I saw a post a few days ago mentioning they're tired of people posting their "is this Raynaud's" picture on this subreddit so I went ahead and created r/IsThisRaynauds for that purpose! Come join :)

I often struggle opening up OTC medications, juice bottles, etc. Any recommendations?

Sorry for the foot pic 😂 I was outside in the cold for about 4 or 5 hours, bundled up but still had cold fingers and toes. when i just now got home I took off my shoes and socks to put on warmer socks and I noticed these red marks on my toes. Is this chilblains? My fingertips were also red even though I had gloves on

For the last couple months since it’s been getting colder I would see my fingers change colors (sometimes turning blue or purple).This has never happened before it’s only started this year. Ive gone to the doctor 4 times and a neurologist, im young and in perfect condition. I’ve been researching and think I have Raynard’s but now today maybe chilblain?

Today was really cold so I put fuzzy socks over my normal socks (which I’ve done before) and my feet have been itching and been sore the whole day, I finally took my socks off to see my feet swollen and a bit purplish-red. There’s also random red spots on my toes and a swollen bump on the side. Everything hurts, I feel like my fingers feel swollen too as they’re tight and hurt.

I still don’t know what I have but if anyone has symptoms similar to this how do you relieve the pain and swelling?

My family thinks I have Raynaud's and now I do to, whenever I'm in the cold my fingers turn completely red and puffy, I get these weird purple and orange spots on the top of my hand, the blood in my veins feel like it's freezing inside, I'll get a sharp pain all over my hand. There's more im probably forgetting but I just don't know.

Hi all. I'm new to the Raynaud's world - self diagnosed for now, will see a Dr next month. I was wondering if you've had any luck with lifestyle changes to lessen the frequency or severity of attacks? Avoiding getting cold is obvious, I'm wondering about things like food choices, supplements, meditation, avoiding alcohol, increased exercise...

For the people who deal with frequent attacks that result in swollen fingers afterwards, how do you manage typing on your cell phone? I have resorted to voice text and using my laptop when necessary, but it's definitely hindering communication with friends. My fingers just feel so tired, typing out a message seems like a ridiculously hard task.

As my Raynaud's progressively gets worse, it's definitely taking away a lot of fun things that I took for granted. Never thought shitposting on Twitter would become a holy grail type activity.

I woke up this morning and my hands are like this? I have no clue what it could be and I’m worried. I can add I do get very cold hands and feet very easily, and then find it hard to warm them up again especially my feet they are always cold! I also realised when my hands get really cold sometimes my nail beds go a purple colour.

Not seeking medical advice :)
My little kidlet has had what may have been a bout of chilblains brought on by adhd meds (as per paediatric rheumy), and it was suggested that we try thermal or wool socks next winter.
I figured this section of the internet would be the "keeping toes warm" experts!

Any recommendations for good insulative shoes and socks that will cops with a lot of damp sandpit play?
thanks <3

Does anybody who developed raynauds/poor circulation in their late 20s/early 30s have any clue as to what triggered it? Mine just spontaneously started. No explanation. As I've gotten older my fitness has only gotten better. I was very active, healthy, a little on the light side but still a healthy BMI. The only other chronic condition I've had is scalp psoriasis that I developed when I was 20. My raynauds symptoms worsened with iron and b12 supplements which I started after finding out I was kind of low on both and was worried about potential anemia. I sometimes es wonder if I always had raynauds but just didn't notice it until a few years ago? I'm so lost as to why it began. My hands, feet, ears and nose are affected. The nose is the worst because the rebound flushing I get from it has left my nose covered in permanently dilated blood vessels and it's crushing my confidence. Thanks.

Anybody have any suggestions for heated work gloves - that will last! Preferably USB charged

yes i know this isn’t what raynauds looks like, but i have been dx’ed professionally. anyways, sometimes ill have outright purple/white toes, and sometimes it only spreads to under my toenail. do you guys have a similar experience?

Here's a Raynauds Syndrome survey for this awesome group.

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What is the longest amount of time you experienced a single bout of Raynaud's Syndrome?

Can it be measured in:

View Poll

Alright, weird topic, I know, but hear me out.

I get raynauds in my nipples (among the more usual places as well). Particularly my left. When it decides to act up, I’ll be in pretty intense pain.

This got me to wondering: does anyone have nipple piercings & raynauds that affect the nipples?

If you do, does the piercing help at all? Does it make it worse? No change?

Partially for curiosity sake, partially for “maybe want to get these but also want to make sure I’m not going to end up in twice as much pain”

Disposable hand warmers (like Hot Hands) are small enough to fit in my mittens but they are wasteful given how often I need them, and they're expensive to use every day. I've tried the re-usable gel packs (Hot to Go) but they're annoying to have to boil and re-liquify after every use, and the heat doesn't last very long. A few years ago I splurged on "heated" gloves but they honestly didn't feel any warmer than just regular gloves.

For years, I've waited for rechargeable hand warmer technology to get smaller and less expensive, and they did get less expensive, but they're all still HUGE looking. The pictures on Amazon make them look like theyre size of a computer mouse.

I'm looking for hand warmers that can fit inside my mittens. Does this exist?

I understand people are looking for diagnostic answers, but this subreddit shouldn't be the place for people to ask for diagnoses. No one here can give a diagnosis, let alone give one using a single photo. This subreddit should be dedicated to helping others find solutions for everyday life. It would be great to have dedicated discussions on the best gloves, boots, socks, etc.

I want to acknowledge that I'm not a moderator nor do I speak for others in this subreddit. This post is not supposed to be an authoritative order, but rather create a dialogue about the purpose of this subreddit.

Hi. I have pretty severe raynauds that caused me so much pain last winter but affects me year round unfortunately. I was put on nifedipine 30mg ER in September because of my raynauds and especially because I had a wound on my toe that wouldn’t heal. The nifedipine was magic on my raynauds. I didn’t have a single case of chillblains or any swelling or pain or my toes going completely white. Since late September i have been having random episodes of heart palpitations. They only ever happen at night about 2-4 hours after taking my medicine (I usually take my meds then shower and get ready for bed which takes me at least an hour and then sometimes I’ll be up doing something after too). They usually happen while laying down or right as I’m falling asleep and then get made worse by standing up and all I can feel is my chest pounding and I can hear my heartbeat in my head. My doc did a 7 day heart monitor and it didn’t show anything so she thinks it’s a medicine side effect. I do also have really bad anxiety and am about to start fluoxetine once I figure out my raynauds meds, so that also probably plays a role in the heart palpitations. She switched me over to 2.5 mg of amlodipine less than a week ago. I got chillblains the day after I switched and we were going to up my dose if I didn’t have side effects this weekend but last night as soon as I fell asleep I woke up to my heart pounding and it wouldn’t calm down enough to sleep for 3 hours. Has anyone else experienced this and been able to get through it or figure out how to avoid it while continuing to take a calcium channel blocker? The pain from my raynauds is so bad I don’t even know if the random heart palpitations and messed up sleep is as bad as the raynauds pain, so I really don’t want to stop taking the meds.

i've been experiencing a flare for the last week and the tip of my middle finger is still blue for some reason. even in moments where i'm not feeling cold and my other fingers aren't blue, the tip of my middle finger on my right hand won't go back to its normal color and it's been hurting to the touch. any thoughts or advice?

I have Raynaud's flare-ups on my toes. I have PCOS (symptoms generally well controlled with birth control pill and I'm a healthy weight) but no other known medical conditions. I've had Raynaud's fare ups show up on my toes for about 10 years. Once they go white, I have to put heat packs on them, or the tissue will die and callous, and then eventually peel off. Massaging blood into them doesn't work. Can be triggered by cold (even if I don't feel cold) and exercise.

Today, when four of my toes turned white during exercise, I busted out a packet of taco bell fire sauce and rubbed a little into those toes. Omg, two of the toes immediately - like within 5 seconds - turned reddish/purpleish (like the rest of my normal toes lol) and got circulation back!! The two pinky toes were a little tougher, but only took a few minutes to come around. Continued my work out, and toes were fine. No more white toes. I assume it worked because of the capsaicin? Which opened the vessels? This is the first time I tried it (and I don't feel any burning sensation btw) so I'll update if for some reason it stops working. Idk why it would though.

Guys.. I may have found a solution. At least for me. You need to try it though. This is going to change things for me. Winter is so hard, trying to stuff heat packs in my boots and walk around with those in there, and constantly paying for them. ...man, I'm just going to rub fire sauce on my toes!!

Update #1 : it's been a couple hours now. Still no white toes. I went out in the cold to get the mail, and it's rather cold and dry in the house, and I would typically have white toes showing up again by now. The temperature of my toes is cold... they are not warm... but neither are my hands. And my toes are not white and they have circulation, so this is great. I'll be curious to see how long it will be before the effects wear off. Even if it's very soon, 2 hours is a victory. That will take me through shoveling the driveway, or going grocery shopping and coming back, etc.

i’ve posted asking before but i didn’t take pictures when the white was showing at my fingertips until now any help is appreciated

For context I got my first flare up lf reynauds and chillbains 3 years ago. It was so bad I couldnt wear closed toes shoes even in the snow. I was undergoing alot of stress during the time. This year I did therapy , was going through severe anxiety and depression and got on and anti depressant and my raynauds and chillblains are completly non existant this year. I havent changed my diet or anything else much differently with my life style... Just curious if any one has had any similar experiences