/r/migraine

Photograph via snooOG

A community of headache disease sufferers. Whether migraines, cluster headaches, or whatever head pain you experience. We support each other, and spread knowledge about our various conditions.


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There's also a Lemmy community!



Rules

Follow these, and everyone will be happy. Don't and we'll all be sad.

A more complete list of rules can be found here.

  • Always talk with your doctor first.
  • No medical advice.
  • Be respectful.
  • No surveys without pre-approval.
  • Cite your sources if possible.
  • Tag any image that may trigger as NSFW.

If you see a post that may be violating a rule, report it and select the appropriate rule.

Self Promotion rules

We get a lot of blog posts and self promotion content. In response, all self promoters must follow reddits' guidelines for self promotion. We reserve the right to remove content from users with insufficient community participation, excessive links/posts, or content better suited for ads. Sometimes you just need to support reddit and pay for that ad space instead!


The goal of this subreddit is for members/users to ask/ answer migraine-related questions in order to help one another understand the disease better. You may give your opinion but please do not give medical advice; it is a violation of the reddit terms of service to do so. Personal stories and support are welcome. Scientific proof/data is welcome but please cite the proper sources.


Resources

Crisis resources

You can find a list of crisis hotlines on this wiki. There's also an FAQ about what to expect when calling.

For medical help, the emergency room is always the first choice. Most insurance offers nurse help lines as well.


Want something added here? Message the moderators!

/r/migraine

155,703 Subscribers

3

Fl-41 CAUSED silent migraine.!?!?!

So the other day I ended up with a visual aura no pain after. It scared the CRAP out of me and had my mother call ems. Blood work, ct and urine came back good aside from my severe allergies. The thing is. I bought some FL-41 glasses cause I’ve been dealing with off balance and was wondering if I was dealing with vestibular migraines. I’m waiting for insurance to get into an ent. But I put those glasses on, and 5 mins later, started the visual aura. It started with a small spot in my vision, that progressively got bigger then my peripherals got blurred, I could read anything. It was scary as hell. Is it possible that those glasses triggered it!?

2 Comments
2024/11/10
21:18 UTC

26

False alarm

I woke up to the smell of burning wood . I turned off the furnace. It smelled a lot like gas. Turned off the gas called the fire department. They came checked everything out. Everything is fine. Except BP was 210/125. So I have a new migraine clue. Smelling something burning when it's not. I've had a house fire. It was exactly that odor. I'm fine wasted 5 fire peoples time however my dog and I are safe. He said he's never been to a home with such a super clean furnace 💯

4 Comments
2024/11/10
20:30 UTC

2

Nurtec stopped working - should I try Ubrelvy?

I had good success with Nurtec getting rid of 90% of my migraines for over a year. The last month it’s almost entirely stopped working. I’ve seen others say this happened to them too. Did anybody switch to Ubrelvy, and did it work? Will Nurtec maybe work again if I take a break?

Thankfully triptans still work, but I get around 15 migraines a month so having the Nurtec to mix in really helped avoid rebounds.

6 Comments
2024/11/10
19:57 UTC

0

Fainting after one dose of Maxalt/Rizitriptan

Has this ever happened to anyone? I’ve been on Maxalt for 5 years and never experienced this. I had one and a half alcoholic drinks and fainted about 4 hours after taking 10 mg of Maxalt.

I have fainting problems regardless, but usually there’s a reason (like hitting my elbow or stubbing my toe, standing up too fast, etc) and more time from feeling dizzy to fainting. This was much more sudden than normal.

I’ve mixed alcohol and Maxalt before and never had issues, but I can’t think of any other reasons for my fainting spell. DAE experience this?

1 Comment
2024/11/10
19:52 UTC

1

Need a bit of a vent

I'm so pissed with my mother atm.

I've had a really bad stretch with migraines lately. The air pressure in the UK has been unusually high for the last few weeks. I've not had a pain free day in 2, maybe 3 weeks, it's all a bit blurred.

My mother gets migraines, but where mine are chronic, hers are more the tune of 2-3 a year. Which means that she has no sympathy.

Yesterday I told her my head was still hurting. She say a generic "goto the doctor". I told her that it was the weather, I'm already on metorolol and sumatriptan, the dr can't do anything unless they change the weather because the pressure is high. As soon as I mentioned that it was 1027mbar here, she snapped at me "stop looking at it!".

Today I had an OK, day, went to the cinema with friends. On the way home was feeling a bit rough, but I did my usual "on the way home" check in call. She's at my grans at the moment because my gran is recovering from a stroke. She goes "you could stop in on the way home if you want". Now, I was feeling rough, so I didn't want to.

But as she was so unsympathetic yesterday, I just went "oh, I went home on autopilot", because I didn't want another dismissive "you always have a headache" (no shit, I inherited migraines from you, there's literally zero history of it on dad's side). Still doesn't help. I get a barrage of messages about how I'm mean to my gran for not going up. It's Sunday night, I've got work in the morning, I'm tired and my head hurts. My other relatives visit way less than I do, once a month instead of once or twice a week, but it's only me she does this to.

Not really expecting advice, just needed to vent.

0 Comments
2024/11/10
19:48 UTC

1

Tubal Ligation and Migraines?

Hi guys, so like the title says, I've got questions. My migraines largely stem from my hormones, and while I might get the odd migraine here and there throughout the week, when I'm on my period I get a long migraine that can last 8-10 days and makes me absolutely miserable.

In light the most recent US political vote, I'm considering having my tubes tied for my own safety. If abortion and birth control become illegal in the entirety of the US, then my migraines which I use my birth control to manage are going to get so much worse.

Im obviously going to be consulting with my doctor before making any serious medical decisions, however I'm very curious about the experienced of my peers. Do any women have experience with tubal ligation? Did it makes your migraines worse or better? My wife and I plan to do IVF if we end up having any children, which according to the internet tubal ligation will not effect. So that's not a concern.

As a side note, what precautions would/are you taking on the event you are no longer able to get your medication?

11 Comments
2024/11/10
19:01 UTC

55

AIO

Am I overreacting that I have a massive migraine / nausea and my boyfriend is PISSED! I think he’s being a huge Titty baby!! He was supposed to go to a pokemon event today and I was supposed to drive him Bc he gets anxiety driving in larger cities but obviously I can’t drive bc of the pain/sensitivity to light! Aio that his behavior makes me question our wholllle relationship??

58 Comments
2024/11/10
18:42 UTC

2

Caffeine and other questions for a newby

So how much caffeine is usually helpful? I don’t drink coffee on a regular basis and see conflicting info around caffeine and migraines. My migraine has been lingering for several days now and I’ve been trying to kill it before the work week starts (even got a really focused massage last night). Wonder if a cup of decaf (20-30 mg caffeine) might help? I also have half caffeine, though caffeine can make me feel a little nauseous.

Also I was curious about some other things… On a day like today, where it’s primarily lingering and I can only feel it slightly start to make its presence with increasing activity or light exposure, would you treat with pain medication? I did take naproxen, but that hasn’t changed much. At what point would you take it or other pain meds? I’m really trying to prioritize when I take pain meds to avoid MOH…

Also I met with a neurologist for the first time on Tuesday, and she said it probably wasn’t allergies effecting it and that I could skip the daily Zyrtec I had been taking. This makes me a little nervous, but she said it didn’t seem like it was a sinus thing but I thought migraines could be caused by allergies and my mom always had that connection and she is the one who suggested I take Zyrtec.

Just started nortriptyline a few days ago and counting the days til I get Botox in February

I’m only 26, and my migraines only started becoming so frequent this year, so tips greatly appreciated. Things you wish you knew when you were starting out with these issues. For me it’s definitely connected to emotional stress, but there are other causes too.

2 Comments
2024/11/10
18:41 UTC

1

Neck massager?

My neck pain with my migraines is getting out of control. I just started seeing a physical therapist which I'm sure will help in the long run but I need something to bring some relief in the short term. Has anyone has any luck with a neck massager? I've looked online and I'm just not sure your typical neck massager will get deep enough to where the pain is or if it will be just very surface level. All recommendations and ideas welcome, even non massager ideas. Thanks in advance!

4 Comments
2024/11/10
18:25 UTC

18

Migraines from birth control

Honestly just sick of feeling like I have to choose between not getting pregnant and not getting constant migraines. I’m on the pill, one of the lowest estrogen levels that I’m aware of (literally called Lo-loestrin). I can’t seem to find anything about other people experiencing this, but I just found this sub so maybe someone else has. Woke up again to that nauseating throbbing on the right side of my head… ugh.

80 Comments
2024/11/10
17:37 UTC

1

Appointment with Neurologist this week

I have regular, but not chronic, migraines and have for over 20 years. I never was very good at tracking. A few years ago I met with a neurologist who recommended a few medications, and though I think they help I still never tracked very well.

For the past 6 months I have been tracking well- I get 1 - 2 migraines a week with a week of multiple migraines during my period. Since taking nortriptyline daily and sumatriptan as an emergency med, my average time with a migraine has gone down. I have also almost entirely stopped taking NSAIDs for headaches. I feel like I'm having fewer headaches overall but they are all more acute.

I'm going back to the neurologist this week. It takes about 6 months to get an appointment here, and every time it is with a new doctor. I want to make sure that I'm getting all that I can out of this appointment. Does anyone have advice for things I should make sure to cover in this appointment?

I want to talk about medication management, options for menstrual migraines, discussing my prodromal symptoms, how to prevent exercise induced migraines... am I missing topics?

10 Comments
2024/11/10
15:43 UTC

23

2 weeks migraine free

just a rant.

started amitriptyline the beginning of october. from the end of october til friday i was migraine free!!! it felt so amazing! then my streak ended with the worst migraine i’ve had in a while. had to take 2 ubrelvy and a rizatriptan and sleep it off.

when you go so long without one you almost forget what it feels like. it’s a reminder that this truly is a lifelong struggle.

anyways, here’s to being hopeful for 2 more weeks migraine attack free!

4 Comments
2024/11/10
14:55 UTC

1

Amitriptyline HCL 10mg Bad side effects

So my girlfriend started taking this drug about a week ago for chronic migraines, everything seemed to be ok so far until this morning she woke up extremely dizzy and disoriented then proceeded to vomit for about 30 minutes on and off. My question is, is this normal and does it get better or should she seek medical attention or stop taking the drug.

3 Comments
2024/11/10
14:12 UTC

1

Patterns

Does anyone else have issues with looking at patterns even when they AREN'T having an actual migraine?

I have a really hard time looking at like small checker patterns or stripes. They make my eyes feel funny. I also find it when I look out a screen in a window it makes my eyes feel weird.

Not sure if related to migraine or not ahha

0 Comments
2024/11/09
18:43 UTC

28

It’s feel like a headache in my nose? What is this?

I’m wondering if anyone else gets this.

I get pain through my nose bridge (usually only one side) that can travel up into the inside of my eyebrows. It could be sinus pain, but I don’t have any congestion or pressure in my sinuses along my cheek. It almost feels like headache pain but Advil doesn’t touch it. Has anyone else dealt with this? What is it? How can I treat it?

33 Comments
2024/11/10
13:50 UTC

15

Is there any supplements that help with migraines and headaches?

Vitamins, Minerals, etc.

59 Comments
2024/11/10
13:20 UTC

3

Disability anyone?

With the amount of migraines I have, downtime, recovery/ downtime I have, i am thinking I should be on disability. Is anyone here on it and how did you do it?

11 Comments
2024/11/10
13:04 UTC

1

Opinions?

I get a headache at night , it is dull and constant and it always comes with a depressive mood shift. When I wake up in the morning it’s gone.

1 Comment
2024/11/10
12:10 UTC

3

Heat, exercise, rant :(

It’s coming into summer here in Aus and I feel pretty anxious. My migraines are majorly triggered by heat and a wide range of physical activity (among other things).

My headaches > migraines are so sensitive to heat, yesterday was a sunny day and I spent it in the park with some friends for maybe 3 hours and I ended up with a headache that was 100% bound to turn into a migraine. I can’t sit in a sauna, I can’t enjoy a hot bath for too long before it seems to trigger a migraine. I can’t go for bushwalks or hikes anymore, I go to the river or beach and I end the day in bed with the curtains drawn and a washcloth over my eyes and a bucket next to my bed. It almost feels like heatstroke sometimes.

I was initially diagnosed with IIH (idiopathic intracranial hypertension) but ended up seeking a new neuro as the first one was just kind of an a-hole and the second seemed to think that because I wasn’t visibly overweight and admitted to being a little nervous about my lumbar puncture (that can apparently increase the reading of the pressure, mine was still over 30cm, I think even close to 35) it wasn’t likely that I had IIH. I’m not sure what else it could be though, all signs point to that. I’ve moved to a new city and can’t access the neurologist I’ve been referred to until June 2025, which was a kick in the guts. I was hoping that a new set of eyes would help shine a bit of hope. It just feels more and more debilitating as it goes on.

Does anyone here have migraines that are predominantly triggered by heat and exercise? Have you come out the other side? I’m on 80mg propranolol twice a day, 100mg topamax twice a day and maxalt PRN. Sorry if this is a bit all over the place I’m fighting off a migraine as we speak lol

1 Comment
2024/11/10
11:56 UTC

6

i can feel my prodrome coming in. i am also DJing at a rave in 12 hours. i wish i was joking. what do i do?

haven't had a migraine in nearly 3 weeks, my brain decided that today is the day. yesterday i had a record low blood pressure (92/55 mmHg), i could already feel some initial pains, and even one hard icepick strike right above my left ear, but i mostly slept it off, apart from some dull aches in my occipital and left temporal area now. i can still feel the general prodrome vibe, and it's rancid, considering i'm playing at a techno party in 12 hours. let me make it clear that i absolutely cannot cancel. i am co-organizer with a friend of mine, who can't pull everything off on her own, as she is already under a lot of strain in regards to the event.

i will have to stand up straight with my neck bent down for over an hour, both of which are some of my biggest triggers. not to mention the loud music and flashing lights aspect. i can get a chair to sit on stage probably, but i will still have to go to the venue to help with the preparations, and because of a booking conflict, we will only have about half an hour to put out all our gear and decorations, so that will be even more stress, but that's besides the main point. i have some electrolytes, i have sumatriptan, but it usually just tends to worsen my pain. i'm already on 5mg propranolol, magnesium, b6, and b12.

so i'm asking you, for your own best preventative/abortive treatments and ideas, literally just anything at all i can do in these 12 hours to make sure i don't get a migraine on stage. maybe some exercises, maybe some special food, i don't know. thanks.

10 Comments
2024/11/10
09:23 UTC

120

I had my first pain free day in 11 months. I’m so freakin HAPPY!!!

Per title. I went chronic on 18 December last year with a never-ending status migraine. To say this year has been hell is an understatement.

Today, I woke up without pain. I went to my local farmers markets, visited a wonderful friend, went for a swim (I’m in Australia and it is HOT right now), played with my doggos and then had dinner with my folks. On a pain day, I would have had to avoid or cut those activities short.

I know the pain WILL come back ... but today could not have been more perfect.  Just wanted to share b/c no one IRL would quite understand 😊

21 Comments
2024/11/10
09:13 UTC

2

Low dose of Topamax?

Has anyone had success preventing migraines on a low dose of Topamax? I started on 25mg in the morning for two weeks, then a few days ago added another 25mg at night, but the neurologist didn't say anything about increasing the dose further. My follow-up appointment is at the end of January so maybe he'll see how I'm doing and increase it then if it's not working and I don't have a lot of side effects. It just seems like a long time to go at such a low dose (therapeutic dose is more like 100mg a day from what I have read.)

9 Comments
2024/11/10
08:38 UTC

1

Caved

The migraine got so bad I had to take 60mg of Prednisone. Now it's nearly one and I can't sleep.

1 Comment
2024/11/10
08:13 UTC

2

Have any of you tried ascomp before?

Wondering what people's results were

0 Comments
2024/11/10
07:26 UTC

6

Migraine cocktails at the ER don’t work for me, should I still go?

I have chronic migraines and daily headaches and have been in daily pain for 3+ months. About 6 days ago a really intense migraine set in and I’ve not been able to get back to normal. Really consistent intense pain and triptans, nurtec, otc pain killers don’t touch it. I’ve missed four days of work in a week and I’m really struggling, so I’m considering going to the ER. Problem is I’ve gotten a migraine cocktail twice and it didn’t get rid of it. It just made me so tired and out of it that it masked the pain enough for me to come home and wake up a few hours later with the same pain. Should I go? Any advice is appreciated.

14 Comments
2024/11/10
05:35 UTC

5

Is anyone had a migraine in conjunction with an underlying illness?

I was out last night at a social function and we went to a Korean chicken spot to eat. They ordered soy and honey flavored chicken and I was like okay whatever. I come back late wake up with a growing migraine affecting me in three different places on my head and one specifically on the closest region of my neck to my ear just bulging.

Long story short I knew I had some bloating and seemed as if when I felt I had awful breath and I was like what the hell is going on. Next thing I realize is that my stomach feels uneasy and I'm pretty gassy. But the migraine was so terrible I had to run up to the streets of my local massage therapist and they had to grind into my shoulders and my head just to stop the pain from getting even worse.

If you guys ever experienced something similar to this please provide some insight and what you've done to heal. Thank you

0 Comments
2024/11/10
05:20 UTC

8

Has anyone ever had mold problems in a rental and do you have any idea what legal duty the landlord has to fix mold?

2 Comments
2024/11/10
04:56 UTC

110

If you haven't tried it....

I would absolutely BEG you to try cutting out sugar.

My headaches/migraines are primarily food and light triggered, but cutting out DAILY sugar intake and only indulging occasionally (roughly one small treat a week), controls 90% of my migraines and dials the intensity way down when they do sneak through. Sugar is a terrible inflammatory and if you're prone to headaches already, it's not doing you any favour's. I've had so much success with just cutting out sugar I'd recommend everyone on here try it for a month, just to see if it could help ease the suffering.

130 Comments
2024/11/10
04:32 UTC

3

How painful are rebound headaches?

So I've been taking ibuprofen/advil every day for a few years to keep most of the pain at bay, but I know this is really bad and I'm going to try stop taking them (I'm 2 weeks into pizotifen so hoping that helps)

How will I know what's migraine and what's rebound?

As its been years I have no clue what's what anymore

4 Comments
2024/11/10
04:14 UTC

5

Answers from an endocrinologist?

I've been through 3 neuros in the last 6 years because they all keep leaving the specialty clinic I've been going to. I've had imaging and been through about 8 different med combinations so far with very little luck. I've been considering asking for a referral to an endo and am curious if anyone has gone that route and actually found any answers to what's causing your migraines?

3 Comments
2024/11/10
03:53 UTC

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