/r/Psoriasis
A help forum about all matters relating to psoriasis. Whether it's relating anecdotes for support, giving advice, or looking for help, all posts welcome. Important: This sub does not offer professional medical advice; always see a doctor.
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/r/Psoriasis
Does anyone have any experience information after starting Otezla. Did your skin lessons and scales worsen after starting it?
Hi everyone, well I have a question. I have had psoriasis for 11 years now, but I just realized that one part of my skin started to turn black. Do you think this is normal?
Hi, my partners dad has what appears to be psoriasis, he's not the best at looking after himself, I'm trying to help out a bit but a bit overwhelmed by all the information and treatment options.
I myself used to have acne that never went away with any topical treatment, but for me, low dose (5 mg) accutane turned out to be basically the nuclear option that completely cleared it for me - is there anything similar for psoriasis? (whether pills or injections or? seems simpler to go for something like that vs having to constantly apply creams and take baths and shit)
It seems like some folks have food triggers, what are some of the most common ones? (he has diabetes, does that factor in?)
Sorry if these are basic questions that have already been answered a million times - like I said I've done my research but instead of help it kind of just overwhelmed me.
Apparently foods like gluten and dairy products don’t have an immediate effect on my psoriasis, but I have cut them out for two weeks and this hasn’t made much difference either. Can food that don’t immediately trigger allergies still be inflammatory to you? Or does dieting take longer to work?
I recently had strep throat twice within a month and shortly after my first bout of strep I started noticing small red dots on my abdomen, now 3 weeks later after my second bout it’s literally all over my body and spreading further everyday. Saw a dermatologist today who prescribed me some creams to help.
I’m posting to hopefully find out some more info from anyone else in this position. I’ve read quite a bit on here already but am mostly just looking for some reassurance I guess.
anyone else have a diagnosis after strep? How often have you broken out since then?
what helps you with your breakouts the most? Creams? Light therapy? Biologics? Anything like an epsom bath help? Have you tried light therapy AND a tanning bed, if so, which worked better for you?
how much does stress in your life contribute to your breakouts?
how long do your breakouts usually last on average? And also the shortest and longest recovery times? My biggest fear right now is having this on me forever.
Any and all information is greatly appreciated. Thanks in advance
Why do the majority of you push biologics all the time?? I feel like every post I see has TONS of comments about biologics and how great they are, etc. Biologics aren’t necessarily the best medication for us, because they compromise the entire immune system as opposed to conventional DMARDs which only affect the particular part of the immune system that causes the inflammation. While I understand the want/need to get cleared up asap, going straight for a biologic right away isn’t necessarily a good thing for most of us, especially if your immune system is healthy. It pains me to see some people going for a biologic right away, especially if they’re young (under 70) and in relatively good health. The older we get the more we need to protect our immune systems and keep them as healthy as possible. Biologics aren’t necessarily the answer, even if your doctor suggests that. You need to remember that doctors get money for prescribing medications, especially if that doctor has a contract with the pharmaceutical company supplying the drugs. The doctor will try to push whatever meds they get the most money for, without taking your health into consideration, and this happens a lot in southern & midwestern states.
I’m not saying that biologics aren’t helpful for anyone at all. I’m just saying that some of you need to start off with something less invasive as a medication, because you’re causing more damage to your body than you think you are and it’s unnecessary. I’m also saying that you really need to do your research on medications and how they’re going to affect your body, then ask a lot of questions about it. Ask multiple people about the medication you’re researching and thinking about taking, so you’re as informed BEFORE beginning the medication as you possibly can be…especially if your doctor is trying to get you on a biologic. Researching your particular variety of psoriasis is also super important, because not all medications are helpful for all varieties of psoriasis. There are six different types of psoriasis, each with their own origin point and way to treat. The one thing that I’ve noticed in all my research is that all types of psoriasis involve a three pronged approach to treatment: medication, cream/lotion/topical, diet & exercise. I’ve noticed that the majority of the people who are on biologics or suggesting them aren’t doing the other things, the lifestyle things…the lotion/cream/topical and diet & exercise changes. There has to be a point where you tell yourself enough is enough and you make the necessary changes you need to in order to feel better and be more functional like you used to be.
I say this with care and empathy. I’m not here to attack anyone or make any of you feel bad about how you’re caring for yourself. I just see some of you all suffering when you don’t need to be, and it pains me.
*I know everyone is different and at different stages of disease progression, so this doesn’t apply to everyone. Some of you legitimately need a biologic, but it seems like most/a lot of you probably don’t. Take this as you will, but please don’t make it more than a grain of salt. I genuinely want to see you all feeling good in your body ✌🏼
Ever since I’ve started getting psoriasis on my eyelids my eyes have been so dry lately and I’m wondering if it’s connected or unrelated
Hey! I’m a 21 yo female in college. I make about 400 every two weeks and the copay for getting light therapy is about 450 a month with getting it 3x a week. Has anyone had any luck getting around this? Specifically with Anthem Blue cross? Thanks ❤️
Hi guys , I'm struggling with psoriasis for like 15 years now and just found this sub. Last 2 months I've been struggling A LOT with scalp scales even though I was pretty good while only using a sampoo. My scalp is pretty much only scales and plates now. What should I do? Is there a brush to use when I shower? Is there anything to use to make it soft and then remove it? Ofc it will never go away 100% but I just want the big scales and plates.
Gonna meet my derm next month but just wondering anyone who currently took Methotrexate, what will the dr check before them treat you with mtx. Cause every year i will always get 1-2 times fever due to tonsilitis and worry this might affect it
Is there common ancestry for people with psoriasis ?
I am currently on my 2nd Ilumya maintenance dosage. Two weeks after I had it injected, I noticed I had hives coming out all over my face and my body. It is too itchy- it goes out when I take antihistamine. Comes back after 24 hrs off from antihistamine. My derma said its probably nothing (or bed bug bites- which I never got before). Anyone had the same experience as me?
Is anyone experiencing sensitive teeth after being diagnosed with psoriasis? I feel like my teeth are getting more sensitive, even though I eat the same food every day.
My ex-wife ended up getting prescribed injections before the unit arrived. We divorced and I have this stand up light unit just taking up room in my basement. If somebody would like to inquire please message me. It was almost $6000 and it never left the box!!! They wouldn't take it back. I'll make whomever the best deal for this thing. I really want somebody that needs it to have it.
Halloween is tomorrow and I’m wearing clown makeup. I have psoriasis around my nose and forehead. What’s a good and affordable hydration base.
Hi I have a literal grocery list of medical issues but the most important to this are lupus,sjogrens,neuropathy and chronic pain. My doctors think I have psoriatic arthritis without skin lesions. For those who’s don’t know sjogrens means my body attacks all the moisture producing cells in my body and because of this my skin is miserably dry.
My questions are as followed, have any of you been diagnosed with psoriatic arthritis without any skin lesions? Then secondly can you describe your pain/ itching in your skin? I have had a long and consistent skin routine full of a wide variety of butters and oils that are rich in ceramides and occlusives. I use colloidal oatmeal and lactic acid lotions basically if it’s a body cream I have tried it. But even with medication my neuropathy in my skin has been miserable. It feels like hot little needles are pricking me. I use numbing creams and sprays when it is really bad but I know this is something that isn’t typical for my situation. So it’s either this or two other diagnosis and I am trying to help get some info.
P.S. I always hated all the posts in the lupus and sjogrens subs asking “does this look like ____” so I apologize for this but hopefully this is specific enough that it doesn’t irritate anyone. Thank you so much for any insight you may have. I am always open to new product recommendations.
Hey all! So as the title says I so far have had an allergic reaction to 3 different biologics, I started on humira and it started to clear my skin and helped my joint pain, I was on it for about a year in that time the effectiveness lowered plaques and pain came back, I started getting injection site redness and swelling and then a rash would spread across my abdomen, arms and chest and stayed for about 3 weeks. The rash on top of the psoriasis is literal hell.
We stopped the humira of course and a couple months later was able to start stellara. After the first injection I had the same reaction as before with the injection site redness, swelling and rash.
After more months of fighting with Medicaid and applying through financial assistance I was able to get a few doses of ilumya. After the 3rd injection I had the same problem as the first two meds.
Because I am on government insurance it’s been about two years of fighting and constant denials of medications my rheumatologist and dermatologist have wanted me to try, doctors wants me on taltz or cosentyx, Medicaid will only cover renflexis. It’s literally been 5 years of me trying to get them to cover something, constant back and forth and ultimately stonewalling me into taking this renflexis infusion.
I’m nervous about it and am wondering if anyone else has any experience with renflexis? Maybe I’m just nervous and wanted to share it with somebody. Thanks for anyone who made it through the novel.
Hi all, I'm looking for some feedback to improve patient apps for people going through clinical trials and I'd love your help if you're interested (one of our upcoming studies is for psoriasis which is why i'm posting here). DM me so I can send you a calendly link. Thanks in advance
Hello. I (42f) am using Dermovate lotion (Clobetasol propionate) for my scalp psoriasis for 4 years now. And I am experiencing some hair loss. I don't have bald spots but it is thinning and I don't like it. I read in the leaflet that Dermovate CAN in some cases cause this. However the internet says Dermovate is also prescribed for hair loss in women. So I am confused now. Does anyone on here experience hair loss caused by Dermovate and how do you deal with this?
I 25f have been dealing with psoriases since I've been 11. I've been using steroid creams and every three years I do the light therapy which usually works wonders. But because of a rather stressful period, I've gotten quite lazy with taking care of it. I know stupid but usually it didn't flare up this much. Unfortunately the stress and getting a cold two months in a row probably triggered it to get worse . I have alot of scalp psoriases and it's also on my legs, elbows, feet, back and even my armpits. I'm going back to my dermatologist on the 6th so I hope they will be able to help me. Steroid cream also made my skin alot thinner and gave me stretch marks so I kind of want to get rid of it. I just feel horrible about myself and had a crying fit the other night venting about this to my bf. I know he find me beautiful but it's really hard to feel sexy when you are covered in red itchy spots. I know it will get better but it's just so hard to deal with it sometimes.
Has anyone here ever had toxic shock syndrome?
If so, how did your body react to it? I read online that it’s possibly a streptococcal infection and I always have a severe flare up when I get strep throat.
Obviously it’s not strep throat but just wondering if anyone has any info on this. Btw I’m also on Taltz (biologic) if that changes anything. I’ve never had strep throat since starting biologics so I’m not too sure what to expect
Anyone who has had positive results from supplementing vitamin D, how long did it take to see a noticeable difference?
Anyone with guttate ever had such spots before? Normally I have quite reasonable sized droplets but these are very small and barely visible if you don't focus on them. Appears around the elbows, forearms only for me, currently doing pretty good being off meds for 4 weeks however I saw these pop up just this week.
I just started narrowband/light therapy 3x/week for my psoriasis that has gotten rapidly worse in the past few months. Has anyone had success with this? I am also currently waiting to be approved for a biologic but who knows if that will happen. Pics to not get lost in the feed.