Hello,

Does anyone have suggestions for products/activities that would be mentally stimulating for an elderly person with advanced macular degeneration?

My grandmother is 99. Up until a few days ago, she was in assisted living. She fell and now she’s been put in a skilled nursing facility. I work full time and can’t be with her all day. So, she’s essentially getting zero stimulation all day because of her low vision. She can’t read books, can’t see the tv, she can’t see a tablet/iPad, she can’t even use the oversized playing cards for people with low vision.

I’m looking for things that she could do by herself when I’m not there and also maybe activities/games that she and I could play when I visit.

I have thought about audiobooks but she’s also hearing impaired and gets frustrated when she can’t understand someone speaking on tv or on the radio.

I get yearly eye check ups and last year the eye doctor saw drusen and diagnosed me with AMD (I'm 30).. this was during a period of mysterious illness. A few months later a retinal specialist said it was not macular degeneration, but drusen-like and likely caused by inflammation due to an autoimmune condition. Has anyone else went through a similar process? No idea why I got sick yet but it was curious to consider autoimmune as cause to macular drusen. No drusen present in the previous years.

Hi, this will be a bit long so appreciate anyone who gets through it!

A few years back I suffered a macular hole via blunt force in a car accident. I underwent a vitrectomy that successfully closed the hole but did not regain any vision I lost. Eventually my retina specialist deemed my injured eye stable. For context I had preexisting myopia (-6.5/7) and astigmatism in both eyes.

Post vision loss, depth perception has been a struggle and I feel as if I have to exert so much extra effort in order to focus on screens, text, details, etc. otherwise I feel like my eyes drift and “blur.” I noticed that since I only have peripheral vision in the injured eye it’s adapted to turning so it looks like I have a lazy eye. Since this level of effort to focus my sight has increased so I’ve gotten concerned about what my future will look like.

At some point, will it be an overall improvement to cover the injured eye so it doesn’t interfere with the functioning eye? Are there any ways I can improve the way they interact so it lessens strain?

I’m only 24 and honestly just scared for how this may continue to negatively affect my life.

I meant that a did a lot of exame but my retina seems ok. Photophobia and after image could be related to probkem of retina ? Maybe little problem that devises don’t detected ?

Hi everyone, I am a university student who is currently working on a research essay. The topic is assistive devices for people with different kinds of visual impairments, and any concerns people may have when using these devices. If you have any experiences with this, I would appreciate it if you could take my survey: https://forms.gle/dBguV7m5ZuCenEwk8

Thank you so much!

Dry AMD in both eyes for seven years. Right eye diagnosed as wet on 10/9 and I had first shot of EyleaHD that day. Second shot 11/6. Protocol calls for first 3 shots 28 days +/~7 days apart. Dr scheduled mine for 6 weeks. I’ve called and emailed but no response. Am I right to be concerned about this? Thanks for any input.

Does any country provide surgical procedures to fix dry mascular degeration? (Currently in usa)

I had a sudden bleed with scar tissue 7 years ago. With injections, it hasn’t gotten any worse but my center field of vision is shot. I’ve had to start taking eye drops to keep the pressure down since all this started (never diagnosed with glaucoma before). I’m diagnosed with moderate to severe glaucoma now, with optic nerve damage and peripheral vision loss.

They say I have a pretty bad cataract and that removing it should improve my peripheral vision. At the same time, they will do something to increase drainage in hope to get me off some of my drops

I’m scared to do it. The lens in that eye will have different vision (corrected for distance) than my good eye (near sighted) and I’m afraid that’s going to cause more vision problems than it corrects.

I’m also just afraid of more procedures on that eye. I don’t want to lose what I have.

Any advice? Anyone gone through a similar thing with only one eye?

Hi, first of all sorry if my english is not good but i reallly need advise.

I got liquid behind my retina 5 years ago, i was seeing blurred at first, i went to the doctor and they told me it will go away on it's own.

Well after a while everything was more blurry, colors were dull, everything distorted.

After 2 years they finally checked me again (so this was in 2023) they told me again i have a macular edema caused by liquid or something like that, but since it was 4 years since i have it they were gonna do surgery to remove it.

1 year later, the appoinment came for the last check before the surgery, that's what i thought, they checked me told me i don't have liquid anymore and said to me that was it, i told em i was seeing the same as before, the doctor replied with "that is irreversible damage, we can't do nothing"

So now what? deal with it? i can sue the hospital? in the case of irreversible dmg for taking so long to treat, shouldn't be the doctor (it was the same doctor everytime) responsible for my vision loss? we pay 40% taxes for free heath, and i even went to the private one and reffered me to the public one, so even if i had money wouldn't mattered.

It's that it? i "lost" one eye for incompetence heatlh system (like i said i went to the private, and he suggested me doing in the public since they were the same doctors) so the excuse of, you shouldn't wait that long and paid for private can't be use as an excuse.

What if i have the same thing in my main eye later?

What can i do in spain to have a second opinion without having tons of money? a normal private clinic always send me to the public for this things, so idk what to do and even if there is no fix, how do i find quick and reliable private doctors to not loose my other eyes in case that happens?

I'm very frustrated, and again, very sorry for my poor english

My dad has both wet and dry MD, has been getting shots for years now, I don't know any of his vision details. He says he's getting worse, his retina doc said he'll never improve. Dad lives in an assisted living facility and thinks there must be a more expert doctor who can help him, and that in Germany they're doing experimental treatments. He lives in Knoxville, TN. I ache for him in this situation, he was a lifelong reader, and is scared about the future.

SO: are there nationally recognized MD treatment docs or centers? For someone of his advanced age, would he be considered for experimental treatment?

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One week today had post-op visit - doc informed blurry vision i have now wont change much until SO removed in three-four months.. even then no assurances that I'll have even 20/40-50 in my left eye.. can anyone contribute w their experience related to acuity after SO removed ??

What do you know or think about iolAMD as a hope for those with wet and dry AMD?

Why nobody sees it as an option when talking about AMD?

Understand this is just available in Canada for now, so know this is a bit of a longshot, but does anyone here have experience with this device?

Anyone who have had treatment by Valeda light delivery system for dry AMD?

Is it really effective? In which countries is it available? Does it worth a try?

Please help.

https://www.businesswire.com/news/home/20241104299697/en/LumiThera-Obtains-FDA-Authorization-of-Valeda-Treatment-for-Dry-AMD-Patients-to-Improve-Vision

In 2017 I had a retinal peel and cataract removal. Shortly afterward I developed a macular hole I actually pointed out in images to the (elderly) doctor. Luckily it resolved without surgery in about 3 weeks. I also have end stage glaucoma and non diabetic retinopathy (genetic) and ischemic optic neuropathy. Forward to today, I’m scared to death about tomorrow where I’m having my second occurrence repaired by a new, younger (same university practice) with a “very large bubble” along with another peel. I developed a secondary cataract in the surgeried (left) eye in the new lens. Does anyone have experience or suggestions on best practices in recovery to save my eye? It has less than 25% visual field remaining without treatment. The right eye is so far, 20/30 but has a large, ripe cataract. I’m an artist, writer and musician and I’m petrified to lose driving privileges and that’s where most of my angst is coming from.

TIA!

I know about protecting my eyes outside, but what about inside my house? I have huge windows for views. I know the windows protect against UVB (?), the UV that gives us sunburns, but not all the UV rays (A and C). I've ordered a card so I can test my windows in my home and side windows on my car. Should I be concerned about my windows at home?

Can I take thes two suppliments together daily? Or is this too much. Is going this route even beneficial? I have intermediate AMD in one eye.

Looking for opinions, examples, & pros/cons of best home devices that make tasks manageable for visually impaired people. For example, setting air fryers, coffee pots, etc. (Digital screens & small lettering are super hard to read.) Looking into Google Home, Alexa, smart plugs, etc. TIA.

I took my 64 y/o mom to the doctor because she was having trouble with her vision. After some tests and scans, the doctor explained Wet AMD to us. And suggested a treatment plan. As he was speaking, he wrote down the names of 3 injections that we can choose from. I can't seem to read the first one. The other two are Eleya and Vabysmo. Do you know what the first one is or can you understand his hand-writing?

https://preview.redd.it/q2052vruxvxd1.jpg?width=1600&format=pjpg&auto=webp&s=56224f8748e7f38e95e4da552e41f54d7b154f1a

Hi I am a student (22) from India i have been diagnosed with MD when i was 16 I always struggled with exams but always managed to get me through it but i have always had this query and no resources, since my doctor always told me it's not possible as i am not eligible for the certificate, I for a really long time wanted to obtain a certificate of person with disability as it will provide me an aid to help me through the exams since a doctors note or declaration does not always help this was suggested by my doctor please do not pass any judgement hastily and I apologise in advance for hurting anybody reading this post i don't feel the most comfortable to ask for this as I understand it's not the worst thing that can happen but I just want to have the opportunity to write my exam at ease and not have this feeling in my head that sayss "its maybe because of your vision" my vision is good but reading texts for long periods of time creates black dots and small er fonts are sometimes hard to distinguish while computer based tests are a combination of photosensitivity and difficulty in distinguishing between alphabets due to small font sizes.

again I am not trying to take advantage of a very important document or hurt any one please be nice thankyou

Ps i absolutely love to have stumbled upon this community it has helped me so much

Any ideas my vision became blurred after the injections when it wasn't before?

Promising clinical trial involving patients with advanced AMD:

https://www.wired.com/story/science-corporation-neuralink-eye-implant-restored-vision-blind-people/

Has anyone had photobiomodulation therapy (lumithera) from valeda - available in asia and Europe?