/r/Psoriasis

Photograph via snooOG

A help forum about all matters relating to psoriasis. Whether it's relating anecdotes for support, giving advice, or looking for help, all posts welcome. Important: This sub does not offer professional medical advice; always see a doctor.

NOTE: This sub will go dark on June 12-13 to protest upcoming Reddit changes!

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/r/Psoriasis

46,659 Subscribers

2

Anybody with psoriasis/PsA and RA? Med question!

(I have Psoriasis, PsA, and RA)

If so, what biologics do you all take? And do they work for both? I was on Humira for a while and loved it, but insurance wouldn’t approve the bump to weekly that my rheum wanted. Everything else I’ve taken has helped one, but not the other…. Even though everything I’ve taken is marketed to both.

Currently on Inflectra, and it’s done amazingly for my RA, PsA, and plaque psoriasis, but holy hell, has my inverse psoriasis gotten out of control. Anybody else have this issue? I’ve been on it about eight months now, so not likely an initial flair in psoriasis symptoms (which I did experience with Humira).

Seriously considering going back to Humira unless you all have recommendations to share? Especially if your rheum added a combo-friendly dmard to biologic for this reason? Thank you!

4 Comments
2024/03/31
00:39 UTC

1

Should I use a moisturizing conditioner with coal tar shampoo?

I’ve started coal tar shampoo in an attempt to get my scalp under control. 3 days so far without much change. Would using a moisturizing conditioner reduce the effectiveness of the coal tar shampoo?

3 Comments
2024/03/31
00:31 UTC

1

Humira misfired, need help

Tl;dr at the end; I've been taking humira every other week for the past 2 or 3 yrs with the help of my mother (i'm too scared to do it alone lol) in the stomach. It used to just slightly pinch but recently it's just been hurting real bad. About 20 mins ago, i went to do it and it hurt so bad and i was pinching the skin wrong so the needle pulled out and the actual medicine leaked all over. Is there anything i can do better next time or to fix the issue that i probably didnt even get more than a few drops in? Has anyone else ever had this happen?

Tl;dr: needle pulled back into the pen and squirted the medicine out so i got no more than a few drops, what should i do?

14 Comments
2024/03/30
23:42 UTC

1

Steroids and scared of TSW UK

Based in the UK

I’ve had psoriasis on my scalp for a little over 2 years now, it started as very small patches and unfortunately, because of anxiety etc I do pick at it and make it worse.

Over the course of 9 months it got much much worse and spread all over my scalp and more annoyingly, onto my hairline and down my forehead. I’m a 27(f) and it’s really affected my confidence, I had a fringe cut in to hide it but it didn’t really help and just irritated me more.

I was prescribed an ointment at first but it was useless as I couldn’t apply it to my scalp properly and wasn’t really doing much. I was then prescribed Mometasone 0.5% scalp solution which I reacted really well to and it faded away almost completely. I then stoped using it as advised and yep… it all came back worse that before.

I also cycle between a mint hair oil to calm the itching and salicylic acid treatment before I wash my hair once a week, I use Nizarol shampoo for the psoriasis and follow with my “normal” shampoo and conditioner. Annoyingly had a lot of hair fall out too, the coal tar products are too harsh on my fine hair and I was getting more stressed out about the amount I was losing leading to my psoriasis worsening.

I’ve now used it 3 times over 4-6 weeks with breaks in between over the last 9 months but I’m so scared of possible TSW that I want to stop before it becomes a possibility but that then means I have to put up with psoriasis all over my scalp and forehead which I do not want. I still react well to it and it clears up every time BUT every time I stop, the psoriasis comes back.

The GPs I’ve spoken to don’t seem very informed as they say “the guidelines say” and I’ve asked to be referred to a dermatologist but they keep prescribing me Mometasone and ignoring me - how worried should I be of TSW on 0.5% and any advice on non steroid treatments?

1 Comment
2024/03/30
23:26 UTC

0

Does water fasting help?

I recently heard from someone that they water fasted for straight 72 hours and the patches nearly disappeared. I want to ask if anyone has tried this type of fast before and if it actually works?

P.s. I am on a fast rn (18h in)

8 Comments
2024/03/30
20:21 UTC

10

Finger Cots For Tan Ppl

I’ve been going through these cotton finger cots like crazy for the past few years. They help keep topicals in place and protect any skin splits/flares happening. I got smart this year and started washing/reusing them. Last week I had the great idea to dye them tan so they didn’t appear dirty and so obvious that I’m wearing them. Worked like a charm! I used an old plastic bin, boiling water, salt, dish soap and the Rit dye. I followed all the instructions on the Rit bottle except I had to leave them to soak for hours instead of the 30 mins. Used the rinse and spin setting on my washer after soaking. Anyway, thought I’d share if anyone else was looking for skin colored cots like I was. All I could find was white and blue.

2 Comments
2024/03/30
19:33 UTC

9

hair loss

Hi- i’ll keep this short. I’ve been dealing with scalp psoriasis for about a month really bad. I have had a bunch of hair loss. I feel like i’ve been able to get rid of a lot of the thick scales that the hair had grown into. my scalp seems mostly just dry now, however i’m still losing a ton of hair. anyone been through this? it’s taking a toll on my mental health. Any advice would be very much appreciated :)

11 Comments
2024/03/30
18:50 UTC

1

HELP BIOLOGIC SKIN REACTION URGENT HELP NEEDED

Had a Skyrizi Rissankinamab injection yesterday legs painful itchy what do I do?

9 Comments
2024/03/30
17:50 UTC

1

Skyrizi injection site reaction HELP !!!!

I had 3 infusions with Rissankinamab no problems then the 4th was 48hrs ago an injection in to thigh since then red hives itchy can't walk without it hurting can't sleep went to hospital they said they can't do much & gave me a benadry Been on many biologics over 15yrs never a site reaction but this is like Wasps & hornets are stinging me please what would you do if you were me? & yes,I'm never taking it again I'm going to go to jak inhibitors. But the issue at hand?

10 Comments
2024/03/30
17:46 UTC

2

Psoriasis and corticosteroids

systemic corticosteroids (tablets, injections) are strictly contraindicated for psoriatic patients, due to the risk of erythrodermic psoriasis and pustular psoriasis (the most serious forms of psoriasis after stopping them

4 Comments
2024/03/30
16:59 UTC

2

I have these spots on my elbow, knees and ankle and it's not itchy.

7 Comments
2024/03/30
16:14 UTC

0

Dry spots on elbow area and lower legs?

1 Comment
2024/03/30
15:57 UTC

1

Glutathione

Hi! I'm asking for a confirmation because my cousin said that his psoriasis were not inflamed anymore because he took 3 doses of glutathione (injected) per month. As a person that is new to this information, is this true?

7 Comments
2024/03/30
15:53 UTC

9

Recently diagnosed, have questions

Hi, I (21F) recently was diagnosed with plaque psoriasis. I've been experiencing symptoms for at least a year before this though, but thought I just had really bad dry scalp and a terrible skin picking issue. I would compulsively pick at the flakes/plaques.

I found out about psoriasis and ended up making a derm appt where they did a biopsy and I was diagnosed. I used prescribed clobetasol solution which worked like a charm and got rid of pretty much everything for about a month, and then it came back (less strong this time though, maybe because it's new).

The dermatologist also said my plaques were very red and very defined, and they gave me some sort of injections in my scalp.

I'm trying to identify my triggers and what may be causing the psoriasis. I have a bit of a sugary drink habit, which could be one of the causes. I also deal with a lot of stress in my life because I'm a college student with a job and I have other personal stresses. I think my psoriasis began during a particularly stressful period of my life.

My psoriasis is exclusively on my scalp, and pretty much only around the edges/hairline and a few inches above the hairline, but the top of my head is completely patch-free. Is there a reason psoriasis would appear on only this part of my body?

Lastly, what has worked for you in terms of treating/healing your psoriasis? I'm terrified about the higher risk of so many other diseases like diabetes.

Thank you!

25 Comments
2024/03/30
14:32 UTC

3

Head coverings

I have scalp psoriasis and have managed well with it for a long time. About 8 years ago it started to get uncontrollable uncomfortable and itchy. I resorted to an undercut a couple of years back, and this helped immeasurably. Since then I've only had a few minor flare ups. I'm happy with what I've got.

However over the past month or so, the plaques have started to appear further forward at the top front of my head. My options here are more limited. Put up with it, treat it creams, or shave the lot. I find the creams easier to use and more effective when there is no hair in the way. The plaques also clear up quicker and appear less on my shaved areas

I really want to shave it, but as a woman I'm worried how I'll look. I'm in no means vain, but I also don't want to have a scabby head on show for everyone to see. I've looked at some head coverings and they look great. They will take some practice to get right and I'm confident I can manage it. But all the pictures I see are either white women with long hair and scarf as an accessory, or black women with no hair on show. I'm white. Will it look like cultural appropriation? Or will people assume I'm having chemo? I don't particularly want to explain to people why I'm wearing it but I also don't want them thinking bad of me for coming up with a solution that works for me. Am I just overthinking this?

10 Comments
2024/03/30
11:03 UTC

3

Kefir usage

I have been reading about using kefir to help combat psoriasis by drinking it daily as well as applying it to the skin directly to help re-introduce good bacteria. I am curious if anybody has tried this? If so let me know what your experiences with it were

8 Comments
2024/03/30
10:14 UTC

1

Out of control ‼️

I was diagnosed with appendicitis back in September prior to that my psoriais was much in control and only concentrated on abdomen,back and upper arms but I was put on heavy doses of antibiotics due to appendicitis and after stopping the medication my psoriais is now out of control I used to manage it well but now it doesn't seem to be in control..what can be the reasons? Is it due to the antibiotics? My mental health is in shambles😔

6 Comments
2024/03/30
08:47 UTC

7

Relationships with Psoriasis

Mostly just posting this to ask for some reassurance that you can find someone to be with having psoriasis. My first flare up that started this all caused my long term partner to leave because it was too much. Since then I haven’t found a lot of hope for the future in this regard. It definitely reinforced the idea that I am not loveable this way. Plz prove me wrong.

16 Comments
2024/03/30
04:17 UTC

2

Thoughts and experiences on methotrexate?

I’m currently waiting to hear back from doctor for my blood work to see if I’m approved for methotrexate. Just wondering if you can share your experiences with it. According to my bloodwork I might have some indications of decreased kidney function. I’m wondering if anyone else has dealt with anything similar. Thank you!

1 Comment
2024/03/30
03:33 UTC

5

UK Dermatology Outpatients

TL;DR: Can you continue biologic treatments if you move to another region within the UK / can you transfer the treatment to another hospital?

I have a question that UK people being treated as dermatology outpatients may be able to answer. Basically, I want to know what would happen to your hospital-prescribed treatment if you move to another region in the UK. I've been on immunosuppressants for years but my psoriasis is out of control and I've been dealing with really bad side-effects so I'm supposed to be hopefully starting biologics at some point maybe hopefully (waiting for my next appointment to discuss). So in the case that I do eventually start on biologics - do I have to stay in my area permanently to continue treatment? I ask this because there are limited job opportunities near me and I may need to move to another region for work. If I do that, is there anyway to transfer the treatment to a hospital in the new region? Or do you have to start all the way from the beginning again e.g. get referred to hospital by gp, wait a year or so to be seen, go on immunosuppressants again for years, then finally be eligible to try biologics? I ask this because I'm actually interviewing for a job in another area which would be a 3-hour commute, and I don't want to lose my treatment by moving closer so I'm considering dropping out of the interview process. This specific job aside, I want to know if I just have to stay in my local area forever if I want to continue on the path to getting biologics. On a related note, doesn't it suck that we can't just get up and work in another country to experience something new because we would no longer be able treat our stupid severe out-of-control psoriasis? Sorry, I'm waffling now! I'm in a really bad flare up and it sucks.

13 Comments
2024/03/30
03:26 UTC

8

Psoriasis hair loss advice/treatment

I have pretty bad scalp psoriasis and I’ve tried fixing it since I was 19 (I am 22). I tried using clobetosol solution and ketoconozol but they make my scalp itchier and I tend to scratch more often making it counter productive. Before psoriasis I used to have really thick hair to the point where combs would get stuck I couldn’t rub my fingers through it without resistance. Now in the areas where there is psoriasis (pretty much every where, hairline, sideburn area, crown, along sides of head, back, etc) there is noticeable thinning. I notice that there are sometimes baby hairs in the area after my hair falls out but they don’t last very long. It also looks like my hair is receding because I have psoriasis pretty bad on the corners of my hairline. I don’t think it’s male pattern because I don’t think my family has that also I’m quite young. Is there any treatment or reversal of this or do I just have to accept this is what my hair is like now. I added a picture for context that red stuff all used to be pretty thick hair and now it’s a massive bald spot (same on the other side). If you can’t tell that’s the corner of my hairline. Any treatments or advice would be appreciated.

10 Comments
2024/03/30
00:24 UTC

2

Question about piercings…

I’d like to get my nipples pierced , is that a bad idea with psoraisis? I think I may have had maybe one plaque on one of ‘em some years back before going back on my medication, the other one I’ve never had problems with.

4 Comments
2024/03/29
18:07 UTC

3

Can you use uv psoriasis light on nipples and boobs?

I get psoriasis scattered on my boobs and around my nipples and was wondering if I could use my at home psoriasis uv light lamp on it?

4 Comments
2024/03/29
17:45 UTC

8

facial psoriasis

I’ve got P for abt 6-7 years. Over the last few years, i made a mistake of applying a corticoid like daivobet on my face whenever the situation get worse (usually once a week or every few days) cause it seems to be the most effective treatment on my face. For the last few weeks, i started to realise it’s no longer as effective and my facial skin (especially my forehead and eyebrows) got so much worse. doctor gave me tacrolimus (0.03%) but i don’t think it’s effective. I suspect it’s due to the corticoid rather than psoriasis at this point. Above is my forehead after applying some moisturiser. Is there any derm here can help me ?

6 Comments
2024/03/29
15:20 UTC

1

is there's any possibility to fully cure psoriasis if both of your parents have it?

hello! engish is not my native language so i'm sorry for possible mistake.

im 16 and i have psoriasis. it all started when i was about 12 and i had a patch of dry skin, size of a walnut on my side and eventually it disappeared. i've also had a lot of dandruff since then. somewhere in autumn i started to get a lot of rashes and they were tiny all over my chest, belly, back, legs, arms and a little bit on my face.

in february i got diagnosed with guttate psoriasis and received treatment in the hospital for ten days. it became a lot better and i thought that it was over, but now, a month later i have psoriasis all over me again. this kind of made me lose hope in ever recovering especially knowing that both my parents had psoriasis. my mom still gets the dry patches on her skin and i don't know how it affected my father, sin he's long gone.

I'm really scared and i try to hope for the best. just wanted to know if ill ever will be able to get rid my psoriasis. thank you for reading <3

3 Comments
2024/03/28
17:31 UTC

2

who knows which form of psoriasis this is? maybe tips

i have a lot of these on my arms, knees, back. but not on my stomach, inside arms etc. who knows which form this is, and any tips?

4 Comments
2024/03/29
11:08 UTC

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