/r/migraine
A community of headache disease sufferers. Whether migraines, cluster headaches, or whatever head pain you experience. We support each other, and spread knowledge about our various conditions.
Levels are required for certain permissions.
There's also a Lemmy community!
Follow these, and everyone will be happy. Don't and we'll all be sad.
A more complete list of rules can be found here.
If you see a post that may be violating a rule, report it and select the appropriate rule.
Self Promotion rules
We get a lot of blog posts and self promotion content. In response, all self promoters must follow reddits' guidelines for self promotion. We reserve the right to remove content from users with insufficient community participation, excessive links/posts, or content better suited for ads. Sometimes you just need to support reddit and pay for that ad space instead!
The goal of this subreddit is for members/users to ask/ answer migraine-related questions in order to help one another understand the disease better. You may give your opinion but please do not give medical advice; it is a violation of the reddit terms of service to do so. Personal stories and support are welcome. Scientific proof/data is welcome but please cite the proper sources.
Resources
Migraine Log Template - Automatically generates graphs and calculates averages. New features periodically added.
Prophylaxis, Abortive, and Procedures checklist - Useful for keeping track of what you've tried. Please add unlisted items to the working sheet.
Crisis resources
You can find a list of crisis hotlines on this wiki. There's also an FAQ about what to expect when calling.
For medical help, the emergency room is always the first choice. Most insurance offers nurse help lines as well.
Want something added here? Message the moderators!
/r/migraine
I was asking on every mental health forum cause i was seeing weird shadows from the corner of my eyes and i thought i was going crazy.
I didn't have a headache it was very mild so i totally forgot that it was a damn migraine attack without intense headache. I see spots, shimmers, light flashes and shadowy movements from the corner of my eyes which freaked me out then i noticed that my eyes were also very strained. It's crazy what migraine can do
Been getting terrible headaches that end up in panic attacks. I’m trying to figure out my triggers so I can avoid them. So far I have dehydration causes auras and possibly wearing my hair up will cause a migraine that night?
I’m going to the dr but just wanted to see what others thought. I’m newer to migraines. Yay /s
I've been in a serious relationship with my partner for almost 3 years now, and due to job issues on his part I fell into the role of breadwinner. It's totally fine that I have, I can support us without straining too much financially until he can land a better replacement job. However, I also have bad migraines at least once a month, and am no stranger to going to urgent care for shots. Bottom line idk how reliable any permanent position is for me. My boss is okay with working with me about this, but I am in a constant state of anxiety that one day I'll get a call saying I've been let go.
How do y'all breadwinners make it through without the stress adding to your migraines?
Just came to share in case this information may help someone else like me. Was having an episode once, sometimes twice a week, would be out for at least 5 hours with my face in a pillow just riding it out. Through some rather synchronistic events, I had decided to quit coffee and substituted Cacao with Shelejit every morning. My intuition was telling me that the coffee every morning, being a diuretic, was stripping me of essential minerals and not allowing me to hold on to whatever nutrients i was getting from my food.
The high mineral content of Cacao, Shilajit, and also adding minerals to my water supply has me feeling like I have a whole new lease on life. I wake up with tons of energy and my libido is also super healthy ;)
Hope this may help someone out there. The caffein in coffee was never the issue and I had taken a week break before, but it needed longer than that, plus I really needed to up my mineral content since I was so low.
My migraines and headaches are almost always on the right side, but recently I noticed something that’s been freaking me out a little. When I nod my head forward (mostly when I do it particularly hard) I feel a pain/ pressure that radiates from my right temple to above my eyebrow. I don’t feel it when I shake my head left to right, only when I nod it to and fro. I maybe have a slight pressure in the right side of my head without nodding, but it’s nothing too noticeable or crazy. Could this be muscular? The pain improves somewhat when I improve my posture and relax my neck. I went to a physio, she said I felt like a different person on my right side compared to my left side, because of how tense it is. Of course I know shaking your head violently to and fro is going to cause some level of pain😭 but it’s just freaking me out that it only hurts one side. I’m just concerned about tumors or maybe my sphenoid sinus or something.
It’s undoable. Absolute torture.. yet I have to do it.. all the time. No one but migraine sufferers could understand the pain when your kids are screaming, needing you and you cant even think from the pain. My twins are toddlers and I still have to change diapers, feed meals, clean up messes, entertain all with the worst pain imaginable for me. They are hanging on me while I’m puking and crying. I have no relief, my husband works a lot.. When this happens I just want/NEED him to come home. But he can’t.. we are both frustrated and I’m left to suffer until bedtime. Just so angry this is my life so many days. I’m on Nurtec, maxalt.. just doesn’t do the job.
Google is freaking me out and making me think I have a brain tumor. I’ve had a migraine for five days. I haven’t had one since college but I used to get them pretty frequently (3 days max). They are typically stress induced and I have been stressed lately. Today, I am feeling tingling just on my left side of my body along with pain towards the back of my head on the left side and I’m still super lethargic. Should I go to the ER? I don’t think I’ve ever had a migraine this bad…
(yes, I’ve seen a doctor and he literally did nothing)
hello, I don't think this is against the rules but if it is, please tell me and I'll delete this
I'm here asking if any of you follow any content creators that educates about chronic migraines, ideally on instagram?
I know there's resources for reading about it... but that's not really possible for me, I have 24/7... headaches? migraines? I'm not even sure, but even with the meds, they barely allow me to function for basic daily stuff, reading theory? very difficult for a page or two, reading science and medical theory, even in layman terms? it'd take me months and it'd only make things worse for me because it'll get my headaches worse and worse the more I push myself, so my only options to educate myself is through educators on social media
yes I go to the neurologist regularly (and I have been in treatment ever since 2020, seeing many different specialists) but there's only so much I can ask or explain without knowing much about both migraines and headaches in general
so please if any of you know of educators that share experiences or/and talk about migraines and/or headaches I'd be very grateful, thanks in advance
I avoid doing this because it feels like tender migraine pain; anyone else?
With years of dealing with my migranes with aura I've noticed that sleep, strong lights, cerain food and especially not going number 2 increases likely good of them happening
The severe headache started 12/29- I was on Nurtec which worked great from 9/4-11/18 but seemed to have stopped. 1/8 I took 9 days of prednisone, no relief. Switched to Qulipta 1/26 no relief. Yesterday saw a new neurologist and had a GON block, shot of ajovy and 5 days of Olanzapine and Dexamethasone. He put in a request for Botox. No headache yesterday, today slight headache waking up. Anyone take these before?
My last job understood I needed time off for migraines. I had taken a lot of time off the last few years due to the severity and how often I was getting them. Weeks at a time. Unfortunately, I was laid off recently (due to downsizing, not because of my time off) and am wondering if I'd be better off applying for disability insurance or employment insurance. Another job is not in my cards at the moment. At least not until I find the right meds. Any info is appreciated.
Hey I’ve seen a specialist and she said I have chronic post traumatic headaches, and/or tension headaches and sometimes migraines that develops because of the other issues with my neck etc. She prescribed me muscle relaxers. I have headaches that aren’t migraines almost everyday, pain in my back head, on the side of my head/temple and above my eye (this is the worst). I understood that the muscle relaxers should work like pretty fast. But I’ve had even worse headaches the two days I’ve taken them now. Feels like my pain gets worse with the relaxers + feels like my neck muscles tense up. I only take one at night time. My headaches are almost always worse laying down and now they’re worse than they have been the last two weeks after starting muscle relaxers. And I got so much diarrhea (sorry for TMI). Is it supposed to make it worse? How long should I keep on taking them before giving up? It almost feels like my muscles tense more up/cramps when taking them. I’m taking Klorzoxazon.
I have migraines with auroras so I have limited options for bc. For those that take the mini pill how has it been long term and is it reliable?
Hi Everyone. I am the mom of a darling 9 year old girl who started getting headaches (growing in frequency and intensity) since this fall.
She had a particularly bad episode last week that ended up in the ER. That is when we determined it's migraine. They broke the headache and she had two glorious days without one. Another started last night.
Her primary care dr prescribed Maltrix. It didn't help at all.
Give me your advice. What would you tell someone like me to help her? I know headaches because my husband has hemi-cranium continua. It's totally different when it's your kid though. My heart breaks for her.
And work up with a migraine!!
On the other hand, I bought a bunch of instant cold and hot packs that I have stored in a toiletries and hanging near my bed, since walking to the kitchen freezer for my Ice Kap stuff is too far sometimes, and I'm really thankful for it today.
Walking alone on this path in hell. If I ever make it out i dont know who i will be, i feel as everything has been taken from me. Right now im holding on, but one day i might not be so strong.
I pray one day there is a life waiting for me, that is worth living Until then i have to play the hand i was given.
Like a prisoner in my own body and forced to be my own prisonguard too, what is hurting me would never harm you.
Hanging on not to loose my mind, to endure this life takes a special kind.
Any advice on how to cope/recover is gold. Just endured 1 month of endless migraine cycles and now my brain is not braining at all, sudden deep depressive feelings and neckpain, amongst other things.
(F,20) I have severe migraines around 7-10 times a month sometimes more. Usually they hit at afternoon/night and last until I am able to go to sleep. I am on a bunch of medications for various chronic illnesses (immune deficiency, hEDS, POTS) plus am on desvenlafaxine and adderall for depression/adhd. I’ve been to a bunch of doctors for it but they always ask the same questions and I have a hard time articulating what’s wrong so I’m wondering if anyone has had similar experiences/advice. They always ask where is the pain located but I can’t really pinpoint it I feel great pressure behind my eyes but overall I just know my head hurts really bad. My most prominent symptoms are light and sound sensitivity and unable to concentrate. I don’t think I experience an aura but I’m wondering if it’s a symptom I’m overlooking or if there’s something I can notice before the pain hits. I have a hard time localizing pain and just feel overall “bad” when in reality it’s addressable issue so I’m wondering if anyone has a similar situation and any advice. I was on propranolol for a while but didn’t notice much change and now I’m trying amitriptyle daily (low dose since I’m already on an antidepressant). I even went to the er at one point for a migraine but they did a CT and ruled out anything serious. I know a lot of these comorbidities are common especially in girls so I’m wondering if anyone can help
Okay, I just took my first loading dose of Emgality and even though I’m seeing everyone say it has minimal or no side effects, I just had the weirdest dream tonight 😵💫😵💫😵💫
I haven’t remembered my dreams in some time but I clearly remember all the dreams I just had and one of them was VERY weird. Did anyone else experience off the wall dreams during or after injection? Does it change after the loading dose?
Other than both my legs being kinda sore right now, are there going to be any other “symptoms” (neurological or otherwise) that I should be prepared for???
I'm curious to know if any of you guys get migraines from airpods, if I use em for longer than 2 hours I can start feeling a migraine forming, is it just me or do any of you get that too?
I've been looking online but can't figure out what is wrong with me. If I'm hungry for too long, I get intense painful sinus and behind the eye pressure that goes on for hours upon end even if I eat properly, hydrate, and lay down for hours with my eyes closed. It's too late, I took too long. Even a snack sometimes beforehand isn't enough. Sometimes it's so painful I can't even relax to sleep. This has been reoccurring for years and I can't figure out what it is, it's to the point it affects my day to day life severely. If I can't have a meal at the exact moment I need it, then the rest of my day is completely shot because my face hurts so badly I can barely keep my eyes open. Please help!!
So, if all goes well, I should be getting vyepti infusions on Monday. Any tips, suggestions, things to look out for?
Hello all! I have recently started taking Zonegran for my chronic migraines. I'm curious to know, if you found Zonegran or other epilepsy meds such as Topamax etc. helpful, how long did it take to start seeing an improvement?
I know that this propably varies by person and I suppose I'm going to have to try it for about 3 months before I can say for sure. I've been on 25mg for 5 days and increased the dose to 50mg 2 days ago. So far no bad side effects, only my appetite is worse and so is my sleep quality. So we'll see how this goes!
I'm really hopeful as I have already tried and failed soooo many preventative meds, but the group of epilepsy meds is completely new to me. So fingers crossed!
I want to try 3 mg / night for my GERD like symproms (cant use PPIs they are a trigger for me). Have any of you tried Melatonin? Was it a trigger for your migraines?
So I'm 33 I had my first ever migraine when I fell pregnant never had another child as it's so bad since I was 20 9 years ago I went to see a neurologist since then my symptoms and pain etc have changed as I also got bells palsey I asked my Dr multiple times pls refer me back "there's no point as you saw one 9 years ago" 🙄 just to add I saw them once then back to the Dr with the report. I'm in the UK and desperately need a referral back what can I say to get the Dr to understand? I haven't tried no new meds in over 7 years triptans don't work so now I just take diclofenac for pain and antisickness I'm so tired off it back then I had loads of migraines in my eyebrow cheeks and forehead now it's side of my head aswell and neck I never had migraines obviously associated with my period but now it's like clockwork 2 days before during and sometimes at the end. I just need someone to listen 😭. (Thank you for reading sorry it's long)
I had inline skates as a kid and now I'm finding I still enjoy skating as an adult. I usually dislike cardio workouts, but skating to me is having fun with a side effect of exercise. Problem is, it's actually a pretty intense cardio session and getting overheated is very easy and also a straight path to a brutal migraine. Even when it's 40 or 50 degrees outside and I wear minimal clothing, I get overheated while skating so easily :'(
Anybody have tips/tricks/life hacks to help slow down the overheating process, besides taking more breaks while skating? I refuse to give up one of the few outdoor activities I really enjoy, migraines take too much from my life already.
Hi all
This morning my vision started going out in class. It started as a little spot and gradually got worse and took over my whole vision. I drank a full bottle of water, sat with my eyes closed, it went away after about 55 minutes.
I went home regardless to rest, took a nap. Slight headache but nothing crazy followed.
Ate as normal, worked out this evening because I had already planned to and I felt fine. Got home, showered, was watching reels on my phone and another one has started. I can’t read the words correctly in a book, my vision is just weird, and I feel a dull headache all over my head. I took an ibuprofen and am laying in a dark room with an ice pack.
Has anyone else experienced this? It’s a bit random for me. I’ve had ocular migraines before but normally I only get them like once a month if that.
Hi! Curious if anyone else has had this or knows what could’ve caused this. I did my emglaity on 1/19 and never get reactions at the injection site. It’s now 1/31 and a bump just appeared in the same spot I injected it at days ago. I cleaned the injection site beforehand. It’s strange for a bump to show up now, going to keep an eye on it but curios is anyone else has experience this
I started with ubrelvy. Let’s do the heaviest hitter first since I had prodrome. Then it did absolutely nothing. Enter gabapentin, benadryl, reglan, toradol, muscle relaxer. Did nothing.
I am terrified of what I’ll feel like in the morning, and maybe even in the middle of the night. It keeps getting worse and no medicine has touched it.
Fuuuuuuuuck.