/r/diabetes_t1

Photograph via snooOG

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, diabetes technology and CGM graphs.

Welcome to r/diabetes_t1!

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, and CGM graphs.


Please read our rules before posting.


Blood Glucose Levels Conversion

To convert mmol/l to mg/dl you have to multiply by 18. To convert mg/dl to mmol/l you have to divide by 18.

mmol/l mg/dl
1.0 18
2.0 36
5.0 90
10.0 180
20.0 360

HbA1c Level Conversion

To convert A1c from IFCC to DCCT = 0,0915 x IFCC + 2,15

IFCC DCCT
4.0% 20
5.0% 31
6.0% 42
7.0% 53
8.0% 64
9.0% 75
10.0% 86

Please read our wiki for additional diabetes-related resources.


Related Communities
r/diabetes
r/diabetes_t2
r/dexcom

/r/diabetes_t1

62,723 Subscribers

1

Antibody results

My youngest was diagnosed at 6 he’s 11 now. My 14 year old opted to do the trial screening. I just got the results. It says znt8 less than 10, IAA less than 0.4, 1A-2 less than 5.4, and GAD less than 5. It’s says they are within normal limits but contain a bar graph and it seems a few are bordering the high end of normal. I’ll hopefully be able to speak to her doctor tomorrow. Anyone diagnosed with being borderline? Thanks for any insight.

0 Comments
2024/12/01
22:06 UTC

1

Bolus questions

Newly diagnosed type 1 here. I've got pretty good control, but I was wondering how other diabetics approach these scenarios.

The dieticians tell me I should only bolus for foods where the carbs hit relatively quick like bread, cereal, fruit, sweets etc. I'm not to bolus for green vegetables with small quantities of carbs, or even for things like onions and peppers. What do you do for these and how do they affect you? What about protein? They tell me not to bolus for protein but I've seen some people say they bolus for that because of gluconeogenesis.

And what about exercise? I go pretty hard in the gym, and I find that sometimes I go low afterwards.

0 Comments
2024/12/01
22:01 UTC

12

Regarding the recent post about how negative this sub has become.

I come to share a (for some reason) unique perspective.

I am eternally grateful for this illness.

Been diabetic since 1999.

Undoubtedly would have been less healthy without it.

Diabetes made me grow up fast, and care about myself more than the average person does in their early years on this earth.

We are a rare community filled with fully functioning cyborgs with sensors in our arms and shit. That is cool af.

Most of us live and die with all our limbs and vision, and it has never been more likely that we will live a long and full life, considering the tech that has broken through with cgms and pumps over the past several years.

Treat this illness like a blessing, and it will be one.

Treat it as a curse, and it will be one.

Life is simple, fear of dying is common, fear of losing a leg or vision should be a thing of the past.

Trust your instincts, trust your insulin pump.

Escape from the “my life sucks” mentality that comes with diabetes, and embrace the peculiar life you live.

On the long list of why this disease is a nuisance, (1. Exhausting, 2. overwhelming, 3. expensive, 4. debilitating) try to remember the benefits.

  1. Skip lines at amusements parks sometimes.
  2. Other things

I’m kind of losing focus on why started writing this.

This shit is exhausting tbh.

Fuck diabetes actually.

But whatever tho.

Embrace it, because otherwise you’re just a self pitying, “woe is me, life isn’t fair,” head ass individual.

If you have 10 fingers and 10 toes, you’re blessed.

If you’re missing limbs but still have your vision, you’re blessed.

If you’re missing limbs and also lacking vision, you’re fucked. (There is literally a 0% chance they can read me saying that bc no hands or eyes.)

Anyways, I say all that to say this:

I actually forgot the point I was trying to make.

7 Comments
2024/12/01
21:49 UTC

1

Cánula broke?

Can the cánula on my infusion set broke and get stuck inside my skin? I use accu check solo pump with 9mm cánula, I change spot 4 days ago and yesterday started to feel pain similar to when I have my pump on in the previous spot, especially when I stretch my arm I can feel it. Can the Teflon needle be broken inside my arm? I didn’t pay attention when I remove the patch

0 Comments
2024/12/01
21:49 UTC

1

Insulin not working on me

Insulin has slowly worked less and less on me until now. I’m injecting a lot of different new and old and different brand insulin and none seem to get my blood sugar down much.

For reference I am a an athlete, I am 10% body fat and workout quite a bit, I track all my calories and carbs so I know exactly what I’m putting into my body.

Starting 3 months ago it would seem that the effect of insulin on my body is decreasing. I’ve tried many insulins and they work but not much not sure what’s going on. I would like someone to let me know if they have an idea or if they’ve had similar issues, I have an insulin pump and I’ve tried the flex pens and the same thing seems to be happening.

5 Comments
2024/12/01
20:48 UTC

6

Is it just me or is Nightscout insane to setup?

I feel like I need a PhD in astrophysics and rocket science to understand anything... And it seems like this is a resource a lot of T1Ds use.. What am I missing? Is it even worth the absolute headache? I can't understand anything...

5 Comments
2024/12/01
19:23 UTC

8

Small Victories

This is by far nothing HUGE, but after trying so hard to get out of my teenage diabetic burnout, I’m finally making steps! It’s been 6 years of trying to reform habits, and I’m starting to see the progress!

I really used to have a hard time remembering to pre bolus before my meals, and staying in range was hard too. But now I’m remembering to do it more often, and I’m even taking my hypos as slight victories, as I used to only have hypos once or twice a year.

0 Comments
2024/12/01
18:27 UTC

1

infected pump site?

so i took my site off of my arm yesterday to change it and it wasn’t painful and didn’t look any different than usual. a few hours later though, my arm hurt anytime i moved it a certain way or laid on it. i looked at the spot and it looked fine so i brushed it off. well 😀 this morning it hurts even worse and there is a large red spot on my arm that feels hard when i poke it. has anyone had this happen to them?? i’m probably going to go to urgent care bc im a little freaked out lol

0 Comments
2024/12/01
17:00 UTC

57

Can We Really Eat Whatever We Want, or Are You All Wizards?

So, I’m about two months into my Type 1 Diabetes (T1D) journey and, like any modern human, I turned to the internet for wisdom. What I keep seeing is this magical advice: “You can eat whatever you want, just bolus correctly lol.”

Excuse me, what?! Are y’all out here munching pizza and brownies like it’s no big deal, or am I missing the secret handshake to this club?

Because here’s where I’m at:

Bolus timing is a circus act. Am I supposed to predict the future of my blood sugar? “Hmm, yes, I see a spike coming in 43 minutes...”

Larger doses of insulin scare me. Am I just supposed to YOLO my way into a carb-heavy meal and cross my fingers that I don’t crash later? Are you all just injecting yourselves with large doses of insulin. The max I ever did was 6u.

Insulin pumps = cheat codes? Are pump users living the high life because they can tweak their doses mid-meal? Or are they just as stressed about counting carbs as the rest of us?

Meanwhile, here I am injecting myself like a responsible adult, cautiously nibbling on salads, and still finding my blood sugar pulling a Cirque du Soleil. How are you all doing this so casually? Is that because I’m so new at this?

And yes, I know, moderation is key, but this is real life. No one has just two teaspoons of peanut butter or 1/3 slice of pizza.

Send help, advice, or at least some solidarity. Bonus points for snack tips because I’m over here snacking on cheese sticks like it’s my new personality.

(Also, my mom doesn’t believe I have type 1 because of no family history. Thinking something is mimicking it. Is there something that can definitely confirm it?)

103 Comments
2024/12/01
18:07 UTC

1

Overwatch recs for TruSteel infusion sets?

Any particular brand or style that works best? The adhesive doesn't seem to last long on these.

0 Comments
2024/12/01
17:50 UTC

1

Advice on insurance and Drs

Wondering if anyone has any advice: my insurance just went active Dec 1 (today) well my Dexcom’s run out on dec 20. So I need a prescription before then.

Does anyone know if teledocs will prescribe insulin or Dexcom?

I also don’t have a current active prescription for either due to being without insulin for over a year and doctors near me don’t have availability before end of December. So am I screwed on getting my Dexcom and insulin?

0 Comments
2024/12/01
17:13 UTC

4

CGMs in cold weather

I finally got on the Dexcom G7 months ago - and I love everything about having all this data! But I've had a couple challenging experiences in cold weather, which is a bummer because I spend a lot of time outdoors in winter.

I've had a few sensor errors before but they usually pick back up after 20 or 30 minutes.

The other day I was out in temps around -12 C (10°F) and it had a 'sensor error' within a few minutes of getting cold, and never came back after 3 hrs and just said to change sensor. It would have expired that evening anyways, which may have contributed to the failure, but I would like to maximize the time out of all this equipment.

It was always under a baselayer, and for all but the first 10 minutes underneath a puffy and a shell. That's about as warm as I could dress for the day. I'll try not to let it get cold in the first place next time.

Tips, tricks? I assume it is the sensor itself getting cold, and not my phone. Is it worth wrapping compression bandage around the sensor? Putting a chemical handwarmer on it? Or maybe it's more my skin thats getting cold, causing readings to not register?

Also moving to a pump in Feb, so I'll have to learn to deal with that in the cold, too.

TIA and hope ya'll are getting after it this winter!

4 Comments
2024/12/01
16:01 UTC

3

What is the best placement for freestyle 2 sensor ?

This is my second time when i use a sensor . I putted my sensor in my arm (the recommended place) but im too skinny and i found it a little bit not comfortable also i don't wanna to get asked from strangers. So is chest a better choice? And is it accurate for reading? (Sorry for my grammar bc English is my third language)

1 Comment
2024/12/01
14:04 UTC

3

Severe Hypo From Toujeo Injection

Last Wednesday night I did my Toujeo injection as usual at around 9:55pm (32 units). Within ten minutes my blood sugar was plummeting, I drank a can of coke, ate some jelly babies and glucose tablets and nothing was working, after that I remember nothing. I woke up to see my parents and a paramedic who revived me with glucagon and glucose through an IV line. The paramedic said my blood sugar was 1.1mmol/L when he arrived.

I know Toujeo has the same method of action as Lantus, so it's likely to be what's known as a "Lantus low". I.e. The Toujeo went straight into my bloodstream. How can I explain this to my endocrinologist? When I see her next week she is likely to say it's because I'm on too high a dose, which is not correct. I've spoken to a diabetes nurse from my hospital and she wants me to reduce the basal dose. But it's clear to me that what happened is not a result of too much insulin, rather it's a "Lantus low". Doctors don't seem to understand this from other posts I've seen online.

I'd like to switch to Tresiba, as I understand it works differently to Glargine insulins. I'm nervous about taking Toujeo now.

5 Comments
2024/12/01
13:43 UTC

7

Tslim x2 for 6 weeks & lowest hba1c in 22 years

I have been living with type one diabetes for 22 years, and my previous lowest hba1c was 62, after 6 weeks on the tslim it's the lowest it has ever been! I never expected it to be so life changing for me!

1 Comment
2024/12/01
13:31 UTC

4

Stress from driving on flooding roads=2.5x insulin requirement for a sandwich!

1 Comment
2024/12/01
09:01 UTC

32

Wow

Not trying to flex, but damn this was a good night 😳

I think all the cinnamon has finally paid off!

7 Comments
2024/12/01
10:01 UTC

1

BYOD help

So I completed the form but I can't even do the first download. I'm not really practical with these things and also English isn't my first language so I could be getting confused. Could someone help?

0 Comments
2024/12/01
09:16 UTC

2

College advice?

Hi! I’m a senior in high school, and will be heading off to college next fall. I’ve had T1D for about five years and have always had my amazing parents, friends, teachers, and medical staff around for support. I am truly so blessed. However, I’ll be going out of state, and the thought of managing things on my own is definitely overwhelming. We’ve been talking to medical care services at my prospective college, so I know I’ll have some support, but I’m really worried about dorm life.

I have a Dexcom and an Omnipod, so alarms are a regular (and quite loud) occurrence. I’m especially worried about the middle-of-the-night ones. I’m a really heavy sleeper, and I don’t want to disturb my roommate or anyone else in the building. I plan to talk to my RA, but I’m just anxious that I will upset my roommate or others. I cringe at the thought of my RA or roommate having to wake me up if I can’t on my own.

Also, I love my parents so much, but I’m worried they will be very protective once I’m away, probably even more so than they have been in the past. I want to experience the independence that so many highlight as crucial to living and learning as a young adult. I know they care so much about me, but, like I said, they have tended to be pretty protective. I know it comes from a good place, but it does scare me.

Has anyone been through anything similar that can speak to their experience? Or just have any advice in general about managing T1D in college? Thank you so much!

4 Comments
2024/12/01
09:11 UTC

1

Poll: are you male or female?

0 Comments
2024/12/01
08:06 UTC

1

Any Omnipod 5 Users in San Diego? Need Help with Controller Login!

Hello fellow T1 Diabetics. I’m making the switch to the Omnipod 5 and I’ve got my pods ready to go, but I’ve hit a roadblock… looks like I need to log into my account using an Omnipod 5 controller before I can get started.

Is there anyone in the San Diego area who has a controller and wouldn’t mind letting me borrow it just to log in? I promise it would be super quick, and I’d be incredibly grateful! I’m happy to figure out a way to thank you for your kindness.

Appreciate you all, and thanks in advance for any help!

3 Comments
2024/12/01
07:41 UTC

0

Worried about potential onset symptoms

This is pretty gross, but I’m really worried about it, so sorry if I’m being weird. I noticed that my semen smelled extremely sweet. Almost like a sugar cookie. I haven’t been eating really eating any fruits and actually have been drinking recently which is supposed to make it more bitter, but suddenly it smells way more sweet than it ever has.

6 Comments
2024/12/01
06:13 UTC

2

If you know you know!

2 Comments
2024/12/01
05:53 UTC

7

Stubborn highs

Any tips for stubborn highs? I was literally stuck like this for hours even after dosing regularly, drinking water and moving around lightly. finally just started to go down but it was miserable

12 Comments
2024/12/01
04:48 UTC

8

Has anyone heard about the inhalable insulin Afrezza?

23 Comments
2024/12/01
03:51 UTC

10

Have you ever lost consciousness due to low BG? What happened and how low was your blood sugar?

29 Comments
2024/12/01
03:33 UTC

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