I am on 100 mcg levo and feel good but my TSH is 0.03. When I was on 75 mcg and TSH 0.3 I felt much worse. My doctor with limited knowledge of the disease thinks 75 mcg is the best. We have not tested T4 or T3. I don't have any hyper symptoms. Anybody else here with low TSH and are doing fine?

Has anyone tried testing for Igg and Ige to know what foods you react to? What is the difference between the two? Also what your experience with them ?

So my Dr prescribed me this medication because i been having tingling and shocking sensation on my left leg , today is my first day taking the pill its twice a day but im nervous if im gonna have a reaction or cause flares with my hashimotos , any one that took this medication and what are there thoughts on it, im just so nervous my anxiety is through the roof i hate taking medicine

Does anyone else have shortness of breath/sighing syndrome/pseudo-dyspnea/air hunger because of Hashimotos? I’ve been having this issue since June 2021 and i feel like it’s been getting worse and worse as time goes by. I had really high TPO antibodies, my doc said I have this and prescribed Levothyroxine, which I still haven’t taken to this day because all my other values were in range except for the antibodies.

I went gluten free at the recommendation of my naturopath in January. She recommended going 6 months gluten free but I noticed absolutely zero difference not eating gluten. I talked to my doctor today and she said since its been 3 months and I saw no changes in not eating gluten I should be fine to reintroduce it and not wait the 6 months. (For reasons that are not worth going into my naturopath has given me the ick which is why I haven't consulted her).

Tonight I ate half a cookie my dad made. I'm not sure if its me being paranoid but I feel a bit bloated. I also realize its at the end of the day and I ate a dessert. However, I'm wondering if some bloating would be normal regardless because I ate something I haven't eaten in 3 months?

I'm also having a bit of anxiety about gaining weight because weight has been my main symptoms up until recently so I'm not sure if I'm hyper aware of my stomach due to that reason. I did not lose any weight going gluten free

I know everyone says do blood work first thing in morning and don’t take your thyroid medicine would taking pre workout and working out early morning and going after be ok?

Hello, about a month ago, I went for a basic physical. Feeling awful all the time and my tests came back elevated antibodies, borderline TSH, within range everything else. My doctor will do zero beyond this and suggesting that I get tested again in 10 to 12 weeks. I'm traveling overseas and want more testing, which my doctor refuses.

So thinking of doing the Paloma test. Anyone here try this? It seems like it's affordable and might even be covered by insurance but quite frankly, there's so much quackery online that I wondered if this was legit.

Can any of you Hashis speak to this?

Hello, I hope I am posting in the right “community “. I have been feeling very unwell for years. Doctors were no help. I paid out of pocket for a hormone specialist that ran a bunch of tests. One of them which was the thyroglobulin antibody was 28.4. The normal range was 0.0-0.9. Our follow up appointment to go over results isn’t for another couple weeks .Anyone else have results like this? What was the outcome? I am feeling unwell but finding out what might be going on with my body has been very interesting so curious for comparisons.

Hello I’m 44 full blown menopause I’ve had a full panel blood work done I have a few health issues nothing that can’t be controlled with supplements or medication. I am attaching my results in hopes of getting a better understanding. I have been really off for the last two years. I suspect hoshimotos.

If you are looking to lecture or argue, this is not the post. I am just wondering if there are people who are managing their condition without levo or any synthetic hormone replacement and if so, how? Thanks.

hi everybody,

i thought i share my story of my hair since i read many ppl asking abt it and i did struggle with hair loss AND hair composition changing as well. i feel, after three years, a change is happening.

when i was in the beginning stages of hashimotos 3 years ago, i recognized immense hair loss. i have long hair, thin but much hair, straight. never had much hair falling out but when i was just diagnosed with hashimotos, my hair fell out a looooot. in the shower, whilst blow drying and brushing as well. i started to see my skull and i felt my hair line was receeding.... ^^°° (if you know you know ;/)

i started taking 50 mg levothyroxine (abt 2,5 years ago) but the hair loss didnt stop. i had already before the diagnosis cut down on gluten und sugar, but after the diagnosis, i cut down even more.

no gluten. no sugar. little caffeine. went on the AIP diet. only cooked myself. little dairy. some weeks no meat. changed to oraplex shampoo and conditioner. stopped blow drying. changed to only little blow drying.

there was little to no visible change in the beginning. i think abt half a year later, my hair loss went down but my hair structure started to change. my hair went from straight to incredibly straight. like noooo waves, no movement what so ever, no form. this became worse and worse, even hairdressers would comment on it. and my roots would become puffy. really really dry.

abt half a year ago, i started oiling my sculp with coconut oil. id massage the coconut oil into my scalp, loooots and lots of massaging and also oil my lengths.

id do that 3 days a week minimum. still using olaplex shampoo.

i now switched to coconut oil with rosemary in it (heat one jar of coconunt oil and add one or two twigs or rosemary and let this warm for 4-5 hrs) to massage into my sculp.

i wash less, using dry shampoo. i switched to l'ador shampoo, conditioner, hair mask AND i started using scalp exfoliator (also from l'ador).

about a year ago, i did a liver treatment, taking liver supplements and left our certain foods and incorporated liver detox sleeves.

i worked a lot on mental health, trauma work and getting "into my body".

about 3 months ago, i switched to the carnivore diet eating steak, chickenwings and thighs, eggs, some cheese, cream, coffee, mascarpone. (i cant stand the diet btw, but i felt so bad, i had to try it).

today, i realised that my hair is fuller again. and my scalp is way less visible than some time ago.

i do supplement iodine, vit. d3, selen, sometimes electrolytes (potassium and magnesium), vir b12 (although cutting down on those now as my blood shows its too high), daily 10k steps, daily meditation (or as often as i can).

i moved from the big city to a smaller town to reduce stress. i try to spend at least 1 hr outside with little screen time.

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maybe this helps anyone struggling with hair loss. when i was at my doc 3 days ago checking my blood, all my vitamins etc. were superb which means my gut is able to take in micronutrients again. trying to heal my gut (and still trying) to get my numbers to a good place was i thing a game changer.

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I’m currently 11 weeks pregnant and developed a weird feeling in my neck about three weeks ago. It’s not painful but it just feels like something is in there. It doesn’t feel like it’s blocking my throat or anything and it’s slightly to the left of my thyroid - very subtle but I can feel it. Am I going mad or could this be a thyroid flare up I haven’t experienced before? My TSH is sitting under 2. It could be unrelated but wanted to hear anecdotally if anyone else has experienced this odd sensation! Am hoping to see an ENT soon.

In addition to this I’ve also been experience red blotchiness over chest and boobs. Wondering if it’s histamine and thyroid related. Not had these symptoms before pregnancy.

I doing a virtual clinic today to ask to see an endocrinologist for hashimoto and elhers-danlos.

Im just curious others experience. If your diagnosed with both.

Hi all, I had antibodies first taken about 3 years ago when I was first diagnosed and they were 325. I just had them redrawn and they are 422. My TSH, T3, T4 all in normal range on medication. Curious what everyone’s antibodies are and how you feel? Any success in lowering them?

Hi all, I am a 22y/o female going through a chronic pain/ illness diagnosis for the past 4 years. I was diagnosed with fibromyalgia recently and also consistent EBV reactivation. I have a family history of hypothyroidism. My thyroid levels are normal but In 2021 I had my thyriod antibodies tested. 31.5 thyroglobulin antibodies, and normal TPOAb levels. I haven’t had my antibodies test since, but I did just get a thyriod ultrasound. Will that be able to tell me if I have hoshimotos?

Hi everyone. I have had hypothyroidism for years but just formally diagnosed with Hashis in February. Had been on 50 levothyroxine but was taking incorrectly (doctor didn’t tell me,) so bloodwork in January was still very off- new doctor pushed me up to 75 levo. 75 made me super anxious and jittery, so we tried 50 5 days a week and 75 2 days a week- but the way I felt on the 75 days was so bad that we went back to just 50 but taking it correctly now. The problem is, when I went back to just 50 after being on 75, I have now started breaking out in full body hives every day for 3 weeks. This has also sometimes included facial/lip, hand, and foot swelling. Been to an allergist, no allergies. I’m almost positive it’s related to my Hashis. Waiting on a referral to an endocrinologist, but does anyone have any experience with this? The only thing that actually helps with the hives is prednisone, but i’ve already done 2 packs and wary of continuing to constantly be on steroids. I’m already vegetarian and eat pretty well, but thinking of trying gluten free to see if that helps the hives at all. Anyone been through this? Any tips/tricks? I’m miserable covered in these itchy hives and can’t really go through life like this.

TL;DR: Went from 75 to 50 levo and have been breaking out in full body hives for 3 weeks. Not an allergy so assume it’s hashimotos related. Help!

The first picture (top) is the lab work of a patient treated in a clinic that performs a dietary intervention called paleolithic ketogenic diet (PKD). The second picture is my lab work (bottom) while adhering to the same diet. Note: I called it "carnivore" because the PKD is not well-known. The PKD is like a ketogenic autoimmune protocol diet.

I couldn't help noticing some glaring similarities:

1. TSH is low during medication.
2. TSH increases even with medication.
3. PKD is introduced while on medication.
4. Medication is discontinued (PKD continues).
5. TSH remains the same as before (in my case, for 10 months, and counting).
6. FT4 increases a bit.
7. All the while, weight decreases (my weight before keto was 76 kg).

https://preview.redd.it/w8wfoqazouwc1.png?width=1200&format=png&auto=webp&s=3a74b23dc84edf4e0acf676c46cb9b804dc4c31c

Now, maybe this is merely coincidental. Or maybe not. I just couldn't help noticing and sharing.

Note: This is not medical advice. Or any kind of advice. I'm purely sharing personal and online data that I find compelling. Before any decision, consult your doctor.

Source of the clinical data.

Related post of mine.

My antibodies test came back and I’ve been telling endo and primary that im not properly dosed. I’ve had endo gaslight me about how my horrible bloating is not thyroid related, but tell me why my antibodies came back super high. I started out at 273 now I’m 193. I’m on 25 mg of levothyroxine. I just feel relieved that they’re gonna start listening now.

Happy Friday guys! I need some advice. I recently gained 20 pounds this past year due to being in a high stress job (I’ve left that job in a much better one) but I’m having such a hard time losing the weight. I’m taking my levotheyxone 30 mins to 1 hr before I eat. My friends and I recently got a gym membership and I’ve been going 5 days a week, nothing to intense as I’ve heard it can cause more Inflammation. I’ve been doing incline walk on the treadmill, elliptical and some weights (not too heavy). I’ve been eating mainly clean (fruits veggies proteins) I allow myself to have some dessert here and there and try not to restrict. I went on the scale this morning and saw that I gained two pounds after the scale being stagnant for weeks! All my friends have lost 5 pounds a lready 😭 How do I lose the weight?!??

I had to BEG my doctor to put me back on Liothyronine bc it was the only thing I noticed that helped my anxiety. But now “my levels are too high and concerning” and I’m afraid he’s going to take me off of it and if so, I KNOW I’ll stop sleeping again. Am I just done for? I can’t stand being this tired anymore and to top it off I have this weird chronic pain in both my legs that no one seems to know what’s causing it or why. I’ve definitely been to over 40 doctors at this point and been tested for everything under the sun. Anyone else have this leg pain issue? I don’t have anyone to talk to since I’ve isolated myself so much this year so any positivity or advice is welcome.

yall can u tell me if im silly but i swear there’s a connection between taking thyroid meds and getting sick or something 😭 i started my meds back in october and have been sick every month since then, there are maybe like 2 weeks when im fine but then the cycle just continues. i first got my thyroid checked in 2021 and although my levels were borderline or pretty okay despite having symptoms, i never got sick(except for the occasional once a year cold) my levels were pretty stable up until september when my tsh was at a 61.86 and they started me on meds,,,, anyway i just had a theory that maybe starting them made me sick or if ur not consistent enough u get sick i dunno just wanted to see if anyone had the same silly thought as me. also i couldn’t post under hypothyroidism so im here ..

Hi everyone! This year I started setting a lot of doctors appointments and came up with realazations already. Been having hashi all my life (my thyroid is almost gone by now.) Anyway apparently I’ve got asthma and ibs and the asthma spray completely changed my face. Now I’m thinking that it could all be caused by allergies, not sure yet and appointments take months but it seems to go into this direction. I want to encourage others to check for further health issues that could be co existing with Hashimoto. Photo for reference:

I am TTC after a miscarriage at 7 weeks. My OB was completely indifferent to my Hashimoto’s diagnosis as long as TSH was under 2.5 (mine was 2.35). I since started LDN independently because my TPO antibodies are quite high. I also eat paleo/mostly AIP.

What should I look out for with my next pregnancy? I read about progesterone supplementation, is this needed more often for people with Hashi’s? Did anyone take baby aspirin to help with inflammation (instead of only preeclampsia)?

I'm asking for a friend. I gave her links to watch Dr.Hyman talk about it, but I'm curious if anyone here has reduced their antibodies enough to maybe not even need thyroid medicine. I realize it might depend on how much damage has been done to rhe thyroid from the immune system. Thanks

I woke up at 5:45 this morning and took my levo early, so I could eat at some point this morning.

Got the kids up at 6:30 for school. Did normal morning stuff, but on top of that I:

prepped a pasta salad for the weekend/beginning of the week Coated some cake truffles I made a few days ago Started my laundry And am now making breakfast

And I'm starting to feel the fatigue set in and it's only a bit before 9:30. I felt like I could do all the things and now I want to do nothing but nap...

I hate feeling like garbage, but I never remember to pace myself when I feel human

Hi, I was diagnosed with hashimoto's by my PCP over 10 years ago. I've been on levothyroxine ever since. I also eat gluten and dairy free. Those are the only two things I know to manage my hasimotos so I hope you all can give me some advice. Recently my symptoms have been worse and we've had to raise my meds. One recent symptom is rough, dry, itchy skin on my face and neck. Have you found anything topical that helps? Most skincare products I've tried so far either irritate my skin more, or clog my pores and worsen my hormonal acne.

Just got my tests back with 1300< tpo ak. After feeling like shit losing damn much hair a year back until now. What’s your best tips to someone like me that just got he’s diagnose in terms of lifestyle and diet. 21 yo male(not common apparently).

Tsh went from 6.1-> 7.5 in 4 weeks so doc put me on meds right away. Free t4 12->14.

I cannot lose weight no matter how hard I do it or what kind of program .. CICO, low carb, carnivore … up and down the same five lbs. just frustrated …. And I feel bloated . Thinking I’ll take dairy and those low carb wraps out …that’s the only gluten I eat …if you’ve had success please post tips .

Hi all wondering if any of you had the same experience/tips regarding fasting/inflammation and hashis?

I was diagnosed with Hashimotos a few years back and on levo (50-75 mg) for the past year and a half. I eat a very clean diet (gluten free, dairy free, v little sugar etc etc) and moderately active (pilates, yoga, walking occasional slow run). After months of trying to lower inflammation, work on gut health, focus on drinking less, better sleep I was growing extremely frustrated/confused by this residual hashis weight that just wouldn't budge. When I talk about weight gain it doesn't feel like real fat, it fluctuates often throughout the day, is a state of puffiness, resides around legs/bum and ripples when i move/jump and I can see tone and definition of my muscles underneath.

After months of trying to fix this through diet, sleep, supplementation etc - lowering inflammation whilst also trying to live my life, I wanted to see if fasting might help as I have typically been someone who eats around the clock (little and often), often first meal at 7am and a small snack before bed. Time restricted eating between 14-18 hours has worked miracles, slowly noticed the pounds/inflammation go down, mental clarity return and was so overjoyed. After some indulgence post Christmas and more recently, I have tried to push my fast windows out further to help reset my body/give gut a rest etc. However, when I have done this I have noticed a flare up happen pretty soon after - this time it is BAD. Its as if I gain 10 pounds back over night, my energy and mood crashes, eyes swelling and have absolutely no energy to do anything.

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Has anyone experienced anything similar? If so how long did body take to bounce back to equilibrium? I am worried I have completely crashed my thyroid by trying a 36 hour fast, but logically it makes no sense to have gained 10 pounds in the process?

I'm wondering if this is a cortisol related issue and does this mean if you are hashis (medicated and pretty ok symptom wise) one can never do extended fasts (we're not even talking that dramatic - like 24-36 hours)?

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