/r/Hashimotos

Photograph via snooOG

This subreddit does not constitute health advice.

This subreddit does not constitute health advice. Proceed at your own risk

RULES

  1. No spam or self-promotion

  2. Uncivil and aggressive behavior is not allowed Having an illness is frustrating. Please be kind to your fellow users, while civil debate is allowed comments that cross into uncivil or aggressive behavior may result in locking or deleting comments.

  3. Please provide a TL;DR for long posts

  4. No diagnosing or asking for a diagnosis We do not verify professionals. Always use caution when taking advice from others in this sub and elsewhere on the internet

  5. Do not post anything with self-identifying information

/r/Hashimotos

49,376 Subscribers

2

How do you change your diet while having and ED?

Hey everyone,

I'm an emotional eater, as well as stress eater and since I'm living alone and have depression, anxiety and ocd, so it is very hard for me to cook for myself and make sure my body gets everything it needs.

That's why I often eat processed foods and just take easier routes because anything else exhausts me and reminds me of my long and draining diet journeys.

Is anyone here who has helpful tips on how to take it one step at a time when it comes to improving your food choices while also having mental health disorders? Thanks in advance šŸ«¶šŸ»

3 Comments
2024/12/04
12:06 UTC

1

Switched to tirosint and feeling nervous

I was diagnosed with Hashimotoā€™s when I was 22 (about 10 years ago). Since then, my TSH has fluctuated so much that Iā€™ve never remained on the same dose for more than 3 months at a time. I was on generic levothyroxine tabs for about 5 years and then was switched to brand name Synthroid for the last 5 which really has not made a difference. The only time my level seems to ā€œlevel outā€ is when I am in the second and third trimesters of pregnancy! My free t3 and free t4 are always perfect.

In any case, I brought this up to my endo this week and asked her if Iā€™m destined for a life of labs every 8 weeks and she recommended the switch to tirosint, stating that she thinks I just donā€™t absorb Synthroid reliably?

I honestly donā€™t know how much I believe this, but I would like to. If you had fluctuating TSH and switched to tirosint, did it help?

Itā€™s only been two days and I just feel so anxious about it! I at least know what to expect from Synthroid

0 Comments
2024/12/04
11:50 UTC

0

Rate my supplement routine

Appreciate knowledge exchange and comments. Take daily: vitamin d, magnesium, omega 3, cumin oil. IP6 (inositol complex). +1 tab of antioxidant complex in photo. Cut out gluten, reduced dairy intake.

Also tries NAD+ but it shot up my TSH from 5 to 15 within 6 weeks. WTH. Stopping it today.

1 Comment
2024/12/04
11:44 UTC

2

My doctor wonā€™t diagnose me

I donā€™t know if my neck is normal or not.. but I wanted to include a photo.

Iā€™m in Australia. My thyroid levels keep coming back normal but I have an enlarged thyroid and high antibodies. I saw a Naturopath who said it is highly likely I have Hashimotos but canā€™t officially diagnose me. Iā€™ve gone to my doctor and she outride refuses to acknowledge it. Said something to the effect of, so what if I do - nothing can be done.

So is she right? Has anyone else had this experience?

5 Comments
2024/12/04
11:20 UTC

1

Weight gain and levothyroxine

So Iā€™ve just weighed myself for the first time since going on levothyroxine at the end of October and Iā€™ve gained weight. Iā€™ve also lost muscle mass so itā€™s not like Iā€™ve gained muscle instead. Iā€™m a bit shocked because I thought maybe Iā€™d lost a little but my question isā€¦ has anyone noticed weight changes when taking levothyroxine? If so how long into taking it? For reference my TSH is still high (about 9) and Iā€™m on 50mcg now (I was on 25).

Frustrated as itā€™s my honeymoon next year and Iā€™m so fed up of how I look.

0 Comments
2024/12/04
11:05 UTC

5

Frustrated and will never understand the random spikes

3 Comments
2024/12/04
08:18 UTC

2

Has anyone been diagnosed even though TSH wasnā€™t out of control yet?

I see an endocrinologist. Searching up my symptoms and per doctors thoughts, it seems likely it could be hashi. The only thing is that my TSH isnā€™t out of control yet. Itā€™s at the very top almost right over the limit the times Iā€™ve been tested & once it shot up to 7.54, T3 was 2.25 & T4 was .94 so from what Iā€™ve read even that isnā€™t majorly concerning but i was retested after and it came down but it was still like .1 or .2 away from being high.

So is this likely that it could still be this?

11 Comments
2024/12/04
06:07 UTC

1

Hyper pigmentation and laser hair removal

Curious if anyone has experienced hyperpigmentation when getting laser hair removal, with thyroid meds or HRT. It was a warning in my info packet at Laser Clinic. Has anyone experienced this or heard of this possibility. TY.

0 Comments
2024/12/04
05:02 UTC

2

Does anyone have purple stretch marks on their arms or stomach ?

3 Comments
2024/12/04
03:58 UTC

3

Is there a test for what foods cause inflammation ?

What professional do you go to for said test? Bonus points if anyone knows reccs in the NYC area

0 Comments
2024/12/04
03:54 UTC

2

Starting LDN for auto immune the first time in a few weeks

Researched it, going to start very low at .5 mg.

Not sure if I will ramp up .5 mg every week or every two weeks

If you needed to decrease your thyroid hormone supplementation because of the LDN, how long did that take? And could you actually feel yourself going hyper for a while?

0 Comments
2024/12/04
03:24 UTC

1

Need to change meds

Iā€™ve been on Armour Thyroid (60 mg) for years. I was NEVER good on just T4 meds. My new insurance will not cover armour. I still have thinning hair all over and no matter what I do (fast, eat right, walk 2-4 miles everyday) I cannot lose a pound.

Do I ask to go on a separate synthetic T4 and T3 or switch to NP thyroid?

Anyone switch from Armour to one of these and have better results?

0 Comments
2024/12/04
02:37 UTC

1

High Anti-thyroglobulin antibodies but normal anti- TPO antibodies

I have an undetermined auto immune connective tissue disorder . Positive ANA, Positive DSDNA for years . Recently , I tested positive/ outside the range for Anti-thyroglobulin antibodies but my anti-TPO antibodies are within range . TSH is 2.2 .

Symptoms are severe joint pain and muscle pain, feeling excessively tired, anxiety. My rheumatologist refused to diagnose stating I need to see an endo. Can I be diagnosed with Hashimotos with just anti-thyroglobulin antibodies being positive?

2 Comments
2024/12/04
02:13 UTC

1

Good endo experience!

I had my first appointment with my new endo today and it was simply amazing. She explained that she wouldn't normally medicate someone who's TSH is under 10 but in my situation she thinks it might help me. My TSH may be not THAT high but I experience symptoms. She prescribed me 50 mcg of levothyroxine. I am also being tested for cushings, I don't know much about it but she said she had a small suspicion she wanted to rule out after seeing the back of my neck and stretchmarks. I was also able to see a nutritionist that talked to me about what I can add to my diet to help me feel better and how your body digests food and why people need specific food groups. I was able to get my blood drawn downstairs right after and should be getting my results soon. I like her a lot so far.

3 Comments
2024/12/04
01:11 UTC

19

Pregnant: Had a gut feeling.

Iā€™ve been getting nauseous when itā€™s been awhile between meals. I realized I needed to check on my period, because itā€™s due. While at the store tonight, I started getting a familiar funny taste in my mouth - very similar to my last pregnancy. So I bought EL CHEAPO test and lo and behold there is that second line! Thick and bold.

I was diagnosed with hashis earlier this year. Now what? How do I approach this? Added bonus - I was gestational diabetic with my first. šŸ˜•.

What do I need to watch knowing these 2 things?

And no, hubby doesnā€™t know yet šŸ˜‰

16 Comments
2024/12/04
01:02 UTC

0

Functional medicine.

Anyone follow a functional MD? Experiences? Worth it or not?

0 Comments
2024/12/04
00:49 UTC

1

Should you eat more when your TSH is lower?

This may be a dumb question- sorry. The highest my TSH has been is 12.34 and after finding the right dose of levothyroxine it is now 1.37. I have been on my Hashimotos journey for the past year now, during which I lost 30lbs with changes in diet and exercise for my wedding (plus getting my thyroid in check).

My question is: in theory my metabolism is working better than it was, so that means I should be able to eat more calories than I did at a TSH of 12 and not gain weight? My thought process is that people with hyperthyroidism often are very hungry and eat more, yet stay skinny.

2 Comments
2024/12/04
00:26 UTC

175

Dear everyone who I rolled my eyes at when they suggested I go gluten free for hashis even without a celiac diagnosis- Iā€™m sorry!

Yaā€™ll were right. For me anyway! Iā€™m just a little over one month without gluten and Iā€™ve somehow lost 6 pounds, have more energy, and far fewer inflammation symptoms like joint pain.

I apologize for how many times I rolled my eyes at all your GF suggestions- I just really loved bread šŸ˜‚ But feeling this much better is totally worth it.

Iā€™m already vegan so thereā€™s no dairy to ditch but I am considering trying a soy break too, because if it also makes this much of a difference itā€™ll be worth it.

Any other gf & soy free vegans out there? Seems like a pain in the assā€¦.but I said that about gluten too

90 Comments
2024/12/03
23:23 UTC

11

Why the migraines???

I read that people with Hashimotos get migraines frequently. I have had them throughout my life. Recently I got my TSH in range but I still get them all the time.

Whats the science behind this madness???

7 Comments
2024/12/03
23:15 UTC

2

Best endocrinologist in nyc area?

Hello I was diagnosed with hashimotos disease, and/or as the ultra sound place said ā€œa very PLUMP thyroid šŸ˜‚ā€, a few years back and totally forgot about it (even though I got all the symptoms šŸ˜¤) but now as Iā€™m working on my health, all my other doctors are ā€œlike go to an endocrinologist broā€ so Iā€™m like ok šŸ‘ but as Iā€™m researching these docs itā€™s either horrible HORRIFIC bedside manner or horrible reception/administration and if Iā€™m able to find a doctor who is both great and has great office workers then the wait is like 2 years. I donā€™t need a perfect doc with only five stars or whatever I just need a doctor or PA that knows what to do/ isnā€™t a D*ck and has regular human staff. Also if they are in the Long Island/ nyc area that would be SO Helpful.

1 Comment
2024/12/03
22:19 UTC

3

Insatiable hunger during flare ups?

For the past two weeks Iā€™ve had worsened fatigue, body aches, joint pain, and irritability. However, at the same time Iā€™ve had insatiable hunger. Iā€™m thinking it could be related to my mental state since Iā€™m feeling unstable and tired, and food is a source of comfort and energy. But I am wondering if there is another mechanism at play here? Does anyone else get this?

6 Comments
2024/12/03
22:10 UTC

0

Toothpaste, deodorant and shampoo suggestions

Hi everyone. I am new in the condition and so the community. Have been searching for a while to find out what deo would be best, what toothpaste I should switch to, is my shampoo safe enough etc. and I'm sure most of you have gone this process and know how crazy it is to learn a lot of things all of a sudden and get overwhelmed and kind of depressed.. I feel a bit lost in my search to find out what is best; whatever I thought 'Okay that's my product' turns out to be American with no shipping to Germany. So, I thought there are probably people like me living in Europe and found a deo like Lume, for example. Or I find something for Europe but ratings and comments got me thinking. I'm so annoyed and overwhelmed that it gives me extra anxiety to use my Meridol toothpaste which was recommended by my dentist, and I don't think is the right choice. What brands do you use and are you happy with? Toothpaste, deodorant, shampoo-no poo, conditioner, etc. whatever you can recommend is highly appreciated.

4 Comments
2024/12/03
21:06 UTC

3

Hairloss

I got diagnosed with Hashimotos a bit over a month ago and I started L Thyroxin 50 (first week 25) about 3 Weeks ago. My only symptom of Hashimotos was hairloss and my hair is now still falling out, If not even more on this medication. Has anyone experience with this? Will it go away and if yes how long did it take for you? And what can I do to save my hair ? Thanks in advance! (Iā€™m taking Zinc)

4 Comments
2024/12/03
21:04 UTC

3

Sudden peripheral neuropathy after starting 25mg Levothyroxine? Scared to take gabapentin

Hi all, i was diagnosed last month with hashimotos and subclinical hypothyroidism. My main symptoms were severe anxiety and fatigue, which has been helped by 25mg/day of levothyroxine. However, I started having symptoms of peripheral neuropathy in my feet at night (hot burning feet). It has happened, maybe four or five times in the past three weeks, one night it was so bad that it woke me up in the middle of the night and I couldnā€™t go back to sleep. Other than that, Iā€™m not in any pain during the day, could this be a side effect of the medicine? My endocrinologist said thereā€™s no way it could be neuropathy so I reached out to my PCP who said it sounds like performer Pathy and she referred me to a neurologist. I saw the neurologist today, who of course, confirmed it was peripheral neuropathy and really pushed gabapentin. After researching the medicine, Iā€™m very scared to take it with all the horror stories of withdrawals. I prefer to not take it at all since my symptoms donā€™t seem that severe and are not all the time. So I am wondering if all of this could just be a temporary thing caused by levothyroxine? TSH of 5 and thyroid antibodies of 98 at my last check (pre levo) so pretty mild.

7 Comments
2024/12/03
20:16 UTC

0

Enlarged Thyroid?

The internet is not providing many examples of what ā€œnormalā€ looks like.

1 Comment
2024/12/03
19:57 UTC

9

How do i know if i actually have both ADHD and Hashimoto's?

I have been diagnosed with Hashimoto's since I was in 5th grade. That's also when I started frantically researching into ADHD non stop for 1 week straight only for this same moment to come back and to make me research more. Idk, I know I'm not explaining this right it's just that IM RESTLESS. Maybe it's only my Hashimoto's and I'm imagining stuff.

15 Comments
2024/12/03
19:40 UTC

1

questions based on lab work: should i up my levo and/or add/switch to a T3 med?

hi friends! i'm hoping someone can help me parse through some of my personal data to think about next steps. i was diagnosed with hashi in june of this year by my PCP, and she's currently managing my condition. i've been on 25 mcg levo since then and have noticed major improvement in my energy levels, and i've lowered my TSH quite a bit. i asked her to check my vitamin D and ferritin recently based on things i've read here. both are in range but on the low end, particularly vitamin D (lab range 30-100, mine is at 33.3)

i've read on here that a lot of people feel best with TSH at 1-1.5, and mine is currently at 2.26 after a little over 5 months at the same dose of levo. so i'm curious how long it took people to get to optimal TSH levels when they were dosed correctly. i also wanted to know if anyone had a sense of where my T3 should be and if i should push for any treatment changes. ive been wondering if it might support some modest weight loss and help with overall hormone balance, as i suspect some imbalance as well

here are my lab results if that helps

april (at home lab test from everlywell): TSH: 2.5 T4: 1.1 T3: 3

june (official diagnosis) TSH: 4.85 T4: 1.19

july TSH: 2.74 T4: 1.38 T3: 2.5

november TSH: 2.26 T4: 1.56 T3: 3.2

3 Comments
2024/12/03
19:28 UTC

1

Dosing new medicine

So my T3 total is 113, my free T4 is .79, and my TSH is 2.12. Iā€™ve been struggling with symptoms lately, my dr upped my dose from 50 mcg to 75 mcg, but Iā€™ve been scared to take the new dose. But my labs are reflecting that Iā€™m not on a high enough dose - is that right? Or am I on too much?

0 Comments
2024/12/03
19:27 UTC

1

Always hungryā€¦

More recently diagnosed with hashimotos. Was initially diagnosed with hypo thyroid, now we know itā€™s hashimotos. The start was super lows which was exhausting (literally). Now Iā€™m hyper and constantly hungry. Like nauseas Iā€™m so hungry. Is this normal? Google says yes, havenā€™t been able to see my doctor cause tis the season of the cold. Does anyone have a trick for this? Itā€™s annoying feeling sick because Iā€™m so hungry. I also have celiac, have been diagnosed going on 14 years so itā€™s a bit of a pain trying to find snacks to go, I do bake a ton for myself and normally have something. But this is mega frustrating. Any help would be so so so helpful.

3 Comments
2024/12/03
19:14 UTC

1

Feel Hopeless Trying To Stabilize

I spent the last year getting my numbers stable on levo. I had a blood test in June that showed my TSH higher than it was before I started meds. In three months I went from stable to hypo. My doctor thought it could be an error because it jumped so high so quickly. We just redid the blood work and it's come down a bit, but my TPO is now testing positive (it wasn't previously). I don't understand, after being on meds, how the disease could be getting worse?

The only things that changed: I stopped taking Vitamin D for about 6 months and haven't started again. I started eating a lot of gluten.

Would those explain anything? Any advice or similar experiences? I'm so exhausted with the tests and the changing of meds :(

0 Comments
2024/12/03
19:05 UTC

Back To Top