I’m drinking tons of water and taking Pamsvax XL. I want to speed up the process as it’s getting me down. Scan shows it’s waiting to pass

Hey , 27M here , So i had bit of discomfort at testicles and stomach and back at left side so decided to visit doctor who told it might be kidney stone and on doing ultrasound he confirmed the same but did not told size saying its grain size attaching the ultrasound, also he told to take flomax along with calcium substitute and drink a lots of water let me know how much worried should i be.

Do you think this could be a kidney stone? F41. Had pain in low left abdominal area that felt like a dull ache, twitch, sharp pain when move. It would come and go. Then had light pink blood in urine when wipe for a couple days but urine looks regular mid yellow colour. Doctor thought it was uti but antibiotics did not clear it. Urine sample results came back showing no infection but some blood in urine. Took a different uti antibiotic, no pain or blood in urine when wiped for a week. Today it is now back again with the ache pain in low left abdomen and light pink blood in urine when wipe. No other symptoms, no pain when urinating and no back pain. This has been happening on/off for around 2 months now. Will get it checked.

I'm going to start with the weird stuff. I had surgery on my left kidney 2 years ago, a 4mm stone lodged in my ureter. I got it out successfully. But they said I also had a large stone in my right kidney. Why I didn't have it removed is unknown to me. It hasn't bothered me for 2 years. I went for a routine consultation and was told this. The stone is large and in a place where it can't come out on its own, so according to European protocols they don't remove it, they just observe it. That sounded weird.

And here I am in Europe. I don't know what happened nor did I start drinking different water or change activity. It started with severe 8/10 pain. And a huge amount of blood in the urine. I knew right away it was a kidney. I made a consultation appointment with a paid doctor in Europe, it is a huge quest and expensive. The doctor spent about 5 minutes at most and said he could not see any stone, prescribed me antibiotics and I went home.

Ok I took the pills and the blood went away. But about 2 months later, I felt the pain again. I went to another fee-for-service doctor. And this time I was told that I have a 12mm stone lodged at the exit of my kidney. My kidney is blocked and I need an operation.

From that point on, I went to the hospital. I was set a term of surgery 3 months later without putting in a stent. Then the day of the first surgery came. The URSL operation was not successful because the kidney was full and did not allow the stone to be pushed out for the operation.

I had a nephrostomy in my back to get my kidney to start working because it was enlarged and had long term stasis in it. I was scheduled for a new term in 2 weeks. So yesterday I had a new surgery. They tried URSL again, but again it failed. So they turned me over and did a PCNL surgery to save time. This time the stone was removed successfully. The doctor said there might be some small fragments, but they should come out on their own. Now I'm lying down and they won't let me get up. Because I am still bleeding after this surgery.

Overall I am pleased with the quality of the surgery. It wasn't painful. Now the most unpleasant thing is having a catheter in my penis.

I’ve been dealing with a 5mm in my left ureter for the last 2 months… tonight has been HELL. My back is hurting and it’s just radiating to my groin. Haven’t been able to pass a lot of urine either. Fuckin aye i hate this

In the ER waiting to be admitted. I have three stones with an 11mm obstructing one on the right which has caused a UTI. Never had one obstruct before. Boy does this really suck.

Please help. is there any pills i can take to break it down?

Thank you.

I'm (27 f) on the schedule to have ESWL in April for my 10mm stone and am feeling anxious about it! Has anyone had a positive experience with a stone of this size or larger with ESWL? I've never had any surgery before, so I'm welcoming any positivity here!

Has anyone had an experience with Ureteroscopic stone treatment that wasn't horrible? I have health anxiety and the stent, bloody burning pee sounds like it's from a horror movie.

I have a 7mm stone stuck mid ureter that isn't moving. Surgery scheduled Tuesday.

Talk me off the edge people. I'm scared!

So, I have a 5 mm stone that I’ll be having removed in about a month unless I get an attack before then.

I am mostly ok managing it, I do get some stomach pain but I also have Crohns so I’m used it this pain (I initially thought the pain WAS a bowel obstruction until it just never subsided and I went to ER)

Anyway! Not the point. What I’ve felt the past few days is pain in my groin area. Those who menstruate, you know that zap you sometimes get during your period? That’s the pain I feel, along with a pain like, who punched me down there?

Is this a kidney stone thing?

Hi!

So I have a history of kidney stones. Got my first 12 years ago. Then December 2023 I had major issues with a 1,2cm stone that got stuck. Had emergency surgery to place a stent -> got an infection+stent migrated into my bladder the next day -> needed another emergency surgery. Then weeks later got the stone lasered. 5 weeks in total with a stent. Total nightmare. 🫠

So since then I have had followups with the urologist. I just had my 1 year checkup with a CT scan. I’ve had no major symptoms (just minor things which I thought were in my head because of the hell I went through last year). Turns out I have a small stone on my left side (which is the side I had the major problems last year). Unfortunately there is also some scarring in my ureter from all the issues and surgeries last year (my urologist warned me for this though last year, he was afraid this would happen due to the size of the stone and the damage it had caused being stuck for months). But then on the CT scan last year they had already seen a small stone in my right kidney, but it was just in there not causing any issues. But now on my most recent scan it turns out this small kidney stone (I can’t see the exact size in the report, but I think the urologist mentioned it being 1,5mm) has moved and is at at the PUJ. So my dr said I should be able to just pass it but that I might get a painful episode… It’s been 2 weeks now though and I haven’t felt anything but as far as I know I haven’t passed anything either. With my first stone years ago I was in a lot of pain but then few days later it stopped but I never caught the stone and never felt it coming out. So now I just don’t know. How will I know whether I passed it?! The thing I’m most worried about is the stone hanging out at the PUJ and growing there, eventually causing the same major issues I had on my last side last year. But is this even possible?

Any insight is welcome! I have a followup with my urologist planned but that isn’t until next year.

I’ve been dealing with some right sided back/flank pain since June. It’s located close to the spine right below my ribs, which seems to me to be near my kidney. I had a CT with contrast in June which showed no stones and have had a urine test almost every other month since then which hasn’t shown anything either. It’s usually a dull pain but occasional if I’m sitting on a certain position I’ll get a short sharp pain. It never reaches “worst pain I’ve ever felt” though.

I’ve been told it’s probably muscular but my health anxiety keeps me worrying about a kidney stone. Anyone else experience something similar or am I just worrying for no reason?

Hello there- I currently have a little friend (5mm) stuck right in my UJV and it has been there for several weeks. It’s been almost 2 months since my ordeal began! I’m headed to see a urologist on February 4th, but I figured I would ask for some last desperate advice before then. I have been drinking as much water as I possibly can. I also have a massage gun that I have been using intermittently which seems to work occasionally, but the stone is in such an odd spot now it’s hard to press it to where it needs to be. It has got to be right directly next to my bladder based on where it pinches me. It’s infuriating!

For those of you who passed stones who were lodged in the UJV for ages on your own- how the heck did you do it?! I would love to evacuate this thing before I have to get something stuck up inside of me. I am open to literally any and all advice. I am praying to the kidney gods to save me. Lend a sister some advice!!!

I’m a 33-year-old male with a 4mm kidney stone in my right kidney for the past 2 years. It’s not trying to pass and isn’t causing pain, but I occasionally notice visible dark blood in my urine.

I saw a urologist, and he: • Ordered a urine culture → Negative (no infection) • Did an ultrasound + X-ray → Confirmed the stone • Said nothing abnormal in the bladder • Believes the blood is from the stone irritating my kidney • Refused a cystoscopy, saying it’s unnecessary

Has anyone experienced something similar? Should I be concerned, or does this sound normal for a kidney stone?

Hey all!

Had a CT scan with contrast yesterday for my stone in a diverticulum (pocket in kidney I was likely born with) and I seem to have had delayed reaction to the contrast anyone else had this before too? Yesterday felt extremely dizzy like I was on a fast roundabout, very nauseous and a pounding headache. Over 24 hours later and still feeling very nauseous and weak

After months of waiting, being told it was something else, and dealing with severe pain, I finally got my 11 mm stone out yesterday! It was lodged in my right kidney right above where the entrance to my ureter was, and causing hydronephrosis, lots of pain, swelling, and some extra blood and protein. This was my first time getting one at 19, and I hope to never get one again. During the worst of it I'd be at school, and have to curl up into fetal position on an outdoor bench in the quad until I could call someone to pick me up and take me to get everything checked out.

Over a month or two later, my first ureteroscopy didn't go well, since my ureter was too small for them to get the tools up there, so they had to place a stent in (mega ouch) and after 2 weeks had passed, I was finally able to have a ureteroscopy, cystoscopy, laser lithotripsy, and they were even able to take the stent out! The doctor was great, and the nurse and anesthesiologist team was much better and less rude this time. At this point I'm just passing dust and some blood, and taking pain meds for soreness and spasms, which is a lot better than stone and stent pain.

I haven't gotten to see it in person yet, but they took photos of the stone while it was in the mid pole of the kidney. Still waiting on stone type analysis.

I'm grateful for this community being a place where I could vent and ask questions while dealing with this. I feel like after missing out on so much I'm finally able to get my life back. I hope everyone else here who still has a stone can get it out quickly and as painlessly as possible.

Full disclosure I’ve had stone’s for almost 20 yrs now, as of the last decade primarily left kidney. For 2.5yrs I’ve had spontaneous bleeds, CTs every 6mo, and cystoscopy to rule out cause of the bleeds as they would clear in 12hrs or so. The assumption was the non obstructing stone in the upper pole caused irritation.

Long story short, after pain a bleeding New Year’s Eve, it cleared within a day, an then a week later I’ve been peeing blood, urologist is aware. Had my ct a week ago showed in ureter now. I go in next tue to figure out a plan 🙄 bc no hydronephrosis was seen at the time of ct. the last week I have been so exhausted, still peeing blood, an I can’t tell if I am imagining it, I have never experienced the fatigue I’ve been having. I have dealt with itchy skin all over an I assumed since Nov was eczema, but I don’t know. Blood work in Dec said kidney function was totally normal. The fatigue though is new for me. I’ve never bled this long either but it’s impossible since my urologist switched their phone & staff around to get people to do what previously was always expedited in the past. I am just not sure, if fatigue & my other issues have been related. Curious what others with history of stones, have experienced. Mine are hereditary, we cannot slow them down an I am allergic to sulfa meds (diuretic) which was used to attempt to slow them down.

I had lazer lithroscopy three weeks ago when I had a 7mm stuck in my urethra, which sent me hunched over in pain, throwing up and all to the ER. I went home with a stent and told to come back in two weeks to get it out. I was peeing blood right after the surgery, then it stopped. Week after surgery I was feeling good, went back to work as I wasn't having issues peeing every few minutes (I'm a teacher so that's an issue).

Last week I went back for my two week post op and had them started feeling the irritation from the stent I believed. Few days before I was going to the bathroom every 10 min and just feeling like crap. I asked my urologist and he told me that I still have multiple stones in my left kidney and my right one also 😩😩 He wants to do the shock was lithroscopy on both kidneys with few weeks apart. I'm scheduled for Feb 20th to finish the left kidney and have the stent in until then.

Two days ago I went to my PCM as I just couldn't take this urge to pee every time I stood up and she prescribed me Flomax. She said I might be passing smaller stones and that should help. I also got strainers to stain my pee. I caught something very small last night (around 1mm). Yesterday I went home from work as I was in pain and I started peeing blood. All afternoon I was peeing blood and blood clots. After I caught that small stone I felt better. Now I'm again feeling like shit, not peeing blood but small clots 😩

Is this due to the Flomax?? Anyone have experience with that? Not the best picture but this is the little thing I got in my strainer.

F(27) After 4 terribly confusing years of a steady neurological decline I was finally diagnosed with Idiopathic Intracranial Hypertension (IIH) also referred to as Pseudotumor Cerebri. I was put on Acetazolamide and the results gave me my life back. I couldn’t be happier with how the medication has worked for me. Unfortunately this medication can cause kidney stones in some people and I seem to be one of them. I had never had a stone before this but I can’t deny the fact that it was in fact the most painful thing I have EVER felt in my life, with that being said the neurological problems and possibly of permanently losing my vision outweighs the pain of repeated stones for me. My biggest concern is I have a large cyst on my left kidney which is the same kidney I’m getting stones in. I’ve had this cyst since I was younger and it’s covers over half my kidney and from what I understand is grown into it in a way that cannot be removed without removing the entire kidney. I was told it shouldn’t cause me any problems unless it were to rupture as my kidney functions fine along with the cyst. They used to monitor it when I was younger but stopped because other than growing very slightly every couple years it was insignificant. I have an appointment with a nephrologist but it’s not for a few months so I’m just curious to know if anyone knows it’s stones could cause a rupture as I would like to prevent the loss of a kidney if possible. Sadly, I’m not left with many other options to treat my IIH. There is one other medication that can be used called Topiramate but that causes stones as well. The only other possible treatment involves brain surgery which as this point I wouldn’t even consider as it doesn’t even guarantee to fix the pressure and has a chance of making it worse.

I did it yall, after 24 days, lots of jump and bump and water. Couple beers and she was out. Thanks so much to this community, helped me a lot just reading posts. For all you still going through it hang in there! I’m sure I’ll be back I got a couple more in my kidney but for tonight im going to relax. 💤

Hey folks, software engineer here who’s gone through this journey and I need your help. If there’s value for you, I’d maybe consider making a kidney stones app based on community needs.

Why? I think the current apps for kidney stones and gout are a little poor and could be better but want to hear from you all what you need most first, building a product without asking users what they need first is a little backwards of course :)

Some sample thoughts to help:

• What was difficult to learn about when you were diagnosed? Would an app have helped with any of this?
• learning about different stone types
• how to manage food / diet better, is there anything the existing apps aren’t giving
• educating family members / friends
• understanding the surgeries
• anything related to management or water intake that would have helped you?

Etc etc etc, anything you can think of that would have made your journey a little easier please let me know.

Why don’t I have my own answers since I’ve been through this?

For wrong or right I’ve taken a different approach, I picked up Muay Thai, lost 30kg and eat clean and healthy and training forces me to drink 4l of water a day.

I’ve got stones still to pass again, 8mm+ scanned a year or two ago, I’m ignoring it until it’s a problem and just living the best I can until I have to deal with this again, so I don’t have answers to what would help me manage this, that’s why I need you all ❤️

I am coming to this group with questions as to how you or your loved ones advocated for yourselves. My husband (27yr old male) recently started having painless hematuria. At first his blood was a turbid color, and then he started having small blood clots with urination. He went to ER, and they did a CT scan (no contrast), showing a 6mm kidney stone. He was told by the doctor that potentially this could just hang around for a while but to come back if he’s feeling pain or discomfort.

I’m a nurse, but I’m honestly pretty stumped because the fact that it’s painless and overall he’s just been feeling more and more fatigued is kind of stressing me.

I already told him to get a follow up appointment. But I don’t want to go with him to the doctor and demand like I want this and this and this! LOL. But seriously I also just want to make sure I do my due diligence since I’m the more medically literate person in our relationship. Like I advocate for my patients all the time I better advocate for him!

Basically what would be the next (reasonable) thing you would ask for at this follow up appointment? Our doctor is pretty reasonable I’d say, so hopefully he’ll recommend some things. But any advice would be helpful. Thanks everyone!!

Had a one month follow up after PCNL and Dr wants me to get an ultrasound within a month to make sure my kidneys are working properly after surgery. I had 5 stones removed and stent, and tube were removed the next day before I left the hospital. Urologist was very pleased with how the surgery went, no problems or issues. Is this a normal procedure after PCNL?. We got new insurance and they denied my daughter's echo for heart surgery follow up, so I just wanted to be prepared and know if others usually have this done after PCNL.

After my most recent kidney stone (early august, so about 6 months ago) I’ve been having an insane amount of pain by that kidney. It only hurts when I’ve been up and moving so work is a no go right now but it goes away after I lay down for a while (between 30 mins - 2 hours).

Heat doesn’t help and pain killers do very little to ease the pain. Nothing was found during the CT scan nor was there anything when doctors went in with a camera. No stones, no fragments, no scar tissue, nothing. I’m at a complete loss for what to do because the urologist I saw basically said she didn’t know and sent me back to my primary doctor.

I can’t just push through the pain because it gets so bad I can’t think and end up dry heaving over a toilet.

Does anyone have any advice or similar situations or literally anything?

I currently have a 5mm in my ureter and am wondering if I can smoke weed with a sprinkle of tobacco?

Hi, I'm very new to this. I have a 3-4 mm kidney stone partially obstructing my ureter and a couple more (under 4 mm) in my right kidney. I went to the ER for pain on Monday and that's where I learned I had the stones. I was supposed to fly home for the weekend but the doctor is saying it may not be advisable due to cabin pressure can cause stone movement. I don't want to be in pain on the flight but I'm really sad about not being able to go home... does anyone have experience flying with stones and know if it is a good or bad idea?

For those like me that were scared.

The procedure was easy. Woke up with a stent in and strings hanging out of my junk. The first pee was a nightmare but literally every pee after that was better than the previous one. I had the stent and strings for a week. It was uncomfortable but much better than the misery of the stone. I mostly took it easy and tried not to bend too much. The worst part was morning erections. Those hurt just from the strings moving around. Once I got up and started to go flaccid it was fine.

Removal took 15 seconds. The DR said here we go and I could feel it moving out. It honestly felt like I was peeing all over the place but that was it. No pain after, all seems to be fine.

All in all I highly recommend it all. There’s a few discomforts but all were light years better than the stone pain and the constant urge to pee.

I have a 4mm stuck in ureter and for last few weeks I’m having blood in semen. Has anyone experienced this? My next appointment is on 2/24