notice it? We don't know what to expect because he was legitimately fine until the hospitalization--well, he had lower back pain, but we just thought "who doesn't". I don't know how bad this can get how quickly, but I'd like to be prepared for the worst, if I have to. We don't see the cancer team for another two weeks.

I see my Oncologist for this next week, but I had an MRI done and it said metastasis on my L1 vertebrae and I had a nuclear bone scan done and it just said degenerative changes but I’m freaking out because I’m a breast cancer survivor. Does anybody have any experience with this and if so, can you tell me how it worked out or what I have tolook for in the future?

My mother (54) was diagnosed with breast cancer stage 2 this year (March) and now she's already in stage 4. Her chemo is scheduled to be this June 20. I am just very worried because despite the pain killers she's been taking, she always say that her body is in pain. I just want to help her out in some way. Thank you so much for those who will take time in replying.

Hi! Let's introduce ourselves! You can put anything you like. For instance, what cancer do you have? How did you find out you had cancer? When did you progress? What's your current treatment? Are you supporting someone with cancer (caregiver, friend, child, spouse, relative) Only add as much or as little as you want. Put other things I forgot to mention.

I'll go first.

38f breast cancer, mets to bone only. I found out I had cancer when I hurt my back tripping over my dog. A doctor noticed my broken vertebrate and recommended an oncologist. Immediately diagnosed as stage IV. My current treatment is Kisqali with anastrazole. I am living with my diagnosis since '23.

I really like how this sub welcomes family, friends and caregivers to receive support from those who have an understanding of cancer.

I beat Stage IV pancreatic cancer. I was cured after I balanced my body's PH levels and stopped poisoning myself with processed foods. You can do it too! Cancer cannot survive when your body is in an alkaline state!

It took me 3 years and nearly $200,000 in medical bills to learn these facts, I don't want other people to go through the same thing.

Knowledge is always FREE. You can cure yourself and stay clean for the rest of your life. I have medical records proving all of my claims.

If you have Stage IV cancer, take my $10,000 Stage IV Challenge. Contact me on my website for the full details. I'm not selling anything, I take no money, I provide knowledge and want to incentivize people to see how effective this method truly is.

mycancercurestory.com

I am 37(f) stage 4 breast cancer on verzenio and an AI. My joints are in so much pain it’s hard to function. They’ve switched my AI 3 times now and it’s not helping. Has anyone had experience with this kind of pain? Looking for anything that may help. I’m so desperate and feel totally hopeless and I’m so tired of living in pain every day. I do a weekly massage which is a bandaid, infrared sauna, ice heat acupuncture you name it I have probably tried it. It’s taking a toll on everything and I don’t know what to do. Please help.

Has anyone had experience with keytruda? If so do you know if it's safe to add Agarikon and Turkey Tail at the same time?

My dad is dieing of stage 4 stomach cancer. They said 1-5 years at best its been 10 months and he has withered away. He also is my dad since birth but not my maternal father but since birth he was there and is all I know. I didn't even know he wasn't my dad until I was about 11. It was confusing as him and i never even had that talk, someone else told me. I didnt bringn it up either just pretended i didnt know but i guess he knew i knew.. But nevertheless he kept me as I moved to his house when I was 12 from a physically abusive mother who had no patience or empathy and was mixed in some things that made her the way she was. An escort. And still clung to who my real father is a large gang member and pimp. He wasn't around much but I was back and fourth from mom's and my dad who i i consider my dad. They seperatwd when i was 3 becauze my mom kept seeing my real dad behind his back When he found out he kicked us out and changed the locks. I'm pretty sure he found out I wasn't his biogical child but I kept seeing him on weekends. My mom wasn't around much she did anything to rid me when I was little so I guess he always took me although He was an alcoholic and work aholic as a mechanic owned his own shop was gone from 6 am to 9pm. He would always come.home wasted. so he wasn't really at home much besides Sundays. Anyway I see him as my dad but as ai got older I felt things changed. He became extremely narcissistic towards me and it feels as though he is treating me this way because it seems he is thinking I am my mom? I have always chose him and don't even answer her calls much so its really hurtful to always be trying to jump through hoops to try to Impress him or make him happy but I never seem to . I feel like a dog always trying to please him but I am always just kicked after completing the tricks he wanted. He just disregards any positive thing I do and actually says I don't do anything at al for him or the house which is WILD considering i do it all. Well my boyfriend and I have been taking care of him and the big house we all live in and he seems to love to appreciate my boyfriend so much but never me. Never mentions the things I do which is alot in my opinion. The house is 8700 Sq feet so it's alot of work to care for inside and out alongside of his needs during cancer. He has withered away really fast in 10 months. He went from 165 lbs at 5'7 to now 110 at best. He often refuses to eat and definitely won't change his diet or habits to try to prolong his life that he seems so scared of loosing. He hasn't eaten vegetables his entire life and just won't no matter what. Even if added to things secretly or blended or w.e just won't. Even hates supplements with them. So it's very difficult . He has also turned super mean to me, his friends and our tenenats . He is honestly the most unappreciate, vile and mentally abusive person who has ever affected me so deep. I am an only child i don't have much support other then my boyfriend who i recently found out is gay..... but he wants to stay with me.. I am not gay and I am a female 31 years and he is 27 male. It was reallt hard on me to figure that out at the same time as my fathers issues... I've had so much change in last 2 years, it all just seems to have become so much. After his verabl abuse the next day i always try to refresh and actlike it just didnt happen as thiugh i always forgive him without an apology . I know hes dieing but is that a pass to trear me and even his friends so vile ? At this point after what he said to me yesterday after I bought him a coffee cup that said super dad ( i guess hes not) and slipper socks because his feet get cold from chemo and he was wearing his old boots to bed I felt bad and rushed out to get the slipper socks then a few hours later i went to check on him and he was just rude again and we were tallong about an issue with the house and he just started to say awful tjings about me and that i don't do anything for the house or him and that my boyfriend does everything . It was the most bizarre statement as I do everything inside the house.we rent out rooms to tenants (all men) I'm the only female in this house , and I am the one always cleaning up after everyone . My boyfriend mows the lawn front abd back and cleans the pool but I usually have to mention it to him to get him going on it. My dad doesn't ever think of how I am the voice behind my bf making it all happen alongside my own chores I am doing. It really hurts me to constantly try to make him pleased and no matter whaf I do he isn't. When he talks to his friends on the phone, he only mentions the things my bf does and never the endless things I do. Like purposely trying to always slander my character or hospitality and care towards him. I don't know what to do anymore. Where I live is outrageous rent in this city and I don't work. My job is pretty much taking care of thus house and my bf and him and dogs. And no I am not paid for any of this I just see it as my duty as a stay home gf and I guess care aid to my dad ? I don't know what to do anymore I have become so depressed and just think about how if he dies he will die never proud of me or happy for the things I tried to do and make him comfortable. . It feels my dad is against me on anything. He always will choose other side of anything I am for. And he often gas lights me and calls me a mental patient because i have a bpd from trauma from my mother and all her secretz as. Child and constantly abNdoning me , i am a tough person i try not to sbow anyone my weaknessez and i just carry on everyday with the mentality of new day new start. But the constant gaslighting is really starting to affect me super bad. Like I'm really depressed yet daily I still try to help him and check on him and do the house duties that are never noticed or praised by him... it's honestly breaking my soul as he doesn't feel like my dad anymore Just my abuser who holds my living situation above my head as I don't work or have any other options... I don't know how long he will last as he seems to be withering quickly and becoming even more mean and disrespectful and unappreciative He loves to put me down and gets off on it. I dont understand how any father can do that.. he never is on my side or for me. But I always am for him? What do I do. I don't know anymore or why I even care about him, he wont spend anytime with me and if i try to it just seems he wants me to go or something ? He spends all his time now laying down feeling sorry for himself watching judge judy and self isolating. . Anymore after such horrendous things he says to me. When he was still capable of walking the dogs (he liked doing that every morning ) even during his beginning of cancer. He. NEver wanted me to come along. Would always make some excuse like he walks to slow or he just wants to be alone. I always Saif that didnt matter about pace and that I'll come to walk together and he would just say OK the. Take the dogs yourself i don't feel up to it.... it's so hurtful it's like I'm being abandoned all over again when I neber once did that to him. So much pain I feel on so many different levels i don't know what to do anymore. If I try to talk calml to him hr just immediately starts screaming and slamming doors it's like he's regressed into a unrational 6 year old. Like a complete melt down just from trying to calmly talk to him and shooes me away by slamming the door in my face

I've never felt worse in my life. I don't know what to do or how much more I can take. I just wanted him to be comfortable during this end but all he wants for me is to be uncomfortable it seems

Hi I’m 26 and am broken broken broken my dad 53 just got diagnosed with stage 4 and will have life long chemo. Does anyone have experience knowing what a best case scenario is for him doing life long chemo the doctor said years possibly, has anyone survived 10 years or more. I’m not married yet and want to know if he will be there to meet my wife when I find her and hold my babies when I have them. I’m so hurt I can’t feel my hands I’m dizzy all the time. I can’t do this please someone share good news if you have

My nails suck no matter what treatment or supplements I try. Yes, I have more serious issues, but fuck my nails!

Let me hear what your most trivial stage 4 complaint currently is (mine changes frequently).

I don't know how to deal. I posted Sunday about my dad having no more treatment options. All he is telling us is there is no time frame. One month? Two months? A year? I don't know. I have this ache in my hart. I can't cry, it's just this ache. I won't survive without my dad. I know this is weird to say as I am 36, but I will not be able to. My dad is my person. When I am down he swings by my office with a coffee and a hug. When he sees something silly or cute in a shop he buys it for me and give I as a little gift when I see him. When I went through my divorce and had no car he would drive me to work and we'd stop for a quick coffee and he would always cheer me up. The good night whatsapps, the thinking of you whatsapps, the hugs when I'm down. How will I make it through this. I don't think I will.

Please let me know if this is the incorrect sub. I'm sorry.

Hello. I am the youngest and am my dad's favorite and he is my favorite person on earth and the best dad ever. I can not wrap around my dad not being there. I have this deep ach, I can't cry. He has stage 4 metastatic lung cancer and his lymphnodes. He is very stoic an doesn't really want to talk about it and downplay it. They can't put a time on it at all. How do I keep him positive/ok/be there for him if I can't think of him not being here. He is 67 and I am 37

Hi! I'm Phalae, 38f with stage IV breast cancer. My first diagnosis of cancer was with stage IV so I am still grappling with life, death, and all of these terms used to describe our stage of cancer.

I'm currently on a great mix of drugs that are suppressing if not eliminating the tumors in my body. Certainly I feel better than without treatment - is that the goal now?

I understand the condition of cancer will never go away, but what's the point of being NED or eliminating tumors at this point? Does being NED or in remission improve quality of life or something?

I don't get it. Perhaps I need clarification on what it means to be a person being treated with the disease of cancer. Is it like being a diabetic - a lifelong condition controlled by medication?

I'm so confused; I know these meds are delaying the inevitable, is another goal to stretch out the time we have?

Also, if I know my cancer is incurable and inevitable, what is the point of these medications with ridiculous side effects and how do you measure "positive" progress?

Sorry, my post rambles like my mind right now. There's so much to process now that I can think clearly.

Thanks for reading!

My mom has metastatic breast cancer was stable on kisqali and letrozole for 6 months, latest scans have shown increased fdg uptake and 0.4mm growth in lymph nodes and 0.1 mm growth in primary breast tumor, doctor is recommending mastectomy. Is it really worth getting a mastectomy in stage 4 cancer ? Does it improve survival rate ? My mom doesn't want to do it but doctor is saying that it's the right time to do it because if it spreads again then we will lose this option as well.

Discharged from the hospital yesterday 4/13. Had my surgery on 4/9 where a large mass was removed along with the part of the colon it had grown into.

I was told I can be discharged once I am able to pass gas and have bowel movements. Well I did so here I am at home.

NSFW - Today 4/14, my bowel movements are every three hours. They’re liquid and goes between light and clear. I’m trying to drink what I put out to stay hydrated. Is this normal and when should I start looking for solid bowel movements?

Well, as the Title Implies. This is my final Goodbye. My Father lost the battle to his cancer this morning. But I'm not only here to mourn him, I am also here to say, If you have stage 4 cancer, that doesn't mean to give up, Keep fighting even when you can't fight no more. Keep fighting even when doctors give you a hard time, and Keep fighting and believing in yourself. I loved my father with all my heart. And I will stay strong for him. Please know that if anyone here is struggling. You can DM me. No one, can replace my dad, no matter how hard they try. Thank you everyone that supported me.

My mom was diagnosed around October of last year. Her diagnosis was extremely delayed and she has completely deteriorated. My father who has been her husband for the last 35 years is absolutely devastated and has been giving her at home hospice care. My uncle has been staying in the guest room and working remotely. I hold my own an hour away and have been visiting as much as possible with work. I was there Saturday. Tuesday morning was the last time she was awake. It's Thursday.. is this it?

Any thoughts, feedback, wisdom or advice is appreciated. I'm new to posting so I apologize if you lack information..I too lack information, but I am working on figuring it all out.

So my dad is facing a new issue. The Chemotherapy is no longer working in my Hometown, and we have been recommended to Dallas TX, for Clinical Trials. This isn't the Issue. The issue is now a tumor has grown on the Liver to cause Ascites in the Abdomen. He has metastatic disease which had spread to the Liver and Lungs, but liver is giving the most issues, but anyways. The Doctor over TeleMed has spoken to us stating the fact.

My Father's only hope is that. The Liver can either be somewhat controlled or given a Stent, to control the fluid. If that, he can be given a Clinical trial to try. If not, my father will be given treatment to slow the progress as much as possible. If those treatments do not work, he will be put on Hospice.

I just want to state this, I understand all cancer isnt treatable, I know all cancer isn't survivable, but that's not going to stop me from trying to help him live a somewhat normal life. I love my father and if nothing works, I rather him die a fighter 💙 I felt like I was scolded last time for being upset about the situation. I'm only 22years old, Why shouldn't I be upset at the world? I love my father. It feels good to vent and get an understanding.

Do raising AST/ALT always mean the liver tumors are growing?

(Triple neg BC, mets to Liver, F40)

I won’t say “I get what you are feeling”. Because someone who doesn’t have MBC, can never ever understand what it is to be in that position. But I want to try to be understood for my sister, who just got diagnosed with Mets in lungs and liver.

She is the most powerful woman I have ever seen in my life, and I want her to live more for herself than me. She deserves to a better life for the way she has been fighting with cancer. And I can sense that every MBC fighter’s family could feel these emotions.

I want words, stories and beliefs than facts and stats. We know that MBC has no cure, but ITS JUST NOT FAIR. So, I want to know your experience to make it atleast fathomable, if not fair.

Just when I find any post/blog about this, and when I read something like “I am fighting with MBC for 5 years and going strong”, it gives us so much hope. All this experience has made me more empathetic to MBC fighters and their families - always looking for this hope.

I respect y’all above & beyond. Let’s make this thread to gather all this hope!

Some information you can include based on what I feel people are seeking -

1. How long have you been fighting MBC? Hope you come back here every month and keep it updated
2. How aggressive is your cancer / type?
3. How do you feel / symptoms / mentally at the moment?
4. What treatment have been taking?

Hello all, this is my first ever post on reddit. My brother has stage 4 cancer, cholangiocarcinoma and metastatic adenocarcinoma. He has been through chemo at St. Lukes in Idaho and radiation for painful bony tumors. We have discovered cryoablation for palliative care for bony tumors (and for possible, but rare chance of systemic immune response), but they don't do that here. Does anyone know a cancer center or how to find one that would offer that in his case and would accept medicare? He also has VA benefits and can go to the VA.

So about 4 months ago, I talked about my Father having Stage 4 Colon cancer that is metastatic. For the last 4 days my dad was developing some type of bloating in the stomach. He has Tumors on the liver and cancerous lymph nodes in the lungs. What is more frustrating then anything is that the doctor only has him on only FolFiri. As a son, I'm concerned about about why he doesn't get Radiation or anything of that sort. I feel it isn't fair. I don't want my father to pass due to what feels unfair treatment. But anyways. My dad is Going to a Radiologist either 3/05/24 or 3/06/24 to get the fluid from his body drained. I am so frustrated for my father. Maybe someone can elaborate or give me tips. But I'm just super upset about the whole thing. Photo is from August of last year.