Im a caregiver to my daughter ( 15) and mother. Both have numerous health issues & need 24/7 care. Im so tired all the time. I never get to get out or even have company. It's been around 10 years since I've done 1 thing for just me. I have noone to step in & help so I can have a break. I feel so guilty for even feeling this way 😪 They are the ones suffering & I'm complaining . I guess I'm just looking for ppl in similar situations or for validation for my feelings.

Hi all, I am a caregiver to my younger brother with autism after we lost our mum to pancreatic cancer last year. As a caregiver and someone who lost the most important person in my life who also happened to be a caregiver, I am passionate about finding ways we can reduce stress in caregiver's lives. I would really appreciate it if you could take 10 minutes to complete this anonymous survey.

I am completing this research as part of my master's in Clinical Psychology in Utrecht University

Thank you!

Survey: https://survey.uu.nl/jfe/form/SV_0uOlvNuBkmEeoho

Dear r/caregiversofreddit community, I'm a PhD Candidate in Psychology at Northeastern University.

I have previously posted this information, and I'm posting it again since we have made changes to our study based on feedback and suggestions. Thank you to all who provided feedback to make this research better and more relevant!

I am passing this updated information along in case there are individuals in your hospital, community, and network that may be interested in participating. If you would be willing to share information, it could significantly contribute to the success of the research.

Briefly, we are recruiting parents (primary caregivers and legal guardians) for a study that examines the barriers to presence that parents experience during their children’s hospitalizations**.** We are especially interested in learning about the experience of underrepresented parents. Here is the study flyer for your review: https://drive.google.com/file/d/1Cug1gUtcwKtEejdTDO2JtRvHz5KH9PVd/view?usp=sharing

Participation in the study involves completing a 10-15-minute survey, available in English and in Spanish. After completing the main surveys, participants will have the option to take part in a raffle to win one out of twenty available $50 gift cards.

Link to the English survey: https://neu.co1.qualtrics.com/jfe/form/SV_bxYq7ZcHA4PK6TI

Link to the Spanish survey: https://neu.co1.qualtrics.com/jfe/form/SV_3P2nC1icnIpEkmy

To participate in this study:

• Participants must be at least 18 years of age.
• Participants must be the parent (primary caregiver or legal guardian) of a child who was admitted to a medical unit in the United States within the past 3 years.
• The child was between the ages of 0-5 when they were first admitted.
• The admission lasted, or has lasted, at least 5 days.
• The admission did not only take place in the NICU.

Thank you so very much for considering my request, your help would be immensely appreciated. Please do not hesitate to reach out with any questions or concerns via email (pediatric.caregiving@gmail.com).

This study has been approved by Northeastern University’s Institutional Review Board (IRB # 23-06-13). You may also contact Northeastern University’s IRB with any questions or concerns (p: 773-396-2327, IRBReview@northeastern.edu).

​

I am a student at Pace University reaching out with the hope you have an interest in learning about how the COVID-19 pandemic affected your overall health as an informal caregiver. I have created a study specifically designed to assess the link between caregiver burden and susceptibility to COVID-19. I would greatly appreciate it if you complete my 5-10 minute survey and hope you can gain a level of insight into your COVID-19 pandemic experience as an informal caregiver.

Please click the link below if you are interested in completing this survey! https://pace.qualtrics.com/jfe/form/SV_4GaDQstHDUswRXU

Hello Im looking for advice about how to become my soon to be mother in laws caregiver. She has been diagnosed with a few terminal conditions and needs someone to help out since she keeps up with all her own doctors and records, it has become too much for her and she has agreed for me to become hers caregiver. We talked to a social worker at looking at resources and they have yet to contact us back and I'm looking at advice on how to sign up somewhere to get paid to become her full time caregiver. We already live together however, I do not currently own a car and have been trying save up for one (money is a bit tight since I left my previous job to move in and help my partner with his mother), my partner works full time so the only car we have is not at my disposal. Everything else I can provide, I do not have any previous medical/nurse training under my belt but I have been keeping track of all her medicines and what time she needs to take certain things and why, talked to her doctors with her permission and have a folder with lists of all doctors/ medicines and conditions. All this to say I have all that I need to know with her to become a personal caregiver except a car at the moment and advice on where to go to apply to become her full time caregiver.

I reside in the state of Georgia if this helps any at all.

Hello! I'm finishing my last year in the Applied Developmental Psychology program at the University of Pittsburgh. As a part of my program, I am working with the Pediatric Palliative Care Coalition to create a Capstone project and I am looking for feedback and opinions to evaluate my project from caregivers who might benefit from the information! I have created an advocacy toolkit for caregivers and pediatric patients with life-limiting illnesses to help educate them and reduce their burden and stress along this difficult process. If you are interested in helping me, I'm attaching a link to my project, which is on Canva, along with a Qualtrics survey to provide feedback. This is about a fifteen-minute task, and I appreciate all and any feedback! The survey will close on March 21st. I appreciate any help you can provide.

Link to materials: https://www.canva.com/design/DAF8_neuAGg/tsfQDkB-kcjKKaiFUwfNHw/view?utm_content=DAF8_neuAGg&utm_campaign=designshare&utm_medium=link&utm_source=editor

Link to survey: https://qualtricsxmy7pq2gss2.qualtrics.com/jfe/form/SV_1Gjpjj4MohmTaUm

Hi everyone! My name is Brianna Johnson and I am a senior at Athens High School in Troy Michigan. This year me and a friend made a short documentary about caregivers for the student CSPAN competition. This is an issue I’m very passionate about and we have been fortunate enough to be selected in the top 15 videos out of over 1,000 nationally. Due to this, we also have the chance to win “fan favorite”, based off of votes. We would love and appreciate if you could vote for “Unseen Heroes: The Caregivers of America”, to help us win fan favorite, but more importantly spread awareness. Additionally, you can vote once everyday with no login required!

https://studentcam.us.launchpad6.com/fanfavorite/entry/1

Hello all,

I am about to tear my hair out trying to figure out how to do the correct CEs in order to renew my HCA license(WA, USA). I was hired back in 2020 and the assisted living company I worked for was a huge mess when it came to providing new caregivers with information regarding licensing, renewal, etc. I quit in 2023 due to moving and have been trying to find another caregiving gig. I finally got a callback(that I missed) and before returning the call I went to look over my license and turns out it needs to be renewed by 02/01/24, and that I have 12 hours of CEs that are due before I can renew it.

What continuing education units do I need to do ? How can I do this as quickly and cheaply as possible ? At my previous job, other HCAs alluded to the fact that this was a very simple thing to complete for your renewal(some, as I understand, just didn't do them ??), but looking at the Washington State Department of Social and Health Services website has made this look more involved and difficult than I anticipated.

If at all possible I would like to find a course(?) that is online ? But again, I hardly feel like I know what I'm supposed to be looking for.

I apologize if I am missing something obvious and sound ridiculously uninformed, but honestly uninformed is just how I feel. Please, if someone can help me make heads of tails of this, I would appreciate it so much.

Just passing by if ever anyone here is a caregiver from Washington, Ozaukee, Dodge, Sheboygan, or the northern halves of Waukesha and Jefferson Counties. We would love to have you and are in need of your services.

I feel like very few people if any understand the toll caring for elderly parents has on a person. The lack of support we have. I feel so irritated by this inescapable feeling of responsibility for my dad's well being and it's only gotten worse all my life as he ages with parkinsons and dementia at 83 (I'm 29 and have been caring for him and my mom before I was even 18 - mom is younger tho). The overwhelm to control and fix everything for everyone. To feel guilty as hell to enjoy and life my life to the best of my abilities. The fact that I have siblings and they do NOTHING. Like no one takes care of me when I need someone and it just makes me cry. Dating has been hard for me, school has been, my own health. I feel so effing alone. People don't understand the tremendous amount of responsibility. I feel so suffocated and I can't just leave caring for them for many reasons. I feel so different than most my age. This type of lifestyle and trauma changed me. Understanding my life, my cards are heavy. I've carried the weight of being my fathers keeper before I was even emotional or psychologically equipped to. Trying to rehabilitate myself in society since all I've know is caring for both parents. Idk how i can even relate to people my age. It's fucking heart breaking because I still feel like a kid at heart but I had to grow up so fast and there's no one but me. And I worked hard to love my own company but dammit I crave connection too. To be seen and helped and supported. But most don't relate. They will eventually but not where it's taken their youth.

Sighs. Gotta keep on keeping on. I never thought I'd wave a white flag over being my dad's care giver but this is hurting me too much to do this day to day care. For so many reasons it's not fulfilling. And regardless I'll always have that responsibility anyways but I think reducing it as much as I can eventually will suffice as I can actually venture out into the world as I finish school slowly.

Actually believe in living my life for me as a person with needs of her own, dreams, and a rewarding possibility of my own family one day.

Idk, does anyone relate to this overwhelm? To the burn out ? The lack of understanding of our day to day lives ? The turmoil of emotions that comes with our parents aging

Thanks in advance for reading I just had to vent.

In-Home Care: The Preferred Choice for Many Elderly and Disabled Individuals

For many elderly and disabled individuals, the comfort and familiarity of their own homes hold immeasurable value. In-Home care offers a unique opportunity to receive the necessary support and assistance while remaining in a space that embodies a lifetime of cherished memories.

The sense of independence and autonomy that comes with receiving care at home is unparalleled. This setting allows individuals to maintain a level of control over their daily routines, surroundings, and overall well-being. Such freedom contributes significantly to their emotional and psychological welfare, promoting a sense of dignity and self-worth.

Furthermore, In-Home care facilitates personalized attention and individualized care plans that cater to the specific needs and preferences of each person. This tailored approach ensures that the care provided aligns perfectly with the individual's unique circumstances, promoting a higher quality of life and overall satisfaction.

In addition, the presence of familiar surroundings and cherished possessions carries immense therapeutic benefits for elderly and disabled individuals. Being surrounded by the comforts of home can help alleviate anxiety, depression, and feelings of isolation, ultimately contributing to their mental and emotional well-being.

From a practical standpoint, receiving care at home can also be a cost-effective alternative to institutional care. By avoiding the expenses associated with assisted living facilities or nursing homes, individuals can allocate their resources more efficiently while still receiving the necessary care and support.

Finally, In-Home care often fosters stronger bonds and deeper connections between caregivers and recipients. The one-on-one nature of this setting encourages the development of meaningful relationships, trust, and understanding, ultimately enhancing the overall care experience and building deep relationships.

In-Home care stands as the preferential choice for many elderly and disabled individuals due to its ability to preserve independence, offer personalized care, provide emotional comfort, reduce costs, and facilitate stronger caregiver-recipient relationships.

As society continues to prioritize the well-being and autonomy of its aging and disabled members, the value of In-Home care becomes increasingly evident. By recognizing and promoting the benefits of receiving care within the comfort of one's own home, we can empower individuals to age and thrive with dignity and grace.

​

https://www.rightathome.net/menomonee-falls/careers

Hello! I am a Clinical Psychology PsyD Student, at the California School of Professional Psychology at Alliant International University – Sacramento. I'm looking for individuals to participate in a web-based online survey investigating caregivers' experiences when caring for family members with cognitive decline and/or dementia. This study focuses on familial caregivers providing care to family members who may be experiencing behavioral and psychological symptoms of dementia (BPSD) and exploring their self-reports of caregiver burden and distress.

If you are interested in participating, click this link below:
https://alliant.qualtrics.com/jfe/form/SV_eLqidGXGoezbImq

https://supportnotseparation.blog/2023/11/28/tracey-norton-speaks-out-against-fii-fabricated-induced-illness/#like-5162

Please read and circulate the more popple tgat know the more difficult for authorities to abuse the disabled

90% of Carers do not know their legal rights, see the attached link, and stop unpaid carers exploitation

https://email.mobiliseonline.co.uk/over-90-of-us-do-not-know-our-rights-as-carers-?ecid=ACsprvvyJC2HjIw26TBhXF5jexEzoaUiySJqoo2HsVPHifRM9e96GNGoo5x8Iyek_AtPVzawBqHn&utm_campaign=Weekly%20Emails&utm_medium=email&_hsmi=282992588&utm_content=282992587&utm_source=hs_email

90% of carers do not know their legal rights which facilitates human right abuses of carers educate yourself with this link

Please circulate the link

Hello, I am looking for a live-in caregiver to assist my father who had a stroke and can't move the left side of his body or speak. he is living back at home with my mother in central Pennsylvania near State college Pennsylvania and my sister and her husband live on the land nearby and help out as well but it would be really nice to have live in help for my father and mother does anyone know of an agency where I could find someone who would be interested in free room and board and a salary as well in the United states?

Hello Everyone,

I am a graduate student at the University of California, Los Angeles. Currently, I am working on a research project focused on the future of dementia caregiving, a topic that holds personal significance for me due to my own family's experiences.

I understand your time is precious, and I genuinely appreciate your consideration of this request. Your insights could make a meaningful contribution to advancing our understanding of dementia care. It would be immensely valuable if you could spare a few moments to fill out the form below.

https://docs.google.com/forms/d/e/1FAIpQLSfTf270uiQEUY4g8Q5XvrKbJHE5Zu7YxakD5fEHCG9GIF-KUg/viewform?usp=sf_link

We are a group of caregivers looking to raise awareness of the needs of in-home, full-time, unpaid caretakers. Those of us who are caring for loved ones in the home.

We started sharing our stories and found there are way too many caretakers who don't know about community resources, where to look, or how to get help.

If you are a burnt out caretaker, please take our survey and share your story with us.

https://forms.gle/GtLJnm68VRv7CbzX7

​

Hi guys! I just accepted a job through a private caregiving company, it’s my first job in this field. I’m getting my HHC to start out then going to get my CNA. Is there anything other classes I should take? What are some great tips/tricks you guys have learned while caregiving? Anything helps! Thank you! :)

Hello Caregivers,

We hope this message finds you well. 🌼

We are a group of students from the University of Southern California, passionate about making healthcare more accessible and user-friendly for caregivers like you. We understand that managing medical care for your loved ones can be both rewarding and challenging.

We would love to hear about your experiences and insights to better understand the unique journey you go through. Your story matters, and your input can make a real difference!

📋 Take our Short Survey: https://usc.qualtrics.com/jfe/form/SV_eFJuOIMvi54opW6

This survey is designed with you in mind, aiming to learn more about how caregivers like yourself choose healthcare providers and handle medical appointments for your loved ones. Your perspective is invaluable in helping us create solutions that truly address your needs.

Please note that this survey is part of a UX research project, and your responses will be handled with the utmost confidentiality. Our goal is to make healthcare interactions more seamless and supportive for caregivers, and your input will guide us in the right direction.

Thank you for considering sharing your experiences with us. Together, we can work towards a healthcare system that understands and meets the needs of caregivers like you.

If you have any questions or would like to know more about our project, feel free to reach out. Your voice matters, and we appreciate your time and participation.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10025196/

Please read

This is my second child protection investigation. Despite the fact that the first child protection complaint I made, the Ombudsman found Hampshire County Council guilty of causing injustice. Of course, no one is being held accountable , and the harm to me is irrelevant. Now, a second child protection investigation as I as an unpaid carer tried to establish my child's educational rights; and possibly connected is I complained as my prescription medication was mishandled (overdosed) by the GP, causing me physical harm. Like many carers, my health has suffered due to enforcing the rights of my disabled children and the syrain of being a carer. I ask myself, "Why is this type of abuse ongoing for unpaid carers?"Will it ever end?" Probably nlNEVER as too much money involved, unpaid carers save the country an estimated £169billion per annum. So, possibly unpaid carers like me need to be tamed. This is where authorities seemingly use their social workers who apparently enjoy their power to inflict pain attempting to silence vocal unpaid carers.

One crisp autumn evening, I found myself in a challenging situation. I was on my way home when I stumbled upon a disoriented elderly gentleman standing at a street corner, looking bewildered and lost. Concerned, I decided to reach out to my fellow community members for advice.

I posted on our neighbourhood's social media group, "I've come across an elderly person who appears to be lost and disoriented. Any suggestions on how to help him?"

What would you do if you saw a person wandering alone?

A GP in my local surgery has called a child protection investigation into my child's mobility issues, citing that a reason for this investigation is that my child attended an amusement park for their 16th birthday treat. I feel that this may be a hate crime. Please give me your opinions

My grandma recently moved in with us . She was great at the beginning and didn't do much, just laying in her bed , taking her medication, and sleeping. Then, she felt better, so she began to move a lot in the apartment, touching things that she should not be touching and messing with . She has Adhd so she has so much energy and can't stay in her bed any longer. Even though her legs hurt her but she can manage to walk. She started to remove her diaper and wander around in the apartment, holding it or throwing it on the floor, which creates a mess. My mom is getting really tired since she can't go to run some errands and she can't get much sleep and I am also busy with college so we can't be with her all day long. Also, she doesn't understand what we're saying to her, which complicates the situation more.

If you have any tips, please share them Thank you

Hi, has anyone ever just not shown up anymore for their abusive nasty angry petulant narcissistic mean ass grandparent? I mean how much abuse (which is life long pervasive personality disorder, not just new due to age or disease) but how much crap do i really have to endure or expose my daughter to from this person ?