/r/hysterectomy
Post your questions and hysterectomy stories here
A place to discuss hysterectomy
/r/hysterectomy
I’m 9 weeks post op tomorrow. I’ve still got sharp nerve like pains on the inside where my incisions are. It seems to be worse when I’m doing a lot. For anyone who is farther along in their recovery, is this normal??
I had my surgery on Friday and I've been on the couch since we got home. I feel pretty good outside of weak and I'm sure I'd be hurting if it wasn't for meds. How long should I expect to be horizontal? I have the guilties for resting and I know I shouldn't but what's normal?
hello im a 28 f no kids. I have always had very heavy periods typically last 3-5 though I never I had cramps. when I was 21 I was for the first time in my life late on my period by about a week, when i finally got it, it was extremely painful out of nowhere and lasted 3 weeks this was also the first time I had ever had an extended period. I went to the doctor and was told that my period was feeding off of my older sister who was pregnant and that my period would go back to normal after she gave birth. (we live and worked together) during her whole pregnancy my periods woul last 9 to 16 days, and once she gave birth I started having regular 7 day periods. so I took this to be my new normal my sister has since had 3 other pregnancy and every time my period would go haywire. jumping ahead to August of this year I found myself needed a blood transfusion, following that I was diagnosed with fibroids ultrasound showed 3 fibroids a bit under 4 centimeters, mri showed the biggest one is almost 6 centimeters and they did not say how many there were but based on the wording of the report there are at least 4 with the smallest being 3 and a half centimeters. based on my research that has been confirmed by my ob the scans are inaccurate and all fibroids are likely 2 to 4 centimeters bigger then the scan says and there are likely more that they can't see. I am not eligible for iud as my uterus is enlarged and far to big for it, they have a newer treatment that's apparently similar to cancer treatments using radiation, but the likely side effects of that is not being able to have kids anyways and I really didn't like that option, so we went with a hormone based medicine that's supposed to shrink fibroids, and not only didn't not work I am now on an endless period, so my primary and ob talked and came to the conclusion that the last option i have left is surgery its very likely that they will be taking the whole uterus out, as it is apparently proven if you have fibroids removed they come back worst and I simply can not handle ever doing this again not having enough blood in your body is awful I feel like trash it's only been 3 months since my blood transfusion and I'm already very close to needing another one. I'll have updated labs tomorrow but this period started Oct 21st and has not stopped I had labs done that day and my hemoglobin had only managed to finally get up to 10.3 which is the highest I've seen it. as my doctor put we went scorch the earth to buy time for me to see the surgeon and hopefully be able to avoid another transfusion they put me on Norethindrone Acetate which is supposed to force stop every thing I've been on it for almost 2 weeks and though bleeding has lessened it has not stopped, and it hurts soooo much the soonest i could get a consultation with the surgeon was December 20th. my main question here is are there any negative effects from not having a uterus? as for as I know the only thing that will be removed is the uterus everything else is staying put. I have had surgeries before so I'm not really scared about the surgey itself I just know there are many pros to not having a uterus, but I have no idea what the cons are. I'd love to hear other people's experiences!
I’m 3 wks po from laparoscopic hysterectomy. Everything gone except for my ovaries. My recovery has been great, other than pain the first 2 days I’ve only had the odd discomfort. My question is, today I noticed a little blood (not bright red, more like a watered down pink if that makes sense) on my bandage at one of the incisions with some sharp pain on and off today. Not enough pain where I have to take Advil. Is this normal?
42 years old. I'm 18dpo or so and off my birth control for over 3 weeks. I'd been on bc since i was 20, minus a short time that was about a year in my early 20s. Surgery was 11/13-I had a total, lap, leaving ovaries, so I would't experience surgical menopause, but I expected to be far different being off the pill after so long... I'm on Spironolactone to prevent cystic acne already, and it's doing great as usual. But outside of some of those little tiny pinhead zits, I feel no different. No mood swings, nothing. Am I about to get blindsided? If I am, how do you deal with that? Where do I go from here at my age? My mom had her hysto at 47 and has been in menopause since her early 50s. Saw mixed knowledge about HRT... I don't know what to do next. I think I can rought it out as I have fibromyalgia and am used to hot flashes and mood swings already lol
Thank you my fellow hyster sisters for your support since my surgery. I appreciate everyone who has been reading my posts and answering me. Now I feel like since I am getting physically better and my mind thinks it’s time to turn towards emotional aspect. I woke up today with feeling of overall hot (like on a typical summer day), I am still not getting an actual sweaty hot flash but just my upper body is hotter than lower. And I had a migraine earlier that subsided after couple hours. Also I watched a really good heartfelt show yesterday plus some events in personal life that kind of ignited my emotions. Today I am just crying and there’s no apparent reason, tears are flowing after few minutes. Please tell me what to do in the moment? I know it’s a temporary phase and will pass once the ovaries are back to functioning again. But how to move on in this moment? What did you guys do? Just sleep on it? Watched TV? I dont have anyone to talk to who won’t be dismissing how I am feeling and just try to enforce positivity by looking on the brighter side. I already know the surgery is going to bring better outcomes and it’s a process. Please share thoughts on getting through emotional days. Thank you in advance!
I’m randomly starting to have pain when I breath in around the top of where my incision is like a sharp pain anyone else experience this
Also I had open surgery so I have a big vertical scar
Anyone deal w this?
Its so weird. I’ve turned a corner as far as starting to get energy back, feeling pain free, back to working from home, going out to dinner even.
However all of a sudden I feel really moody. Depressed and kind wistful. I know it was for the best, it had to happen bc it would’ve posed a huge risk if I didnt. it’s probably the best thing Ive done for myself. but the idea of losing three organs is on my mind and just a lot to process. I didnt particularly want to have kids but Im suddenly mourning this alternate reality in which I did.
I had my hysterectomy and prolapse surgery done on Nov 12. Everything seemed to be good until today! I can feel a bulge at the front bottom part of vagina. Anyone have this? Also it feels like pressure and painful.
Has anyone experienced swelling or bloating around 8 weeks post-op? I’ve got a cruise coming up in 4 weeks and really want to feel my best for it. Overall, recovery has been going well. I returned to work a week before Thanksgiving and have been taking it easy. At this point, the only reminders of surgery are the swelling and some discomfort when sitting in certain chairs. My doctor has advised waiting until 12 weeks post-op for sex, so I haven’t tried that yet either. Just curious if this is normal for others qnd if anyone has tips for managing it!
I had a TAH two months ago and the last week or so my teeth have been extremely sensitive and sometimes my gums bleed. I practice good dental hygiene and my recent checkup was good.
I just wondered if anyone else has experienced this as I’ve read hormones can affect our gums. Thanks!
I am a few days out from my TLH. It’s December 4th. What were you favorite recover snacks? What did you eat the night before?
I'm 12wpo after a full abdominal hysterectomy.I'm still having upper back soreness but I think it's because I'm back to work.Anyone else 12wpo and dealing with this after returning back to work.Thank you.
Hi everyone! I am 2 weeks and 4 days PO. I had a laparoscopic hysterectomy. I had everything removed except my ovaries. She also went in my bladder to see if it was okay. My report stated I had some muscles thickening on my bladder but my doctor didn’t mention anything. I had adenomyosis to the point where my body never stopped bleeding. I had a catheter put in during surgery. Immediately after surgery I was told to pee to be able to he released from the hospital and I did. The first couple of days it hurt really bad to pee but got a little better. Now though I’m having pressure and stinging still while I pee. I was tested for an UTI and I don’t have one. My doctor said it could be my stitches inside rubbing on my bladder. I also had some bloody discharge on thanksgiving but I think I did way too much that day. I’m scared my bladder is “permanently injured” now. It constantly feels like I have to pee. I was also told I wouldn’t have hormone issues and I’ve noticed my nipples are extremely sensitive. I was in norethindrone 5mg before for about 2 years due to my excessive bleeding and immediately stopped day after surgery instructed by my doctor. I want to start “feeling better soon”. I know it takes awhile to heal but I’m just feeling defeated.
Today at almost 16 weeks post op, hubby and I attempted sex again. This time it was finally pleasurable with only minor cramps afterwards and minor pain in my cuff. I was finally able to reach an orgasm too. It took 16 weeks though!!!!
I still can't get over how the Drs can say 8 weeks for sex when it's definately waaaay too soon for some of us.
I tried at 9 weeks and I was dry and inflamed. I tried at 12 weeks and was still not right. Still dry, still too sore inside and no orgasm. Only now after 16 weeks is it ok and lubrication has returned. Even at 16 weeks I feel it's still a bit too soon due to the post sex cramps.
I think the Drs need to be more realistic about when sex is safe. Not everyone is ready after 8 weeks.
(Robotic LAVH for 13cm fibroids and Adenomyosis keeping ovaries - easy recovery)
Hi folks. I'm on my way to scheduling a hysterectomy (tentatively early next year) but of course need to have a fun biopsy procedure first. It's tomorrow, and before anyone asks: my doctor's office uses nitrous, I'll be taking ibuprofen before, and my partner will be there and driving me to/ from it. I have heard these can be awful, at least some people's experience. I'm also honestly worried whether my doc will see something concerning, beyond a bunch of fibroids and an oversized uterus.
So I've been thinking all week now, will I in fact go back to work afterwards ( I WFH, at least)? Will I be non functional afterwards? How long is the waiting game on biopsy results? What did y'all do to manage this part of the process?
I’m 7 days post op, I’m not really in a lot of pain now but when I press down on my left side, it does not feel good. Almost like bladder pain but not?
On my right side if I press in the same area it feels fine.
The left side incision is also the only side that is bruised (see pic) really, but the area that hurts when I press on it is below that, closer to my hip bone - wondering if they maybe just did more work on that side or something and that’s why it’s hurting? Is it normal to not have bilateral pain so recently after surgery? I figured I’d be hurting equally on both sides.
My post op isn’t until Dec 11 which feels so far away. :/
I’m 6 days post op and this morning I finally felt the urge to go to the bathroom 😀
Sat down and anytime I felt movement I experienced the most extremely severe sharp pain in my vagina, like it was going to rip. I tried to breathe through it and I couldn’t do it. Got up and went to lay back down.
I don’t know how to get past this. I’m absolutely terrified. I’ve had painful poops before that feel like labor but this is like nothing I’ve ever experienced. Feels like my vagina is going to come out of my body. Omg I’m trembling. Please help 😭
Can someone please reassure me that pooping is not gonna cause me to tear something??
Hi all, I’ll be 8WPO on Thursday & last Monday my Dr ordered blood work to check out my hormones & other things.. my progesterone is <0.5 which is the level of someone post menopausal… my estrogen is 32, and my testosterone is 9. . I’m kinda bummed because my progesterone levels were low like that before surgery but my estrogen has come up… I kept both my ovaries and I’m only 32… I wonder if it’s too early to tell if my ovaries are failing? I was on the depo for a very long time so idk if that has something to do with it.
4.5 WPO, TAH/BSO. Has anyone else experienced terrible back pain? I hurt so bad on the right side, lower down between my tail bone and hip. Like a deep pain. If I sit fairly still in my recliner, it isn't too bad and will eventually ease up. I use a heating pad. If I'm lying in bed, it doesn't hurt until I try to reposition myself. It's been like this for a week. I hate feeling like a big baby and I worry that my family, and even my gynecologist, will think I'm a hypochondriac if I complain. I see my gynocologist December 13.
Hi there! I’m scheduled for my surgery this Friday, 12/6. I have a 2 story house. My MIL had a hysterectomy, she was here yesterday and told me that she didn’t think I could go up and down the stairs in my house for the first week or so. Our couch downstairs is mushy and sits very low. I know I will struggle getting up and down from it. She suggested renting a hospital bed for the first week for downstairs. I’m having a total hysterectomy, leaving my ovaries, laparoscopic. What do you guys think? Do I need a bed or will I be able to go up and down my stairs? I’m so nervous. Holy shit. 😳
Hey, I just wanna ask if anyone else has experienced this and what has worked in the past to help it. I had my hystorectomy about 4ish years ago due to a uterine AVM that had ruptured. They removed my uterus, cervix and both ovaries and tubes. It's been a literal life saver and I do overall feel healthier than I ever have before. I absolutely do not regret the surgery at all.
..but now onto the one thing that has been really really troublesome for me. I find sex to be extremely painful, my partner can't even get it inside of me before the pain becomes unbearable. We use lots of Lube and I'm on HRT to try and balance hormones out but it's still way too tight down there. Me and my partner really enjoy intimate time together but this has been really causing problems for us because he's scared of hurting me and I don't want to be in pain. We tried to have some fun this morning but it just ended with me crying out of frustration that my body isn't cooperating.
I know there's therapies that could help from a quick Google search but that's not really in the budget right now, so I guess what I'm asking is if you had had the same problem before and managed to fix it, what advice would you give someone in the same situation?
Thank you for taking the time to read this, it's been a bit distressing for me.
Looking for some advice/guidance. I had an abdominal hysterectomy (for adenomyosis) at the end of July, both tubes and left ovary were also removed. Large cysts, some endo and adhesions were found and removed. The past week or two I've been feeling a sharp, stabbing pain where the ovary was removed and have lost some feeling on the same side near the incision site. The pain isn't constant but I feel it when I stretch or move a certain way or sit up too straight. I am so nervous that something else is growing and kinda heartbroken tbh, I was really hoping I wouldn't be dealing with any more pain. I saw my doc recently and he is pretty sure that I am just still healing internally. So if you can settle my nerves I would be so grateful. Has anyone had new pain develop this far into healing from surgery?
Ello! I am 8 wpo, was cleared for sex. We decided to take it slow. Nothing was hurting during the act but as soon as we were done I had a huge radiating pain from like top of my abdomen to my undercarriage. Had a heating pad on it, helped a little; next morning I can barely walk so I head to the store for midol. It helps but the pain is still there. No spotting, nothing coming out externally. It feels like deep period cramps (got rid of everything but ovaries) with IBS cramps combined.
Wondering if I should go in to urgent care/message gyn if this continues through tomorrow. Woke up this morning still dull cramps and discomfort in my belly area.
Maybe take it easy before trying again? Hubs is concerned he seriously hurt me and feels so bad that he might have damaged something. It’s been about 30 hours straight with this discomfort so I’m wondering if I did damage anything. I didn’t have this issue when masturbating up to my penetration clearance. Hubs is pretty average in length and girth. Nothing too extensive.
Any suggestions or advice if this happened would be greatly appreciated.
hi, i'm 37 and have just had a hysterectomy and my ovaries removed (kept my cervix) due to severe, debilitating adenomyosis. i'm happy to chat to anyone if you're just about to have the same done.... physically, i'm healing well. mentally, i'm all over the place. i was immediatelly given an estrogen spray... first day using it i was euphoric, followed by two days of feeling suicidal. my gyno then prescribed me addiional estrogen pills so im ow on spray and pills. overall i feel a bit calmer but my worry is i have no idea what i'm facing. today i feel depressed. can anyone tell me about their experience on hrt having skipped perimenopause? will i be up and down for a while? my anxiety is through the roof as i just dont know what im facing. thanks in advance for any advice.
I’m 25 and need it out asap lol so if anyone has any experience with her please share!
Wondering about how the timing of starting these helped your recovery. Thank you!
should we consult our dr first thing in the morning? my wife is doing ok. she is able to walk and sit in a chair, sofa recliner etc. i'm concerned that the belly button cut is still open. other 3 cuts are not open. no bleeding or discharge from any of the cuts. is that normal? do we need to ask the dr to "staple" that area. she didn't shower yet, so there is no chance that whatever the dr has put over the cuts has gotten washed away. appreciate any advise.
Hi everyone!
I’m 28 years old and I got my surgery 10 days ago. Robot-assisted laparoscopic hysterectomy, kept my ovaries. I feel great.
I was feeling really rough for the first 5-7 days. I had a JP drain tube removed on day 6 post-op and having that removed has made a world of difference. That drain was absolutely miserable.
I know I’m still very much healing on the inside, but I literally feel like I could run around the block 🤣 I want to vacuum my house so bad. I have what feels like 16 loads of laundry that need washed and/or folded. I know I’m not “supposed” to do these things, and I won’t, but dang! It’s hard trying not to overdo it.
How did your recovery go? Is this some kind of “false recovery” (lol) that’s going to turn around and smack me in the face? Really the most discomfort I’ve had the past few days is my sweatpants waistband pushing on/rubbing my incisions. I’ve been feeling good otherwise. I’m assuming my age is coming into play too.
On November 14th, I had an ovarian cyst removed and when I got home I saw the notes that I apparently have "dense" pelvic adhesions that connect my pelvic floor to my uterus.
He mentioned he could have removed them but he feared a. They would return without a full hysterectomy and b. It would damage the ureter.
Does anyone have an experience with urogynecologists?
I see one in March, but I am a bit nervous about everything. I'm sure it will be fine but I guess I'm worried about things that might go wrong.