Cream absolutely DOES NOT work for me and my dermatologist even said it’s way too bad for that. I had the strongest cream. Everyone says diet but I’m not trying to go to food prison for the rest of my life. What works? Fixing my vitamin levels? Sunlight? I don’t think I can take cosentyx forever cause it seems like my body is starting to reject it or something cause last time I injected it, I got a welt where I did it which went away overnight but still… that’s not good I think

I can’t stop picking on my scalp!! What to do i tried almost everything.. is there a scalp lotion or sth to apply daily?? I feel like my scalp is like falky desert and picking on it makes me feel like letting her breathe by removing these flakes,, also i think that actually harms my scalp than benefiting it.. but i developed that habit that embarrassing to say it release my stress and anxiety sometimes .. what to do i want to stop hurting my scalp..

I've been taking Otezla for a week, as of today. I've always had a sensitive stomach, for background, I get nauseated very easily, and that seems to be a pretty frequent side effect I experience with Otezla. I've noticed, within one to three hours after I take it, I get very sick to my stomach, I was just dry heaving this morning...Anyway, I was just wondering if anyone else here has experience with Otezla, and how long these side effects typically continue, and if they really do stop eventually. Thanks in advance, I'm trying to figure out whether it's worth it to continue on medication that makes me feel miserable 🙃

For anyone that has had success removing or reducing sugar, how long did it take to make a difference? I’m reducing my refined sugar intake for various reasons and just wandering if it was to make a difference to my psoriasis how long it would take to notice

Coincidence or cause? Weather got much colder at the same time. Thanks

Good morning, can anyone please help me? My doctor keeps forgetting to send the prednisone prescription to my pharmacy and I need to know any home remedies to try to cope until someone gets me a medication that works. I have lost hair, my skin is cracking open and bleeding and burning. If anyone knows any home remedies please help

does anyone else experience EXTREME body aches and stiffness on the day of their injection? i feel as though a truck has ran over me. my bones are achy. neck and back stiffness and lower back aches so bad that even laying down is uncomfortable. this was my 4th injection. i experience this every time i do an injection. feels like i’m poisoning myself 😞

I’m begging for any advice. I’m newly diagnosed and the flare is going insane and spreading to face too. I have been waiting for two months to see the dermatologist, they are just booked out. I have tried oil, hair masks, shampoos before I even saw my primary care. He gave me a solution and cream that didn’t help. I have also have changed my diet. It seems to be worsening. Face (including eyes) and chest are now scaling. My skin on scalp/neck feels tight, and when I turn my head it’s SHARP and I think cracking. It has been oozing clear liquid all day. I’m using a hair mask right now to hydrate it but I’m lost and at the point of tears. Please, any advice or wisdom.

I've had psoriasis and psoriatic arthritis for the last 20 years.

Been through every diet change, ointment, injection there is on the market. Every one has worked differently, some with not nice side effects (looking at you methotrexate!).

Just started Tremfya and here's the difference in 2 weeks, with regular Savlon and Momentasone ointment applications.

It's like this over my whole body except my face.

All I can say from my experience is yes, try treating the condition at the source where you can, cutting alcohol and cigarettes etc. I believe gut health has a lot to do with helping symptoms.

But if you get plaques like mine, Savlon has been my best friend in softening and keeping them at bay.

It's in my nails and I've had to remove 7 of my toenails at home (I've got pics for any freaks that want to see what that's like).

Here's to hoping this new biologic can help me and keep it at bay!

I went out this evening for the first time since my guttate psoriasis a few weeks ago. I was completely covered up (easy in winter!) as the rash covers pretty much my entire body but my face.

The night was generally going well, I was having a good time catching up with friends and meeting new people. At one point I was sat next to a guy chatting, he was flirting and saying how good I looked, but surely I was hot in here in that outfit. In the spirit of openness and confidence or whatever I said that I was, but that my skin wasn't great at the moment so I wanted to cover up. I pulled the neckline of my top aside slightly to show one of the better areas.

His response was to say "Oh", then immediately turn around to talk to someone else.

In that moment I felt awful. So ugly. So undesirable.

I know not everyone would respond like that, but I can't imagine a situation now where I'd be comfortable trying to date while I still have this condition.

As an overweight woman I already have one obstacle to being attractive to people, now I have another, and my self esteem is at rock bottom. Mix in a lifetime of depression, some anxiety and a touch of emotionally unstable personality disorder and I'm getting genuinely scared that the loneliness will trigger another suicidal episode (or several) and this time I'll actually succeed.

I keep trying to remind myself that this usually only lasts a few months, but then what if I'm one of the unlucky ones that doesn't recover quickly? What if I develop plaque psoriasis as a result and it's somewhere I can't hide? What if every time I get a sore throat, the guttate psoriasis comes back? I'm scared I'll become a hermit, too scared to mix with people in case I get ill.

I don't want to keep writing now because I'll just spiral, but yeah. I'm miserable, I'm scared, and I feel very lonely.

i’m not entirely sure how to proceed with what i have been experiencing. i’ve got a flare up along the top entrance to my inner ear. my dermatologist prescribed me clobetasol propionate for my scalp and other miscellaneous flare ups on my body, so i’ve been putting that on a q-tip and applying it around my ear. it works moderately well, but the results aren’t lasting and i’m sort of suspicious that the flare up might travel a bit further into my ear than i can reach. i’ve been having a sizable amount of discharge from my ear and it’s quite irritated, especially in the mornings (i try to sleep on my other side but always end up rolling onto my problem ear in the night). with all of this being said, i am unsure whether i should visit with my dermatologist or if this is more of an ENT type situation. has anybody experienced this yourselves, and how did you proceed? thank you so much in advance for any help <3

I've been using parasite Blast detox cocomplex that I order online and it seems to working parasites hate papaya, oregano, garlic, chili anything that has to do with that killed them also

43m here. I've had Psoriasis since I was around 25. I've had PSA since my early to mid 30s. I recently had to get off of Stellara, which was working, because now I make too much money for the pharmaceutical company to give it to me and insurance won't cover the cost. My joint pain has gotten to nearly debilitating in the last month, mainly knees and elbows. The plaques have come back with a vengeance also.

Is there anything I can do to get around these companies? I'm going back to my primary care Dr soon and I want to know if it will again be all for nothing.

I've tried multiple medications with varying results. Enbrel was ok but didn't last, Otezla did nothing. Stellara worked amazingly for both symptoms.

Any advice is appreciated.

Was on skyrizi for 5 years and it worked flawlessly. After an insurance delay, I decided to stop taking it and see what would happen. To my surprise, my guttate psoriasis stayed mostly in remission for 13 months. It slowly came back thiugh, so I got back on 11/15, when p really started to affect my face.

I also got a triamcinolone injection in my foot joint last week. To my surprise, all— and I mean all— of my psoriasis has almost disappeared. No more flaking, all skin has turned white again, and only some residual dry skin remains.

I’m sure the cortisone injection had some systemic effect, but I’m not discounting skyrizi getting back to work promptly. In any event, if it was the cortisone at play, I’ll keep this in mind in the future if I need some immediate relief.

I don’t think I need as heavy of a dose as I originally took. I’m considering foregoing my second loading dose and just riding it out every 90 days. I may even try 120 days from there if I don’t see any symptoms.

Hi, I'm 54/f/USA, diagnosed with Psoriatic Arthritis and Psoriasis. I'd say Psoriasis is mild compared to some I've seen, but I have it in my ears, on my scalp and ugh, my upper eye line (literally where you'd put eyeliner). I also get it on one knee? And elbows, which is fairly newish for me. And you know, wherever else it decides to pop forth and annoy me. My Rheumy had me on biologics Humira, Enbrel, Taltz etc for years until the pandemic where I went off everything except whatever creams and solutions I had, and since my Dermatologist was super generous, I still have some to this day, because I'm extremely frugal with it, probably more than I should be since I haven't seen anyone for anything since 2020, and that was Zoom Dr. visits. I'm running low on the skin cream, so I'll need to book an appointment soon. So Hi, anyone else with mostly head/face/ear Psoriasis? Are there any new magical potions the dermatologist could give me? I think I have mometasone furoate cream and ointment for most things and flucocinonide/ fluocinolone solution for my scalp.

TLDR: Haven't been to the dermatologist in four years, my stash is getting low, any new topical or oral treatments since I've been?

Finally saw a dermatologist and he started me on methotrexate and also gave me more clobetasol ointment. I’ve never been so happy to be prescribed more medication 🥹 I really hope that this will help. Clobetasol clears me up for like two weeks before it acts up really bad and I’d then have to stop at the 3 week mark and my skin would get really bad again. I’ve been dealing with pustular psoriasis on my hands, feet and groin since March but it has been awful. I’ve been struggling to walk and do any basic tasks. I’m luckily off work for other reasons but it’s been awful. I have no idea how anyone could deal with this for longer. This is the most positive I’ve felt since I started getting it.

I just really want to share my good news to people who understand!! Thank you for reading :))

I've (32f) been on Cosentyx for 6 weeks. The psoriasis on my face continues to grow rapidly. How long until you saw results with Cosentyx?

my psoriasis has recently gotten quite bad it’s consistently been on my hands for the past 2/3 years and has recently appeared on my neck as well I am so embarrassed by it I feel like I can see people’s facial expressions change as soon as they see it and the constant questions “is it a rash” “is it contagious” “omg that looks like it hurts!” just constantly being brought up and I’m just wondering how everyone deals with the mental health and embarrassment side of it? I want to learn to love myself with it since I will always have it but I’m just constantly so embarrassed and sad about it and I want to try medicine but I’m terrified of the side effects that medicine could have I just don’t know if it’s worth it just to have clear skin

My family dr diagnosed me eczema but I believe it's psoriasis

Hi all, I've had scalp psoriasis on/off since the age of 12. I've used numerous shampoos but still struggling to find a good one that helps with the itchiness and flaking. My hairline is currently in (ok) condition but its mainly the top of my head towards the back that is worse at the moment. I'm also a huge skin picker which doesn't help! I'm currently using Aveeno but does anyone have any good long-term recommendations aside from Nizoral or T-Gel? (UK based)

TIA!

I (M44) of south Asian background requested a size zero on the side and back. They (South Asian shop) looked and said I have too much Dandruff. I clarified that it's psoriasis and well moistured and won't be an issue. I have a stubborn visible plaque in the area where the hairline ends.

He saw the plaque and told me he can't use a trimmer because of health reasons. I asked him if he can use size one instead. He refused. I had to walk away in embarrassment on front of other waiting customers. This is the same place that cut my hair many times, with worse flare ups. Not sure what changed this time

The walk home wasn't pleasant. I am not even mad at him. Just wanted to vent and take a load off my mind amongst my co-warriors.

This is a bit of an info dump. Feel free to add your own thoughts or if you ever come across a probiotic source for this, please share it!

I came across some research thanks to a user here.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9884668/ - "Indeed, administration of oleic and stearic acids exacerbated psoriasis-like symptoms" this part stuck out to me, as I and others have noticed that eating a lot of beef either triggered or worsened psoriasis. Beef fat is high in stearic acid. So I read more....

What this study is showing, is that high levels of Prevotella bacteria produced more of these fatty acids. Whereas higher levels of Parabacteroides distasonis produce anti-inflammatory fatty acids and stimulate more bile acid release (more on that in the next paper at the end of this post).

Prevotella also increases the production of inflammatory cytokines, including IL-17A, a signature cytokine of Th17 cells. IL-17A drives inflammation and is central to the pathogenesis of autoimmune diseases like psoriasis.

Some Prevotella species can affect gut barrier integrity by increasing mucus production or altering the gut microbiota composition. This can amplify immune responses and promote Th17 activity as part of a feedback loop.

Unfortunately the only place I can find Parabacteroides distasonis is through laboratory distributors for cultures and it's quite expensive. I can't find any source of it as a probiotic pill or the like.

Taking Gentamicin seems to kill off Prevotella, but I feel like that isn't wise. I think many health issues are due to anti-biotic usage, and so it may end up causing some other dysbiosis.

PDF - https://www.nature.com/articles/s41392-022-01219-0.epdf?sharing_token=3MFOUdZs_9iLo-AhLtgEStRgN0jAjWel9jnR3ZoTv0NsUFLRskYfd2L3Tun3DQlgr2Mbn8OZhu7Pt4e3ykOQIPHsXd_9MLsIGOShPqSiBUx7y5dg86Io2Uz0zmtRGV0oo5Mo6k8JKpxg_7OHLR4mlZPEzmx5T2EbU-dBh8sQ7Nw%3D

This additional paper https://gut.bmj.com/content/72/9/1635 shows that "The secondary bile acids derived from P. distasonis, namely lithocholic acid, deoxycholic acid, 3-oxolithocholic acid and isolithocholic acid, were found to mediate the antiarthritis effect and could inhibit T helper 17 cell differentiation".

So it is possible that taking these bile salts in a supplement might be a reasonable alternative until someone finally makes a probiotic with Parabacteroides distasonis in it.

I was recently diagnosed with psoriasis and need to apply cream behind my ears and around my hairline daily. The problem is that it makes my hair really greasy, which has been quite embarrassing for me. Has anyone else dealt with this? If so, I’d really appreciate any tips or advice.

Thank you so much!

Hello all, does anyone else have experience with psoriasis and braids? I would like to get my hair braided but after some worrying accounts of flare ups being caused by the tightness of the braids I'm quite paranoid. Currently I am not experiencing any flare ups, and only have the few typical spots of fine white scales.

I have done braids with my natural hair and it lasted for 2 weeks, I didn't have a flare up during that time. Could doing looser braids lessen the risk of a flare up? Thank you for reading, I hope you have a great day :).

My prescription bottle says to take care in handling and disposal of medication. I asked my pharmacy for more info and the guy I dealt with just said “it says to be careful handling and disposing of it” and nothing else as if I’m supposed to know exactly what to do🤦🏻‍♀️😂 No hand out with the medicine information was given to me either which they usually do.

Can anyone enlighten me what this may possibly mean? Google says to be careful handling it in general and going to the bathroom so I’m now even more confused.

Edit: In case it matters location wise, I live in western Canada

So, backstory. I had my hair bleached and colored ginger orange (not willingly), then later that year got it almost platinum blonde. After doing the platinum for like 5 months, I started noticing that there’s scabs on my scalp. I thought maybe I just needed to condition my hair some more (I do have dry scalp and Ik coloring hair doesn’t always help), so I’d massage my scalp and condition my scalp the best I could without making my hair totally oily. Finally at one point, I decided to dye my hair again (I wanted brown, but got her black) and decided to not do anything with my hair anymore after that. The scabs did lighten up a bit, but out of no where got SO MUCH worse. This was 4 years ago. Ever since I saw this one “stylist,” I’ve had nothing but scalp issues. I was friends with a girl who was a cosmetologist and she said they are chemical burns from using off-scalp bleach, so we did a lot of conditioning treatments. They did help, but only for a short time. We did it like 2-3 times a week. Fast forward to February of this year. I got diagnosed with seborrheic psoriasis, which I am the very first person in my entire family for both sides to ever be diagnosed with any kind of psoriasis.
I do still color my hair, and when I do it actually makes the condition feel much better. I’ll wash my hair after having it colored and BOOM, scabby patches and itchy and I will scratch it and they will bleed pretty easily and of course flakes fall everywhere. It makes me feel so dirty 😢. I was told to wash my hair once a week, twice a week if I did heavy exercising using zinc shampoo. It helps, but not for long. I have 2 scabby spots that feel like they’re glued to my head and no matter what I do to try and get them of lighten up or go away or whatever, they just bleed profusely and won’t budge. I’m miserable, all I do is scratch my head and the only way I can make it stop for a little bit is to put my hair into an extremely tight ponytail and then it’s usually okay for a bit. But washing my hair makes my head sooooo itchy and will sometimes burn after a shower. I’m so freaking miserable. Does anyone have ANY kind of advice, help, etc.?? Please??

Hi! So i took my 2nd skyrizi shot on September 12 and my pharmacy is shipping my next dose this week do i have to complete the 3 months or is it flexible and I can take it a couple of days earlier? Because my psoriasis is starting to return and I want to take it as early as possible

Hey all,

I was supposed to start Skyrizi tonight but made a mistake while injecting and pulled out using the auto injector (Terrified of needles).

Has anyone else had this experience and if so how was the process of getting a new dose.

I feel like a moron for wasting it