i love leggings but they trigger my pgad so bad i’m like about to cry sitting in school currently someone send help 😭

Yes, I'm flying to Japan in economy to go see my son for three weeks. How do I handle the 12 hour flight there? Please, please...any suggestions?

I don't know if it is possible to develop pgad after prolonged trauma. But this is new to me. I only started looking it up as it had become annoying and painful. This came to this term that seems to fit what I'm feeling.

Before I left my abusive situation. I noticed when I was in a good mood and not in my usual constant state of stress and anxiety. I would get a strong feeling of arousal even if there was nothing to cause it. It was embarrassing to feel it if in public. I assumed I was just in such a constant state of distress that any relief excited me for some reason.

However. Half a year later after leaving. It has not stopped. Any positive emotion gets me there. And now that I feel safe again, it's non stop.

No amount of m can help it go away. I want to cry. My hips hurt so bad. I don't know if it's related but they do hurt more if I ignore it too long.

I just want to get back to normal after the abuse. I don't know if it's possible for this to be temporary after trauma. Or if it's something I need to see a Dr about for any relief.

Has anyone else noticed the symptoms after an abusive situation?

My urogyno suggested I use just a pin prick amount of Capsaicin on my clitoral head. I'm thinking that's a really bad idea but I'm desperate. Have any of you heard about this?

M19. I’ve had diagnosed PGAD for about 5 months now. I’ve received some treatment and my symptoms are only bad when I flare up. However, I have not been able to control the sensations during anything sexual. I’ve also been having wet dreams around once a month which has become incredibly demoralizing. Due to my career path, I am unable to take most ssri’s (which I have heard can help). Has anyone (male) been able to work around this?

I'm really in a bad place mentally rn, I've had 24/7 pgad symptoms for the past 6 months with no end in sight.

I'm really struggling with self blame and self hatred because when I first developed symptoms (after tapering off an SSRI) it was made worse by touching myself. So I feel like it's my fault for exacerbating it. This is really distressing for me because I basically consider myself asexual and had never masturbated before the pgad started. I don't want to feel these sensations, it feels so violating, it's almost like I'm being possessed by an outside force.

I just feel so gross, like there's this constant compulsion that takes over my brain and makes me unable to think about anything except the pgad sensations.

Have any of you found any benefit working with a therapist about these types of thoughts and feelings? It's so awkward to talk about but I know I need help. I can't keep going like this. But I have no idea how to find a therapist with experience with pgad. I feel like that would be important. Explaining it is so difficult for me, I feel so much shame about the symptoms. I'm really close to the breaking point.

I (F20) have been dealing with huge OCD and anxiety surrounding pgad. I feel like it is more so caused by my mental health issues and getting compulsions to help caused actual physical issues, and it became just a huge cycle.

But 2 days ago I woke up and it just disappeared? The compulsions are just gone and the physical anxiety around it is gone too.

It feels really weird and bizzare tbh. I have anxiety like something should be there but it isnt anymore. Idk if it will come back but I have a feeling like this is the end. So weird. I feel more comfortable sitting, walking, laying down, all things I used to have looming anxiety over.

This is so freaking weird

This has never happened before.i know for others that when they go to the doctor for uti they mostly don’t find anything .and i getting worse?

Hello, I dont know If I have pgad, but I experience a almost permanent arousal, on my genital, making me masturbate 4-6 times a day, to relieve a little bit the sensation. I also experience a "Golf Ball" feeling sometimes located close to my anal. Im feeling very hopeless, and shamefull wich is slowly but surely killing me... I have been struggling with that for 3 years and tryed pelvic floor relaxation exercice, (maybe I have hypertonic pelvic floor) but i still couldnt stopped myself from masturbating wich bringed back to 0 my progress! Any help will be appreciated

I’ve had PGAD for a while But it started getting worse in 2021 after being on fluoxetine for a year. Before that in 2015 I was on Zoloft and it caused a bit of an increase maybe, but not a lot. Could trying a different SSRI have no impact on PGAD or even make it better? I have severe OCD that needs to be treated 💔 other meds like SNRIs and TCAS don’t work

Does anyone relate or have advice for me? Last year around this time I noticed my IC symptoms got worse where I had to squeeze to empty my bladder for a while. After that I started having to kind of stand and hover/squat over the toilet to squeeze pee out in order for my bladder to feel some kind of relief. Now I find myself having to constantly do this or I have to run back to the bathroom to pee again. I’m just really horrified at this point because I can’t use the bathroom like a normal person anymore and it’s definitely doing some kind of damage to my pelvic floor muscles (it has also made my PGAD a lot worse). Any advice or input would be greatly appreciated.

Hi, so I'm not sure if I even have this, what I can tell you is that I can't stand it anymore and I need help. Mostly info.

So, I got my period almost 2 weeks ago. it was normal at first then it turned into a scary, painful, uncontrollable flow. Also, day 3, I passed several large palm size blood clots. For a second I feared I was passing a miscarriage.

Which its not possible.

The last day of my period, I developed the constant sensation of arousal. I tried to ignore it, but its been about 5 days of this and it's torture. I can't even drive, lay down and I'm constantly peeing to find relief.

Taking care of business doesn't help for long and honestly, after a while, it's just painful.

Btw, the last time I felt somewhere near this level of arousal was 2 years ago, when I got the mirena IUD. it went away after a month

I got the mirena removed last December and although I did get a couple of heavy periods after the fact, it was nothing like the last one.

Honestly, I feel it more where the g spot is and the clitoris. It's like a constant swollen heartbeat there

It's torture.

So, any tips. Please I'm desperate

I have pgad. Sometimes the sensations are so intense, I can't think about anything else. I used to masterbate a lot. It was the only way to get even a little relief. I'd have a lot of orgasms.

But now I just can't make that happen. I still feel the same overwhelming discomfort, but I am unable to have an orgasm. I've tried several things, but it just isn't happening. I feel like there's no way to get even a little relief now and I'm just going to implode or something.

Has this happened to anyone else? Urgent desire to have an orgasm, but inability to do so? What did you do?

I found a video for pelvic floor tension relief! It helped me ALLOT. Maybe it will help you! Here is the link to the video: https://youtu.be/bvEbMkOgUHA?si=tchTNuOtDJsavzH1

Symptoms might worsen at first but if you do this daily 1-2 times it should help!!

Ps: i hope you all are doing okay 🫶🏻🧸

24, female. To put it simply, since I was 12, I noticed that when I really needed to urinate after I had been holding it for a while, I’d get this incredibly intense, pleasurable sensation in my crotch. It had never happened before, and it replaced entirely the usual sensation of a full bladder. I didn’t know what it was and stupidly asked some of my peers, all of which looked mortified and let me know they had no idea what I was talking about.

That was 12 years ago, the phenomenon has persisted since but became much stronger and less controlable. What usually happens is I will realize I have to pee, soon. If I don’t go soon then this sensation starts I can best describe like my urethra filling with piss and pressing on my clitoris from inside my body or something. And it causes random, intense sexual feeling that escalates into an orgasm if the urge to pee is really strong and not quickly relieved. If my bladder remains full I keep having more orgasms and more intense feeling. It seriously impacts my quality of life when this happens when I am in public and can’t find a bathroom, which has gotten infinitely worse since covid.

I use to think maybe this happens to everyone and they are just better at hiding it/dealing with it than me, but I don’t think this is normal. If having to use the bathroom brought everyone to their knees in sexual ecstasy I would assume public restrooms would be more widely available.

I wonder if its this condition because the random orgasms without sexual thought or stimulation, its not my mind it happens when my mind is far from sex.

I’m unsure if I experience constant arousal. I think my default state is atleast a little arousal if I’m bored but I often am able to engage completely in other things in life without feeling that way except for when it comes on suddenly when I need to pee. But it’s every time I need to pee, without fail, to varying extents in terms of intensity.

Okay so lately I've been feeling like a tickle/itch down there and it's like deep in there so I can't really scratch it and it's also kinda tingling or buzzing and a few mins ago it throbed like twice and I was really scared because I heard of this. Im pretty sure I had a uti so all these feelings I tied to the uti but I've been taking antibiotics and they work but then like when they wear off it stings, tickles, buzzing, tingling, and it feels like I'm about to orgasm and I'm really scared I'm only 15 please tell me it's just the uti and my anxiety is just making me think it's this. I also sometimes have a numb ache in my butt and also I get like sensitivity in my anus like pulsing and a tickle

I’m a male 26 and the way I can explain this is I have this consistent tingling feeling in me penis. Some days it’s better than others but it’s there everyday.

I’m jumped in and out of 3 diff ssris in like 8 months and that’s when I noticed this feeling. I’ve been taking lexapro though for 5-6 years now

Masturbation makes the tingling and slight pain way worse. I always kinda have this blood flow to the penis

When I sit for too long I feel it or in the car I get this tingling feeling and a erection

Wtf dude I’m a 26 year old man not a damn 12 year old boy going through puberty 😡

Im giving it two years. If this doesnt go im getting a clitotectomy and or my entire vagina removed/ and or neurolysis of the pudendal nerve

Hi everyone,

I ended up going to a urogynecologist due to my PGAD symptoms. He did a regular vaginal pelvic exam and there were some parts where I had a little bit of pain/tenderness. I also told him about my symptoms like the persistent “arousal” feeling. Basically he said that I may have endometriosis and that it may be irritating the pudendal nerve causing the arousal-like symptom. He said in my case he can’t be certain if I have it since I have less symptoms than others with endo but unfortunately the only way you can know for certain is with surgery (which I still have to figure out what to do). Anyways I just wanted to come on here and ask if anyone else here has any experience with endometriosis causing PGAD symptoms? I can’t find much info about the correlation online. Thanks!

Since the PGAD nightmare started in April of this year, I haven't slept well, understandably and I finally asked my psychiatrist for a sleep aid. I see a psychiatrist because I suffered from anxiety and PTSD from my career in law enforcement. He called in Trazodone 100 mg to be taken at bedtime. First night, I only slept 4 hours and it wasn't a good sleep. Last night I slept almost 12 hours, can't ever do that again but the reason for my post, is that everything else I've tried and the pudendal block was done with no relief at all, it was the Trazodone! Wish someone would of shared that with me back when this first started. So I'm sharing this with you now hoping it can help hopefully my fellow sufferers that were not aware of Trazodone.

I was on SSRIs as a teen for my OCD. I have no idea if at the time it was making my PGAD worsen or not, but when I went off of them I didn’t have an improvement in PGAD, just way worse anxiety. (Went off 2 years ago). I have had PGAD my whole life, and it’s caused by pudendal neuralgia and a condition I have in my vestibule. I’m trying to treat the PN with surgery soon on my hips, and I’m recovering from spinal surgery. but my OCD I think is making my PGAD worsen. So I want to go back to Zoloft or Prozac, but I’m TERRIFIED it will make the PGAD worsen. And I know at first it will, because I will be so hyper focused on my symptoms when I start going on. So I don’t really know what to do because I want to find out if my OCD is making my symptoms worsen and therapy has not been enough for my OCD as it is very severe.

Does fluoxetine helped anyone with nerve pain/clitoral pain/ Vulvodynia/ pgad ?

Hi, diagnosed with PGAD a month or so ago, along with hypertonic pelvic floor and vestibulodynia. No MRI done but doctors refuse them because of my pelvic floor.

I was told to do PF relaxation exercises, but the sensation gets incredibly worse and it stays that bad for days after. Same for dilation exercises, even worse maybe.

Visits with gyno/PT also make it all a lot worse, because they touch the muscle and leave me with worsened sensations for days.

Lidocaine doesn't work at all, I get numb but I can feel an incredibly painful needle inside where my clitlris is.

I'm taking pregabalin but it doesn't seem to help.

I tried acupuncture and that also worsened the sensation, just like after I try doing pelvic floor relaxation exercises .

What else is there to do. Every time I do something that's supposed to help I am a lot worse. I don't know what else to do..

22F here, I've been on and off medication all my life, ADD meds and anti depression (icouldnt tell you which ones since its been so long). I cold turkeyed most of it in 8th grade, not my decision, and went through withdraws and all that. Before all this started I was never a sexual person, never got aroused, never had a crush, didn't even masturbate, so when I was 17 and started getting aroused over nothing I got scared, constant vaginal lubrication too, and after a week I finally got the confidence to tell my mother. She just laughed and said it was normal. So I believed her, and over the years kept it to myself, it got manageable and ignorable. I've had a rough year, a lot of doctor visits, and I thought I was finally in the clear and started to exercise and diet, even started taking diet medications (semaglutide). But a week ago the symptoms started, and I don't know what to do. It's not throbbing it's just a constant pressure, like it's hard, I haven't orgasmed (that i could tell). I can feel the nerves in the bottom of my hands and the soles of my feet firing, not a tingle sensation but more of a weird, sensitive feeling. I can't wearing tight clothing, I can't put any pressure on it of any kind. Im a virgin, I've never even had the urge to have sex, I've tried to ignore it but it's always there in the back of my mind. I scheduled a gynecologist appointment, but that's all thr way in december and I don't know if I can last that long. I even have a history of doctors not taking me seriously, I dont know what to do. I'm so tired of things going bad in my life.

Should I make an appointment with my primary doctor? What's the quickest way to get help. I just want to feel normal again.

Will it go away on its own if this is actually the cause? My GP has suggested going back on the SSRI but I don’t want to.

does anyone else feel like their getting direct clitoral stimulation whenever their leg/buttocks falls asleep? whenever one of my legs falls asleep it can cause me to get sensations in my clitoral nerve that make it feel like it’s getting direct stimulation.

How many ladies here are of age for menopause or known to be perimenopausal? I read a paper a while back about women approaching menopause being a cohort for PGAD. I'm pondering possible hormonal involvement🤔 ie: test still normal, but est/prog low. I'm 49 and peri, and wondering how many other sight be in this position and whether or not hormones helped or exacerbated. I know at least one person had onset with hormone therapy. And what was your hormone therapy? Est only (no uterus) or est/prog combination?

Bonus info: SSRIs can reduce hot flashes

i haven´t posted here in a while. my symptoms went away for many weeks, but they are kinda back again, but not as bad as before, they´re kinda on and off. my vagina feels heavy and it feels like I need to pee all the time, and it´s kinda uncomfortable. i don´t even know if I have pgad.

i think there´s a lump kinda deep inside my vagina(it´s not my cervix). Does somebody know if cysts or tumours can cause symptoms like mine?

I think I´ve also read that pelvic organ prolaps and posterior vaginal wall prolapse can cause the feeling of pressure inside the vagina. could it be could chronic UTI, or Interstitiell cystitt? someone please share useful information if you know any?

I need to talk to someone to help find out if I even have it! :(

Yes, was feeling better from the 24/7 hell I have been going though since April 2024. So my husband and I booked tickets to visit our son who lives in Japan. Big mistake, now I don't know how I can handle this on a 12 hour flight there, 3 weeks of traveling all over Japan and then a 9 hour flight home. How am I gonna do this? I've been through every doctor imaginable and I thought I was done with it but oh boy, I was so wrong. So it's been constant pelvic floor therapy which makes it worse, psychological therapy which just made me sad, gabapentin and topical creams as well. Lying in bed right now with an ice pack between my legs. I get very little sleep and my life has turned back upside down again. I really think it was the pudendal nerve block that sent it over the edge again. Please, please tell me how to get through the flight and trip, this is a nightmare that I can't wake up from.