/r/Hashimotos
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/r/Hashimotos
is there any way to increase nuclear uptake of thyroid?
I think I have finally gotten the fatigue at bay.
I'm active enough to my standards and in better shape than I have been in years, but gosh my joints hurt. My feet hurt all the time. My hips feel like I'm 35 weeks pregnant. My lower back is killing me. The tiredness of my body feels like I'm 9 months pregnant, and if you know you know!
I bought new shoes in case it that would help. I'm walking about 3 miles a day, lots of stairs, frequently with a 20 pound baby backpack.
Hi All, TL;DR
I'm 19F, and I got diagnosed with Hashimoto's when I was 17. The first time when I experienced a flare-up, I had chronic hives and would sleep throughout the week. I was tired all the time and wouldn't eat, but I gained 20lbs. My chronic hives sometimes got to the point where I needed an epipen because my lip started to swell extremely bad. I had to miss a majority of my senior year due to this illness. I recall feeling so lost, ugly, and insecure. Fortunately, I was able to regulate my hormones and didn't have flare-ups other than occasional days of fatigue. I lived an active and healthy life since then, but recently, I believe that my symptoms are coming back, and I'm having trouble coping as I navigate my second-year of college. I started getting memory fog, and I'm sleeping through the days again. The skin on my face is really dry and bumps started appearing (i know it's not acne because I've been fortunate to never be prone to it). I'm cold all the time, and my joints feel weak. It's hard to keep going because I feel like my colleagues and friends don't go through these episodes of weakness. Its starting to take a toll on my university work because I'm always so sleepy even when I slept the whole day before. I just want to feel normal, and it's hard pushing through.
To anyone thinking of healing their hashimotos via carnivore diet, BEWARE: the longer you stay away from gluten and other food triggers, the next time you have them (even in tiny amounts) could potentially cause a massive flare up.
I've been carnivore/flexible carnivore for over a month now and it's healed SO many issues for me. Bloating is gone, I have mental clarity, healthy weight loss and NOT starving myself, hair stopped falling out, (along with vitamins and other healthy habits).
HOWEVER, I am starting to develop other weird issues if I even branch out a little bit from my diet. For example, I had some homemade stew that contained potatoes, a small amount of roasted peppers, heavy whipping cream, and chicken. I grew up with this exact meal, I've eaten it countless times throughout childhood and adulthood with zero issues.
30 mins after eating, a splotchy itchy rash developed all over my chest and legs, thyroid started throbbing, and bloated extremely badly. The good news is, the severity of those symptoms didn't last long. But, it definitely signaled that my body no longer agrees with that meal, thanks to the carnivore diet.
And I'm sad. I would rlly like to enjoy a childhood meal now and then. Unfortunately, when you detox your body, the next time you have a meal that isn't carnivore, it has the potential to react badly like mine did.
My husband and I have a stepson who we adore from his first marriage, and we want to have a baby of our own. We are lucky to be in a good place and he is so supportive, but I am worried about how hashimoto’s will effect my pregnancy, how I can take care of myself during for myself and for baby, and overall being able to enjoy this experience and not stress so much. I have already talked to my doctor and my OB, we have discussed how we will increase my levothyroxine dosage, but I feel like medication is such a small part of this disease and it improves very few of my symptoms in general so I want to prepare myself for more, Any mama’s out there who can share their experiences or advice? Thank you kindly 💜
So I have been having symptoms for about 5 years and every year I get a new symptom. It first started off with my mom noticing my neck and my primary care doctor brushed it off. Then my sister noticed I had a hard time breathing and choked in my sleep, my doctor said it was anxiety then gave me a print out on neck yoga. I then complained about horrible hormonal issues but I was just given birth control. I started to experience horrible stomach pains and constipation (using the bathroom 3-2 a week is the norm for me) and my doctor just told me to take probiotics. For the past two years, I have been gaining weight despite working out and eating healthy. I burn about 500-700 per day in the gym. I have other symptoms but the one that really pushed me to figure this out was constant blood clots when I use the bathroom. I have attached my symptoms to this post. My doctor has ran many blood test and always said I am fine but I got a new doctor and he noticed my neck right away and ordered an ultrasound. It states that I have a goiter but my follow up appointment won’t be for weeks following because I am a busy grad student. Can I still be diagnosed despite my blood work coming back normal? And what next? How do I lose the weight and balance the symptoms?
Doctors haven’t been much help and I am on my last straw
Hi all, I was diagnosed with Hashimoto's around 12 years ago and have been on a steady treatment with levothyroxine for most of that time. My labs usually come back unremarkable, and have been stable for several years. This past year I was diagnosed with another autoimmune condition and have been on immunosuppressant meds (including a low dose of Prednisone) for the past 12 months. During this time, my thyroid lab results have been standard (for me) and unremarkable.
A few days ago, I had them tested and have come back with the following:
TSH 0.02 pmol/L
T4 28.7 mIU/L
I am not seeking medical advice here, but this has surprised me as it's the first time I've ever seen labs like this foe myself!
Has anyone else experienced similar results, and if so what was your experience? I will be talking to my immunologist next week, so will be asking for advise at that time. As far as I know, I feel ok, although my mental health has been all over the place this year and I have lost some weight recently... Any ideas what might be going on?
NB: it is not standard to test for antibodies in my country. Edited for formatting issues.
TLDR: odd labs suggesting hyperthyroidism after years of stable treatment, curious to know if anyone else has experienced similar and how you felt at the time.
Anybody else dealing with chronic insomnia? I have some appointments lined up next month to get clinically tested, but just wondering if anyone else (either on or not on Levo/thyroid meds) deals with this as well. I started noticing the insomnia after a traumatic experience about 3 years ago, before my thyroid symptoms even started. Hoping that if it’s necessary, the meds will at least help with this in some way… cause supplements haven’t sadly (magnesium, omega 3’s, Vitamin D, B12, B6, mushrooms, selenium - I’ve tried them all for over 6 months now). Even exercise does nothing. It wears my body out but I never hit REM during sleep, and wake up feeling worse.
Tough times yo
As someone who has constant difficulty focusing and difficulty with mental work and has had Hashimoto's for almost 6 years, I constantly wonder if it's really Hashimoto's or some other neurological issue (not ADHD). For these 6 years, I live with a constant feeling of doubt whether it's me or my Hashimoto's and hypo. I can only remember one 100% moment when I felt a sense of dullness at 16 and started actively googling "is it possible to become dumb with age". But this is only one episode that I can remember and I can't be honest with myself to be 100% sure that it is exclusively due to Hashimoto's.
Could you please share your experience and tell me how you understand exactly that the fog in the head is caused by Hashimoto's, and that it is the main reason. Tell me your feelings before and after the disease, if you remember yourself well before getting a Hashi's. If you have any other diagnoses like ADHD, that's not really what I'm looking for. I want to hear from people without neurological diseases about their problems with mental work and whether they are sure it was Hashimoto's and not something else.
Hi, I’ve been diagnosed with hashimoto’s over 9 years ago, and managed okay with the use of amino-acids L-thyrosine and extra supplements like ashwaganda, selenium, zink, etc.
4 months ago I started to get a goiter though. My THS levels went back out of balance, which is I beleive because of emotional stuff I couldn’t cope with, but it might also be something else. My dose of L-tyrosine got doubled, I got back more energy but the swelling isn’t gone.
Now I DID go to an endicronologist at the start and I DID take additional hormones, but everything went completely crazy as a result: all my symptoms worsened as hell and I got 10 more that weren’t yet on my list. It was as if my body was owned by someone else and i had zero control over my emotions or symptoms or whtever. I felt so out of touch with myself that after a month I called the endicronologist and begged if I could please stop, as it was litterally hell for me.
My docter at that time told me they made the mistake of not giving me T3 & T4 together. She wanted me to take animal-hormones (who were very very expensive too) and I just said no after what I went trhough. I didn’t trust it anymore.
I know some people fare well with it, and others don’t feel a difference.. but I wonder if others have felt what I did. I don’t know if I should give it a second try now with the goiter, if that would make a difference or not.. or just stay with what feels comfortable with me as I feel now more in control about my body and emotions with the aminoacids.
Hello, I was just diagnosed with Hashimoto’s and I just want to get some insight from you all who have been here before.
My total testosterone is 18.54 and the doctor said it should be between 150 and 250.
My anti peroxidase thyroid globulin is 35.85 and he is saying it should be 5.6
My anti-thyroid globulin is 103 and he’s saying it should be around 4.
Is this similar to the testing that you went through? What do you think about these levels?
I have all the standard symptoms. But my gyno thought I had pcos. Maybe both, idk.
Just wanting to get some insight from y’all who have been here before. Thank you kindly for any insight you can provide.
Is anyone interested in being part of a group chat for hashimotos support where you could discuss your issues and also rant if you want. Pls comment interested on this post and I will add you to the group chat
Who do I go to with this test results? Hematology? Rheumatology? Rheumatology said I should take glutathione injections and take antiinflammatory supplements and that it could mean possible mold exposure. Idk that I believe him.
Ladies and Gentlemen, what would you recommend?
I have been super sore, having bad acid reflux and having terrible hot flashes. At the same time, I've been cold constantly even at the most moderate temperatures. Hoping the change in dosage helps!
Hello All,
I got report today ,I have appointment in a week just wanted help to assess the report
Cognitive : Memory, understanding, word, selection, and even pronunciation on bad days.
Hashimoto was life-changing for me obviously in a bad way. For 10 years T4 medicines did almost nothing for my symptoms.
Once I went to pig thyroid, (the many different brands that used to be available) this improve my cognitive abilities, but still not completely 100% even when my thyroid levels are optimal.
And why I made this post:
I learned how to try my best to hide this at work. This is why I prefer working alone 90% of the day.
I work in a building in an industry that would make a mad scientist drool. I work with scientist and engineers + all the people in between. I used to be an engineer and years ago stepped down to a technician level, which is easier on my brain.
Boss #1 is a great laid-back guy. Boss #2 is kind of a short fused A-hole, but very knowledgeable in this industry.(Gee what a surprise.)
Due to unusual circumstances at work and some old people retiring, and a new guy learning his job, I’ve been working with the 2nd boss on an almost daily basis. He sucks to work with.
The 2nd boss now notices my cognitive issues and points them out like it’s my fault. This might even be gaslighting. I’m not sure? He is a stressed out person not easy to be around. Typical perfectionist.
(According to the American ADA , Hashimoto is a disability, so I do have some workplace rights. I prefer written directions when it’s more than one thing versus verbally which I can forget).
Hi. I know the answer is that my problem is self imposed, but I am looking for some strategies. My levels are out of control. I am putting off getting blood work done because I'm not taking my levothyroxine consistently so it's not measuring how well it's working. It's never "the right time" to take my meds.
I work a very early job and I struggle already with getting up in the morning. I usually need a cup of tea to get going, and I'm usually up and out the door before 30 minutes have elapsed sp i cant just wait 30 minutes before i drink it, and once I get to work I don't have time for anything except rushing around so then I'll end up not caffeinating for way too long and my whole day is rough. I frequently forget to take it in the morning and by the time I "remember" then it's "too late because I've eaten" so what's the point and I end up just not taking it.
The answer would then be to take it in the evening, but it needs to be taken on an empty stomach which means I can't eat for 4 hours before bedtime. That again is a struggle for me, we don't eat dinner 4 hours before bedtime. I can't force myself to stay up that long after eating due to said early rise time, and honestly I struggle with binge eating due to adhd and can't really resist snacking late at night, so again, the windows to take the pill is "ruined" and I end up skipping it because what's the point?
I'm currently waiting for an appointment for adhd treatment thinking maybe it'll help with some of these issues but then I can't take levo with most amphetamines so that will again skew my meds schedule and I'll end up "skipping because I did it wrong" and continue the cycle of not taking it regularly.
I also have anxiety/depression and you're not supposed to take those meds at the same time as levo, so if I have less than 30 min before I leave for work, I feel like I have to choose one and i choose the zoloft because I feel like that's "more inportant" if I only "get to take one today".
My symptoms are out of control and I feel like crap all the time. It's my fault because I'm not taking my meds but I can't seem to find a way that works. I work in a busy kitchen so that limits my access to notifications or alarms to take meds and my break can't be scheduled at a 4 hour empty stomach interval. Once I'm home I am wiped out from midday crash and muddling through juggling the kids and dog, each day's schedule is different, and before I know it, it's stress eating bedtime and the whole day is lost.
Anyone else here struggle with schedule limitations on top of comorbid adhd/binge eating/avoidant behavior/anxiety/depression not leaving an "appropriate window" to take their pill during?
Anyone here dealing with histamine intolerance? How are you dealing with it? Any tips?
So I've been seeing an ENT for my goitre issue and then been diagnosed with Hashimoto's. He has started me on Levothyroxine. I was initially prescribed full dose of 100 mg for first two months, and then he reduced it to 75 mg for the following two months. When I went after those two months, he asked me to continue with the 75mg for another three-four months and then go back for a checkup.
My question is - how many months are you on a certain dose until they taper it down? Is it okay to be on 75mg for 6 months?
Also till now he said there is no need for a TPO antibodies test when I asked him if I should get it done along with my thyroid function tests. Do I still get the TPO done?
Context:
I’ve had Hashimotos since I was 20 years old, I’m now 38 and have two young children. I’m currently 10 months post partum and am just coming out of the postpartum hair loss horror. Was SO bad with my first as well! I’ve been on the Nutrafol Postpartum for 8 months and have seen a lot of regrowth, but recently learned that the Biotin in it can mess with my thyroid. Can anyone suggest Any other alternatives of the same quality?!
If you managed to lose weight, tell me what you did and how long it took for you to see results
I know that sucker, my goiter, no longer exists because it went away when my thyroid shrunk to non existent or as I say died of natural causes back in April after 33 long fucking years of waiting for it to happen.
Swear some days I feel my thyroid still there with my goiter but endocrinologist says this is “phantom” sensations and are common for the first year to year and a half after losing your thyroid naturally. I know Hashimoto’s is still fucking with me but in random different ways then before and endocrinologist just tells me: your autoimmune will always be a factor in your health.
😒….yeah no shit. Sorry I like this new one but I don’t like her at the same time just because of how she tries to pass symptoms I have had for 33 years confirmed by three endocrinologist before her as Hashimoto’s related off as something totally else. So I take that ugly part and ignore it but keep it filed in back of head for future references when needed.
At least my 75% shared perimenopause and Hashimoto’s symptoms have dropped my 10% but something triggered a new round of renovations from peri so thyroid issues, feelings, etc. have to be tables until I figure that out.
Has this happened to anyone else??
I got diagnosed with Hashimoto’s at 16 (I’m 29 now). Back then, my antibodies were over 400 and my TSH was super high as well. I got on levothyroxine right away.
I got antibodies retested sometime in my early 20’s and they were at 200.
Now, I’m 7 weeks pregnant and I just got a bunch of blood tests done… I WAS NEGATIVE FOR THYROID ANTIBODIES. I’m so confused! Has the medication just… worked? I thought Hashimoto’s was forever! Has anyone else experienced anything like this?
I got tested for blood clots and other issues recently and they were ruled out and I think my hashimotos medication may be causing tachycardia and chest pain. I recently got my dosage increased because my TSH was at 23 and I am wondering if I became suddenly hyper from increased dose and if it will level out. Has anyone had their dose increased and became hyper and had high heart rate? At rest when I’m awake I sit at 100-105 and it only goes down a lot when I sleep, to around 65, sometimes even 55.
Hi everyone. I am currently 5 weeks pregnant. Thyroid levels looking great. Has anyone received the flu shot with Hashimotos while being pregnant? And how far along were you when you received it? It’s flu season and I am afraid to contract the flu but also afraid of triggering an immune response. Thank you.
I have had Hashimotos for about seven years and have tried all different meds. I feel perfectly fine UNTIL I go on meds. Once I start even the lowest dose of meds I feel horrendous and feel like every symptom you would have with Hashimoto’s appear when taking meds. I FEEL ANXIOUS, Irritated, depressed, achy. Have been to 4 endocrinologist. Anyone have this happen to them or have any suggestions? Thanks in advance
It's gotten worse in the last 6 months and the endo is also giving me a blood test for adrenal insufficiency because my fatigue has gotten way worse and I've developed sharp pains in my chest as well as flank pain, mainly left side. Not sure if it's that or start of thyroid eye disease? It's like...something has glazed my eyes. They look more watery too.