t3_1h50dh6

I'm based in the UK. For the past month been having a lot of mucus in my stools and needing to go after I eat. Ive been quite stressed as I've been applying for jobs and not really getting anywhere (I don't know if that's connected). I've always thought I have IBS and have had problems with constipation. Went to the doctors and the faceal Protectin test has  come back 220 and been diagnosed urgently to infectious diseases. I'm 40. I wondered if anyone else was going through similar and would like to share journeys or if anyone had any advice about what to expect. Really now struggling with health stress and had just told myself to stop applying for jobs as I do have one, just wanted a change! 

<div class="md"><p>I&#39;m based in the UK. For the past month been having a lot of mucus in my stools and needing to go after I eat. Ive been quite stressed as I&#39;ve been applying for jobs and not really getting anywhere (I don&#39;t know if that&#39;s connected). I&#39;ve always thought I have IBS and have had problems with constipation. Went to the doctors and the faceal Protectin test has  come back 220 and been diagnosed urgently to infectious diseases. I&#39;m 40. I wondered if anyone else was going through similar and would like to share journeys or if anyone had any advice about what to expect. Really now struggling with health stress and had just told myself to stop applying for jobs as I do have one, just wanted a change! </p>
</div>

220 Protectin, mucus and stress - hand hold 

t3_1h4w89b

I had a colonoscopy today because I’ve been suffering from stomach ache, lose stool and blood and mucus in my stool. But the colonoscopy showed absolutely nothing! They also took some biopsies which I’m gonna get the results from within 4-6 weeks. 
Did anybody here try to have a normal colonoscopy but the biopsies came back with result of IBD? 

<div class="md"><p>I had a colonoscopy today because I’ve been suffering from stomach ache, lose stool and blood and mucus in my stool. But the colonoscopy showed absolutely nothing! They also took some biopsies which I’m gonna get the results from within 4-6 weeks. 
Did anybody here try to have a normal colonoscopy but the biopsies came back with result of IBD? </p>
</div>

Normal colonoscopy but still IBD? 

t3_1h4twmx

Hello! I've been having issues for a year now. 
Did some exams, I'll spare all of the details, but basically slightly elevated calpro and ferritin, did a colonoscopy, visually nothing wrong, but in the biopsy they found chronic mild inflammation but non conclusive with IBD. They told me it could be Nsaids (ruled out as I don't take them), or the contraceptive pill (gi doesn't seem it could justify this).
A part from this, I'm having inflection stool tests, which weren't done before as they are unlikely for my GI, but if there are negative she doesn't know what else to do. IBS has also been ruled out as there's no connection to the foods I eat. She told me at that point, I have to look into other stuff which might be inflammating my intestines (endometriosis and stuff like that). 
My gut still shows signs of inflammation, nothing has gone back to normal, I mainly have constipation and often diarrhea too lately, everything is weird.

Has anyone started this way and maybe any IBD wasn't far enough to show up and it showed up later?

I'm a bit desperate, idk what to do honestly

<div class="md"><p>Hello! I&#39;ve been having issues for a year now. 
Did some exams, I&#39;ll spare all of the details, but basically slightly elevated calpro and ferritin, did a colonoscopy, visually nothing wrong, but in the biopsy they found chronic mild inflammation but non conclusive with IBD. They told me it could be Nsaids (ruled out as I don&#39;t take them), or the contraceptive pill (gi doesn&#39;t seem it could justify this).
A part from this, I&#39;m having inflection stool tests, which weren&#39;t done before as they are unlikely for my GI, but if there are negative she doesn&#39;t know what else to do. IBS has also been ruled out as there&#39;s no connection to the foods I eat. She told me at that point, I have to look into other stuff which might be inflammating my intestines (endometriosis and stuff like that). 
My gut still shows signs of inflammation, nothing has gone back to normal, I mainly have constipation and often diarrhea too lately, everything is weird.</p>

<p>Has anyone started this way and maybe any IBD wasn&#39;t far enough to show up and it showed up later?</p>

<p>I&#39;m a bit desperate, idk what to do honestly</p>
</div>

How long before diagnosis 

t3_1h4tgtj

Hi everyone, I posted here recently about my elevated calprotectin levels (around 500).

My symptoms are mild, but persistent: chronic left-side gas and mushy stools (although I've recently been on 10 days of prednisolone for another issue and it did make my stools more solid.)

Now my GP has referred me for a colonoscopy, and it says Urgent appointment, which got me a bit worried. **Why do you think there's an urgency?** A bit worried they found something else there on top of elevated FC. I've never discovered blood (except from fresh blood when wiping on rare occasion), weight loss or dark coloured stools. 

<div class="md"><p>Hi everyone, I posted here recently about my elevated calprotectin levels (around 500).</p>

<p>My symptoms are mild, but persistent: chronic left-side gas and mushy stools (although I&#39;ve recently been on 10 days of prednisolone for another issue and it did make my stools more solid.)</p>

<p>Now my GP has referred me for a colonoscopy, and it says Urgent appointment, which got me a bit worried. <strong>Why do you think there&#39;s an urgency?</strong> A bit worried they found something else there on top of elevated FC. I&#39;ve never discovered blood (except from fresh blood when wiping on rare occasion), weight loss or dark coloured stools. </p>
</div>

Urgent Referral (Anxious)

t3_1h4pr3t

People have no idea what it’s like to worry about a flare-up ruining everything. 

<div class="md"><p>People have no idea what it’s like to worry about a flare-up ruining everything. </p>
</div>

Do you constantly keep scanning for the nearest bathroom, and even if you do everything right with your diet, still end up in pain? 

t3_1h4p8ve

Two months ago I started an investigation with my GP due to symptoms of constipation, diarrhea, stomach pain and nausea. After several tests, only the calprotectin was positive, 347 the first result and 200 the second. I then had a colonoscopy, an endoscopy, an X-ray with contrast and a computed tomography scan, all of which came back normal. I'm anxious because I don't know what the next steps will be and what this positive result might really be.
Has anyone ever been in the same situation and been able to tell me more about it.

<div class="md"><p>Two months ago I started an investigation with my GP due to symptoms of constipation, diarrhea, stomach pain and nausea. After several tests, only the calprotectin was positive, 347 the first result and 200 the second. I then had a colonoscopy, an endoscopy, an X-ray with contrast and a computed tomography scan, all of which came back normal. I&#39;m anxious because I don&#39;t know what the next steps will be and what this positive result might really be.
Has anyone ever been in the same situation and been able to tell me more about it.</p>
</div>

High Calprotectin without inflammation bowel

t3_1h4lj0n

Hello,

Long term lurker but first time poster here. I’ve finally reached the point in my search for a diagnosis that I’m convinced I must have microscopic/lymphocytic colitis. 

28 years old. Basically my symptoms started about 2 years ago after starting Zoloft. I had been on Zoloft for years on and off for most of my adult life. My symptoms were/are frequent, watery diarrhea and bouts of severe abdominal pain. Waking up in the middle of the night running to the bathroom. Usually worse in the morning and at night. Sometimes with a lot of mucous and undigested food. Extreme rumbling noises after meals. I have not yet had bloody stools. Just recently starting losing weight.

I figured my symptoms were associated with the Zoloft since I know SSRI’s can cause GI upset. After about 8 months of suffering, I finally weaned off. Things got a little better but I’ve still been very symptomatic for the last 1.5 years. I’ve gone down the testing/diagnostic path for pretty much everything IBS related - Cdiff/parasite testing, SIBO testing and treatment despite not having SIBO, food allergy and intolerance testing, pancreatic insufficiency testing, GI map, low fodmap/elimination diet, probiotics, adding/eliminating fiber. I tried herbal anti-inflammatories, digestive enzymes, etc. NOTHING helps, and I’ve been keeping a food diary for months and it does not seem to be related to food. My triggers seem to be extremely high fat meals/fried food and alcohol, really anything that speeds up my gut motility more than it already is. I eat a very clean/simple diet and exercise regularly. I’m very healthy besides my GI issues. I will say my symptoms have gotten SLIGHTLY better the last 6 months with use of SB probiotics, now only having mushy/muddy stools and not as much water/mucous, but I’m still going 3-7+ times a day with urgency and overnight as well.

I will be having a colonoscopy w biopsy after the holidays but I’m desperate to know:

Does ANYONE have a similar story to mine and were you diagnosed with microscopic colitis? At this point I’m not sure what else it could be….. I’ve thought for some type it would be some type of IBD but I’ve just never had blood in my stool.

Any insight is appreciated. Thank you!



<div class="md"><p>Hello,</p>

<p>Long term lurker but first time poster here. I’ve finally reached the point in my search for a diagnosis that I’m convinced I must have microscopic/lymphocytic colitis. </p>

<p>28 years old. Basically my symptoms started about 2 years ago after starting Zoloft. I had been on Zoloft for years on and off for most of my adult life. My symptoms were/are frequent, watery diarrhea and bouts of severe abdominal pain. Waking up in the middle of the night running to the bathroom. Usually worse in the morning and at night. Sometimes with a lot of mucous and undigested food. Extreme rumbling noises after meals. I have not yet had bloody stools. Just recently starting losing weight.</p>

<p>I figured my symptoms were associated with the Zoloft since I know SSRI’s can cause GI upset. After about 8 months of suffering, I finally weaned off. Things got a little better but I’ve still been very symptomatic for the last 1.5 years. I’ve gone down the testing/diagnostic path for pretty much everything IBS related - Cdiff/parasite testing, SIBO testing and treatment despite not having SIBO, food allergy and intolerance testing, pancreatic insufficiency testing, GI map, low fodmap/elimination diet, probiotics, adding/eliminating fiber. I tried herbal anti-inflammatories, digestive enzymes, etc. NOTHING helps, and I’ve been keeping a food diary for months and it does not seem to be related to food. My triggers seem to be extremely high fat meals/fried food and alcohol, really anything that speeds up my gut motility more than it already is. I eat a very clean/simple diet and exercise regularly. I’m very healthy besides my GI issues. I will say my symptoms have gotten SLIGHTLY better the last 6 months with use of SB probiotics, now only having mushy/muddy stools and not as much water/mucous, but I’m still going 3-7+ times a day with urgency and overnight as well.</p>

<p>I will be having a colonoscopy w biopsy after the holidays but I’m desperate to know:</p>

<p>Does ANYONE have a similar story to mine and were you diagnosed with microscopic colitis? At this point I’m not sure what else it could be….. I’ve thought for some type it would be some type of IBD but I’ve just never had blood in my stool.</p>

<p>Any insight is appreciated. Thank you!</p>
</div>

Microscopic/Lymphocytic Colitis

t3_1h4l3at

Hi, I am currently waiting for my colonoscopy which is scheduled in 2 weeks. I’ve been waiting for the procedure for about 9 months as is fairly common in Australia in the public system - for the last 12 months or so I’ve had lots of digestive issues on and off - constipation, bloating, strange weeks at a time of constant diarrhea and a coming and going intense pain on my lower left side. My GP thinks I am suffering from either Crohns or some sort of Colitisand for the last week and a half I feel like I have been in a significant “flare” - frequent diarrhea with mucus and blood and pain. The pain has started to lessen since I have stopped eating anything except mash potato’s but the diarrhea is each morning and night.

I have tried to add a few bits and bobs into the mix food wise but when I tried to have chicken broth with some carrots and a protein shake the diarrhea came back with a vengeance.

Basically - in a flare what are your go-to foods? I don’t think it’s appropriate to ask people to diagnose me as most signs point to IBD but I just am looking for ways to manage this flare ahead of the colonoscopy so I don’t go crazy.

I am feeling the mental strain of not being able to freely eat food and it’s getting me down. Just looking for any experiences of anyone who had to wait for their colonoscopy while experiencing a “flare” and what they went through that helped or any pointers

Thanks so much 

<div class="md"><p>Hi, I am currently waiting for my colonoscopy which is scheduled in 2 weeks. I’ve been waiting for the procedure for about 9 months as is fairly common in Australia in the public system - for the last 12 months or so I’ve had lots of digestive issues on and off - constipation, bloating, strange weeks at a time of constant diarrhea and a coming and going intense pain on my lower left side. My GP thinks I am suffering from either Crohns or some sort of Colitisand for the last week and a half I feel like I have been in a significant “flare” - frequent diarrhea with mucus and blood and pain. The pain has started to lessen since I have stopped eating anything except mash potato’s but the diarrhea is each morning and night.</p>

<p>I have tried to add a few bits and bobs into the mix food wise but when I tried to have chicken broth with some carrots and a protein shake the diarrhea came back with a vengeance.</p>

<p>Basically - in a flare what are your go-to foods? I don’t think it’s appropriate to ask people to diagnose me as most signs point to IBD but I just am looking for ways to manage this flare ahead of the colonoscopy so I don’t go crazy.</p>

<p>I am feeling the mental strain of not being able to freely eat food and it’s getting me down. Just looking for any experiences of anyone who had to wait for their colonoscopy while experiencing a “flare” and what they went through that helped or any pointers</p>

<p>Thanks so much </p>
</div>

Suspected IC - waiting 

t3_1h4h5bk

I’ve been having chronic abdominal pain for a year and a half, worse after meals, with episodes of diarrhea and elevated calprotectin.

My colonoscopy was clear and my GI recommended a CTE next which I’m finally doing in three days.

I’m desperate for an answer honestly as I can’t see myself living like this for the rest of my life. I can’t enjoy any food and my quality of life is drastically reduced. My family and regular doctor are happy to call it IBS and think I’m exaggerating and being too anxious. 🙄

I have AS which is often a companion to Crohn’s.

Just wondering if some of you had clear scopes but got diagnosed through a scan because your disease was in the small bowel.

I know I post a lot but I feel terribly alone in this.

<div class="md"><p>I’ve been having chronic abdominal pain for a year and a half, worse after meals, with episodes of diarrhea and elevated calprotectin.</p>

<p>My colonoscopy was clear and my GI recommended a CTE next which I’m finally doing in three days.</p>

<p>I’m desperate for an answer honestly as I can’t see myself living like this for the rest of my life. I can’t enjoy any food and my quality of life is drastically reduced. My family and regular doctor are happy to call it IBS and think I’m exaggerating and being too anxious. 🙄</p>

<p>I have AS which is often a companion to Crohn’s.</p>

<p>Just wondering if some of you had clear scopes but got diagnosed through a scan because your disease was in the small bowel.</p>

<p>I know I post a lot but I feel terribly alone in this.</p>
</div>

Anybody ever get a clear colonoscopy but inflammation was seen on subsequent CT or MRI?

t3_1h4a5lc

Hello,

I had a colonscopy in September and it said non specific inflammation in rectum with no architectural distortion. Colon biopsies all normal. Since then I have just had mucus on my normal solid stools. 

I have done mesalamine suppositories twice 2 weeks each time and I still have the same amount of mucus. 

I have done a GI mapping test and I do have a lot og gut dysbiosis and positive for hpylori. 

I am so confused on what I truly have. 
No pain, no blood, no diahrea, no urgency. 

Please someone help me. What should I do? 
Doctors are now looking into chronic lymes disease because of some blood tests that are pointing to that. And i feel like that's just a bunch of B.S. in it itself. 

<div class="md"><p>Hello,</p>

<p>I had a colonscopy in September and it said non specific inflammation in rectum with no architectural distortion. Colon biopsies all normal. Since then I have just had mucus on my normal solid stools. </p>

<p>I have done mesalamine suppositories twice 2 weeks each time and I still have the same amount of mucus. </p>

<p>I have done a GI mapping test and I do have a lot og gut dysbiosis and positive for hpylori. </p>

<p>I am so confused on what I truly have. 
No pain, no blood, no diahrea, no urgency. </p>

<p>Please someone help me. What should I do? 
Doctors are now looking into chronic lymes disease because of some blood tests that are pointing to that. And i feel like that&#39;s just a bunch of B.S. in it itself. </p>
</div>