/r/hepc

Photograph via snooOG

A community for those with Hep C, those that want to learn more about Hep C and everyone else.

A community for those with Hep C, those that want to learn more about Hep C and everyone else.

Following is a list of the different genotypes of chronic Hepatitis C:

Genotype 1a. Genotype 1b. Genotype 2a, 2b, 2c & 2d. Genotype 3a, 3b, 3c, 3d, 3e & 3f. Genotype 4a, 4b, 4c, 4d, 4e, 4f, 4g, 4h, 4i & 4j. Genotype 5a. Genotype 6a.

SVR= Sustained Viral Response

/r/hepc

673 Subscribers

10

I'm about to start treatment. Still need a couple tests done. Lots of questions.

I was an IV heroin user I contracted Hep c 2-3 years ago(idk when it happened exactly). I've been clean for over 8 months now from heroin. I am just very curious I've heard awful things about the side effects of the treatment. If you haven't had it as long can it be more easy to treat? I'm also a drinker. Every day almost. I have no idea what to expect. No one has talked to me. Today at my bimonthly suboxone appointment a random doctor I don't usually see talked about how the treatment can be compared to the worst heroin withdrawals but like she has never done heroin and I suspect she doesn't know what she is talking about. Idk I would just really like to talk to someone who has been through it and can tell me their story.

71 Comments
2021/12/14
05:55 UTC

4

Made out with a girl last friday in the club and she bit me in my lip.

Pretty deep wound and started bleeding from it. Didn’t think much of it afterwards other than wtf, but my dad just told me i should get tested for hepatitis. Took some time to read about it and realised i have basically all the typical symptoms of it, diarrhea, nausea and feeling tired. I thought it was just a rough hangover since i drank a lot and i usually have a bad stomach the day after. I however also read that symptoms don’t show before 2 weeks. Do i have it or not ? Will most likely get a test anyway but i’m still freaking out about it please help.

Edit: in how long should i get the test if i do ?

8 Comments
2021/11/15
08:31 UTC

6

Is there any males on here that cleared Hep C in there own

14 Comments
2021/10/17
18:42 UTC

3

Question I cant find a straight answer for regarding symptoms

Hey everyone on this reddit. I guess I am here now as yesterday my doc told me I have hep c and we are going to start medication next week. Anyway I been googling because my main concerns were

The symptoms of brain fog, bad short term memory, always on edge (pretty much all the MENTAL symptoms) do they start to go away as you are on the meds and can anyone share there experience on if they actually felt better when the 12 or 8 weeks of meds was over.

And one more...I have been using the same clippers I shave with to also shave my father. He is 65 and has diabetes and MS. There was never any cuts or blood when we used them and I would use a toothbrush to brush it in between. What can I get that will FOR SURE kill the hep c if it got on the clippers? Is Andis cool spray something that would work?

Thanks guys I am looking forward to chatting with some of you

11 Comments
2021/08/13
18:51 UTC

9

Treatment failure with 8 weeks Mavryt

I am age 34 and had Hep C since birth, got it from my mom. I only found out 5 months or so ago.

I did 8 weeks of Mavyret, viral count was undetectable after 4 weeks and after 8 weeks of Mavyret liver numbers were better at both 4 week and 8 week labs.

I just did my re-test at 3 months after the end of treatment and the viral count is back and liver enzymes are slightly elevated again. So it is for sure back.

I will of course speak with my doctor shortly and come up with treatment options but I am just wondering what to expect at this point. What are the odds that I will be able to be cured? Does this happen commonly? Has anyone else had to do multiple rounds?

Any other tips or stories you can share?

11 Comments
2021/07/13
15:16 UTC

9

Any help?

I'm a 42 year old male living in UK 🇬🇧 I've just been diagnosed with hep c Im guessing I've had it for 20years with no obvious signs of illness until about a year ago when I started to feel fatigue sleeping a lot and exteam brain fog memory loss etc I'm extremely worried that ive damaged my liver permanently, I don't suffer with abdominal pains my urines OK ish my stools are a normal colour I've an OK appetite does anyone have any imput it would be much appreciated thanks!!!

32 Comments
2020/09/06
22:55 UTC

3

Hi fellow survivors!

I cured myself of hep c a couple years ago against the odds right as the new medicine came out. I detailed my life hacks to do it so that you can too! It's not about money as i am publishing other books. It's 99 cents. It's about my quick recovery story and the factual science behind it. All claims are backed by the National Institutes of Health! No filler! I want to help as many people as i can. Here's the link to the book. Stay strong. https://www.amazon.com/dp/B083GXN4H6

1 Comment
2020/01/11
08:40 UTC

6

Does Cannabis Help with Hepatitis C?

0 Comments
2019/12/20
19:31 UTC

5

Has this r/ died out? No new posts that I can see ...

If this is the case, could someone point me in the direction of another one that is currently active? TIA

5 Comments
2019/12/10
05:31 UTC

2

Hep C treatment and medical marijuana prescription

I live in a legal state where i have a prescription for marijuana for hep C. My doctor told me that i need to stop smoking or my insurance wont approve of the medicine. I have yet to take the blood test because i am still dirty (as far as urine goes) Not sure how long it stays in blood. My question is will my insurance really deny me if i have marijuana in my system even though i have a prescription?

6 Comments
2019/08/03
03:00 UTC

8

I’m about to start mayvret. Any suggestions?

28 Comments
2019/08/02
19:36 UTC

17

Today is the first day of the rest of my life. I took my first dose of Epclusa.

6 Comments
2019/07/13
02:29 UTC

10

How did i get Hep C?

So, right now I test positive for hepC antibody, and negative for Active virus.

I have never had any symptoms at all. I Guess I catched the antibodies test after I cured myself?

Anyways, the thing Is: I've never done any IV drugs, tatoos or used any needles outside an hospital.

Im in an exclusive relationship with a woman for the last 10 Years.

In those 10 Years i have donated blood many times , until One point where the guys from the blood bank told me the antibodies test came back positive.

I didn't sleep around with anyone else than my GF.

So im starting to fear she might? And she gave me hepC?

I've read sexual transmission Is rare, but it does occur (we don't use condoms).

My GF hasnt tested for ir Yet (she Will).

Are there other hypothesis possible besides infidelity?

Thanks for your time.people :)

10 Comments
2019/04/03
16:00 UTC

8

How has your life changed because of hepatitis C?

As part of a project I have to think of all the ways in which having hepatitis C can change one's life (even the small daily changes). Though I have tried to find more information online, I also thought "why not ask those who are personally affected by it?"

So, Reddit, how has having hepatitis C changed your life?

29 Comments
2019/01/21
10:13 UTC

8

Relapsed due to Cost saving by the Hospital

Hi Guys I have had it (HepC) for 35 years without knowing although the last 10 years I have been struggling with massive bouts of fatigue & brain fog. I kept going to the doc's but they could find nothing wrong with me, I changed doctors 2 years ago and they did loads of bloods & came back to tell me I had HepC, Geno type 1A I have been treated with Harvoni but was only given an 8 week course and relapsed & now the virus is back. They are now refusing to re-treat me which has pissed me off as I feel only giving me 8 weeks may have been the reason I relapsed they half admit it when I ask them in the hospital but no one will come out and say that is defiantly the reason, if you look around the standard course length for Harvoni is 12 or 24 weeks, so I am not happy & feel the medical profession has let me down. I think what they tried to do was treat 3 people for the price of 2, giving 3 people 8 weeks treatmen, as apposed to two 12 week courses. I am now faced with having to find treatment & pay for it myself, which is not why I have paid tax & national insurance payment for the last 40 years.

4 Comments
2017/11/28
16:36 UTC

3

So i think i got hep c at work

Used to do security and my partner was this dirty old guy who was just about to retire. He smoked in the office and pissed outside the connex all night hoping no one would walk by in plain sight. One day before work i was reinstalling my subwoofers and cut the ends of the speaker wire to go back in the box and cut my thumb open deep with the sharp ass knife. Turns out the guy contracted hep c in the army back in the day i guess from all the vaccines they gave straight one person to the next. Had surgery to have his stomach drained because water retention and was leaking all over the fuckin' place. Of course me being me forgetful as fuck grab the door handle one time and feel it burn instantly knowing oh shit i really just probably fucked up bad. That was about two years ago last year the skin on my waist was real red and itchy i get eczema sometimes so i thought not too much of it. Lately I've been getting real itchy hands and my shit has pretty much open sores all over my fingers. So I'm 29 and things are getting pretty shitty... Messaged a lawyer on Facebook about a lawsuit and i never got any response i doubt there's any legit case that could be built on this. I always wondered why his hands looked like this and now I'm always gonna be thinking people are wondering why mine do as well.

4 Comments
2017/11/23
17:09 UTC

2

I don't know what to do.

I'm so lost, we both have hep c and she's getting worse. I can't afford harvoni or a trip to India. I am just looking for guidance to a starting place even.

6 Comments
2016/12/22
17:33 UTC

3

Treatment co-pay assistance

Hello everyone,

I was recently diagnosed and have now followed up with a GE and set up a treatment plan for myself. I have genotype-2 and will be taking Epclusa. I found out that Epclusa's manufacturer has coupons available that will help cover part (if not all) of the co-pay for the drug. For more information take a look here:

https://www.epclusainfo.com/co-pay-coupon-registration

Similar programs are available for some of the other drugs. Another user (tiamdi) who provided me with the above link also provided these:

Harvoni: http://www.Harvoni.com/support-and-savings/co-pay-coupon-registration

Epclusa: http://www.epclusainfo.com/co-pay-coupon-registration

Daklinza: http://bmsdm.secure.force.com/patientsupportconnect/patient

Sovaldi: http://www.Sovaldi.com

Viekira: https://www.Viekira.com/patient-support/financial-resources

I am still researching for other ways to get assistance and will update this thread as I find more information.

2 Comments
2016/10/29
01:32 UTC

5

Seeking people to interview for HEP C/Harvoni documentary and the associated costs.

Hey guys,

I'm a filmmaker from Brazil, and my mother has Hep C. After a long time, we brought the full treatment(sofosbuvir, daclatasvir and ribavirin) from India.

Prices here are equal to US, roughly U$80k.

What led me to make this documentary was the saying from my mom's doctor: "I'll give you some anti-nausea pills. Whatever you do don't puke, because that vomit is worth 1.000 dollars".

This has struck with me, and I want to tell the story of this seemingly miracle drug that sells for and unimaginable price. I want to understand if the costs of developing the drug truly justify it's price, I want to find out how many people are getting it through insurance, how many people are bringing it from places like India.

And if possible, I'd like to document someone's treatment from beginning to cure.

If this project goes forward, I'll go to the US and India, and I'd love to sit down with you guys and have a chat about your experiences.

7 Comments
2016/10/20
11:15 UTC

4

Just got diagnosed

The doctor who informed me said it could've been either by IV drugs, sex or blood transfusion. I have never done IV drugs or had blood transfusion. That leaves sex. The problem is he said I must have had this for many years since my viral load is so high. However, I became very sexually active only the last 2 years. Before that I had very minimal safe sex. I can't think of any other possibility of how I could've had it :( I am devastated. I guess only thing I can think of is allowing a housemate to use my electric trimmer.

The doctor painted a horrendous picture for me. He made it sound like I have a death sentence. He also said no drugs/painkillers/sex/alcohol/marijuana ever again. Anything that could damage the liver. Even contact sports that could cause trauma.

Do I need to contact every person I've ever had sex with? Even if it did not involve unprotected sex?

Can I ever have sex again? Can I have a normal life? How do I even tell people?

17 Comments
2016/10/06
03:01 UTC

2

Is it still possible for sexual transmission after successful Harvoni course?

2 Comments
2016/09/24
15:04 UTC

1

Boyfriend with Hep C.

My boyfriend I have been dating for a year has Hep C. He told me when we were first dating but after my mother finding out she has me worried. I have Eczema, which is caused by an immune disorder. I'm going to get tested ASAP. My boyfriend, after struggling with a drug addiction is just now getting on his feet. Hes kicked the habit and hes working a steady job. I'm worried about his life expectancy. And I am worried about my own life expectancy if it turns out I have Hep C also. My boyfriend is going to the doctor next week to discuss treatment and what can be done. Could someone please give me a little insight. Thank you.

0 Comments
2015/04/10
14:52 UTC

1

My husband has hep c. I need help/advice/to vent.

We have been married for six years, we get along great, have two smart healthy kids, a lot of things about our lives are wonderful. Things started to change in February of 2013, when a trip to the plasma bank to earn extra cash ended in a diagnosis of hep c for my husband. It was a very scary very hard time, we were (and still are) struggling financially, bills piled on bills, no health insurance, electric bill shut off notice, eviction notice, this diagnosis, and then my father in law became very ill and almost died, he survives now but with much more limited mental capacity. We decided to move states to support my mother in law in caring for him, while she supports us with a roof over our head, food, and whatever the kids need. She herself is very sick with rheumatoid arthritis. I also have RA but it has not affected me as much yet as I am still fairly young. After my husbands diagnosis with hep, I took him to the free clinic where they discovered that it was extremely active in his system, but without proper insurance there was nothing that we could do. A time after moving states we qualified for medicaid. I was so happy that there was finally something I could do about his disease, by now he was becoming very fatigued, he would sleep 14 hours a day. If he cut himself shaving it would just bleed and bleed, his immune system seems to not be functioning properly. He has horrible stomach aches and lost 25 lbs unintentionally. He was once a voracious eater, but now all I can make him eat are quesodillas. I was so happy to have the insurance as I could see he was feeling very sick. He has tried to work and lost his job because he just didn't have the energy to do it, he is also suffering from depression and anxiety from being in this situation. I get him in to see the nurse practitioner, she prescribed him an antidepressant along with a refferal to the digestive health clinic. I was so happy that he would finally get this taken care of. We wait three months to get into the clinic. He goes in and comes out very angry and dissapointed, he said that the doctor made him feel very uncomfortable, and that he told the doctor that he uses marijuana to help his stomach aches, nausea, and anxiety. The doctor refused to treat him until he can provide a clean urine sample. He also tells him that his platelet level is very low. My husband would have to quit smoking pot, simple as that right? He does no other drugs, and doesn't drink or smoke (I think that he got the hep c from a home made tatoo his brother gave him when he was 19) well he refuses to quit, saying that it is the only thing that makes him feel any relief, he would have to give clean urine for 12 months. My husband says that there is no way that he will be able to do that. So here I am in a house with three sick people, and myself, in pain but OK. my mother in law gets disability, and has a modest insurance settlement that she receives monthly. I have not been able to hold a job for long because I am so needed at the house to care for two kids and three sick adults. I have no education and no work experience beyond fast food and gas station work. I quit my last job, working 12 hour shifts overnight as a hotel night audit, when I came home and my three year old was running around outside unattended, I just couldn't keep up with caring for these people and working over night, basically 24 hours a day. I was becoming sick myself and constantly worried that my 3 year old was being watched by someone who can't keep their eyes open. I don't know what to do. I have no money, I am on food stamps which helps but doesn't get me gas or toothpaste. I am right now researching some way to get my husband on disability so that I can pay for child care and other things so that I can work, but even then I am exhausted, exasperated, and am suffering my own depression and anxiety. My husband refuses to see that doctor again, or the nurse practitioner, and is just sitting there dying. I don't know what to do. Thank you for reading.

0 Comments
2015/05/12
19:00 UTC

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