/r/diabetes_t1

Photograph via snooOG

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, diabetes technology and CGM graphs.

Welcome to r/diabetes_t1!

We're a forum for the discussion of Type 1 diabetes including treatment, research, moral support, rants, and CGM graphs.


Please read our rules before posting.


Blood Glucose Levels Conversion

To convert mmol/l to mg/dl you have to multiply by 18. To convert mg/dl to mmol/l you have to divide by 18.

mmol/l mg/dl
1.0 18
2.0 36
5.0 90
10.0 180
20.0 360

HbA1c Level Conversion

To convert A1c from IFCC to DCCT = 0,0915 x IFCC + 2,15

IFCC DCCT
4.0% 20
5.0% 31
6.0% 42
7.0% 53
8.0% 64
9.0% 75
10.0% 86

Please read our wiki for additional diabetes-related resources.


Related Communities
r/diabetes
r/diabetes_t2
r/dexcom

/r/diabetes_t1

61,994 Subscribers

1

Pump opinions

So, i wanna take pump basics soon, but i want some of your guy's advice, and your experience with one. So advise away!

1 Comment
2024/11/02
23:39 UTC

0

Best carb counting app for T1D and how to give up carb guessing?

For a few years I've been trying many apps like MyFitnessPal, FatSecret, Glooko, SNAQ, Undermyfork, etc., even paying for their premium version but they all have their ups and downs and eventually I always give up and stop using them.

Now I've been using Gluroo for about a week and I am happily surprised at how acurate it is to count carbs just from a picture (see image) and if you want to log 15 carbs all you have to do is type "15g" which is easy and quick for when you're in a rush

It has a lot of features and it took me a couple of days to learn how to use them but at least for now its completely free. It does say that it is "not yet commercially available", so it makes me think they will start charging for it in the future.

I wanted to share this with everyone, and also ask what's your go to app for carb counting and if you have any advice to not give up on them. My TIR suffers a lot when I resort to carb guessing lol

5 Comments
2024/11/02
23:27 UTC

1

Im felling best when my sugars are around 9 mmol (160mgdl) is that normal?

At that point I have most power, sharpest mind and so... Also i start to feel just a little hypo simptoms bellow 5 mmol.... dont know if that is normal

1 Comment
2024/11/02
22:26 UTC

9

Another relationship ruined.

So, a couple days ago, i confessed to my crush of 5 months. Was it too soon? yes. Did i care? Nope! Now, if you look at this title, you can see where it went wrong. So, i went up to her, and did that corny confession crap. I wanted to facepalm real bad, but i would not. And guess what she said?

Nope. Not even a no, sorry, just nope. This is where diabetes comes into play. After she said that, she looked at my Dexcom, did the darn 🤢, and left. Will the bullying ever end?

Probably not. But, my brothers, dont let love put you off from the meaning of life: which is shaping yours in whatever way you want to. Dont let some crush you have stop you.

Be. Yourself.

37 Comments
2024/11/02
22:11 UTC

3

Error on Omnipod 5 App

0 Comments
2024/11/02
21:52 UTC

2

Libre 3 vs Dexcom One+

I may now have the choice between the Freestyle Libre 3 and Dexcom's One+. Dexcom One/One+ was obviously developed to counter Abbots monopoly in low cost cgms, which are the ones I get for free in Sweden. My diabetes nurse told me that I may have the opportunity to switch from Libre 3 to Dexcom One+.

I am personally super annoyed by Libre's algorithm trying to predict my blood sugar ahead of time, almost always overshooting the target when some change occurs.

As far as I know, Dexcom does not use such algorithms? Their sensors only try and predict blood sugar with some delay (from interstial fluid glucoce)?

Is there anyone who have tried both sensors? What is your opinion on how they compare?

1 Comment
2024/11/02
21:47 UTC

22

This is exhausting.

It was my 30th birthday yesterday (yay!) I didn’t even have any sugar or cake on my own birthday, all I had was a few carbs in bruschetta and potatoes with chicken at lunch. I went out today with friends and had a burger and chips and accounted for this and yet all day it’s been high. I’m so exhausted and irritated. My Fiance bought be Cinnamon buns for my birthday and I’ve been dreaming about them since yesterday but, I haven’t had time to eat one and now I doubt I should.

For context, I’m using the 1-10g ratio and 1-1 correction factor but going to change to 1-8g I think and see how that goes. How I haven’t fallen asleep or punched someone in the face yet is beyond me haha.

SO tempted to rage bolus. 😴

7 Comments
2024/11/02
18:33 UTC

17

I did not stick the landing :(

My sensor cut out at 2 in the morning and I had to spend over an hour fingerpicking and bringing it down… it worked a bit too well (fingerprick readings drawn in for context)

0 Comments
2024/11/02
18:31 UTC

2

Best time to change sensor?

I always find it hard to decide when to change my sensor with that two hour warm up. Today I tried changing directly after eating since I need to check two hours later. But once I did I found I was really high, so not sure if it was because my pump didn't know where I was so it wasn't giving me basal over those two hours, or I just screwed up the bolus.

I've also tried after dinner as well, but I didn't like having to wait for readings before bed. I like knowing where I am and being in range before bed because my pump will do it's thing over night when I am.

So is there a "best" time to change the sensor? Should I be waiting until I know I'm in range after eating before changing it? Does it matter?

12 Comments
2024/11/02
18:30 UTC

9

Diabetes Walk and Support

Today I went to a Breakthrough T1D (JDRF) walk and had friends and even co-workers come to support me. I’m always surprised, for some reason, by how many people will take time out of their weekend and get up early to go to a walk to show their support. I guess I sometimes feel like diabetes isn’t as bad as other diseases so I expect people to be unmotivated to go support it, if that makes sense. They also had this parade of diabetics walk through a cheering crowd at the beginning, and I don’t know why but I felt so uncomfortable receiving any sort of recognition for dealing with this disease. Anyways, just feeling very grateful and wanted to share the good vibes.

0 Comments
2024/11/02
18:12 UTC

34

How does your blood sugar affect your ability to think?

Hello, I’ve been curious abt this topic for a while. Sometimes when I’m in the low 200’s I feel like I’m the most creative and have the best cognitive thoughts. But of course 300+ it’s cloudy or blood sugar below 60 not so much. It just seems weird to me that when my blood sugar is perfect (ie. ≈110) I don’t feel at my best. Is this placebo? Thoughts?

31 Comments
2024/11/02
17:15 UTC

1

Omnipod 5 IOS app uk?

Does anyone here know when the UK will be blessed with the omnipod 5 app for apple users?

Sick of my handset running out of battery every 2 seconds - feels like I’m having to charge it at least twice a day!

And for you americans on here, how is the app going for you so far? Are there any bugs/issues you’ve had that we should expect?

TIA🫶🏼

1 Comment
2024/11/02
16:30 UTC

56

ADHD+T1D: I’m wearing 2 Dexcoms & I don’t know why.

Is it even possible to have adhd & good management?

When I had a shower last night I realized I’m wearing 2 dexcoms, both look like they just been inserted, over patch clean, I checked & im definitely gonna be needing an extra sensor for November.

I don’t know which one is the one connected to my phone so ima gonna have to leave both on for the next ten days

🫠🫠🫠🫣

43 Comments
2024/11/02
15:42 UTC

2

Tresiba vs Toujeo vs Levemir

Hi everybody. Background info; I’ve been on Lantus my ENTIRE life, and it’s just been 👨‍🍳💋. Recently, though, it has just stopped working for me. I’ve had 2 subsequent A1c’s < 5.9 and been waking with hypos every. single. day. My doctor recommended switching to Tresiba and dividing the dose into 2. Now, I know the half-life is longer and duration of action for Tresiba is around ~40hrs more or less, and that scares me. Hypos are less on Tresiba because of the “less intense peak”, but I remember one endocrinologist I rotated with (I’m a medical student myself) pointed out that Tresiba users often need frequent snacking to prevent lows due to the longer duration. I’ve also read up on the side effects of weight gain and increased appetite, and I would very much like to keep my weight as it is. Toujeo is just as good but I can’t find much about it. Levemir causes swelling apparently and lasts ~12h (I definitely will not enjoy having to start dividing my basal doses in addition. I already do that with my rapid-acting Humalog for burgers and it’s hell 🥲). Toujeo seems to be the middle ground here. Anybody switched from Lantus to Toujeo or Tresiba and had good results? Please share your experiences. Thank you all!

7 Comments
2024/11/02
13:04 UTC

27

2 slices of pizza...2 units up front with 2.8 units over the following hours, with a 15 minute walk to stave off an out of bounds peak. I topped out at 168. I'll take it!

3 Comments
2024/11/02
09:49 UTC

2

Random insulin resistance in evening?

I've been keeping all my numbers under a real tight control, got my TiR to 84% over a week and 70% over 90 days, debatable some of the best I've ever had. But all of a sudden in the evenings I spike after food and also without food. The rest of the day is perfect fine, but after 6pm till about midnight insulin does nothing. I've adjusted basal I've took increased insulin nothing works. Is the stress of moving causing an issue without me even realising how stressed I am or what do you guys think. 19 years of this disease and it still hits me with miserable curve balls

9 Comments
2024/11/02
09:36 UTC

1

How much backstock to keep?

Been lurking for awhile, first post. Hey everyone!

I was Dx’d 2 months ago in DKA in the ER. BG at 417 and A1c at 15.5 so its been a wild ride. Im 27 with no family history outside of a cousin or two so adjusting to this new life has been pretty crazy. One thing im really struggling with (albeit minor) is figuring out how much backstock of supplies to build up and maintain.

I hate being wasteful so I want to prevent as much expiration as possible while also making sure I have an emergency supply incase of job loss/insurance changes/another global pandemic or whatever.

-Humalog pens? I have none currently as I just ran out and started the Omnipod. I can draw a syringe a few times if needed, but anymore than that Id want a pen. -Lantus pens (I have 1, a few more days and I can pick up 3 more)

I have a pretty healthy amount of everything else: lancets, strips, pen needles, syringes, pods, dexcom sensors but would love input on what is a comfortable stock level for you, especially with backup insulin being on a pump. Should I just say screw the Humalog pens since I am primarily on a pump? (May have to pay OOP for pens since I have vials)

Welcoming all thoughts :)

5 Comments
2024/11/02
07:41 UTC

212

Today is my diabeticiversary, 39 years.

I was diagnosed the day after Halloween in 1985. I was 6 years old.

When I was first diagnosed as a type 1 diabetic, I started off with one shot of nph once a day. I vaguely remember taking blood at home and you had to put a drop of blood on, wait a minute or two wipe it off and then you stuck it in the machine and it was a 5-minute countdown.

I remember the glucometer went from 5 minutes, eventually to 3 minutes then to 2 minutes, then 30 seconds, then 15, now 3 seconds. Kind of weird to think about The length of my time as a t1d in relationship to time it took to test my blood sugar.

I remember being in the hospital for a full week when I was diagnosed. I practiced injecting on an orange and a baby doll. I was not allowed to leave the hospital until I could prove I was capable of giving myself my own insulin shots.

I can still remember the first bakery that my mom took me to that offered a sugar-free donut. It was absolutely disgusting, and but I smiled and eat it because it was the first baked good I'd had and what felt like forever.

I was an insanely active kid. In the mid-90s we would leave the house in the morning for swim team practice, my mom would give me five bucks to buy a hot dog and a soda for lunch. We do swim team practice, play in the pool all day, ride bikes all afternoon, be home by dinner.

I don't know now how that happened.

I don't remember when over the years but I went from one shot of nph a day to two. Two then three shots a day. At some point regular was added in there.

I moved up to four shots and then five shots.

When I was in high school I was in some of the last rounds of human trials for Humalog insulin.

I've been on it ever since it came out on the market.

When I was first diagnosed the doctors told my mom I wasn't going to be able to do a lot my whole life and possibly never have children.

This is not a brag, this is a " I never let it slow me down" moment. I went camping, white water rafting, traveled, scuba dived, had two freaking amazing children. All these things that I wasn't sure I was ever going to have and I was able to.

I know it's not the same for everybody, this is just me.

There's ups and downs through this disease, literally and figuratively.

It's not an easy disease to live with whatsoever, I know this. 39 years in and I still cry and I still think why me and I still hope for the cure, but I'm still here and so are you.

I don't post a lot anywhere in Reddit but I read almost everyday and I truly appreciate this group. I appreciate you guys being supportive of one another. I value the knowledge I've learned through you all. I'm still learning things about this disease.

And my dad found out a week ago but apparently waited till today to tell me that he is just diagnosed as a type 2 diabetic. We rarely talk about my anniversary, Believe it or not I only found out the actual day a couple years ago. Beccit's just always been a part of who I am. I never really thought about it. And I asked my dad and he told me it was the day after Halloween.

I'm not great at writing and I tend to ramble so thanks for letting me get this off my chest.

15 Comments
2024/11/02
03:33 UTC

101

Guess the carbs

Sometime back Monkey had his cake for his sister's bday.

If you guessed 2-3g you are correct, most of it was from the sprinkles. 🤣

62 Comments
2024/11/02
01:34 UTC

62

Smoking marijuana and diabetes

I'm curious, how many T1D's are smokers over drinkers? I find that I really hate the side effects of drinking alcohol, and a lot of my other T1D friends are the same way -- will smoke over drinking as their form of "relief" since it's more controllable.

91 Comments
2024/11/02
01:20 UTC

3

What a fun night 🙃

I’m assuming I just didn’t take enough insulin for dinner which is weird because it’s worked before but hey, that’s this disease for you.

I sit down, I rise. I go for a walk or do house work, I fall. I sit down, I rise. I get up and do something else, I fall.

I’m so tired.

9 Comments
2024/11/02
01:02 UTC

10

Does anyone else’s sugars drop after napping?

22 Comments
2024/11/02
00:06 UTC

3

Keto friendly ice cream

Hey guys, just wondering something quickly. Does anyone know about good keto friendly ice cream? I’m in the UK right now and would really like something that isn’t chuck full with carbohydrates.

3 Comments
2024/11/02
00:04 UTC

1

Post Covid extreme spikes?

I just got over having Covid a few days ago and weirdly enough I realized my sugars were completely fine for the entire time, but now that I've recovered, I'm having two sets of extreme spikes in the evening, both 150+. I first thought it was a long acting issue, went up on my tresiba, nope. Fighting lows all day just to wake up at 3 am to me being 270 (after i dipped all the way down to like 78 beforehand and without a fast sugar). Going from an 85-90% TIR to almost 60 seemingly overnight. Has anyone else had this happen to them? Is it just my body trying to recover?

4 Comments
2024/11/01
23:58 UTC

394

My new tattoo

32 Comments
2024/11/01
23:09 UTC

53

It Happened!

A horse ripped my Tandem tubing in half! At least my site is still in🎉

36 Comments
2024/11/01
23:05 UTC

3

Books on digestion etc.

Hey everyone,

I would really much like to know how different foods are digested, how insulin resistance works on a biological level and when/how our glucagon is filled up etc. to better understand the effects on my blood sugar.

Are there any books that you could recommend on those topics, that might help me to better understand the processes within my body? Can but not necessarily only related to diabetes!

1 Comment
2024/11/01
21:49 UTC

1

Just got diagnosed with T1

Hi everyone! I just got diagnosed with type 1 diabetes. I'm 20 years old. The doctors say there is no other option other than taking insulin. I'm very hesitant about starting insulin at this young age. My fasting is between 150-160 mg/dl for the past few weeks. Ever since the diagnosis I've started to eat healthy and excersize more. Should I start taking insulin right away or should I wait for some time. I'm very stressed right now.

32 Comments
2024/11/01
17:02 UTC

7

The experience of the inexperienced

So my 12 year old daughter has switched sensors (libre to Dexcom) but she had some libres left.... And she wanted to latch one on to me..... So she did.... Will be interesting, to me, to really understand how I can go through the day and see how it changes.....but the end result will be me grasping how bloody hard it is for folk who have to worry about their levels every minute......

5 Comments
2024/11/01
20:11 UTC

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