Let's look back at some memorable moments and interesting insights from last year.

Your top 1 posts:

• "Happy Cakeday, r/thyroiditis! Today you're 8" by u/AutoModerator

Let's look back at some memorable moments and interesting insights from last year.

Your top 1 posts:

• "Happy Cakeday, r/thyroiditis! Today you're 7" by u/AutoModerator

Let's look back at some memorable moments and interesting insights from last year.

Your top 5 posts:

• "Raise Hand If You Can Relate" by u/fuzzalinna
• "My thyroid story" by u/Xandria2018
• "Hello people?!"
• "Is this a normal first visit to an Endocrinologist?" by u/guyinpain555
• "Is this a thyroid issue?" by u/guyinpain555

Hi, I am 30y/f had TT 04/03/2019...I had huge nodules and my surgeon decided to remove it completely. Now my daughter has a 3cm nodule and she is only 8. I am so concerned, hurt and sad over this. I do not want her to go through what I went through. She is so young, wondering if anyone has experienced this with their kids? If so, what was the outcome?

I want to see if anyone else has had a similar thyroid experience as me. Lmk if you've had anything that worked for you or have questions. 2 yrs ago during my senior yr of high school I was chronically tired. Actually thought I had mono because another girl got sick. But I kept getting odd hive episodes. That's what took me to my doc to get recommended to an allergist. On the side I mentioned gaining 20 ibs. I had noticed this literally right after running a 1/2 marathon and cross country season. I also eat very heathy. I got tested and was diagnosed with hypothyroidism. Everything went great, lost the 20 ibs then fast forward to October of my freshman yr in college. I'll list the steps things played out.

Sore neck, vomiting, diarrhea, odd feeling eyes, feeling of eyes bulging. Went to the campus hospital and they tested for things like meningitis. The eyes were explained as throwing up too much. Given an IV, stayed for 8 hours, my eyes swelled shut. As my eyes went back down they bulged out. Finally self diagnosed self. Figured out I had graves, and later just given the title of "thyroid problems" literally everything's possible.

Experienced things such as: vomiting, dry skin, dry hair, hair loss, diarrhea, swollen feet, neck pain, memory loss, irritability, heart rate increase, weight gain/loss, depression, light sensitivity, TED, chronic tiredness, ADHD symptoms coupled with exhaustion, no focus, lack of motivation, reduced libido, nervousness, hand tremors, increased sweating, puffy and retracted eyelids, muscle weakness/loss, difficulty sleeping/insomnia, difficulty breathing, headaches, vision change, gritty eyes, lethargy, cold, constipation, brittle nails, slow heart rate, sluggishness, water retention, heart burn, pain in joints, puffy face. Gosh I sound like a basket case.

Its comical how these symptoms are explained away as something else at the time. I fluctuate rapidly in levels so I can't take medication. But things are seeming to get better. It's been 2 years and it's not my focus so much anymore. Let me know if you've had similar experiences. I went gluten free and that seemed to help but that's not conclusive evidence. I exercise a lot and eat heathy so when I gain 40 ibs in a month I do not take it to heart when my doctor says "...you know...excersise could help along with a good diet" well gee, no doubt.

I went to an Endocrinologist for the first time yesterday, and tried to explain the history of my symptoms. He said he would try to guide my answers, and see if his specialty would be of any use for me. I'll list my symptoms below, but basically he started cutting me off after listing two or three of them, and it felt like he wasn't listening to what was wrong with me. He started asking me question about foods I eat, weight loss/gain, etc. At the end, he ordered a blood test to see my thyroid levels and basically said he thinks I will be fine, and that I shouldn't feel the need to see a different Endocrinologist, as the blood work will show if I have any thyroid issues. My question is: was this professional, and is he correct is "guiding" my answers/responses, and not listening to all of my symptoms? Personally, I think all my sympoms are related, and need to be heard of as a whole, rather than splicing up and figuring out "common symptoms for all patients."

Symptoms: numbness on right side of foot, and anus, skin on scrotum and bottom of both feet have become sticky and dry, and red on occasion. Tingling in heel and up the back of the leg (very sensitive to the slightest brush). Feel of skin ripping in the heel, diarrhea for over a year as well as constipation (I have to poo every 2-4 days and when it does come out it is some form a diarrhea). Trouble falling asleep (not every night, about once a week). Exhaustion and finding it difficult to concentrate. Brittle hair.

Been having symptoms for over a year now. I've had MRI's taken of my lower back, upper back, and brain with no results. I've had my blood taken, so not sure if anything would pop up there?

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Symptoms: numbness on right side of foot, and anus, skin on scrotum and bottom of both feet have become sticky and dry, and red on occasion. Tingling in heel and up the back of the leg (very sensitive to the slightest brush). Feel of skin ripping in the heel, diarrhea for over a year as well as constipation (I have to poo every 2-4 days and when it does come out it is some form a diarrhea). Trouble falling asleep (not every night, about once a week). Exhaustion and finding it difficult to concentrate. Brittle hair.

It’s so weird to me that no one is posting in this sub for the last 20 days or so. Maybe we’re all confused about what our medical issues are since no one can pinpoint them. Outside of- you have an auto-immune issue that’s attacking your thyroid. Or maybe everyone then is diagnosed with other issues/diseases/syndromes. Anyone have some info on that?

Hi,

I had my thyroid test done 3 months ago and my TSH was 9.5 and doc told me I have Hypothyroid and put me on Thyroxine 50 and now I have tested TSH is 0.04 and lab technician told me this look like Hyperthyroid.

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So should I be worried and is it normal to go from Hypo to Hyper.

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Gender: Male

Weight: 91 kgs

Age: 27

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Medications: Telma AM (BP medication), vitamin b12 injection once a month and Thyroxine 50 (Thyroid medication)

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Non-Smoker

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Symptom Duration 3 months

Loss of hair loss a lot

Dizziness when angry or stressed

Headaches

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Thanks.

Hello just some quick background I am 25 male underweight at 60 kg. I have low appetite, energy, bloating, persistent nausea gets worse after eating fatigue and general tiredness and hate to use this word feel lazy even after a 9 hour sleep. Mild headaches throughout the day (tension headaches).

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Medical tests so far blood normal, urine normal, abdo ct scan normal, endo normal, no blood in stool. Waiting on biopsy for h pylori and celiac. h pylori breath test negative.

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Most recent TSH level 6 (July 2019). Doctor never called back was outside ref range. I actually had another thyroid test done in (January 2019) different city and clinic. Was just told your thyroid is slightly high. My results from January tsh 6.13 , free t4 16 and free t3 5.6.

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Do I have anything to be concerned about? My doctor does not seem to think so. I have been having weird symptoms since mid June I thought maybe gastroparesis, celiac, thyroid im just not sure at this point. Any tips input very much appreciated! So far only test that is unusual is my thyroid.

Are there any supplements that has been shown to increase your metabolism? I currently take MCT oil, ashwagandha,forskolin,bacopa, COQ10, iodine, NR,VITAMIN A, ginseng and selenium.

Hello! My name is Rachel and last year I was diagnosed with hashimoto’s thyroiditis. Weight gain, fatigue, mood swings, abdominal bloating, palpitations, brain fog were just a few of my symptoms. I had been dealing with them for almost 2 years before I saw a primary care doctor. I’m in my 20’s so I just contributed these symptoms to not being as active as I used to, my diet and my weird sleeping schedule due to working nights. So, March of last year I was started on synthroid. Around the same time I decided to drastically change my diet. Your diet plays such a major role in your health. I’m embarrassed now how horrible my diet was for so long, especially being an RN.. I knew better. I researched both the paleo and keto diets. I decided to go with keto and the results were amazing. I’m 5’2 and weighed almost 170 pounds. Now I’m 128 pounds and not only that my energy is up, My depression is gone, NEVER bloated, brain fog gone.. all of the symptoms I experienced before, gone. I’m a completely different person than I was a year ago. I feel human again, I feel like the happy go lucky person I was before my symptoms started. Changing my diet along with the medication has improved my life immensely. It hasn’t been easy but it is SO WORTH IT. I like to share my story for anyone who felt the way I did when I was diagnosed. I felt helpless.. but then decided to take charge of my health. Give it time, let the medication work, DON’T quit if you’re eating healthy and staying active.. and if you haven’t changed your eating habits, I highly suggest you start. I’m not tell you to eat keto but do research, educate yourself about nutrition and find what works for you. There is light at the end of the tunnel, you just have to work for it.

I’ve been diagnosed with Subacute Thyroiditis and am still in the hyperthyroid phase. Endo says hyper phase can last up to 3 months which I’m closing in on. I’ve got hyper symptoms and my thyroid has hurt the entire time. I’ve been on prednisone for a month because NSAIDs didn’t hold a candle to the pain.

If you’ve been diagnosed with SAT what was your experience? How long did your pain, hyper, hypo phases last?

Anyone else suffered from thyroiditis and how long did it take to go away?

It's been 4 months and I still have the increased heart rates, not really high but it goes up and down.

What can I expect?

Weight with Hypothyroidism.

With hypothyroidism i'm either too skinny or too big. Neither inbetween. I know I shouldn't complain since people have it way worse than me but i hate why people ask why and how i went from big to small :(

I was diagnosed with subacute thyroiditis in September of 2017 (swelling of the thyroid due to a virus; usually temporary) and I was experiencing all the regular hyper symptoms (fast heart rate, anxious, sweating, cloudy minded etc) and I've slowly been coming back down to "normal range". I have been able to get out more and do more normal things again but I'm still being hindered by some symptoms. I went to go see the endo a few days ago and he seems to think it's silent thyroiditis (swelling of the thyroid due to an auto immune attack). Anyway I don't really know what to do or think anymore... I'm within "normal" range again but I almost feel like I'm already hypo. I'm depressed, anxious, lethargic, grumpy and cranky and the worst thing is these damn headaches!!!!!! I feel pressure on my temples and heaviness around my eyes, sensitivity to light and sometimes sound, I've had neck pain and stiffness for a while and I get random, somewhat sharp pains like in my head... I'm starting to worry and I just wanted some input on other people's experiences. Thanks.

I have been contributing my symptoms to just a change in metabolism, “freshman 15”, etc. but after reading an article about Thyroiditis I self-identified several symptoms... I also just talked to my mom about our family history and her and nearly all my aunt’s have problems with their thyroids (hyper, hypo, etc.)

Please let me know if I’m crazy or if it’s something I should look into! (I don’t have insurance right now, so I want to make sure before I rack up a large out of pocket bill)

Female/20yrs 190lb/5’9”

• excessive weight gain (30-40lb in the past year) • very full face and neck • neck discomfort • excessive tiredness • spaceyness/forgetfulness • cold hands/feet • cold sensitivity • lower than “normal” temperature • “normal” or lower than “normal” blood pressure

I think with my Hashimoto's thyroiditis that my t4 and tsh change by the day or weekly (not sure if that is true but it feels that way, at least at this stage of the disease). I am wondering if there is an option for daily or weekly testing and thyroid hormone supplement dosage regulation? Perhaps at home?

The small amount of research I have done I haven't found anything on the methodology and standards used for actually testing the blood in the lab. Does anyone have more information on how that works? Is thyroiditis something that could or should be monitored more often?

First off, I apologize for perhaps not knowing the proper terminology but I am working with limited information at the moment.

Six months ago, my grandfather (62) was sent to an endocrinologist after blood tests showed what was described as a "slightly overactive thyroid." The endocrinologist prescribed what I believe was called Papazol. Over the following months on the medication, he experienced increasingly terrible symptoms--exhaustion, dizziness, weight gain, constipation, muscle & joint pain.

After taking new blood tests, his endocrinologist informed him that the results suggested that the medication might have "shut his thyroid off completely," took him off Papazol, and prescribed a new medication, I believe, Synthroid.

(Note: I might have the chronology of medications reversed)

Last week, after a few weeks on the new medication, his symptoms still hadn't improved and he became quite irritated and decided to quit the new medication all together only to find himself feeling better than he has since before seeing the endocrinologist the first time. I've been trying to convince him to seek a second opinion but he seems reluctant after this recent ordeal and is happy with his progress since ignoring the doctor's orders and to be honest, I can't really blame him.

I would be extremely appreciate if anyone had any insights on what might be going on? Also, what are the risks of him not taking any medication?

Register for a free digital review copy here

More info: Independent publisher of Berkeley, CA is distributing digital review copies of The Hypothyroidism Diet Plan by Karen Frazier.

I'm part of an independent study that is collecting data about people who lived in the San Fernando Valley in the 1960s and 1970s who may have developed autoimmune disease as a result of industrial chemical pollution of groundwater.

Please visit the Hashimoto's 91352 website at http://www.hashimoto91352.com/ where you can read about the study and download data collection forms, plus instructions on how to fill them out and submit them. There's also a list of zip codes in the San Fernando Valley.

The only qualification to participate in the study is that you must have lived for at least two years between 1965 and 1980 in the study area. You do not need to be currently diagnosed with autoimmune disease - we need as many 'healthy controls' as participants who have been diagnosed.

I am looking for some advice on my doctor’s recommendation to treat my Graves disease with RAI.
I have had the disease for about six years, five of which I have been using Methimazole (Tapazole) in varying doses to keep my T3 and T4 levels under control. My TSH has been up and down, but mostly non-existent for a while. Even though my T3, T4, heartrate, shaking etc. have been within acceptable limits, I have not felt great since the onset of this disease (feel anxious, rev’d up all the time) and my heart seems to be having some ill effects, although not conclusively due to the thyroid issues. Over the summer, my TSH started to rise, and my T3/T4 started to fall out of acceptable limits, indicating remission. My endo cut my Methimazole dose in half (to 5mg). Within 6 weeks, my hyperthyroidism resurfaced, with non-existent TSH and T4 above limits. That was about 5 months ago, my does have been raised gradually, as the Methimazole is not keeping my levels, particularly T4 in check.
My endo is recommending RAI to address this issue. Her prescription has been endorsed by three other doctors. I am still reluctant because of the definitive nature of the action. I am also hearing horror stories from people who have had it done, and wished that they had not, and/or wished they had their thyroids back because they are unhappy with how they feel on thyroxine.
Given the potential heart trouble, I am inclined to go through with it, but I was hoping to get some other thoughts and opinions. Have you had RAI? How was the process? How do you feel now? Thanks for any advice.

Inciscion Random trip in to urgent care for an unrelated issue about 7 months ago and the doctor on call urged me to get checked out for my enlarged thyroid. Biopsy and genetic testing were both inconclusive, but suspicious. Surgery was scheduled to remove the right half and the 5cm nodule.
Came to after surgery and was informed that the nodule removed was the size of the surgeons fist. Will have pathology report at the follow up visit next Friday.

Last year my TSH was 1/2 as much, I am asystemmattic (no symptoms). My TSH is 728 and my T3 and T4 are normal.

SO.. as many of you I have been doing a ton of research and did you know 7.1 million scripts are out there for this? That is a problem. I hate the thought of being on any medicine.

So of all I have read and watched and seen the one common thing is Iodine. So, I am going to follow a strict 14 day thyroid started "diet" "cleanse". I will be buying some thyroid herbals and trying this product called bladderwrek (sp).

I am not thrilled and beause there are SO MANY of us out there there has to be a reason.

I'm here to gain your knowledge and insight, has anyone gained anything from something other then a prescription medication?

Hey all, I had my thyroid tested, I have Grave's disease, and flip back and forth from hypo to hyper. The doctor is sending me to an endo (and I hope a good one!) But he said an odd thing to me. He said your thyroid level from your brain to your thyroid is low, but from your thyroid to your body is a little high. "But I'll leave that to the endo to figure out." He was in a rush and gone. But I don't know what that means, does anyone know? I do not have the results to show anyone.