I'm getting my PD tube tomorrow and I'm really worried. I've been having emotional out burst, crying periods, and pushing people away when I need them the most. I dont want sorrow, I don't want sympathy, but after this procedure I feel like that's all I'm going to get and the mood swings will get worse. Plus I've been on reddit and reading people's experiences with PD obviously and I'm getting mixed reviews, maybe that's making me more scared spiraling with my emotions.

Its at 162 and i’m a bit worried about it because my docs told me it should be under 2 digits 😭 i’m on alfacalcidol and about to start a new supplement as well, but does anyone who has faced this in the past know how i can make it better from my end? (Please don’t say surgery i’m a wuss🙃👍🏼)

anyone having sex life set back. i’m a 37 (M) who is doing hemodialysis. i have had quadruple bypass surgery and stroke. i used to have seggs a lot but now with HD, i can barely get it up. anyone experiencing the similar issue?

Oddly enough it was an old friend from high school with a heart of gold, so hopefully those of you still looking can see that a new life can come from anywhere.

My question is for those who have had transplants in the past, what did to do to prepare? What did you pack and how long were you in the hospital for? Thank you

Can anyone give me any advice regarding headaches and dialysis? I started dialysis a month ago and get a bad headache every time I go. The doctors solution is to give me saline and Tylenol. It does not work. Anyone else experiencing this please help.

35M Do you think dating is a waste of my time or should I wait until I find a kidney transplant? This happened all of the sudden that I’ll need one but I do treatment at home and I still go to work. I do PD treatment and I’m curious if any of you still date while doing Dialyis and did it work out for you?

Hey guys, I’m a home haemo patient with a Fresenius 6008. Any advice pertaining to a 5008 will be gratefully accepted too, since I’ve used both machines. Last night, out of hours I was trying to setup but the machine got to the end of the T1 test and displayed the error message “Error CD circuit test.”

It only gave me the option to Repeat, so I did, four or five times. It failed with the same error message. I fully shut down, re-booted and re-lined it, exact same error message occurred. I did not manage to dialyse at all :(

Last time I had an issue on a Saturday (always a Saturday!) by mid-morning Monday when they did my bloods my potassium was 7 - so I’m really quite worried. I thought I had the number for the emergency guy, but I can’t find it. I’ve tried other numbers I’ve got and they’re switched off. I rang the Renal ward and the nurse didn’t have the number either - and sounded deeply unbothered.

Does anybody know anything I can do myself to fix this, or someone I can contact on a weekend? I’m UK based, North East.

We have known that my dad was eventually going to need dialysis. We are just so unsure about whether his nephrologist is doing right by him. Appointments were set up and his nephrologist’s dialysis clinic without giving us any other options. Since the hospital stay he has not gotten any lab work. Just has gotten set up with his 3x a week appointments. I spoke to his nephrologist about this and he got incredibly defensive about and said that he didn’t do referrals to other dialysis clinics. If we wanted that we had to our own research. He spoke to my dad later and told him if he went to a different clinic he could no longer oversee his care. It just all seems so inappropriate. We are going to speak to our insurance and we can hopefully find another doctor soon to get a second opinion. I’m hoping maybe you all could let me know if what we are going through right now is normal or not. Thanks!

Every now and then, I get a negative UF on a cycle. Overall UF is positive though, so that's good. But let's say the fill is 2000 and the drain will be 1500, leaving my UF at -500. Does this happen to anyone else, and if so, how do you deal with it? I usually have to do a manual drain later in the day if the last cycle's UF is negative, which means I'm carrying around extra solution in mah belly.

is anyone taking ketamine for their stress associated with treatments? if so, how is it?

What happens to dialysis patients who live in an area with six foot snowfalls. Can they last until the roads are opened again?

Not sure if I’m at the right place. My 89 yo grandparent has a history of congestive heart failure with gastroparesis. He was just admitted to the hospital and has started hemodialysis due to fluid retention and lack of being able to urinate efficiently. He has no appetite and is overall feeling very badly. He’s very moody and doesn’t want to continue dialysis. Which he will obviously need since his kidneys are no longer functioning properly. What do you believe the prognosis is. I haven’t been in the talks with the doctors and I feel like my family is trying to protect us by not saying much.

I think it might be time for me to get dialysis. A year faster than i thought >.< how often and how long a dialysis session is? I think someone told me about 6 hours and every 3 days. I think every time they will inject 2 tubes. Wasnt sure.. Not looking forward to it. I hate injections. Where they usually stick the needles. I hope it not the neck >.<.

Oh and after you done can you get up and walk by yourself? Or do you need help?

I understand the reasons my dr recommends getting a fistula, but i want to know about people’s experiences good or bad

I feel like I’m signing up for a deformity. Is it possible to prevent a fistula from getting “lumpy” and bulging?

I’ve noticed that other people at the clinic are very particular about who they want to put their needles in. Is it bc some of the techs aren’t very experienced?

Did anyone get a fistula and it didn’t work or it caused other issues?

For anyone who sleeps during dialysis, is it possible to accidentally dislodge or otherwise negatively affect your needle while you’re sleeping?

Thank you in advance. My anxiety and i appreciate you

Unfortunately I've lost my PD cath and gotten a chest cath again after my appendix blew up two weeks ago. I do not recommend the experience, spent several days intubated and septic on SICU, they had to put me up 9L or more to keep my blood pressure up (in addition to hella pressers), still super bloated and gonna take a while to get dry. Basically the closest brush with death I've ever had.

So if you have mild generalized belly pain with clear drains, don't just blame constipation, get that appendix imaged.

So you may or may not remember me posting about a month ago at the start of doing APD.

https://www.reddit.com/r/dialysis/s/gFFiDflstR

First I wanna say thank you for everyone's messages. I apologise for no replying to people after the first couple of replies I actually got far more comments than I expected and I intended to sit down and reply to people but I never got around to it..

So anyway. APD still wasn't working. After multiple visits to the hospital to see the nurses and having them come to me we switched to a different dwell and fluid still no joy.

Go trained to do the bags manually (yeah that's meant to be first but manual bags wouldn't work around my life) and that wasn't gonna happen either. 2 hours to drain each time... Wasn't anyway this was gonna work.

Changed to doing just 1 bag a day and this was still no good.

On top of this I have a constant pain in my abdomen while I'm doing it which mean I'm always in pain.

So the nurses have chatted with me and I'm now holding until I can get the fistula done to start HD.

I think this is gonna take away a big part of the stress for me!

Thanks again for all your kind words and comments on my last post.

Purple bag for temporary use

my wife has been doing PD dialysis for a year and a half she uses 3 green bags and 2 yellow bags a week she has Saturday and Sunday free when we go on a holiday we take everything thing with us except the fluid. baxter delivers that for us

Her specialist said it would be okay to do freeline say a litre of Purple before she goes to bed dwell for 8 hours while sleeping while on holidays instead of taking the machine with us if it works we could do a cruise and do the same any thoughts on this

So I just want to know if it's normal or if I should bring it up to another member of staff. Every single time I'm on the same shift as this one nurse in the hospital he comes over while I'm sat on the bed 3hrs in and starts lifting up the mattress and checking under it with his hands. I have never ever witnessed him do this to any other bed and I'm in a room with 6 beds that I have clear view of. I asked him before why he does it and he says he needs to check the bed isn't broken, but I just to happen to be a little larger than other people here. It's starting to make me really self conscious and uncomfortable and I don't understand why he can't check this before or after session.

I work in ICHD and I've been repeatedly having an issue with Fresenius 2008T with bibags where it will continuously prepare dialysate and not let me put it in test mode. This happens especially but not alwaya after having to turn it off and on. Sometimes putting on a new bag will resolve the issue. Sometimes waiting will resolve the issue after 20 minutes ish. Sometimes it will just keep going. A coworker suggested disarming the air detector which made it say "bi bag filling" or something like that and didn't solve the issue. I've tried pulling the bibag out to relieve pressure then putting it back on, this is rarely successful. My nurse says it has to be something I'm doing because it happens to me often.

Advice?

Hello my eyes have recently swollen like a lot and its hella noticeable idk why its happening? any idea ? Ik ckd patients gets swollen eyes or feet but this much is a lot

So I asked this question before on here with no useful response. How much power does an APD machine use. Turns out, it's not as much as you think. You can easily buy a power station on Amazon or elsewhere like Costco for $400 and 1000wh should suffice to power the machine for one night. You can even do a whole week with a big enough one, or attach solar panels to make it run indefinitely, assuming you can get enough sun.

I used a watt meter. 621wh total over 12 hours with a minimum 12.9w and a max of 500.8w.

This one on Amazon is $350 and even has UPS functionality, which means it can kick in when the power is out, if you leave it plugged in to your machine.

Jackery Explorer 1000 v2 Portable Power Station(2024 New),1070Wh LiFePO4 Battery,1500W AC/100W USB-C Output, 1 Hr Fast Charge, Solar Generator for Outdoor Camping,Emergency, RV, Off-grid Living https://a.co/d/8WfNoqy

Hey everyone I’m a dialysis patient in france and was wondering if anyone’s wringed an answer out of their hospital/docs regarding how long the wait time is for b+ patients. I get the feeling the average is min 3 years

This might be a long shot but I am running short on extraneal icodextrin PD bags for the weekend and won’t get my delivery until Monday. I have my nurses personal cell so I plan on sadly bothering her tomorrow to see if there’s anything she can do. If worst case scenario, she can’t help me. Is there anyone in the IE or OC area in Cali that would be able to provide 4 bags in the meantime? I would be able to replace them on Monday.

Doc said my potassium is going up and i see my bp rising as well, i always get confused and overwhelmed about my diet on dialysis even though i’ve been doing this for over 3 years now! If someone could give me the do’s and don’ts it would help me greatly :)

P.S i’m south asian so if u have any advice regarding indian/pakistani cuisine, fire away!

UPDATE: we stopped by the Fresenius clinic in Inverness, Florida and they hooked us up! And the NICEST staff in the whole state were so kind!!! #thankful

Happy Thanksgiving from northwest Florida!

We traveled to visit family in Citrus County, Florida. Last night, we set up the PD dialysis machine and my partner hooked up as usual. A few minutes later, the machine suddenly quit. It was bizarre! We called the nighttime number and the nurse said there are a couple of possible reasons (air in the line, machine a little “off” from transporting, etc.).

Anyway, whatever happened, we had to dump the bags and cassette and start over. Thankfully, it worked the second time.

But now we are short two bags of fluid and a cassette. We have permission from his PD nurse to skip a day, but I thought I would see if there was anyone local that could spare a day’s supplies. Thanks for reading!

Hello all! I work at a dialysis clinic that has appx 60 patients and I would like to gift everyone a small gift bag with some items that would help make dialysis more bearable. So far I was thinking a two pack of hand warmers, and sugar free candy…what little sentiment would you enjoy? Thanks in advance 💜