I'm still new to this info but I found out I have Perineal Hypospadias with a double urethra, which one combined has a higher chance of signaling intersex. https://www.google.com/search?q=is+perineal+hypospadias+with+double+urethra+intersex&client=ms-android-tracfone-us-rvc3&sca_esv=427fd9fc564ca397&sxsrf=ADLYWILnbIvzvTXVNWzQGMOg5SXcHHjo0w%3A1733259721015&ei=yXFPZ65O8aum1A_on5_AAg&oq=is+perineal+hypospadias+with+double+urethra+intersex&gs_lp=EhNtb2JpbGUtZ3dzLXdpei1zZXJwIjRpcyBwZXJpbmVhbCBoeXBvc3BhZGlhcyB3aXRoIGRvdWJsZSB1cmV0aHJhIGludGVyc2V4MgUQIRigATIFECEYoAEyCBAAGIAEGKIEMggQABiABBiiBDIIEAAYogQYiQUyCBAAGKIEGIkFSMi7AVDGOVjJsAFwAXgBkAEAmAGkAqAByw-qAQYwLjEwLjK4AQPIAQD4AQGYAg2gAswRwgIKEAAYsAMY1gQYR8ICBxAjGLACGCfCAgUQIRirApgDAIgGAZAGB5IHBzEuOS4yLjGgB7FA&sclient=mobile-gws-wiz-serp

Someone said it wasn't when I disagree, and I wanna know how y'all feel, (it doesn't help they have a similar stance on NB people, includes, and that kinda annoys me, cuz for a long time I thought intersex was a third sex, just a lot bigger and varied spectrum

Context: https://www.reddit.com/r/AskLGBT/comments/1h54rpw/comment/m03i54g/?context=3

These are the comments and etc

I apologize for this long ramble. I just want to be heard by people who will understand me.

I don't know if I've talked about this on here, but I've been fighting for the past seven-ish months to be re-diagnosed following actual diagnosis guidelines. I very likely have PCOS (runs in family) or NCAH (would explain some symptoms that are reminiscent of low cortisol).

My original diagnosis (PCOS) was given to me without any testing. None. Zero, actually. Not a single lab. When I look back at it, like many of my diagnoses, I wonder what my doctors were thinking. My fibromyalgia diagnosis also broke protocol and was given to me without the required testing.

Clearly, this was not the route they should have gone. We assumed that I was in the clear to take T HRT, and not being a doctor myself I simply believed that the doctors knew what they were doing. That we wouldn't blindly toss me into something that you're actually supposed to do labs beforehand to make sure it's safe. That we wouldn't be risking my poor liver.

On the lowest possible dose of gel I exceeded goal levels (over 1200 ng/dL) in one singular month. After being told that PCOS wouldn't impact this. Should I have questioned it? Yes. Absolutely. But I'm no doctor, and living with brain fog makes it hard for me to understand when I should be arguing and defending myself at the doctors rather than just writing down notes. My liver and vitamin D levels took a beating despite my prescribed daily dosage. That was incredibly dangerous.

I moved states, and have been working with new doctors. But damn.

My big fear is that testing will show that I have neither PCOS or NCAH. That I have these 20+ symptoms for no reason. That my virilization will not be linked to anything, and that I'll never know. That the results will come back "normal" and the doctors will refuse to look further into it until something serious happens (again).

And then there's the realization that I have a nexplanon implant. That I don't know if it'll mess with results. But we can't remove it unless absolutely necessary, it is the only thing that has helped lessen my PMDD suicidal ideation (mine is so severe that i almost lost my life to it, not a fan).

If we can't figure out what my body is doing/why, I will never be able to take Testosterone HRT safely. I would never actually get to transition. My health will remain poor and untreated. My periods will remain infrequent but 28 days long. My vitamin D will remain chronically low. My mustache and hirsutism will remain a mystery. A welcome symptom, but mysterious. God, I hope they don't dismiss me.

I am also very afraid that I ultimately will turn out to not be inter. (spoiler tag for intersexism)>!That i'm secretly just a "messed up female". Which is just straight up intersexism. But I am afraid of this.!<

While this worry doesn't seem very realistic given my genital differences, health struggles, inability to take T, etc., this thought has been looming over me. This community has kept me grounded. This community has helped keep me sane. You all have helped me to understand that it's not my fault, that it's just how I am built. When I felt so alone and alienated the intersex community has been the one who has provided guidance and community. What if I'm an imposter? I can't stop thinking about it.

But then again, I would never say that to someone else in my position. And I don't believe that you have to have a dx to be inter (you're inter regardless, we even have a rule about it on here). I feel that we, us humans who have been through gaslighting and pain, frequently forget to extend our own hospitality, kindness, and openness to ourselves. Often I see people jump to accept and welcome others while refusing to grant themselves that same peace and kindness. Now I seem to be doing it.

But yea. That's where I'm at. Tomorrow, at an hour that genuinely is too early to be awake (7am?!), they'll take my labs and maybe i'll know this month. Or maybe i'll be left with that dread of not actually knowing what my body is up to or why it does what it does.

I don't know how to navigate this anxiety. I feel stuck.

But regardless of what happens, I do want to say thank you guys. We probably are all aware of this, but intersex spaces like this can really change people's lives and make them feel more okay about themselves and the world. I am so grateful that I stumbled into this reddit.

So basically I was searching some intersex info for a project and I kept having difficulty because I would keep getting resources that had like 2 sentences at best vaguely mentioning intersex people and the entire rest would be trans or LGBT info. Sometimes I've literally had to set my search to disclude anything with the word "transgender" just to get anything useful. Is it just me?

For instance, I tried to find info on how gender-afffirming care bans would effect intersex people whose bodies can't produce necessary hormones. I came up with with pretty much nothing except a bunch of sources name dropping intersex people alongside trans people without actually discussing them (unless it was to point out a hypocrital exception if a state had one.)

I tried a couple other subjects to see what would happen. Intersex bullying rates? LGBT bullying rates. Intersex STD rates? LGBT or trans STD rates. Why?

hi so i was raised and assigned female but im obviously intersex. i have PCOS, NCAH, suspected hyperthyroidism but my levels go back and forth during the year, i have ambiguous gentials (stage 3 clitoromegaly, labial fusion+hypertrophy, and a lot of internal organ conditons as well) im very confident in being intersex biologically and being trans feminine gender wise, despite being raised coercive female.

i went on T before i knew i was intersex, thought i was afab trans male. i was not. i deconstructed and am now referring to myself as c-afab trans fem. i regret a lot of the effects of T, i also had progress and growth way faster than anyone whos afab ive ever met. i had bottom growth on the 2nd week of .2 dose IM. voice dropped significantly and now i want to actually go on Estrogen because i know it would really make me feel accurate to my true biologically-intersex body and brain.

what im needing help/resources on, is how would i even go about going on Estrogen, if my doctors wont even recognize it as me being intersex. theyve diagnosed all my conditions but just think im a bio female with hormonal, and physical ambiguity. i need to go on E, this is corrective and affirming for me. im so tired of being seen as a man. i hate it.

does anyone know how to go about going on E as C-AFAB? i need any amount of info in can get…im at a loss and so depressed of how i look. i know i cant reverse my voice but i want to feel and look so much more different

So I'm intersex, and I'm trans. I have CAH. I've wanted to get on T since I was literally 11. I turn 21 in a couple of months. And I'm trying so hard. I keep trying.

I tried to get on T through planned parenthood, but they said they can't help me do to my CAH. So I was like, ok, and I wallowed in sadness for a few months.

Then I caved and decided that life just wasn't worth it if I couldn't transition, so I bit the bullet and got plume, since everyone said that they were able to do it when PP can't.

I literally just got off of my consultation and the very nice doctor couldn't help me.

I just don't know what to do. I don't have health insurance. I can't afford an endocrinologist. I don't know what to do. They keep pointing me to see a primary care doctor that doesn't exist, or get a recommendation for said doctor to go to an endocrinologist. I just don't know what I'm supposed to do.

Dear new members of r/intersex,

Welcome to this sub! We hope you had a wonderful time so far. If you want to, please feel free to introduce yourself (but please restrain from sharing any sensitive personal information and try to stay true to our rules).

~ your mod team

The manga goes into a few stories of different intersex people, but the series mostly focuses on a male-identifying intersex teenager and his struggle with the subsequent prejudice. It also has intersex characters who identify differently from him, which is nice too.

This is the Weekly Discussion Thread for /r/intersex.

Feel free to use this thread to discuss whatever you've been up to. It does not have to be intersex specific, but please mind the rules and stay SFW.

Have a nice week!

~ your mod team <3

In Germany we have the term "flinta". It's short for: Female Lesbian Inter Non-Binary Trans Agender. The term is used for previously "women only spaces", which try to be inclusive for more genders. I know mainly discussions from the trans community and a lot of trans people hate the term for various reasons.

How is the term perceived in the inter community? Do you know it? How do you feel about being added/invited to "women only spaces" or "trans spaces"?

Are there texts with an inter perspective, which critique flinta spaces or describe experiences of being there?

Hello im jay, im 40 & was diagnosed with KS when i was 13. Life was hard and there was alot of things i just never understood. A few yeras back my Ks specialist was able to get ahold of some older medical records from when i was a kid & told me that i was born intersex. I spoke with my family doctor who confirmed it prior to his retirement.

Now im left with alot of questions & no one has been able to answer them. My specialist helps but isnt fully able to. So maybe someone can help.

I appear male, with feminine features, tho im 6'7" tall & a large build. My family is very phobic of me being anything other then "normal" and i do suffer from alot of medical issues caused from the KS. So not alot of support and its hard to ask for it from anyone but i need to understand myself a bit better.

Marked NSFW for brief discussion of genitalia.

I’m a twenty-year-old intersex individual who has seen an endocrinologist for the last eight years. My androgen and testosterone levels have always been high. Three years ago, in my senior year of high school, it came to my attention that I also have ambiguous genitalia (double urethra; one goes through an enlarged clitoris attached to—also enlarged—labia. Basically, I have a micro penis for a clit.)

At the time, I identified as gender-fluid because of pre-existing dysphoria. I am AFAB, but have, on-and-off, identified as intersex since… well, that’s what I am.

Here’s the thing, though. I go through these bouts of intense dysphoria during which I simultaneously wish I was a “real woman” and/or that I had an “actual penis” (along with my female genitalia). It tears me apart when I get like this. Sometimes to the point that I feel physically ill.

Do any of you guys have similar experiences? How do you deal with dysphoria? I just need someone who understands, lol. Thanks.

Note sex itself is also a spectrum people need to be reminded that binary is a false choice used as an oversimplification.

Also people themselves can change and evolve overtime if you asked me as a Teenager I would have said I was pansexual but as I better understood my own preferences and experiences came to find out I am a lesbian.

Life is a journey and people need to be free to explore and find themselves rather than trying to fit into a box.

We should all advocate for a society that better supports the process of people being themselves and finding their truth.

This is a vent in response to the recent CAH post.

For reference: I am a 31yo female diagnosed with CAH in infancy, but not at the newborn screen. I have been on steroids my entire life, and had some other health issues along the way - mostly related to steroids. After a long road of infertility, I was able to conceive and birth a child and breastfeed for well over a year. I say this because I've heard that is not common with CAH affected women. I now have osteoporosis with repeated bone injuries, and SVT likely a result of my steroids - but who knows?

I do not identify as intersex because it's never really come up in my life as a need. I want to be very clear and transparent in saying none of that stems from "intersex phobia" hatred, or any disdain of any intersex conditions.

Although, reflecting on it - maybe I do not identify as intersex because I do not want my "sex characteristics" to be a detriment to my medical care, and overall quality of life? I'm not sure.

Much to my disappointment, the majority of CAH literature is related to topics like ambiguous genitalia. In fact, CAH is commonly listed in places it does not belong all over the internet. For example, "adrenal fatigue" was (is?) a trendy condition in the past decade.. the similar presentation of NCAH to PCOS has been all over the internet "do I have CAH??" Rather than the life altering effects of being unable to produce cortisol.

In fact, I had someone tell me they were concerned about CAH, not because their baby could die from it - but because they were concerned their daughter "would be born with a penis."

Like many people diagnosed with any intersex condition, I have never really "shared" this more than I needed. Primarily because I don't need strangers googling it with the first thought being "oh, she must have a big clitoris" rather than being informed on the signs and symptoms of adrenal crisis.

I resonate with a lot of the identity struggle that people with intersex conditions MAY (not always) face. Although, I think it comes from the medical gaslighting that many people with rare and complicated conditions face.

I think the "intersex" component of my condition has led to poor treatment - critical studies and labs are often overlooked in favor of lowering my T levels, and I was started on birth control around age 12. Rather than addressing my early onset osteoporosis, getting a head start on declining cognitive function or premature cardiometabolic disease, all anyone knows about CAH is "oh women have big clitorises."

I've actually had providers use language like "in trans patients..[like yourself]"

This rant may not be well received but I want to be clear that despite falling under the same umbrella we all have different lived experiences.

This is sort of a rhetorical rant but I wanted to point out that painting conditions (like CAH - and many others) with a broad brush is a disservice to people struggling with life outside their sex characteristics and hormones.

I'm not intersex, but I always wondered if, given the fact that intersex people is often assigned to a binary gender according to their more developed genitalia, it could happen that their gender identity doesn't match with the assigned one at birth.

i'll be clear first, i plan on one day going to a doctor about this, but i want to educate myself better on this.

so, i'm 16 and I'm a pre-everything amab (forcibly) closeted transfem, and sometimes i think i am intersex because i have some weird stuff happening with my body, but sometimes i think it's not "enough" to be anything.

anyways, my puberty started at around 12-13, and since then i have what are like periods, but without any blood whatsoever. i can exactly track it, i get mood swings, all the pain, you name it. everything except the blood.

i have a relatively androgynous voice, as well as larger than average hips for an amab person, and recently no matter what i do, eat, i always feel so bad, and my bones kinda hurt a little. not sure why.

the rest has been kinda normal. i grew body hair, (unfortunately) a lot of facial hair, and i grew muscles too. i have been working out since 13 and i am able to grow muscles just fine. this makes me think i don't have any intersex condition.

edit: forgot to add, but i do have broad shoulders and back too. it developed normally.

i have no scars of any procedures that might have been done in the past, and my parents never talked about my birth too much. my mom had me when she was my age, so super young. the only thing she told me was that they thought i was going to be a girl, but later on they found out i was gonna be male so they had to pick another name.

so, i wanna know if there's any ppl out there that found out they're intersex, but didn't have a exact "clear" route or symptoms, bc i am really confused

thank u!

For the US folks. Something to keep an eye on.

The Supreme Court will have a hearing about a case in Tennessee where the state banned trans health care for minors, which includes hormones different from sex assigned at birth. We all know it is scientifically illiterate (paper cited below). However, it may pave a way to expand this ban much more broadly (age and geography).

The bottom line is like with abortion, using various techniques (e.g. paying bounties) the state is gradually removing medical professionals out of healthcare. The decision even a 'no opinion' decision may make medical professionals more risk averse and it will become even more difficult to get medical care for intersex folks. It's worth to remember that not all conditions diagnosed quickly/immediately. In some cases it may not be ever diagnosed as not all conditions are known.

https://www.advocate.com/news/supreme-court-transgender-case-skrmetti

https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4953186

I'm not intersex myself, but some years ago I used the word "intersexphobia" in regards to a fanfic. Someone sent me a flame message about how horrible and evil I am for using that term instead of "intersexism", telling me they hoped my nonexistent children hate me for it, and then started going around telling other people on social media how terrible I am for using this word and how I should be shunned. Literally every advocacy org I've looked at uses "intersexphobia" interchangeably with "intersexism", and I've asked a couple of intersex advice blogs on Tumblr who also said it's fine. Did I actually do something wrong by using this word, or what?

I’ll first disclose that I’m transmasculine and have felt my whole life I was intersex without evidence. My chromosomes match my assigned gender at birth. I share this because I deeply understand challenges with gender identity/body dysphoria and so I’m sensitive about it.

My nephew was born intersex and had urological surgery around 1 1/2. He doesn’t know. He and I are very close and it’s hard for me to know this information and not be able to disclose it. My brother (his dad) refuses to disclose or educate himself about how to support an intersex child.

Does anyone have any advice for how I can support my nephew while he’s still a minor? I’m hoping that by my own courage to be openly trans, if he ever struggles with his own identity, he would come talk to me, but it just feels awful to not be able to openly talk to him. I fully understand many intersex folks have no gender identity struggles, but as puberty nears, I’m just having a tough time not being able to be an adult who talks openly with him about different kinds of bodies.

Hey all you lovely humans.

I'm Chloë, I have Klinefelters (XXY) and am using hormones to transition to a more feminine Intersex human.

I've recently taken up modelling and putting myself out openly as Intersex has had a few people bring up other trans models with Klinefelters, like:

Caroline Cossey/Tula: First Transgender bond girl

Kimber James: Adult film model

And it's made me realise I not only don't know many Klinefelters role models, but I don't know of many Intersex role models at all.

I know we're rare, I know most in the limelight are probably going to stay quiet about being Intersex, but I'm hoping some of you have others who you can add to this list!

(Editted to fix formatting, also happy to edit this main post with people's role models!)

I have what seems to be swyers (blood test pending), and I've been on HRT for 20 plus years. I've struggled a lot with mental health, including diagnosed depression, OCD, ADHD and anxiety. Medical PTSD too but not officially diagnosed. I have also had trouble with my weight since about that time. I'll maintain a steady weight for a year or two and then gain 20 to 30 lbs in a few months.

I have no idea how much my hormones have affected my mental health and weight or if anything can be done about it. Has anyone else had similar experiences? I don't think I can blame it all on the HRT but knowing how bad things like PMDD can get it's hard to believe it's completely unrelated.

This is the Weekly Discussion Thread for /r/intersex.

Feel free to use this thread to discuss whatever you've been up to. It does not have to be intersex specific, but please mind the rules and stay SFW.

Have a nice week!

~ your mod team <3

I had an argument over with someone online (also intersex, but they used DSD to describe their experiences) regarding if NCAH is an intersex condition. They kept saying it's not and that people with CAH prefer not to be apart with the intersex community by showing me statistics from the Cares Foundation. They also kept saying that I'm just a female with a condition which does not describe my experiences and also the fact that I do not fit in the typical female binary. Not only that, but they're saying that the word intersex is outdated??????? I tried to tell them that people use and prefer intersex, but doctors are the ones that use "DSD". However, they still stand with their argument.

I understand that the person prob had bad experiences growing up, but I dont think its right to tell me and others what my experiences are as someone who has VSC. If you don't want to identify as intersex or be apart of the community then thats fine, but please don't try to tell someone what they are and what their experiences are. (Also for anyone asking what DSD they used, Im pretty sure they used Disorders of sexual development rather than differences of sexual development).

I tried to cross post from where I originally shared it, but it didn’t work, so ta da! I’m proud of how it turned out :)

I know this is not a trans subreddit, but I am intersex and consider myself trans, so here we are.

Hey all,

To preface, I am a AMAB with a possible intersex condition not yet diagnosed. My body doesn't produce it's own Testosterone, as I have come to find out at 28 years old. I knew something was weird but too embarrassed to talk to a doc about it, as I have always been baby faced (clocked at 15yo even now), and a feminine voice.

I went to the doc about 5 months ago now for low sex drive (as pointed out my my husband), low energy, and lack of focus. 4 months ago I was started on T with little physical changes. But it fixed my energy, sex drive and focus almost right away. A month ago I had blood work done and met with my endo. He doubled my dose because my T levels only went up 2 points on the scale.

Now, my voice is changing, I have acne, and body hair growth (but still blonde).

So all that back story for the main dilemma of sorts. My husband has made it known he finds my voice changing strange. And he may have issues with these changes if I grow major facial hair. It makes me kinda nervous with what other changes I might experience as my levels increase to normal.

Those of you in relationships when transtioneding, receiving treatments that changed your body, how the heck did you deal? How did your partners deal? I'm a little on edge.

I went to a big city in my region recently and I've forgotten how things work in the public transit of big cities... I got too comfortable at first thinking "Oh, there are so many people, it's jam packed and no one cares about you in those situations"...

Instead I had people stare at me, especially since there's a slight beard growing on me i constantly try to shave and my voice is deeper now and some other physical things. Some smirked in a smug way and some looked at me in weird ways as if assessing me, and it reminded me of how there's trans investigations now. Someone even got away from me immediately and gave me sideway stares.

I am usually unbothered because im older and don't care what others think of me, but for some reason this time I felt so upset being stared at like this as if I'm some circus exhibition.

I used to be stared at in the past but I was so delusional since I didn't know I was intersex back then, I just thought I was stared at for general physical appearance. I always thought I was cis and i thought i passed for cis but it seems I was super delusional all this time. Now it makes sense why they stared. I thought in big cities people are used to more diversity of people...

I actually wanted to accept my intersexness as just another part of me that i love to love myself fully and unconditionally regardless of how others perceive me...but...It just really hurts to be looked at like a circus exhibition and those stares made super embarassed and humiliated...