/r/thyroidhealth

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This is a place to share, vent & support each other over discussions related to Thyroid Cancer, Grave’s, Hashimoto’s, Hypothyroidism, Hyperthyroidism & other Thyroid diseases. Visit our wiki for loads of comprehensive, Thyroid-related info

/r/thyroidhealth

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5

Lost Voice after Lobectomy

I had a lobectomy earlier this week and my voice is still very weak/raspy and I am coughing a lot (feels phlegmy but when I spit it out it’s all clear mucus, sorry if that’s TMI). They said that you can get irritation from the breathing tube (didn’t realize they monitor for an hour before stitching you up!). I’ve been under general anesthesia before, though nothing lately that was in my head/neck. I do recall having a sore throat for those, but my voice was back almost immediately. I think these surgeries were shorter (under an hour, lobectomy was 2h including the observation).

Is this normal? When can I expect my voice to be normal-ish? And when should the coughing subside?

4 Comments
2024/11/10
01:38 UTC

2

Anxiety caused by thyroid autoimmune condition

Hi, posted something like this a while back but will keep it brief. My sister and I both have OCD and there's a lot of anxiety in our family in general.

I also have a confirmed thyroid autoimmune disorder—an endocrinologist who gave me a scan said so many antibodies have been attacking my thyroid for so long that it has the texture of califlower. I strongly suspect that this is the root cause of my anxiety disorder and that there's a similar cause for my sister. My sister doesn't believe the thoughts in her head at all, but the physical fear lingers for hours after she has put the thoughts aside, and therapy has yet to be of much help.

I'd like to act as quickly as possible to see if there's anything that can be done that would help my sister's thyroid health, because I see her getting worse every day and her anxiety is rendering her unable to function. What would be your first move if you were me?

5 Comments
2024/11/10
00:46 UTC

1

Can a cta scan of head and neck miss thyroid nodule?

I had a cta scan of head and neck about a month and a half ago which cam back normal.5 days ago I suddenly developed pain near my thyroid from front and back with ear pain and tinnitus.Very worried atm since I've had 2 ct of head before and couple other scans with contrast.Tsh is around 0.75.I want an ultrasound but idk how to get one can I just walk in and tell the er I'm feeling pain in my neck lol

0 Comments
2024/11/09
22:00 UTC

10

I finally had my total thyroidectomy following years of Graves and suffering. But look at how angry it is!

My surgeon was amazed at how gigantic and inflamed it was.

7 Comments
2024/11/09
21:47 UTC

4

How to "fix" triggered hyperthyroidism without meds

I have a benign multinodular goiter with T3 T4 TSH in range for a decade--nodules progressively growing.

But. Now that i look at my records, my TSH was always on the low end of the value. Like, always 0.5, 0.6-ish. And now suddenly it wasn't, on my last bloodwork lol. For the first time, my TSH showed slightly out of value, under the lower limit. T3 T4 still in range as usual.

So it's slowly dawning on me: I'm turning "occasionally" hyperthyroid. Trying to connect the dots and recognizing signs of possible symptoms!! For the last 2 years i had about 2 or 3 "waves" of a couple months where some things were a bit off (then things would be normal for a couple months again):

  • waking up to a hot flash in the middle of the night if there was a noise (biggest issue ive been having)
  • getting hungry earlier than normal after breakfast
  • losing a bit of weight without effort
  • period being weird even though it's been consistent my whole life
  • vision sometimes being weird, as if one of my eyes got tired and couldn't focus as normal
  • hair loss
  • being tired (which i thought was just the normal ageing process)
  • leg muscles feeling as if they wanted to cramp often but they don't (i don't know if this is related).

And then I was feeling just peachy without these fun symptoms again. Until Halloween came along and i binged on like 7 desserts at the company lunch and then ate half a bucket of candy the next day. LOL. which... I normally don't do. And the symptoms hit me full force again the next day!! So I'm guessing: ruining my guts with sugar is a trigger?

My questions:

  1. do those symptoms look like what you'd experience with hyper? (I'm still just trying to figure this out.)
  2. does sugar ever trigger your hyper?
  3. for me, this has not been a constant and i think I'm barely hyper which i trigger from time to time. Does this ever happen to people? If so, how can i bounce back to normal? If it's about not eating sugar, how long will it take for my body to recover?

Thank you for your insight and sharing experience.

2 Comments
2024/11/09
15:01 UTC

1

Question about affirma test

Is this part of my results or just what the test can perform based on the metrics of this test where it states limit of detection ? They said it’s affirma 4% low risk on the page beforehand with negative markers.

0 Comments
2024/11/09
13:59 UTC

1

Could it be cancer?

About a month ago I had a flu or cold and it quickly healed in 2 days. Then after 4 to 5 days, I got sick, feeling dizzy, a sore throat but not that bad. So I went to the doctor. Had blood test done, throat swabbed, and it showed I had hyperthyroidism. My TH4 was at 29. I did an ultrasound and it showed I have 2 enlarged nodules. One on the left and another on the right. They gave me a beta blocker and antibiotics because it came positive for strep. During the course of antibiotics it seemed like my throat was less swollen and healing. But after a couple of days of completing the course it got sore again. I feel like there is a constant lump in my . I also can’t eat. My appetite is very low. I am also really fatigued. I have a Radioactive Iodine test in 2 months. And a biopsy in 2.5 months. They think it’s just an infection. So not taking it seriously. It’s been 3 weeks like this.

Did anyone have throat or thyroid cancer diagnosed after symptoms like mine? My right tonsil is swollen as well.

6 Comments
2024/11/09
10:28 UTC

1

Antibody for Hashimotos 30% chance to develop

Hey yall so my aunt has hashimotos and im going to talk to her but i know she had it bad. My doctor is saying there’s a 30% chance i could develop it but she said go gluten free lots of antioxidants and basically anything non inflammatory. Context I workout a lot CrossFit Olympic lifting which helps so much with stress and mental health. Im also sugar free but im just going through it thinking i have to be gluten free because i have two step kids and we’re constantly eating out having to get something fast. Does anyone have tips on eating gluten free or a specific anti inflammatory diet or other ways you can prevent getting Hashimotos ?

2 Comments
2024/11/09
03:41 UTC

1

Did anyone have a viral cough/laryngitis and still get to have their TTT?

My TTT is scheduled in 1.5 weeks an and I’ve been anxiously waiting 3 months for the surgery to be over. I have the RAS mutation and 70% likely that it’s cancerous. It was found on an MRI and I had no symptoms but the fibroid is 4cm. I came down with a cold this week and now have a bad cough (w/asthma) w/ laryngitis and am so worried they now won’t do the surgery. My PCP says if she gives me a steroid there’s no guarantee it will go away and also it is a blood thinner which could be dangerous but if I go into surgery with a cough I could aspirate so there’s no good solution. Did anyone have anything similar? I’m worried that if I have to cancel surgery it’s going to be another 6+months for the waitlist in Boston, MA.

1 Comment
2024/11/09
03:09 UTC

1

Thyroid/Goiter pain and heart rate drop to 58-62.

Twenty-three years ago I had 3/4 Thyroidectomy, so I only have 1/4 of my thyroid remaining. I know I have a goiter on the remaining part, yet my doctor and my lab results/images say that’s nothing to worry about at this time. I currently take 0.25 dose of Synthroid daily.

Just yesterday I started to have some intermittent pain in my thyroid. Sharp pain that comes and goes. I didn’t think anything of it. This morning I had it again before I left the house to go exercise, again though nothing of it.

While I was walking, at a pretty decent pace and after two miles I happened to check my heart rate. OMG, my heart rate was fluctuating between 58-62. I freaked. Of course I stopped immediately. I felt ok, maybe a bit foggy, but still standing.

Since I returned home I continue to have pain in my thyroid, yet my heart rate seems to have evened out.

Unfortunately I am unable to go to a doctor because I do humanitarian work in a developing country. I would have to fly to another country that has quality healthcare in order to see a specialist who could help me.

Any help, advice or experience with this is greatly appreciated.

0 Comments
2024/11/09
02:55 UTC

2

High thyroglobulin meaning?

I got my results and it’s Friday afternoon of course so I’ll can’t call my doctor till Monday. My level is 183.3 which was flagged as high. Is that a concern?

2 Comments
2024/11/09
00:02 UTC

1

TSH- 8 weeks post surgery

I had my left pole removed 9/13/2024- due to a TR4 suspicious nodule that came back inconclusive twice and was flagged for lymphoma cells. (Side note biopsy of said nodule and poke STILL inconclusive 😭😭)

My TSH has gradually been rising since they found the nodule. 03/2023. My surgeon said she had no concerns my right pole would be able to compensate for the missing pole. It’s exactly 8 weeks today and my ENDO said to get levels checked 6-8 weeks post surgery, what’s the odds these will eventually regulate? I’ve also gained a good 40 lbs since May and steadily rising 😭.

Nov 8, 2024 7.376uIU/mLHigh

Jul 6, 2024 3.858uIU/mL

Mar 23, 2024 2.638uIU/mL

Feb 16, 2024 2.141uIU/mL

May 18, 2023 0.532uIU/mL

Apr 26, 2023 0.109uIU/mLLow

Mar 9, 2023 0.373uIU/mLLow (When I was in ED for pneumonia and sepsis they found the nodule)

3 Comments
2024/11/08
23:05 UTC

1

Overmedication

Hello everyone. I started having a whole range of symptoms that pointed to thyroid issues after having my daughter. Ended up having to change doctors to finally get a diagnosis and start medicine. First doctor blamed everything on my anxiety and kept asking me if I was taking my medicine. My first TSH with new doctor was 5.64 and she began me on levo. Started to feel normal again and then about week 3-4 started feeling crappy on a new level. They rechecked my TSH and it’s now a whopping .05. She says she overmedicated me. I’m new to this and all I know if I feel like poop. Any suggestions or recommendations to try or to help me through this rough time. How long will it take to level out at least a little. It’s giving me insomnia like crazy. She says just give it time.

1 Comment
2024/11/08
19:47 UTC

2

Feeling awful after thyroidectomy

So I’m currently 3 weeks post TT and still feeling pretty miserable. My symptoms are:

  • tachycardia
  • anxiety
  • tremors
  • low appetite
  • lightheaded
  • head pressure
  • abdominal spasms
  • occasional fatigue & body aches
  • nausea

I had all of these symptoms pre-TT (subclinical hyperthyroid with toxic nodules) and had a few good days immediately after surgery, then they came back for about a week. Then they seemed to be subsiding for a few days and now they are back again. I’m on 88mcg Synthroid which I started 1 week post op. So I’ve been taking it for 2 weeks now.

I see my PCP next week. I see my endocrinologist on November 20th. I get my first official labs (ordered by my surgeon) on December 6th. I was at the ER last weekend because I thought I was experiencing low calcium. My calcium came back okay but my TSH was 38. They didn’t check t3 or t4 at the ER.

Is it normal to still be having these symptoms? Has anyone experienced something similar? Every day is a different combination of the above symptoms and it almost is like they are on some kind of cycle or rotation. I feel there is a pattern to them and as soon as I start to think things are settling down I go back to square one.

I’m starting to wonder if my thyroid was even my problem in the first place and scared that this will never end 😢

9 Comments
2024/11/08
19:41 UTC

1

TSH and T4

I have been recently concerned about the amount of shedding each time I comb my hair and shower. I already have fine hair so it scared me a lot when I’ve noticed more strands around. I received a blood test and requested to check all hormones but they only checked for TSH. Results can back today showing that TSH is low(0.005 (mIU/L))and T4 is high (19.7 (pmol/L)). Is this something that could be related to hair loss at these levels? I got my TSH checked back in March and it was normal (3.028 (mIU/L)) so this feels like a drastic change. I have the symptoms of hyperthyroidism like increased anxiety, depression, heart palpitations, shakiness, insomnia etc. TIA

0 Comments
2024/11/08
17:46 UTC

1

General Question

I had my annual checkup and it shows low TSH. But Free T4 is within range. My dr told me to do few more tests. Tsh, T3, T4, Anti TPO, TraB test.

I have fast heart beat whrn I feel worried about something.

After searching in google about the test I am lost now. It says about Graves and Hasimotos thyroid disease can turn into cancer.

Pls help me 😭😭😭

1 Comment
2024/11/08
17:33 UTC

2

Cyst Nodule

I have a 3cm cyst nodules that my doctors are telling me will just disappear on its own. And I have a lot of anxiety about pain or complications associated with the cyst going away. I was hoping to hear your expirences with these cysts disappearing, rupturing, or being removed by a doctor.

1 Comment
2024/11/08
17:02 UTC

1

Unsure of test results

Hey everyone!! I'm a bit confused lately, I've had 5 thyroid blood tests done in the last year. 3 came back and suggested hypothyroidism, then my last test came back and said I was on the verge of hyperthyroidism. My doctor hasn't been interested in medicating at all but the symptoms we suspected were my thyroid are still prominent. I have no idea what my thyroids are doing and what could be going on. Did anyone else ever have this? what did it turn out to be?

3 Comments
2024/11/08
14:14 UTC

5

My thyroid problems

Hello, I am 21 year old male and looking for opinions about my situation with thyroid.

Just for context, I had bone marrow transplant for my aplastic anemia(it’s cured now) but in a process of transplant I had to go on radiation treatment.

Turns out that radiation killed my thyroid and I developed Hashimotos.

I was undiagnosed for long time. At the time it was diagnosed my TSH was 353, with ft4 under 0.5.

Doctors were suprised how am I alive at all. I was on hormone replacment theraphy for 1.5 years with TSH and Ft4 in normal ranges.

Everything was fine until this summer when my right eye started to bulge out. My TSH went to 10.9 and I tested positive to TRAB antibodies. Turns out I have Hashimotos with Graves orbitopathy(thyroid eye desease).

Right now im getting IV steroids for 12 weeks to treat the TED.

After that, Im getting my thyroid removed. Im done with this dumb organ, I had enough of medication adjustement, body pain, hair loss, feeling tired…

I also look after my diet, workout almost every day but it doesnt help at all.

I wanna hear others opinions on my situation and if someone has some knowlage about this.

Thank you

1 Comment
2024/11/08
13:53 UTC

2

Rapid growth thyroid

What kind of experiences have others had with similar symptoms?

The symptoms include almost constant pain in the thyroid area that radiates to the neck and ear. Resting heart rate, even while sleeping, can be over 100, and physical fitness has completely deteriorated. Inflammatory markers have been clearly elevated at least since August.

Thyroid values have ranged from S-TSH 0.02-0.27 and T-4V 16-20. An ultrasound was done on the thyroid, and in two months the size at left side has increased from ~4cm to 4x7x8cm, with low echogenicity throughout, and at least one cyst with calcification larger than 1cm.

Three needle samples have been taken, with the first two showing no thyroid cells, and results of the third are still pending.

Could the high heart rate be due to hyperthyroidism, even though T-4V levels are still within the normal range?

The rapid growth rate of the thyroid is puzzling; I understand these are usually slow-growing. Has anyone else experienced similar issues?

I’ve been on corticosteroids for over a month and also taking a beta-blocker, and I feel slightly better with the medication. According to two different ultrasound doctors, it doesn’t seem to be an inflammatory change.

I have a doctor’s appointment next week, so maybe I’ll get some answers then.

6 Comments
2024/11/08
11:46 UTC

1

Scintigraphy vs RAIU and anxiety

Hello, my doctor requested a scintigraphy to know the exact cause of hyperthyroidism. From what I read here, most people do radioactive iodine uptake scan. What is the difference? In scintigraphy, an isotope called technetium99m (TC-99) is administered intravenously and it sounds scarier than iodine. What are the risks of these tests? I've heard of contrast-induced nephropathy. I don't know if there is a possibility of such a thing with these tests, but I'm worried. Also, my ultrasound result was normal. My trab value is 1.06. TSH is very low. Free T3 and T4 are in the normal range but close to the upper limit. Would these nuclear tests be helpful at this stage?

0 Comments
2024/11/08
11:45 UTC

2

Muscle Weakness (Graves Hyperthyroidism)

It’s so bad I can barely open a water bottle or hold my flask. Today I am desperately seeking reassurance it will get better.

I am on week 3 of proplythiouracil (PTU) and it’s gotten worse. I am hoping it’s not a side effect and just that the PTU needs more time to work.

When did yours get better?

Also, I’m looking into supplements especially amino acids to help during this period. Any recommendations welcomed!

0 Comments
2024/11/08
11:25 UTC

1

Anyone else lose weight after a partial thyroidectomy?

I had a partial thyroidectomy on 10/24, so it’s been about 2 weeks now. The day before surgery, I was around 150 lbs, close to 152 lbs, and now I’m down to 145 lbs.

I didn’t eat much for the first 2 days after surgery, but after that, my appetite went through the roof, I’m getting seconds at lunch and dinner. I actually thought I’d gain weight with how much I’m eating, but I noticed I look a bit leaner, so I checked and realized I lost weight instead. I'm not on meds btw.

Also, I’m about a week out from my period, and I usually gain around 4 lbs before it starts, so this weight loss is really throwing me off.

Has anyone else experienced this after a partial thyroidectomy?

6 Comments
2024/11/08
09:09 UTC

1

AFIB diagnosed at 29, toxic goiter diagnosed at 33.

Just seeing if anyone has similar experiences. I had palpitations for years and eventually was diagnosed with Afib. Before my diagnosis, a couple years before actually, every time I would get a physical the doctors would ask me what’s wrong with my thyroid. (Like I would know lol.) But they decided it was borderline hyper and just told me to keep an eye on it. Fast forward to 2024 and after 2 heart ablations for the AFIB I had a recurrence. In the ER a doctor decided to check my TSH and found I had subclinical hyperthyroidism. Further tests revealed I had a toxic nodule that was causing the TSH to be low. Cardiologist says treat the thyroid. Endo has given me options to remove half of my thyroid, or do the radioactive pill. He also prescribed 2.5 mg of Methimazole in the mean time. My questions are these. Which treatment plan would be the best option in your opinion? Has any one had AFIB or palpitations that got better or cured with treating the thyroid? And lastly, has Methimazole worked for anyone in treating arrhythmias?

1 Comment
2024/11/08
04:54 UTC

2

thryiod or something ruining my life

hello I’ve posted before and I am here again because I don’t know what else to do. I still have the same symptoms I’ve had for years and I keep getting the results that my thyroid levels are fine, clearly something wrong I had surgery to have half removed because there was cancer but healed fine and now the swelling is back often and I am very anxious physically increased heart rate from it. And it’s even worse because I can’t stop worrying because I don’t know what I’m gonna do about this don’t know what is wrong. I don’t know anyone that has a similar situation. Anyone can help me with advice? I am extremely discouraged and depressed. Thanks.

I have a follow up scan to check what’s going on, but not expecting it to be more cancer if it’s not what else can be happening ?? My neck is swollen a lot of the time u can even see it!

5 Comments
2024/11/08
03:55 UTC

1

Worried

31 female Went to the hospital for unrelated problem . They did a CT scan with contrast and this was on my ‘ report ‘

‘Thyroid gland is normal in size with a hypodense 0.9 cm right sided nodule’

Is this anything to worry about ? I’m a very hypochondriac person and have high anxiety .

1 Comment
2024/11/08
02:00 UTC

1

Does something look off to you all?

Hey y’all!!

New to this sub but I’m struggling postpartum. I’m 4 months out from having a little boy - with a relatively uncomplicated pregnancy. I lost all my baby weight except for 4 lbs, then over the course of 2 months, gained 10 lbs. I eat very well, exercise intensely 4 days a week (1 hr workouts with HIIT, strength training, running, lifting), and rarely indulge anymore. I feel constantly swollen, my legs and arms especially. I have intense brain fog. My sleep isn’t fabulous but that wouldn’t explain the swelling.

Do these levels look off at all to you?! I have no idea what TUP means and no amount of googling is able to tell me (might be an antiquated test?).

Reddit won’t let me upload the other results:

T3 Free - 3.7 T4 Free - 1.19

Any input would be greatly appreciated. My doctor doesn’t seem concerned but I just don’t feel good and want to get to the bottom of it 😩

0 Comments
2024/11/07
21:49 UTC

2

what’s going on with my thyroid

hi there, i have a couple questions and wondering if anyone else has gone through the same thing as me.

-1 year ago i had blood work done that only checked my TSH, it was 3.33 and doctor felt my thyroid and said it felt enlarged but that was that.

  • October 2nd : CT with contrast for unrelated issue(neck pain) didn’t show anything abnormal

-Within the past week: doctor felt my thyroid, says it feels enlarged, orders bloodwork and ultrasound. Bloodwork results: TSH 2.08, T4 1.0. Ultrasound: right lobe 1.4 x 1.8 x 4.6 cm, left lobe 1.3 x 1.8 x 4.5 (no nodules found)

The reason I inquired about possible hypothyroid is because my mom has it and also my thyroid has become enlarged over the past two years. I do feel tightness/soreness and can feel with my own hands that it’s large. But I understand the measurements from the ultrasound are normal. And my bloodwork came back normal. I have had unexplained weight gain, fatigue, dry hair and my bad cholesterol was on the high end. My A1C was in the normal range. The only other abnormal results from my bloodwork was creatinine- 0.98.

Weight loss has also been very difficult. Has anyone else had the same symptoms but normal ultrasound and blood work? Doctor did not give me any further follow up instructions.

0 Comments
2024/11/07
19:10 UTC

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