/r/diabetes_t1

Photograph via snooOG

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, diabetes technology and CGM graphs.

Welcome to r/diabetes_t1!

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, and CGM graphs.


Please read our rules before posting.


Blood Glucose Levels Conversion

To convert mmol/l to mg/dl you have to multiply by 18. To convert mg/dl to mmol/l you have to divide by 18.

mmol/l mg/dl
1.0 18
2.0 36
5.0 90
10.0 180
20.0 360

HbA1c Level Conversion

To convert A1c from IFCC to DCCT = 0,0915 x IFCC + 2,15

IFCC DCCT
4.0% 20
5.0% 31
6.0% 42
7.0% 53
8.0% 64
9.0% 75
10.0% 86

Please read our wiki for additional diabetes-related resources.


Related Communities
r/diabetes
r/diabetes_t2
r/dexcom

/r/diabetes_t1

62,259 Subscribers

2

Happy World Diabetes Day! 💙

Whether you’re a week into your diagnosis, or 30 years, you are ALL strong and amazing. We are greater than our highs and lows.

On good days and bad days, in range 10% or 100% of the time, you are all doing amazing in your treatment and management. Through DKA and low blood sugars too.

We are a strong and resilient community! Lots of love. 💙🤍

Side note: Yesterday was my 11 year Diaversary!

0 Comments
2024/11/14
20:30 UTC

2

Switching fast acting insulins, did you notice a difference?

My insurance forced me to switch from humalog to novalog.

I tried to fight for a pre authorization for two weeks, but my endo office is horrible with getting anything done and it was not accomplished before I ran out and needed more insulin.

I have been on humalog for 20.5 years. I was extremely nervous to switch, even though I know the formulas are nearly identical and novolog you just need to prebolus a bit earlier.

I’ve had a really hard week on it, stubborn highs and feel kind of sick to be honest. It’s probably just unfortunate timing and I’m getting a cold or something and that’s effecting my blood sugar. Hard to tell when so many unseen factors can affect levels.

I was just curious of other people’s insight / experience going from long time humalog user to novalog.

Thanks in advance!!

3 Comments
2024/11/14
20:26 UTC

7

I created a new fitness sub for people with T1D. Come check it out!

I’ve been lifting and going to the gym for the last 7 or 8 years now. When I was diagnosed with T1D about 8 months ago at 25, I faced a lot of new challenges. I lost about 50lbs from my peak physique and I’m struggling to get my weight and strength up to pre-diabetes levels. It was difficult to get the hang of a diet that would allow muscle growth while keeping my glucose in check, and it took a while to figure out how my insulin sensitivity would change with different activities.

I figured lots of other people have had similar experiences, so I created r/fitnessT1D. My goal is to have people from all fitness communities (running, weightlifting, competitive sports, etc) discuss diet, routine, and unique challenges they face as diabetics. Come check it out! I encourage you to join, introduce yourself, and make a post if you’d like so we can get the sub kicked off. I’m also open to suggestions on how to improve the new sub.

1 Comment
2024/11/14
20:09 UTC

4

Giving away omnipod 5 pods that are only compatible with G6

located in new york, willing to ship if receiver pays for shipping. have around 9 boxes with 5 pods each.

3 Comments
2024/11/14
18:42 UTC

1

Very specific question for OneTouch Verio meter users

When you test strips with the control solution, the instructions say to push the up button until you see a letter "C". Does doing this actually impact the mg/dl results you get, or is it just so that those tests don't get saved as blood sugar readings?

0 Comments
2024/11/14
18:29 UTC

80

Word.

1 Comment
2024/11/14
18:10 UTC

3

Can insulin be absorbed through the eye?

And no, I am not doing anything weird! While changing a site and pushing the air out of the needle I had a drop or two pop onto my glasses. Probably a units worth. Just wondering.

2 Comments
2024/11/14
17:56 UTC

16

How not to beat yourself up

I've been trying really hard not to beat myself up about letting my A1C skyrocket for a few years. I really didn't care, and finally I've started to try harder, work better at my diabetes. But there is this nagging, disgusting guilt about how I let myself and my body down for so long. I've been diagnosed for many years, but the past few I just frankly didn't give a shit. Now I'm trying, and anytime I feel complication symptoms I get in my own head about how I let this happen.

For example, right now I'm working REALLY hard to tighten up my A1C (my numbers are DRAMATICALLY better than where they used to be), but I'm feeling all these symptoms.. my feet slightly hurt, my ankles/calves have this weird soreness, and a part of me feels like I'm steering the ship when it's already too late. I do know better blood sugar control quickly can lead to these symptoms, but have I f*cked myself? Can I come back from this? Idk, I'm feeling super down the past few days :(

I'm 27 and let my 20s get to me.

9 Comments
2024/11/14
17:49 UTC

1

help getting Dexcom G7 to post to Samsung Watch

0 Comments
2024/11/14
17:27 UTC

1

G7 sensor inserted at 7 am, I enter a series of long meetings at 8 am....

I get sensor error, start new sensor, at 8:15. I feel low bg, and of course over treat it. BG is now 197 (finger stick, checked twice) ... g7 app says 266, tslim says 320 which is just wild.

Is the G7 just trash? I follow the insertion instructions exactly, I keep having them fail. This is the third out of the last 6 that I've had to call dexcom about. I asked them the same thing and they said maybe my supplier was storing them incorrectly.

In the course of typing out this vent/rant/complaint my pump buzzed and both the app and pump show 231 and rising, which is still very wrong, another fingerstick shows bg is dropping not rising.

I'm wondering if I should go back to the g6, or just give up on the pump integration and go with freestyle, which would make tufts happy as they don't want to pay for dexcom anyway.

2 Comments
2024/11/14
16:54 UTC

1

Trying to Rebuild My Health and Life

Hi everyone,

Thank you to anyone who takes the time to read this—I’m at a low point with my health and my life, and I want to share my story to see if it resonates with anyone else. I’m 32, diabetic since 2011, and my health has been neglected for much of that time, especially over the last eight years.

When I was first diagnosed, I actually managed it well. I meal-prepped, went to the gym daily, and was happy and healthy for a few years, with my A1C in control. But an accident at work that left me with a third-degree burn threw off my routine, and I struggled to get back on track after that. My health began to slip, but I kept it somewhat stable until a few years later, when my life took an unexpected turn.

In 2016, I moved to Europe, and while vulnerable and alone, I started looking for community and stability. I ended up joining a Bible study group that I later learned was a Korean-based cult called Shincheonji. They gained my trust through my faith and later introduced intense teachings about sacrifice and self-denial, with messages like, “God allows physical diseases so that we understand our spirit is unwell,” and “We will have time to take care of ourselves when God comes back.” Their leader, called the “Promised Pastor,” was seen as working alongside Jesus with “blood-shedding efforts,” and they urged us to do the same. Even when I faced severe hypoglycaemia episodes, I was told to keep working, to have faith that God would look after me.

Their schedule left no room for self-care—I was averaging five hours of sleep, eating fast food because I had no time to prepare real meals, and experiencing intense mental and physical exhaustion. Since food has always been a comfort for me, especially in times of stress or sadness, I found myself overeating and relying on junk food, with boluses of up to 50–60 units of Fiasp insulin to manage it. I’m aware of the harm it does, but it’s been one way to keep me from much darker thoughts.

I started this journey weighing about 90 kg (198 lbs), active and able to manage my diabetes with insulin pens. Today, I’m over 130 kg (286 lbs) with a BMI of 37.2, obesity, and an A1C around 9%. I’m on a Tandem T:X2 insulin pump, using 130-140 units of Fiasp insulin a day. I’ve developed high blood pressure, high cholesterol, and severe depression. Though there’s no family history of diabetes, I believe unresolved trauma from childhood—specifically sexual abuse—may have contributed to this diagnosis later on. I also come from a family with early deaths due to heart disease, which adds to my fears. Given the years of neglect, I’m terrified of what these chronic conditions might mean for my future and especially of developing cancer from years of inflammation.

I finally left the cult last year, and I’m now in a different country to distance myself from that past. I wanted a true fresh start, away from reminders and connections to that period of my life. But now, I’m starting over completely—no family nor friends nearby. I also got married while in the cult, as they encouraged us to marry within six months. Now, we’re realizing just how hard it is without the cult’s influence, and we’re truly getting to know each other for the first time. It’s draining, emotionally and mentally, on top of the health struggles.

I’m trying to look forward and rebuild my health. Starting a new life and putting my health first is hard but necessary, and if there’s anyone here who has managed to turn things around after years of health neglect, I’d love to hear your experience or any approaches that helped. Thank you so much to anyone who reads this. Knowing others can relate or offer encouragement makes this path feel a little less overwhelming.

0 Comments
2024/11/14
14:21 UTC

4

Diabuddies thread

Thought it might be fun to start a thread for anyone who would be interested in having a diabuddy!

A little about me: I’m a 25F in Seattle. T1D for 13 years. I love reading (thrillers and nonfiction are my fav), animals (I have 2 cats but also love dogs), cooking, going for long city walks, and barre!

0 Comments
2024/11/14
15:49 UTC

41

Achieving 90% TIR is possible with very high carb diets

30 Comments
2024/11/14
15:41 UTC

32

World Diabetes Day

If you are showing signs, get yourself checked ASAP.

6 Comments
2024/11/14
15:19 UTC

1

Steel Infusion Sets?

I’m considering switching from the Tandem AutoSoft products to their TruSteel line. I end up with too many kinked cannulas with the autosoft.

The idea of a steel insert does make me a bit queasy , lol, but I’m sure I can get used to it. Thoughts from folks who use them, please?

10 Comments
2024/11/14
14:58 UTC

17

Is this considered an unaliving attempt and harassment?

My sister got angry with me because our mother told her that i was on the phone with friends at 2am, which i was, but i had no idea it was 2am, i lost track of time and wasn't paying attention. to shorten it all- my sister removed my fingerprint and changed my phone password, after going through it, cussing me out, AND comparing me to trump and a white man (I'm a black 16 year old girl). she went through everything and did all of this, completely disregarding that i need access to all my medical stuff on my phone at all times and all hours, not to mention, i'm starting the pump again, my previous one is out of warranty so i got a new one- the tandem mobi, which i'm sure many know require a phone to bolus. I just want to know, is this a form of attempted unaliving and harassment? if so, what should i do? i already am trying to set up a meeting with my school counselor today. I can't access a thing without my mom's fingerprint as mine has been removed, and i don't know the password anymore.

27 Comments
2024/11/14
13:32 UTC

18

Happy Diabetes Day!

I have lived with this disease since I was six years old, It affects my daily life. I have my insulin, my candy for lows and I have to depend on a phone for glucose, but I don't complain... I have my "I like having it" and "I hate having it" even so I'm like a normal person, but with a dormant pancreas. (and by the way, face reveal :D)

1 Comment
2024/11/14
10:35 UTC


12

What a night…

Went to bed kind of fine but I had to put like 10 units this morning. Man I hate it here…

4 Comments
2024/11/14
09:45 UTC

1

What level is closest to where your HbA1c % is at now?

Added the table below for you to understand where you might be at the moment. Look at mmol/L for your blood glucose benchmark.

https://preview.redd.it/duy9axyb8u0e1.png?width=674&format=png&auto=webp&s=804e4126153d57e347ff4ab64ae8f4c80ef2f406

View Poll

10 Comments
2024/11/14
09:43 UTC

7

newly diagnosed, any tips for a college student?

hello, i got blood tests done because i originally thought i have PCOS, turns out my blood sugar/glucose is insanely high in my OGTT test (200mg/dL, around 11mmol/L i believe?) and reached 500mg/dL around the second hour. i've not been properly diagnosed yet since it was a result for OB-GYNE but the results do lead with type 1 diabetes.

i am 22 years old, obese type 2, diagnosed with dysthymia, and i am currently working and staying up criminally late because of uni (thesis and graduating class and all that). i started cardio runs since september but i want to know if there's advice you can give me, especially as someone living with poor health care systems in a third world country? or just advice in general, since this was a thing i was really afraid to have and now it's here, there's nothing i can do but do my best to maintain it. any advice will help a lot! thank you so much!

3 Comments
2024/11/14
08:06 UTC

20

Quick Rant

Today was a rough day in general with me myself being a college student. I went to a fast food place after school and work so I wouldn’t have to cook (not the best move I know but we all gave our flaws). I get a Coke Zero and a chicken sandwich. The soda was not zero spiking me up to 298 in 30 minutes. Then I do the diabetic classic of over correcting so now I am sitting in my living room drinking apple juice thinking how nice it would be if I didn’t have diabetes on top of all the other stressful things I have in my life. Just sharing to everyone else who had a long day today.

9 Comments
2024/11/14
05:36 UTC

1

Medi-Cal enrollment and benefits

Moving (back) to CA, looking at enrolling in Medi-Cal until I get my feet back on the ground. How are they with Dexcom, Tandem, Humalog and other supplies? What about endo visits?

I’ve been using these things for ages abroad so am hoping it’s not too much of an arm twist to get a doc to prescribe them and the insurance to cover them? Anyone here with practical experience?

Also, if I’m planning on moving in the next 6 months, should I enroll now during open enrollment? Thanks, I’ve been away a long time!

0 Comments
2024/11/14
05:33 UTC

1

Washington state - Apple health question.

Hello,

Question for people specifically in Washington state, I will be enrolling into apple health soon and I have been given the option of a few different health plans. I've narrowed it down to three plans - Molina, United, and Coordinated Care (my endo is in network with these three). I called the help line and given my situation the deductible and premiums are the same for all three plans but the woman on the phone mentioned she was not able to get any information regarding coverage for any of the plans.

If anyone has experience with any of these three plans (Molina, United, or Coordinated Care), what was your coverage and overall experience like? Any insight helps, thank you.

Edit: Forgot to mention, I use Novolog, Freestyle libre 3 plus, and Omnipod DASH. Information about these products would be ideal.

0 Comments
2024/11/14
00:53 UTC

1

NEED OPINION Legs Tingling after cardio (did not do cardio for months)

Hey guys, I have a very hard academic year and I am sitting a lot at my computer and desk. I finally decided after months of not doing cardio to give a 30 min on a spinning thing that simulates running. Hours later as I am back to my desk doing work, I notice a disconfort in my legs. Tingling sensation. could this be just because I did not do cardio for a long time or does this more look like a Type 1 diabetes issue. It scares me so please give me your opinions.

0 Comments
2024/11/14
03:38 UTC

1

Tingling sensation in legs after cardio (Full context below)

Hey guys, I have a very hard academic year and I am sitting a lot at my computer and desk. I finally decided after months of not doing cardio to give a 30 min on a spinning thing that simulates running. Hours later as I am back to my desk doing work, I notice a disconfort in my legs. Tingling sensation. could this be just because I did not do cardio for a long time or does this more look like a Type 1 diabetes issue. It scares me so please give me your opinions.

2 Comments
2024/11/14
04:03 UTC

1

Hair loss

I (18m) was recently diagnosed with t1d and have been shedding a lot of hair recently. Noticeable amounts of hair on my clothes and in the shower drain. Family history of male pattern baldness, but this seems to be a little early. Could diabetes be causing this in any way? BG is alright, this month I’ve been about 75% in range with a 150mg/dl average.

2 Comments
2024/11/14
03:57 UTC

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