/r/EctopicSupportGroup

Photograph via snooOG

A subreddit designed to support parents who are currently experiencing an ectopic pregnancy, and provide support for those who've experienced one in the past.

If you're currently facing an ectopic pregnancy, first of all, I'm very sorry for your loss. Please feel free to post your questions, vents, and rants here, in a safe place. Judgement free zone. We also welcome those who have experienced an ectopic pregnancy in the past, to provide support, information about trying to conceive after an ectopic pregnancy, and just general commiseration with the shitty situation that we've experienced. Open to people facing ectopic pregnancies themselves, as well as those whose partners are or have faced them.

We are a pro-choice subreddit. We also support people framing their own traumatic experiences in the ways they choose. No shaming for abortion/termination, regardless of the reason given. Termination of ectopic pregnancies SAVES LIVES.

We respect all genders and recognize that while you must have a uterus to be pregnant, that experience is not reserved strictly for people who live as women. Absolutely no shaming of any kind is tolerated with regards to this topic.

/r/EctopicSupportGroup

5,348 Subscribers

1

When to go to the hospital?

LMP was somewhere around 10/14. Tests have been progressing slowly but getting darker nonetheless. The test line is still much lighter than the control. I started brown spotting with stringy clots and some light cramping last night. I am currently out of town and flying home tomorrow. If I go to the hospital, will they be able to diagnose an ectopic this early, if that’s what this is? I don’t want to spend all that money on an out of network hospital just to be sent away, but I’m nervous about something happening on the 2 hour plane ride tomorrow. Any advice is welcome.

5 Comments
2024/11/10
12:47 UTC

2

First gynaecologist appointment

Hello, my dears! Unfortunately, last year I had my right fallopian tube removed because it ruptured - that was at 6+0. Now almost a year later I am pregnant again with the left fallopian tube. I'm so afraid that I'll lose my second fallopian tube and that it'll happen again... I don't have my first gynecological appointment until 5+5 next week. Now I'm wondering if that's not too late? After all, my fallopian tube ruptured 2 days later last time. When did you have your first gynaecologist examination? Thanks !

3 Comments
2024/11/10
07:26 UTC

3

Should I be the only one paying?

In June I went through an Ectopic pregnancy. I went to the ER and they found fluid in my pelvic region, but said it was nothing and that I was too early. I then went the next week for severe pain and bleeding and they told me that my fallopian tube had ruptured and I was having an ectopic pregnancy.

In the moment, I asked to go to a hospital that was under my insurance, but because it was a life-threatening situation and I went to the ER I wasn’t able to go to an in network facility. I still have to pay $6000 out of pocket (insurance helped finnally)

I feel like I am coming down from the trauma and PTSD of it all. I’ve just been looking at these bills and trying not to break down every time I look at it. I brought it up to my husband how stressed out I am about having to pay for all these bills and I’ve just realized he’s never offered to help…

We are both teachers and have separate insurance. We also have our own bank accounts. We have a joint bank account that we pay our house bills and groceries from, but he’s never once said we should pay the medical bill with our joint account. He hasn’t offered to help pay for it either. Would it be weird if I just told him that he should have to pay for half of it? Or should I just suck it up and pay?

4 Comments
2024/11/10
02:47 UTC

2

TTC Journey after Cervical Ectopic Pregnancy

Hey there, Reddit. I (31F) had a cervical ectopic pregnancy in July. It was my first pregnancy. My husband (32M) and I had been TTC for 11 months at that point and had been seeing a reproductive endocrinologist for a few months.

Following our fertility consults and tests I discovered I had low AMH and chronic endometritis. The latter was treated with doxycycline the month prior to the cycle I conceived. I also had a HSG the cycle I conceived. No major concerns on my husband’s end. The pregnancy happened spontaneously and I wasn’t aware I was pregnant until I home tested at 6 weeks as I had moderate bleeding a few weeks prior that I thought was my period.

I went in to the ER after our 7-week ultrasound per our RE’s presumed diagnosis and recommendation, and was ultimately admitted for four days as I was monitored and risks were assessed. I received a methotrexate injection into the cervix followed by a D&C. I’m fortunate and privileged to have received compassionate, informed medical care. It was also an incredibly isolating and traumatizing experience.

I have particularly struggled with the limited insight and information into what to expect on my journey moving forward because this diagnosis is so rare. I’ve seen statistics on pregnancy success rates after ectopic pregnancies, but I am not sure how cervical ectopics fit into that.

My husband and I have spent the last few months healing and are ready to look forward. This month, we are resuming TTC. After an unexplained infertility diagnosis and the all-clear from my RE, I’m currently in the two week wait after my first round of medicated IUI, gearing up mentally for whatever is next.

I’d love to hear from anyone who has experienced a cervical ectopic pregnancy while TTC, if you are out there and willing to share any stories about your journey afterwards. Acknowledging that we are all completely different with individual experiences, knowing there are others is comfort in itself.

3 Comments
2024/11/09
21:54 UTC

1

Pain 2 weeks post op

Hey all, I’m just over 2 weeks post op and yesterday I had some serious pain. This morning, still there. It’s similar pain to what I felt since surgery but it’s not letting up or getting better. It’s on my left side, not on the side where my tube was taken, but the incision side. It’s this tugging, pulling, achey type of pain. It only feels better if I sit or lay down.

Is this normal? Anyone else had pain linger on this long??

5 Comments
2024/11/09
19:49 UTC

5

2nd loss in a row — is something wrong with me?

Found out last week that I was pregnant again after an ectopic in July. I got a BFP at 14dpo after several negatives, which leads me to believe that this pregnancy implanted in the late side. My blood hcg this week was: 52 at 14dpo, rose to 120 at 16dpo and has fallen to 54 at 18dpo. The nurse told me that I will definitely lose this pregnancy but it isn’t clear whether it is another ectopic or chemical pregnancy.

I can’t help but thinking there is something wrong with me. Both pregnancies did not make it past 5 weeks. Is it possible that my eggs aren’t getting through the tubes fast enough? I am devastated and don’t understand why this is happening. Has anyone experienced this? What comes next after this? I feel like I would do anything for a healthy baby.

7 Comments
2024/11/09
18:16 UTC

3

Looking for opinions

I have been deemed “pregnancy of unknown location”. My hcg is around 950 (slowly increasing) so of course they can’t find anything on U/S. I’ve been having dull ache cramping for a few weeks on and off.

The other night, I had sudden intense pain. Kind of similar to labour pain (not as intense) it lasted maybe an hour or two. I thought something ruptured. Went to the ER. They did U/S and said they still can’t see the embryo, I didn’t rupture and told me to come back in a week.

I know I just need to be patient and wait and see. But does anyone think that sudden pain I experienced was the embryo detaching itself from where ever it is, and being absorbed by my body? I’ve had zero bleeding. Has anyone experienced this? The pain hasn’t returned. I’m just sore and achy now. Kind of feels like I gave birth a week ago. It’s that kind of “tender” feeling.

I tired to go get betas today but the line was massive and I had my two year old with me so I’ll have to wait til Monday to go back. I’d love to see my hcg going down and avoid taking methotrexate 🥹

11 Comments
2024/11/09
17:30 UTC

7

I’m finally pregnant again! But I’m so scared

Hi everyone, I’ve posted on here a couple of times about failing to get pregnant and trying to cope, but I finally am!

I knew I would be anxious about another possible ectopic but I am going out of my mind waiting to know. I’m in the uk so we only have placement scans at 6 weeks (mine is the 15th November).

I have very mild cramping where my remaining tube is but that goes after a bit and not as severe as my last ectopic in March. I have mild back pain but again that goes once I shift position or move around. My main concern is I feel like a trapped nerve in my shoulder. My ectopic I had it in my shoulder blade but this is between my neck and shoulder. I’m putting it down to bad posture (hunched over) and me recently taking up crochet and sleeping on that shoulder for long periods of time.

I’m trying to stay positive, that these symptoms (mild back ache and mild cramping) are also signs of a healthy pregnancy and there’s still a 90% chance of this pregnancy being healthy but I just can’t relax until my scan. I’m constantly assuming the worst. I’m terrified of losing my last tube as we can’t afford IVF.

Any advice or reassurance please?

5 Comments
2024/11/09
10:54 UTC

2

TTC again

Hi all Had a ruptured ectopic in September and we’ve started TTC again. How long did it take you all to conceive ?

1 Comment
2024/11/09
09:34 UTC

1

Possible Ectopic?

Hi everyone! I think there’s a possibility that I might be pregnant but i’m not too sure. I haven’t taken a pregnancy test because i’m scared and i’m kind of young and nervous. The only thing is that for about 5 days now, I’ve been having like spotting almost and it has been brown but it’s been dark and clotty. I have had just like a normal discharge of brown like a couple of times but it’s mostly like clotty/tissue of brown. I don’t know what to do because this started when I was supposed to start my period sort of. I’ve only had like a red or pink color twice but other than that it’s been dark brown. Could this be a possible ectopic pregnancy? I know implantation isn’t supposed to be clotty which is why i’m freaking out now. Any help would be greatly appreciated

8 Comments
2024/11/09
05:53 UTC

1

Seeking advice

(Back story) I didn't know I was pregnant or ectopic until the very last second, as it was very early. I pretty much just got out of the hospital, with one tube less.

I guess what I'm asking is how do I tell my 7 year old daughter or if i should tell her? All she knows is that mommy is very sick right now, but it's gonna be soooo hard to hide healing or hide how bad it was....

1 Comment
2024/11/09
05:52 UTC

1

Possible ectopic pregnancy. What’s post care like?

I will try to keep this brief. I’ve been testing positive for 3 weeks. I wasn’t really planning on keeping the baby so I went to a clinic for the abortion pill 3 weeks ago. Today was my third ultrasound (each a week apart) and no baby or gestational sac in ultrasound. I mean the only other possibility is im having an ectopic pregnancy. I’m having an appointment tomorrow with an actual obgyn to confirm all the deets. I’m pretty early on. My understanding is there’s a medication that’s administered to stop the fertilized egg from growing. My question is, what do I expect from this medication?! Will it hurt?! Will it hurt afterwards?! Am I out of commission for some time?! Do I need to take time off of work?! And an even sillier question, could I put this off one more week?! Lol my boss will be on vacation and I don’t really want to interrupt business. Also, what else do I need to know or what questions do I ask? Is this something I can deal with on my own or will I need outside help? I don’t want to worry my family but I also have 4 year old.

Any help would be greatly appreciated. Thanks!!

16 Comments
2024/11/08
23:33 UTC

8

Tube Removal

Hi everyone, To make a very long story short — At 7 weeks pregnant I had what I thought was a natural miscarriage. For two weeks following the miscarriage my beta HCG was trending up, almost doubling. After four pelvic ultrasounds, they were still unable to locate the pregnancy (pregnancy of unknown location). I was given the option of methotrexate or a laparoscopy with a d&c if nothing was seen during then. I opted for the lap because I felt deeply that there was an ectopic. I also had concerns for endo. They ended up finding an ectopic on my left fallopian tube & did remove the tube entirely. Gunshot lesion endo was also found on my bowel & bladder. The docs did not seem too concerned regarding the endo. This was my first pregnancy & am now concerned that I won’t be able to get pregnant with one tube. I know it is entirely possible, but my biggest worry is that my right tube won’t be clear.

My questions are this — were you able to get pregnant with one tube? Did you get an HSG done prior to trying again?

Thank you! :)

31 Comments
2024/11/08
22:20 UTC

1

Successful pregnancies after mtx treatment !!!! ???? Anyone know anyone???

See I hear ladies who have had 1 baby post mtx , or had 1 or 2 and then had ectopic again but does anyone know anyone who simply moves forward and had more children more then 1 and no issues ty

2 Comments
2024/11/08
21:00 UTC

1

Pain on previous ectopic side. New pregnancy what does it means ?

Hiii Just found out im pregnant but its very early. I'm at 3weeks and 5 days. I found out that early because I started having pain on my left side identical to my ectopic pregnancy, went to the ER and got a blood test done. It's obviously too early for a scan (HCG 10 this morning).

I was wondering if anyone has had a post-ectopic uterine pregnancy despite pain on the same side? I'm so afraid of having another one because it's the same pain. Note that I was treated with methotrexate for the first one so i still have my tube.

I am looking for your experience (positive or not). I have a bad feeling about this :(

11 Comments
2024/11/08
20:57 UTC

2

7 days post Methotrexate - how much pain is considered normal?

Hi all!

Never used Reddit before, but these last 3 weeks have taken such a toll on me so I've been coming on here for insights and it's been quite helpful.

This is my first pregnancy. I have PCOS so I did two rounds of letrozole, and tested positive after the second round on 10/21 with really low HCG (25). Then on 10/23 and 10/25 (HCG 11 both days) and again on 10/28 (HCG 12). I thought it was likely a chemical pregnancy since I started bleeding on the 25th and thought it was my period, but the clinic wanted to monitor me since I had some pain on the right side. They scheduled me for more blood work and an ultrasound on 11/1. My HCG was 38 and the ultrasound confirmed pregnancy outside the uterus, measuring 2cm (though they told me they can't say exactly where since it's hard to tell, only that it's on the right side and outside the uterus). They told me to go to the ER so the gyno team can see me right away. They ended up giving me methotrexate.

My pain was never severe at any time. It was always a dull, constant pain (I would say a 4 out of 10). On day 4 my HCG went up to 105, and on day 5 I had 2 sharp pains that went away quickly. I was told it was normal to experience abdominal pain on days 4-7 as long as they're not serve. I am now on day 7 and my HCG went down to 80 (thank goodness!!), but the constant pain (especially when sitting up) is still there. It's all over my right side (abdominal, back, yesterday it was right under my ribs and made it hard to sleep). It's by no means severe so I don't think I need to go to the ER, but when should I consider it? How much pain did you experience while on methotrexate?

I was told I'm not out of the woods yet, even though my HCG went down by 24%, and that I should still watch for symptoms. Did anyone experience a rupture after methotrexate even though their levels were going down?

Also would it be bad if I went for acupuncture next week? I'm hoping it could help my body heal faster, but not sure if I should wait for level to be lower.

5 Comments
2024/11/08
20:47 UTC

4

Pregnant after ectopic

How do you all cope with the anxiety of being pregnant again after ectopic? I had an ectopic in January treated with 2 doses of MTX.

I’m 4W4D now, I feel a little bit of cramping on my ectopic side here and there, but nothing crazy. No bleeding. My doctor won’t send me to test betas so I don’t know if they’re rising appropriately. They booked me for an appointment in 1 week just to weigh me and talk. No ultrasound or blood work planned yet.

5.5 weeks is approximately when I ended up in the ER last time so I’m getting extra nervous as it approaches.

Any tips on how to manage the anxiety or positive stories after ectopic would help….

28 Comments
2024/11/08
20:39 UTC

1

Post-ectopic surgery

Hi all, I had emergency surgery on Monday for an ectopic pregnancy. I was 8 weeks pregnant with no symptoms except mild cramping, so it was a complete shock. I'm in pretty serious pain post-surgery and am wondering how long did it take others to recover and feel 'back to normal' (physically)? Very painful to roll (laying to sitting) and can't sit-up on my own. Lots of tightness and I'm overall very uncomfortable. The pain from the gas has mostly subsided, but that pain was totally excruciating. Now it's mostly constant abdominal pain with intense sharp pains when I'm moving around (gentle movements).

Mentally, I'm a wreck and I'm continuing to work through that, it was just such a traumatic and sad experience.

If you have any words of encouragement or experiences to help me manage expectations for recovery, that would be very appreciated.

2 Comments
2024/11/08
19:50 UTC

2

Birth Control

Hi everyone, I am now going on 3 weeks since my tubal rupture surgery. At my 2 week appointment my doctor asked about birth control. My options are nexplanon and Mirena. I’ve had both: I am leaning towards mirena but am scared. What did everyone else do for birth control?

26 Comments
2024/11/08
19:24 UTC

2

When did you ttc after ectopic?

Hi everyone. I’m currently recovering from removal of my left fallopian tube due to an ectopic pregnancy. I received methotrexate 2 times only for my tube to rupture a week after my second dose. How long did you wait to try again after your ectopic pregnancy? When is it considered safe to? I know these are all questions to ask my doctor, and I will, but I don’t see her for another week. I’m just sitting here getting in my head and I need some reassurance. Those of you who did successfully conceive after loss of a fallopian tube, how long did it take you?

1 Comment
2024/11/08
17:38 UTC

1

Hcg insight please

I had a ectopic July 19th where tube was saved n ectopic removed. Last Friday Nov 1st hcg was 63.18. Today nov 8th hcg 1835.62. What do you guys think? I am 4 weeks 3 days according to app. We only had sex 2 days, ovulation day and 2 days before. I have no side pain or bleeding like Last time. Some stretching feeling on ectopic side I heard that is common. I'm cautiously optimistic. Have a scan end of month which feels Far away. They are not treating my like high risk even though I had the ectopic and miscarriages. Just hoping n praying all goes well

1 Comment
2024/11/08
16:57 UTC

11

Question about Ectopic care in Red States

Hi, I’m not sure if this post is allowed, but I live in Australia and with all the news with the recent election and seeing a lot of women post stories about their miscarriages, I just wanted to know in the red states that do have certain bans in place, is ectopic care allowed? I find myself deeply affected by this even though I am an outsider looking in. If anyone could shed light just so I can understand a bit better it would be appreciated. Delete please if not allowed, I just want answers.

35 Comments
2024/11/08
08:25 UTC

12

Imagine

Wanting a baby, planning for a baby, then finally getting that positive pregnancy test.

Only for it to be snatched from you.

I was only pregnant for one month before I needed emergency surgery for an ectopic pregnancy. My first and very much wanted pregnancy just taken in a blink of an eye. I now have one less tube. I can feel my pregnancy hormones slowly disappearing. My boobs no longer feeling sore and the fatigue even feels different now.

I find myself crying throughout the day wondering how the hell did this even happen to me. No previous STI, no PID, never had an IUD, never had surgery prior to this, don’t smoke, don’t drink.

I want to try again but I’m terrified.

16 Comments
2024/11/08
05:27 UTC

11

Best friend told me she is pregnant today. Feels like I’m losing my mind.

I had a complicated ectopic in March and then a PUL in September. Today my best friend announced to me that she is pregnant… she felt bad and I acted happy (I am happy for her and this is a beautiful thing of course) but I can’t help but to feel depressed. I don’t know how to shake this ugly feeling and I’m so FED UP of this awful scariness where I’m just afraid that I’m never going to have a successful pregnancy of my own.

How do I become okay with other people’s pregnancies? I’m just so out of it.

9 Comments
2024/11/08
02:16 UTC

2

Hcg at 4 today, 9 weeks post MTX

Seeing as it was 11 at my last draw on 10/23, I was so sure it would be 0. I know it's technically negative now, according to my doctor, but still. Dang!

I know I haven't had as long a road as others, but I just feel like it's taken me so much longer than a lot of people. According to this study, the average time of resolution of ectopic post MTX was just 22 days!

We're going to start ttc on 12/5, yayyyy. The weird thing is that I've been getting a "period" like normal at the end of July, August, September and October at the exact time my period normally would be, so I feel like I can't just rely on that to tell me my cycle's back. Because of this I'm going to continue to track bbt like I did before, but also use ovulation strips which is a first for me.

So excited to finally be negative! And good luck to all of you out there still going through it as well.

1 Comment
2024/11/08
01:47 UTC

4

HSG?

Hi ladies.. I feel so lost right now! Had surgery for a right tubal pregnancy, tube was removed laparoscopically. I had a MMC in 2023 and then this pregnancy - no living children. My OB said the only way to find out if my left tube is good to go is to get pregnant and see. But I know that’s not true, lol. Not sure why he isn’t suggesting an HSG? So I’m debating asking him about it… my worry is that I’ll get pregnant again and it’ll be ectopic in the only tube left and then I’ll be tubeless and can only conceive via IVF which I already know my husband doesn’t want to do. So… do I push for one? Should I just hope for the best? Also.. pregnancy test came back negative today and ovulation showed positive.. so that’s interesting. Might go in tomorrow for a lab draw to test hCG level out of curiosity.

5 Comments
2024/11/08
00:46 UTC

3

Pregnant again 😩

Hi everyone . I had an ectopic right tube rupture August 29. Last night I found out I was pregnant . I went to the dr today for my first beta and progesterone draws . My OB didn’t seem concerned . She said we will check in next Thursday . I’m currently freaking out . My tube ruptured at 5 weeks and 1 day . Now I’m having this pinching feeling on my left side . I didn’t expect to get pregnant and now I’m freaking out it might be another ectopic . Please any insight , reassurance etc . Thank you

22 Comments
2024/11/07
23:50 UTC

6

Ectopic after abortion

I had an abortion in July for so many reasons. I’m 39 and just gotten divorced and barely knew this person and have two kids i adopted who I am already struggling to provide for. I ended up pregnant again in September despite being on birth control and I was excited It was my second chance to do it better and it ended up ectopic. I wonder if this is my karma and did the surgical abortion hurt my tubes, will I ever be able to make up for what I did to my baby? I feel awful, I’ve been okay but for some reason today it just hit me and I’m a mess and I feel like this is what I get and I’ve ruined all my chances to have my own baby

10 Comments
2024/11/07
18:22 UTC

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