Hey guys! So I have not yet been officially diagnosed with Hashis however my naturopathic doctor does suspect that it is part of the cause of my symptoms (weight gain, hair loss, fatigue, body temp issues)

I had my labs done about a month ago and then another set about 2 weeks ago and I’m feeling very confused.

It seems as though my TgAb has decreased and I haven’t done anything differently?

January 7th:

TSH: 1.6 Free T3: 3.0 TgAb: 51.26 Anti TPO: 0.56

January 17th:

Free T3: 3.7 Reverse T3: 14.8 Free T4: 1.37 TgAb: 3.3 TPO (not anti): 10

Obviously I know you guys aren’t doctors and I’m not looking for a diagnosis more so just some insight? Maybe someone has a similar experience? I’m just so confused as to why my TgAb levels have dropped so much in the span of 2 weeks.

Did you have any symptoms after or did it go ok? Please tell me your experience. Thank you

Hi everyone! Finally starting levothyroxine after my labs showed my TSH was a 10. The doc started me at 150 mcg 😳. Others I’ve talked to that have hypothyroidism have usually started at lower doses and titrated up. I’m obese, so maybe that’s why the higher dose?

I also take pantoprazole for severe GERD/BE, how would you time the meds? Doc said 4 hours apart, so my goal is take levo at 5am, pantoprazole at 9, and then eat at 10am 🤔. I’m excited to start and hopefully start feeling more like me again.

Having very bad symptoms such as tight throat/ anxiety/ tiredness/ sore muscles and I keep getting dismissed as my thyroid levels are normal but my antibodies increased

i have hashimoto's (it's been 15 years of symptoms continuing to progress) and long story short - i rely on a space heater at my workplace to stay warm enough/regulate my temperature so i can do my office job. space heaters aren't technically allowed, but without it, i lose feeling in my hands and feet and it makes working on a computer very hard. fast forward and i've been strongly advised to get a reasonable accommodation approved for the space heater. the issue is that my health insurance is via a large care consortium and there's been a lot of turnover in endocrinology. i don't have a specific doctor, beyond my PCP. when i asked about my PCP providing the medical letter for the RA he stated he could provide the list of my my medical diagnoses but that any kind of detailed information would have to come from a specialist familiar with the disease - and apparently given the turnover - one from outside the consortium. fair enough - but i have to go looking for just any endo who can review my records or do i need to find one who specializes in the RA aspect? not sure what to do here. TIA

I think it might be my meds I’m on for my thyroid. Levoxothyrine or whatever it’s called. I tried to eat within the autoimmune protocol diet and it was hard. I did it for a little but now literally the only thing I can eat without being so grossed out is ice cream. Specifically black raspberry chip. I have not gained or lost any weight because I continue to try and eat protein bars so I don’t die. I need to eat but meat and vegetables literally cause me to gag just thinking about them or looking at pictures. Fruits are somewhat okay but I don’t really like them that much and lots of them I can’t eat because I have a stomach hernia which gets pissed with fruits. Can’t even do yogurt cause it causes me to be backed up for days and can’t do Mexican food, which I love, because I break out in hives every time I eat it. Idk if anyone has gone through anything similar but I’m so tired of this. Ice cream is good but I can’t live off of it. I am also out of ice cream

So I have hashimotos and fibromyalgia. I wonder what treatment do you guys take for both.

Hey everyone, I have been thinking about removing my thyroid due to it causing me a lot of pain. I feel like there’s something stuck in my throat and it sucks. I have been tolerating this for years now but I’m so done. What are the risks of removing it? Can someone tell me about their full experience please?

So since I was around 12 I've felt this strangling, choking sensation in my neck from time to time. It didn't feel like I was running out of breath but more so like someone was applying pressure to it (squeezing) and it would be accompanied by this swelling sensation. When I would check, there was physically nothing different about my neck. There was no swelling, lumps or anything out of the ordinary. Now, 8 years later I found out that I may have Hashimoto's due to a TSH test coming out as 25 (0-5) followed by further testing revealing an alarmingly high amount of thyroid antibodies and normal T3 and T4 levels.

I have also become aware of thyroid attacks and that I have been experiencing them for a while due to a few ultrasounds revealing bits of damage done to my thyroid. Could this sensation be related to a thyroid attack? It's been a huge mystery to me my whole life. I wonder if anyone else has had a similar experience.

Husbands Birthday dinner at Hibachi tomorrow. Anyone have successful hibachi experience and what did you order?

I'm thinking of avoiding the hibachi rice and choosing white rice and select a protein with no teriyaki sauce?

What is the optimal or even the normal range for thyroglobulin antibodies??

Sorry I just made another post, mostly talking about TSH, with this question tacked onto the end, but I'm actually giving it its own post bc the more I read the more confused I am.

My results say that optimal is <115 IU/ml, but after some conflicting info on here I googled and literally every single result had a different range. I've even seen 0.0-0.9 as the normal range, still in IU/ml!!

Mine is 24.9. Does that mean anything or not??

Hello community! I’m looking for general advice on how you know with labs if you’re having a hyper Hashimoto’s toxicosis or have Hashimoto’s and Graves? I’ve received conflicting information from different general practitioners and of course received test results far in advance of my endocrinology appointment. Would appreciate any insight!

Labs: TSH 0.008 (range 0.4-5.0) TSI 2.3 (range <=1.3) T4 Free 2.0 (range 0.6-1.2) Anti Thyroid Peroxidase 403.6 (range 0.8-8.9) Thyrotropin Receptor Antibody 3.01 (range 0-1.75)

Ultrasound: heterogeneous/hypoechoic tissue characteristics and increased color Doppler flow, consistent with thyroiditis or other parenchymal disease.

I have been down an absolute rabbit hole since September when I started experiencing transient numbness in my right arm and hand. It moved up my arm and down my right leg over a course of a month eventually settling in the lower half of my body. It is like a cold feeling in my skin that is patchy and comes and goes. Sometimes I get like tingling burning sensation in my right leg and my calf will twitch occasionally as well. I was sent to a neurologist who did a nerve study on my arm and leg which came back normal. I have had a brain mri that was almost normal, with the exception of 2-3 small foci white matter glosis which my neurologist didn’t think would indicate ms but sent me for a c spine mri (no lesions and normal) as well as a lumbar puncture to rule out ms. My lp showed 3 paired o bands in both the serum and csf which indicated inflammation outside of my central nervous system and ruled out ms. I have had countless bloodwork, an Ana panel which came back negative. The only thing I have ever been diagnosed with is hashimotos. Could this possibly be from my thyroid? My endocrinologist said that numbness isn’t usually a thyroid thing but I am desperate to see if someone else with hashimotos has experienced this? If you made it this far thank you for taking the time to read this!

30F, 8 months postpartum. TSH was 4.8, elevated TPOAb so started 50mcg levothyroxine. 6 weeks later TSH had only gone down to 4.3. Dose increased to 75mcg and just over two weeks after that it's 0.6??? Tests all taken early, fasting, no biotin etc; levo taken correctly.

(I know two weeks is too soon for a test - I did a private finger prick one because my latest official one only tested TSH and I was curious about the rest.)

Over the last couple of months (since early Dec) my T4 has gone from 19 to 13 and then back up to 18 (range 12-21). Have only had T3 done twice in private tests - months ago and last week - and both times it's been in range but on the lower side.

So like, is it more likely that the levo suddenly kicked in all at once or that I'm still bouncing from hypo to hyper and back??

Also, my latest results also show TGAb for the first time and it's 24.9 IU/ml. The lab's range says that below 115 is normal but in other places I've seen that it's meant to be below 9 or even less?? Anyone know anything about that?

I'm not diagnosed with anything, as I had a baby last year it's likely PP thyroiditis at the moment and just a waiting game to see if it goes away. I've had 'subclinical' hypo in the past (pre-kids), though.

I was dx with celiac disease 18 months ago after about 2 years of being dismissed by doctors . My blood levels were through the roof but my endoscopy was inconclusive but almost certainly celiac (this is working with Mayo and Columbia). I have a strict no gluten house and also largely cut out dairy . Much of the mal absorption has gotten better with my labs but I’m still not myself . Some background I used to run marathons, half marathons and lift heavy. While I still run it’s 35-40 mins at a time of walk running. I suspect I have something that is untreated still . Symptoms that I have stuck around ; fatigue, weight gain (have gained about 40 lbs despite still moving a ton and eating very healthy foods ), joint pain (knees specifically ), inflammation and water retention, no sex drive, dry skin , a rash that pops up here and there in my arm pit area - sometimes side of my neck .

I suspect something wrong with my thyroid . I’m 42 female . My tsh t 3 and t4 I’m always told are normal - what else do I ask for ?

Really panicked right now

Hi, I’ve (28f) been diagnosed for 5 years now. I was in remission for a couple of those years. But it’s back and my flare ups have been intense. I also have an extensive list of severe food allergies that contribute to my symptoms.

This past week has been especially hard.

What cleanses have yall tried?

TIA

TL;DR: Medication is making me feel worse and I am feeling hopeless about treatment options.

Hello! I’m new to the group, I decided to seek support because I’m really going through it right now. I have had a hypothyroidism diagnosis since 2021, just recently found out it’s hashimotos. I was put on levothyroxine but was allergic so I switched to Synthroid. I stopped taking it for a year or so until just about a week ago because I couldn’t handle the side effects. For the past two months I have been experiencing a bad flare up and decided to get back on Synthroid 25mcg but am experiencing symptoms of hypothyroidism on top the side effects of Synthroid; heart palpitations, chest pain, anxiety, and flushing. I am feeling rather hopeless at this point. Suffer with the medication or suffer without. Has anyone experienced this before? And advice on how to approach this situation would be much appreciated.

Recently diagnosed

Hi everyone, I was diagnosed with Hashimoto’s three months ago and have been on Synthroid since then. My main concern is hair loss, but unfortunately, it hasn’t improved with the medication. I’m also still feeling fatigued, dealing with brittle nails, and sometimes struggling with exercise intolerance. My sister suggested I check my rT3, but I’m not sure what the point would be since I seem to be absorbing the Synthroid well (I’m only on 25mcg and did experience palpitations at first, which I assumed meant good absorption). Can anyone advise on what I should do next? Am I being impatient? When can I expect symptoms to improve? My GP hasn’t been much help, and I’m trying to educate myself so I can advocate for my health. Thanks!

I got on thyroid meds 5-6 years ago. I increased my dosage and now I am on 100mg of Levo and 40 of Lio. I take some supplements and I avoid gluten because I can feel the negative impact immediately. I was told to avoid dairy but I love cheese and butter so I don’t go out of my way to do that. But I do not consume cheese and butter frequently.

I have been feeling fine and starting last week my thyroid started to flare up. It’s to the point I see a small bulge on my neck and that burning sensation hasn’t stopped for about a week or so.

Is my thyroid dying? What do I have to do now? I have been working with a DO and it worked out well but now it has been flaring up for so long I wonder what I have to do now. Does it pass? I have been sick for the last week straight. My body is aching. My joints hurt. Digestion sucks. My neck is itchy scratchy thyroid style (prickly feeling in my neck but it’s not really the throat)

I am so scared now. I thought everything was ok and it hurts so much I can’t function. I have kids so it’s especially hard and I just declared I feel so much better than last year at work and now I am getting feeling worse than ever. Do I need a new dr? My DO did lab but never looked at thyroid ultrasounds etc and only worked based on my symptoms. I am so confused and scared 😭

I’ve had short flareups but nothing that lasts this long. It hurts I am scared. What am I supposed to do?

Starting my gluten free journey. Literally on my first day lol. 26Female. Thoughts on oils like soybean ? I literally ate banana chips, stomach feels inflamed , so bloated. Feel so overwhelmed, I know it will get better , I literally have a headache and fatigued with this concept of life change I will do but I know it will be worth it. Everything literally has soybean oils , tips or trick that helped you guys ? TYIA

Hi, does anyone with hypo/hashimotos have heat intolerance and did it improve or get worse on Levo?

I do live in a hot place (Australia) but I just suffer and hate it so much. Even last winter I was comfortable just wearing a tee and long pants.

My doctor has prescribed me levothyroxine but told me levo can make you heat intolerant and sweat more so am a bit worried it would make me feel even hotter?

Thank you

I've had hypothyroidism for almost 6 years now. I've been on levothyroxine. Just this week I found out I have hashimotos. My new nutritionist I've been seeing has recommended I take Bovine Thryoid. (I wanted to find a more natural approach.) So, I'm just wondering if anyone here has tried it and if so how are your results looking?

My doctor ordered to check my thyroid since I’ve been taking levothyroxine since I was age 21, and my numbers have been off, and my OBGYN sent an antibody test for my thyroid which came back really high, like 580? Hinting the cause of my hypothyroidism is hashimotos?

So my regular doctor upped my dose of levo, and we did labs at quest a month later. Now my antibodies are somehow higher, T level is better but still in the red, and he ordered a THYROGLOBULIN ANTIBODIES test. I guess I am feeling worried because the number seemed insanely high unless i’m reading it wrong:

THYROGLOBULIN ANTIBODIES >1000 H Reference Range: < or = 1 IU/mL

Does this just point to hashimotos or should I be worried? My appointment is a week away and I’m so anxious and unsure if this is just normal for having hashimotos or if it means something scary. If anyone can chime in without scaring me into a panic attack I’d much appreciate your input! Thank you <3

My TSH has fallen to 0.13 (corrected) but what symptoms should I be watching out for? My endo wants to wait another six months. T4 is 15.16 and T3 is 4.81.

Edit: I don't remember exactly when these started but I have certainly had jaw pain and teeth clenching and my insomnia has reached absolutely severe status. Just can't sleep.

so i grew up eating wheat and was fine until few years ago i developed hashis and high antibodies. 6 months ago i started to cut gluten from my diet (wasn’t super strict i would eat a treat here or there) but last few months i have been super strict. i did a blood test recently and my antibodies reduced by half so i am even more motivated like this is working and will continue to do it.

anyways today i was craving a burger and my local store has a veggie burger that comes lettuce wrapped so i got it. i didn’t realize the patty has bread crumbs on top of it and i ate it. it was fine but now im in bed and getting itchy all of a sudden on my entire body. it’s not a rash just weird crawling feely thing. is this gluten related? i’m disappointed im wondering if eating this gluten just ruined my entire progress. it’s so hard to honestly live and eat when u constantly worry about the food and how your body will tolerate. i’m tired and can’t believed i fucked up. ugh

has anyone dealt w gluten caused itchiness w this disease? anyone seen success w gluten cutting?

Hi all, I recently found out i have hashimotos post partum. It all started with a very large goiter. My TSH was 14, and my Thyroglublin antibody was 13 and thyroid microsomal ab was 53. i also had an ultrasound that showed no nodules but a very enlarged thyroid gland. i was started on levo 50mcg one month ago. I just had labs re drawn and my thyroid globulin antibody is now 683, TPO 56 and TSH 7.2. why are my antibodies going up even while on levo? I’ve cut gluten, seed oils, eating very clean etc etc..is there a concern for thyroid cancer even with a “clean” ultrasound? or is this just normal process of hashimotos