/r/diabetes_t1

Photograph via snooOG

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, diabetes technology and CGM graphs.

Welcome to r/diabetes_t1!

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, and CGM graphs.


Please read our rules before posting.


Blood Glucose Levels Conversion

To convert mmol/l to mg/dl you have to multiply by 18. To convert mg/dl to mmol/l you have to divide by 18.

mmol/l mg/dl
1.0 18
2.0 36
5.0 90
10.0 180
20.0 360

HbA1c Level Conversion

To convert A1c from IFCC to DCCT = 0,0915 x IFCC + 2,15

IFCC DCCT
4.0% 20
5.0% 31
6.0% 42
7.0% 53
8.0% 64
9.0% 75
10.0% 86

Please read our wiki for additional diabetes-related resources.


Related Communities
r/diabetes
r/diabetes_t2
r/dexcom

/r/diabetes_t1

64,552 Subscribers

5

Keto snacks to avoid pre-bolus

My newly diagnosed T1 teenager hates the 15 minute wait that our diabetes team (NHS, UK) state is a must. Using the omnipod 5/dexcom G6.

To get around this, we were intially snacking on chicken, cheese, veg sticks - boring quite quickly … but now have moved to ‘keto’ snacks with low carbs (fatt bars and London apron cookies)…

(Another benefit was to revert to normal carb intake, which we now are back within)

Will discuss with the doctors but wondered if this is an ok ‘t1 diabetes hack’ and/or if there are others ??

3 Comments
2025/02/01
12:01 UTC

1

Does CamAPS FX support Dexcom one?

0 Comments
2025/02/01
11:57 UTC

2

THREE YEARS T1D/NEED ADVICE

Yo, im 27 and I was diagnosed 3 years ago with T1D. I have never really managed to take control of it (havent really actually tried), I pretty much lived my life as I was, only with insulin. I have 40% time in range. I recently started taking it more serious, tryna lose some weight and keep my BG in range. With vitamins and exercize I actually feel better than ever. What I would like is ANY advice on regulating my diabetes. What yall eat? When do you take your insulin? What other things helped you make it? Is it getting any easier after time? ANY ADVICE TIP OR TRICK WILL BE MORE THAN APPRECIATED THANK YOU

1 Comment
2025/02/01
09:20 UTC

0

Vendors that sell Ozempic

Hi fellow T1Ds!

I’ve been reading and hearing about a lot of positive experiences for T1Ds on Ozempic. I want to try this and see how it impacts the stability of my blood sugar. Unfortunately my doctor does not want to prescribe this to me because they only prescribe to people who are overweight. So I am now looking to buy off market. I don’t mind that it is expensive but I would like to make sure I buy from a trustworthy source and don’t end up with some replica. Any advice or experiences to share? I’m in Netherlands.

5 Comments
2025/02/01
09:18 UTC

1

Update to seizure

Hi family, Idk how to link my original post but I posted a couple days ago about a scary low that resulted in an ambulance ride because of a seizure.. or insulin shock as many pointed out. First of all, thank you all for the well wishes. I will look into the inhale-able glucagon and I’m kinda pissed my endo never told me about it. Granted, it takes me 8 months in advance to even talk to her so there’s that. Im downtown Chicago so if anyone has an endo they love… honestly I’m open. I am currently visiting my parents in Durango Colorado which is at a super high altitude and I learned that can greatly affect our BGs.

Welp, I went and saw a cardiologist and he said he didn’t hear a heart murmur so that’s one less thing to worry about. I had passed out at work previous to the seizure and two different docs told me they heard a murmur so I had obvious anxiety about that.

So now I’m just stuck paying a $600+ ambulance/ER visit. I remember even talking to the woman working on me in the ambulance about cost and of course she told me not to worry…

Is it bad if I worry more about the cost of being helped then actually getting helped? That was honestly my first thought when I came to. Im a flight attendant so I don’t make much and the job is rough on the body. I probably could have made it through my episode slowly and saved myself half my rent. With the cost of all of our supplies/insulin/accentental ER visits.. idk how to keep this up.

1 Comment
2025/02/01
09:12 UTC

1

Choosing a first insulin pump (Omnipod or T-slim x2)

Hi! I am a type 1 diabetic for 1 year. I currently use the MDI method for injections. I need between 1.5 and 3.5 units of rapid insulin (Fiasp) per meal and 9.5 units of slow insulin per day.

I eat foods that are very similar, but that was the case before I discovered my diabetes.

A typical meal looks like: 70 to 120 grams of carbohydrates (usually brown rice) 70 to 150 grams of legumes (I always vary) 100 to 250 grams of meat (most often chicken fillet or ground beef because it is quick to prepare on a daily basis) Lots of vegetables (preferably seasonal)

I eat 4 meals like this a day.

All the food is fresh and home cooked. I never wanted processed foods in my diet. I rarely eat desserts: it’s purely for pleasure. I always thought that it brought nothing but bad habits, so it remains a rare pleasure. My breakfasts are salty, I never eat sweet things in the morning. It’s not filling, nor is it good for my body.

I have an active lifestyle. I cycle to work, about 20 kilometres a day, rain, or shine. I walk about 25 kilometres a day and often carry loads to work. I do street workout 4 times a week for about 1 hour, which is enough time to do 120 pull-ups, 80 dips and 100 push-ups.

I do not take any dietary supplements and do not intend to use any.

We don't have a motorized vehicle and don't need one, so we do everything with our legs, even shopping.

Of course, I also like to relax. I enjoy my sofa, I like to sit on my IKEA Poang or I like to sit at my desk and play.

I try to get enough sleep, about 8 hours a night. I rarely need more, even without an alarm clock. Sometimes I sleep poorly due to poor blood sugar.

Yesterday was the day of my appointment at the hospital to discuss the installation of insulin pumps.

The choice was reduced to 2 models: T-slim x2 and Omnipod 5. At first, during the learning, it will not be a closed loop. The closed loop will be offered about 6 months later. Since it seems that the Omnipod has no real disadvantage compared to the T-slim x2, I am turning to this solution: no wire and an active lifestyle seem to me to be the most important advantage.

I still have some questions. I am slim, all the abdominal, back and arm muscles are prominent, muscular and I have very little fat.

I wonder if it will be easy to alternate the installation areas of the Omnipod or if, ultimately, the T-slim x2 would not be the right choice, because it is easier to insert the pipes in different areas.

Do you have any advice or experience to share that will help me decide? Please know that there will be no difference in cost whether I choose one system or the other. So it doesn't weigh in the balance.

Thanks for reading. I will update the post when I have decided. I will probably give feedback after use too.

15 Comments
2025/02/01
06:30 UTC

4

Thoughts on if I should contact ADA?

Okay so this mights be a long one I’m a case manager and I had to take my client to the district court this morning. We get there I bring my water bottle that has liquid IV and a water soluble medication that I take, and my glucose tabs that I’m actively eating because my blood sugar is low. The security guard tells me to go outside if I’m eating. I explain that they were for my medical condition and I was finished anyway, then they told me to take my water bottle out of the building. Again I explain I have a medical conditions and my medication is in my water and it needed to be finished. The security guard asked me “what medications are you on?” I told them it’s illegal for him to ask me this. The security guard said “I don’t care” and told me to just leave my water bottle with them, I told them I didn’t feel comfortable doing that. So they told me to leave. I just gave in and left my water. NEXT they tell me ( also it’s like 5 men ganging up on me all using their intimidating man voices) that I need to go through the metal detector. I tell them that I cannot go through metal detectors per my doctor. They told me “whatever you can go through” So then they ask me “what medical conditions do you have” I told them that’s also illegal for them to ask. I was also with my client who I don’t want to disclose all this information in front of. Anyway, the guard said “go through the metal detector or leave.” So I give in and go through the metal detector, once I walk through the other guard say “you beeped you have to go back through” I’m about to LOSE it at the point and so if my client. So I tell them it’s my medical device and show them like okay I get that BUT then they ask me to turn it on for them to prove it was an insulin pump! Like what else would it be?? It baffled me. As me and my client were going to the court room, we can hear the security making fun of me then yelled at me and said “the door literally says no food or drink!” I have never been treated so poorly regarding my medical conditions, those men were on an absolute power trip, purposely trying to intimidate me by raising their voices at me when they are 1-2 feet away from me. I have been in many courts and federal building that say no food or drink and I’ve had no problem with bringing in food and drink because of my medical conditions. I was told to contact ADA and report them but is that blowing it out of proportion? I’m just worried that reporting to the ADA is too much. Let me know your thoughts!!

4 Comments
2025/02/01
05:55 UTC

2

Injection sites for MDI

I have been rotating around my stomach for bolus (I use R), but I’m also getting fatter in my stomach (from this, I assume, as nothing else has changed). Do y’all inject in completely different places every time to lessen the concentrated fat depositions? What is your procedure?

3 Comments
2025/02/01
04:58 UTC

13

How do you tell someone your blood sugar is low?

I’ve decided that this year I need to be more safe with my BG. I’m sixteen and in year 10 at school (Australia), and my parents pay for music lessons. I go out of class for half an hour twice a week to learn violin and piano. But last year during those lessons, I always felt too nervous to tell my teacher that my blood sugar was low. If my alarm went off, I’d just apologise and say that I was fine, then wait until after class to have sugar. I think I was just too nervous to have to sit out when I was in a limited time slot that my parents were paying for.

But I know that it isn’t safe, so this year I’m going to stop that, and instead tell my teachers that I need to sit out. I’m just nervous to how they will react- one teacher will probably be overly worried about me, and the other will probably think I’m fine and just trying to get out of class.

Does anyone have any tips or advice? I know I need to sit down and have sugar if I’m low, I’m just worried about how they will react, and how I myself will feel bad for using up time in the lesson.

16 Comments
2025/02/01
03:59 UTC

13

US Med message

Received this emailed today for reorder due to ship on Monday. It’s my first time hearing about a supply concern. Glad for the transparency US meds. Sharing here to ask if anyone got a similar notice? Our last reorder was a few months back for a full 90 day supply. Thanks for any insight.

7 Comments
2025/02/01
02:32 UTC

6

this is ridiculous 😭

started eating my tea at 7pm (pizza and cheesy chips yum) and only now im spiking from the pizza at 1am. last time I had takeaway and the same exact meal it was like a 4 hour gap this disease just loves to throw curveballs 😭

8 Comments
2025/02/01
01:06 UTC

2

Omnipod and Weightlifting

Hello, I recently got an Omnipod and it’s been a great change. One issue I have had is when I lift, specifically Squats and Deadlifts, I can’t properly brace my core. It feels awkward and I would like to know if anyone has experience with this. What placements do you use when you go to the gym or how do you worm around it?

0 Comments
2025/02/01
00:42 UTC

3

T1D and deficit

TW - Cals

Hi guys! :)

Recently I've started a calorie deficit, (I've tried them before but they didn't go this well lol) I'm trying to lose some weight and overall just trying to improve my mental & physical health.

I've been going for a week (not long I know) and I've noticed a positive effect on my glucose levels, I've been in range a lot more!

In turn, I've been having more hypos and it's making the deficit more difficult to manage.

I've played around with my settings on my insulin calculator and so far it hasn't done much good so I've been slowly increasing my carbs-to-insulin ratio.

Just wondering if anyone had any experience or advice to give, I would be most appreciative :)

Thanks!

2 Comments
2025/02/01
00:28 UTC

24

Critical folks with diabetes

I posted earlier today about being 4.7 and feeling terribly low, I had some really lovely people get back to me and thanks for that!

A lot of comments were pretty critical about why I’d “feel terrible” at 4.7- I am aware 4.7 is not technically low. I’ve had diabetes for almost 12 years now, but that doesn’t change the fear, being home alone, having an extensive history of seizures, running out of low supplies, just generally being an anxious person. I just reached out for some comfort, some support, just wondering if I’m completely alone in sometimes living with fear.

I appreciate that sometimes with anxiety, being met with some factual and objective thinking can actually be helpful, but quite a few replies kind of just came across as heartless.

It’s been 12 years, but I still struggle, so much of the time. I still find it so difficult, so scary, so depressing. One of the main comforts, I think, is speaking to someone else that also deals with the same situation. Please, just be kind, be gentle- in one way or another we are all in the same shite boat

14 Comments
2025/02/01
00:20 UTC

1

Help with bolus

Help! I am on Omnipod 5 and I bolus 30 min prior to meal. it was low protein, low fat and mostly carb. My blood sugar was steady until about 2 hours after meal and then I started spiking to 200. How can I fix this?!

0 Comments
2025/01/31
23:13 UTC

4

Sushi update

Had my first (and unplanned) sushi dinner tonight. I decided to order rice noodles that I know how to manage quite well as I often go to the Chinese restaurant, ate some sashimi, one piece of tempura, three pieces with rice and had a taste of an ice cream mochi.

Sat down at 21:15 I bolused as follows: 75carbs for the noodles +32 additional gr divided between 10, 7 and 12 (for the other things following yalls suggestions of 7/10 gr for piece). Finished eating at 22:30 Arrived home 23:30 Started at 128, finished at 163, while walking home I ate a mignon chocolate bignè cause I wanted it, got home at 150 (so I have to remember that if I didn't walk I would've probably got higher) then a kinder bar, at 00:16 I hit 180/185. Right now it's 00:55 and I'm 119↘️ without giving manual corrections. Let's hope I don't go low tonight! (If I do it's fine, I'll eat one of the perfect apples I bought yesterday)

It went well and I handled it perfectly also thanks to all of you that didn't just tell me not to eat carbs and shared your stories. Thank you, I love this community and I'm proud of getting over this fear that I had.

2 Comments
2025/01/31
23:56 UTC

1

Managing blood sugar through intense cardio / lifting

I’m a 20 year old male who was diagnosed with T1D at age 4. I’ve played plenty of sports and worked out throughout life and have never really had a problem (excluding a few times of course) with managing my levels.

However, due to my schedule, I have had to move my cardio and weight lifting to the same session: I warm up with semi-intensive cardio for ~45 minutes before lifting 6 days a week. I used to do cardio after, but switched it due to hypertrophy reasons as well as a rec from my endo.

I am now really struggling - even if my blood sugar is say, 200 when I start cardio, it always ends up between 50-70 by the end of the session, or drops even lower. Even with no carbs, it will then often be back at 200 or even higher after my lifting (~1 hour or so). While this is somewhat expected given the general effects of aerobic vs resistance training, it makes it really hard to A) lift with a low blood sugar for the first half of my workout, B) know when to eat something when my blood sugar goes low only to have it skyrocket later, and C) have to do a reactionary injection during / after my workout.

I am thinking of adding 1-2 units either right before or immediately following cardio, but I am nervous that this will make me too low without realizing with no spike after.

If anyone has any recommendations or similar experience please let me know!

3 Comments
2025/01/31
23:22 UTC

1

Struggling with Humalog

I just switched from Novolog (aspart) to Humalog (lispro) because of the savings program offered by Lilly, which doesn't cover aspart. Based on the studies I found, the two are meant to be interchangeable, but I'm having difficult hypos with Humalog.

On Novolog I rarely had to wake up to eat at night, and knew exactly how much to eat to bring me up when I got low. The first two nights on Humalog, my CGM woke me up every two hours with hypo. I'm also going hypo more often during the day, and finding it much harder to get my sugar back up when it goes low. To combat this I am taking way less Humalog than I would be taking Novolog, which means my average blood sugar is much higher. I'm also having to eat way more than I want to, to avoid hypos during exercise or sleep.

Has anyone else experienced this? I'd love some advice because I don't want to give up on Humalog.

3 Comments
2025/01/31
23:03 UTC

15

It was a great day to be a diabetic, a great day.

1 Comment
2025/01/31
22:55 UTC

1

Topical Epinephrine

I have a procedure I’m getting soon and it requires a topical epinephrine. Has anyone had any issues with their blood sugar with a topical like this? I’ve had epinephrine injected in me once and had a high blood sugar afterwards, but I’m wondering if it’ll affect me if it’s just on the skin since technically it would get absorbed. Any thoughts or experiences with this? Thank you!

2 Comments
2025/01/31
22:53 UTC

10

i think i’m slowly going into burnout

i’ve had this illness since jan 2016, im turning 18 this year so its been a good half of my life ive had it. i never thought id reach this point but i think im reaching burnout with taking care of myself and my diabetes management. im so exhausted with trying to figure out my ratios and stop spikes and ive had good a1cs for years before this but now im at the point where i just dont have it in me to want to inject or play around with ratios and stuff anymore, i find going low exhausting and it interrupts with my schedule (something i am really particular about due to my autism and also recovering from anorexia) so i let it run a bit high sometimes im just so tired… my dexcom says ive had a 58% TIR with an avg of 9.9 mmol this lasst week. my sugars were so high these last few days because i was messing around with my basal from going low in the night and i decreased it and was constantly high. i feel shitty whenever i go high but im just, i don’t have it in me to care slowly like today i saw i was 9.4 and i just didn’t even have it in me to correct it and inject myself im just so tired, sorry, i had to vent, im not sure why im getting these feelings of resentment and anger years into dealing with this, ive come to acceptance with this and my life but recently its been such a struggle i’m exhausted, im also dealing with heartbreak and college stress and a lot going on in my life which isn’t helping me with this

2 Comments
2025/01/31
22:02 UTC

2

Android APS!

TLDR: is it possible to use AAPS to "sync" Medtronic 780g and Dexcom? Has anyone done it successfully?

--

Hey friends,

I have T1D and am finally getting back on an insulin pump. In the past, I've used Animas, Medtronic, and Omnipod. I haven't been on a pump for a number of years, but I've been able to use Dexcom a few times and I really enjoy it.

I have a question about Android APS that is likely going to show my lack of technological expertise. I'm hoping someone can help! I had what I thought might be a good idea.

I have decided to get the Medtronic 780G as my insulin pump because I prefer its programming and control to the other pumps (Tandem and Omnipod are the two others available where I live, and I am not interested in either). But! I want to use Dexcom. So, I was thinking, is it possible to use AAPS to sync the Dexcom and Medtronic 780g??

I know that the Android APS website says all you need are 3 compatible devices: (1) an Android phone, (2) a continuous glucose monitor, and (3) a FDA/CE approved insulin pump.

But I just want to know if anyone else has done it specifically and has been successful with it? I'd love to hear from you if you have! But also, your thoughts, even if you haven't, would be appreciated.

I'd hate to buy the Medtronic and then find out it doesn't work properly.

Also! Their website says that optionally you will need cloud services to remote control AAPS, share your data, and store them in a reporting server, then also a smartwatch. But, if you don't have a smartwatch, is it okay? (i.e., can you still use AAPS and your pump and have it be as successful?)

Sorry, I'm such a noob 🤦🏻

2 Comments
2025/01/31
21:59 UTC

138

💌

Hello everyone, I got diagnosed with type 1 when I was two and a half, now I am 26 six years old. I finished college, got married and I lead a wonderful life. I hope you are all doing well today and keep fighting! This disease is not stronger than you. Kick its ass!! We are all warriors

15 Comments
2025/01/31
21:26 UTC

2

Anyone here use a topical steroid? Notice any side effects?

So I went to my dermatologist for a regular check up, and he said, much to my wife’s endless amusement, I have a yeast infection on my face, and he gave me a topical steroid cream and an antifungal.

I know internally, ingested steroids normally cause havoc, but was wondering if anyone here has anecdotal evidence with topical ones. I only found one post by searching on here previously.

5 Comments
2025/01/31
20:43 UTC

1

Byram Healthcare WTF

I’m absolutely baffled at why this company is still a serious provider for Medicare and BCBS. I have yet to order supplies without having to do a huge intervention to get them to act. My doc sends notes after a visit and Byram CAN NEVER find them. I have spent 2 hrs on phone today trying to get sensors sent. Isn’t there another supplier I could use?

3 Comments
2025/01/31
20:28 UTC

2

childhood diabetes books

been reminiscing about when I was first diagnosed and does anyone else remember this book about this frog with diabetes? I can't remember the name for the life of me I think it started with H I just feel like I'm tripping 😭 there was also this one where the pages felt like a whiteboard and all the characters had hair that looked like chips (fries) does anyone else remember these?

1 Comment
2025/01/31
20:04 UTC

2

Want to donate unopened Lantus Insulin

0 Comments
2025/01/31
20:02 UTC

4

Well, at least it’s stable 😅

Trying to find the positives when I’ve been out of range all day 🙃

3 Comments
2025/01/31
19:58 UTC

27

URGENT! HOW DO YOU MANAGE GOING TO EAT SUSHI?

Just got invited and I'm living to not give up opportunities so, I don't have to eat the rice bit would love some suggestions on how to handle it. (I haven't eaten at a sushi restaurant for my whole diagnosis 3years)

EDIT: I can't thank you all enough EDIT 2: It went well

63 Comments
2025/01/31
19:24 UTC

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