Hello, I'm wondering if anyone has experience of their hip being bone on bone OA but not wanting surgery and, if so, how did you cope?

I'm 56 years old. Started to get inner thigh/groin pain after a challenging walking holiday two years ago and, for a year (without any tests) was diagnosed with hip flexor tendinopathy. However physio made no difference and eventually, a year ago, x-ray showed bone on bone OA.

Had a steroid injection in June 2024 which gave a little relief and some more flexibility, but not much.

I'm now told that more injections aren't advised as the risk of infection outweighs the benefits for me and I should plan on having a hip replacement. The timing of that is my call... the orthopaedic doctor said he'd send me for one now, if I want.

I hear about people having surgery when they're in so much pain with limited mobility that they can barely leave the house. My situation isn't as bad as that. My hip joint is restricted and I have pain on movement, but can walk for an hour or so before I must stop. I feel like I should try to hold on until I'm at least 60 for the surgery, but my family think surgery would be a wonder cure and urge me to have it.

Has anyone had a dilemma about when to get surgery and, if you decided to wait, what worked best to help you cope? I'm swimming and taking ibuprofen for flare ups.

Thanks!

Conflicting info on the web , I have bone on bone knees .. got one zilretta injection in each knee lasted a little over three months . I need to put off surgery until summer 2026 … question will repeated injections make knees worse or just at one point won’t work at all one day . I think gel injections are best? Also any idea which ones work best . Thank you

I’m pain free (knock on wood). I have not attempted any exercise yet

Hope this helps you guys. I’m not associated with any clinics. Providers are easy to find using a google search. Good luck to all.

I've had some shots in my shoulders that seemed to do absolutely nothing for the inflammation, stiffness, or pain.

I'm starting a series of shots in my back now. I don't know if it's the same "stuff" that went into my shoulders, but I don't have high hopes.

The doctor said that the next step is ablation or something. Maybe that will be effective...

Curious if anyone has ever had BMAC injected into the bone, to help with bone marrow edema healing? I had it just over two weeks ago (femur and tibia, as well as into the joint) and am still experiencing pain/throbbing from the bone, especially after sitting, which seems to be worse than pre injection..

In case anyone is considering this procedure, I’d definitely recommend sedation/general anaesthetic - I only had local in the tissue and it was excruciating!

So I am getting to the point where my arthritis in my ankles and knees and hip and back and spine is limiting the length of time that I can walk and stand. I have never gotten in one of the mobility carts in the stores, and I’m afraid that because of my limited vision, I have macular degeneration that I will be all over the place I don’t drive because of my vision…are they , difficult to maneuver… speed ,turns that kind of thing?

Hi, I'm 17 and have had osteoarthritis diagnosed since 14 but have been affected for longer. Used to do more physical activity such as karate, gym and walking but got told to stop as it was accelerating the thritis, since I have stopped doing any physical activity, im scared to even walk but I've started to pick it up again in hopes of building muscle around hips. I had a shift for work yesterday which was 4 hours waitressing and next day I can't move, cant dress myself and can barely use the loo, both parents have a form of arthritis (mum same and dad different) they think I should get a hip replacements (or change doctor as he keeps saying I'm "cured") and my doctor said a long time ago I could if it's really bad but I really don't want to and I'm not sure if he will agree anymore, there isn't a constant pain and it only gets bad if it flares which I can feel coming so can take painkillers beforehand. I'm open to anything that will help, but I'm also wondering if I should be doing more exercise as maybe it's the muscle around that's weak or maybe I have something else that's causing the pain? Any help would be greatly appreciated!! :)

I couldn't find any docs indicating that it's really in phase 3. Just articles alluding to it being in phase 3...I emailed merck and did not hear back.

Anyone out there had treatment for osteoarthritis in the hip? I'm getting steroid injections and they're only helping so much. Has anyone had hip arterial embolization? I am intrigued but hesitant of this relatively new procedure 45f in NC (USA)

I was diagnosed with osteoarthritis in my jaw after an MRI. I’ve had some pain (comes & goes but is manageable), stiffness/lack of range of motion, ear issues & crepitus for over a year now. Had a cone beam CT that came back normal but symptoms kept getting worse & I pushed for an MRI & that’s where they found OA which makes sense with my symptoms. Left side is worse, but it is bilateral.

However, there doesn’t seem to be a known cause for me. I don’t clench or grind my teeth (& have no signs on my teeth of doing this subconsciously) & the MRI said the discs in my jaw are normal & so is the spacing.

Anyone have unexplained osteoarthritis? Or heard of any reason you would randomly start developing it bilaterally in smaller joints? I did have some other weird issues years ago & got autoimmune testing done-didn’t come back positive for anything & also seems like if this was RA would be very obvious on the scans.

The doctors/dentist I have seen about this have basically shrugged at me & don’t really seem to care to help me find answers.

I have osteoarthritis in my hip and will likely get a hip replacement but for the past few weeks have had extreme pain in my correspondent knee. It is swollen and clicks/pops when i use it to the point where I can barely walk. It is worse at night and tolerable mid-afternoon.

An xray showed my knees are fine and told it is likely referred pain.

I have been referred for an MRI on my hip but not my knee. Has anyone experienced this and what treatment is likely?

Hey! I just got my MRI report back and was diagnosed with OA in my knee. With being only 21 this worries me quite a bit about my future. I haven’t actually spoke with anyone yet and just read the report. What are some options for pain relief? I can’t do corticosteroids because of a reaction in the past. I’ve tried Diclofenac and Ibuprofen but they don’t even touch the pain at all. Is there things I can do to prevent this from worsening and what kind of treatments plans are available?

Hello. Long story as short as possible, I have had symptoms which line up with disc herniation for 30+ months. Lower back pain that dull aches 24/7, sciatic pain that stops at the knee that is deep, sharp aching at rest and late in the day. I cannot sit for long, cannot stand for long, and cannot walk for long. I get electric shock feelings when leaning backwards. My day starts with 2/10 pain, and usually ends with a 5-7, but at worst climbs to 8-9/10.

I received my MRI back, and have Mild OA L4-L5 and L5-S1. Minimal posterior discal prominence at L4-L5. No neuroforminal compromises.

I have spoken to my GP, who said my MRI is fantastic as far as they go and don’t match my pain for how “mild” my report was. Healthcare is free in my region, and you need to fight tooth and nail to receive basic treatment. I do have a follow up with someone who specializes in musculoskeletal issues, but I am not hopeful.

I have tried physio with very minimal results, helps my back pain but makes my sciatica worse and spread to my foot. Massage and acupuncture help, but very little. Chiropractors are not willing to move forward with me.

What else can I do? I feel like I am going crazy and no one is willing to truly help me. Are there others who have had fairly clean “mild” MRI’s and live life in pain? I am only 27 and frequently have days where I feel I cannot do tasks essential to living a full life.

Is there anyone out there with end stage osteoarthritis and in your 50's? I've had both hips and left shoulder replaced, and it's really hard to wrap my head around it.

Has anyone heard of this drug? Sooo interesting that it also controls glutamate - and I am BEYOND sensitive to glutamate in food, MSG, boullion, gelatin, hydrolysed plant protein, etc. And have debilitating osteoporosis in my hands. Misdiagnosed with RA for a decade - no wonder Biologics never worked.

https://pubmed.ncbi.nlm.nih.gov/39280634/#:~:text=The%20protective%20effects%20of%20memantine,for%20the%20treatment%20of%20OA.

https://youtu.be/fzs6OzWx9UE?si=PYcXdBJ2WxaEMDeH

In this video, I share how my zeal for running, my ignorance when it came to injury management, and the advice of a quack podiatrist caused whole-body osteoarthritis by means of a disuse-overuse mechanism when I was 23 years old.

Anyone get any REAL relief with pain meds ? I am thinking of not going through with TKR on both knees. I also have OA in ankles, hips, spine . I as of yet only have Celebrex had a few tramadol 50 mg but they didn’t even touch my pain . some days I can’t even stand up more than 10 minutes. It’s so frustrating.

Hello!

Im 25F and was recently diagnosed with severe osteoarthritis in my left knee. I’ve always been active, I went to the gym regularly and did sports like rock climbing, skiing, kickboxing, hiking, and more. I have always have had problems with this knee and just braced it and recovered when needed, never questioned it much. This past year it’s worsened significantly, to the point where I could barely walk, and going up/down stairs was impossible. I recently got an xray and got my diagnosis. I got a hyaluronic injection almost 4 weeks ago now and haven’t noticed it helping. I’ve also been doing physio therapy, I go every two weeks and do my exercises daily, at least what I can, some days are easier than others. It’s been 5 weeks since I started physio and still can’t do stairs at all.

Basically just looking for any/all advice, and to hear others journeys with this. I’ve been feeling extremely frustrated at my limited ability, especially when I compare to how active I used to be. I’m nervous about the possibility of needing a knee replacement. But feel that it’s a probability since I’m already at the “severe” stage at the age of 25. Trying to stay positive, but would love to hear from others. :)

Edit: I’ve also been eating an anti-inflammatory diet since getting the news - but this wasn’t a big change from how I was already eating prior to

My mom has severe OA and I don’t know how what to do.

Anyone successfully use SAM-e to control or eliminate pain and symptoms?

I’m having a hip replacement in two months so had to stop steroid shots. Is heat or ice best for pain prevention-surgery?

Recently, a company called TissueGene conducted phase 3 clinical trials for osteoarthritis

Are there any participants who participated in the clinical trial?

If so, I'd like to know what your current status is

I've suspected osteoarthritis for a while as every woman on my mums side suffers from it. It's mostly my hands but I think I can feel it starting in my knees. I'm scared, I don't want to lose the use of my hands or be in constant pain. Just had bloods done for inflammation and they came back normal which I expected as it doesn't show up in bloods. Getting a phone call on Tues from the docs to work out what's next.

Anyone have degenerative disc disease and arthritis throughout their spine scheduled for a total hip replacement? I am concerned with how the recovery is going to be. I have sciatica down both legs and my back is very unstable. There is no way I can fix my back before I get my hip done. I have had back problems for 30 years. Would love to hear from someone who has a really bad back and then went and had a hip done

My mom is 65 yr old and has bone on bone osteoarthritis, she has a hard time walking and can barely walk for a mile without support. Also has hard time with steps. Is surgery the only option? Any side effects we should be aware of?

Response from my Spinal Dr:

I am now researching a good spine PT place. I'm a 51 year old male and dealing with significant pain that is messing w my mental health and could use some success stories:

“Yes, your lumbar imaging confirms osteoarthritis in facet joints in your low back. I will always recommend PT for low back pain and arthritis. If you need a new referral please let me know. In general follow-up with me would occur if there was no improvement with PT”

Thank you everyone

Hi y'all,

I'm a student in Boston who's exploring innovative solutions for managing osteoarthritis -- but struggling to find people firsthand who are experiencing it. I know this forum typically doesn’t appreciate surveys, so I’m hoping to have some genuine conversations instead.

Here are a few topics I'm particularly interested in discussing:

• The level of education around diet and nutrition have you received from your doctors or healthcare providers?
• Experiences with probiotics in managing osteoarthritis symptoms
• Thoughts on the connection between diet, gut health, and osteoarthritis
• Interest in a product that combines probiotics with other beneficial ingredients for joint health

If you’re willing to share your experiences in a brief chat, please feel free to reply here or send me a direct message. I would really-- REALLY appreciate it. <3

anybody hear good reports with red light therapy for knee osteoarthritis to reduce inflammation and pain? my dad recently tried the joovv panel on top of his knee for around 20 minutes. he reported some knee pain the next day. never had any soreness using the red light on other body areas before. thinking it might be better to use shorter time duration to avoid soreness due to lower reported knee blood supply. would it be better to use panel on the sides of knee instead of front and back? would it be better to use panel for only 5 minute duration on each side of knee daily? better to keep panel at least 6 inches away from knee? thanks for any info you have to help with issue.

Cartilage in both toes joints are gone. my shoulders hurt when sleeping on the side and sometimes in some arm position. Right knee also starting to feel pain while walking but slight and bearable.

Reading about OA all over the internet, I am now extremely depressed about not being able to be as fit as before ever. And especially about this disease which is going to get worse over time and I will be in constant pain in the future and, most importantly, that I may not be able to walk, making me unable to provide for my family.

I would appreciate any advice, guidance, tips on how to recover or prevent the progression. Thank you.