A serious UTI caused my pelvic floor dysfunction to flare. I'm in so, so, so much pain. I can't sleep. My trigger point release wand seems to make it worse. Last time I had a really bad flare (which got me diagnosed and eventually caused pudendal neuralgia), it ruined my life for eight months and I had to drop out of school. Now I have a job and can't take time off. I'm seriously scared and can't find any relief.

Have anyone used cialis for frequent urination? Its like it fixes my bladder problems which bladder medication didnt do but my urologist doesnt want to pescribe cialis as im only 22 so wanted to hear if anyone else had luck with cialis too

(21, F) Does anyone feel UTI- like symptoms almost EVERY single time after they have sex? For years now, I’ve been struggling with “UTI’s” every time I have sex, but now I am trying to find the root cause, and wondering if birthing 3 children has weakened/ruined my pelvic floor. This is abnormal, painful and is RUINING my sex life! I feel so anxious every time I have sex because I know I will be in agony (almost) every time afterwards.

Hello, I’ve been told by a specialist today that my pelvic floor is very weak for my age (31). She said that she usually evaluates on a scale from 1-5 and I’m at 1 🥲

I’ve been given a referral for physiotherapy and advices to use a device that will send electrical signals from my vagina to my brain to activate the muscles. Had anyone ever tried this?

In general: what should I know and what can I do in my daily life to get my pelvic floor stronger?

I do pole dance and I noticed something was wrong when I needed to use a lot of core strength to lift my legs. I’ve been told to get stronger in my pelvic muscles first and then go back to those strong moves - so I really want to put a lot of effort into getting better!

Thanks in advance!

Tried readjusting my posture

Not really improvement in erection quality

Less tension in my pevic area, belly and psoas

But I get some tension in my back...?

IDW I am doing it right

I just hade a Cystoscopy two days ago. I can pee without any pain now but I’m still pretty sore in pelvic area, back and hips. Maybe it’s just my tight pelvic floor clinching up because I was nervous for the procedure.

I am just now coming to the realization that i’m struggling to with pelvic floor issues. I’ve given birth 4 times (my youngest is 12) and i’ve dealt with what i thought were recurring UTIs, even though tests came back fine. as well as constipation issues. I have to kind of have to roll around in circles while trying to poo, even then I have to give it all my might just to get anything to come out. anyways, i’ve always wondered why women could have long lasting orgasms and be satisfied after, meanwhile for me I get right to the top and then i’m met almost a throbbing with excruciating pressure/sensitivity and I have to stop. feeling like i’m never fully satisfied. I also have to almost bear down and hold my breath in order to get to that point as well. I have a consultation set up with a PT but in the meantime I would love to try a different technique. I also notice sometimes that i get a painful sharp shooting pain in there.

TLDR: it’s hurts to orgasm so i can never finish and i’m looking for advice as I wait to see a PT

I’m experiencing what I’m fairly certain is a pelvic floor prolapse. I’m 4 weeks post partum, can feel a bulging (like a baby crowning) inside my vagina when I stand up and have lots of pressure and burning ongoing. I have a dr appt on Monday. What can I expect to happen at that appointment outside of an exam and hopefully PT recommendation? Are they able to provide me anything immediate for the discomfort?

intercourse is still painful. My PT was out of the country in Oct so I didn't have any appts that month but other than that, I've been consistent in going. She does internal work and body work. She also gives me exercises to do. I have a wand to do self work as well but I'll be honest, I haven't been diligent about that. At what point is this becoming abnormal? I'm almost 9 months PP and even though some things seem to be improving, intercourse is not.

Hello. I am curious is anyone has any tips for getting ischiocavernosus pain relief as well as any tips on dealing with pain due to morning erections. I have been in pelvic pt for a while and the ischio is my problem muscle and it does not like to be stretched at all. The muscle is just so sensitive and most stretches the PT gives me will cause it to flair up. This muscle also causes me to wake up very early in the morning from pain due to night time erections in my sleep which I have no control over. Recently I have been dealing with pain that radiates down the shaft of the penis as well and penile pain just in general makes me miserable. Has anyone dealt with similar issues? I am curious what has brought you relief.

Been to like 5 urogyns and urologists who all had nothing to offer but the same few drugs. Gabapentin, baclofen, amitriptyline and Valium. All made my problem worse. After that, just told to see “a new PT” (I’ve been to countless over the past 7 years), or one of them telling me I need a $50,000 device at my first appointment with her after only knowing me for 10 minutes, oh and that is $50,000 not covered by insurance since I haven’t tried enough non-surgical treatments.

Reading some posts here are making me realize it’s insane that none of them have even thought just to get an mri first. Like, someone literally suggested surgery before an MRI.

I want an mri or some kind of imaging, but I don’t know what for. All I know is everyone here seems to have gotten one to rule out (or discover) problems. How do I get one? Do I have to look for yet another urogyn? I’m so done with being misunderstood. Doctors don’t give a rats behind. Appointments are always trying to shove my symptoms and treatments into a box and blaming me for shit not working. I just want treatment.

How do I get this? Can I lie or exaggerate a problem so maybe my pcp orders one without needing to see another urygyn?

Hi everyone,

Just wanted to get your opinion on my situation which has got a little better.

I started having discomfort when I was urinating and I’ve been with my gf for a period of time but know mgen can stay in peoples system. So I got tested for stds and it came back negative and they prescribed me doxy for 7 days. I did not have any discharge. However, the tip of my penis was stinging even after urinating. My symptoms were still there by the end of the 7 days of doxy and now I had stomach cramps. They tested me for mgen and prescribed me moxifloxacin 400 mg for 7 days consecutive of the 7 days from the doxycycline. Which I’m pretty sure is the CDC recommendation. However, the test result for mgen did not come back yet because something went wrong and had to do a retest for it. The doc also said my penis looked fine.

I’m done with the 7 days of moxi and I have not got the results back (I retook the test on the 7th day of moxi). I was still having some pelvic pain and peeing hurt at times. The doctor prescribed me another 7 day dose of moxi (which I don’t want to take because moxi was giving me some anxiety/insomina) and I completed the recommended dose per cdc. I don’t want to take more unless that test actually comes back positive but also worried about if it does come back positive am I making mgen resistive to moxi or should it be gone by now anyway?

I also went to urology and they preformed a cystoscopy and said I had an incredibly tight pelvic floor which is a good probability for my pelvic pain along with discomfort in urinating and referred me to pelvic PT.

I’m hoping the mgen test just comes back negative so I don’t have to worry about that anymore but do you think it was okay for me not to take the additional 7 days of moxi without having a positive test? I just really did not like the effects from moxi and I’ve read some scary things about it. Symptoms have started to get better I think besides the pain from the cystoscopy.

Thanks

Not sure if this is the right sub but hopefully someone can help.

I'm male, 32yo and have a sedentary job. I remain seated for most of the 8 hours.

I work out with heavy weights 3-5 times a week.

About 2 years ago i started getting the feeling of incomplete bladder emptying along with pains, aches and tenderness in the perineum area. Especially when sitting for prolonged periods of time. Alongside excessive dribbling after urination. I spoke with my GP and they referred me to a consultant urologist. This was an 18 month wait. During this time the symptoms disappeared.

I've had PSA blood test, UTI tests, urine flow tests which all came back fine.

The symptoms return every 4 months or so for a couple of days, and I can live with this. But over the past two weeks the feeling of incomplete emptying of the bladder has comeback with a vengeance. This time also with reduced flow and splitting.

I am currently taking gabapentin for this.

I'm starting to wonder if I have an issue with my pelvic floor, whether tight or weak.

Does anyone else have similar issues?

For as long as I can remember I've always "flexed" my penis while masturbating. It also increases my sensitivity which can make me ejaculate faster.. sometimes unwillingly. But I've noticed if I straighten my pelvis forward and kind of push out my perineum area, my penis seems to hang a bit more and almost feels more relaxed ...which I'm assuming is the blood flow. So would my goal be to relax my pelvic floor so I clench less and push out more? Are reverse kegels what I should be doing?

Thanks

I have been suffering from Pelvic Floor dysfunction for almost 2 years. Symptoms include pain while urinating, ejaculating, difficulty starting and keeping stream, painful erections, pain and itchiness in rectum after emptying my bowels, anal fissures, blood after wiping.

I've done the anti-biotic thing which didn't work as well as a negative cystoscopy, and MRI.

I've seen several PTs who did both internal and external work. I've also practices internal therapy, stretching, trigger point therapy, and diaphramic breathing at home for over a year. Also got surgery to repair the fissure. Nothing has been able to improve my symptoms even the slightest.

This week I got a Colonoscopy and Gastroscopy done and they found Ulcers and inflammation in my large and small intestines as well as in my rectum. This suggests some mild inflammatory issues in my digestive tract and potentially Crohn's.

My theory is this inflammation which has caused pain in my rectum is causing my pelvic floor muscles to tense up and be unresponsive to the PT and other therapies. I'm hoping that once this inflammation and pain is treated then PT will finally start working.

Curious if anyone else with Crohn's has had similar experiences. I'm so tired of trying so many things and nothing working. Hopefully this is finally the answer I've been looking for.

I had chronic perineal pain last year. But as I got over this pain through Physical Therapy I gradually started having urinary urgency and burning along the penis. along with constan sensation of tension or heaviness in the penis.

I have been with a new Physical Therapist for 8 months with very little progress. I sometimes have a good day but never a day without symptoms. My pelvic floor no longer has contracted muscles but more than one PT has said my muscles are overactive, when the pull out needles used for dry needling they come out bent (meaning my muscles contract and bend them).

I am at my limit I want to beat this but it is tearing me apart, I dont want to live like this anymore.
I need a solution to get my muscles to stop being overactive

Hi! I’ve got severe pudendal neuralgia symptoms- burning after peeing or BM. Pelvic wand doesnt help, lots of deep breathing, but I believe I have a piriformis muscle spasm. Its pulling on my SI and causing sciatica like pain. Have a TENS unit coming in today, what are good placements for the pads?

Also- any recs for tight piriformis release? Figure 4 flares my PN BAD and tennis ball rolling makes it worse too 😭

I (25 F) have always experienced painful sex especially at insertion and just occasionally with penetration, I just thought that it was normal and just dealt with it. Here recently however, they have both gotten a lot worse to the point where I have just ceased having sex all together. It wasn’t until I was talking with my friends about this, they were telling me that this was def not normal and I should see my gynecologist. This morning, scrolling through TikTok a women speaking of PFD and how pelvic floor therapy helped her and her symptoms. Does my story sound similar to yours ? Have you felt like that pelvic floor therapy helped ? What other insight do you have for me to learn more about this ?

How to find out penis numbness is muscle or nerve related?

Hello everyone,

Suffering from urination problems, I decided to make a connected flow meter at home. I'm in France, and my program is in French, but I need to be able to adapt it if anyone is interested.

I'll link to the video if anyone is interested.

https://m.youtube.com/watch?v=LKZkizPdZ74&pp=ygUTRGViaXRtZXRyZSB1cmluYWlyZQ%3D%3D

See you soon

I am wondering if anyone feels the same symptoms, I have been to the doctors multiple times. No uti , it’s not dehydration, because I’ve been drinking a lot more lately. I’ve had chronic constipation for forever now, urinary retention, pushing to pee/straining. Can’t empty completely. Always feels like I’m not finished when I do go. I’ll sit there and wait three five and six hours or nine hours in the same day and then I’ll go pee every five mins when I do drink more than one thing if not I just wait because the feeling isn’t that strong to me it’s semi strong but not much . I have this awful pressure in my lower back my pelvic area my tummy and my hips and groin/upper thighs and man when it starts up it hurtssss. I will use heat, I will take tums, I’ll drink something, only thing that relieves it a little is going pee… I had all these uti symptoms. I also have sexual dysfunction so I feel like it is just tight muscles. it stings in my urethra and feels so uncomfortable when peeing. My stream will be short/medium. I can usually pee some more out but not a whole bunch. being constipated all the time probably doesn’t help either. did anyone ever get to a point where they didn’t really be able to strain anymore like bear down to pee and feel their bladder in their urethra when bearing down ? and did anyone get to a point where the sensation to go pee isn’t very strong the more you went even after waiting certain amounts of time to go pee? Also I am in Alabama so the US does anyone know somewhere where they take health insurance and it’s not 500 dollars a week to pay? I can’t pay that amount because I don’t even have that amount and that is really outrageous if you ask me…

Hello, I am a 18 year old boy. I had a bike accident on October 13. A part of my butt got laceration and was stitched. The area was just outside the anus part. Now, after the incident, I peed blood and it was a little bit hard to pee. My parents encourage me to drink water so that I can pee and for the blood to washed up. Well we did a urinalysis because blood in pee is concerning and the doctor said I may have UTI or kidney stones. Like, I'm quite a healthy person. I only eat junk foods and salty things on rare occasion and I am well hydrated. Then we decided to go check another doctor. Also, the night after my accident, the pee clears up but the pain is still there. I have to strain just so I could pee. I can still pee but its really hard and sometimes, nothing comes out. The urge to pee is also detrimental as I think my bladder never emptied, combined with the fact I am drinking water for every pee I lost T-T. Now, I was put on a foley catheter and the doctor said to go back a week later for follow up. And hey, there's a storm so the follow up was move a week later once again. At the same day, my parents and I decided to remove the catheter as those catheter supposedly need to stay for only a week. Then they removed it, I could pee normally afterwards, there's a little bit of burning or stinging sensation but I CAN pee. The following day though, I woke up a little bit late and forced myself to pee. It's quite hard again and only a little came out, I was also having the urge to defecate. Obviously I took one out and pee came out. Afterwards, I have this urgency to pee. But when I tried, nothing comes out. I tried to force it so hard it felt weakening. It felt like my penis wants to explode. My parents then encourage me to drink more water so I did. We then went to the ER to check me up as the pain and urgency to pee is worsening, and each time I tried to, I feel like my bladder is spasming very hard each time. I was then told to hold it a little longer by ER doctors and I sat in a wheelchair for its very uncomfortable to walk. After I think an hour or so. I had this urgency again, so bad it's making me shrivel in pain. I was then instructed to void in the restroom and FINALLY, pee comes out. It was so relieving, it felt like heaven, literally. I knew I didn't empty my bladder but its enough to ease the pain. I was then escorted back to the waiting room as the doctors are discussing if they need to put another catheter or not. Few more minutes later, the urge comes back and its so hard to bear that I went to the restroom to void again. Also, my peeing position is sitting as its comfortable. And after that trip, I peed again. It felt very very good. I now rest while the doctor decides and a colorectal surgeon talked to me about my butt.

(Also, the stitch in my butt healed before the catheter was removed. The laceration was 2 cm long. During my first week having a catheter, I am defecating normally. I am suspecting that maybe the bowel movement affects my peeing.) (Also, during my first catheterization, a junior doctor checked my butt and prostate and its relatively fine according to him, he is also the one that put a catheter on me. When he put the catheter, he tried I twice, first for a 14 but he cannot force it and second, a 12 which is a success, quite traumatic though.)

A urologist then see me and decided to put me on a catheter again. The catheterization is also done twice, I don't know the reason but I informed the doctor that the catheter used on me was 12. After, I checked and a 14 catheter fits??? And also, it's not too much pain as opposed to the first time. It gave relief and I can now do stuffs again. The doctor then told us to go back a day later for scheduling of a retrograde urethrogram to see if there are any blockages. Until now I still have a catheter on and waiting for the schedule.

(Also, the second catheter stayed for two weeks and it developed a smell now and the tubing looks disgusting, also, since the second catheter, mucus goes out of my penis and I suspect I may now have UTI. We changed the catheter and a 14 one was used, it went in without a problem but the doctor said that the catheter was being pushed out.)

I am now waiting for my retrograde urethrogram and going to see a doctor in a few days for the status of my urinary tract and talk about the possible UTI. I am afraid of having urethral stricture, it just sucks. Even if there could be other causes for my urinary retention. It's quite scary knowing that I may not live as "normal" as I did.

Forgive me about my grammar, just typed this thing real quick and english is not my main language.

My issue started after circumcision, which cause fear of urinating as it caused pain when the wound still fresh.

Since then, i always contract my pelvic when urinating because I scared of urine flow too fast and causing pain at tip of my penis. So i become scared of urinating.

When i pee, i always feel that my pee is super weak. The stream sometimes is very curved and not shooting very far.

But when i did uroflow test yesterday, it was 39m/s. But it has staccato, zigzag graph which indicate voiding dysfunction.

I want to get out of this scared of urinating and pain. Sometimes i don’t even have the pain, but my imagination always tell me that it’s going to be painful.

A few years ago i graduated out of pfpt with zero symptoms (went in with pelvic pain, leaking urine, back/hip pain). Then I had hernia surgery. Since then I haven’t had a dry day. I constantly leak small amounts of urine, not caused by stress incontinence. We’ve tried lots of different things in PT and now we’re focusing on strengthening my pelvic floor, with a focus on exercises that bring the deep pelvic muscles in and up to perhaps take tension off my urethra. I’ve been doing my exercises every day or every other day and I’ve noticed my leaking is worse. Not specifically during the exercises but afterwards, definitely. The muscles are sore and I’m having a lot of OAB feeling.

I’m feeling frustrated and discouraged. I just wanna stop peeing myself all the time 🙃🙃

Ever since having my youngest 4 years ago I’ve had a very weak transverse abdominis. Every few weeks when I do motions like putting on my shoes while sitting, bending over, etc I get a massive stabbing feeling in my right side. I did 6 months of physical therapy and they gave me exercises, I followed it, went to every appointment, did (still do) the exercises and it stillhasnt strengthen it. I’ve been to my dr and they didn’t really seem to understand my issue and they referred me to a plastic surgeon who said he could do a cosmetic procedure to fix the DR, but it doesn’t sound like that’ll help with the weak muscles.

I’m getting discouraged and frustrated. I thought this was something I could live with but last week when I was at the gym I did a simple move that ends up injuring my back because of lack of core strength and transverse abdominal giving out.

Has anybody drank excessively since having this? the pain is so so unbearable drinking is the only way to make it stop. I drink everyday.

I'm going to tell my story, and I'm posting it here on the off chance that some random person may have symptoms like mine and could find some help. I'll post specific symptoms toward the end, but I'll keep the rest short.

In 2022, I woke up one day experiencing what seemed to be UTI symptoms, except no usual urine smell and the pain would come and go like spasms. I dealt with it for a while before going to the doctor in June of 2022. No UTI, no drugs helped, etc.

My gyno referred me to a urologist who diagnosed me with pelvic floor dysfunction. They gave me a hard time and not much autonomy on my care, so I asked to be referred elsewhere (and thats a real short summary of that fiasco).

I was referred to a urogynecologist who performed a hysterectomy and referred me to physical therapy. PT seemed to help a little bit, but it just decreased my pain level and did not improve anything else at all. My hysterectomy was on Nov 7, 2023. It didn't help much at all, but I was happy to have that thing gone anyways, since my family has a history of issues towards menopause.

Oct 18, 2023, I had a pretty severe pain in my left side, but I took some ibuprofen and it went away in an hour after going to the bathroom. I thought it was gas. I know the date because I had text my mom about it asking what a kidney stone felt like (bet you can see where this is heading).

A couple months ago, I was woken up at night with the same pain, but it lasted about an hour or so and went away, so I just went to work.

September 21, 2024, my pelvic floor pain kicked up again. I said to my husband "I'm having a pretty rough day with this pelvic floor pain, I'm going to go lay down and use a heating pad." As I was laying down, the pain progressed from pelvic floor to left side pain. Over about 3-4 hours, the pain became absolutely excruciating in my left side and I hobbled out and told my husband I needed to go to the ER. I suspected a kidney stone already, but was also concerned about having a perforated bowel or something worse.

A CT scan revealed A 7mm kidney stone. I had surgery a week ago and the stone has been removed. I have not had further pelvic floor pain, but I am not convinced it's gone. I've had periods of time in the past that I didn't have pain for a weeks or 3 weeks, whatever. I will find out in a few months if the kidney stone is for sure what was causing it.

However, my urologist said that when a kidney stone is down toward the bladder, it can cause symptoms that are similar to pelvic pain, overactive bladder, etc. A resident also came in with him today (had stent removed today) and he turned to her and said "remember this, it's atypical but if you have a patient with recurring UTI symptoms but not evidence of UTI, check for a kidney stone."

38F, "pelvic pain" started at 36.

•pelvic pressure •urinary urgency •burning UTI feeling that comes and goes •no bacteria in urine •pelvic pain that doesn't respond to NSAIDs •pelvic pain that increases with activity •pelvic pain that seems to go away with one "treatment" one day, but the same "treatment" doesn't work the next day •little to no improvement with any medical care •no improvement from prescribed medications

I hope this helps someone, because kidney stone was never a consideration in my mind, or any of the 3 doctors I saw.

My main symptoms for the past 15 months have been

Penile pain
Urinary frequency
Levator ani tightness
Puborectalis tightness
ED

Finally had 100 units of botox injected into my PF last Friday in London

Firstly it was a pretty quick procedure, about 3 or 4 minutes.

I had it injected into the pubsrectalis,  pubococcygeus, and Bulbospongiosus muscles.

The pain wasnt too bad until he hit the trouble spots then it was extremely painful for about 2 or 3 seconds. Just bite your arm or something else.

Within 24 hours I had noticed an improvement in the tightness specifically the Levator ani, and I was able to sit with far less pain.

unfortunately getting off the table at the hospital I twisted my knee so I have been on crutches since Monday ,which has slightly conflated judging the pain.

An odd fatigued muscle/ nerve like electric pain has remained.. I think its the bulbospongiosis as it makes erections hard to maintain.

Anyone else had Botox and found it made their main pain better, but slightly increased issues with erections and a different type of pain?

Early to tell the full effects yet as it doesnt fully kick in for about 2 weeks. So far its been mostly positive, but just trying to work out why Im still getting some odd muscle 'tiredness' or pain thats different to the original.

Thanks.

For the past year have been suffering from horrible pudendal and dorsal nerve pain. Will be getting surgery soon, but ever since this pain started have had a complete adverse reaction to any drugs. Any drugs/painkillers amplify the nerve pain will start screaming bloody murder. Night and day difference, it’s like turning up the volume on pain. The more of the drug I take, the worse the pain is. But even just 1 pill of painkiller is excruciating

Have tried the strongest nerve painkillers, steroids, pudendal nerve block, muscle relaxants, Ketamine, Codeine, Percocet, Fentanyl, Morphine, Oxy, Norco, Melatonin, Isaflush, Tylenol, anti anxiety meds, anti viral meds and sleeping pills. Please don’t suggest any other medications I should try. It’s ANY drug. Cannot take anything for the pain

Sounds like a Paradoxical Effect. Was reading it could be caused from either an imbalance of neurotransmitters or chemicals in the body, or from damage to the nervous system that is causing my body to not react to the drugs normally. This adverse reaction only started once the nerve pain started. Has anyone ever heard of something like this?