Welcome to r/Celiac!

I am hoping to get married in the next few years, and honestly being celiac is one of the most concerning factors at play. I don’t even know where to begin when it comes to reception food and cake. I live in a fairly rural area so finding a strictly GF caterer would be off the table. I am sure I could express my concerns with a caterer but I feel like anyone who would be willing to accommodate to the nines would be way out of budget. Plus even if someone were willing to, accidentally using the wrong spice could potentially poison me on one of the biggest days of a person’s life so I’d have to reallyyyy trust them. Then there is the idea of potentially doing more of a Buffett style and prepping it ourselves. Very early stages of planning so I have literally no clue yet.

Just curious as to what some of you opted for your own weddings/celebrations.

My mother and possibly brother (getting tested currently) are celiac too, and I told my partner I’d be damned if I can’t eat at my own wedding 🥲. I feel like it would be odd to have separate food brought in just to accommodate us and it would probably make me a little sad to feel excluded at my own wedding, but I also don’t know how open guests may be to a fully gluten free reception.

Apparently my peanuts may contain wheat. I'm just here to vent because WHY THE FUCK does something that should be just peanuts and salt contain traces of wheat?! Clean your equipment you absolute turdburger wank stain corporations!!!

That is all.

usually i’m a lot more careful about kissing them after they have gluten and make them brush their teeth. i just wanted a kiss goodbye and now my stomach hurts and i’m getting brain fog </3

Was craving some good old fashioned fried chicken so I busted out the deep fryer. Came out great 👍🏻.

Just chicken breast cut into small pieces marinated in buttermilk for an hour. Coating is gluten free flour, tapioca starch, chicken seasoning and salt and pepper.

Fried at 375 for about 6 minutes per batch.

For those of you that have been diagnosed via endoscopy: I've got my very first endoscopy coming up in about 4 weeks, and I've been prepping by eating 1-1.5 slices of wheat bread a day, and just wanted to ask if you guys think this would be enough to get a positive for someone that may have it?

I was underweight my whole life, and after finally achieving a weight that I was healthy with I noticed that I've already started to lose weight after three months of being on my diet. I feel like crying, but I don't want to lose hope.

If anyone else is going through something similar, are there any specific types of food/possible workout routines for building muscle that you've done to keep the weight on you?

Hi! I was diagnosed with Celiac disease 3 years ago and currently trying to build up a following on social media to not only already awareness but to support a community. Does anyone know any brands I could reach out to, or if they send pr out so I could review and post?

I honestly thought that glutening kisses were something that only happened to extremely sensitive Celiacs and it wouldn't really happen to me, but boy was I wrong. My boyfriend and I are extremely careful usually; he eats gluten free at home and out at restaurants, and only has gluten snacks sometimes and they're stored in a cabinet far from the GF food. We didn't even kiss for days or weeks at a time at the beginning (diagnosed 6mo ago) because I was so scared of him glutening me, but now that we're more settled into the lifestyle I guess we're not as careful as we should be.

I don't blame him entirely, I should have caught it and not kissed him. He ate a bunch of Cheez-its earlier in the evening, and we kissed a bunch a few hours after that and that's when I realized. He didn't even remember he ate them lmao, so we're definitely going to have a talk about this incident and how to avoid it in the future.

But man does this suck! He feels horrible (emotionally), I feel horrible (physically), and nobody wins! If y'all have any tips on how you guys avoid this with gluten-eating partners, feel free to let me know lol. 🫠

My daughter has been having major mood swings the 2 weeks, which is usually a sign she’s been glutened. But the only thing new that she’s been eating are the Perdue GF chicken nuggets we bought from Costco.

She has eaten the Perdue GF chicken breast tenders without issue, so I’m really at a loss

And this is the only thing different that was added to her diet, and she’s reacting 12-24hrs with huge mood swings after eating.

She’s 7, but I provide all her food so I’m really at a loss of what’s causing the massive change in behavior recently.

Been gluten free for almost two years now. I still get super sick eating any sort of carb. Potatoe chips make me bloated. Eating rice feels like knifes stabbing my stomach. Corn makes me super bloated and gassy. Never had these problems before being diagnosed. Doctor says it takes quite a while for the body to adjust to a gluten free diet. I just feel like I could have something like an infection that is causing this. Gastro wrote me off saying it is celiac and nothing else. Just frustrated.

Hey, I don't have celiac disease nor does anyone in my household but I'm baking specifically for a friend and I don't want to risk any cross contamination at all. Is there anything I need to be careful of -- e.g. can I use a bowl if it's been completely washed, should I avoid using wooden spoons etc. etc.

Sorry this might be a stupid question!!! I've never baked anything specifically for those with allergies before and I want to be as careful as possible.

Also any ideas for baked goods would be appreciated!! I was going to either bake something like cookies and just use oat flour and check everything but might make macarons or something instead <3

what the title says. if it's professionally refurbished, is it cleaned enough to be safe for celiacs, or do i need to purchase a new appliance? looking at (saving up for) both kitchenaid stand mixer and vitamix blender system.

Hey guys, I went for a blood test after my sister tested positive for celiac and I have exactly the same symptoms after eating gluten as she does (constipation, headaches, tiredness, so on) Unfortunately the test was negative. I was very surprised, as was the doctor and my family.

Could it be that I don't yet have antibodies but already have symptoms or that I am one of the few who don't produce antibodies? The doctor doesn't want to do an endoscopy yet, but a colonoscopy first. Just to make sure that I don't have IBD or CC. (Hopefully not am 27f) Is there anyone who has had the same experience? I'm feeling a bit lost right now. Thank you very much 🌞

I can’t really find anything on if it’s gluten free or not so I wanted to ask on here to see if anyone has had these with no issues when sick.

Hey all! Anyone have some recommendations for non-USA owned Gluten Free products I can buy in Canada now that I’ll no longer be purchasing anything from a US based company? Bonus points if it’s Canadian!

**Edit: thank you for your replies, but you may be misunderstanding my question. I'm asking about butter as a whole. Whether it is dedicated or communal I seem to have a reaction to butter and mayo actually, but no other dairy products. Does anybody else have this issue? I typically do have dedicated condiments, butter, mayo etc. This is just the one time I slipped up.

Hi friends.

I made myself a grilled PB&Banana sandwich with a splash of honey for dinner Saturday night. Woke up at 2:30A violently sick, and again at 4. It's now Monday morning and I'm still sick.

I live in a home with a shared kitchen and used the new end of the communal butter in the dish on the counter (someone used the last of my dedicated one) not thinking anything of it. While this whole thing may be a bad case of stomach flu, I realize now, that this isn't the first time I've had a reaction to butter. But I don't have issues with other dairy products. Is this a common thing? Are there other celiacs out there that have reactions to butter but not to other dairy products?

[Someone always asks, my diagnosis is not new]

Thanks for reading ❤️

https://abc6onyourside.com/news/nation-world/chocolate-recall-recalls-recalled-escalated-highest-risk-level-fda-sold-nine-states-ohio-cincinnati-consumption-eat-food-death-risk-warning-allergies

6 years ago my blood test came back at 8 u/mL (0-7 normal range).

This was suspected celiac but they never followed up as they were supposed to (as per the notes on my GP record).

At this point I assumed celiac is now diagnosed but they just said it’s likely.

Ive eaten gluten every now and then, which I probably shouldn’t but maybe 30 percent of the time I get a brief reaction the following day, maybe a few cramps, bloated, etc.

It seems to be more of a case of IBS/IBD instead.

Anyone else had a similar issue? I’m hoping to get another test done with GP but I’ve heard some people’s anti TTG results were over 150 which is massively higher than mine…

I’ve had celiac for 10+ years and have always just said “yes” when a waiter asks if my request for gluten free is an “allergy”. I do this because it is easier than explaining celiac disease, but I want to be better educated myself. My specific question: is a gluten allergy possible?

Typing that question into google gets me:“While the term "gluten allergy" is often used, technically, someone cannot be directly allergic to gluten as a protein”

When I google what the definition of an allergy is, it seems we can be allergic to certain proteins.

I’ve always believed that gluten allergies didn’t exist, people either had celiac disease or a gluten intolerance/sensitivity, neither of which have anaphylactic responses.

So can someone have a gluten allergy that requires carrying an EpiPen?

Note: I’m specifically asking about gluten allergy, not wheat.

I just got diagnosed with celiac, ive always had weird reactions to gluten and im already lactose intolerant and have ibs. What am i supposed to eat? Ive always eaten gluten and dealt with the painful consequences thinking it was normal, i dont know how im going to cut out gluten just like that… even though i know ill feel 100 times better. i could use any advice anyone has to give

Edit: i forgot to mention i live at home with my family who all eat gluten, so theres gluten products EVERYWHERE in my house

So… I was diagnosed with celiac 12y ago, but based on everything i must have had it since i was born. Im not nearly good enough in sticking to my diet and something i “sin” knowingly. I also have IBS. Anyway - ive been sticking to my diet lately. For past 4 days ive noticed unbearable need to “go #2” immediately after meal, like i literally have to RUN to the toilet most of the time. Doesn’t matter if it’s full meal or just a bowl of popcorn, i eat and i have to go. Immediately. Anyone experienced this? I was googling a bit and didn’t really find anything worth considering. Could it have something to do with drinking something right after eating? Because that’s exactly what i do all the time. Thnx ❤️

Hello, wondering if anyone’s ever experienced vague eye symptoms after being glutened? For the last 9-12 months I will randomly wake up in the night (occasionally occurs during the day but very rare) with horrible burning, red, irritated eyes. I can’t figure it out but last night it happened and we did have regular pizza and crab Rangoon for dinner. Resolves with cold compresses for 30-40 mins. I don’t wear any makeup. No changes in any face lotions (cetaphil). Puzzled.

So it's 3am and I'm craving moon pies so I look online to see if there's any gluten free versions, and after a few seconds I see an Amazon link to the official brand with gluten free in the description. I think "oh wow they have a gluten free version now???" and click the link.

After checking the picture of the box and see no mention of gf, and see wheat on the ingredients (but not as an allergen mind you), I scroll down to check the website allergens and see this. I don't understand how this happens but it's certainly frustrating to have your hopes immediately dashed...

I've been fully gluten free for probably 2 to 3 years now. Literally labels get checked except for an oopsie with gf cookies containing oats this week. But I've been good. However, my sugar is really low. Has been since I've been totally gf.

Does anyone else experience this? I've had to add in glucerna into my diet to help. But it will suddenly plummet into the 70s. Sometimes I can eat and test it again. In an hour it will be almost 80s.

Before going gf my sugar was high. Is this a weird phenomenon? Or is this known to happen with gf. I don't have a nutritionist in my area to ask.

Ugh! So apparently Häagen-Dazs isn't gf? 😭 what are some of your fave delicious gf ice cream options?

What are some of the best gf chip options? Are they all or mostly gf? I haven't researched.

Like the title says.

• We've found safe (gluten-free on the label at a minimum), cheap emergency food that reviews say tastes bad
• We've found much pricier safe (including certified) emergency food that reviews say tastes good
• We've found cheap food that people say is tasty that claims to be gluten-free on the retail page but isn't labelled on the product itself and _is_ labelled as being produced in a shared facility or _even_, in one case, as possibly having traces of gluten :-/

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Ranty details:

I'm trying to get my family's emergency stash updated, as our food sensitivities have finally stabilized after a wild decade. Gluten is the thing that any of us are most sensitive to (two with celiac), as even the IgE allergies can tolerate at least a little occasional contamination with no detectable reaction. We need everything GF as we definitely cannot be confident in managing safe and unsafe food while stressed by an emergency and with possible disruptions to power / water (US Pacific coast, so earthquake is one of the key emergencies folks here plan for; we're overdue for "The Big One").

We're looking for things along the lines of #10 cans of freeze-dried ingredients, since corn is an allergen for one person and it is in almost everything with more than one ingredient. We do want some full meals for the 5 people who don't need to be that careful. Freeze-dried is mostly because it often tastes better than dehydrated or canned, but also because it's useful for backpacking due to being so extremely light weight. #10 cans because there are six of us and we can usually go through a #10 can in a few days or less, plus they last well so we don't need to rotate through our emergency food as quickly.

We're probably going to settle for safe and tasty but pricy. Food has a strong impact on morale during an actual emergency, after all, so "tasty" can have a huge impact on mental health for the whole group. And we have kids (well, teens) in our group, so we don't assume the maturity to grin and bear it if the food isn't at least passable.

Mountain House seems like the best option for GF full meals, and Augason Farms seems to have some certified GF ingredient options. I only buy things where I can see the GF label on the product images for that specific product, and that seems to be inconsistent for Augason.

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While this is mostly a rant over a relatively small problem that's just one of the hundreds of tiny ways celiac requires more effort / time / money and I'm mostly looking for commiseration, I'm also interested in any suggestions y'all might have.

This is for week 2 through week 4 of an emergency, after we've gone through most of what's in the pantry (though we'll also have rice and beans and a few other staples still on hand). I'm not in any condition to do my own canning / prepping, either health-wise or time-wise