Pretty sure I have this and I have kinda started the process of getting diagnosed.

But what benefits are there of it (specifically in Germany, if possible)?

Access to therapy/medication/devices, I guess?

I'm not sure if I want to bring it up to my employer as they are kinda looking for reasons to get rid of people. I wfh, but have a core working time (that starts too soon for my liking).

I don't expect that this is considered to be a valid reason for being eligible for any sort of disability payments (I'm gladly proven wrong on that one, though).

Would it be taken into account if I get into long-term unemployment and the job center tries to force jobs onto me?

Is there anything I haven't thought of yet?

Sleep is making me very ill. Sorry my post isn’t well written.

But I’ve tried everything and I’m extremely sleep deprived all the time I have DSPD and adhd that I know is significantly affecting my sleep

Help I also take Modafinil when necessary abs it destroys my sleep even more ( only taken it once in the last 6 months)

I’m trying to look for research, what would be more beneficial in terms of fixing my CR? Either evening wearing blue light blocking glasses, or the luminette style blue light glasses?

Or should I try both?

I just spent 80 bucks on a luminette dupe on Amazon, I have 30 days to return them, but I’m wondering if the blue glasses are more impactful than blue light blocking glasses.?

Any thoughts?

It's on March 9th this year. If you're like me and it takes a month to shift your schedule, now's the time to start! Oh joy 🥴😵‍💫

I think I need to share this so anyone who is struggling like I was could get some hope.
I have been dealing with sleep issues (non-restorative sleep, waking up early morning, taking too long to drift to sleep, etc.) for 6 years.

I tried my best to keep my sleep schedule to fixed hours but it didn't fix my sleep fragmentation during early morning hours, no matter what time I went to sleep. I craved sleeping continuously for 8 hours.

So after a lot of experimentation (trying CPAP, deep breaking, blue light blocking glasses, etc.) and research I found out about something called circadian rhythm (CR) that if messed can't wreck havoc on health. I have travelled a lot to different countries in the past years and also moved to a different country with slightly different time zone to my home country. So I suspected that my irregular sleep schedule and shift in daylight timings may have confused my CR severe. Note that I am homebody so I don't spend much time in daylight due to mostly WFH.

Since Luminette is returnable within 30 days of purchase and is claimed to show effects within a week, I had nothing to loose if I were to try it. And I did.

I kid you not, within 4-5 days I started seeing shifts in my sleeping patterns. My Garmins shows uninterrupted 8 hrs of sleep and I can feel it as well. My non-restorative sleep has improved a lot and I don't wake up at 3-4AM anymore. I still use blue light blockers at night (Specta479) from time to time but Luminette is what fixed the fragmentation for me. Thank you to whoever created this technology. I now sleep at 11PM and wake up automatically at 7:30AM (dot) without any alarm.

Settings: Initially I started using it at level 1 setting and after 2 weeks of regular use, I now use it at level 3 which auto-turnsoff the device at 20mins mark.

P.S. I am in no way affiliated to Luminette. I wish I was lol.

Hello dear Reddit community,

I would be happy if you participated in my survey on the impact of sleep disorder and supported my bachelor’s thesis.

Target group: from age 16

Duration: 2 minutes

https://forms.office.com/Pages/ResponsePage.aspx?id=xQ4KNpTw8UWjGcbcNWAnBBysP8ZRkENMvMdVBeS-1d1UQjFLVjYyRlRMNkdRWDI2UUlEVEZQV0k4WS4u

Is it normal with dspd that trying to adjust one's circadian rhythm leads to insomnia? Every time I've tried shifting my circadian rhythm to a more reasonable time (my goal was 2 am to 10 am) I developed severe insomnia until I couldn't sleep at all. I did this by setting my alarm clock a bit earlier every day, trying to get sunlight directly after getting up, taking tryptophan or 5-HTP and dimming the light before sleep. I even tried staying awake the whole night to increase my sleep drive for the next night. But every time I reached my desired sleep window and finally slept for 7/8 hours I couldn't fall asleep the next day and went sleep deprived for several days. After 6 months of trying and failing I kinda give up. It somehow feels impossible.

I’m pretty sure I have DSPD, but don’t have a formal diagnosis.

I have bipolar 2, and I know it can be correlated in some cases. I have had chronic fatigue since a very young age (12 or so). They have never found anything wrong, but I feel exhausted all day, and then many times get a second wind at night around 10:30 or 11. I try to sleep then but I stay up until 2ish a lot.

When I worked a 9-5 schedule (but was more like 8am-10pm), I was always way too exhausted to get out of bed and go to work. And all day I would be fighting fatigue and lethargy, but then at home alone at night I would be able to get work done.

Not sure if anyone can relate and if so, if any medication has helped?

I do my best to go to bed at 10pm every night because I have to wake up at 7am for school. I fall asleep in around an hour usually, but I wise up at like 1-2am and am awake for a couple hours before I eventually fall back asleep.

Hello! I posted about my suspicion about DSPD before two sleep studies I just got the results for. So both the tests (MSLT and polysomnography) showed that I fall asleep fast but that my REM sleep and sleep quality overall are normal. I have some slight leg movement during my sleep, but that feels irrelevant. However, what alarmed me were the MSLT results: my average time for falling asleep was 7,6 minutes. I had 4 trials and didn't fall asleep during the first one (my feet were cold lol), which I believe means that trial was marked as 20 minutes....which would mean I fell asleep in under 5 minutes for all the other trials. An average of under 8 minutes should be a reason to suspect hypersomnia, which the doctor said nothing about in the report. My diagnosis for an "undefined sleep disorder" stays and no further tests have been suggested. The doctor completely skipped the part where I had marked a sleep diary that had my sleep schedule for the winter break, which was the complete opposite of during normal school time. How do you guys think I should proceed from here and what could these results mean in light of DSPD?

I'm a closing driver at Domino's so I'm usually working 5pm-1am or later and it is wonderful. When everyone else is tired and wanting to go home and sleep I'm wide awake and ready to keep going for hours. Hardly even need an alarm to get up each morning.

Plus I kinda love the night and being out at night. It's beautiful with the lights and the moon and what few stars I can see.

I’ve been using the luminettes for a week now, 3 hours of the lowest setting when I wake up. I’ve also been going to bed about 30 min earlier a night, hopefully to match any sleep advance from the night therapy. Today I wake up 4 hours earlier than normal exhausted and desperate for more sleep. I get very depressed when I’m too sleep deprived and knew I couldn’t make it through the day so I laid there until I fell back asleep, resetting me to my original time.

I’m wondering if the advance ever happened at all, or if I got too far away from my natural rhythm by advancing my bedtime 30min/night, leading to an interruption in sleep.

Just wondering what you guys find helpful to get you off to sleep?

Melatonin didn't do anything for me, I read loads on here about dosages, when to take etc etc and still had no joy.

I recently got prescribed Ambien for the first time and unfortunately it did absolutely nothing apart from make me feel even more groggy the next day.

Zopicline worked for a bit and then I had to start taking multiple tablets per night.

Mirtazapine just made me feel groggy and didn't help with getting me off to sleep.

Amitriptyline didn’t work and made me feel like a literal zombie.

Is there anything anyone would recommend I ask my GP for (UK)?

I have a confirmed diagnosis of DSPD with an element of insomnia.

Check out this article: https://www.sciencealert.com/we-might-finally-know-how-the-brain-refreshes-itself-at-night

I've been considering Luminette's for a a year or two but at $200+ it was hard to justify. I randomly looked on Amazon the other day and found knockoffs for $70 then on AliExpress for $30. I've been using them for 1 hour a day for only like a week and it has already shifted my schedule forward by an hour. If you've been wanting to try light therapy for a while, at this price it's hard to justify not giving it a go!

edit: there can be concerns with safety if the glasses are emitting the wrong wavelength light. I got the Amazon ones which claim IEC 62471 certified so unless they are false advertising then should be fine. but i will test and report back. no issues so far.

Does anyone experience this regularly? I get it with terrifying hallucinations. My guess is that even though I'm not fully asleep my body is entering a REM state. After it happens I'm usually too scared to fall asleep.

Every so often I have a night/ morning where I just literally do not go to sleep until HOURS after my usual bedtime. Like what the fuck. It’s almost like a mania manic episode feeling. I usually go to sleep at 8:30 if I’m lucky now. But right now it’s fuckinf TEN AM. And I’m wide the fuck awake. I’ve taken my meds, they’re not even kicking in. I’ve taken extra. I took my herbs and supplements. My body and mind are just in complete fucking survival mode it feels like. I’m so frustrated. I did get shit done while I’ve been awake but still. Now I am going to waste the entire fucking day sleeping because I haven’t been able to get to sleep at a decent hour. It just keeps getting worse and worse and worse and I feel like this will never get better. Just needed to vent. I hope tomorrow I can get to sleep at my normal fucking bedtime. I will probably take one of my emergency Lunesta if I can’t

this happens very frequently with me. whenever i sleep early (9 to 10 pm ) i always always wakeup in the middle of the night from 1 to 3 am . Why does this happen?

During the school holidays I have often been going to sleep from 3-5 AM and waking at 11-1 PM. I love it, it feels so natural.

Going to sleep so late allows me to have time by myself without distractions. I never felt stressed or anxious. The only negative is that I also feel like I am missing out on the daylight in the morning. It feels like my day is wasted and I stopped myself from socialising.

Now that school starts again I have to wake up at 7 AM, which to me is fucking crazy! I feel tired and drowsy when I wake up so early.

So, even though I HAVE to wake up at 7, I just don't want to. I don't want to spend most my day feeling exhausted and it doesn't fit my biology

Any advice? I don't want to readjust unless there is a way to do it that keeps me happy.

During school I always slept from 3/4 am to 6/7 am (had to get up). During college I skipped the early morning classes and slept till 10 am - but oftentimes I had to get up early anyway (for exams or mandatory courses). Then I developed insomnia during a stressful period of my life and got so sick I was unable to work.

Since 2/3 years I don't have stress anymore and I'm could - in theory - sleep in everyday, but I somehow ended up with a really weird sleeping pattern. My body naturally wakes up around the same time every day (12 to 1 pm) but I'm not able to fall asleep at 4 am everyday. It usually switched between a good nights (from 4/5 am to 12/1 pm) and bad nights were I fall alseep around 8/9 am. My circadian rhythm is so messed up. It somehow feels as if I have to be sleep deprived in order to fall asleep at around 4/5 am the next night. I've tried a lot of things to fix this but it didn't work. Does anyone here experience the same? What could this be? Doctors have no answer for me.

I started daily light therapy using Luminettes 4 days ago, and dark therapy the night after I got the luminettes (long story). It's been working extremely well, faster than I thought it would! I'm not sure if that's just some sort of placebo effect or if I'm just extremely responsive/sensitive to it or if its just a fluke. Yesterday I woke up at 9:55am, today I woke up at 7:50am.

I've been doing 2 rounds of the lowest setting at 12pm daily (according to circadian rhytm morning at time of starting light therapy). Additionally I also started keeping my phone brightness on 100% all day and dimming it down a bit gradually every few hours after abt 4-6pm until I dim it to 0% and put my blue light filter app on right before starting dark therapy. Not sure how much of an effect that would actually have but I figured a teensy bit of extra light therapy couldnt hurt.

My wake up time almost immediately shifted way back. I'm worried its going to keep going back until i wake up ridiculously early and I really don't need to be waking up earlier than 7:50, I was happy with 9:55!! Should I try using the light therapy later, or only one round? Or should I keep it consistent no matter what? Or is my phone brightness really effecting me that much, should I start dimming it earlier?

For me the relationship seems so circular - my inattentive symptoms are off the charts when fatigued due to early work hours, and dopamine seeking and hyper-fixation increases in the evening, which correlates with staying up later. Wonder if others experience correlations,

TL;DR: I've had sleep issues for seven years and was recently diagnosed with Delayed Sleep Phase Disorder (DSPD). I struggle with a shifted sleep-wake cycle, vivid dreams, "messages" in my dreams, hallucinations, and have found that treatments I've tried (light therapy, chronotherapy, melatonin) don’t help. Does anyone have similar experiences or tips for managing DSPD?

Delayed Sleep Phase Disorder – Major Sleep Problems

Hi! This fall, I was diagnosed with Delayed Sleep Phase Disorder (DSPD), and I’m hoping someone here can share experiences or advice.

I’m 24 years old and have been struggling with sleep problems for seven years, since I was 17. The issues began in high school when I frequently stayed up all night doing homework or watching series. Over time, I became increasingly alert in the evenings, which turned into a pattern of falling asleep very late—usually around 4:00 AM. At that point, I had school at 8:00 AM but would often oversleep, sometimes until the school day ended at 3:00 PM.

After high school, my sleep pattern gradually shifted further. In bad periods, I’ve fallen asleep as late as 8:00–10:00 AM. I typically wake up between 2:00 PM and 4:00 PM, though sometimes as late as 6:00 PM or 8:00 PM. My sleep duration is almost always between 9 and 13 hours, and when I sleep this long, I feel awake and energized. If I sleep less, I feel exhausted and sick. I don’t drink caffeine or alcohol.

Because of these sleep issues, I’ve barely attended university physically in the past five years, spending most of my time resting or sleeping at home. I also haven’t been able to work alongside my studies because I sleep through much of the day. I managed to complete my bachelor’s degree by attending only a few days each year and doing all my coursework in the evenings or at night. Now that I’ve started a master’s program, I’m required to attend in person three times a week, every week, to pass. This has made the situation much more challenging, both physically and mentally.

I also often fall asleep at inappropriate times, such as when I have guests over, on couches at parties, while eating dinner, on benches in school hallways, and even on the floor against walls at school. This is not only uncomfortable and embarrassing but also frustrating because it feels entirely beyond my control.

Previous Experiences with Healthcare

I first went to my GP about my sleep issues in 2019. When I described how I was sleeping excessively and often felt exhausted, I was told to take a blood test. The results showed a slight vitamin D deficiency, but otherwise, I was deemed healthy. I received no follow-up or treatment.

Over the next few years, I saw a different GP three or four times about the same issue. Each time, I was again asked to take blood tests, which always showed a slight vitamin D deficiency but no other abnormalities. I never received any actual treatment or solution. This made me feel dismissed, and I suspect my sleep issues weren’t taken seriously because I’m young. Only this fall, after seven years of symptoms, was I diagnosed with DSPD.

"Glitching" Thoughts and Sleep Inertia

When falling asleep, I experience what I call "glitching" thoughts. It feels like my thoughts jump from one absurd idea to another with no coherence. Thought patterns might include: “The guinea pigs have grown 40 cm, there’s a magazine in the fish tank, the bike seat is too high, boiling guitar strings.” These thoughts make no sense, but I get stuck in them and can’t break free until I fully fall asleep. This intensifies my sense that my sleep issues are completely out of my control.

I also struggle with sleep inertia or "sleep drunkenness," which makes me extremely disoriented upon waking. I often turn off alarms in my sleep or don’t hear them at all. When my partner tries to wake me, I sometimes say things that aren’t true, like claiming I have the day off or didn’t sleep at all, just to be allowed to sleep longer. The awake version of me doesn’t mean these things, and it creates problems in my life, but it feels as if I have no control over what I say in this state. Occasionally, someone calls me, such as professionals, and I make commitments I don’t remember or know about afterward.

I also experience daytime sleepiness 1–2 times a week, especially around 5:00–7:00 PM. During these times, the only thing that helps is my partner coming over with a board game, which is the only activity that keeps me awake and prevents me from napping for 20 minutes to two hours.

Euphoria from Staying Awake All Night

What makes the situation even more confusing is that when I stay awake all night, I actually feel amazing. I experience a sense of euphoria, energy, and freedom that I don’t normally feel in my daily life. This makes it tempting to pull all-nighters more often, not just because it’s enjoyable, but also because I dread having so many dreams. However, I know it’s not a solution to the underlying problem. Still, I haven’t stayed awake all night once since being diagnosed this fall because I’m trying to take my sleep problems seriously. I’ve come to realize this isn’t about liking late nights but about an underlying condition.

I’m currently working on improving my sleep habits by going to bed between 10:00 PM and 3:00 AM. However, I still wake up late, often between 12:00 PM and 3:00 PM, despite my efforts to adjust my sleep-wake cycle.

It often takes my partner 2–4 hours to wake me up in the mornings. On weekends, they end up sitting alone, waiting for me until 12:00–3:00 PM because I sleep so late and need time to wake up. In the six years we’ve been living together, we’ve never done anything during the day on weekends before 12:00–4:00 PM. I understand how boring and frustrating this must be for my partner, and I wish it were different.

When my partner wakes me, I often find it very distressing and frightening. On weekdays, they might call me five times from work to wake me, which I find the most effective and least unpleasant way. But on weekends or holidays, they might try waking me by sitting on the edge of the bed, which feels like a shock to my system. It can feel like I’m about to have a heart attack, or my brain comes up with drastic “trump card” thoughts to make them go away. For example, I might think of saying something I’d never mean in reality, like breaking up, just to make them leave the room, likely crying, and not come back, so I can sleep in peace. These thoughts only occur in the twilight state between sleep and wakefulness, and they disappear once I’m fully awake.

Treatment for DSPD

It took over six months to get an in-person consultation with a neurologist after being referred. During this appointment, the diagnosis was based on a sleep diary, use of a sleep tracker/actigraphy, and a conversation. Since then, I’ve only had one follow-up over the phone, scheduled three months after the initial consultation. The long wait times between contacts are challenging, especially considering how much this affects my life.

I’ve told the neurologist that I experience extremely vivid dreams, hypnagogic hallucinations (when falling asleep), and hypnopompic hallucinations (when waking up), but these were dismissed. While I was told these symptoms aren’t “normal,” they were not explored further.

The suggested treatments have been light therapy, chronotherapy, and melatonin. Light therapy involves using a lightbox for 30 minutes upon waking, while chronotherapy involves gradually moving bedtime 15 minutes earlier each day until the sleep-wake cycle stabilizes. The issue with these treatments is that they rarely work for DSPD, around 90% of people see no lasting improvement. This has also been the case for me. I’ve also tried melatonin, which isn’t a medication in the traditional sense, and my experiences with it have been mixed. Where I live, melatonin is essentially the only treatment offered for DSPD, so other medications that might be suggested aren’t typically available here.

Experiences with Melatonin and Dreams

I experience lucid dreaming, both with and without melatonin. This allows me to control my dreams at times, but it also means I sometimes don’t want to wake up because I want to explore my dreams further.

I’ve tried both over-the-counter melatonin and prescription fast-acting melatonin, with very different experiences.

When I tried over-the-counter melatonin (1–2 mg), I had extremely vivid and colorful but not frightening dreams. These dreams were so fascinating that I couldn’t wake up for 10–12 hours because I wanted to keep exploring them. For example, I once dreamed about navigating a giant treehouse the size of Europe, and in another dream, the entire world was a spinning top made of colorful sewing threads.

Fast-acting melatonin, on the other hand, has been a much more challenging experience. I’ve had the worst nightmares I’ve ever experienced and felt like I was receiving “messages.” For instance, I once dreamed about an artwork of a yellow monster with a large red eye, which I believed was the original concept for the Grinch. The painting cost 29,000, and I became obsessed with staring at both the image and the number 29,000. When my partner tried to wake me, I shouted, “Go away!” without understanding what I was doing until several seconds later, by which time they had already left the room.

Such “messages,” like the number 29,000, also manifest in other ways. For example, I dreamed I was at my neurologist’s office (whom I’ve only met once) and read on her computer screen: “The patient can be added and divided, sawed and cut, tasted and experienced.” In another dream, I received a text from an acquaintance that simply said “angry and sour” with angry emojis, which I interpreted as them being upset with me.

"Messages," Hallucinations, and Dream Content

I’ve also had dreams where I fixate on certain names or phrases for extended periods. For instance, about five years ago, I became preoccupied with the surname “Ringstad” in my dreams for almost a year, even though it had no apparent connection to my life. Later, I noticed this name on trucks in real life, which felt oddly significant.

These “messages,” which I often “read” in newspapers, magazines, or on screens within dreams, feel so real that they linger in my thoughts long after I wake up. I can’t help but spend time analyzing what they might mean, even though I don’t want to.

Using fast-acting melatonin has also triggered hallucinations, such as seeing “shadow people” moving around my apartment. For example, I once saw a small boy, about three years old, run from one room to another. I’ve also experienced sleep paralysis where I vividly felt the presence of an intruder in my home. This taps into a real-life fear that I’ve forgotten to lock the door, intensifying the distress.

Aside from these vivid and unsettling experiences, I’ve also had celebrity-related dreams for about six years. I’ve “met” various celebrities like Sabrina Carpenter, Dolly Parton, Miley Cyrus, and Elon Musk, often with them walking into my room as if it’s completely normal.

The other experiences I mentioned, shadow people, hallucinations, and dream “messages”, have mostly occurred since this fall. I’m not sure if these experiences are caused by the stress of my master’s program or side effects of the fast-acting melatonin, as both began around the same time.

Feeling "Crazy" and Fear of Misunderstanding

These experiences make me feel like I’m going “crazy.” I’m hesitant to share this with anyone besides my partner or a doctor because I’m afraid of how it might be perceived. I don’t hear voices, but the “messages” feel like thoughts or text that I experience as reading a newspaper in my dream. It scares me, but I also fear others might misunderstand this as schizophrenia.

Exploring Alternative Treatment

Frustrated by the lack of understanding and the long wait times for help from the healthcare system, I decided to try an alternative sleep clinic. The clinic offers non-medicated treatments for sleep disorders, and I only realized it was alternative medicine after booking my first appointment. I chose to go anyway, hoping for emotional support and more time to discuss my sleep issues.

My experience there has been positive. I feel like they take me seriously and offer helpful advice. However, the treatments themselves are not scientific. My sleep issues are medical, and I need a treatment that can provide tangible improvements.

Struggles with the Healthcare System

My neurologist confirmed that I could take an MSLT (Multiple Sleep Latency Test) to investigate my daytime sleepiness, but this requires having a regular sleep schedule first. The issue is that achieving a regular sleep schedule is nearly impossible for me since the shifted sleep-wake cycle is the core issue of my disorder.

The neurologist is also reluctant to prescribe modafinil as a treatment for my daytime sleepiness, leaving me with no medical options for managing my symptoms.

I’ve expressed to the hospital that I want to expedite the process, but everything is moving so slowly. I’m afraid this will drag on so long that I’ll finish my master’s thesis in 1.5 years before I get any meaningful help. After finishing my studies, I plan to work as a teacher—a daytime job. Right now, this feels insurmountable.

Questions

Has anyone here experienced similar symptoms to the ones I’ve described, such as vivid dreams, “messages,” hallucinations, and sleep inertia? I understand this might not be a standard part of Delayed Sleep Phase Disorder (DSPD), at least based on what I’ve found online. Does anyone know what this might sound like or have experienced anything similar?

Hi all! I found my way to this sub after some research. I've felt most of my life like I've had a delayed sleep disorder. My body wants to sleep about 4 hours off from a normal schedule, no matter what I do. Deprive myself of sleep, avoid screens, blue light therapy, melatonin, you name it - nothing changes the fact that I can't get to sleep until 2-4am and my actual restful sleep happens like 8-10am.

I always struggled with my work schedule (9-5) however now it's 8-5 and it's getting harder each passing year. Further the only thing that I've tried that helped was zolpidem to knock me out and keep me on a "normal" schedule. But now no doctor in my area wants to touch it because it's considered a controlled substance. I've yet to find a non-controlled medication that actually helps.

While I truly feel like in my heart DPSD is the problem - is there a benefit to finding a doctor and getting a diagnosis? I suppose on some level it might feel validating and that I'm not crazy. Does it maybe make it easier to get doctors to prescribe medications?

I've only ever had one sleep study ordered by a doctor. It cost me hundreds out of pocket, I had to wait months for it, and when the study came they gave me an ambien to knock me out. Ok great, but that doesn't tell me *why* I need something to put me down or what to do about it, if anything. Naturally they just said use a CPAP machine which cost $1k and insurance took away after I skipped a few nights using it.

Hi my fellow DSPDers. I would like to know if there are any foods that help (or worsen) our DSPD. Like, is there something you can have in the morning that get you energized? (besides from coffee lol) Is there something you can have at night that helps sleeping? Are there any "forbidden foods" for DSPD?

Luminotherapy, melatonine and working out have been kinda helpful for me, but I'm trying to do everything I can. I know nutrition plays a big role in the body, but I haven't found much information about nutrition+DSPD.

I can force myself (like I have been this week) to get up early and go to bed at a decent time, but the sleep I get is terrible. I can fall asleep, but will wake up at some horrible early hour unable to fall back to sleep. Even if I keep forcing myself to get up at the same time every day, my body won’t cooperate. I just get more and more tired every day until I’ll eventually sleep one night for 14 hours (resetting my to a late sleep time) or staying up later (and a get great sleep again, but reset to my late sleep time)

Hey guys I’m new to this sr, but I’ve experience DSPD my entire life. I’m 18 and in university which has posed extreme struggle for me. It took 8 months from requisition date for me to get a sleep study and now I’ve been given Lemborexant at 5mg for my sleep. It worked for a few days and now it’s not working anymore. Because I’m 18 my doctor has shown a great deal of biases towards medicating me the way I need to be medicated. My schedule is off by 8 hours if not more sometimes and I’ve been deemed unable to train myself without chemical intervention. 

I’m not sure if anybody else here has tried Lemborexant, but it’s only useful up to 10 mg and that hasn’t worked for me either. Being a university student dealing with DSPD is honestly horrific, and I wouldn’t wish it on my worst enemy. I don’t know what else to do because my doctor basically refuses to prescribe me anything else for this. I’m so frustrated, and I’m so done. This week alone I’ve considered dropping out because of it, this world was not made for people like us and I’m so tired :,)

My daytime sleep study is Friday morning. (See earlier post for details). I advocated for a daytime study rather than wait 6 months for a night study that would be completely useless. Are there questions any of you would like for me to ask them? I plan to get there pretty early so I am not driving tired. There is a good chance I will have some opportunities for chatting with the techs. An example of something I intend to find out, is what the goopy glue is that they use to attach the electrodes to my head is, and how exactly to dissolve it. So far Reddit says Micellar water and conditioner. Last time, they were clueless and I severely re injured my neck trying to wash my head in the sink with hand soap. It was a nightmare and would not come out. I am white and have relatively smooth hair. I am slightly obsessed with how stressful I imagine this experience is for someone with highly textured hair. So, I want to do some minor science experiments to find the best solution, and then make sure that sleep studies everywhere actually communicate that! Post questions, and I will try and find answers!

So I'm back already lol, as per my last post I ordered the Luminettes, but I learned on here I'll also need blue light blocking glasses for dark therapy as well as the light therapy. I looked on here and most recommendations seem to be only available to the US. I looked on Amazon but I'm not sure which ones are actually any good. Any recommendations?? And also I'll happily take recommendations for any other stuff I'll need to buy like light blocking sleep masks. Thank you !!

Edit: I found this brand, which has red glasses that block blue AND green light, and orange glasses that block just the blue light. It claims their glasses block 99% of blue light. Are these legit, and would it be better to get the orange or red glasses if so? Is it more helpful to also block green light? https://www.uvtech.cz/sleep-1-svetle-cervene-bryle-proti-modremu-a-zelenemu-svetlu/

Sorry for bombarding this sub lol. I've suffered with DSPD my whole life with no help at all and was on the verge of a mental breakdown about it recently because I had tried everything I could think of and none of it was working and I had 0 hope of ever being able to fix this or at least to make it a bit easier to deal with. I started to think I was beyond repair. This subreddit has given me the most hope for my sleep I've ever had and you should expect to see me a lot now I've discovered y'all lmao