/r/Psoriasis
A help forum about all matters relating to psoriasis. Whether it's relating anecdotes for support, giving advice, or looking for help, all posts welcome. Important: This sub does not offer professional medical advice; always see a doctor.
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/r/Psoriasis
So since i was a kid I've always had this bumps all over me and till now as an 18 year old person it's so hard having theses can someone help me what are these and what are your holy grails when these things pops up coz it hurts so bad and it swells and so effin painful heres a pic of my foot's current state (currently saving for a check up i just want to have a heads up on what this is and what i can do to ease the pain thank you so much!❤️
Anybody just not found their miracle cream? Not in the way that it gets rid of psoriasis. But in the way that it relives the horrible symptoms such as itching, raw patches, when it’s dry the horrible tight sensation, stinging etc.
I’ll list ones that don’t work for my guttate just so they’re not double recommended: (Not including ointments, steroid treatments, etc. Just Lotions/ creams/ emollients for relief) ❌:
eucerin urea (causes me stinging and the solution is quite runny), Cerave moisturing cream (good for normal skin but not on my psoriasis), AproDerm Emollient, Aveeno Dermax (good for normal skin, not for my psoriasis, Zerodouble gel (very moisturising, but I didn’t find much relief, quite sticky and bad pump), Aqueous Calamine cream (provides some relief when a spot is sore and itchy), Simple (nooo burning), E45, Child’s farm baby moisturer, Lush dream cream.
Ones I’ve seen recommended: Cerave psoriasis cream (can’t find availability in my country) Doublebase flare relief & the gel one (will buy soon to try)
Currently I’m in a full body flare up but absolutely nothing I can do about it. The only thing that has ever worked for me is phototherapy/ Uv light therapy. However, it is a 2 year or more waiting list. I’ve waited a year so far
Hi all - I hope I am not violating the rules of this sub with this post. My wife has psoriasis and has a Panosal 2 National Biological UV Light therapy machine. She used it occasionally over the years but has since been in a good place with her psoriases and no longer uses it. I am here to donate it to someone who can use it. It is virtually brand new and works great. It is very large and would require local pick up in the San Francisco Bay Area. Please DM me if interested.
I’ve had guttate psoriasis since December. It started early December but didn’t get diagnosed until the end of December. It only seems to be getting worse and not better, so I saw my dermatologist again today. I’ve been going to UV appointments 2x per week and using clobetasol ointment on my skin and foam on my scalp. Because it’s getting worse and not better, my derm recommended switching up ointments and wants to put me on Keflex, 2x per day, for a month! I don’t have strep and didn’t have it prior to my guttate outbreak, so I don’t understand why she’d recommend I take antibiotics for a month. Does anyone have any experience with taking antibiotics for a month, or at all, to treat guttate?
Tell me it isn’t just my imagination that my psoriasis is about 3 times worse for an hour after getting out of the shower? Should I have cold showers?
I recently had to swap from Otezla to Rinvoq due to Otezla's god-awful side effects. I was so depressed, but it was the only thing I've ever tried that's even worked for my psoriasis (severe scalp and plaque psoriasis). My doctor recommended I swap to Rinvoq, but I was wondering if any others have gone through this, what y'all thought about Rinvoq, etc.
Let's hope that Rinvoq doesn't have similar side effects.
I was on a biologic for 2 months which cleared up like 90% of my psoriasis. Then, I enrolled in a study for a new drug which required me to go off my biologic for 4 weeks. It also requires 10% of my body to be covered in plaque psoriasis... the only issue is? Its been 2 months since my last dose and my psoriasis has only barely returned. On my lower arms (my biggest area) its just mostly a red rash, that's it. No real plaques. My scalp psoriasis is effectively gone.
This might sound crazy, but my first appointment is in only 13 days. Is there a way to temporarily bring back my psoriasis?
Part of the reason why I want this is because I am on medicaid for my biologic... and I know that wont last long. I also desperetly want to try tarazepide for my other autoimmune diseases (yes, I am aware 50/50 chance i wont get it) and my eating disorder. This study is basically my saving grace.
I am not sure if they would just count left-over redness as plaque psoriasis. Or if they could just take my pre-biologic pics of my psoriasis as evidence that I had moderate-to-severe plaque psoriasis? What is something that can quickly cause localized psoriasis flare ups?
Also, to those saying "thats bad for you!" it probably is, but its important to note that the psoriasis is going to EVENTUALLY come back regardless. Its not actually 'gone' in these areas (arms, scalp etc).
Hi everyone,
I (27, nonbinary trans masc) found this subreddit last night after an urgent care visit bc of pain due to genital inflammation. The itching was very subtle for a few years and my previous OBGYN attributed it to my hysterectomy (had it at 21 due to cystic issues and gender dysphoria) I didn’t think much of it, just annoying. But over the last 2 weeks the itching got super intense and started having flakey skin and crazy amount of irritation. I tried your typical at home remedies (Epsom salt bath, vagisil, warm soap and water, unscented lotion, OTC vaginal itch cream) the OTC cream burned like crazy so haven’t used it since. The only things kind of working are warm water+soap and unscented lotion (Doesn’t entirely go away but it’s better than nothing). Doc and I are suspecting P because of my UC. I got diagnosed with UC in 2021.
I’ve been on Balsalazide for a couple years now and I’m scared it’s not doing its job anymore since having this skin inflammation (Mesalamine stopped working as well, I only use suppositories as needed). Also found out my dad has P in his armpit (The patch looks the same as mine and we have the same symptoms, so I’m basically accepting my fate at this point) and also has had gut issues my entire life that I can recall.
I’m starting on Nystatin-Triamcinolone ointment today and if it doesn’t work I’m supposed to go back for a biopsy. Sorry for the back story (very anxious yapper). I’m really scared of getting sick again with a UC flair because of this new issue :( My medical anxiety is extra heightened bc I don’t have insurance currently (Just started a new job and coverage won’t start until Late March/April). I did get married recently and am seriously considering going on my wife’s insurance bc of this.
I guess what I’m trying to get at is:
1.) Has anyone had good results with Nystatin-Triamcinolone ointment?
2.) My GI said if my current meds don’t work I will have to get infusions, has anyone else had infusions with UC and P? Did they help? Pros/Cons?
3.) Should I hop on my wife’s insurance or wait until my coverage from work starts in a couple months? I don’t know the severity that P can impact on UC/IBD so trying to assess best course of action
4.) Any general advice is appreciated. I am extremely anxious and don’t know what else to do.
Thank you <3
hi everyone. my scalp psoriasis has been flaring on and off for the past few years, and now it has come back stronger than ever that even applying topical treatments have no effect.
i’ve seen a lot of review about oils and applying it to scalp to soften the scales. would you recommend applying the oil first then the cream, or reverse?
I recently started Uni and met a girl who quickly became my friend. I have scalp psoriasis and on bad days it looks like I just shot a white confetti cannon when I remove my hat. I spent ages waking up with blood all over my pillow because of scratching in my sleep. Anyway, this woman finds out about my psoriasis and immediately asks "can I pick the skin off your scalp?". No sympathetic words and treatment suggestions, no "awww that must be terrible" which usually just makes me want to cover up more. Zero judgement. She treated it like it was just normal and it was the most freeing thing I've ever experienced. I've struggled to remove my hat in front of partners and now suddenly I feel more comfortable than I ever had before. She puts my head on her leg and picks it off, not treating the flakes like its the plague. After getting so many comments like "do you even wash" and "dude whats wrong with you" for so long this was life changing.
I'm not bragging that I have a kickass friend, I just want you guys to know that these people do exist. There are people in happy marriages and their partners help apply their creams and uv. There are friends that will make you feel seen and and understood. You are worthy of love and affection from other people. More importantly, you are worthy of love and affection from yourself.
My apologies if this sounds preachy, I know many of you have it a lot worse than me and I have no way of understanding how that feels. Good luck out there.
What should I know before starting taking it? Any advice would be helpful. Thanks
How do people feel about dating with psoriasis, I’m personally struggling and want to create a dating only with psoriasis group.
Had guttate for the first time 2 years ago following 2 bouts of tonsillitis within a month of each other. It eventually cleared up really nicely after rigorous moisturising, salt baths, and steroid creams, never to be seen again… or so I thought.
I had tonsillitis again at Christmas (I’m a teacher and constantly surrounded by germs) and here we are again for round 2 🤦🏻♀️ This time, I live in a new country and my husband is away for work for 2 months so my back is really in a bad way and I don’t know the language well enough to explain to doctors what it is.
As a side note, I think kids in this country are more polite as only one has asked me why I have spots all over my face!
So I know it’s one of the two. I got it years ago after my scalp was double bleached. What have yall done to improve it? It’s so bad.
I was wondering if anyone has had luck with changing their diet for better skin or if there’s a specific diet I could look into.
I’ve tried so many topical solutions and shampoos without much success, so I’d really appreciate any guidance. If anyone has recommendations, I’d be grateful!
I’m not trying to get emotional but idk what else to do at this point.
Hi has anyone here have success switching from cosentyx to tremfya or any IL-17 to IL-23? Thanks in advance.
Ive had success with cosentyx but as most of the biologics its effectiveness wore off.
I have moderate-severe psoriasis and PSRA currently taking Tremfya. It was very well controlled on Stelara but I lost coverage via insurance for it. Tremfya doesn’t seem as effective but I’m early in TX.
Any way, my boyfriend has soooo many cool tattoos and I’m really envious. I don’t have any tattoos but want so many BUT - I’ve always hesitated because of my P. Does anyone have experience getting a tattoo with it? Does it heal well or trigger flare ups? Does the tattoo get ruined by the P if you do flare up? Do you have any experience with artists who might not feel comfortable tattooing you at all?
Thank you for sharing your experience - google doesn’t give me much advice.
I got a prescription for methotrexate. My psoriasis isn’t too severe, but it is in many places and annoying to treat. I am wondering if I should try to nuke my psoriasis with Enstillar and duobrii into remission before trying methotrexate. Typically, I stop applying steroids when the flares disappear/ aren’t itchy anymore.
In your experience, is really strict steroid application daily effective to put it into remission?
Also questioning what diet changes I should make in conjunction with methotrexate/ in general. I am not a heavy drinker, but I do eat dairy and bread. Trying to cut back on processed food. I’ve read that drinking more water is beneficial.
Any home remedies that have truly helped? Also how does anyone afford treatment?
I’ve been suffering with psoriasis since I was 18 I’m now 25 and my mum has psoriasis too so I’ve been using her treatments for it for it because she has a medical card and I don’t and the creams can be quiet expensive. Recently my psoriasis has gotten really bad and nothing will help it keeps getting worse it’s now covering all my upper body in spots and patches and I’m in a lot of pain everyday does anyone know can you just get biologics straight away and how much does it cost in Ireland
Hey there,
Years ago before I got scalp psoriasis, I took plexus after a friend recommended it to me. I only stayed consistent with it for three weeks, wasn’t needing it to lose weight, so I ditched it. I didn’t notice any difference or I cannot remember. I have had severe scalp psoriasis since 2021, and I am kind of desperate to try anything to get into some sort of remission. I want to avoid a scam- but I’ve been on the pharmaceutical treadmill for a long time and nothing has worked. I already am on a “clean” diet. Has anyone tried this or have had results with this ?
I started taking Ciclosporin a week ago and my wife has said since about that time, my breath smells worse.
I did read that Ciclosporin can cause gum overgrowth and that can cause bad breath, but it said it'd take at least a month for that to start happening if it was going to, and more often 3-6 months.
My diet is pretty much the same and my oral hygiene is still the same too so I don't believe it's a result of that.
Is this a side effect anyone else has experienced?
I was just prescribed Sotyktu anyone have any reviews? I’m worried about the side effects they look serious
Hi all,
I have gotten sick only once in the past 16 years (M19) and only gotten an infected wound once (i get a lot of wounds due my activities outdoors) I am looking at going on Biologics. Would this be affecting my immune system? I love that I never get sick and don’t want to start getting sick or having to worry about infected cuts so just want all your opinions/advice.
Thank you :)