You can find a lot more detail about the case here. I came here to know other people's experience.

My father has no previous issue of BP, Diabetes or anything else. He gets his annual checkup and his Creatinine, Urea and other RFT parameters were normal.

Recently he got severe infection and there was no urine for good 24-36 hours.

While now he is urinating a lot (~100+ ml per hour), his Creatinine is not declining. To be exact, his Creatinine declined from 9.5 to 6.1 (Day 12 - 21 of admission) but then it has risen back to 8.2 (Day 22 - Day 26).

Ultrasound shows everything normal. All blood reports apart from KFT/RFT are normal. There are no traces of any remaining infection.

Do you have any similar experience in past? How long does AKI takes to recover? Can he fully recover? If not, what will life look like for him? As his son and his family, what I should be prepared for? Any advise is most welcome.

the other night I woke up at like 3am. I was super dehydrated and when I drank the smallest bit of water I just started throwing up for like 10 minutes. it was literally all water. it happened again tonight and it was the same story. I wanted to know if it's related to ckd. I need to get another full lab but I'm just not sure. sudden random vomiting can't be normal

I’m new to Reddit posting and English is not my first language , so apologies for any mistakes .

I have been using FLO PMS vitamins to help ease my hormonal acne and menstrual cramps and intermittent spotting . My GYN initially prescribed birth control for these symptoms and I didn’t want to get on it , so I tried FLO and it did help with my symptoms and I let my GYN know about it . They didn’t see any major issues with it and I let my monthly subscription continue for 2.5 years as I have A healthy 6 year old and we weren’t actively trying to convince.

However , about a year ago - My spouse was interested in having our second and I wanted to postpone it for a while till we sort out some issues but my pregnancy test was positive a month later and my husband insisted to keep it . I stopped using FLO as soon as my pregnancy test came out positive but I still used FLO for a good 3 weeks of initial gestation ( apart from these gummies , I didn’t drink /smoke and was following a healthy diet and exercise routine ) . Every thing was normal during intial scans and during the anatomy scan they observed the fetus has echogenic kidneys and concluded it could because of double ureter on one side and assured us it won’t cause any issues for the baby . I had a safe delivery 2 months ago and my baby got UTI when he was 4 weeks old and he was hospitalized for a week , during the stay we found out he has a high grade VUR which caused renal dysplasia ( kidney didn’t form fully ) on the right side and which contributed to UTI and altered kidney function . Now he’s on prophylactic antibiotics to prevent UTI and unless and until his other kidney grows and compensates , he will go into CKD .

With this diagnosis, I can’t stop blaming myself - going back and forth with negative thoughts and feeling regret as I used PMS pills during initial weeks and scared that might have caused this birth defect . Can my baby have normal life with one working kidney ? I’m constantly stressed about his health and getting anxious over the possibility of him getting sick and needing a transplant in future . Please share your thoughts and experiences over this .

I heard about a study made in Germany that actually are people that went from 3a to 2 or 1 or even completely healed with a correct intermitent fasting and low carbo died …someone knows anything ?

Im asking because for the past couple of years my GFR has been <50

But my lastest blood tests now say my GFR is 90

But my result says your GFR (glomerular filtration rate) of 90 is calculated by abbreviated Modification of Diet in Renal Disease Study Group

What does that mean?

Our lives were turned upside down a week ago today, My dad who is 62 has been feeling unwell for a few months so he went to the doctors. They phoned him first thing the next day and said he was seriously ill and that he needed to come to the hospital, his kidney function was at 8gfr. He was in the hospital 3 days and the main cause turned out to be his prostate, it was the size of a fiat. which had caused his bladder to fill 5 times it’s normal size putting pressure on his kidneys and causing a back flow. They managed to relieve his bladder but the doctors said his one kidney was finished but the other had “some” healthy tissue round it although they wouldn’t really say how much or how bad it was. A day and a half after his bladder was relieved his kidney function was back up to 14gfr and he came home. He’s got to go back for blood tests weekly and in 6 weeks go back to start the next stage which will be his prostate (just hoping it isn’t cancerous, they said they don’t think it is though) and wether or not anything can be done about his bladder. He is currently stuck with a catheter which they said he will probably be for the rest of his life as the damage to his bladder is significant.

Now this is his absolute worst nightmare, he owns the family business and works 6 days a week, he does everything round the house himself and is generally just very independent and has always been one of the healthiest 60 odd year olds Ik. Doesn’t have any other health issues other than this. He hates the idea of the catheter.

My main questions are 1, how much will his kidney recover? Ik it’s hard to say but is there any sort of guess wether it will be 20gfr or 40? And how long will it keep recovering for?

2, does a catheter eventually become easier to live with? Working with it? Walking and being able to do things like renovate his bathroom which was his next project etc at the moment his says it’s uncomfortable and painful, he can’t even sit down straight with it.

3, is there any possibility his bladder could heal to some degree? He currently keeps having spasms.

So everytime i ask my nephro about starting a low protein diet to lower my proteinuria, he says "what sense does it make to reduce your protein intake when you are already losing so much protein. Your body needs to make up for the protein loss!". And so not to curb my protein intake.

Im not sure what to tell him or whether I should go on a low protein diet.

the title, thank you

Hey y’all I noticed a lot of you guys talk about cutting meats and seafood out of the diet… but what about eggs?

Have been on this medicine. Seems like I have no energy and I am not able to eat much animal protein. I am at stage 1.

aPTT level of 26.5 anyone else experienced this?

Previous post here.

TL;DR: in title.

Had a nephrologist appointment this morning. Despite my tests and ultrasound results he wasn't ready to define what's going on. He said I need to do CAT scan (no contrast), whole lotta blood work again including tests on systemic deseases and visit an endocrinologist and urologist too. Also when I asked about any urgent treatment of any kind, he answered that it's out of the question, that he wont risk his reputation by prescribing anything whithout proper diagnosis. The only things he advised is to drink more, remove salt from diet completely and not use NSAIDS ever again.

So, a bit more running around before, I suppose, a biopsy (nephrologist said its a "gold standard" of renal diagnostics in their clinic). More to follow!

P.s.: Also I was instructed to monitor my blood pressure and pulse. Gonna keep a bp journal now.

P.p.s.: i didnt consume any salt or salty food for 5 days. Jesus, I want salt so bad it makes me laugh. Fresh crispy potato chips with no additional flavours just sea salt and a bit if black pepper! Mmm i cant stop thinking about fresh crispy salty potato chips

I (34NB) was born with PKD and have CKD. At the time, in 1990, my mother was told that the disease was due to her never having had chickenpox… I have no idea what made doctors believe that that was the cause. Fast forward to this month and I got into contact with my father’s extended family in Sweden. It turns out that MANY people on that side of the family have both or either PKD and CKD. Many of them died from it between the 1950’s-2000’s, but the ones who are still alive and have the disease are in their 90’s. Mystery solved!

I had my transplant on the 10th of December and my consultant says he would have expected more of an improvement considering it's a live donor.

Highest it has been is 43 and it's just dropped to 34 on my last bloods(creatinine shown on the pic).

He is suggesting a biopsy to see what's going on but he gave me the choice to do that or wait to see if it improves.

Does any one have any opinions on what I should do? I am a bit spooked by the drop since Monday.

I'm a T1.5 diabetic with stage 3 (close to stage 4) CKD. So many of the foods I've been encouraged to eat since my diabetes diagnosis and then years later my CKD cancel each other out. Eating [this or that] is great for diabetics but oops, should be avoided by ppl with CKD, and vice versa. Feels kind of like I'm down to lettuce and water. 😜

Is there a Venn diagram or just a list anywhere that lists what's OK for ppl with both diabetes and CKD to eat? TIA!

I’m 19 and got diagnosed with kidney disease at 9 but got a flare up at 17 since then I sweat very little while I train. Is this because of the kidney disease?

Hello everyone. I am 19 years old and have been diagnosed with Dent’s disease since I was little. Ever since I can remember I’ve had yearly check ups, including surgeries and taking pills every night.

That being said, it doesn’t effect my life so much. I don’t notice it in my daily life and I don’t obsess over it. Currently my doctor’s report says “Dent’s disease and chronic kidney disease stage 1-2”. What can I expect?

I drink lots of water and I exercise daily. I have a bad habit of drinking alcohol (almost weekly) and when I do drink I go over the top. I also really like food and eat a lot, but I’ve kept a good weight all my life (currently 78kg at 189cm/6’2).

My question is what can I expect for the future? Any of you in a similiar boat with Dent’s disease? What exactly does “stage 1-2” mean? Thank you for taking the time to answer!

So my brother has iga nephritis - they discovered it early with 15 - so far mine were fine and I am f28. No one else in the family seems to have issues ..

Buuut… I noticed some bubbles and more frequent urination over the past days but I also had influenza with fever. My doctor said it only makes sense to check Urin in two week due to the recent fever and influenza I had (she means that the body is out of system anyways after that).

So my question is if kidney issues run in your family and if you think I now might also caught it … thank you all!!!

I’ve been diagnosed CKD for over a year now and in that year it has gotten a bit worse but not went from stage 2-3, what are some ways to prevent that? Thank you all in advance.

I understand these drugs are supposed to lessen the severity of CKD. But I have read numerous posts on here where people with stable eGFR’s went downward after starting one of these drugs. Is that downward trend temporary? It doesn’t make sense to me why nephrologists prescribe it if one of the CKD markers we all are concerned with is negatively impacted. By the way, my neph started me on Jardiance one month ago and I’m not due for my next tests until March, so I have no idea if mine is going down yet.

So my nurse missed a couple days ago when trying to get the needle in, afterward my arm has started to swell a little and hard to move. Tightness somewhat. Is this normal after infiltration? Just wondering if anyone has had this before.

So back in December, I got some blood tests done and it showed that my eGFR was 59 and my creatinine level was at 1.47. I was placed on Farxiga. So I wanted to get a second opinion and more blood tests two weeks ago. Just today I got my test results and they showed that my eGFR was 47 and my creatinine level was 1.40. I wanted to know if the Farxiga is working. Should I be concerned? Is my eGFR fluctuating and could it possibly go back up?

The FDA just approved Ozempic for CKD patients. What are the guidelines? What eGFR would someone have to have to qualify?

Hi does anyone have any advice on how to get rid of Moonface after stopping prednisone? I was on a high dose for three and a half months stopping the taper in mid-October, my face has gotten better but is still visibly fatter. This is my second time on prednisone due to a disease that seems to relapse annually in the summer, I worry that my face will not return to normal and I will get sick and be placed on prednisone once again before the moonface subsides. Can anyone help me to get rid of this so I can feel myself again?