In the middle of the night I get a hysterical call from my dad age 56. He has always had issues with his eyes (glaucoma)..but this night he said he woke up and everything in his good eye looked orange. We were able to make appointment with doc the next day and he was diagnosed with AMD. I believe the doc said blood vessels had burst or something like that. I'm so heartbroken for him and just don't know how to comfort. He got his first injection that day and due back for thr next one in 4 weeks. It's only been a week and he says no improvement..im clinging on for hope for their injections. Any one else have experience with the injections?

I asked a question here for a friend with MD, and everyone recommended AREDS2.

But, looking at Amazon, there seems to be many AREDS2. Which should he buy?

[Update my friend is in England. Can anyone recommend some AREDS2 available there? Good rather than cheap

Hi,

I spent over £1000 on glasses with a new prescription for myopic AMD but for some reason they are not helping improve my distance vision unless I push them in from the side slightly. The opticians I bought them from are refusing to do anything and now I am stuck with them and at a cashloss. The optician just says it's my vision but when i adjust them slightly my vision becomes sharp. Is there anything I can do?

​

Thanks

Hi, i go to a elementary school in Estonia and when you reach a certain year in the school you have to do a research paper about a certain subject you like and the research is very important because you cant finish the class when you dont finish it. The subject i chose was "The eye and its most common diseases". And at the end of your work you have to do an interview with multiple people or a survey. I chose the interview and i am questioning multiple people, this is one of the interviews. My goal for this research paper is to find out more about the human eye and its diseases and how is it to live with one of the named diseases in the research paper. I would like for one person to answer these but the more the better. These questions are about the person and their personal experiences with macular degeneration. Thank you!

1. What type of macular degeneration do you have?
2. How old were you when you were diagnosed with macular degeneration?
3. How do you see and what do you see in the eye(s) with macular degeneration?
4. How much does macular degeneration make daily life more difficult?
5. What part of the macula is affected?
6. If you have wet macular degeneration, when you treated it, did you get your vision back to how it was before?

I got enough data thank you to everybody who answered.

I’m supposed to have severe macular degeneration. But I don’t have central vision loss. When I look at an Amsler grid, I see all over wiggly-ness. No big holes, and certainly not any central hole or worse vision in the center.

I’m also curious if you guys can see the pattern of your geographic atrophy in a street light or a headlight. Mine is a fish!

My father had macular degeneration and now my sister does. I don’t but my optometrist suggested eye vitamins called MaculaHealth. Do you know if it matters what time of day I take them?

My wife who has retinal degeneration tried the AVP today. Was a major disappointment - the pass-through AR was simply not bright enough to be of much help when using it as a visual aid in anything other than an extremely bright environment - even in the store itself which was fairly well lit the pass-through was much dimmer and in dim light it would likely be useless her. The demo person didn't seem to be aware of any adjustment that would compensate for this. We'd be very grateful If anyone could inform us of any known tweaks for this.

I have AMD and I have great difficulty in reading small print. Currently my only computing device is an ipad, the smaller model. I’m OK with anything I can do in my browser, because I can pinch to magnify the text, but most standalone apps don’t support this. When all else fails I can take a screenshot and pinch that, but that’s a time-consuming procedure.
I’m thinking of getting a large monitor, either to use as an external monitor with the ipad, or maybe with a new desktop. Is anybody doing this? What kind of equipment are you using, and are there any issues with resolution?

Hello,

I’m 27F and I have been having some wild symptoms with my vision the last few years that no one’s been able to give me answers to. I’ve had all the testing done on all the machines at the optometrist and most recently was referred to a neuro-ophthalmologist because they couldn’t find anything obvious enough to confirm any diagnosis and they think it could be nerve related.

The waitlist to be seen by a neuro-ophthalmologist close to me is a year long.

Since then, I’ve also received my DNA test results back and I have the gene that predisposes me to AMD.

I know I’m 27, though. But here have been my symptoms:

• suddenly onset blurred vision
• sudden extreme sensitivity to light
• Difficult adjusting to dark places & need brighter light than I’ve ever needed
• sudden crap ton of floaters (not super squiggly, mire like black lines) in my vision
• I don’t recognize faces until I’m up close to them now (which is embarrassing for me considering I’m very social)
• Tracers occasionally where my vision gets like static light or bright halos in one eye and I can see primary colors (blue, red, bright yellow) which is also scary because it has happened while driving and I had to pull over
• I’ve had headaches sometimes that comes with these changes in my vision (I’m not a headache person)
• my eyecup always gets comments at every visit and I was considered a candidate for glaucoma for the last few years until my most recent visit & there haven’t been any major changes with it that would align me to a glaucoma diagnosis and my symptoms have changed so much
• I’ve also had swelling in my eyes where they have been hard for me to open
• I have also experienced anisocoria where only one pupil suddenly dilated in the middle of a conversation I was having and it took a full day for it to start to go back down to normal, but haven’t experienced that sense

Could this be early onset wet macular degeneration?

Hello I'm 20 (M) and I've been experiencing some weird things with my vision. So every once and awhile I get these black dots in the center of my eyes. They aren't floaters where they move freely, this dot follows wherever I move my eye and I can't see through it. These holes started in my left eye, it started off small and has gotten a little bigger now. The past 2 days I've started seeing the same hole in my right eye but very small and not as often. In dark rooms, in my left eye I sometimes have night blindness or just blotches of all black spots to where as though I can barely see. I went to an eye doctor and she told me she saw nothing, I told her what about the night blindness and she told me to see a specialist. That was a couple months ago, I haven't seen the specialist due to my insurance and unable to find one that I can get in contact with when I'm available. My vision has gotten blurry for things farther away, sometimes my vision is good and sometimes its just bad. I'm really scared and I just don't wanna go blind, I have a specialist appointment finally scheduled for this coming Monday and I'm just so nervous and scared. I'm only 20 and I've just barely lived and I just need some advice and stories and if it sounds like I have a Macular Hole or AMD.

A lot of these don’t even have the proper other ingredients. I’d like to find one with everything else in the name brands, but no zinc. Budget friendly would be great. A lot of these have horrible shipping costs.

Thanks!

Did anyone come across a solution for either preventing AMD in just one eye from propagating to the other eye or better yet, prevent further deterioration of the eye that has the AMD?

So I have read multiple studies regarding beta-carotene supplements increasing the risk of lung cancer, especially in those who smoke cigarettes. But what about lutein supplements?

The only study I have found regarding lutein also being one supplement besides beta-carotene to increase the risk of lung cancer is this one --> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2842198/
But it is from 2009.

I also want to add that I found this study from 2022 that says that lutein does not increase the risk of lung cancer -->
https://jamanetwork.com/journals/jamaophthalmology/fullarticle/2792855

So my question is, do lutein supplements increase the risk of lung cancer or that is based on old studies and new studies prove lutein to not be dangerous?

I have found four more studies that I haven't read thoroughly yet but will in due time, and I have linked them here below for those who might want to take a look;
https://www.mdpi.com/2072-6694/14/20/5159
https://www.frontiersin.org/journals/oncology/articles/10.3389/fonc.2017.00023/full
https://www.sciencedirect.com/science/article/pii/S0002916523240915
https://www.cambridge.org/core/journals/british-journal-of-nutrition/article/association-between-lutein-intake-and-lung-function-in-adults-the-rotterdam-study/65182F3B24451A86223638A4A0D3A33E

Anyway, I am writing here because I thought maybe someone might have some answers to my question. Appreciate all the help I can get!

How many people here have Central RPE atrophy and how bad can it get? would it be fixed if took the shots? (if its avalible here?

My optometrist diagnosed me with early onset macular degeneration (dry) and recommended AREDS2. I tried it several times but the zinc just upsets my stomach so badly.

I bought two because it was on offer and they are expensive. I have an unopened second box which I'd happily give to someone who wants it. It expires July 2024. Anyone?

. Would like to take a multivitamin with it. Do not want to get too much of any one thing. Does anyone take a MVI with eye vitamins?

Humor helps me when I’m a bit stressed like visiting my eye doctor. Got any eye doc jokes for me? One I’ve used: How many optometrists to change a light bulb? One or two, one or two?

I use plenty of artificial tears, cold compresses, take large amounts of prescription fish oil and ARDS, push to stay hydrated, and my eyes are really dry and itchy.

Does anyone have any tricks they can share for this? I have to admit I used a drop of Visine red eye last night, but that's only the second time in a month. Is the only issue here rebound? Or is there another reason to stay away from them?

Hey guys , I have morbus Stargardt (stargardt disease) should I take areds2 formula or is it just effective for md?

I heard they are better than vitamin E and excess Vit E can inhibit their effects.

I'm 68. and my dry amd has suddenly turned into wet amd. I had shots in both eyes two days ago and I'm still recovering.

What I would really like to know, particularly from people with wet, but also dry, if you could go back in time and give some wisdom to the person you were at the very beginning of this path, what would you tell them?

I am actually pretty scared. I have limited mobility - a lot of back and foot surgeries. I am on oxygen 24/7 for no reason anyone can figure out. Now I am looking at losing my sight, and so far my body has not been reliable. I'm pretty sure a lot of you have felt this, so what would you tell your earlier self to make this easier?

Hey everyone, was hoping someone could be of assistance especially with experience on how stargardts is diagnosed. I have been suffering with visual static, flashing lights etc for years but in the past 12 months I have been having sort of a permanent Grey blob in my central vision, only noticeable when blinking and looking at a screen or at night. I also have flashing lights in my central vision when going from a dark room to a light room and vice versa. I have seen a macular degeneration specialist, who ordered an ERG, multifocal ERG, autofluorescence, and multiple OCT scans of my eyes. Everything came back clean but I got diagnosed with visual snow syndrome. I have been assured there's absolutely no signs of retinal or macular dysfunction. I have above 2020 vision in one eye and 2020 in the other (with pinhole) With experience, do you think I can attribute these central vision symptoms to the visual snow, are these tests used in the cinching of the diagnosis of stargardts? Thank you so much in advance.

She's taking drops. We got supplements. But there are treatments seems very expensive... has anyone experience with this and know? Doctor said it's necessary...../helpful?

Just found this sub, and I'm grateful. I was always told that AMD was not hereditary, so I just mentioned it in passing when I had my eye test, and she checked for it and found the beginnings of it. My Aunt and my cousin both had it, my Aunt had both wet and dry, and I'm absolutely terrified at the thought that one day, I might need the injections. I'm fine with needles, but really squeamish at the thought of anything to do with the eyes. Please reassure me about the injections, or at least tell me what to expect?

Thank you!

I've had pretty regular vision my whole life. I got glasses when I was in kindergarten and have had a big of change in prescription as I've gotten older, nothing crazy though.

36 now and haven't had a chance to get to the eye doctor in the last couple years (always went when I needed a prescription renewal before).

Anywho, a couple months ago I was on antispasmodics for something unrelated and started having weird vision issues. (Circles of lightning, Dr. Strange style when I'd close my eyes or go from a screen to the dark when going to bed). Then, I started to see straight lines as wavy. Like the cabinet handles in the kitchen or edges of things.

The pills made me super sick in a lot of ways so I stopped taking them but those symptoms didn't go away even after some time.

Maybe two weeks ago I noticed with one eye closed I wouldn't see full letters on a screen or page. They looked blocked and chopped, my other eye was fine though.

Started researching and came across the Amsler grid test and the self diagnosis I guess of macular degeneration? It just seems like I'm very young as far as diagnosis goes, but have seen a few younger folks post so, idk. No history in my family at all.

Just curious if the seeing straight lines as wavy is a 100% shoe-in that I have it or if there's anything else I should know. Trying to find an eye doctor to get to ASAP but honestly don't have the extra $300 to drop ATM.

Any insight is more than welcome. Thanks so much.

My grandfather (93) went completely blind today on both eyes. Doctors stopped his injections 3 years ago because ‘it would do more harm than good’. He has wet AMD on both eyes.

Him not being able to move freely and being %100 dependent on my already sick grandmother is extremely difficult. Is there any tested or experimental treatment that we can get him to restore his vision back even just 1 percent?

I’ve heard stories about people going from fully blind to barely not blind after restarting treatment, is that the case at all?

Also is not being able to get shots on eyes after a certain point a common case? All 3 professors we went to said so, yet i can’t find people treated like this on other forums.

Sorry for the long post. Hope you guys have a wonderful day.

I am now 36 and I was just wondering how common it is for people my age to have MD?

24F . Don't smoke. (Binge) drink sometimes but recently quitted drinking. Have done psychedelics and ketamin in past but also stopped doing that.

1,5 years ago i started seeing starburst around lights at night. I didn't think much about it till suddenly 1 year ago i also started seeing it during the day. It kept getting worse and worse. Right now i can't see in the dark anymore, anything that gives light is out of focus (screens, etc...) and gives me after images and my depth perception and peripheral vision is also impared. I have also issues with processing things that are moving fast which makes things like gaming almost impossible. Since 4 months i can't drive in the dark anymore and since 2 months its also getting harder and harder to drive during the day since my peripheral vision and depth vision are getting worse and worse. I also have reduced contrast in my vision and colors also seem slightly washed out. If i'm reading text on my phone it also looks like there are some pixels missing and if i'm very tired its like the text is wavy and shiny.

I already went to 2 eye doctors, both couldn't find anything wrong. 2nd one thought it might be my optic nerve and gave me thiamine and b-complex since i have a history of undereating. Been taking those for 3 weeks now, haven't noticed any improvements in vision.

I don't have any family history of eye disease. But saw in my 23andme that i have a gene for age related maculadegeneration

I'm worried since i don't know what is going on and i'm scared that it will keep getting worse. Does anyone know what this can be?