I just wanna know why I'm So Horny All the time since 3 days ago Almost 4!

I mean does this seem correct? Some days pgad is very light and not too bothersome and then other days are bad and super intense?

does anyone else feel like it’s worse in the morning when you first wake up?

Does anyone else’s flare up when they have high anxiety?

Anybody else have this problem with a solution for it? I think I got PGAD from tapering my SSRI and am also wondering if anyone has had success from completely stopping their SSRI.

I notice I get a funny feeling in the center of the bottom of my foot when I start having flair-ups. Scratching or rubbing the bottom of my foot helps a lot.

A lot of my "arousal" is the feeling like I have to pee and I just peed. No UTI, go to a urogyno and they won't even explore the fact it could be urinary related. It seems after you are "labeled" they don't want to think that it possibly be something else. My gynecologist actually recommended URIcalm and it actually felt like it was working but you can only take it for two days. He was thinking like I might be having urinary tract spasms. I'm currently waiting for an opening at the urogynecologist to ask them to please address the urinary part of this. Anyone else think their's is urinary tract/bladder related?

Hi everyone, I am 23 F that struggled with PGAD symptoms on and off for about 5 years. It started off with just being in random spurts of that uncomfortable, nonstop arousal feeling here and there. Maybe it would last a few hours or a day or the weekend, so I never thought much of it. All I knew was that no amount of distraction or masturbation would help, but when I woke up in the morning it would be gone and decided maybe I was just super sensitive. About a year ago it really started picking up and I would have episodes (as I call them) that would last for days or a week and I started to really freak out but again, it would go away eventually. It wasn’t until about 10 months ago that the feeling began and never stopped for over a month. The arousal never and I mean NEVER stopped to the point it was now a burning pain at all times. I thought I was going insane. I couldn’t sleep, couldn’t hang out with friends because of discomfort and was too scared to do anything with my boyfriend from fear it would get worse. My days and nights were spent crying, having panic attacks and masturbating constantly just to have even 1 second of relief. It was torture. That’s when I did a deep dive on Reddit and found all of you and heard your stories of struggling for years on end to no avail. It terrified me, inspired me from hearing people’s strength, but most of all it pushed me to do everything I could to try and make this go away.

After a bunch of research, I booked an appointment with a urogynecologist. They specialize in bladder and pelvic floor conditions so I thought they would be most knowledgeable and likely to listen to me based on my research that PGAD could be related to the pelvic floor. My urogynecologist immediately made me feel heard although she knew very little about it as most do, but she did a bunch of research and a pelvic exam. During the exam, it was nearly impossible for me to release my vaginal muscles around her finger when asked. This led her to believe I was dealing with problems of a hypertonic (tight, overactive) pelvic floor and recommend I see a pelvic floor physical therapist. Again, even the physical therapist had rarely heard of PGAD and had never treated anyone for it. But I went ahead just to try and she was willing to do everything she could as well. 

Therapy focused on massaging and stretching tissues and muscles both inside and around my vagina including my inner thighs. She immediately noticed that every single part was extremely tense. We also worked on releasing my pelvic floor on command and training my body to have less tension in the area. Lastly, I did nightly stretches at home focusing on stretching the muscles in my inner things and loosening my pelvic floor as well as mindfulness breathing into the pelvic floor. After about 2 months of weekly sessions and consistent work at home, all of my symptoms disappeared and to this day I am about 7 months free of any PGAD symptoms.

I know PGAD can be caused my multiple issues, not just a hypertonic pelvic floor. If you think yours could be pelvic floor related, some other cohabiting symptoms I had were 20-30 minutes long intense, searing, gas bubble like cramping pains in the lower stomach as well as difficulty with penetration and constantly feeling the need to pee with no UTI. It was also a process of about $300 dollars per physical therapy session which insurance did not cover. I was very fortunate to be able to get these therapies and have specialists that listened and made up for their lack of initial knowledge of the condition with extensive research to help me. There are many ways to help loosen the pelvic floor at home if you want to just give it a shot and see if it will help you. My biggest take away from physical therapy was that tightness in the pelvic floor is connected to tightness in other areas (inner thighs, tissues and muscles around the vagina and inside) so working on loosening all of them helps loosen the pelvic floor. Just be consistent and don’t lose hope if this isn’t the treatment for you.

Lastly, for those who continue to struggle and want a tip on relief, I found that placing a heating pad on the highest heat onto my vagina (through pants, not directly on skin) and laying on my side with it between my legs to keep pressure was the only thing that helped me get to sleep at night. It doesn’t take away the sensation completely but mostly all I could feel was the heat and the arousal sensation was almost completely muted by it or at least enough so that I could fall asleep. I am happy to answer any questions. I know how dark of a place it took me to and seeing how few success stories there were of beating this made me feel. So I hope hearing at least one provides some comfort to those struggling.

I've had a chronic uti for most of this year and have been on antibiotic treatment since May. I've improved slowly since then and most of my bladder/urethra pain, spasms, pressure has reduced greatly or in some cases totally gone. While this is of course good news I've recently started having a weird feeling in the urethra/clitoris area like a tingly "awareness"? It can sometimes feel a bit like mild arousal and I find it quite disturbing. Would this be called PGAD and has anyone else had this with chronic uti? Thanks for any reply. :)

Background: 2 weeks ago I had a UTI, which cleared up using antibiotics, I also think that I got a not serious one which cleared up on its own after that one (urine sample came back negative). And I remember one day right as I was about to wake up I had like this orgasmic feeling from holding my bladder. I also remember masturbating right after that. Ever since then, I have had this weird sensation on my urethra I think, which would esp feel worse sitting down or lying on my side. Accompanied by occasional bladder itchiness feeling and and light cramping. I also think it was heavily correlated with my mental because a few days ago when I tried not thinking abt it or focused on something else I wouldn’t really feel it or anything, and the feeling came back when I could try and focus on it. Today, I masturbated again and had an orgasm, however this time was different (I don’t usually masturbate), this time I felt this “vaginal emptiness” 30 min after I orgasmed. It stopped for a bit and even now I experience it. I no longer as of right now get that urethra feeling instead it has moved to my vagina/clit area. I feel this constant arousal and it’s making me sick.

Also like mostly everyone else in this server, vibrations such as sitting in a car can trigger the feeling, and also wearing tight clothes.

Medical history: UTI, scoliosis

Anyways does anyone think I’m doomed 😭

anyone else diagnosed with epilepsy or a seizure disorder? I noticed my symptoms correlate to seizure activity--uncontrolled and undesired state of arousal (copious lubrication and sensitivity) coupled with seizure symptoms (but not always a full-blown seizure).

Hi, so for the past few days, specifically whenever I lie down, I’ve been feeling sensitive down there and honestly feeling like I’m about to orgasm without ANY sexual desire at every second. It is so uncomfortable & frustrating and I can’t focus on anything else. Does this sound like PGAD? If so, how can I manage it?? I don’t think I’ve ever dealt w this before. 😭

From what I’m reading on the internet pgad and frequent spontaneous orgasms are not the same thing.now I’m at a lost.I was wondering why I couldn’t find anyone who related to me or support.it seems from what I can see is in my groups the orgasms effect mainly biological men. I am not.

Do any of the men in the group have random ejaculations? Heavy ejaculation, with a lot of pleasure, does this happen to you at any time of the day?

I don’t know what to think. Been coping with ever increasing symptoms for 6 months now. I am a male and 28. This is becoming a struggle now… just laying in bed for most of the day riding the ecstasy waves lol 😂 but seriously it’s getting ridiculous?!? What do I do?????

I’ve been struggling with Persistent Genital Arousal Disorder (PGAD) for a while now, and it feels like the medical field just doesn’t know—or care—how to help. I’ve seen so-called specialists, tried various treatments, and followed every suggestion I could find, but nothing has truly helped.

It’s not just physically exhausting; it’s emotionally draining too. I wouldn’t wish this on anyone, yet it feels like there’s no real urgency to understand or address the condition.

Has anyone else faced this? If so, how do you cope with the frustration and the lack of effective treatment? I’d love to hear from others who understand what this feels like.

I have ocd and I notice with my intrusive thoughts I get bad flare ups but even without it sometimes pgad is still not fully gone

So I began having issues with PGAD over 3 years ago. I'm currently 49, and recently went on estradiol for perimenopausal symptoms, and my PGAD seems to have disappeared. I was not symptomatic at the time of PGAD onset, but I wonder if the PGAD was the start of perimenopause. Something to consider for ladies in my age group since one study noted a cohort of perimenopausal women with PGAD. I hope this might be helpful to someone. Best of luck💕

Hey guys if you are familiar with Dr. Goldstein from San Diego, one of his pupils are in Beverly Hills. Her name is Dr. Taubi from Rodeo Drive and shes been helping my progress with PGAD. If anyone is near LA area shes a great resource also for physical therapist, Alexa Savitz from Pelvic Rehab in Pasadena is wonderful too. I would say doing the botox and lidocaine injections and PT helped a tenfold. But thats the fact I have a very tight pelvic floor. Dr. Taubi is well aware about the steps and likely sources for PGAD. Please reach out or try to find out info, there is hope for us all.

Have been told to go cold turkey from SSRIs multiple times by my doctors, each time resulting in withdrawal symptoms. The most recent one was the worst and i’m back on medication now.

I’ve noticed if I masterbate in the morning, my PGAD symptoms don’t appear that day, but if I don’t, the PGAD will come later. In a normal day if I don’t masterbate I do not notice PGAD symptoms until around the time I get back from work (maybe a little bit later). Never had these issues before SSRIs.

Stretching gives me a little bit of relief for maybe an hour.

Any ideas what might be causing this?

Hello. I'm wondering what your symptoms are exactly so I can check them next to mine. Mine is all inside the penis shaft and up to the tip. The feeling never goes away. My bladder often feels like there's pressure on it and if I press it it makes it worse.

Most recommendations I see on here are for the US, and I was just wondering what’s the best way to get help in the UK.

I know healthcare is a mess and going to your GP, in a lot of cases, is pointless, and I really do not want to go privately, so if anyone knows the best route please let me know + your experience if possible.

Hey guys I (F,19) used to masturbate a lot this year, almost daily, up until last month where one day out of the blue after finishing I began to experience this weird tingling sensation kind of right at the bottom of my clit - it's sore, and it's not like a horny sensation either, it's a clear kind of dull, almost achey fluttery tingle. I've been experiencing it for the last month, although it does come and go (e.g when I wake up in the morning after sleeping all night, it's not there; and when I walk or do a lot of exercise or distracting things it's not there), and I have tried masturbating again to make it go away and have noticed that it goes away during orgasm and the refractory period but then slowly comes back in the hours following. It also seems to be more intense when I'm drunk/under the influence. Broke up with my boyfriend a few months ago and have been studying so haven't had any recent sex since this thing started, so can't confirm/deny if that also helps it to go away. Nothing else looks wrong though, no swelling or pain, no burning when I pee, nothing - although the size of my labia minora has also increased slightly which is just another inconvenience to add on top of this, ugh- but if anybody else has had this problem or knows anything about it, PLEASE let me know!!

Is this PGAD? If so, how can I make it go away, lol

When I have attacks/episodes, I notice that if I use my hands and feet at all (esp using my hands to grip things), my symptoms intensify/get much worse. I need to fully relax my body and drink lots of water for it to pass, which can take over an hour. It really feels like my whole body is sort of "cramping". This also applies to other parts of my body—if I'm in a position that tenses too many/the wrong muscles, it worsens my symptoms. I haven't been able to really go outside for the past few days because it's been so bad.

Also, question: I notice that a lot of the time, others describe PGAD as pain. Is it often pain for the rest of you, or is it a euphemism?

Hope this is available in your country, and of course read the leaflet and check if it’s safe to take for you before you take it.

Note - I was told my PGAD is just from anxiety.

However this medication is a painkiller that relives pain solely in your muscles. It might have a different name in your country they are commonly used.

Medication - Ibruprofen.

Hope this helps

Also - please read the leaflet and online before taking especially if you take other medications or supplements.

Just to be sure they don’t clash. As I am not a doctor.

However they are pretty light medicines and can be purchased sometimes without a prescription.

Hope this helps.

Hi. I never knew this was a thing and suddenly I am terrified for my future. For context I am 29F with endometriosis and PCOS. I have never experienced anything like this before tonight. I had severe severe cramps from endo earlier, and like normal it took an hour or so to recover. Feeling tired and generally sore I decided to climb into bed. Cue the sudden discomfort, and when I say sudden I mean it. 8 hours later I have not slept. I’m supposed to go to work in a few hours after an entire night of not being able to sleep because of this. I did a lot of digging before finding this is the most likely diagnosis. I am petrified, and I have no idea how you lovely folks have been able to endure this for weeks possibly months or even years. This one evening has been the worst night of my life. Please, anyone drop some advice for dealing with this. I already have an appointment with my gyno scheduled for Tuesday.

After months of having symptoms just like everyone else here has described (never got a diagnosis) my symptoms have disappeared! It seemed to go away around the same time I left my relationship and finished moving before my stress levels went waay down and my mental health improved in general. Even though I'm not in need of support anymore, I wanted to make sure and post an update since I think this sub is an important collection of information when there is so little research. Hopefully some people can find comfort in knowing that if you are having PGAD symptoms, it is always possible for them to go away. It won't hurt to try and get treatment for anxiety or just reexamine the areas of your life causing stress.

Just went to see my GYNO. She refused to listen to anything I had to say and immediately diagnosed me with vulvodynia even though I have no pain. She wouldn’t even prescribe me 5% lidocaine. She said I should just try therapy. In the car right now contemplating giving up. I have an appointment with Dr Goldstein in NYC that I genuinely cannot afford and the soonest he can see me is January 30. Idk how I’m going to make it until then. I feel like I’m genuinely losing it. My gyno referred me to a urologist who can’t see me until April. I feel sick to my stomach. Please people who have had flare ups and then felt completely better / success stories only. I can only take positivity right now as I’m genuinely beginning to lose it.

Edit: she said you can’t apply lidocaine to vagina and said she wouldn’t prescribe a pelvic MRI lumbar MRI etc. basically called me crazy lol

I’ve had symptoms on and off since I was younger, and just recently found this group and it feels like a fit. I’ve always had a partner and I noticed that this gets way worse with embarrassment, anxiety, and stress. I was and am extremely hyper sexual but hasn’t had this feeling for a while. It is so uncomfortable to feel this constantly and in really inappropriate settings. I no longer have a partner and I felt a huge spike in it. Does this sound like I could have PGAD?

I am glad to find this PGAD group. I am experiencing it again! The first time, it somehow went away. I am not sure why. And for some reason, 10 years later, it came back. Having read here about a link to SSRIs…well, I have been on Paxil since 2009? The first time I got it may have been in 2014. It did go away after a year or so. But now it is back again and I can’t think what set it off. It is making me want to masturbate which doesn’t relieve it …as many have mentioned…and I can’t think about anything but this throbbing arousal feeling. It does help to be on the move and to not sit or lie down. I am only 3 days into this new round of it. I am in my late 60s so I make up scenarios where I have been “chosen” to be the sexiest, most turned on woman and very much desired … YET inaccessible…to every man who crosses my path. It’s as though I am the one in control and using my “PGAD powers”. Rather than submit to this intrusion, my “story” makes me feel like I am controlling the narrative.

I've been able to do this for a while, though it's partially subconscious/reflexive. When I get too aroused and I don't like it, I start sort of... baring down? Like passing a bowel movement? Except it's more like pushing everything away from my center, which includes making things go up.

It feels like my sinuses are bulging against my skull, like my esophagus is ballooning up. My chest and head hurt, and I have to choose if I wanna continue feeling that, or if I feel aroused. But it takes a while to shift back and forth, and it's really hard to turn off.

Does anyone else experience this?

hey all I’m a male 26 and think I have pgad

Some days are better than others but I have this tingling,arousal type feeling with my penis daily it seems. Masturbation doesn’t help if anything sometimes it makes it worse

I get random erections or blood flow due to the tingling feeling and it’s has nothing to do with sexual desire most of the time.

I just recently when to a urologist (waited 6 months) for her to squeeze my testicles and say we can’t do much for you.

I’m a long time ssri user and been on and off different ssris which I didn’t know prior but can cause pgad!

The tingling alone is intrusive and not enjoyable at all it feels more like a tingling pain it’s so damn annoying. Tight clothing doesn’t help.

I’m just kinda lost