I just started uvb therapy and I’m wondering if facial hair will block it? Anyone have advice on this, my facial hair is super thick, more like patchy

Can you do with vitiligo or will it make it worse ? I am 45 and noticing some fuzz like facial hair and want to use the derma planning razor to remove

i am currently a month in using benoquin and seeing amazing results i have vitiligo in patches on around 50% of my body and most of my face. i have decided to fully depigment. i’m wondering if anyone has used benoquin and how long did depigmentation take? i’ve looked online but can’t find many results.

Is opzulera better than protopic. I’ve been on opzulera for a while now and haven’t seen much vs when I was on protopic

Anyone from UK who has Vitiligo? I have a question?

What medication do we have to help with Vitiligo?

Is leukoderma and vitiligo is same thing ?

Any recommendations for getting Opzeulra treatment for a more affordable price? Just got off the phone with incyte and it will cost me ~$1200 CAD for a tube ( not including handling fees).

We have no insurance and thinking about getting one now. Anyone here successfully got coverage for treatment after getting a new insurance?

Thanks

It is a natural herb that can supress immune system and reduces pro inflammatory cytokines.It is comparable with MTX, azathioprine,etc .Has anyone used it?

They have lots of fibre, which helps your gut, tons of folate, which vitiligo patient generally seem to be deficient in and might repigment, and the amino acid phenylalanine, which helps make melanin. Just 200g a day, which is really cheap, gives you enough of the latter two and 50% of the RDI of fibre.

Source: https://fdc.nal.usda.gov/food-details/172421/nutrients

My partner has mild vitiligo, with no visible spots or marks yet. I want to make sure that when I recommend him skincare I dont give him something that'll inadvertently activate his vitiligo and give him a spot. I'm looking for a cleanser or a clay mask that will clear his pores. He has a mild cleanser already but Im thinking about something more deep cleaning to do occasionally.

I was looking at the innisfree clay mask but it has AHAs (which I think hes supposed to avoid?). Im considering an oil based cleanser next... any recs?

My girlfriend got vitiligo and she learning to do manicure from manicure classes, for very long time her vitiligo got controlled and never spread, but after 2 weeks of lesson now the white part become wider, currently she wearing glove and using sun cream while learning and practicing manicure . Can she continue the lesson or do she need much more protection?

I have identical twin and I have vitiligo since when I was 14.My twin brother doesn’t have vitiligo.Now Im 18 and my one eyebrow almost all white.Vitiligo made us different people.So my question is will my twin have vitiligo one day?

Have you ever had a feeling that your condition impacted your ability on finding a romantic partner?

If you have a SO right now, how did they initially react to your vitiligo? Has it ever been an issue?

Personally, as someone with moderate yet visible vitiligo, I have never had an impression that my skin spots affected my romance life in a negative way. In fact, several of my former GFs said it was intriguing to look at, and none of them had any issues with it.

But then again, I'm a male in his 20's, so I obviously cannot speak for women and people of other ages.

Has anyone else had this experience? Can’t find anything about it online. Daughter (5) born with purple blue Mongolian spots that turned to Vit at about 4 years old. We have a drs apt Monday but wondering if anyone else experienced this? She is mixed (white/jamaican)

Please join us for Vitiligo Voices Canada's monthly meeting on November 4 @ 6:30pm Eastern.

Sign up here: https://www.eventbrite.ca/e/1038105540617

This Month’s Topic: Vitiligo First Times

Join us as we share stories about our “firsts” with vitiligo — whether it’s the first time you noticed a spot, your first date with vitiligo, or the first time you met someone else with vitiligo! All firsts are welcome!

Everyone’s welcome — whether you have vitiligo or are here as a family member, friend, or ally to our community.

Hello. I have seen several people post “cures” for vitiligo on this site. There have been many advances in treatment of late. However, the scammers promoting fake science persist. You will be able to spot these fake claims by lack of evidence. Always, ALWAYS check reputable websites such as NHS, American Dermatology Association, The Mayo Clinic, WebMD. Etc… before taking any advice from these people. We have zero information about these peoples credentials, most likely because they have NONE. You may notice they never post their own pics of their supposed cures. Vitiligo is not cured by special diets or supplements. It is NOT a metabolic disorder. It is an autoimmune disorder, triggers by several factors, which may include an acquired JAK2 mutation.
My intention is to help protect those who are seeking a way to improve their situation. It will never include false claims and junk science. I am retired from the pharmaceutical sciences field, with a science degree and many years of experience working with doctors and patients in several disease fields . It does not make me an expert about vitiligo, but my education and training as well as personal experience with the disorder, has given me critical thinking skills to see beyond the quacks trying to get attention or make money from patients. I wish everyone who is seeking help the best of luck and please, please, verify every bit of advice you see on this sub.

I was prescribed with amoxicillin (type of penicillin), and this antibiotic works by inhibiting cell wall synthesis of bacteria cells, but this can also target melanocytes (skin cells) as well, making it possible that the use of these antibiotics can cause a flare up in vitiligo. There are also some mice studies that support this (https://pubmed.ncbi.nlm.nih.gov/31472106/)

I obviously don't want my vitiligo to spread; I have some questions:

What was your experience with taking antibiotics (specifically penicillin related ones)? Did it cause your vitiligo to spread?

And are there any supplements that I can temporarily take along with this antibiotic to strengthen my melanocytes? And possibly cause it not to spread?

Worst case scenario, if it causes a flare up I will just jump on dexamethasone to halt the spread.

Thank you

Does anyone know anything about the above? I saw it in the statement from NICE

The last week or so I’ve had this weird irritated patch of skin at the outer corner of my eye. It’s itchy and stings and the skin is all pink. The other eye has a similar but smaller patch and not at all as irritated.

I’m starting to think it might be a new vitiligo spot appearing, but I can’t tell for sure as the skin is all pink and angry (I’m write and quite pale so the colour could also just be due to normal irritation).

I remember something similar happening in between my fingers a couple of years back around the same time as those splotches were growing a bit. However, I’ve also had loads of spots appearing “out of the blue” (as in, I’ve not noticed them at all before getting a bit of a tan this summer) and can’t remember any itchiness or stinging or the area being pink /irritated.

Does anyone else recognise this as a sign of a new vitiligo spot appearing? If so, do you have any tips on how to handle the itchiness and irritation?

Wondering if anyone has vitiligo that is located in Australia? (28f)I feel quite alone and wondering if anyone can relate to what I have been through.

Hi everyone! Please tell me if this is the wrong sub for this lol. I wanna cosplay Kosmo from the Dragon Prince, and he has vitiligo. I’ve been doing some research to see what the consensus is about cosplaying characters with vitiligo is, but most of the posts I’ve seen are about cosplaying human characters and not blue elves. So, would cosplaying him be offensive or chill? I would attach a picture for reference but it won’t load when I try to add it 🤷