/r/Psoriasis

Photograph via snooOG

A help forum about all matters relating to psoriasis. Whether it's relating anecdotes for support, giving advice, or looking for help, all posts welcome. Important: This sub does not offer professional medical advice; always see a doctor.

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/r/Psoriasis

53,273 Subscribers

1

Psorasis or Fungal?

Does this look like Psorasis or Fungal? (The order of the pictures is messed up but I’ve numbered them) https://imgur.com/gallery/is-this-psoriasis-fungal-both-XsnD3fq

Feel like the doctors in the UK aren’t sure themselves of what this is, and I would really appreciate any opinions, I’ve been told it’s either psoriasis or fungal.

I’ve attached 15 pictures in the link of what’s happening to my neck, it’s causing me so much grief and I honestly don’t even want to say I’m depressed, but it’s the only thing I can think about, I haven’t left my house in weeks. I have really bad health anxiety but the NHS said they can’t do anything else as I’m not “physically dying”

My cheeks are much better however I do think they’re correlated, my neck is my main concern.

I’m currently using Daktarin 2% anti-fungal but see from the pictures they have prescribed me this and told me to use EVERYTHING altogether, which I think would be very silly, especially mixing a mild steroid with a very potent one?

Doctor told me to use all of this together:

  1. Daktarin 2% is Anti-Fungal cream
  2. Calcipotriol Ointment is Vitamin D Cream
  3. Hydrocortisone 1% is Mild Steroid Cream
  4. Calciptriol WITH Betamethasone is POTENT Steroid Cream

I’m really scared to use steroids as have never used them before, seen a lot about TSW, so I’m currently only using 1. Daktarin 2% Anti-Fungal Cream.

She did advise to use in conjunction with steroids, but the doctors don’t know if it’s psoriasis or fungal, will the steroid not make it worse?

4 Comments
2024/09/19
22:22 UTC

2

Starting Sotyktu!

My dermatologist first suggested it to me in 2023, but I was nervous since it was so new. But now I’m fed up and ready to get rid of psoriasis! I’ll update as it hopefully clears my skin and scalp.

1 Comment
2024/09/19
20:28 UTC

3

Poll: Effectiveness of AIP Diet for Psoriasis—Share Your Protocol, Adherence, and Results

I'm conducting an informal poll to see how effective the Autoimmune Protocol (AIP) diet has been for people with psoriasis. This is for my own and others' informational purposes only. Please respond by entering the number that best describes your experience, and include the following details:

  1. The specific AIP protocol you followed (e.g., what foods you included or avoided)
  2. Whether you followed it strictly or had cheat days
  3. Severity of condition.
  4. How long it took to see results

Options:

  1. Significant improvement
  2. Moderate improvement
  3. Little to no change
  4. Condition worsened

For example, you might say: '1. Significant improvement - Followed AIP with [description] - Strict adherence - Results within 2 months.'

Thanks for sharing your experience and details!

4 Comments
2024/09/19
19:09 UTC

1

Is this the right page?

Hello, I’m sorry if this doesn’t belong on this page but I was just looking for some advice and I thought this would be a good place to start. I had went through a traumatic experience a couple years back and afterwards suffered from various physical ailments one of them being an itchy red scalp similar to acne. I thought that maybe it was stress and a high cortisol level. I had went to the hospital several months ago and was diagnosed with lymphoma and hepatic steatosis. Which I had later learned also cause itchiness and irritation. Maybe it is a combination of these things because this is not something that I have had to deal with previously ever in my life. I hardly had acne as a teenager. I have consistently used off-the-shelf products. Psoriasis ointments and medicated shampoos and nothing works. I have an overall healthy diet, shower often and lightly exercise daily. This has not always been the case though I was severely depressed for around a year and would drink a 2 liter of coke a day and eat a 14” pizza to myself almost everyday. I was at 285 now I am down to 230 because I am making better choices and sick lol but no matter what the red itchy scalp doesn’t go away. I just want to go to the barber again honestly. I would love to be able to grow my hair out again and get a haircut without feeling shame and embarrassment. I am now always so insecure about it.

1 Comment
2024/09/19
18:36 UTC

1

Treating my beard and red patches quickly

Hi everyone,

I have had mild psoriasis for nearly 20 years now with small patches on my body but it mainly affects my scalp, hairline and beard. It doesn't really bother me all that much, I don't treat it outside of regularly moisturising my face and washing my hair with coal tar shampoo once weekly, with a natural sulphate-free shampoo for regular use. It keeps it all well enough in check, however my beard is regularly very flaky and red because I've been told that coal tar shampoo isn't suitable for the face?

Anyway I am going to be best man at my friend's wedding next week and I'm conscious of the red blotchy skin on my hairline and face, and then the flaky and red beard area. I'm going to be in close proximity of people that I don't know that well so I'd like to try to minimize these things as much as possible for the one day at least.

I wonder does anyone have any suggestion for remedies for bringing down the red appearance of the affected parts of my face, and any topical treatments for my beard to reduce the flakiness? Any beard shampoos or balms I've used in the past just seem to aggravate it. Thanks so much.

4 Comments
2024/09/19
18:12 UTC

1

Strep throat

Having a strep throat infection i currently have only scalp psoriasis but i have read that it spreads psoriasis. Feeling worried

11 Comments
2024/09/19
17:46 UTC

1

Fluticasone and terbinafine

Anyone used this lotion ? It keeps my scalp psoriasis clear for 3-4 days when applied once Anyone else using it?

1 Comment
2024/09/19
15:00 UTC

21

This cream fixed my issues everywhere I applied it. I now have completely faded pink marks instead of aggravated, flakey red patches. Solved inverse too. Should I keep applying it even after it's gone?

It's a steroid ointment, but I wasn't expecting it to take effect in just 4 days, I was expecting to have to use it for weeks! I'm just not sure if I should keep applying to keep it at bay or stop and only reapply if it comes back?

33 Comments
2024/09/19
13:41 UTC

2

Light Therapy?

How many sessions did it take for your skin to clear up? Is it normal that there’s more spots now than when i started? I’m about to be 48 sessions in and it cleared up some but the ones that are left seem to be getting bigger and it’s discouraging…

5 Comments
2024/09/19
10:37 UTC

1

Coal tar distillate

Just wanted to give some advice. It's getting hard to find off the shelf/otc coal tar products. Used to be able to buy coal tar soap, not any more. I've also found doctors are avoiding prescriptions or prescribing too low of concentrations. 2% is too low, imo but it seems this is what most doctors are comfortable with prescribing.

I used to be able to buy 20% distillate online, but since the shortage it's impossible to get. So I asked my dermatologist if he could prescribe it and he agreed if the pharmacy could sell it he would prescribe it. Sure enough my pharmacy confirmed they can sell it with a script. I'm in Canada. So with a doctor's support you can get a script and buy in Canada for sure. This may even be possible in other countries.

So, for everyone out there...if you can get a prescription to buy distillate you can make your own coal tar compounds, soaps, and shampoos. I've found that 5 or 6% compound is way more effective than the 2% most doctors prescribe. When I used 2% I had to use it very liberally with minimal results, but at 6% I can use it very sparingly and it's very effective. For soaps and shampoos I use a 10% solution.

Of course I've discussed all this with my dermatologist and have his support. Lucky for me he's more old school like me and I've been seeing him for the last 20 years so he knows I have a lot of knowledge already. This may be more difficult with newer, younger doctors or if you are a new patient. But if you explain how difficult its getting to find soaps and shampoos and you want to make your own, you may get support.

Just be warned that coal tar makes your skin UV sensitive especially using higher concentrations so no UV for at least 24hrs after you apply it. I usually tan 48 hrs after.

Alternatively, you can ask your doctor to prescribe compounding. Most Pharmacy labs can make coal tar lotions, soaps(liquid) and shampoos as long as the carrier is specified ie aveeno lotion or dove liquid soap. Dr Bronner's is a good carrier for soaps and shampoos.

Anyways, hope that helps and gives some people more hope/options

4 Comments
2024/09/19
08:18 UTC

3

Been awhile...what works well for scalp psoriasis plaques these days?

I've had psoriasis, mostly on my scalp since my child was born 16 years ago. I tried topical medications the first few years, and then my dermatologist used kenalog injections in my stubborn scalp plaques when nothing else would work. This worked absolutely amazing for me, and I could even go a few years or more between treatments.

It's been 5 years since my last injection, and my dermatologist is no longer offering this as a treatment option, and I've heard a lot of other dermatologists are taking the same approach. So ...

What are the current medications for scalp psoriasis that work well?

I already anticipate that I'm going to have to pay an arm and a leg for whatever it is, so I'm more interested in hearing about what's effective even if it's pricey. Thank you!

8 Comments
2024/09/19
03:33 UTC

3

Herbal essence shampoo and psoriasis flare up?

I have mild-ish scalp psoriasis now as an adult after suffering with it more severely as a kid and teenager. The one shampoo that always triggered a big flare up was herbal essence shampoo and conditioner. Has anyone else experienced this and by chance have any idea what ingredient may be to blame?

2 Comments
2024/09/19
02:48 UTC

1

Oral medication or Biologics

My psoriasis is at a point where I can qualify for both oral medications or biologics. After reading reviews, it seems that oral medications can be quite inconsistent in terms of effectiveness, and they often come with more side effects compared to biologics. Given this, I'm considering whether it might be wise to skip oral medications altogether, and go straight onto biologics.

I've been offered Sotyktu for the oral medication and believe I can also be eligible for a range of biologics.

I'd love to hear the community's thoughts and experiences on this

5 Comments
2024/09/19
01:16 UTC

10

arthritis and psoriasis

i just found this subreddit while looking up if anyone else deals with psoriasis in their ear lol

i've been trying to ignore my feelings and pretend my psoriasis doesn't effect me. im a woman in college who's going to be 20 in 2 months. my psoriasis makes it impossible for me to feel clean or pretty. i'm always so itchy which either leads to bleeding or flakes on my clothes. it's so embarrassing. thankfully my boyfriend still finds me beautiful. i'm in that minority that develops psoriasis near their privates. looking in the mirror is impossible. i see the psoriasis under my breasts spreading down my stomach and it makes me feel disgusting. every day i'm scared people think i have a contagious rash.
for the arthritis, it just adds that extra layer of "wtf why do i have to deal with this?" it effects my hips, knees, and lower back. my entire body is so stiff when i wake up.
i don't mean to make this post as a "woe is me" type of thing. i really needed to let out my frustrations. i'm curious to see if any of you relate to this.

3 Comments
2024/09/18
22:37 UTC

1

quick general question about clobetasol shampoo; does it thicken hair? or thin it?

i got prescribed clobetasol 0.05% about a month ago for my psoriasis, but i've noticed my hair starting to get really frizzy, when it's never really frizzed up before. it was bad enough i had to brush out a rat's nest, that felt extremely fluffy. and i'm not sure if it means that it's thickening my hair, or thinning it. my hair does generally feel more weighty, and fluffs out now which is a new experience for me.

3 Comments
2024/09/18
22:17 UTC

1

Scalp flare up after stopping medicine

I got given steroid cream for my scalp psoriasis, and luckily it went away but a few weeks later it has flared up again.

Can anyone give tips what to do? Should I try to use the steroid cream again or is that stupid? XD

3 Comments
2024/09/18
21:42 UTC

0

Skyrizi before pregnancy?

This may sound crazy to some but I’m having trouble wrapping my head around going on a biologic before having children. Idk it feels unnatural to me to put my body on an immunosuppressant and then if I get pregnant, is my kid on the medication technically? (I do noooooooot mean to offend anyone by saying that in the slightest) Or do I go off the biologic when pregnant?

My doctor is pretty adamant about me getting on a systemic medication at this point.

I’m not planning on getting pregnant for another 3/4 years.

Any perspective appreciated.

4 Comments
2024/09/18
21:08 UTC

1

Wierd ENT issues alongside psoriasis or PsA

I'm cross posting this, put it in PsA first but there would be more people with psoriasis in here that might be able to relate to either of these. Would appreciate if anyone wants to share their experience with similar as it doesnt seem like my doctor in my small town has many similar patients.

  1. Very annoying small infection or irritation in nostrils which keeps coming back (itchiness and crusting etc., also known as nasal vestibulitis). The ENT doc has given me a few courses of an antibiotic ointment (3 times a day for ten days each time) and every time it seems to get better for a short while and then comes back. Doc seems a bit confused by this and said it might be something to do with my autoimmune condition so wondering if anyone else has had similar and what treatment worked for you. Most things I find online give the impression that just one course of antibiotic ointment should be enough and I've had 3 or 4 already. Maybe being immune compromised from Cosentyx and Lefleunomide/Arava doesn't help, but apart from these two chronic things I'm not constantly getting other infections or illnesses.

  2. Slightly enlarged adenoids and constantly getting mucus stuck in the space between the nose and the mouth. I had this first years ago before I was on any medication for PsA so don't think it's a side effect of medication but it is worse and more constant now. Only first got it in my mid 20s so it's not something since childhood. Apparently enlarged adenoids are quite unusual in an adult, esp. without any allergies or seasonal aspect etc. So again very curious if anyone else with psoriasis has this, as feel like it's probably related to how my immune system isn't functioning the same as a normal person and doc seems a bit puzzled by it. Doc said he could try removing the adenoids but he wasn't sure if it would fix the issue or not.

3 Comments
2024/09/18
21:07 UTC

0

Thanks for the TB Humira 😒

I’ve had psoriasis for quite a few years, gotten worse as I have gotten older (38, F for the record). I’ve been on 2 different injections and they both were great at clearing it (Embrel and Humira)…..except when I went for my labs last November and they flared positive for TB. Imagine how far my jaw dropped with that one. It took me almost a year to get an appointment with infectious disease and now I have to take pills for 9 months to clear up the latent TB that I apparently have. Did a search, apparently Humira can cause this so…that’s like….not great. Anyway. My dermatologist gave me Triamcinolone cream until I can get another biologic approved again, which should be the end of the month. So I used this cream and noticed that it seemed to almost dry out my patches and spots more than what I’ve been using OTC (Revitaderm at Walmart). Honestly I feel when they get dried out it’s more uncomfortable so I’m hesitant to use it again. Has anyone else uses this cream and found the same thing?? Just curious….

13 Comments
2024/09/18
20:51 UTC

2

Dealing with psoriasis - any advice?

So I've been dealing with this annoying skin issue for a while now. It started with a white spot on my stomach and crazy amounts of dandruff. Like, way more than normal.

I finally went to a dermatologist and got diagnosed with psoriasis on my scalp. Apparently, it gets super itchy and out of control every winter/rainy season.

The doc gave me this shampoo and ointment routine. I'm supposed to apply the ointment before bed and wash it off in the morning. I do this about once a week. It helps a bit with the dandruff, but doesn't completely solve the problem.

I'm wondering if anyone has found a better solution? Do I seriously have to keep doing this for the rest of my life?

Oh, and the white spot on my stomach is gone now thanks to some ointments, so that's a win I guess.

Any tips or experiences would be appreciated!

3 Comments
2024/09/18
18:56 UTC

1

Otezala, pro’s vs cons

So I’ve been taking Otezla now for about 6 weeks, although the side effects aren’t as bad as I anticipated, they are there; every day. I don’t enjoy food anymore and find myself constantly trying to rehydrate as most of my toilet visits usually involve diarrhoea, up to 4 times a day.

The thing is, I don’t even think it’s working?

This is one of the smaller patches on my lower leg, and it isn’t looking that great atm, the same with all of my other patches on legs and arms.

I’m thinking about stopping the meds, surly I would see some sort of improvement by now?

Pro’s and cons……

1 Comment
2024/09/18
17:13 UTC

1

Tremfya - Frequent UTIs?

Hello everyone. I have been on Tremfya for a year and four months and it has been doing wonders for me, however one thing I have noticed recently is that I am getting UTIs more often than normal. Within the last six months I’ve had about five UTIs. I follow all proper hygiene protocol when it comes to sexual intercourse, using the bathroom, washing, etc. and I’ve tested negative for STDs every time. They’ve also occurred when I have not had any sexual intercourse. I’m calling my urologist today to make an appointment since I woke up feeling the symptoms this morning. I understand UTIs can be a risk of taking biologics because it affects your immune system.

I was just wondering if anyone has had a similar experience where they’ve seen an increase in UTIs?

3 Comments
2024/09/18
11:58 UTC

132

My life is over

I can't do this anymore. There is no hope and there is no help. America is fucked, the medical industry is fucked, insurance is fuck. I'm completely broken and can't function. Therapists and psychiatric medications are useless. Dermatologists are useless. Every doctor I've ever seen was a major let down and disappointment. I've exhausted all of my options and there's nothing left to do. I'm done

Edit: I already know about all of the suggestions being offered in the comments. I've spent years reading about autoimmune disorders all over the internet. The things being suggested either don't help me, or simply aren't options due to other conflicting conditions. I have genuinely exhausted every single potential possibility that's available to me. The only thing left is degeneration because all this disease has ever done to me is get progressively worse. There's nothing left to do. It's over.

149 Comments
2024/09/18
10:55 UTC

2

Feeling uncomfortable

So for the last two weeks small psoriasis dots have started forming on my chest, back, abdomen and legs. This is new for me and it looks like a bad rash, even though it is small psoriasis spots. I feel a little uncomfortable in gym locker rooms and my date wants to go to the pool today. I feel a little uncomfortable and don’t really know if I still want to go. Does anyone have ideas on how to deal with that uncomfortable feeling.

Sorry if I wasnt able to find the right words

3 Comments
2024/09/18
09:30 UTC

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