/r/QuantifiedSelf
Self tracking applications, tools, news, etc.
/r/QuantifiedSelf
The study details can be found here, along with an eligibility link (Special study for US Biohackers):
Thank you!
Tl;dr
63F, I am looking for scientifically validated wearables and devices that could help me reverse my current trend of rapid, serious health deterioration. Thank you, if you are willing to read any of this, or to recommend any devices.
The metrics/measurements I need are: (I can buy a phone, app subscription(s) and more than one monitoring device. It doesn't have to be a phone, but can be. I want the most scientifically validated device. Cost is not the most important factor, although I would like to find something on sale during Black Friday/Cyber Monday. Also need good ecosystem and apps.)
More Important
Less Important 7) body weight scale and BMI calculator which would provide data that plugs seamlessly into my health app 8) exercise metrics like steps 9) food scale that which would provide data that plugs seamlessly into my health app 10) calorie and macronutrient tracking or other innovative metrics
Long version:
I apologize for the tome. I have begun to wonder if I am autistic, and if that could be a reason for my lack of ability to be concise or to summarize. OTOH, I am truly experiencing an overwhelming number of seemingly discrete, unrelated illnesses – according to docs. I actually think one day, we may find an underlying unifying disease mechanism that could explain the seeming complexity.
My health has deteriorated rapidly over the last year, and the medical system in America, for me, is moving at a snail's pace. I have an extreme family history of various cardiovascular (CV) abnormalities, some congenital, and CV disease that has resulted in sudden death in an age range from 39 - 63. Also my neurologist is looking into MCI that may have resulted from a lacunar stroke – my father died of vascular dementia that had progressed from MCI. My pulmonologist is looking into potential hereditary pulmonary fibrosis, which my mother died from. My geneticists have already found a couple of loss of function gene variants that explain how I could possibly have so many conditions at once.
I will turn 64 in 5 days. I do not feel that I am necessarily destined for my parent’s or other relative’s illnesses, but I have already had a stroke, and my quality of life is nil as I am so sick and disabled. My hope is that I can improve, and live another 10+ years with a better quality of life. I sincerely believe that in order to do that, I have to take the reins of monitoring and testing, with the hopes that I can get my docs to collaborate with me more closely in order to get better diagnosis and treatment.
So this is not about FITNESS yet. This is about NOT DYING SOON. So the devices I go with should be geared toward health and not fitness of sports. I want to monitor the following with more than one device necessary. Cost is not the most important factor. Also I need to find the best ecosystem and health app for collating all the data, and analyzing it. I currently have an ancient iphone, and a Windows 10 PC. I am not particularly loyal to any ecosystem. I would however like for it to be able to (besides importing and analyzing data, and generating reports from wearables) import medical records – vitals, doctors notes, test results, and DICOM imaging, and to create time series if possible. I am looking to purchase a new phone and the other wearables that would assist me the most in this weekend’s Black Friday and Cyber Monday sales.
For progressive and worsening OSA, and CSA (the latter, potentially BiPAP treatment emergent,) and rapidly worsening and progressive O2 desats that my doctor is mysteriously not concerned about, I need 1) continuous SpO2, and 2) sleep study metrics (AHI, ODI, time in each sleep stage, plus more.) I am on BiPAP – my machine is a Resmed AirCurve 11 Vauto. The Resmed analysis/reports are incredibly limited. Open source software (OSS), OSCAR is great, but it has limited support for the Aircurve 11, which limits its usefulness. If I can ever feel well enough, I would volunteer to work on OSCAR to help bring it up to full support for the 11.
As a stroke survivor, and someone with non-specific borderline abnormal heart rhythms that seem to be progressing to non-borderline rhythms, I need 3) continuous BP monitoring, 4) continuous HR and HRV, 5) continuous ECG. Also my BP is all over the place, and the diastolic numbers are sometimes in the 30s and 40s.
For POTS type symptoms, I need 6) fall Alarm/SOS
Less important tracking, something I might put off for now: for overweight, I would like to find a 7) body weight scale and BMI calculator which would provide data that plugs seamlessly into my health app. 8) exercise metrics like steps would be helpful, as I still walk – like a zombie – but I still try to walk everyday. I am currently on a whole food plant based diet, which is helping my digestive system tremendously, but I still can’t lose weight, so a 9) food scale that which would provide data that plugs seamlessly into my health app could be helpful. 10) Also calorie and macronutrient tracking or other innovative metrics might be helpful too.
If you read one sentence of this. I am so grateful.
Hey everyone! I'm looking for recommendations on heart rate monitors that can effectively track HRV. I currently have the Amazfit GTS 2e, but I'm not satisfied with its HRV sampling, even with the Notify app. If there's a way to tweak it, I'm open to suggestions!
I'm particularly interested in devices under $150 that offer high sampling rates (at least once every 10 seconds) and also include sleep monitoring features. Additionally, I'd like to integrate this with Tasker or an AI assistant to operate based on HRV thresholds, so SDK access would be a big plus.
I’m also considering the Polar H10 and similar straps, just for HRV but would prefer all-in-one place device.
Thanks in advance for your help!
Hey,
Over the past few years I've been working on a side-project that I'd love to share with you. It's called Endgame and it's a step counter that tries to estimate how many steps you've left.
It also offers many other stats and uses Healthkit to sync health data. It's goofy, but it's a fun way to examine your health and lifespan.
You can download it here, an Android version is coming soon.
In July, I got a diabetes diagnosis. It really surprised me because I have been recumbent triking for the last 2 years this last September. I did 800 miles my first year and I'm on track to do close to tht again (the TX heat cut two months off my outdoor time). I've been wearing a cgm since that diagnosis. I also wear a Garmin Instinct Solar 2 (an upgrade from my Galaxy Watch 6) for tracking exercise. I wear a chest strap when exercising. I am about to get an Oura 4 and possibly an Akiita continuous bp monitor. I just ordered urinalysis strips as well.
The data that I've been tracking is starting to show that I may not be diabetic but that my body has adapted to a high carb high sugar diet. I was recently in the ER for an unrelated injury and they did a complete metabolic panel which shows that I have zero damage to my body from high glucose. Liver, pancreas and kidney function are all within normal range except for glucose in my urine which is >1000 mg/dL, indicating a slight filtration stress on my kidneys. I am getting a DEXA scan in January along with a wider bloodwork panel to look at secondary biomarkers.
After looking at gyroscope, exist.io and others, I can't find anything that really rounds it all up in a way that lets me time-sync biomarkers to identify intercorrelated data trends. Does anyone have any recommendations for apps that can do that for all the data points I have/will have? As a confirmed lifelong data junkie, I'm drooling at the possibilities available to me with these devices/tests!
Other types of questions I'd be interested in:
I'm looking for a simple tool for the average ordinary user. Does anyone know of any?
I recognise this subthread has more discussions on advanced correlational analysis of the day-to-day activities and share tools to support that, but I was wondering if anyone had come across more user-friendly ones, with less sunk cost involved in the set-up (apart from connecting apple health, calendar or other apps - those 2-3 clicks wont kill me)?
Hi folks, I am running a survey on the impact of fitness and health trackers on the understanding of individual energy levels. I am a PhD Student in Interaction Design and my goal is to explore how we might design other ways of interacting with biosignals data. It would mean a lot if any of you could answer my survey. A follow-up interview is available but totally optional :)
Survey here: https://forms.office.com/e/HtsKdvt9sh
Learn more about our project: https://www.umu.se/en/research/projects/human-centered-ai-for-health-autonomy-and-wellbeing-/
Person who posted the medical-test-tracker thing. It looks like reddit nuked the original posting account but if you're still lurking, I'm using the webapp and it's awesome! I've got suggestions and some bug reports but there isn't any contact info on the Vercel page. If you find this, hit me up.
I am very curious on knowing if there are programs that can see what you do on a daily basis, give suggestions and maybe allow for scheduling tasks although if separate programs on Windows that is also perfectly alright yet I am trying to build better habits for myself so doing this is almost a necessity.
Hey everyone,
I’ve built Trackr, an app for logging activities with timestamps and visualizing trends over time. Whether it’s tracking a specific habit or getting a clearer view of how your routines shift week by week, Trackr helps you see patterns in your data.
I’m interested in feedback, especially from anyone who already tracks their activities regularly. Any features you’d find useful? It's pretty simple now, But I'd love to add more features based on your requests
https://apps.apple.com/us/app/trackr-universal-statistics/id6736882153
Thanks, and looking forward to hearing your thoughts!
Hi there, I am making an app to make it easier for reporting individual metrics to Prometheus/Grafana. I know it takes a bit of infrastructure to fully utilize, but it really solved a need for me integrating metrics I want to monitor over time in the same database with data from other sources. Hope someone enjoys it, and if they have any feedback. Cheers.
Hello,
Is there a standard, a common way or a system for capturing/storing/grouping the data?
I don't want to reinvent the wheel and would like to use some system that is already used in the field.
For telematic data in agriculture there are DDIs. I am looking for something like that.
https://www.isobus.net/isobus/dDEntity/index
I am building a database where I collect my data from different sources to have everything in one place.
- Apple Health
- exist.io
- Diet
- Workouts
- Habits
- Times working
- ...
Thanks for your help
Hi folks,
Does anyone have any recommendations for doctors in the NYC area that are into helping their patients optimize health? As in, someone that will not look at a middling-but-not-great result and think "that's just the way it is, let's stick to monitoring this"?
Thank you!
Hey so it's really hard to find other people who are interested in quantified self so I've created a Discord server for lifelogging & quantified self folk. Let's meet each other!
Here's the invite: https://discord.gg/ZFgwHAn6G9
Hey all, it would mean a lot if you could take 5-10 minutes to take part in this survey as part of my college design project.
Link to survey: https://qualtricsxmj6ycp8thy.qualtrics.com/jfe/form/SV_dd3p5qCdb3YpGke