/r/Hypothyroidism

Photograph via snooOG

Devoted to the education, treatment, and healing of all forms of hypothyroidism.


Rules and General Information

  • Moderators will enforce Reddit's posted rules.

  • Insulting or antagonizing members is a bannable offense. Our members are here for insight, advice, and camaraderie.

  • If you have posted something and you believe it was removed as spam in error, please message the moderators to discuss.

  • Discussions about alternative therapies are permitted, but will be removed at the discretion of the moderators. This is not intended as bias against naturopathic/holistic approaches, but rather protective of our members against snake oil salesman.

  • Posts about diets, dietary restrictions, dietary limitations, and the removal of items from your diet are allowed here. We are open to the discussion about these things here.

  • We are not physicians. We encourage all members to find a capable, compassionate, intelligent practitioner and discuss advice given here with them.

  • Discussion of Graves Disease and hyperthyroidism is a-okay! A lot of hypothyroid people were once hyperthyroid due to Graves or thyroid cancer.


If you have any concerns please message the moderators here


Full list of thyroid lab tests:

TPOAb/TgAb/TRAb, TSH, T3, FT3, T3 Uptake, rT3, T4, FT4, TBG, PTH, Calcium, Glucose


Recommended sites:


/r/Hypothyroidism

52,408 Subscribers

1

Subclinical hypo, symptoms feel semi debilitating, why?

My number are also on the fence. Last 3 were 4.65, 4.55, and 3.75. I don't understand why with those numbers I feel like the symptoms are semi debilitating. Also, I noticed I experience basically every symptom. Especially fatigue and brain fog. Those two symptoms are the worse and affecting my work. Will levothyroxine even help me with only subclinical numbers?

2 Comments
2024/04/02
17:51 UTC

2

Looking for some thyroid friendly grab and go breakfast options

I'm hoping to get some good grab and go high protein thyroid friendly breakfast options that don't contain a lot of sugar or artificial sweeteners. I don't ask for much haha. I really struggle with time and energy in the morning and my stomach can't handle heavy foods so I really need something I can just grab and go.

11 Comments
2024/04/02
17:18 UTC

1

How do I know if I am likely suffering from hypothyroidism without going to the doctor?

The title says it all, but I am not looking to self-diagnose, I just want to know if I am suffering from it. I currently can't afford medical insurance, therefore the reason I am asking this question here.

I have occasions, where I find school work I liked before become extremely uninteresting and boring. I feel like I don't want to do anything productive at all except sit at home and binge watch movies. I do find it interesting to play soccer with my friends, but I only do that once a week. I find that even though I don't like coffee and I'm not addicted to it. I find it helpful to drink it on empty stomach to help me focus to do the work I need to do, but if I don't drink coffee, I am easily bored or uninterested. I am only looking if people in this forum have similar experiences, I just want to get a sense of why this is happening.

13 Comments
2024/04/02
16:46 UTC

1

Doctor rec in Miami?

I'm looking for a great doctor in Miami who takes an integrative/functional approach to treating thyroid disorders. Someone who will look at my full thyroid panel and bloodwork. I have other hormonal imbalances that may need extra attention and may not resolve with thyroid treatment. Thanks šŸ™

0 Comments
2024/04/02
16:36 UTC

1

Interpreting my numbers

Iā€™m 30M. I donā€™t think i have any symptoms but maybe possibly slight hair loss but hard to tell. Last October i had cholesterol blood work done for work HSA. They took BP and it was high ish at like 130/80 or something. Iā€™m pretty in shape so that alarmed me being pretty ignorant to it all. Bloodwork all pretty much came back clean. LDL slightly high at 108 but all else green. When i started diving into blood pressure i got my own machine and started taking it and stopped coffee same time. Same week i started noticing PVCs. Not knowing how to take BP properly i got some high reading and more PVCs. This sparked me to go to a clinic. They did a bunch of tests and ekgs etc. Everything was normal and referred me to a cardiologist who did the holter and everything. Everything checked out and said i have <1% pvcs and strong and healthy heart (ekg, echo, hsCRP <0.3, CAC score 0, etc). But the original clinic visit where all bloodwork was good they pointed out my TSH was high normal at 4.44 so they told me to watch that.

Later on about 4 weeks later had TSH retested at 3.9 so still high ā€œnormalā€. I figured out the BP thing and followed AHA guidelines and it averaged out to like 110/73 or so. PCP said i have white coat (up to 160/110 in office, confirmed my monitor accurate at office). So everything was going well and feel fine. Decided to just do a spot check since it has been several months and they told me to watch it originally. I did a full thyroid panel and testosterone check (first time ever checking) ordered online and performed at quest. Here are my numbers:

TSH - 7.05 (ref 0.5-4.5) HIGH

T3 Reverse - 20 (ref 8-25)

T4 free - 1.3 (ref 0.8-1.8)

T3 free - 3.1 (ref 2.3-4.2)

Thyroglobulin antibody - <1 (ref <=1)

Thyroid Peroxidase antibody - <1 (ref <9)

Including test numbers in case it helps

Test Total - 492 (ref 250-1100)

Test free - 72.3 (35-155)

So that TSH is alarming and maybe the test numbers a little low but everything else seems fine and i donā€™t feel tired ever (was off coffee for 5-6 months but started back up 2 weeks ago), never feel cold, not depressed, but possibly some slight hair loss but not actually sure.

What would you do if in this situation? Thyroid stuff is sort of new to me.

Only other thing iā€™ve had going on is some anterior uveitis in my right eye. Treated with cortico steroid drops and an eye pressure drop. First flare in October and second now. Drops are working. Almost gone for 2nd time. Doubt itā€™s related.

EDIT: Might be notable. Years ago i supplemented with lugols iodine 2% with a drop per day for a while; thought it was an immunity thing. Read that might be a bad idea and stopped. Sometime last year tried it again for like a week because i saw it in cabinet. Iā€™m pretty sure i was stupid and did several drops not remembering it was supposed to be like 1. I remember feeling euphoric that day like i just took caffeine and had more energy than normal even though i feel perfectly energetic. Decided that was too weird and didnā€™t do it again. Could i have damaged my thyroid and thatā€™s why i have high TSH now?

0 Comments
2024/04/02
15:20 UTC

1

Green powder

Does greens powder and powdered turmeric from 1 up nutrition taken an hour after Levothyroxine okay?

0 Comments
2024/04/02
14:26 UTC

3

Does anyone take their thyroid medication at night and does it cause any sleep issues?

Iā€™m having trouble taking my thyroid medicine in the morning since waiting to eat for an hour after taking it really hurts my schedule when I need to get going in the morning. Wondering if taking the levo in the evening when I already hav an empty stomach since I stop eating after dinner would help. But Iā€™m worried that taking the thyroid medicine at night will give me energy and cause sleep issues and Iā€™m already quite an insomniac, so donā€™t need any extra help making sleep harder!

Any feedback and experience with timing of levothyroxine regarding its interaction with sleep is welcome!

7 Comments
2024/04/02
11:39 UTC

2

Can TSH be falsely raised if I'm sick with a cold or flu?

Thank you

9 Comments
2024/04/02
09:19 UTC

1

Symptoms? (Labs included)

Family History: Mother - Hashimotoā€™s Disease Aunt - Hypothyroidism Grandmother - hypothyroidism

Labs: TSH - 6.88 (12/2023) and 6.49 (3/2024) FT4: 0.7 (3/2024)

Based on what Iā€™ve read, this is pretty classic subclinical hypothyroidism. My doctor just wants to repeat labs again in 6 months which is irritating.

I was just curious what the muscle/joint symptoms are like for most people. I have been experiencing these horrific aches when I try to sleep (similar to what I think RLS would feel like). Is that a common experience? Just trying to figure out if I should push for testing sooner or just ride out the next 6 months. After my first round of abnormal TSH results, she said, ā€œAny other symptoms of thyroid problems?ā€ At that time, I didnā€™t know what the symptoms were. šŸ˜‘

Things that COULD be related to hypothyroidism:

  • Leg pain when trying to sleep?
  • dry skin on elbows (especially), hands, feet, forehead
  • dizzy when standing after sitting or lying down for a period of time
  • weight gain (but I havenā€™t been living the ideal lifestyle lately)
  • sleeping A LOT more (but difficulties sleeping at night)
4 Comments
2024/04/02
07:30 UTC

2

Neck rashes

Ever since I was diagnosed with hypothyroidism, I have had the worst neck rashes. They look like hives or a massive puffy sunburn. I donā€™t have hashitmotos but curious if any of you have had this too? Have you found any ways to get rid of the rashes?

0 Comments
2024/04/02
07:17 UTC

1

Elevated TSH, elevated FT4 and elevated FT3 levels

I've had separate labs done 2 months apart and they've both shown elevated TSH (9, 13 and 8) and elevated FT4 and FT3 levels. The previous two were done at an ER and the last one was done with an endocrinologist. What could this possibly mean? From my understanding, this doesn't really make sense, and it's occurred in two separate labs now so it's likely not a mistake.

2 Comments
2024/04/02
06:41 UTC

4

A sudden inexplicable wave of intense anger at everything and everyone?

I have been hit with an inexplicable wave of anger that I do not understand. Still in it and am pissed at my phone.

I am NEVER someone who gets mad at inanimate objects. I try not to get mad at my husband.

This cand on 15 min ago and it's kind of scary.

I was angry at my husband for wanting to cuddle, the dryer for foging the windows, too little blankets on the bed. It was CRAZY feeling anger at these things

Is this my thyroid!?!? That's all I can think if. I have hashimotos but haven't taken my meds in a couple months without symptoms. Healthcare is rough to get.

5 Comments
2024/04/02
06:12 UTC

3

Feeling stuck with weight loss 32f 186lbs

Hi, Iā€™m 32F and 186lbs, I was diagnosed with hypothyroid last year and Iā€™ve been taking medication since. Before being diagnosed I had the following symptoms: lethargy/fatigue, always sleepy, brittle nails, sore calves and ankles. After going on medication all these symptoms cleared up. I also have PCOS, my periods are irregular. In the past year and half Iā€™ve gained 20 lbs. I went up from 165 to 186.

I just feel so depressed about the weight gain and really want to get back to a healthy weight and just feel good about myself when I look in the mirror. It just feels impossible right now. Iā€™ve begun tracking my calories and doing my best to meal prep. Iā€™ve been having a hard time staying within my caloric threshold but Iā€™m making improvements slowly. I am trying to follow a high protein and high fibre diet. I also workout with a personal train 2x a week and Iā€™m now looking to add daily walks.

I just feel hopeless and pessimistic. It feels like my goals are out of my reach. Ideally I would like to get down to 125-130lbs. My height is 5ā€™7.

Please help

14 Comments
2024/04/02
05:39 UTC

1

Hypothyroidism

I have 12.7 tsh level and Iā€™m 14 years old. In December I was at a 14, then January I was at a 7 then march I was 8 then last week Iā€™m back at a 12. I took X-ray it doesnā€™t look like I have hasmitos disease but my bone age is at a 12 years old. I donā€™t have any symptoms of hypothyroidism besides weight gain. I am 4ā€™11 barely and Iā€™m 14 turning 15 in October. My doctor says to take levothyroxine but I donā€™t really want to take meds for the rest of my life. Iā€™m having a meeting on Thursday with my doctor and if she ends up saying itā€™s the best option I may take it but I want to hear from other people first. Is there any other way of not taking the med. Also will it be possible to lean myself off of levothyroxine. One think Iā€™m very concerned of is if it will make me feel awful as I donā€™t feel sick now. Have you guys had great results on it? And will it help me grow? All I care about is if itā€™s safe to take, thank you!

7 Comments
2024/04/02
04:34 UTC

11

Are you able to request a thyroid panel whenever? How do i test my thyroid?

First some context. Im a 17 yo male who might be experiencing symtoms of a hypothyroidism. Im suspecting this because my eyebrows have been gradually thinning away. As of right now, the outter half is almost completely gone and its getting worse. They used to be a lot fuller, if you want photos i have earlier posts about it.
Now, im not sure if it is hypothyroidism that is causing these problems but it is possible and i want to test for it. If it is or isnt I still would like to speak with a doctor about why my eyebrows disapearing.

Now my problem is that since im a minor, i have to ask my mom it do all that and talk to them. She tells me that i cannot order a thyroid test OR ask them questions anytime soon since its "not an emergency" and isnt casuing any serious issues. She says i have to wait for the routine checkup which is 5 months later in August.

Now, I dont really wanna wait that long because (1) ive had my eyes on this issue for months now and (2) i dont want to wait for it to get worse. So my question is more of a question about the healthcare system. Am i not allowed to walk in and ask questions? Can i not just order a test now even if i request for it? Im only 17 and dont know this whole process so i just wanna know how this all works and your experiences with it and if you guys needed to wait for the routine checkup or not.

I also asked my mom about the result of my last thyroid panel to which they said that everything is good and there is nothing causing any problems. I asked my mother if i could see the actual results due to the fact i was informed that sometimes they only check for TSH and not other things but she said no. So, is it common for them to only check TSH? i have a list of stuff i was told to make sure they included but again, i cant know if they included them if my mom is refusing me.

So overall i just need a rundown on how to do all this. How do i test my thyroid to see if it is actually hypothyroidism casuing all this? How do i request my doctors for help on how to solve this issue?

19 Comments
2024/04/02
02:41 UTC

1

Breakthrough symptoms

Iā€™ve Ben medicate for hypothyroidism for 40 years. Currently Iā€™m on 175 mcg a day. My T3/T4 are normal. But I still have signs and symptoms of hypothyroidism, such as cold intolerance, sluggishness, brittle nails, etc. Does anyone else with hypothyroidism have this problem?

3 Comments
2024/04/02
02:36 UTC

1

Can Levothyroxine cause Dark necks and dark pits?

when I did research it gave me three different kinds of diagnosis, and one mentioned drug-induced hyperpigmentation? So I guess Iā€™m wondering if anyone on here might know if Levothyroxine can be a common cause for this and if it falls under the category of drug induced hyperpigmentation?

5 Comments
2024/04/01
23:46 UTC

1

Spike in TSH over 2 months from .6 to 12?

I got diagnosed with Hashis Hypo about 6 months ago with TSH around 8. I started Levo and got my levels down to 1-2 range with my most recent test being .6 in January. Overall, Iā€™ve been feeling much better than before.

However, I just got a check-up test and my TSH is now 12.

I did have a little bit of a binge over the weekend, but otherwise have been fairly healthy recently. I'm definitely feeling a little bit of a flare up - my hands and feet are sore, bur otherwise feel normal.

Iā€™ve also been using nicotine pouches for the last month (and just stopped a few days ago). Iā€™m guessing that was a contributor but still.

Any other ideas? Should it go back down or do I need in increase my meds again?

1 Comment
2024/04/01
22:32 UTC

2

Mounjaro and inflammation

So I've read that Mounjaro helps with autoimmune diseases since it helps keep inflammation at bay more or less. I've been on it now for 4 months and I genuinely feel so much better. It can be so many factors though right? Weight loss is probably one big one. But unfortunately I haven't started exercising (I plan to once the busy season goes down) and my diet hasn't changed much since it was pretty decent to begin with.

But I overall feel better. More energetic, better moods, less pain. So I do wonder if it has anything to do with the inflammation.

Anybody else have this experience?

P.S I'm dealing with Hashimotos

0 Comments
2024/04/01
22:28 UTC

1

Endo says normal with my latest labs. Still feel like meh

Just had labs done Friday. I have appointment coming up next month with Endocrinologist. Previously she over medicated me and made me hyper. Latest labs are Tsh 0.942 t3 77 t4 0.97. My symptoms for the last two weeks are: cold feet then I get hot during the night, heart pounding/ feels like palpitations. I do have high blood pressure which is controlled. I have taking my propanolol for heart pounding. I go to #2 a lot. Sorry TMI. Iā€™m not losing any weight. Despite being physically active everyday and lifting weights. Irregular periods and irritability with the need to nap on the weekends otherwise Iā€™m very not nice to be around. My question is do I have conversion problem. What should I push for. She is very laid back and fixing to leave the hospital group.

6 Comments
2024/04/01
22:09 UTC

3

Levothyroxine nightmares

Does anybody find that levothyroxine causes anxiety dreams or nightmares? Iā€™ve been having them whenever I take it before bed..

9 Comments
2024/04/01
21:35 UTC

1

What do slightly elevated TSH levels indicate?

I've been having symptoms for the last couple years and I still haven't gotten an answer to why, but it's been pretty bad and I noticed throughout the history I looked at my blood results and there's been a few times where my TSH was over 4.0 but it's always mostly over. 2.5 range? Range, does this mean I might have a thyroid issue? Any advice would be helpful because I still feel awful. Thanks

4 Comments
2024/04/01
20:48 UTC

1

If you've supplemented L-Tyrosine how long to wait before thyroid tests?

I've supplemented L-Tyrosine for focus and energy for 2 years on and off for adhd symptoms, not a lot and not every day, but now going through an important time and yeah I both want to test my thyroid myself comprehensively (as my GP only is up for TSH, which is normal by my country's standards, but not by some books though) as my fathe rhas hashimotos and that's the reason I started testing it occasionally every 1-2 years. My lifestyle is relatively good for thyroid health, but I still have issues that are very related possibly and yeah I'm tired of my GP who doesn't seem to care. But I want those tests to be accurate and tyrosine supps from what I gather may affect it, which is maybe also why it makes me feel better.

9 Comments
2024/04/01
20:44 UTC

2

Levo Fixed TSH But not FT4

Well Iā€™m thoroughly confused. Symptomatic subclinical hypothyroidism. TSH 4.54. FT4 1.0. Three months of Levothyroxine (Tirosint) and my TSH is 1.5 but my FT4 is still 1.0. Iā€™ve been feeling better some, but how does this make any sense? The meds Iā€™m taking are literally T4ā€¦ (Total T4 did increase from 6.9 to 7.7 even though FT4 didnā€™t change.)

3 Comments
2024/04/01
20:24 UTC

1

Not sure what might be happening.

Hey guys! A couple of months I was diagnosed with hypothyroidism. Numbers were just a little above range but my symptoms were evident (feel very tired, hair falling, no eyebrows, dry skin). My doctor prescribed 25 MCG Synthroid. It's been 2 months since I started and my endo appointment is next week so I decided to take another test to see if something has changed. Numbers now appear to be on range but I have the same symptoms (excluding dry skin, which has gotten better). T4: 8.96 TSH: 4.70 T3: 46.60 I feel a little confused and don't what to do next.

0 Comments
2024/04/01
20:05 UTC

1

Labs back with Elevated TSH but no antibodies.

Labs as of

3/26/2024: TSH 4.77 Vitamin D: 17 L T4: 1.31 T3: 2.9

3/11/2024: <9 TPO (Ab)

2/23/2024: TSH 3.07

Long story short: I began going to the doctors due to weird afternoon brain fog, fatigue, lightheadedness, and burping. Omeprazole seemingly cured the burping issue (coincidental acid reflux) but I still had the other two symptoms routinely in the afternoon, regardless of what or if I ate. This was in early Feb. I best describe it as having Hashimoto's afternoon crash which would last 30 minutes - 3 hours, and would go away regardless of if at work, at home, etc.

CBC Bloodwork came back normal mid Feb, so I requested a TSH level, which came back as 3.07, which being a diabetic, I guess in my mind I see it as having a blood sugar of 140. Not normal, but not dangerously high and could indicate something is coming. Symptoms came and went, being present for like 2 weeks, would go for a few days, and come back. Eventually I found Hashimoto's and requested an antibody test, which came back negative. In late March I saw my doctor had put another draw in for me for my TSH, and I went to take it. This revealed elevated TSH levels and a really low Vitamin D level.

I just started once a week 50,000 IU of Vitamin D to hopefully fix that level. My PCP said to get another test done in 2 months and to speak with my endo regarding thyroid medication, and my endo said that since the T3 and T4 are in normal range, it is not something to worry about and therefore to refer back to my PCP. Not sure if I should ask my PCP for a second opinion or just drop it at this point. Whenever the symptoms arise, they are killer for my work productivity and I feel as though I just want to not move until they go away. Is 4.7 really untreatable? Could the low Vitamin D cause the rise in the TSH? Any advice or questions for me to provide more info would be appreciated.

6 Comments
2024/04/01
19:28 UTC

1

Should I Switch Doctors?

I am a 20 yo female with severe hashimotos; when I was diagnosed I had 150 TSH, .5 T4 and 413 Thyroid Peroxidase Antibodies. I went to a thyroid speciality place, and she told me there was nothing I could do to manage my condition except to take my medication.
I had a variety of symptoms over the course that seemed to be side effects of the medication and symptoms of the condition, including afternoon crashes (needed to take a nap at work at 5pm), low blood sugar spells, feeling dizzy & nauseous, hot flashes & cold sensitivety, 3 week long period (very abnormal for me), losing 15 pounds in a week ( I'm underweight) and having extreme anxiety that made my chest feel tight. I felt a lot of these symptoms before my diagnosis, but it suddenly felt intensified a few weeks into taking Levo. She would order me to alternate medication doses with full & half of 75mg.
She also can feel that my thyroid is normal and smooth by examining it physically, and says I do not need an ultrasound.
My TSH got down to 16 six weeks ago, and jumped up to 25 when I got blood work done a few days ago. She says that I need to continue to get my body adjusted to Levo better, and we can work to increase it to 88 mg which would bring my levels down. Is it worth it to just bite the bullet with the side effects and work to get my levels down, which will overall ease my symptoms? Is she right? I know there is a million ways to help with Hashi including diets & remedies, but if a doctor won't tell me too much different then is it worth going through the trouble of finding another completely booked out Endo? I understand the goal is to have my levels return to normal, but shouldn't managing my symptoms be important too, or should I wait for the end result?
In addition, I have friends who take Low Dose Naltrexone to manage symptoms. My doctor says she has never heard of that used in this setting. Any thoughts?

2 Comments
2024/04/01
19:20 UTC

4

Subclinical Hypothyroidism?

I recently had some labs done at my doctors appointment (heā€™s an OB that specializes in fertility/hormone issues) and received the results back:

T3: 2.70 (range 2.3 - 4.2) T4: .80 (range .7 - 1.48) TSH: 4.19 (.35 - 4.94)

When he called to go over my results, he said everything looked ā€œfineā€ and was in normal range. It was only when I asked him specifically ab the thyroid numbers that he mentioned the T3 and T4 were on the low range. He ended up prescribing me a low dose (30mg) of NP thyroid.

I guess I was just shocked that he didnā€™t mention anything ab the numbers and probably wouldnā€™t have unless I askedā€¦does anyone have opinions on my numbers or on the meds he prescribed? Iā€™m new to this and overwhelmed.

0 Comments
2024/04/01
18:23 UTC

1

Jaw/neck issues

I've noticed my neck has become thicker, jawline not as prominent since I've been diagnosed with hypothyroidism and have been prescribed on Levo, and was just wondering if there's anything I can do? I've started watching my carbs more closely recently, but I don't like the look of it. I admittedly don't work out and my job is a office job but I still manage around 7000-10000 steps a day. I''m not over weight, 5'9 around 178-182lbs but my neck is very thick. Any advice or anything my PCP can do?

0 Comments
2024/04/01
17:21 UTC

2

Really really fast heartbeat, but only when laying down and trying to sleep? Hunh?

So I've been on my same dose of levo for a long time. I've always felt under dosed, and always had many of the issues that you guys on here talk about when being under dosed on levo. I've always brought them to my doctor and begged her to raise my dosage and she has never cared.

So since my dosage has not changed in a long time, it'd be weird if my issues suddenly changed, right? Also it would be even weirder if the changes only happened when I lay down for bed, right?

I was always told that while my doctor refuses to raise my dosage I should still call them if I experience a palpitation. And I did have them years ago when first starting the meds so I know what they feel like. This is not that. What happens now is that any time I lay my head down on my pillow for sleep my consistent heart rate shoots up and stays there. I used to go to the gym and work out and it'd feel nice when doing cardio like an hour long job to get a good strong beat going. But now it's just happening when I'm lying still in bed and trying to sleep. It feels like I'm getting to a good run going but I WANT TO SLEEP. I've been trying to drown it out with melatonin and it kind of works but jesus. Why is this happening? I've always felt under dosed and now I'm getting exactly one of the symptoms of being over dosed, but only at night? How does that even work? I wish it happened during the day because then I might feel normal again like before I had cancer.

8 Comments
2024/04/01
16:59 UTC

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