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So i got botox for my migraines after years of struggling with them and more recently i had a headache for 2 months straight. it’s been about 2 weeks since the injection and im feeling a lot better and have actually had a few days without any headaches. the few days after my injection i did have headaches specifically around my face and eyes, my face felt super weird after but has since gotten better. one thing that confuses me still is why my head still feels so weird, specifically the back of my neck. i got injections along the back of my neck and head and my head just feels like off idk how to describe it. it feels like heavy and loose and i have to consciously hold my head up super straight or it hurts. i didn’t know if anyone else had experienced this and knows how to help it or how long it lasted after your injections🫶🏻🥲

Almost every other day I wake up with severe migraines. Usually on the left side of my head with same left neck pain. I woke up 6 months ago and had a super stiff neck and ever since I’ve had constant migraines. No triggers that I know of. Just waking up with severe pain 50% of the time.

I think I’ve tried everything. Been to neurology and had scans. I’ve had emgality injections sitting in the fridge for 4 weeks now. I am so afraid to inject them because I have horrible anxiety with panic attacks. I’ve read trouble breathing and anxiety is a side effect of this injection. I only get 6 sumatriptan pills a month. That doesn’t last a week.

I’ve tried special pillows, cold head wraps, caffeine, French fries, otc pills, and chiropractors. I read on here a lot of triggers, but does anyone else wake up with migraines?

I almost always get a migraine in my sleep. I will wake up during the night in pain. Most times, once I get out of bed in the morning it will wear off over the course of several minutes to hours but other times it turns into a full blown migraine.

Anyone else get night time migraines?

I was diagnosed with migraines a few months ago after having them for a few years. In the recent months, I’ve been having a mix of cluster headaches and migraines and felt the need to finally take action. I was prescribed a “take-as-needed” medication. It has worked for the most part (it sometimes doesn’t work for the intense nauseating migraines). Just this past weekend, I flew out of the state. In the plane on the way there and back, I had a migraine that went away after an hour. I forgot to pack any medicine, including just Advil, so I had to take it at all its might. It was the worst migraine I’d ever had. It was the first one I’ve ever had that had an aura beforehand. The right side of my mouth’s teeth went completely numb and my jaw hurt. Once the migraine went away, it was very sudden. After taking my medicine, my head pain comes less often, but when it does come, I feel like it’s more severe. Should I be worried? Does anyone have any advice when it comes to the auras that come with migraines?

Has anyone seen a changed with lowering migraines with starting birth control? If so, which one? I used to be on the IUD and noticed I never really had any migraines until I came off of.

Has anyone else determined it was supraorbital nerve causing your migraines? I have been dealing with migraine for 3 years. I had sinus surgery. Migraine pills do not work. I am thinking that it is my supraorbital nerve.

Right now, I have 75mg Nurtec that is no longer providing as much as relief as it once did. I’ve tried 50mg sumatriptan and that didn’t work either.

I’m now considering Topamax. I know its efficacy is different for everyone, but is there a dosage of it stronger than the Nurtec?

Sorry if this doesn’t make much sense! Thank you in advance!

Hypnic Jerks

I’ve had a stressful few days travelling and a few weeks before that my sleep was shot. Just as I’ve come to settle down tonight, I’ve started developing hypnic jerks that keep me awake.

These happened years ago when my pppd/vestibular migraines and MCAS started. I’m freaking out - they kept me up for weeks!

I’m not sure if this is from the stress, MCAS (I’ve eaten curries ((chilli and tomatoes)) in the last 24 hours), or PPPD/vestibular migraines (my symptoms have increased dramatically and I believe there’s a migraine-like element to this condition).

Worked like a charm as you can tell from the screenshot, I can’t believe it. On 23rd of August (after years of keeping migraine well under control) I had some prodrome symptoms suddenly and boom, migraine cycle that wouldn’t break. My neuro, bless him, threw everything at it - raised my propranolol dose, multiple triptans, steroids, extra Botox, a nerve block, until finally bringing me in for an inpatient stay. Basically had 5 days of infusions of magnesium, stemetil/compazine, ketorolac/toradol, and sodium valproate/depakote. Broke my migraine on day one and haven’t had an attack since (trying not to jinx it!). Have had some minor headaches but all manageable. Just wanted to post for those of you who might be going through the same thing, the cycle can always break - keep pushing forward.

sorry if this question has been asked already but my boyfriend’s dad has had migraines for his whole life. I recently found him pressing bare ice packs to his cheeks and head for try to get some relief.

would one of those amazon relief caps that you freeze be okay? any specific brands to look for? I’m just concerned that the material being cold and directly touching the scalp skin may be bad or irritating. if anyone has any tips, I’d appreciate it because it seems to really be frustrating for him.

bonus points if it’s stretchy or adjustable since he does have a large head!

thanks in advance!

TSA website says gel ice packs are acceptable if frozen solid and that medically necessary gel ice packs are okay in any form.

Has anyone had experience bringing ice packs through TSA? I’d rather not buy the instant ones if i can avoid it.

i’ve had migraine with aura for the past two years, normally once every 3/4 weeks - one every 2/3 months if i’m lucky. i do acupuncture as well which really seems to help. however - every single migraine i’ve had since september has been on a plane or in an airport. i’ve taken 6 flights and have had migraines on 2 and in the airport beforehand another 2 times. does anyone have any advice 😭 i have a ton of travel coming up

helllooooooo! i’m a 25f here with some pretty gnarly migraines. i’m out for 2-3 days when i get one, sometimes i can skate by. i am on an SNRI and a mood stabilizer, as well as over the counter birth control. i also am prescribed a triptan for migraines but lately, it hasn’t been doing much. i do not have health insurance currently as my father lost his job so i am working on that.

does anyone have any hacks for these or anything? i feel like i have tried so much, but i want to hear options! i work fully remote and experience pain in my head, neck, and shoulders when i get these. i also have nausea and pounding with over the top anxiety when i get these. thanks in advance guys :) and keep on keeping on!

Anyone have any good tips to break out of the anxiety spiral that comes with the migraine?

At work with a migraine that had no warning sneaking up on me so I have no meds, I work in fluorescent light HELL (hospital), I can’t leave for six hours, and there’s no one who could possibly cover my shift atp. Pray for me 😭

I’ve been diagnosed with migraines for over 8 years now and know when I’m about to have one. My last CT scan was also two years ago and everything was fine. I’m also on a daily preventative and take abortives as necessary. However, recently I’ve developed a new symptom, I smell strawberry pie. I’ll ask my husband and he can’t smell anything. Sometimes, it’ll lead into a migraine other times I’ll just smell it for hours and nothing happens. It drives me crazy. Does anyone else have this happen to them or could I be having a migraine without the “actual” migraine?

I recently learnt on here that salty food helps a migraine. Problem is I can't face a McDonald's during an attack.

Will taking something like liquid IV given me the same results as a salty McDonald's?

I get Botox for migraines every 3 months and am near the end of my 3rd cycle now and expect the 4th session of shots in about 2 weeks. For the most part it has been successful & I’ve seen a big reduction in morning and late evening headaches particularly (I am also on Emgality). BUT, for the past couple of weeks that progress has regressed and I’ve been dealing with a lot of those AM/PM headaches & a few clear midday migraines that have caused me to resort to Sumatriptan. Since I am also able to frown somewhat, I suspect that the last Botox dose is fading rapidly. If that’s correct, then Botox‘s effects started fading for me around the end of the second month.

Wondering, therapeutic Botox users, about how long does the effect last for you? Do you notice it fading, and at what point?

I’ve recently learned that salty foods and salt can help migraines so what’s the salty food you eat when you feel a migraine coming on or are trying to get rid of it? I love salty food so it’s not really an issue for me.

I started frovatriptan about a year ago, and all in all, it's OK. It rarely ends a migraine, and I'll admit that I've been thinking for a few months now that they do nothing for me. I still have all the other symptoms during an attack, after a frovatriptan, just without ALL the pain. I'm still clumsy, I'm still forgetful, I'm still just a little bit slow in processing things, my speech is weird, you name it, but the pain sits at a solid 4 at the most. I can still go to work, watch TV with my fiancé, listen to my music, read a book, and I'm OK. I've been wondering more and more often if I even have migraine disorder, because what if they're just bad headaches? They're never truly awful anymore, and maybe that's why the frovatriptan don't do everything I'd hoped they would.

Last night was my office Christmas party, and I knew that the menu was likely to end in a migraine, but it's all in the name of showing up and showing face and blah blah blah so I just accepted it. Got home around 11pm last night with that awful throb behind my eye, and there was one solitary frovatriptan left (cue the reminder for anyone who needs to order their meds, especially before the Christmas rush, do it now). I took it, hoped for the best, and went to bed. It's now almost 24 hours later and I've cried in pain, I've cried in frustration, I'm cried in pure sadness because this attack is proof of everything. It's proof I do have a migraine disorder. It's proof that even if the frovatriptan don't end my attacks, they are allowing me to be present in my own life every single day. It's proof that sometimes the thing you wanted to do (knowing you'd get a migraine from it) isn't worth it but you won't know if you don't try, but if you're going to try, please make sure you have all your abortives on hand.

My husband and I rent a home with oil heat however we also have a fireplace. To try and offset the cost and frequency of having to refill our oil tank constantly we have a fire most nights to keep the house nice and toasty.

I’ve been home the last two days and have had a fire going for 12+ hours during the day. Today I definitely feel a migraine coming. I’m not 100% sure if the fireplace is to blame because I also took a nap on the couch which could have also triggered something but this is going to be very disappointing if it turns out to be a trigger for me :(

Does anyone have any recommendations in Tampa area for a migraine specialist?

I understand in the grand scheme of life, everyone's life is tiny - the universe is vast, etc. But migraines have made mine so much smaller than average. My migraines have made me completely unable to drive (something that was already challenging thanks to various other issues like my severe astigmatism and myopia aka near sightedness) because they render me anywhere from 25-100% blind when they occur. I live in a rural area, so no driving = no going anywhere, no meeting new people, no trying new things, everything has to be planned around others and people's willingness to take me somewhere.

Migraines have damaged my social skills, because the constant fatigue and brain fog makes me constantly live my life in a daze, so even the small sliver of a life I do get to live, has a bizarre haze over it all the time. I used to love live music, but shows trigger migraines or make pre-existing auras more severe. I've literally passed out in the pit at shows because of migraines, and my symptoms have only become more severe with age. I used to love performing live, it was literally my main source of income for years, but stage lights have led to massive, debilitating migraine attacks in recent years that make me dread ever stepping on a stage, mostly working as a studio musician now.

I feel so whiny but it's just the truth - my life feels unbearably small and miserable, particularly since my current migraine has been going on for about 2 years. Sometimes it is a bit hard to even understand what I'm pushing through this for, like life with severe migraine doesn't really seem that "worth it", you know? I feel like I'm missing out on so much of what life is meant to be. This condition is incredibly isolating and has taken so much of my life from me :(

Has anyone ever had just a random off month with Emgality? I’ve been on it for 6ish years now I think and never had an issue. I’ve had like one breakthrough migraine a year at best but suddenly after my latest Emgality shot I’ve had a migraine pretty much everyday, almost like I didn’t even take my shot.

I’m really hoping it’s just a bad batch, but about a week or so prior I started having relentless nausea (I’ve been to the doctor and they are stumped as well about this). I’m slightly concerned the two are connected and I think the next step is probably an MRI just in case.

After having my son , I have began getting severe migraines monthly about a week before my period. These migraines can be so severe that I get nausea and vomiting and literally would rather be in labour than have to deal with the headache. Two weeks ago, I developed a severe migraine with nausea and vomiting. The day after , the right upper teeth (particularly worse in my back most molar) developed crippling sensivity and pain. This has persisted for two weeks.

What complicates matters is my teeth are pretty bad due to an eating disorder that I had in my childhood. I fixed my teeth about five years ago with restorations (ie crowns) on all of them and take very good care of them but have had issues where I needed a root canal once and am worried that maybe this is the start of dental issues and not related to the migraine.

I did see my dentist and they took X-rays and he believed it could be related to my sinuses however wasn’t able to give me a sure answer and told me to return if my teeth didn’t improve. The pain is localized to only my upper right teeth and is triggered by talking , liquids, mouthwash, massaging over my TMJ and massaging over my neck.

I've (26F) always had really long hair either bum length or midlower back length at its shortest. My hair is fine but its not thin and I usually dont feel the weight of my hair unless it's wet or I'm experiencing an attack. Since about 8 years old I've been experiencing migraines. In my youth I had them maybe 2-3 times a year. Over the last 2 years I've been getting them more frequently. I'm now at the point where I'm getting them 2-3 times a week with visual aura's happening almost 4-5 times a week.

I'm always aware (?) of the weight of my hair during my migraines and normally have to put it into a very loose ponytail during attacks because high buns or any kind of hairstyle that requires all of my hair to be concentrated in one area creates too much weight or tension on my scalp leading to more intense bursts of nausea.

Last night in the throws of yet another migraine I couldn't find a way to organize my hair to help relieve my discomfort. It wasn't the worst migraine I've ever experienced from a pain stand point (I normally have sensations like an ice pick being shoved into the back of my left eye over and over again). But, this was the first time I've felt such extreme sensory overload to the point where I couldn't breath without my hair touching me or in some way making my nausea worse. It took every bit of strength in my body not to shave it off.

I finally passed out from exhaustion at around 4:30 this morning and woke up with what I would describe as a mid level migraine pain in my neck/head but visual aura and sensory/hair overload is gone. Has anyone else had this kind of sensory reaction.

TLDR: Is there a hair hack I can use to try to get some relief during my next migraine.

I recently stopped Lisinopril and started taking lasartan due to glaucoma, and my migraines have went from clusters to I've only had one in like a month. Was wondering if anyone else has had the same experience? Or if maybe it's a coincidence.

Does anyone else here survive without support?

I have a wife nope, family uses the excuse it is to hard to come to your house because of your smell issue!! Sigggghhhhh meanwhile if I don't (put in chore) or ......

I've been on it for close to a year now, went from 50mg to 100mg a few months ago. The 50mg didn't even touch me. But, the 100mg just dull the pain enough to make it through.

I’ve (25f) been reeling for so many years of having migraines fairly often, it sucks but was relatively manageable because I got used to it. But a year or so ago I got two concussions within 4 months and apparently have some form of post concussive syndrome which has severely exacerbated the frequency of my migraines, making them more severe and more debilitating. I struggle at work constantly. I haven’t been making plans to be around friends. I’m always on edge because I still can’t identify all the triggers. I’m seeing multiple doctors, some focusing on concussion recovery and some who are general practitioners who have more experience with migraines, and I’m waiting to see if I can have coverage for a new migraine specific medication since the past three preventatives have either made my migraines worse, or caused other side effects that were awful.

It’s so so so frustrating. I feel like I’m constantly unwell and working is just about the only thing I can manage time for, every other day I spend trying to recover from work exhaustion.

I’m tracking my migraine patterns, on average it’s at least 15 days of the month I get migraines of differing severity. It’s a mind numbing stabbing pain in my eye or my forehead. Triptans make me violently sick and my skull burns and it doesn’t end up making me feel any better. The preventative medications I tried made me sick and tired to the point where I was a zombie most of the time.

I had to call out of work again today. I feel embarrassed by how often I end up needing to keep myself in a dark room to manage the pain. It sucks to cry about it when I get extra frustrated- because crying makes it sooo much worse !!!

I really like this subreddit because I’ve seen so many posts of others that have been on similar migraine journeys to mine, it’s been validating to see everything here. I just kind of wanted to get this out of my head.