/r/kyphosis

Photograph via snooOG

This subreddit is dedicated to people with structural kyphosis, or Scheuermann's disease. Scheuermann's is a skeletal disorder characterized by an uneven growth in the vertebrae of the spine. This uneven growth wedges the vertebrae and can lead to an excessive curvature of the spine.

The purpose of this subreddit is to discuss treatment options and share valuable information.

Disclaimer: None of the content on this subreddit should be regarded as medical advice. Please consult a doctor.

This page is no longer updated.

Please visit the sidebar ("About" section on mobile) for more information.

/r/kyphosis

3,596 Subscribers

1

Scoliosis

Anyone who has scoliosis knows q centre or conference about scoliosis journeys and kyphosis this would be so cool and in kildare or dublin be ok i guse

0 Comments
2024/12/01
20:51 UTC

4

My kyphosis results

My doctors appointment isnt until next week, what does this mean basically and is my curve 59 degrees?

2 Comments
2024/12/01
09:23 UTC

3

Sleeping with sheuermanns

Is there even any comfortable sleeping position for people with sheuermanns kyphosis? Nothing feels comfortable for me and its affecting my sleep quality

13 Comments
2024/11/30
19:49 UTC

1

Chirpractor

For anyone suffering from sheuermanns kyphosis, have u tried going to a chiropractor to help with stiffness/pain? And does it work?

2 Comments
2024/11/30
19:10 UTC

6

How to workout and maybe build muscle with scheuermann's

I don't mean deadlifting or becoming a body builder but simply keeping my weight low and my muscles strong

23 Comments
2024/11/28
13:36 UTC

6

I didn't realise how much pain I was in untill someone massaged by back

It felt like heaven, I wish it never stopped. I just wanna feel how non abnormal back feels like.

5 Comments
2024/11/28
11:56 UTC

3

Can a spine be straightened further with another operation?

I had a revision in 2022 and I lost correction and aside from being depressed about how noticeable it still is, I get sore from standing for long periods of time, especially in my lower back probably because of the compensation.

9 Comments
2024/11/24
07:50 UTC

1

ponte osteotomy (PCO)

has anyone looked into the ponte osteotomy surgery? It’s not a fusion, so you won’t lose as much mobility…thoughts?

1 Comment
2024/11/24
04:08 UTC

5

Anyone with cervical kyphosis do the surgery?

Hi everyone,

I’m 26 and have had cervical kyphosis for a while. When I was about 16, I had an ortho surgeon tell me to just bear with the pain until I couldn’t and then get the surgery(fusion), and that ~15 years later I’d have to get another fusion after the first.

Now in 2024, my curvature is now at 52 degrees, and it’s affecting my sleep and my nerves. Im more injury prone at the gym as well. I have an appointment coming up with another ortho specialist soon.

I’m aware cervical kyphosis is rare, but I’m curious if anyone here has it and has had any form of surgery.

If so, which surgery? What was the result? Pain? Neck stiffness?

I’d appreciate any and all input.

1 Comment
2024/11/21
17:56 UTC

5

People who have had the surgery, what is the pain like? Not just the level of pain but also the "way" it feels

5 Comments
2024/11/21
16:14 UTC

7

I’m extremely jealous of people that don’t need to strength train in their lives

No matter how I try to perceive strength training in my mind I just can’t shake this thought I have that I utterly hate doing it everyday. I always dread the days I have to do my routine where I’m doing resistance training because it hurts like hell doing it and just overall doesn’t make me feel good. I feel like having Scheuermann’s is such a curse because everyone always gives advice to do all these exercises everyday, and it’s like I do them, don’t get relief, feel terrible doing them, and am expected to do them my whole life? Yeah no, that’s not my idea of living. I have actually noticed a severe decline in my breathing overall ever since I started physical therapy and incorporating strength training, I always feel like my heart’s racing and I’m gasping for breath while doing something particularly vigorous. I noticed I’m frequently manually breathing throughout the day through my mouth, I’m trying to correct it but don’t know how as it’s so hard to focus on not manually breathing and through my nose no less. I’m going through the process of getting Spinal fusion in a few months and I’m seriously hoping it provides me the relief I so desperately deserve, and I hope to god I don’t have to keep doing the same mundane resistance training afterwards that I hate.

26 Comments
2024/11/20
01:48 UTC

6

Anyone else wearing a CTLSO brace?

I was wondering if anyone out there is/was wearing a CTLSO back brace, e.g. a brace with a neck support. Would love to exchange some experience :)

1 Comment
2024/11/18
21:00 UTC

2

How much does my fusion weigh?

I had a full spinal fusion with titanium rods and screws about 10 years ago. For years my mom has told me that the surgery added considerable weight but I’m not really sure. Any info will help.

3 Comments
2024/11/17
23:24 UTC

5

how was your experience with surgery?

5 Comments
2024/11/17
16:35 UTC

1

does someone wanna be a accountability partner

.

0 Comments
2024/11/17
15:14 UTC

6

Pulled out on day of surgery.

6am this morning I arrived at hospital .I was told I would be given something to calm and relax me before going to be put to sleep . This didn’t happen untill 10 minutes before they put me on the trolley , I freaked out and left , I know I need the surgery badly but there was no stopping me I think I was having a panic attack. I went back around 20 minutes after and agreed for the surgery but everything couldn’t get sanitised again and the dates will have to move . I don’t have a life anymore because of the pain. This isn’t the first time I’ve ran out on the day of. I don’t know how many chances I’ll get . I just can’t put my finger on what my fear is exactly. I’m scared , that’s normal it’s a big operation and a lot of recovery but I can’t put my finger on what’s stopping me on changing my life . I had the best surgeon in the country for this , he often fixes the work of other surgeons but I’m petrified. I hope they’ll agree to do it again and I’ll have new dates soon . Can anyone that’s had it done give me some words of there experience and advice . I have a almost 90degree curve .

4 Comments
2024/11/16
16:31 UTC

2

Yoga/physio and foam rolling making pain worse

Does anyone find that yoga, physio and foam rolling makes the mid back pain worse and spasms? I like feeling productive by doing exercises but most of the time I feel worse after

1 Comment
2024/11/16
04:08 UTC

2

Does anyone else’s spine make cracking or popping noises post fusion?

I had a T2-L2 fusion revision two years ago because my initial fusion rods broke. Sometimes when I lay on my back, there is sometimes a cracking or popping sound. Is this normal? It usually happens after a long period of standing. Has anybody else experienced this? I’ve reached out to my doctor but haven’t heard back yet.

2 Comments
2024/11/16
02:24 UTC

2

Can I fix my kyphosis curve

I’ve had kyphosis since sophomore year i recently just graduated and it got worse over the years I was just wondering can I fix or is it too late?

17 Comments
2024/11/15
23:16 UTC

1

Kyphosis

My 12 years old son has a Kyphosis with 19.5 degree and Scoliosis with 3.5 degree. we are still waiting for a specialist appointment which usually takes at least 5 months. The GP said it is 90 % Scheuerman disease but she cannot not confirm. I am still hoping is wrong and it is a postural thing. How can I know? and what can I do to preveny this worsen and is there a way to improve it as he is still young?

5 Comments
2024/11/15
14:26 UTC

1

Kyphosis cause lordosis/wedge fracture?

I have kyphosis in my upper back (don’t know degree of curvature but I’m certain it’s gotten worse over the last few years), and was in PT for awhile but had to stop due to insurance issues/moving. I do get occasional back pain, most of which is dull but every once and awhile I’ll get a sharp stabbing pain that goes away pretty quickly. I’ll fully admit that I don’t do enough of the exercises I should for someone who has kyphosis. I run a lot, but that’s mostly it.

I’ve been sick lately and went to urgent care yesterday day where they did a chest X-ray to rule out pneumonia. The chest X-ray showed “Age-indeterminate anterior wedge compression fracture deformity is seen involving T11, T12 and L1.”

My understanding is that the wedge compression fracture deformity is in my lower back, not where I know I have kyphosis. So I think my questions are:

  1. Can kyphosis in the upper part of your back potentially cause this type of thing lower in your back?
  2. What is the common way this is addressed? Previously I was told that I should do PT for kyphosis and if it got worse and caused pain then there’d be a conversation about spinal fusion. I’m now wondering if that surgery conversation is more likely if there’s something happening elsewhere in my back?

Thanks!

6 Comments
2024/11/14
17:26 UTC

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