/r/UARS

Photograph via snooOG

The term Upper Airway Resistance Syndrome (UARS) was coined to describe a group of patients who historically did not meet the criteria for diagnosis of obstructive sleep apnea, and thus were left untreated. Today, advancements in the sleep medicine field have been made in an effort to recognize these patients. However, most patients with UARS around the world still remain undiagnosed and are ultimately left untreated.

In memory of Dr. Christian Guilleminault (1938-2019)

The term Upper Airway Resistance Syndrome (UARS) was coined to describe a group of patients who historically did not meet the criteria for diagnosis of obstructive sleep apnea, and thus were left untreated. Today, advancements in the sleep medicine field have been made in an effort to recognize these patients. However, most patients with UARS around the world still remain undiagnosed and are ultimately left untreated.

In memory of Dr. Christian Guilleminault (1938-2019)

Related Communities

/r/UARS

2,819 Subscribers

3

Help needed

I need help titrating my pressures and also advice regarding other things I might be missing in my Oscar or any other things I might be missing with my approach to solving my apnea.

If anyone has paid someone to look at their Oscar and had good results or any luck with vitamins or things like chin strap or any other tools please

Sincerely a former software developer turned security guard barely getting by who has no insurance or family to help him figure this out.

1 Comment
2024/12/04
03:17 UTC

6

UARS?

Hi,

I recently underwent a sleep study that showed an AHI of 3.3 but an RDI of 10.7. Could this indicate UARS? Despite sleeping 8-9 hours on some nights, I often don’t feel rested. I also tend to wake up during dreams or REM sleep.

Additionally, I frequently wake up with sinus inflammation and experience constant postnasal drip, particularly when lying down. I have a history of a deviated septum and underwent sinus surgery in the past to address it.

Any advice would be greatly appreciated!

Thank you.

https://preview.redd.it/2izurm8fxo4e1.png?width=1637&format=png&auto=webp&s=6b338a26482349a84dbcd1738ad1d65bd076cecd

15 Comments
2024/12/03
20:03 UTC

3

I managed to acquire a lightly used DreamStation ASV DSX900 for $400. Any tips on settings?

I found a DSX900 ASV on Facebook marketplace yesterday for $400. Drove 6 hours round trip to pick it up. Works great and very low hours. Any tips on settings? Diagnosed with UARS in 2019. MMA didn’t help. CPAP didn’t help. My BiPap will sporadically help me feel amazing with an EPAP of 6 and an IPAP of 11, but I usually can’t sleep through the night with it. Hoping ASV can help me since EASE is out of the question for me financially. Any tips on titrating an ASV would be greatly appreciated. I know VonCosel has written a post detailing how to titrate a BiPap, but I’m wondering if the titration or settings would be different for an ASV?

6 Comments
2024/12/03
04:04 UTC

4

Should I do FME or pharyngoplasty?

Apparently I’m a candidate for both, pharyngoplasty because my tonsils/soft palate are fairly large. But pharyngoplasty is also a brutal surgery and I’m not sure how much it would actually help my UARS.

Should I just start with FME and proceed from there/see how it works? Given that expansion doesn’t involve someone chopping away at my soft palate.

Currently, my pharyngoplasty is scheduled first but I’m having second thoughts.

5 Comments
2024/12/03
00:44 UTC

19

Curing Sleep Apnea: A Life-Changing Success Story

Hey everyone, here is my latest video. I hope you guys enjoy it, and please let me know if you have any questions, video ideas, or feedback! Good luck, and I hope you guys are finding improvements with your sleep over time

Curing Sleep Apnea: A Life-Changing Success Story

10 Comments
2024/12/02
18:14 UTC

7

This is a question for those who did airbreak to their cpap

Hey guys,

I did air break to my machine about 2 months ago. Now after trying both S mode and Vautomode, I need to try asv.

Does anyone have the ASV software? I currently have a resmed air sense 10

7 Comments
2024/12/02
15:37 UTC

8

What percentage of all human suffering is caused—directly or indirectly—by sleep-disordered breathing (e.g., sleep apnea)? Is it single digits or double digits?

I posted this question on facebook (and also r/SleepApnea) because I think it’s important.

21 Comments
2024/12/01
16:24 UTC

7

Optimizing/ arousal

still feeling tired team. Would appreciate it if someone can help me optimize? Also in my flow rate, are the little spikes normal or irregular? I sleep flat (due to body alignment issues) with a knee pillow and a cervical collar.

https://preview.redd.it/h8ublouka94e1.png?width=2242&format=png&auto=webp&s=64321a244e7d6bef99a72de68e0290725ec5ce87

https://preview.redd.it/43pqfehna94e1.jpg?width=270&format=pjpg&auto=webp&s=86daf6e6e90ed8151de70242966e7df4b9b4e184

20 Comments
2024/12/01
15:36 UTC

2

Has anyone found relief sleeping upright or on stomach?

6 Comments
2024/11/30
23:11 UTC

5

Questions

Got an AHI of 11.5 and a RDI of 32.9. How severe is this? Also any recommendations on machines?

5 Comments
2024/11/30
00:24 UTC

3

How big of a difference has treatment made to your quality of life?

Starting treatment soon, hesitant to be hopeful but also looking forward to feeling any amount of better.

6 Comments
2024/11/29
17:44 UTC

19

Is anyone else sick and tired of the way doctors treats us? (Rant)

I have been suffering for so fucking long now, firstly getting a simple at home sleep study was hard since my gp gaslighted me immidiatly and when i eventually got a at home study it only recorded oxygen and heart rate and from this they assumed that i dont have a sdb and its because of "depression" after that, when things got worsier it took me fucking two months to get a referal for a in lab study, after that another two months for the study, and this fucking study only counted ahi for them to tell me "you dont have a sleep problem" now, at this poing for the last half a year, im severe, very severe, i dont know if there are many people here who went this low where im a fucking disabled braindead who is unable of doing absoulutely nothing, i almost killed myself over this (and other shit and hey! terrible sleep can fuck your mental health who would guess!) many times, i bought myself a cpap to find out that i have mouth leaks and cant use mouth tape since its so uncomftrable so im now waiting for my full face mask order to arrive, its fucking absurd, ive been studying for medicine (not for being a pyshician but a reasercher) and when i learn the lectures and see the complexisty of the human body it boufels me how stupid these doctors are, how stupid can you be to oversimplify things so much? Did they actually learned the stuff i do? Pharma biochem anatomy etc??!! How from learning all this stuff they came to the conclusion that the only thing that matters when it comes to sleep is ahi?? Its a fucking no brainer!!! And ive been depressed and suicidal and non functional and if i wouldve killed myself over this shit it wouldve been their fault and not giving a person who feels like death everyday the treatment he needs is not just malpractice but cruelty, i feel sorry that i havent self treated myself from the start, i couldnt know how dumb narrow minded "professionals" can be sometimes thats it sorry for my mad rent its just that its been so hard.

25 Comments
2024/11/29
11:31 UTC

3

No diagnosis yet. Flow limits?

Hello,

I've been self treating sleep apnoea for 18 months. Have recently done an SpO2 overnight study on the NHS and am waiting for follow up appointment. It was a horrible night doing the study without my CPAP. However, I did wear my own Wellvue O2 ring and it showed: 8hr sleep, 48 drops over 4%, 82 drops over 3%. 4h25m at 90-94% and 3h 25m at 95-100% (8 minutes below 90%, lowest 85%)

18 months ago, after initially struggling with CPAP settings I've settled on Min: 10, Max: 15, EPR 3. This worked great for 1 year.
Around 6 months ago I started suffering with serious Aerophagia, making therapy pretty uncomfortable. I suspect the reason for this is that I have a Hiatus Hernia (diagnosed 3cm sliding).

I wanted to check if I could lower the pressure to relieve the Aerophagia and reduced the Max from 15 to 12, as can be seen in the first image, my AHI is at 4.18. The following night I moved to Min 7 Max 15, this brought my AHI down to usual levels as seen in image 2.

The flow limits concern me and I'm wondering if a BiPAP machine may help combat this, as well as the Aerophagia. Maybe UARS? Anyone have any insights to what these flow limits mean? I did try a cervical collar and tolerated it but didn't really change things from a typical night.

I'm not expecting much progress at my next appt although the consultant wrote to me with surprise that I had been using CPAP and asked me to bring the machine with me so they could interrogate it. Do you think it's worth taking my laptop with OSCAR?

If no progress is made and replies here suggest BiPAP is a good step then I may consider flashing my Airsense 10 Autoset with the Aircurve firmware.

Thanks!

https://preview.redd.it/v9zszsj43b3e1.png?width=1854&format=png&auto=webp&s=b2b9979b6fea1ff6cefc0bae7a2cf213d1713bc6

https://preview.redd.it/bp7gyo553b3e1.png?width=1853&format=png&auto=webp&s=9ca551fc8057ff7210ac4967eaba216c581d70a0

3 Comments
2024/11/26
20:30 UTC

5

I did the afrin test, slept well and woke up without headaches. How to replicate the effects without using afrin?

25M from texas. I was diagnosed with sleep apnea and have been using CPAP for three months. Unfortunately i couldn't see any improvements in fatigue or brain fog.

According to ent/sleep doctor i have nose blockage/ large tonsils and neck fat which was contributing to the obstruction. He told the major factor was due to my neck and asked me to reduce fat. Apparently i have high neck circumference for me height/age. He also ordered allergy testing. I tested badly for dustmites, cockraoch and tree nuts. I have started allergy shots last month. It is a one year treatment and have been using for one year. My doctor also recommended flonase dialy morning and neilmed nasal rinse at night dialy.

Reading about nasal congestions and sleep apnea, i landed in one of the thread where someone in r/uars commented about the uars relief book by a md doctor. He talks about antihistamine helping him alot. And he recommended using afrin just for one night to check whether nasal congestion is the caus.e I did the afrin test and i woke up without headache. It is not day and night difference but i felt calmer and less foggy in my thinking. How can i replicate the same without afrin since we cannot use afrin daily. I tried claritin according to the book but I didn't get same effect. Flonase/neilmed didn't produce the smae effect. I could physically feel my nasal congestion as i lay down even with using Flonase and intake nasal dilator. But with afrin i could feel my left nostril fully free and able to breath clearly. I try to sleep on my side (left). Also the congestion is severe when i lay down compared to standing. Anyone else in same path? any recommendations please?

Also another question about my neck circumference/fat. I felt clamer and also ate within my calorie budget when i slept well. I am unable to lose weight for all these years which has definitely caused some obstruction. But how much of sleep apnea causes overeating? Any tips/advice on how to lose weight while being stressed/unrefreshed due to poor sleep. It seems catch 22 . Thanks a lot. Hoping someone helps me. I have been stuck and struggling for lot of time and finally i have a positive direction.

27 Comments
2024/11/26
19:13 UTC

3

CPAP or BIPAP?

Hi,

I have severe insomnia. My nose tend to collapse or become completely stuff/swollen during the night and a lot of phlegm in my throat and tight tongue tie.

From sleeptest, my core values are:

AHI 11,3
pRDI 15,9

My question is, what will help me most with my sleep; Cpap machine og Bipap machine.

In Norway you have to have AHI more than 15 for it to be covered by insurance/gov, so I have to purchase out of my own pocket, and thus don't want to end up buying something not ideal for my situation.

Full sleeptest can be provided if that will help you guys give any better advise.

Thanks!

6 Comments
2024/11/26
12:24 UTC

4

Didn't have sleep apnea

Hi could someone post their results that didn't have sleep apnea? I would like to compare the numbers with mine.

4 Comments
2024/11/26
01:53 UTC

4

Anyone Have MSE with Cantarella in Italy?

Can you share your experience? Cost? Bedside manner? How long did it take? Was improved nasal breathing and aperture achieved? Did it help your UARS? Did you also later get MMA?

4 Comments
2024/11/25
18:58 UTC

2

Where to get 2nd hand xPAP

I would like to try ASV and would like to try to get my hands on a 2nd hand Dreamstation DSX900.

Any ideas what would be a great place to find them in Europe?

5 Comments
2024/11/25
14:01 UTC

8

UARS diagnosis from doctor based on symptoms and negative sleep apnea test- UK

Hello all. I'm a 28 year old female who has had significant snoring and sleep issues for the last ten years. I initially had a sleep apnea test 6 years ago which was negative and another last month which was negative. They did however note severe snoring.

I've had a call today from the hospital reconfirming no obstructive sleep apnea, however, the doctor said he thinks I have upper airway resistance syndrome. There's nothing on the main NHS about this but I've found a few Uk hospitals with articles.

The symptoms fit me to a T, I also suffer with really bad congestion of my nose and throat in the morning. Fatigue and having no quality sleep is the main issue (and snoring)

The doctor has arranged for me to trial a CPAP machine to see how it goes.

So my question really has anyone followed the CPAP route with this condition and it helped? Is it common to use this method is UARS diagnosed?

Thanks so much for your time, if I missed anything please let me know

13 Comments
2024/11/25
12:30 UTC

8

Got aircurve 10 vauto. Auto pressure is so bad I am swallowing air and farting lol

What can be done?

9 Comments
2024/11/23
19:52 UTC

3

UARS / OSA treatment

Hi. My son recently reduced his AHI from about 20 or so, on average, by reverting to some previous settings. However, it is still in the 7-10 range, and more importantly, does not feel any better at all. His fatigue is totally debilitating. He also has some other medical issues which are likely playing a role here.

I've posted 3 screenshots from Oscar:

  1. Daily Stats to reflect the new settings and his response to them.
  2. Flow Rate graph showing a repeating pattern of breaths that I would like to be able to interpret. It looks to me like he has a long pause at the end of his exhalation, before he inhales.  I zoomed this because it seems to be very representative of his "normal" breathing throughout the night. But it does not seem to be a healthy waveform to me.
  3. Flow Rate graph zoomed in on a typical disruptive event in his sleep. The vertical ticks are Timed Breaths. Again I am wondering whether this info can help anyone offer some insight or advice.

Thanks in advance for any help that anyone might be able to offer.

Daily Stats

Typical Flow Rate

Typical Disruption

21 Comments
2024/11/22
05:08 UTC

11

Please ELi5 : What are the best treatment options for UARS?

I’m sorry, but my brain is so foggy I literally can’t read and understand these long paragraphs of medical terminology. I honestly have no clue about it. I would really appreciate if someone could explain it to me like I’m 5, I’d be incredibly grateful.

I did a sleep study about a year ago. I got the results back, they said I do not have sleep apnea. I did research on my results, and it heavily points to UARS, including the fact that I have a textbook terrible recessed jaw.

So far, the only thing I’ve understood is: Use a CPAP/BIPAP or get surgery.

However, everyone says that it’s impossible to get the pressure right without the proper tests, even if I do get a second hand CPAP.

Surgery is a separate issue, I’d be open to it but I am just tired and want some kind of relief.

Edit: I don’t know what surgeries are good options to explore either.

So, I’m at square one. Someone please help explain, explain it like I’m a complete idiot. I will appreciate it very much.

Thank you.

11 Comments
2024/11/21
23:40 UTC

9

Just Ordered BiPAP Black Friday Deal

Even though it was still a deal it was a huge amount of money. 😩

I got a BIPAP & F20 mask. Also ordered some mask covers, and a badge pulley so when I turn around in bed I don't have to adjust the hose.

I really hope this works for me. With APAP I just wake up whenever I have a flow limitation as the pressure doesn't stop it.

With CPAP I couldn't tolerate the intense air pressure and got aerophagia.

In hoping with the option for lower exhale pressure that I won't get aerophagia on BIPAP. Still not sure what settings I should be looking at but I guess we will cross that road when I come to it.

I'm suffering consequences from long untreated moderate UARS and mild sleep apnea. I've developed 3 heart issues which really scares me, and intracranial hypertension. Daytime headache exhaustion memory loss inability to concentrate, making mistakes, very poor quality of life. I'm banking on BIPAP to come through and save me while I organize maxillofacial surgery. 🤞

20 Comments
2024/11/21
16:43 UTC

3

Sleep study result

https://imgur.com/a/OEsuNB4

https://imgur.com/g3EgQkL

This is a in-home sleep study.

Ahi is 7.7

RDI is 16.6

Symptoms: Stubborn tiredness and fatigue - Insomnia - Dry mouth - High resting Pulse - TMJ and Migraines

What do you think?

7 Comments
2024/11/21
11:20 UTC

3

DISE In Europe?

Anyone get a DISE in Europe & had a good experience and can suggest where to go? Any country, I'm up to travel.

6 Comments
2024/11/20
01:00 UTC

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