Does anyone deal with transient hearing loss? My doctor said I definitely have hearing loss, but she doesn’t exactly know where it starts and stops. She doesn’t want me to have hearing aids as it could affect my remaining hearing. Does anyone use any other technology to help them hear?? Thanks.

I missed every single shift this week at work. I posted before about how I only work PT and all of my attacks conveniently happened right before work this week. Obviously can’t find coverage with such short notice. I feel so incredibly guilty making things harder for my team. I feel like I should just quit at this point.

I’m so angry at my body. I feel like Meniere’s is controlling me, because it literally does in many ways. I can’t do some many things that I used to do. I love my job and felt so proud and happy that I could make my own money and that Meniere’s wasn’t impacting my job…but it was too good to be true. Nearly all my hope is gone at this point. I’m only 24.

And yes I’m doing everything I can to prevent attacks, but I think this is just the natural course of the disease. On multiple meds, get steroid injections, drink a lot of water, vacuum and dust, etc. Only “rescue” med I have is Dramamine and zofran — I only take zofran since Dramamine doesn’t help at all.

I'm probably better at gaslighting myself than my own doctors are, so I need to know if this is something in my head or not.

I get vertigo pretty randomly, but I've noticed when I do get it, it happens several times a day rather than scattered throughout the entire week. For instance I could get 3+ attacks on a Friday, and then the next few days I get none until it decides to flare up again.

I was diagnosed with Ménière’s disease spent four days in the hospital. The doctor at the hospital told me to start taking meclizine three times a day to prevent the attacks. My primary care doctor told me not to take them at all that they will destroy my liver or kidneys. I started taking a water pill and lowered my blood pressure. I take blood pressure medication so I had to stop the water pill. Is anyone out there on a medication that they take daily to prevent the attacks? Some of my attacks are so severe I just don’t wanna live anymore. Does anyone else feel that way?

Anyone get MD attack or tinnitus due to noise? Like a car ride, a meeting with more people, a restaurant- every day stuff? Even more so hearing aids distortion or electronic sounds like your phone, and even your own voice?

This is honestly the worst trigger I can imagine. My life has been centered around music ( but nothing damaging!)

I often have no reaction but when tinnitus is back, it gets very reactive. Years ago when I first got MD noise was not at all a factor

Has anyone compare using mono vs stereo headset for work, using Webex and MS-Teams?

I have MD in my right ear, and use a stereo headset(Jabra 40) , and sometimes after a long days of calls , I feel off - spacy and dizzy. Thought it may be related to having both ears covered all day. Would using a mono headset lessen that feeling? Anyone experimented with this? By using the mono headset on the non-MD ear, I would not miss much sound, as I have very little hearing left with the ear. FYI - work restriction, must use a wired headset, so no wireless earpods.

Hello! Went to the GP, and complained about whooshing in my left ear, and whenever that happens I get horrible vertigo and nausea she brought up this disease

This ear pain is only in my left ear and feels and sounds like spasms, it happens really but Co.es and goes for about a week and drives me nuts!! I've been to an ENT and she ruled out anything funky? - Just kinda looking for similar things?

Many thanks sorry this is so long!

I just feel the need to share this because this situation aggravated me so much, so for the past year I've been trying to get a referral from my doctor to see an ENT after the hospital suggested my symptoms look like Menieres. Which I agree, after researching this condition i have pretty much every single symptoms they list but my doctor (Canadian healthcare) is not very knowledgeable about vertigo and is convinced it's a mental issue but referred me to a physiotherapist just to humor me, but the exercises they taught me don't do much against my attacks. So I recently hit a breaking point and decided to seek help at a new clinic to try and get an ENT referral and they proceeded to tell me that my symptoms of tinnitus, hearing loss, and head spinning vertigo, were signs pointing AGAINST menieres. Does anyone know what to do in this situation?? I just want a diagnosis but everyone is treating me like I'm crazy

So my partner asked me a couple of days ago if I would want to go to Italy and I can’t say no so I said yes 😳 (hoping to get engaged soon or over the summer)

This is in the summer so I have plenty of time to prepare! I want the menieres under control and I want to be prepared for a long flight and all of that.

Drop any travel tips below! What happens if I get sick in another country! I’m so worried but time to start preparing.

Having meniere's for more than a decade but one thing I've noticed for the past few years is that my symptoms are aggravated if sleep facing my affected side for a few hours. I noticed this once I started writing down everything, this was common in all my attacks. Any idea? Or similar experience?

Diagnosed with MD about 15 yrs ago; aside from ongoing ear fullness and tinnitus, it wasn’t too challenging - I’d get vertigo maybe once every 2 yrs. Things changed suddenly - I’ve had 8 debilitating vertigo attacks in the past 4 weeks, and started getting vestibular migraines for the first time. (Had a brain MRI yesterday and awaiting assessment from my ENT and neurologist.)

My ENT prescribed prescription strength ibuprofen (600mg/tablet), which isn’t cutting it - migraines last for 6 hrs or longer and it just sucks. For those with vestibular migraines, what prescription meds do you find most effective?

Anyone else get crazy vertigo spells while pregnant? I’m still in my first trimester (like legit barely pregnant) and I’ve been having spurts of dizziness. I’ve had my Meniere’s under control for about a year now and now all of the sudden I’ve had to go back to laying down because I’m so dizzy. I’m slightly terrified that it’s going to get worse the further I go into this pregnancy.

Well, my long journey of issues has landed me here. Let me start off by saying:

I (29m) began dealing with tinnitus about 3 years ago. I'm a road construction worker who is around heavy equiptment all day, so I thought it was normal. Started wearing proper ppe and it seemed to keep it at bay.

In January of 2023 I started having serious panic attacks. I've been to the ER a total of 27 times since then. I've been checked out by virtually every specialist that I can find. All tests point to me being a healthy (albeit, slightly overweight) man.

Now, to the reason I'm posting in this sub reddit.

About 3 weeks ago I had a crazy experience while sitting on the toilet. It felt like my body was doing twisty somersaults while sitting down. I dropped to all fours to steady myself, while yelling out to my wife to call 911 because i thought i was having a stroke. She opened the door and looked at me to tell me that I was okay (she does this when she believes I'm having a panic attack)

The thing is, when she said that, the feeling completely went away. I stood up, jumped in the shower amd continued my day.

Fast forward to today. I have been feeling "off" for a few days. Almost describe it as a giddiness. Almost like being dizzy, without actually feeling dizzy. Then out of nowhere while at work, I had another vertigo attack. I had to drop to all 4s to steady myself. About 20 seconds later I was able to stand up. I still felt dizzy (about a 3 out of 10) for the next 30 minutes or so.

I'm not sure what to do. I have had multiple ct brain scans, regular neurology appts. Even an mri in April of 2023. I have an mri scheduled on Monday of next week, so hopefully that will remain clear. I also have a follow up with my audiologist and ent in December.

The real kicker is I have SEVERE health anxiety. It's been a thorn in my side since January of 2023. So part of me wants to believe this is a symptom of anxiety, but the other part tells me that I'm dying.

Sorry to blast you all with this wall of text, just wondering if anyone else has gone through anything like this.

Sincerely, A scared construction worker.

After 4 months without a vertigo attack and 3 1/2 of no real symptoms (apart from the long-chronic tinnitus) I had an attack on Monday morning after a week of low tone hearing loss in my right ear, distortion, fatigue etc. The attack was short--about 3 hours, maybe because of early intervention with meclazine and ondansetron. But the afternoon, I felt great. My ears were clear. Same the following day. Today my right ear feels off again, fatigue, etc. So I am getting religion again about diet. The thing is, over the summer I didn't keep a very low sodium diet. I have cut out the real offenders like potato or tortilla chips. But I haven't been rationing my sodium or keeping it consciously to a gram or two a day. I eat pretty well anyway--very little preprepared food. But not consciously low sodium. Based on my experience over the summer, I had concluded that sodium was not a trigger for me (unlike dehydration and stress). Am I kidding myself? Are any of you not triggered by sodium?

And a final question. Is it true that salt is only 40% sodium, so that a gram of salt is only .4 g of sodium?

I play an mmorpg and I have been in our guild for awhile. This girl has told us all she has Meniere's disease. Which from the amount of medical experience I've had has always had mostly to do with the ear, fluid in it, dizziness. She was dating one of the members who lives on the other side of the world and is younger then her.

She would tell everyone that her symptoms where so bad that she would pass out and she would forget who people were. She would say I don't know who you are but she would be on the game and do everything that she would normally do. And some of the things she'd be doing would not be simple tasks. Literally the only thing that would be different is she would be telling people she has no idea who they are. Then in a random amount of time she would magically remember everything. The amount of time from what others have said is different depending on how much others pay attention to her. A few would stay up with her for long periods of time to make sure she'd be ok with her.

I asked her if she had tried any of the treatment options because they could help. She avoided the subject. I was told by others that she always avoids that question. She would ghost her boyfriend for days sometime, worrying him sick if she was ok. But then when she would come back on she would act like it was no big deal. Her behavior screamed I love attention, but she would never admit it.

One day after some annoyance due to her behavior, I met up with someone who had known her in the past. They gave proof that she was lying about everything. She would ha e people sitting up with her worrying, while she was actually sleeping. She would only forget certain people's names and it would usually be who ever gave her more attention. She would lie and manipulate. This information and more was given to her boyfriend. He confronted her about it in a discord message. She didn't know who he was. Said she never met him or heard of him in her life. It hurt him.

I confronted her the other day for what she had done. She tried to play it off that I don't know what her medical records say so everyone doesn't know what they're talking about with my memory. She still denies it.

Sorry this was so long. I want to console my friend who was hurt. I know more about the ear part of the disease. I I have not heard much if any information about memory issues with it. So I'm wondering based off what I gave. Does it sound like she has memory issues? Or is she completely playing everyone?

My right ear is the bad ear and I've been using headphones to listen to vestibular healing "music" when I feel an episode coming on. I don't know if it really helps but I think it does...

Regardless, my left ear, which is not affected (✊️🪵) is getting blasted with loud music.

I can't find anything and I even searched here. Does anyone know of wireless headphones that the balance can be adjusted?

Thanks!

Finally saw a good otolaryngologist today. History of Eustacian tube dysfunction until 2 years ago the following began.

my symptoms are intermittent ear fullness and pressure with moderate pain, permanent tinnitus that is variable day to day but mostly tolerable, some dizziness while sitting but mainly balance issues and tilting feeling when walking or bending, dizziness and fullness triggered by loud sounds or low frequency sounds. brain fog and fatigue (possibly just due to the mental distress of symptoms), fortunately no hearing loss beyond some slight dips that are not uncommon for my age occasionally I get muffled for a few hours or days when the pressure feeling is on the higher end.

He has ordered an MRI with and without contrast, wants me to try Nortryptylin to rule out vestibular migraines, possibly see rheumatology for blood tests to rule out autoimmune causes.

I guess I'm wondering what you all more experienced people think about this. Will the MRI show if I have hydrops? is that something you have all done? I'm terrified the loudness of the machine with my extreme sound sensitivity and also scared of reacting to the contrast as I tend to get side effects easily from meds.

Hey! Just had my three month check in after antivirals my hearing improved in my left ear ! I am at a normal hearing range (it was before but even improved within that range) . I haven’t had vertigo since starting so it’s a win win situation.

The change he made this time is he wanted me to start magnesium twice a day. He said 500 mg twice a day. So I am going to start this shortly.

I wanted to share the magnesium on here in case anyone else wanted to talk to their doctor about it. I REALLY trust my doctor. He is the man. So I will share his wealth of knowledge which at this point is magnesium and antivirals.

Happy Halloween also to those who celebrate. I am dressing up as a female buzz lightyear.

Does anyone need higher dosage like 48mg for it to work? I have been taking it for months and looks like my tinnitus only subsides a bit after taking it then it comes back in a few hours? Looks like I actually need to up the dosage. But I was taking half of what was recommended admittedly

Have any of you that are hard of hearing learned sign language to cope with that limitation? Do you have any suggestions for how to learn? I still have good hearing in one ear, but I keep thinking it might be a good idea to learn if I should ever need it.

Today is my 5th PT session and each time I go the environment gets crazier…. Today Im working on looking back and forth at a letter on 2 stickies as Im walking and struggling something terrible and this woman WHO IS NOT EVEN A PATIENT keeps walking in front of me as she is talking on her freaking cellphone … Which screws me up … I said to one of the PTs it would be nice if non patients didn’t walk in front of me “She did a low Laugh” and then they had a patient who had her 6 month old baby who was crying and then she put him in his car seat right where Im trying to walk …. Every time I go non-patients are walking around on the PT floor ….Im ready to just leave.

Hi all,

I've been diagnosed with MD for about 2 years. At first the dizziness was terrible, but now for some reason I have not been feeling dizzy/vertigo very often - what a miracle! However, I am still struggling with hearing loss in my left ear.

I am thinking about going in for an evaluation for hearing aids. I'm curious if anyone else has gotten them. I'm worried that because my hearing does tend to fluctuate with the MD, that getting hearing aids adjusted right would be tricky. I also feel silly, because I know logically that there's no reason at all to be embarrassed about getting an accessibility device for my disability - somehow, I just feel really embarrassed! I feel like people will make fun of me for needing a hearing aid, which is supposed to be just something for old people, while I'm only 30 yo. And I also am afraid people will think that it's somehow my "fault", like that I listened to too much rock music or talked too loud and caused my own hearing damage - even though I really believe that's not true, it's just my disease, which I didn't choose to have! I'm also really worried about the hearing aid being uncomfortable, and also how it would work with wearing headphones, which I do a lot at my job.

Does anyone have any advice?

I work part-time like 2-3 days a week. Of course one of the few days I work I got vertigo the a few hours before and had to call out. It lasted 3 hours and now I’m able to sit up but so nauseas and sickly. I hate that this disease makes me unreliable. Like at least if someone is feeling sick they can try to get coverage the night before, but my attacks come on so suddenly so I don’t have time to find coverage. I wanted to be full-time but I doubt they will give me that position since I can’t even come in to all my part-time shifts.😔 and now I’m gonna have to get lectured about it.

I feel guilty for not going in even though it is out of my control. I feel so defeated and hopeless.

Anyone think it's possible I could have gotten menieres after my wisdom teeth surgery my symptoms started 2 days after my surgery and the dentist who operated on me was infamous for having a heavy set hand

So I am bilateral MD and have been dealing with fluctuating hearing for last 6 months. I was trying all natural means but it was still not getting me 100% back to where I was. Rather last 2 months it’s been bad. More bad days than good days. Finally I gave in and talked to my ENT specialist who did my hearing test and that day due to panic attack my hearing was the worst. He said let’s start with 30 mg a day / 5 day prednisone course.

Day 1: I already feel close to my 100% hearing strength pre-6 month when this time it started.

Question to all the fellow warriors - how can we get the same outcome naturally? I know steroids have a temporary effect on our body And we cannot be on it forever.

I don’t know why I’d never know it before but bright lights can trigger Menieres spells? I always noticed light made my dizziness worse but i do believe bright lights have triggered the run of spells I had last week.

I bought sunglasses (never been much of a sunglasses guy before, they don’t match my face idk lol) but I’m curious if anyone has purchase indoor sun glasses with weaker tent or ones that block certain colors and if said glasses help you? I’m still feeling off since my last spell Thursday morning and bright lights make me feel worse. And a problem with that is the lights at work are very bright.

Any of you have sleep apnea and MD and did treating it help?