/r/HysterectomyCons
This community was created for people to share the negative effects of hysterectomy. Some who shared their experiences on r/hysterectomy were banned from that subreddit. This community gives them a voice. It also provides those who are considering a hysterectomy with information that is critical to making an informed decision. Check out the Wiki for medical citations - under Menu on the app, beneath the sub's icon on the website, or here - https://www.reddit.com/r/HysterectomyCons/wiki/index/.
This community was created for people to share the negative effects of hysterectomy. Some who shared their experiences on r/hysterectomy were banned from that subreddit. This community gives them a voice. It also provides those who may be considering a hysterectomy with information that is critical to making an informed decision.
/r/HysterectomyCons
Has anyone had a successful endometrial polypectomy with an anteverted uterus?
I had an attempted one in January of this year, but had to be aborted due to a light perforation.
I'm seeing a different gynecologist next week who will attempt to remove it this time and he knows about my previous history. I've been bleeding/spotting for 18 months.
I'm keeping my fingers crossed for success.
***Update on my surgery:
I'm very impressed with this new surgeon! He was able to not only remove the polyp, but also to dig out a 4cm fibroid.
In the past 14 years, the 3 gynecologists I saw said the only way was a hysterectomy.
I don't have much pain at all this morning, but a bit a bleeding which is normal and expected.
It pays to ask for a second/third opinion!***
I've been on the hunt for help for my sexual dysfunction over the past few weeks. I started Pelvic Floor Therapy again and saw a GYNE who specializes in menopause. Let's talk about that visit.
At first, I had difficulty getting her to understand that this was not just a lack of desire/low libido issue and that I have no feeling down there anymore. Once she understood, she did a full examination of my vagina, checking for sensation or lack there of. She had me hold a mirror so I could see what she was doing. While examining, she noticed I had what she called "mild adhesions" on my clitoris. Clitoral adhesions occur when the skin of the clitoral hood sticks to the clitoris, making it difficult to stimulate the clitoris and potentially causing pain or discomfort during sex, decreased sensitivity, difficulty achieving orgasm and even challenges with urinating.
She said my case is minor and shouldn't cause concern because it was so mild. However, hormonal changes are one of the causes for this issue that I'VE NEVER HEARD OF. Just wanted you all to know that this is a thing and to ask your doctors about it since most don't even know to look for it.
Hello everyone. I am 3 days post op for removal of a large uterine fibroid, currently at home and recovering. I opted to have an open myomectomy after doing a lot of research- my gynae offered this surgery or a hysterectomy. I'm 40 and have had 4 children, we have definitely finished our family so preserving fertility wasn't an issue.
What I struggled with was the fact that every female in my circle seemed shocked that I didn't just get my whole uterus taken out. They made it seem like such a light decision, like it was no big deal, and yay for no more periods etc etc. Made me feel bad for my decision. My sister in law is having a full hysterctomy next week and she says how happy she is to be getting it out, yet she is so ignorant and would never research potential risks.
I guess I am just here to have someone validate my feelings and choice, and tell me I did the right thing. Especially because I am in quite a lot of pain post op and there's always a chance the fibroid/s could grow back.
I didn't feel comfortable taking the risk of potential prolapses, depression, certain cancers or heart disease into the future. Plus I think I just have an emotional attachment to this wonderful organ that housed my beautiful children.
Would it be dumb to try and convince my doctors to let me have a hysterectomy? Im not quite out of school and my periods are terrible, I bleed a ton, I'm hyperaggressive, and I'm in pain for three days. I already planned on adoption instead of having my own biological kids, but I don't think I can wait till I'm over 20 to do this. I've had to be checked out from school due to the intense pain of my cramps and I've told my mother that I'm ready to have it out Immediately. I know the hormones won't stop all together but I just want the pain from it gone ASAP. Is this a good or bad decision?
Hello all,
In January 2024 I had an attempted hysteroscopy/polypectomy for a large 3cm polyp.
The polyp only shows up on sonohysterography due to impingement by large 7cm intramural fibroid which is partially calcified.
I also have an anteverted uterus which makes the procedure a bit tricky (the polyp is behind the large fibroid).
The procedure had to be aborted due to minor perforation while dilating. (myosure).
My gynecologist has said I’m not a good candidate for polypectomy and wants to do a hysterectomy.
He also said that polyps are mostly benign so not to worry???
I’m resisting the hysterectomy, since my endometrial biopsies (3 in the past 3 years) have all come back normal and show no hyperplasia.
The fibroid has been the same size for 10 years and has not been bothering me.
As of age 55 I still had periods that were heavy, but nothing I couldn’t live with.
I'm 57, on HRT- Half a pump of Estrogel and 100mg Prometrium, for hot flashes and it's working well.
I'm not sure if I'm in menopause yet due to intermittent, bleeding and spotting.
Is this surgeon lacking in skills? I’m seeking a second opinion, and hope to get that polyp removed.
I’m opting for conservative management. My mom had a really bad outcome from her hysterectomy, so this all scares me.
Thanks for reading my long post!
I'm trying not to worry much, or panic....
Im 8 months post laproscopic total (only ovaries left). Felt okay for a while but...
Around August I started to do some pelvic floor pt, trying get active again with regular yoga...and I think I must've over did it somewhere, somehow. Now I'm getting some discomfort, muscle soreness...fatigue... especially in the abs. I can't really engage the core now without issue, where Sometimes it'll even get tingly or itchy, around the belly button and down through the vaginal walls too.
So I'm trying to back off, not do anything more than just walk and get around and drive to work...
But im nervous..nervous somethings wrong. Nervous about my sex life (certain angles are really uncomfortable)...nervous I'll have to go under to repair something and be starting all over with healing.
But I've also read sometimes it can take a year or better to be totally back to normal, that thingsll fluctuate.
Thoughts?
Hi, I'm a PhD student at the University of Buckingham researching chronic pelvic pain and identity. If you live with gynaecological chronic pelvic pain, please consider taking part.
The survey, which takes around 20 minutes to complete, asks questions about your pelvic pain and its impacts on your life, your identity, your mental health and the way that you think about your pain. Participation is voluntary, you do not have to provide any identifying information and you are free to stop the survey at any time.
To find out more or to complete the survey, please follow this link:
https://run.pavlovia.org/pavlovia/survey-2024.1.0/?surveyId=beedb9ae-7810-4906-a05e-8f0960264c4a
or use the QR code.
Thanks for reading,
Lisa
I absolutely regret this decision. I wish I did more research and just trusted my doctor. I had no idea that I could basically lose what makes me feel like. Woman...my sexual feelings. Not my sex drive...I still WANT to have sex. It's just when I do ..there is absolutely NO feeling in there. I feel so loose, like numb. My orgasms are also so weak. It is disgusting.
I am depressed. I cry on a daily basis. I am shocked and stressed and I feel horrible. I feel stupid. I feel so many emotions. I feel stuck. I am in a nightmare.
I hate this. I do not want this in my life. I am scared for my relationship. My partner likes to please me. He enjoys making me feel good. We enjoy that passion and we can't.
I don't know what to do. I am "young" 42. This isn't ok.
I don't know what to do. .....I just don't know what to do......
Hi everyone, I am 13 weeks post-op hysterectomy w / Uterus, cervix, fallopian tubes removed vaginally. I work at a preschool and recently started carpool duty. I carry the littles ( one and walking ) to their classroom. 2 weeks ago, I started spotting and having pain on my right side ( pelvic and hip). So far, it's only happened twice, but should I be concerned?
Hi all, I'm writing this on behalf of my 67-year-old mother who will be receiving a radical hysterectomy by the end of this month due to her stage 1 uterine cancer. She is very active (goes to the gym and does yoga regularly) and in good health. She is married and has 3 kids. She is having second thoughts about the procedure given her history of chronic back pain from foraminal stenosis.
She has read a few articles on the internet which state that hysterectomies cause the torso to drop/ collapse which can lead to increased back pain as the ligaments that keep the uterus in place will be cut. Furthermore, she read that there is a 33% increased risk of coronary heart disease post hysterectomy according to Mayo Clinic. All this reading on the internet has left her completely worried and freaked out.
She was given the option to have a D&C and an IUD which can treat the cancer with hormone therapy. She will have to have a biopsy every 3 months, however, this was not the doctor’s preferred option as the cancer may go into “hiding”.
She is most concerned that the cutting of the ligaments from the uterus will have a negative impact on her lower back and cause her increased back pain. (she had micro back surgery a year ago)
Did anyone of similar age and/or back pain history have any major issues post hysterectomy?
Has anyone had any luck finding a surgeon who can remove large fibroids via laparoscopy? I've consulted with two surgeons so far, but both recommended a hysterectomy, saying my fibroids are too large for laparoscopic surgery. I'm really hoping to avoid a hysterectomy if possible.
I understand the concerns about hysterectomy discussed in this group, but what are the options for dealing with enormous fibroids that make you look like you’re in your third trimester, cause back pain, and bring other symptoms? What are the best ways to manage or eliminate these fibroids if a hysterectomy isn’t ideal? Thanks for any insights or alternatives you can share!
I don’t know if this is suitable for this sub or not but I recently had a relatively traumatic colposcopy/biopsy leading to a CIN 2 diagnosis. Preserving fertility is not necessary so they have jumped straight to wanting to do a LLETZ and hysterectomy “just in case”. Hysterectomy seems like a radical thing to go through as a “just in case” when there’s only a 5% chance of CIN 2 developing into cancer. I do have extremely heavy bleeding both during and between periods which they need to do a D&C for to biopsy for potential uterine cancer. I also have many fibroids. After much reading through here and every medical resource I can get my hands on, along with the information I have gotten directly from the doctors, I already know that I don’t want a hysterectomy unless there is absolutely no other option and it is 100% absolutely necessary. What I don’t know however are my options for anything else because every doctor I have seen wants to keep me in the dark and either glosses over my questions about other options or outright won’t tell me anything. I’m so angry that they think they should be able to make a decision about my body rather than asking me which way I want to go. So…may quations are: LLETZ, ablation, cryotherapy, D&C - what are the real chances of long term side effects including sexual dysfunction? This is something that is important to me and I keep getting told by people to just be thankful I won’t get cancer there and even if my own satisfaction isn’t preserved then at least my partner will still be satisfied. Maybe it seems like it shouldn’t be an issue to anyone but it is for me. Of course the sexual side is not my only concern though. I’m also worried about stenosis, atrophy, perforation and the lack of being able to be biopsied for uterine cancer again then being forced to jump to hysterectomy.
Apologies for the novel. I am trying to find info and everyone seems to only want to concentrate on the positive stories which is great for those people but what about those that don’t fall into this rainbow filled result? No-one wants to give any information about the very real possibility of negative side effects. I want to be able to make an informed decision.
Side note: if I go through public health here (I’m in Australia), they have told me that any and all operations will be performed by a student or registrar not a qualified gynaecologist.
Thank you in advance and sorry if this is the wrong place to ask.
I’m a 42 year old female who is 14 months post op from a total hysterectomy, I kept my ovaries. I’ve been experiencing menopausal symptoms and sexual dysfunction since 8 weeks post op. After discussing it with my surgeon, I was encouraged to see a therapist because my blood work shows my hormones are in the normal range and I may be dealing with emotional issues from the surgery that I’m not aware of. Sigh.
She’s a Physical Therapist who just had a hysterectomy and is journaling her recovery on social media.
Her latest post says: “Losing your ability to ORGASM after a hysterectomy is a health problem you deserve help for.” Then she followed up with: “And please don't come on my comments with ‘well l had the best sex of my life after my surgery’ That's NOT HELPFUL on a post written for people who ARE having problems. If a woman feels her surgery negatively impacted her sexual experience that is HER TRUTH & you're not a better person if your experience was different. Anyway, the lack of empathy in this world blows my mind, daily.”
I’m so happy someone gets it. Not one doctor I’ve seen has been able to validate my feelings but she did it in one post. Her username is drjocelynwallace if you want to check out her other posts.
I’m one year and 3 months post op. I have had almost zero patient education on this procedure, before, during, and after. I was rushed into a decision and pretty much booted out the door once it was done. Everything I’ve learned has come from Reddit or HysterSisters. At the time, I accepted her weirdly fast offer of surgery because no one else had listened to me about my pain. In retrospect, it’s a huge red flag now.
After my awful experience with the OB who did my surgery (for endometriosis), I found a new OB, the nurse even said she was shocked that I wasn’t out on some type of HRT for a while, that it’s standard procedure in their office. I was still in pain months later so my new OB felt it was the endo growing back and put me back on BC. I asked for the same pill I had been in for months prior to my surgery because I’d had no side effects from it (Tri-Sprintec).
Well here we are months later and I have zero sex drive. I thought it was due to working so much and being physically in pain/not well due to the myriad of issues from the surgery or endo, other chronic issues I have, etc. But I’ve always had a healthy sex drive. Sometimes too much. I always got a spike of libido when I ovulated. I kept my ovaries so this shouldn’t have changed? I read sexy stories and novels a lot and I feel nothing. I have zero interest in my husband sexually. When we do have sex, I have zero response in anything down there no matter what he does. Thankfully he’s beyond understanding and loving about it. I also have next to no natural lubrication anymore.
My overactive bladder has gotten so much worse too. I had it a bit after my second baby was born and went on Myrbetriq for a time but was fine after. But then I had this surgery and it’s returned and even worse than before. I’m back on Myrbetriq and still having multiple leaks per day. I have no idea when they come. Seems like whenever, not necessarily with sneezing or coughing. I’ve tried pelvic PT but can’t afford it. Everything is out of pocket around me.
My last OB visit she said to give pelvic PT and birth control a try and then we’ll talk potentially about vaginal estrogen cream. I’ve sent in an appointment request to discuss all this again. I’ve tried going off the BC but the pain returned. I asked her months ago to test my hormones and she said just wait. Well here I am. Just waiting. Still not any better than I was before.
Honestly, if I’d had more understanding of all the potential cons of this surgery, I wouldn’t have gotten it. My endo pain was controlled by BC, I was skipping periods, so nothing has really changed for me at all except now I have all these issues that at 35, I shouldn’t be having.
Hi, I’m scheduled for an total Hysterectomy keeping ovaries. My pre-op appointment is in 2 weeks. I was looking over my visit information for my surgery day and I’m scheduled for hysterectomy plus salpingo-oophorectomy. Not sure why he has scheduled me for an oophorectomy because I’m keeping my ovaries. I will go over the final details at my pre-op appointment. Just wanted to see if anyone knows if this is normal for the doctor to schedule both when you’re are keeping ovaries.
My hair has been falling out since my surgery years ago. It is so thin and fine. I've been on a good dose of estrogen for years and a low dose of testosterone gel since October 2022. This is the only symptom (aside from no libido) that hasn't resolved.
I have been on oral minoxidil for a year. The shedding tapered off slightly in the fall and early winter but then shedding increased again.
Has anyone else experienced chronic hair loss and found a solution?
I need to review my surgery video to verify whether my surgeon did some of what was in my surgical report. I have the video and watched it after my procedure, but It’s really traumatic for me to watch my surgery video now.
Would anyone be willing to watch it for me and see if he did or didn’t do some of what I have noted?
I need someone who knows the anatomy and knows what to look for.
TIA!
I am posting this here only because it's the only place that brought up figure/posture changes post hysterectomy. I need a hysterectomy for reasons I don't need to share, but I'm worried about the figure changes. Is there not a solution of some kind? They can't suture the ligaments together in the empty space? There is no prosthetic that might stand in to which these all important ligaments can be attached? I am mildly concerned about changes to the position of the bladder and bowel, but I want to know if there is an actual solution to the ligament issue before my appointment with the gyno.
I refuse to accept that there isn't a potential solution to this because it shouldn't just stop at "well hysterectomies are bad because they cut the ligaments that hold your spine and ribs in place". It shouldnt even stop when we have hysterectomies that preserve the use of the ligaments. We should be trying to make hysterectomies as safe and sensible as possible for the people who need them because there will always be people who need them. So we need to go beyond acknowledging the problems with the system, and start demanding solutions. I know I will when I sit down in front of the gyno, but I'd like to have some real options before I do so.
I understand that it's important to help people be completely informed before surgery, but I don't want anyone in the comments trying to talk me out of the surgery. I need to make my uterus as much of a non-issue as possible, I didn't choose to be born with this organ, and I hate that I have to struggle so much just to exist in my body with dignity. Constantly fighting the medical system for basic info and dealing with the stress of having this body is bad enough. I'm only asking here because I'm desperate for a solution that involves no uterus and no ligament drama.