I just need to put it out there somewhere. I don’t wanna bother people with this. My dads been battling cancer for over a year now. He was doing well for a while and took a turn a few weeks ago. My mom didn’t tell me cause she thought he’d bounce back but he didn’t. I saw him yesterday and it was hard to look at him. He was always a big strong looking guy even in his older age. He was just… so frail looking. He’s gonna try a few more treatments but he’s not hopeful and he says he’s done fighting at his point. I always thought I’d get a few more years with him at least but now I don’t know how long I’ve got.

My dad was diagnosed with a rare Lymphnodic cancer, stage 4, at the age of 57. He died at 59. That was 3 years ago on October 2nd.

Unfortunately so, my brother was diagnosed with Testicular cancer earlier this year. He is 28 years old. He'll be 29 in December, and I hate how we are going through this roller coster again. But this time with my brother.

He started chemo a couple weeks ago and he just shaved his hair today. The odd thing is I haven't see him with this short of hair since he was 18 years old because his style is very "rockstar" in the sense of having longer hair and a beard.

What I'm getting at is, this sucks. And I don't want to lose my brother to the thing that killed who I thought was the strongest person alive. I love him so much and he's all the family I really have left other then my husband and 2 children. My mother is still alive but long story short my brother and I don't get along with her very well.

I guess I'm just trying to see what this post brings, wether that's positivity or someone else can relate and not feel alone.

This is no promo in the slightest he just came in my DMs and I really think his track about his mom is good. https://m.youtube.com/watch?v=JZytyaxlgmk

His user is u/rtaylor718

Hello. I am a 14yr old boy. Cancer has ravaged my life. I lost my grandma, dog, and now, one of my best friends. Last week he was diagnosed with brain cancer, when they found a malignant tumor. I have known this boy since before he could create memories physically, and now he's not even going to be able to make it to his 13th birthday. I see him for the final time tomorrow, I just wish I could say more. Fuck Cancer.

My aunt died to pancreatic cancer on September 21st 2024… on my 21st birthday. I can’t even pretend to be feel normal. The grief hits me in waves, I feel nothing but anger in between. Her name sounds like the most heinous vulgarity at times because I’m so hurt. Seeing her lying in her beautiful white casket sleeping, she looked like she was asleep and about to wake up and tell me to stop boo hooing. She was a woman who never minced her words. I can hear her now, “why you come here wearing that fake jewelry, you should be crying cuz it’s turning ya neck green.” 🤣🤣 God she was hilarious, I could go on for hours and hours.

I’m just so grateful to have had her for 21 years, I’ll miss her dearly. Rest in peace Aunt Elaine. You were the best philanthropist I’ve very met. Can yall put a Purple Heart 💜 in the comments for pancreatic cancer. 💜homegoing service

Its now been 6 months since my Gran died to cancer, which was there for almost a year. I didn't even see her before she passed for like 6 weeks and I just can't believe it happened. She was 77.

FUCK CANCER THIS BULLSHIT NEEDS TO STOP

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Reference (with link): Westerlinck P, Coucke P, Albert A. Development of a cancer risk model and mobile health application to inform the public about cancer risks and risk factors. Int J Med Inform. 2024 Sep;189:105503. doi: 10.1016/j.ijmedinf.2024.105503. Epub 2024 May 27. PMID: 38820648. (https://pubmed.ncbi.nlm.nih.gov/38820648/)  

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had to have my teeth removed for the aggressive regimen of chemo and radiation for my throat cancer. so i'm missing about 80% of my favorite foods.

thankfully i have paid up front 5900.00 to get dentures that are supposed to be ready at the end of october. i can't believe i'm actually jealous of people that can chew.

another thing is that a month before my diagnosis my kitty of 15 years, who i doted on like a spoiled child had to be put down because of a blot clot in her back legs. i was devastated, and hoped at some point to adopt another kitty, but with my life up in the air i can't even adopt a companion.

this is bullshit. i fucking hate this. even though my chemo so far after almost 1 cycle is tolerable so far my life is still in shambles, i'm subsisting on campbells tomato soup, protein drinks, senna tablets and fiber gummies that i can't even chew.

fuck this noise. thank you for coming to my ted talk.

My cousin is 17 and lives in Mexico. He got osteosarcoma a couple years ago and they eventually amputated his leg after having a knee replacement and the cancer came back. He got a full hip disarticulation.

Recently we learned that his cancer spread to his lungs and he had to be rushed to the hospital to have fluid in his lungs drained. His mom told my dad that there is no cure and nothing they can do. They stabilized him but my dad, brother, and I decided we wanted to go see him sooner rather than later to say goodbye and be there. My dad got there earlier when he was home and brought him crumbl cookies because he’d been talking about wanting to try them. On Monday he got rushed back to the hospital.

So we left on Wednesday and came back today. We saw him everyday, hung out in his room, talked to him though he couldn’t respond. I said bye on the second day and all he could manage was a wheeze. The next day he actually managed an “adios.” He just wanted to go home and be done with this.

Yesterday we saw him for the last time and he had a panic attack. I saw him suddenly shoot up gasping out of fear and the sensation that he couldn’t breathe. The way he cried and sobbed and wheezed for help and out of pure desperation to have them take his pain away. His mom was no help, she raised her voice and told him to just stop thinking and that he’s making his own anxiety worse. He had so much anxiety and couldn’t relax no matter what they gave him so they gave him something stronger to knock him out. He doesn’t know he’s dying. He’s SCARED. I held his hand and said I’ll bring him more crumbl cookies next time, and to take care of himself.

Today we were told that he got worse and was taken to the ICU. He’s sedated and intubated. I went to a brewery to meet my parents and ugly cried in the middle of it. We don’t think he’s going to come out of this. This is the same hospital his dad died in when he was just 2. The SAME FLOOR. THE SAME MONTH. My dad said he feels better knowing that he’s no longer in pain. I have no comfort from that because his last experience was fear and anxiety and pain. He just wanted to go home. He does not deserve this. He’s beautiful and timid but sweet and loving. I feel so helpless.

My dad said that he thinks he held on long enough to say goodbye. He says he hopes he knows he’s going to die so that he lets go easier. He says that my aunt prays for my uncle to come get him and help him let go.

I’ll never forget his face of fear and pain asking his mom what to do. I’ve never seen anyone actually dying and it was traumatic. I can’t stop crying thinking of how he felt and how his family feels now. I want his pain to go away.

I recently got a call back mammo and sonogram. I find this overwhelming and for the first time I want some support and compassion. I reached out to a few friends and got crickets in response. Nothing at all. Even normal texts after didn't mention the text I sent. I feel immensely alone as I have to face whatever this does or doesn't become. I spent today sad and crying. I am so alone.

Tldr fuck cancer and hug your loved ones and tell them you love them because you really never know when you'll never see them again.

I just got a text from my mom letting me know that a family friend, who has been battling cancer for years, has essentially made the decision to go off of any kind of support he's been on and just die on his own terms. He's been in the hospital for a month with fluid in his lungs and it sounds like he's just done with it all. His cancer isn't curable at this point, he's had a couple of major strokes in the last few months, he's lost SO much weight that I didn't even recognize him the last time I saw him. It's been an absolute disaster and I'm so sad for him and his family but I'm also glad that he's even able to make that decision for himself.

At the beginning of covid my step mom was diagnosed with LUNG cancer of all things. So far she's in remission and I've been so grateful that her treatment went as well as it did. In the last couple of years my grandmother has had two diagnoses and surgeries to remove both (skin and colon). As far as I've heard shes been fine after the surgeries and I'm also grateful for that. My aunt was also diagnosed with breast cancer in the last year and has been going through treatment for that which sounds like it's going well.

So now, I'm sitting here wondering to myself who tf gets to decide who has successful cancer treatments and who doesn't and I'm honestly just so fucking overwhelmed realizing just how MUCH cancer has been impacting the lives of my loved ones and even my own.

It's genuinely not fair and just FUCK CANCER.

I'm sorry if this doesn't make sense or it's all over the place or whatever but I genuinely just needed to get it off my chest, whether anyone reads or responds or not. I needed to scream into the void of the internet I guess.

What do optimist and pessimist both believe in?

That this cancer will be the last.

So going through my fifth cancer here (#3-4 were mainly treating symptoms with radiation though). I'm not an optimist anymore, that's for sure. ICEx2 behind me and high intensity treatment coming up. Wish me luck, maybe?

my grandfather passed away from prostate cancer 6 months ago after a 5 year long battle. im a bit late to the news but i thought it'd be worth sharing. he was an amazing person who always took me and my sister to the aquarium or the circus, i knew him for so long and i feel like i lost a part of me when he passed. fuck cancer, rest well Earnest o7

i have throat cancer, in order to start chemo i need several teeth extracted.

in order to get the oral surgery i need to be cleared for anesthesia

in order to be cleared for anesthesia i need a doctor to give me a letter stating i'm cleared for it. and i can't find a fucking doctor to do it.

i can only hope that someone will step up. in a 40 mile radius from my home i can't find anyone accepting new patients.

I think my dad has bladder cancer.

We have not been on good terms for years, he became enthralled with Qanon conspiracies around 2018 and since then we haven't spoken much. I also have some resentment from our relationship when I was young and his insane theories throughout Covid pushed me even further away.

Apparently since about 2018 he's had symptoms in line with bladder cancer. Mainly a frequent urge to pee but very little comes out. This morning he was peeing blood (which also happened a year ago, but he ignored it), so he went to the ER, got a CT scan and they saw two masses in his bladder (2cm x 4cm each) and swollen lymph nodes in his pelvis. Next step is a cystoscopy to determine if it's cancerous, but after researching his symptoms I have a hard time thinking it's not.

Not sure what I'm looking for with this post, mainly just wanted to vent I guess.

Just found out today my mom has breast cancer 😞 I’ve never been through this before, no one in my family have ever had cancer.

Starting off, I (33F) am recently in remission from Stage 3b colorectal cancer. Went through 5 months of chemo and two surgeries before NED. So I'm not coming here without my own experience. Sorry for the long rant, I just need to get this off of my chest and maybe get other people's POV to help me process.

I have an acquaintance who two years ago was diagnosed with stage 1 colorectal cancer, he was able to get surgery and is NED now. He was very public with every stage of his results, scans, procedure, posting online every step of the way. I wasn't the same, but I can see the positive things that come with the way he went about it. He provided a lot pf awareness and education to others by being public with his experience.

What frustrates me is how he's speaking for his wife's recent cancer diagnosis. His posts are always "We're going through chemo" "we'll be doing radiation" "Can't wait for us to be done with surgery and get back to normal". It rubs me the wrong way when people take on their loved ones diagnosis/experience as their own.

He never went through chemo, he never went through radiation. He's going through it with her in the sense that they are partners, but physically going through it is a whole different experience than being the loved one watching it. Both have their struggles and pains, but they are Not the same. She'll be going through something he won't be able to truly understand, so seeing him saying "we" got under my skin. It just frustrated me when seeing his diagnosis was all about "I" and hers is all about "We".

For my sanity I unfriended him so I won't see posts like that anymore. Am I crazy to be frustrated by this?

My aunt was diagnosed with Ovarian Cancer on 6/8/24. After 1 round of chemo she is in the ICU, they’ve stopped all cancer treatments, she’s intubated and it isn’t looking good for her. I’m so angry and this fucking sucks. I can’t fully wrap my head around everything that’s happening. It’s all happening so fast.

Can i just vent in here? So there is this little 9 year old girl i have been following for a long time on Instagram, and her journey is really heartbreaking. She was a really active kid, probably would have been a sports person.

But when she was 4, she was diagnosed with cancer. The doctors kept on saying it was a stomach bug and other insignificant problems, but then a big diagnosis revealed it was stage 4 neuroblastoma. And this type of cancer is very high risk and takes away lots of kids but i don't think enough research is being done on it.

So, they started treatment and as cancer treatments are, it was and still is very tough. Little breaks here and there were a blessing, a lot of highs and lows. Several times people advised her mom to give up, but the family is brave and Delilah clearly wants to live and is holding on to every little thread of life, it makes me question how i view life. It would be way too cruel to cut off her little life.

Recently though, she went on vacation to Hawaii with her family (dad, mom, little sister and little brother) and on the last day she got a line infection (caused by eating reheated rice - a bacteria i think). We all thought the infection would clear quickly, but it did not and she had to have surgery to change the feeding tube, and they put her on a double sort of port. She is very underweight, around 15 kg more or less, and that is an improvement because they put her on a feeding tube.

She started getting better again although still under chemo and frequent radiation, until this week she suddenly started having trouble breathing and short breaths. They said it could be a tumor, or effects of the treatments. She was moved to the ICU of course. We prayed so hard, she had a loving and supportive family and online community, and everyone was really worried.

Intubation was put on the table and it had to be done to help her breathe. But the medical team told her parents to call all relatives and friends, and that she might not wake up from that episode and if it was caused by the tumor then the tube might just have to be removed and they'd be given some time with her to say their goodbyes, because nothing else could be done.I feel so sorry for her young siblings... they love each other a lot.

As strong and miraculous as she is, she woke up and she was intubated. She could not speak but could do signals and understand everything. They had moved her from heavy to light sedation, and she was conscious.

Then suddenly, today her mom updated that yesterday she was getting worse and not better. She was breathing too hard and it was damaging her system. Our baby is really not doing well right now and she is fighting for her life. They had to paralyze and sedate her so that she would not use her lungs to breathe , but she is still holding on and wants to stay awake, so she is awake although she can't do much.

What is really triggering me now is her family. They have fought so hard and all we need is a miracle. A photo of her younger sister Summer Rain crying with her mom really causes me tears every time I see it.

Please everyone, may we pray for this family. They need all the help they can get. Please. Pray however you know, help however you can, they need you. They need us. Please... 🙏🏾 🙏🏾 🙏🏾. Thank you.

If anyone would like updates, please tell me. Oh and you can get them on tiktok and Instagram by @Sweethippie92, or Samantha Loya which is her mother's name, or just hashing Delilahlove or delilahlovestrong.

#FUCKCANCER

Just got news my mom with lung and brain cancer is moving on to the third and final option for chemo. Other 2 no longer work. They want to biopsy a lung tumor for markers since it's close to the surface. But idk what good that'll do. I don't want this for her. She doesn't deserve this fate. She's such a kind woman. The closest thing to a saint I've ever met. It hurts me. It kills me. It tears me apart that she's going through this and there's NOTHING I can do to help. There's no comfort I can give her.

It’s come back and aggressively so, and she is planning to exit on her own terms and not fight this time. I’m trying to be supportive but I am gutted and I don’t know how to think or feel.

1 fucking year and it's back, my father is probably the best fucking human being I know. The mother fucking piece of shit is back, the funny thing is it's one of the "curable" ones (hodgkins), he really just went for his 6 month check up, found a little something in his neck, doctor said we'd check it in 6 months but thankfully my aunt insisted (she is a resident there) and we found it suber early, so some positive.... Ik the shit is treatable but the making treatment breaks you so much, he hasn't even reacted to it just keeping a strong face for me and my mother, mum has been a mess but is trying to hold it together for me, I hate this fucking piece of shit

That’s it

So, after losing my mom to breast cancer 10 years ago I just got news that my dad has late stage squamous cell cancer metastasizing throughout his body. He doesn't want to go through radiation or chemotherapy after seeing what my mom went through and is choosing to get out of the hospital and go into hospice care. I am so torn, but I understand. I just want him to be comfortable and at home. I hate the thought of losing him and my daughters not having a grandpa, but I don't want him to suffer either. FUCK CANCER!

I just found out another person somewhat close to me is going to be taken by cancer in under a year. And that’s the best case scenario, if they fight it aggressively. Sorry - just feeling sad. Fuck cancer.

She left school for a year for treatment and lost all her hair. It was horrible and so many times she thought she was gonna die and called me in the middle of the night freaking out. We’re only 16. She then got diagnosed with depression and it was horrible but she got rid of it recently and started growing her hair back

Now the cancer has come back. Her hair’s all gonna fall out and now the whole last year has been pointless and she’s never gonna come back to school and she could die

cancer is actually the fucking worst I miss her so much

The My Health Journey App is designed to help children between the ages of 5-15 navigate their health journey. Hoffy, the Sloth serves as a companion from diagnosis to post-treatment care. The app features interactive scenes and mini-games, helping families explore challenges such as the first doctor’s visit, taking a blood sample and managing hair loss during chemotherapy.

If you're interested in delving deeper into the BTF app and understanding how its tailored to support children throughout their treatment journey, feel free to click on the following link to explore our website: BTF App Details.

For more updates, follow us on Instagram (https://www.instagram.com/thebraintumorfoundation/) and Facebook (Brain Tumor Foundation)