/r/KidneyStones

Photograph via snooOG

This subreddit is here to support those who suffer from kidney stones.

Feel free discuss symptoms, treatments, procedures, dietary and lifestyle changes, but remember - most of us are not doctors.

To separate accurate, usable information from less reliable folk remedies, this sub is focused science-based evidence, so if you're making any claims please cite published research.

Homeopathy, "natural" cures or Ayurvedic medicine posts/ comments will be removed.


Oxalate Content of Foods


Rules for Posting in r/kidneystones

  1. No bad or dangerous advice.
  2. No "snake-oil" remedies (e.g., unsubstantiated claims for cures)
  3. Please post useful information, backed up by verifiable sources.
  4. No advertising (treatment centers, medicines, etc.)
  5. No surveys without prior approval by mods.
  6. No hateful or judgmental comments. Please support each other!
  7. No trolls. If you're here to stir stuff up, you will be banned.

/r/KidneyStones

20,929 Subscribers

2

Hello my new "family"

I just wanted to say hi and thank you for having such a nice and at least for me, calming subreddit. I had to take an ambulance late at night the 7:th of Nobember for what i thought was a perforated duverticulitis ( i nearly died from that in 2019 and a lot of the symptoms was the same). It turns out i instead had stones in borh kidneys that were not very big but still hurt as a ... female dog. I could go home the next day and has mostly slept since then. But besides that it has been both interesting, a bit scary and definitely helpfull reading all your stories and finding different things to try while waiting for my stones to leave.

0 Comments
2024/11/10
09:09 UTC

1

7x5mm stone in left kidney, mild nephrosis

Is it possible to pass this little asshole? How did you get rid of yours? Any recommendations or self remedy please? Had a small one before 7 years ago which I passed. Saw blood in my urine today followed by left plank pain, went to an urgent care. They did a CT scan and found the stone.

5 Comments
2024/11/10
04:41 UTC

1

Advice/help please šŸ™šŸ»

On the 28th October I was in AGONY! I went to the hospital and was told (18 hours after all the tests were done) that I have two kidney stones.

One has passed into my bladder but still hasn't appeared - I did hear a 'tink' sound in the loo when I pee'd yesterday, but I had no pain and couldn't see any stones - is this normal for women? Is there also an amount of time this should takes to pass, as this was two weeks after it moved into my bladder and that seems a crazy long time to me?

The other stone is still in my kidney and I have pressure/discomfort around the area when I lie down but otherwise it's not moved. I know driving helps but is there anything more I can do?

This is my first set of stones so any advice on what I need to do would be lovely šŸ˜˜

0 Comments
2024/11/10
04:20 UTC

1

need help understanding what's going on

(m19) so i've had quite a few kidney stones in the past year and a half and this time, i popped out about 6 little kidney stones or bladder stones (im not sure) and then trying to continue peeing i had a blockage. i'm not sure if it was another kidney stone or what, but i slept it off to deal with it the next day and now i don't feel it at all? from what i see im peeing fine but i hesitate starting and stopping myself from peeing scared if it's gonna come. anyone have any idea what the blockage was? maybe inflammation from the other 6 i had? i'd like ideas on what it is so i can either stop stressing about it or put myself into the mindset of going full force with it to get it out. thank you. (idk what tags to put it for, i think this is my first reddit post)

4 Comments
2024/11/10
03:44 UTC

2

What time of day have you passed a stone or had an attack of it moving?

Curious if there is any pattern hereā€¦because I tend to get attacks first thing after waking and it is also the time (when Iā€™ve been able to on my own) pass a stone. I wonder if it is the position change or just coincidence? Iā€™ve had attacks at other times of day, but first thing in the morning is by far the most frequent.

6 Comments
2024/11/10
03:11 UTC

1

Do you get over bladder symptoms from infection?

I'm a male and I have been experiencing fullness of bladder for few days now, I think like couple of days ago I experienced like this sharp razor blade sensation while peeing and then I drank some water and it didn't feel much after that. Then few days passed and I experienced weak urine flow, abdominal cramps and even groin area fullness and cramps. I also noticed lower left side back was stiff. But during this time, the only thing I did was drink lot of water and improved my diet. I noticed as days passed, the symptoms reduced. But I still feel this slight fullness of bladder and I'm not experiencing any pain while peeing. I do get cramps for some reason in the groin or bladder area. Also the back pain has gone away.

3 Comments
2024/11/10
00:14 UTC

6

I just wanna go through as little pain as possible if renal colic ever hits. For the more experienced people, please tell me if this is a good plan

So, I've been diagnosed with a couple small kidney stones "on the limit of ultrasound detection". A radiologist on r/askdocs just told me that that probably means they're 2-3mm, and I've read plenty of posts here of stones that size causing renal colic, the horrible pain of when a stone blocks the ureter

Since I already know that going to the ER they would only give me meds for the pain (given the size of the stones), I'm planning on staying at home if the renal colic hits, for the first few hours or a day, until it passes. Because I'm planning on going to the shower whenever the pain comes (they say it usually comes in waves). Taking toradol pills that my doctor gave me (which take 30 minutes or so to take effect, so shower until it takes effect). Drinking chanca piedra tea, which people say helps pain a lot. And doing jumping jacks, or the jump and bump method, since I've read some posts of people saying that they're sometimes able to pass stones, even quite bigger than mine, within just 24h with this method.

For those who have experience with stones, do you think I have good prospects of avoiding most of the unbearable pain with this strategy? Because I already know that they won't do ESWL given the stone's size, in fact my doctor didn't even wanna do a CT scan to confirm the stones. They'll just leave me to tough it out, and I have zero pain resistance. Ive Been living in constant fear every since the diagnosis (in fact every since this nagging mild flank pain started 6 months ago).

For example, is it worth staying at home to be able to get hot showers/baths, do they offer substantial relief?

31 Comments
2024/11/09
22:02 UTC

17

Just had my procedure for my stent and stone removal 2 days ago and IMMEDIATELY after I was completely pain free!

I went 2 whole months dealing with excruciating pain and peeing myself if I was standing for too long bc of the stent and now Iā€™m completely pain free!!!! Iā€™m so happy.

8 Comments
2024/11/09
20:54 UTC

7

PCNL Upcoming...Terrified

I'm a frequent flyer for kidney stones. I get them a couple times a year. Last year I had one and required surgery to remove. We placed a stent which I did not tolerate. The pain was unbearable. Dr took the stent out and put in a nephrostomy tube. I handled that well until we took it out. A few hours after removal I was in unimaginable pain. Felt like I had a constant Charlie horse in my abdomen for days. I could barely breathe and the bottoms of my lungs collapsed. I was in the hospital for a week and no one could tell me what was wrong. The pain eventually stopped and I was released.

Flash forward to now. I have 2 kidney stones. One of them is 13mm and I cannot pass it. Dr has scheduled a PCNL to remove it but it will require another nephrostomy tube. I'm terrified of experiencing what I experienced last time. Especially since we don't know the cause. Anybody else experience something similar after nephrostomy tube???

3 Comments
2024/11/09
19:53 UTC

3

Could my Gastritis/GERD symptoms be related to kidney stones?

Tl;DR- have been experiencing cycles of kidney and GERD/Gastritis symptoms. My bloodwork showed signs of lupus nephritis and urine tests are wonky- but doctor said I donā€™t have lupus. Today, Iā€™m experiencing both kidney and GERD together and was wondering if itā€™s possible the two could be connected.

Hi there! Iā€™m a 40 yo woman and I have been relatively healthy my whole life. About 9 months ago, I began experiencing health issues after a stressful period of time. It started with hair loss, fatigue, flank pain and increased urination. Doctors ran basic bloodwork and urine tests. My bloodwork was normal and the urine test found trace leucocytes but that was it. I was told it was stress.

Then, a month later, it turned into severe gastritis symptoms and constipation. This lead to reflux and bloating with nausea and loss of appetite. The flank pain was present during this time as well. It got so bad I ended up in the ER where they did an ultrasound and CT scan on my abdomen.. Other than a small renal cyst, they found nothing. The doctor did tell me he was concerned about my urine tests as it showed trace leucocytes, protein, blood, high wbc and bilirubin. However, since there was no bacteria present, he did not treat and told me to follow up with PCP, which I did. She gave me an antibiotic which did nothing.

My GP eventually ran autoimmune bloodwork that showed a high level of anti dsdna, typically found in lupus patients. However, my Ana was low and the other numbers werenā€™t concerning enough so I was told it was a false positive and they told me to see a therapist it is so demoralizing to me for my doctor to continuously blame mental health for all of these symptoms. I have periods of stress but I cope well and have been seeing a therapist for years on a biweekly basis. I take my adhd and anxiety medication as directed on a daily basis.

Since then, itā€™s been a frequent attern of kidney symptoms (periods of feeling weak and dehydrated, dry skin, dry eyes, frequent urination, extreme thirst, and right flank pain- now left side as well). Along with the Gastritis/GERD symptoms such as diahhrea, nausea, loss of appetite, bloating, burning in nose, neck pain, ear pain, jaw pain, sore throat, hoarse voice, and non-stop burping. The symptom days are outnumbering the non-symptom days by far.

None of my usual GERD meds work anymore. Iā€™ve been trying literally everything and not one medicine touches it. Gas X comes close and thatā€™s it. Hereā€™s what Iā€™m trying but none of it is working:

  • Pepcid ac 2x a day
  • Gaviscon Advanced 2x a day (from the UK!)
  • Nexium 2x a day
  • Antihistamine probiotic
  • Zyrtec 2x a day
  • Flonase 2x a day
  • Vitamin d in the morning
  • Gas X 2x a day
  • Chamomile tea in the morning
  • Gabapentin 3x a day (this actually helps a little bit but not with the kidney stuff)

Iā€™m at my wits end and I never considered that maybe the GERD and kidney stuff could be related until today when I woke up with both issues and my symptoms are all at their worst. Iā€™m currently laying in bed with a heating pad because I have right flank pain. I know this sounds crazy but when the right flank hurts, I swear I can feel it in my chest/throat.

So Iā€™m wondering if itā€™s possible that the GERD symptoms are being caused by an underlying kidney issue? Does that happen? All I can find are medical journals and they are so hard for me to understand. Is it possible they are two separate issues? Iā€™ve seen other doctors who tell me itā€™s either IBS or Fibromyalgia. Yet, even when Iā€™m busy at work Iā€™m still experiencing symptoms. I have a gastroenterologist apt in January.

Any help is appreciated- not looking for diagnosis just lookihng for info or others experiences.

0 Comments
2024/11/09
19:29 UTC

2

Doctor wants to scope/laser it, how much time to give?

First time kidney stone about 3mm

Been in my ureter for 2 weeks (was hospitalized, had a CT scan etc)

Had my post hospital followup yesterday, and the doctor wants to schedule me for a ureteroscopy w/ laser etc etc

Told me because of scheduling it could end up being as soon as this week, or in 4 weeks

"as they generally like to have stones pass within 4-6 weeks"

This isn't a longtime doctor I have a rapport with, legit just someone I met for the first time yesterday because of my hospitalization.

I guess my question is would you be patient in these scenarios and chug water and hope for the best? Or is it best to just go get the stupid laser thing, which I'm told has a 50/50 of requiring stents

FWIW I'm a male in my 30s, and the office won't call me until Monday letting me know when they have OR availability.

I kind of thoughts of my own, but would like to get the input from others who have been throguh related experiences.

5 Comments
2024/11/09
19:14 UTC

7

8mm stone-should I do lithotripsy?

The 8mm stone is in the kidney with no pain/issues. However, I'm told the odds of passing naturally are low. I've met my $3K deductible this year and if I decide to use lithotripsy my out of pocket cost is about $1900. If I wait til next yr or later and it gets stuck coming out, I would need to get it removed by going through penis up to ureter to get it out and thus pay my deductible again and end up costing over $5k. The only option which would benefit me is if it stays there for the rest of my life (56yrd old).

Should I get lithotripsy now or leave it?

PS I've done lithotripsy once before years ago before I was about to lose my insurance with almost no pain

10 Comments
2024/11/09
19:04 UTC

5

PCNL: tube put in wrong place

A family member just underwent PCNL surgery to remove a large kidney stone. The surgery was a failure. The surgeon told us afterward that that he was unable to access the stone because the tube had been inserted in the wrong place by radiology. He then asked my family member's spouse, who was there at the hospital, whether a cat scan had been done prior to inserting the tube. The spouse was stunned that the surgeon was asking HER this question - isn't that something he should have verified before cutting into the patient? We are not medical professionals and are extremely confused and upset at this situation. My family member now has to go through this painful recovery and it was all for nothing because they didn't succeed in removing the stone. This was never even mentioned as a possibility during the multiple consultations with the surgeon prior to the operation.

Has anyone been in this situation before?

6 Comments
2024/11/09
17:23 UTC

3

4mm advice please

One week ago I went to the ER with severe pain that I later found out was a kidney stone. They gave me some Flomax, which arrived the next day, and my first 3mm stone passed a few hours after taking the Flomax. I went back to the urologist to see my CT scan and it turns out that I have another 4mm stone that was about 4 inches higher in the ureter as of last week when they took the scan. I've been doing the jump and bump, drinking TONS of water, drinking citrus juices, and it still hasn't come out one week later. Any advice would be greatly appreciated. I'd like to stop taking the Flomax ASAP.

6 Comments
2024/11/09
16:38 UTC

3

Stones, nephrocalcinosis, and eGFR

I am 33F. Have been diagnosed with nephrocalcinosis and mass amounts of calcium phosphate stones.

Over the past year, my eGFR has declined from 120 (Oct 23), to 97 (March 24), now 81 (Nov 24). A steady, rapid decrease of nearly 40 points in a year. I also have imaging results showing kidney damage (cortical thinning)

Yes, I have plans to discuss this with all my doctors. I have appointments coming up with GP, urologist, and nephrologist.

But I wanted to ask if anyone here has experienced anything similar. I'm assuming it's due to my kidneys continuing to calcify into essentially bones and no way to reverse that and we don't know what's causing it, but I want to know others experiences and if you found a cause or found a way to slow a rapidly declining kidney function?

I've been gaslit by doctors up until this point saying my labs are fine, you have stones so drink water - you have fatigue, get more sleep, etc. so if you have help on how I can best advocate for myself I appreciate it!

2 Comments
2024/11/09
13:48 UTC

13

Just passed this badboi

Had this kidney stone since august and just passed it yesterday! I chose to pass it naturally even though it took me waay longer. Lotā€™s of lime juice and water with exercise and also a tea with buttonweed flower or from where i come from its called ā€œflor de juana la blancaā€

5 Comments
2024/11/09
12:29 UTC

1

Is it normal to still have back pain after passing a stone?

I was at hospital about 6 weeks ago to get a lithotripsy but they could not find it on the x ray and thought it was in my bladder. For the past few days Iā€™ve been having terrible back/flank pain and burning when peeing but today I managed to pass the stone.

Is it normal to still have back pain, even when it was in my bladder?

0 Comments
2024/11/09
10:38 UTC

1

Kidney Stones?

Every once in a couple of weeks I was having a painful white discharge. Now since yesterday I noticed these in my pee. It's very painful. Are they kidney stones and what course of action can I take? I don't see a urologist until next month

0 Comments
2024/11/09
10:37 UTC

7

Finally passed this little devil after months of pain, and several hospital admissions. Remember to stay hydrated!

1 Comment
2024/11/09
09:13 UTC

9

Sick of this

A month ago I went to the ER for kidney stone pain, Iā€™ve had one before about 3 years ago and was able to pass it later after leaving the hospital with flomax. This time the stone wasnā€™t moving and the pain wasnā€™t getting any better so they went in and placed a stent. Getting it removed this upcoming week and praying to God they donā€™t have to put another one in, as itā€™s listed for a possibility on my surgery info sheet. Itā€™s not that Iā€™m in horrible pain but the best way to describe it is being uncomfortable for a month straight with non - stop period pain and constantly feeling like Iā€™m about to pee my pants when I donā€™t have to go at all. Iā€™m a 24F and had to cancel a three week trip to the UK because of it. Really annoyed with the situation and want to never experience it again but know that I most likely will.

3 Comments
2024/11/09
07:08 UTC

3

Can I go back to my physical job with this stent?

I got a stone removed 10 days ago and they put a stent in. I have been staying home and peeing blood almost everyday. One day I went for a light bike ride and began peeing more blood. Today I didn't do much at all.. did the laundry and put fairy lights on my balcony.. and now I'm peeing more blood.. if I don't pee quickly when my body tells me to, I get much pain in my kidney.

My job is lifting heavy objects in a warehouse.. I'm afraid that kind of strain will cause issues with the stent and I'll bleed a lot more.. I'm meant to work next week, but the stent will come out on the 19th Nov. What do youse think?

5 Comments
2024/11/09
07:02 UTC

4

Tell me what it's like please

This is my second time having kidney stones. The last time was many years ago and it was just one small one found on an ultrasound. I didn't feel it pass. I have had right sided kidney pain for almost 24 hours now and the last time I urinated it hurt so bad. I could feel a scratching and burning sensation in my urethra. I am terrified to urinate again. Just wanted to know what others' experiences are with passing these? I am guessing it's bigger than the one I had previously since I can actually feel it trying to come out. And I'm assuming I have more than one, since I still feel pain in my right side. How bad is this going to hurt? For reference, I'm a 37 year old female and I've had a baby with no medications. So I know I can handle pain. What was it like for you to pass a medium or large stone? I am also trying to avoid going in for this, assuming they won't do anything for it unless its serious or lodged. I am on a pain contract, so I wouldnt be accepting pain treatment unless I could call my doctor. I would need his permission to take extra of my meds or before getting a new prescription filled. So didn't want to go in and waste anyone's time. Thanks in advance.

3 Comments
2024/11/09
06:29 UTC

1

Small stones for a year šŸ« 

I have had kidney stones 3 times before. All of which were small. I would start feeling pain in my back a couple days before and then it would pass and I would be done. This time, the pain has been intermittent, maybe a couple times a month, all year. I have had an ultrasound, a CT scan, and urinalysis, all of which show that everything is normal except a couple of small stones. I donā€™t understand why itā€™s not passing though and itā€™s lasting all year and I hate just waiting around for so long with this hanging over my head. On top of that I get blood tests monthly for my thyroid and Iā€™ve noticed my egfr steadily dropping over the past few months from 120 to 82 and now Iā€™m kind of freaking out about thatā€¦ should I be worried about that drop?? Seeing a nephrologist in a couple of weeks. I also did a 24 hour urine collection and those results were all kinds of fucked up.

0 Comments
2024/11/09
06:01 UTC

2

Help

Hey i am 20M and never had a kidney stone before but I am currently in a foreign country for 2 months and have had extreme pain in my right side very off and on for the past 4 weeks. I visited the hospital and they thought it was an appendicitis because those are common here but i really disagree. I suggested kidney stones and they did an xray and ultrasound and couldnā€™t see anything (ct scans are not available where i am rn). About a 3 weeks in i had some really terrible episodes and then it went away, from my own research i think that was the stone making it from the kidney to the bladder. I then had about 4 to 5 days of no pain and then a few days ago go hit with the worst itā€™s been, iā€™m guessing maybe because it left the bladder and now is stuck in the urethra. The past few days now have been rough, lots of side and back pain and then frequent peeing and penis pain. I only have a week until iā€™m back in the states and could get a ct scan but idk if i should maybe go early, especially because even with all this iā€™m nervous the doctors could possibly be right about an appendicitis. Iā€™ve read in rare cases appendicitis could affect kidneys/pee. Just wanting any advice as far as if i might be passing it soon or just pain management stuff. Iā€™m also about 95% sure itā€™s a stone but maybe if any one has other ideas im open to hearing them. Thanks

Update: My side is still kinda sore and i feel slight pain but this morning i peed completely painlessly and normal, does this mean i likely passed the stone?

5 Comments
2024/11/09
04:34 UTC

6

Surgery anxiety

Hi all! I have a kidney stone removal this week and theyā€™re using the sound waves and such. Can anyone tell me what itā€™s like? Iā€™m so scared. My stone is about 6-8mm and has been in me for years. The urologist has always said itā€™s nothing to worry about but I finally decided to get it out.

9 Comments
2024/11/09
04:17 UTC

1

Should I be worried?

So I have a stent in Iā€™ve had for a little over two weeks get it out next Friday. For context I gave a lot of digestive issues thinking itā€™s IBS which shit is relevant. Iā€™ve been having minor diarrhea after I eat certain things but itā€™s not constant. I know normally you should be concerned and get checked but with it being a normal thing with my digestive would it be a problem now? Itā€™s not constant or all the time and has only recently happened after eating certain ā€œtriggerā€ foods. It also clears up after a bit so should I be worried? I feel fine otherwise aside from normal stent discomfort and minor pain managed with over the counter meds. I feel like I shouldnā€™t be worried and Iā€™m fine being I have no other symptoms and itā€™s normal for me to have. Just wanting opinions.

0 Comments
2024/11/09
03:54 UTC

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