/r/Hashimotos
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/r/Hashimotos
Hey everyone,
I'm an emotional eater, as well as stress eater and since I'm living alone and have depression, anxiety and ocd, so it is very hard for me to cook for myself and make sure my body gets everything it needs.
That's why I often eat processed foods and just take easier routes because anything else exhausts me and reminds me of my long and draining diet journeys.
Is anyone here who has helpful tips on how to take it one step at a time when it comes to improving your food choices while also having mental health disorders? Thanks in advance š«¶š»
I was diagnosed with Hashimotoās when I was 22 (about 10 years ago). Since then, my TSH has fluctuated so much that Iāve never remained on the same dose for more than 3 months at a time. I was on generic levothyroxine tabs for about 5 years and then was switched to brand name Synthroid for the last 5 which really has not made a difference. The only time my level seems to ālevel outā is when I am in the second and third trimesters of pregnancy! My free t3 and free t4 are always perfect.
In any case, I brought this up to my endo this week and asked her if Iām destined for a life of labs every 8 weeks and she recommended the switch to tirosint, stating that she thinks I just donāt absorb Synthroid reliably?
I honestly donāt know how much I believe this, but I would like to. If you had fluctuating TSH and switched to tirosint, did it help?
Itās only been two days and I just feel so anxious about it! I at least know what to expect from Synthroid
Appreciate knowledge exchange and comments. Take daily: vitamin d, magnesium, omega 3, cumin oil. IP6 (inositol complex). +1 tab of antioxidant complex in photo. Cut out gluten, reduced dairy intake.
Also tries NAD+ but it shot up my TSH from 5 to 15 within 6 weeks. WTH. Stopping it today.
I donāt know if my neck is normal or not.. but I wanted to include a photo.
Iām in Australia. My thyroid levels keep coming back normal but I have an enlarged thyroid and high antibodies. I saw a Naturopath who said it is highly likely I have Hashimotos but canāt officially diagnose me. Iāve gone to my doctor and she outride refuses to acknowledge it. Said something to the effect of, so what if I do - nothing can be done.
So is she right? Has anyone else had this experience?
So Iāve just weighed myself for the first time since going on levothyroxine at the end of October and Iāve gained weight. Iāve also lost muscle mass so itās not like Iāve gained muscle instead. Iām a bit shocked because I thought maybe Iād lost a little but my question isā¦ has anyone noticed weight changes when taking levothyroxine? If so how long into taking it? For reference my TSH is still high (about 9) and Iām on 50mcg now (I was on 25).
Frustrated as itās my honeymoon next year and Iām so fed up of how I look.
I see an endocrinologist. Searching up my symptoms and per doctors thoughts, it seems likely it could be hashi. The only thing is that my TSH isnāt out of control yet. Itās at the very top almost right over the limit the times Iāve been tested & once it shot up to 7.54, T3 was 2.25 & T4 was .94 so from what Iāve read even that isnāt majorly concerning but i was retested after and it came down but it was still like .1 or .2 away from being high.
So is this likely that it could still be this?
Curious if anyone has experienced hyperpigmentation when getting laser hair removal, with thyroid meds or HRT. It was a warning in my info packet at Laser Clinic. Has anyone experienced this or heard of this possibility. TY.
What professional do you go to for said test? Bonus points if anyone knows reccs in the NYC area
Researched it, going to start very low at .5 mg.
Not sure if I will ramp up .5 mg every week or every two weeks
If you needed to decrease your thyroid hormone supplementation because of the LDN, how long did that take? And could you actually feel yourself going hyper for a while?
Iāve been on Armour Thyroid (60 mg) for years. I was NEVER good on just T4 meds. My new insurance will not cover armour. I still have thinning hair all over and no matter what I do (fast, eat right, walk 2-4 miles everyday) I cannot lose a pound.
Do I ask to go on a separate synthetic T4 and T3 or switch to NP thyroid?
Anyone switch from Armour to one of these and have better results?
I have an undetermined auto immune connective tissue disorder . Positive ANA, Positive DSDNA for years . Recently , I tested positive/ outside the range for Anti-thyroglobulin antibodies but my anti-TPO antibodies are within range . TSH is 2.2 .
Symptoms are severe joint pain and muscle pain, feeling excessively tired, anxiety. My rheumatologist refused to diagnose stating I need to see an endo. Can I be diagnosed with Hashimotos with just anti-thyroglobulin antibodies being positive?
I had my first appointment with my new endo today and it was simply amazing. She explained that she wouldn't normally medicate someone who's TSH is under 10 but in my situation she thinks it might help me. My TSH may be not THAT high but I experience symptoms. She prescribed me 50 mcg of levothyroxine. I am also being tested for cushings, I don't know much about it but she said she had a small suspicion she wanted to rule out after seeing the back of my neck and stretchmarks. I was also able to see a nutritionist that talked to me about what I can add to my diet to help me feel better and how your body digests food and why people need specific food groups. I was able to get my blood drawn downstairs right after and should be getting my results soon. I like her a lot so far.
Iāve been getting nauseous when itās been awhile between meals. I realized I needed to check on my period, because itās due. While at the store tonight, I started getting a familiar funny taste in my mouth - very similar to my last pregnancy. So I bought EL CHEAPO test and lo and behold there is that second line! Thick and bold.
I was diagnosed with hashis earlier this year. Now what? How do I approach this? Added bonus - I was gestational diabetic with my first. š.
What do I need to watch knowing these 2 things?
And no, hubby doesnāt know yet š
Anyone follow a functional MD? Experiences? Worth it or not?
This may be a dumb question- sorry. The highest my TSH has been is 12.34 and after finding the right dose of levothyroxine it is now 1.37. I have been on my Hashimotos journey for the past year now, during which I lost 30lbs with changes in diet and exercise for my wedding (plus getting my thyroid in check).
My question is: in theory my metabolism is working better than it was, so that means I should be able to eat more calories than I did at a TSH of 12 and not gain weight? My thought process is that people with hyperthyroidism often are very hungry and eat more, yet stay skinny.
Yaāll were right. For me anyway! Iām just a little over one month without gluten and Iāve somehow lost 6 pounds, have more energy, and far fewer inflammation symptoms like joint pain.
I apologize for how many times I rolled my eyes at all your GF suggestions- I just really loved bread š But feeling this much better is totally worth it.
Iām already vegan so thereās no dairy to ditch but I am considering trying a soy break too, because if it also makes this much of a difference itāll be worth it.
Any other gf & soy free vegans out there? Seems like a pain in the assā¦.but I said that about gluten too
I read that people with Hashimotos get migraines frequently. I have had them throughout my life. Recently I got my TSH in range but I still get them all the time.
Whats the science behind this madness???
Hello I was diagnosed with hashimotos disease, and/or as the ultra sound place said āa very PLUMP thyroid šā, a few years back and totally forgot about it (even though I got all the symptoms š¤) but now as Iām working on my health, all my other doctors are ālike go to an endocrinologist broā so Iām like ok š but as Iām researching these docs itās either horrible HORRIFIC bedside manner or horrible reception/administration and if Iām able to find a doctor who is both great and has great office workers then the wait is like 2 years. I donāt need a perfect doc with only five stars or whatever I just need a doctor or PA that knows what to do/ isnāt a D*ck and has regular human staff. Also if they are in the Long Island/ nyc area that would be SO Helpful.
For the past two weeks Iāve had worsened fatigue, body aches, joint pain, and irritability. However, at the same time Iāve had insatiable hunger. Iām thinking it could be related to my mental state since Iām feeling unstable and tired, and food is a source of comfort and energy. But I am wondering if there is another mechanism at play here? Does anyone else get this?
Hi everyone. I am new in the condition and so the community. Have been searching for a while to find out what deo would be best, what toothpaste I should switch to, is my shampoo safe enough etc. and I'm sure most of you have gone this process and know how crazy it is to learn a lot of things all of a sudden and get overwhelmed and kind of depressed.. I feel a bit lost in my search to find out what is best; whatever I thought 'Okay that's my product' turns out to be American with no shipping to Germany. So, I thought there are probably people like me living in Europe and found a deo like Lume, for example. Or I find something for Europe but ratings and comments got me thinking. I'm so annoyed and overwhelmed that it gives me extra anxiety to use my Meridol toothpaste which was recommended by my dentist, and I don't think is the right choice. What brands do you use and are you happy with? Toothpaste, deodorant, shampoo-no poo, conditioner, etc. whatever you can recommend is highly appreciated.
I got diagnosed with Hashimotos a bit over a month ago and I started L Thyroxin 50 (first week 25) about 3 Weeks ago. My only symptom of Hashimotos was hairloss and my hair is now still falling out, If not even more on this medication. Has anyone experience with this? Will it go away and if yes how long did it take for you? And what can I do to save my hair ? Thanks in advance! (Iām taking Zinc)
Hi all, i was diagnosed last month with hashimotos and subclinical hypothyroidism. My main symptoms were severe anxiety and fatigue, which has been helped by 25mg/day of levothyroxine. However, I started having symptoms of peripheral neuropathy in my feet at night (hot burning feet). It has happened, maybe four or five times in the past three weeks, one night it was so bad that it woke me up in the middle of the night and I couldnāt go back to sleep. Other than that, Iām not in any pain during the day, could this be a side effect of the medicine? My endocrinologist said thereās no way it could be neuropathy so I reached out to my PCP who said it sounds like performer Pathy and she referred me to a neurologist. I saw the neurologist today, who of course, confirmed it was peripheral neuropathy and really pushed gabapentin. After researching the medicine, Iām very scared to take it with all the horror stories of withdrawals. I prefer to not take it at all since my symptoms donāt seem that severe and are not all the time. So I am wondering if all of this could just be a temporary thing caused by levothyroxine? TSH of 5 and thyroid antibodies of 98 at my last check (pre levo) so pretty mild.
The internet is not providing many examples of what ānormalā looks like.
I have been diagnosed with Hashimoto's since I was in 5th grade. That's also when I started frantically researching into ADHD non stop for 1 week straight only for this same moment to come back and to make me research more. Idk, I know I'm not explaining this right it's just that IM RESTLESS. Maybe it's only my Hashimoto's and I'm imagining stuff.
hi friends! i'm hoping someone can help me parse through some of my personal data to think about next steps. i was diagnosed with hashi in june of this year by my PCP, and she's currently managing my condition. i've been on 25 mcg levo since then and have noticed major improvement in my energy levels, and i've lowered my TSH quite a bit. i asked her to check my vitamin D and ferritin recently based on things i've read here. both are in range but on the low end, particularly vitamin D (lab range 30-100, mine is at 33.3)
i've read on here that a lot of people feel best with TSH at 1-1.5, and mine is currently at 2.26 after a little over 5 months at the same dose of levo. so i'm curious how long it took people to get to optimal TSH levels when they were dosed correctly. i also wanted to know if anyone had a sense of where my T3 should be and if i should push for any treatment changes. ive been wondering if it might support some modest weight loss and help with overall hormone balance, as i suspect some imbalance as well
here are my lab results if that helps
april (at home lab test from everlywell): TSH: 2.5 T4: 1.1 T3: 3
june (official diagnosis) TSH: 4.85 T4: 1.19
july TSH: 2.74 T4: 1.38 T3: 2.5
november TSH: 2.26 T4: 1.56 T3: 3.2
So my T3 total is 113, my free T4 is .79, and my TSH is 2.12. Iāve been struggling with symptoms lately, my dr upped my dose from 50 mcg to 75 mcg, but Iāve been scared to take the new dose. But my labs are reflecting that Iām not on a high enough dose - is that right? Or am I on too much?
More recently diagnosed with hashimotos. Was initially diagnosed with hypo thyroid, now we know itās hashimotos. The start was super lows which was exhausting (literally). Now Iām hyper and constantly hungry. Like nauseas Iām so hungry. Is this normal? Google says yes, havenāt been able to see my doctor cause tis the season of the cold. Does anyone have a trick for this? Itās annoying feeling sick because Iām so hungry. I also have celiac, have been diagnosed going on 14 years so itās a bit of a pain trying to find snacks to go, I do bake a ton for myself and normally have something. But this is mega frustrating. Any help would be so so so helpful.
I spent the last year getting my numbers stable on levo. I had a blood test in June that showed my TSH higher than it was before I started meds. In three months I went from stable to hypo. My doctor thought it could be an error because it jumped so high so quickly. We just redid the blood work and it's come down a bit, but my TPO is now testing positive (it wasn't previously). I don't understand, after being on meds, how the disease could be getting worse?
The only things that changed: I stopped taking Vitamin D for about 6 months and haven't started again. I started eating a lot of gluten.
Would those explain anything? Any advice or similar experiences? I'm so exhausted with the tests and the changing of meds :(