Hello!

I have a lot of vitiligo on my hands, and I've been getting my nails done professionally for the first two times, and for the curation they use a uv machine, and the two times I've been feeling light burning sensation on spots during the curation.

I was wondering if it happened to other, and if you are using cream or maybe something else when doing that kind of stuff ?
It's not painfull, just feeling a little bit spicy, and I don't think it's the 2/3mn total of exposition that brings any risks anyway

Has anyone successfully regimented eyelashes?? Or currently having any progress? 🙏🏻

So ive had this since i was born pretty much. Ive always loved it. But its always been in the same places, a little growth of its patches over the years.

But all a sudden. Getting white, depigmented patches on my finger tips. The touchy sides, not the side-side or nail/top side. Atleast i think maybe its the Vitiligo?

Can it just... pop up. Decades after noticing any spread or new patches? If so, why does it do it?

It started small bits, on most fingertips, which all met up bar some swirly bits. Then got bigger. The other hand catching up it seems (What led to being here to ask). Over time its getting more and the normal color bits within the patches are vanishing out. The other hand is getting some on the tips too now, and they all seem grow progressively a bit faster tbh. I dont know if theres other new patches elsewhere, i probably should check. Ive never really thought much of it until now. Its just always been there and i think kind of cool tbh.

But does this seem like it could just be my vitiligo? Could it just be, recent health problems have triggered into action? (I cant say i know a huge huge lot about it. I know they say stress, illness etc can. But its also a relief if its just V not another layer on top the rest of heck im dealing with).

I was worried it could be a fungal infection, what with everything else happening. But it just struck me. Maybe its the V

Its a weird place for it. Ive had some pretty hefty health issues recently, ongoing really. So maybe that triggered it? If its even the Vitiligo for sure? (My docs said "ive never seen anything like it", and that was two different ones bewildered. But maybe because its among evrything else i have going on too... who knows. We dont thats for sure)

have been doing uvb light therapy for a few months now and nearly at the maximum dose. feeling happy with the progress and am repigmenting. however, i'm developing new patches beyond those that currently exist and i have been stable for around a year now. was just wondering if anyone has experienced this? i have my derm appt in october so will ask then too. not sure if it'll be helpful to let the uvb target them too? new patches haven't fully depigmented yet so i'm not sure if the effect will be the same.

Hey everyone,

I recently started treatment with Opzelura for my vitiligo and I’m almost out of my current supply. The results have been promising, but now I’m in a bit of a hurry because my original dermatologist is no longer available and I need to find a new one who can prescribe Opzelura.

Does anyone here know of a dermatologist in Washington who’s familiar with Opzelura and is prescribing it? I really don’t want to lose momentum on my treatment, so any recommendations or advice would be super helpful.

Thanks in advance!

Any experience for treatment for vitiligo with Dr Batra ?

I have heard some good results from him

Okay this is for anyone with vitiligo. My mom has it and she recently got made fun of for it...so I wanted to give a boost of kindness for today!

Don't let anyone...anyone bring u down just cause ur built alittle different. This is just for anyone to not just people with vitiligo...don't be afraid to wake in ur own skin . You walk around with confidence..if you walk around with confidence people with bother you less.

And you just keep living like there's nothing !

At the end of the day people are people and sadly people will always have something to say...and you just ignore it

This is a message for the jerks... You are not all that urself I promise please look in the mirror before you judge someone about anything. And I hope.karma comes around eventually.

Thank you have a great day!!!!? And keep smiling😄

So my mom has vitiligo on her face. She doesn't let it bother her much anymore or so as she says. But today we went for a walk just going around and these 3 high school girls were right there. One girl stated what fck and just kept looking then started laughing. So I said really loud wondering what the fuck there girls are looking at. Kept walking as I turned around they were just starring. So I paused our walk. Turned around and just starred at them until they backed off. But what is wrong with these kids. And who raised them to make fun of someone just for a skin condition. Like it bothers me that someone has the nerve to do this ...what's wrong with these kids.

If you don’t mind to share… thank you.

I've been suffering from vitiligo since 14 -15yrs and i did everything i could in my Power to cure to and even got lucky, but it relapsed like 3 times and now I just don't have enough strength and motion to cure it anymore

All those medication have just ruined my body and I don't wanna push myself anymore cos i already have other health issues too

Is there any way by which vitiligo can spread and i can have a uniform skin colour

New to this group - was curious if anyone has had patches show up after being in a chlorine pool? Is chlorine known to trigger patches / new patches?

What do your patches look like when they first start coming in? It seems like some people have white spots show up overnight, while others have patches that slowly fully depigment over time. If you have the latter, how long does it take the patches to depigment?

For anyone who can’t afford Opzelura or get insurance to cover, Ziska Pharmaceuticals makes the same thing called Ruxonib cream. It’s about 55USD and you can email them to purchase!

I dunno how to bring this up here without sounding like I’m trolling…

Long story short I thought I had a lot of tissue stuck on me in the poop shoot area (I use cheap toilet paper at work). There was tissue I removed using a mirror, but there were still some white patches on me. After 2 minutes of trying to remove the “tissue” off me and another 12 in the shower, I realized it was just my skin. IT WAS JUST MY SKIN. I am a dark skin woman, but it’s as white as tissue paper. It’s multi patches as well around the hole and a large patch a few inches away from it.

I’m not a sexually active person but the thought of explaining this to a future partner just makes me feel insecure.

If it appeared anywhere else on my body, I would’ve been 100% fine. I would embrace it, seriously.

I can’t afford to see a dermatologist atm even with insurance so I’m saving up to see one.

How do you guys bring it up to your (future/potential) partners?

Many people claim that this combination where you roast walnuts on fire until the melt and become liquid then mix with mustard oil applied daily for 1-2 years will definitely bring back pigment I am going to start it I don’t know if anyone else wants to jump on board.

At the age of 16, I had one large noticeable spot on my eyelid and a small one on the other eyelid. I also have a white, not very noticeable stripe on my stomach. I also have a faded mole and a couple of very small spots on my body. Now I'm 20 and everything remains the same. When will it start spreading more?

Hi All,

I’ve been hearing good things about Ruxotop cream which is a generic form of Opzelura and readily available in Egypt.

Does anyone have any contact details for a Pharmacy or supplier in Egypt which may be able to ship this abroad? I live in the UK. I contacted a few Egyptian pharmacies and none were able to ship abroad. Would appreciate it if anyone has any leads.

Thanks.

The Most products Are Only shipping to US, so whats the best in Europe for hands

I had a question for those of you who use self tanning drops (Tannologist). Do you just add a couple of drops to your moisturizer and apply it to the white patches on the face or do you apply it to your entire face.

I am a male with some vitiligo patches on my forehead and I tried dermablend cover creme but it went on kind of "cakey" and kind of gave up on makeup now unless someone has any good suggestions?

Any help would be appreciated. Thank you.

Hi guys, I need some information about vitiligo (already read a lot of info but still), sooo uhmm my question is how do I get vitiligo?one of my friend said that he makes without shower but I don’t want to do that and I need more methods Thank u 🤓

Since I'm back at school I'm wondering if you have any tips, my vitiligo is only on my hands and I got it this year to avoid a lot of questions, do you have any tips for make-up, I have a light skin tone, I also have make-up I tried up concealer and it made the spots a little darker, so it's okay, but it could be better, do you have any buying recommendations?