Urgent Call for a Kidney Donor

Kelvin Shankle desperately needs a kidney transplant! After receiving a transplant in 2020 through the kidney swap program, his new kidney unfortunately failed due to FSGS collapsing variant. Back on dialysis since January 2023, we're racing against time as dialysis isn't a cure.

The Challenge

We're on transplant waiting lists in two cities, but the wait time in Houston is 8 long years for his blood type.

A Selfless Act

If you have it in your heart to save a life, consider getting tested to see if you're a match! We'd be forever grateful.

Take Action

Visit Https://www.nkr.org/KJG734 for information on becoming Kelvin's donor.

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Asking as the parent of a child with kidney problems who I worry doesn’t go enough at school.

I’m a 31M and found out this year I was born with only one kidney. Also found out I have a small kidney stone in it. Any advice on lifestyle do’s and don’ts would be much appreciated to take care of it. What are some things I should be doing for a healthy kidney and things to avoid, thanks!

Sorry in advance for the long message. Backstory. I’ll keep it as short as possible. She was born with hydronephrosis - was told it should sort itself out but then after a bunch of UTIs during covid and when we could finally get into a doctor turns out her kidney was very damaged and lost most function. After a stent and a surgery to move a vessel out of the way that they thought was squeezing her ureter the doctor is confident the issue is fixed and she’s on a low dose antibiotic now to prevent infection and I’m back to basically yearly appointments. The current issue is that 1) she just admitted she’s scared to go to the bathroom at school so basically since September has been only going once a day at school. My question here is how much should I be freaking out over this? Obviously will be speaking to her teacher about helping her along but I’m worried damage has been done …

Then overall. She doesn’t ever get bloodwork, or other tests besides ultrasound …. I don’t know her eGFR, etc. Is this normal? She is followed at a children’s hospital by a urologist but I don’t really feel he’s doing enough. I want to advocate more for her but I feel there is so much I don’t know. Like diet and just general things. If anything could give me advice on what testing she should be getting , should I get a nutritionist for her? What should I be asking ? Or am I over reacting ? Thank you so much in advance. I have a doctor and will be taking his advice this is just to help inform me on how much the doctor should be doing or if this is standard care …. I think I’m freaked out bc I went from “she will be fine” to “one kidney is basically non functioning”

Hello everyone. New to this. Painful urination, small amounts of urine, Back pain, bladder pain/spasms since Sunday. Are these kidney stones? Any insight is helpful.

These deposits were rock hard and there were a few- grainy like.

Sorry for the pic- I tried my best. TIA!!!!!

Any one here born with one kidney is 50-60 Year

I have no idea why my urologist orders a abdominal CT finds non blocking kidney stones,

I then proceed to pass some stones and I take them to the urologist they proceed to tell me they discarded my samples and said they won’t make a work order to analyze the kidney stone samples and didn’t have any work orders prior so threw away my stone samples.

Proceeds to tell me they want me to do cystoscopy but not to remove kidney stones but to examine the bladder because I had a UTI. (Haven’t had a single issue in urine since my UTI of e faeclis and doing fine with peeing after treatment)

I did develop Epididymitis and got that treated with 14 days of doxycycline + 4 days z pack + rocephin shot from a hospital visit. Recovery from this as well and doing well, had some white discharge in urine but after ejaculation recently I haven’t had discharge in pee since I ejaculated, which I can now only think excess semen and inflammation is what caused all of that.

At this point with the urologist: like is this even legal of the urologist to do or do I file a medical grievance?

this sounds like the doctor has their own personal agenda to keep me either sick or cause a new issue.

this cystoscopy has no intention of removing stones that I just passed tiny fragments of and just examine my bladder which at this point if I cleared a UTI over a month ago what’s the end goal at this point by refusing to test kidney stone samples and throwing them away?

So for at least 7 years and through 3 primary care physicians, my creatinine has shown elevated results, but just barely. As I know now, a high creatinine level is a contributor to a lower eGFR test value. My last PCP, which I recently left for a variety of reasons, ordered expensive ultrasounds for indication of chronic kidney disease.

I'm 56, and exercise a lot. I mean a lot. My blood pressure is fantastic and I don't have any other indications of CKD. But I've been nervous about it ever since.

Though this group, I learned about the Cystatin A test, and asked my new PCP to order that test for me. That test came back this morning well within range and it took my eGFR results from low 60's to 100. This has alleviated a lot of stress for me, so thanks to the knowledge from this reddit, I am feeling much better about my kidney function.

i noticed a little while back that when i pee, theres always one “cloud” in it if that makes any sense. like, my pee isnt cloudy, but there is like a small cloud floating in my pee. the best analogy i can make would be like if someone hit a vape inside my pee. i know that makes little to to sense. its almost whispy

i know i sound actually psycho lol, but i have no clue how else to describe it. for context, if it matter, i recently had protein in my pee due to gestational hypertension before i had my son 8 weeks ago. still struggling somewhat with blood pressure, but not bad enough to even need to be medicated according to my OB.

Thanks for any insight!

Hi, I’ve recently started having very bad urges to pee 24/7 and when i did pee it was a lot and very clear. For a second I thought I had UTI but i’ve got no burning feeling when peeing and it’s clear? I don’t drink enough water for it to be clear so that can’t be UTI can it? And if not what is it?

I (32 age) lost my left kidney due to upj obstruction (by birth) but Thanks to God my right kidney is normal and all the labs like bun, creatinine and electrolytes. I was advised to limit my salt and red meat intake. Can I eat pizza 2 slices (approx 1200 mg sodium) or Big mac/Zinger kfc approx (1000 mg sodium) with sprite zero 250 ml once a week? I usually consume homemade food with minimal salt

Just received my lab results, and my BUN/Creatinine Ratio is 7 with a reference interval of 9-20, so it was flagged as low, I'm a 32 year old male. My individual bun is 7 which was normal, and my individual creatinine level is 1.03. Should I be concerned? The research l've done stated that low bun/creatinine ratio indicates kidney or liver issues.

Hi All, Had a kidney infection over a month ago. Actue Pyelo after a UTI. Took IV antibiotics for 10 days as it was ESBL E Coli.

During that time, had the full shbang, fever chills extreme pain in flank and frequent uritnation. I randomly get flank pain in my right kidney which is where my pyelo was. But nothing other than that.I was worried for this but my urinalysis came back fully clean, No WBC no Bacteria.. Do you think it could be scarring? Any other thoughts?

PS: it wasn’t treated properly for about a week and a half because of wrong antibiotics

I had a urine analysis yesterday, results today said abnormal levels of ketones and protein. I’ve had blood work recently and everything seems normal. Have hard particles in urine for 2 weeks from when I noticed it. I’m scared. I struggle with recurrent yeast infections so maybe it’s just that? I’m calling my Dr again tomorrow. I was on steroids for a few days a few weeks ago. Thank you for advice

Summary:

Male 26, Did treatment for epididymitis finished course of 14 days doxycycline + 4 days of zpack+ a rocephin shot, feel normal and close to normal but I have white discharge in urine (it has done yellow wax/pus that floats as well but very small). All my urine comes back normal white cells normal, no std/sti.

Went to a 2nd opinion urologist and I’m questioning the need for a cystoscopy as I don’t think it’s necessary based on my current symptoms. I’m feeling much better after my recent treatment, with no significant pain or issues, and I don’t believe I have kidney stones. I’m open to a CT scan to make sure there’s nothing serious going on, but I’m hesitant about the cystoscopy and would appreciate input on whether it’s necessary in my situation. The urologist even handled my testicle and it didn’t have major irritation, not sure what to look for in this recovery period if I am getting better or worse.

Background:

•	Initial Symptoms: I had epididymitis and experienced upper and lower back discomfort while on antibiotics. Upper discomfort occurred a lot while taking my Zpack. After completing the treatment, I feel much better and can sit comfortably without significant discomfort in the upper or lower part.

•	Urologist Visit: I recently saw a 2nd urologist for a second opinion and was diagnosed with potential kidney stones. Which I really doubt because I haven’t experienced any typical symptoms like side pain, blood in my urine, or painful urination even with the e faecalis UTI I treated properly with nitrofurotoin. Just a discharge in urine mainly white and I have seen very little yellow pus/wax. Each time it has happened it was less and less discharge in urine.

•	Current Concern: my 2nd opinion urologist suggested a cystoscopy, but I’m not sure it’s necessary. I’m willing to do a CT scan to rule out anything serious, but I don’t see the need for a scope unless there’s a strong reason. I’m unsure how a cystoscopy would provide more information about an infection or my symptoms, given my current improvement.

Any advice on whether a cystoscopy is needed in this case? If I am having discharge but no major symptoms of pain in the Epididymitis, is this recovery or an ongoing infection.

Will a cystoscopy even do anything?

Hello everyone!

One of my kidneys was removed due to a born related disease, the thing is my kidney was huge and it occupied a big space inside, resulting in pushing the internal organs and the column.

Im on my 11th recovery day and I have this weird sensation, when I lay on my side (not the surgery one) everything inside moves freely, like a grocery bag in the trunk of a car and I don't know if this is me being crazy or if I should worry about something.

Thank you in advance, sorry for my english.

Around september i found trace proteins in urinalysis, urologists didint find it concerning but I kept looking for second opinions with two general doctors.

My first uACR i did tested a week ago for 10.2mg/g.

My 24/hr urine tested the same weekend for 105mg/day

It seems i am spilling trace amounts of protein as a result of kidney injury underwent for a year from using a topical finasteride formulation that was unregulated from minoxidilmax that may have dealt dealt silent damage to the kidneys, after septembers urinalysis results i stopped the cream and underwent strict changes to diet, reducing protein salt potassium caffeine intake and the like.

Bought at home dipstick tests and in the morning where the urine is concentrated and i still see trace protein.

My appointment with the nephrologist is finally tomorrow, what are the chances i may have induced myself stage 1 CKD, even though its mostly characterized by consistent uACR of 30 or more. Most doctors suspect it will normalize over time but I am still concerned this damage may be permanent and will gradually progress even if I try to slow it down.

Im 28 aged caucasian male with eGFR of 107 (Creainine 0.97mg/dL, BUN 19.4mg/dL). 92 blood glucose and most recent BP was 120/86.

I’m on day 6 of a kidney infection and I still feel… bad. Thought I had food poisoning because I was vomiting up everything- food, water, air-, turned into crazy intense flank pain. Went to my pcp and he said I have a kidney infection due to pee sample. Prescribed me sulfs and zofran, which I could not keep down for the life of me. After vomiting up the meds, I went to the hospital. Said I’m dehydrated but they can’t give me IV due to the shortage from the hurricane. Gave me antibiotics in IV and bottom of the barrel pain meds (I felt like I was gonna die at this point) to which my body had no response to, then gave me morphine and some strong anti nausea.

That was 3 days ago. No kidney stones or anything. Been able to keep down my antibiotics. My back/flank/kidneys will just randomly hurt really fucking bad for like 25 mins every couple of hours. I’ve been abusing the extra strength ibuprofen they prescribed me (which does absolutely nothing anyways) and am still not feeling great.

When does it get better?????

Yesterday, I found out that I was born with only one kidney. My main concern before making an appointment with the nephrologist is how much and what kind of exercise I should be doing, as I’ve heard that having just one kidney might limit physical activity. Does anyone have more information

There have been three times in the past few days where my pee is out of nowhere a dark orange although I drink enough water a day, all the other times it’s clear yellow, can this happen with kidney disease or will every pee be orange?

Hi everyone, I have been having weird symptoms for about 4-7 days now and am wondering if anyone else had this when they had a kidney infection. My symptoms are back pain in my mid back, peeing a lot, stomach pain to the side of my bellybutton, and a fever of 99.6°F just today, I have also felt pretty run down this week. I do have to mention that when I had some of these symptoms prior, I was diagnosed with endometriosis. I also have been working at my desk a lot and thought the back pain might be related to that. I just don’t want to go to the Dr if it’s nothing. Thanks! ETA: I also have been having weird shooting pain from my groin down my leg

Stricture in my right kidney

In 2022 I was diagnose with a stricture in my right kidney (where the tube meets the kidney almost). I did an ultrasound and renal scan that same year the doctors didn’t recommend surgery, they were worried about it making things worse rather than fixing it. Said it was very minor and to keep monitoring it. This stricture was causing hydronephrosis in my right kidney.

Fast forward 2024 had labs done in June that showed elevated liver enzymes, all urine levels were in good condition. I was worried about a fatty liver so I went for my ultrasound today. Everything looked fine except some fluid back up in my right kidney. I had to drive 2hrs to the ultrasound so I had to pee badly before I did the ultrasound. Earlier this year before my labs I was worried about my kidney again and I did a CT scan with contrast at a urologist, he also didn’t recommend surgery as it was very minor.

The backup fluid in my ultrasound from today has me worried.. anyone dealing with this? I am trying to prevent any future damage but feel like doctors keep brushing it off. They believe I was born with the stricture. I have had a kidney stone but it was in the other kidney. And was taken care of through lithotripsy back in 2016.