/r/maculardegeneration
Macular Degeneration / Age-Related Macular Degeneration (AMD) is an eye disease that involves a degenerative process of the macula or central retina. Macular degeneration provides resources related to the diagnosis and treatment of Macular Degeneration / Age-Related Macular Degeneration (AMD). Macular Degeneration Support covers the latest advances in science researc for both wet and dry macular degeneration.
/r/maculardegeneration
Went for an eye exam at specsavers today as I woke up a week ago with blurred vision in my left eye no previous eye problems I had a eye exam done 6 months ago and was all fine anyway I had the exams done and paid extra for the OTC scan of the back of the eye and the optician found something he didn’t tell me what it was but said ‘I’ve never seen this sort of thing in someone your age’ then went on to ask me if I’d been bitten by anything or had any trauma to my face or had a laser shone in my eye which I thought was odd he then said he was referring me to the eye hospital and to expect to hear from them this was 2 days ago now and still have not heard anything I’m seriously freaking out my main symptoms are central vision is blurred like theirs a water smudge their and multiple dots and stuff my eye feels like it’s burns and it looks red in one corner near the cornea he showed me the oct scan at the back of my eye and it looked like a round circle shaped red and pain dot I’m thinking it could be macular problems as it’s affecting my central vision I should add I’m only 27 and female I’m really worried as one day I was fine the next I woke up like this has anyone experimented similar Thankyou
Looking for opinions, examples, & pros/cons of best home devices that make tasks manageable for visually impaired people. For example, setting air fryers, coffee pots, etc. (Digital screens & small lettering are super hard to read.) Looking into Google Home, Alexa, smart plugs, etc. TIA.
I took my 64 y/o mom to the doctor because she was having trouble with her vision. After some tests and scans, the doctor explained Wet AMD to us. And suggested a treatment plan. As he was speaking, he wrote down the names of 3 injections that we can choose from. I can't seem to read the first one. The other two are Eleya and Vabysmo. Do you know what the first one is or can you understand his hand-writing?
Hi I am a student (22) from India i have been diagnosed with MD when i was 16 I always struggled with exams but always managed to get me through it but i have always had this query and no resources, since my doctor always told me it's not possible as i am not eligible for the certificate, I for a really long time wanted to obtain a certificate of person with disability as it will provide me an aid to help me through the exams since a doctors note or declaration does not always help this was suggested by my doctor please do not pass any judgement hastily and I apologise in advance for hurting anybody reading this post i don't feel the most comfortable to ask for this as I understand it's not the worst thing that can happen but I just want to have the opportunity to write my exam at ease and not have this feeling in my head that sayss "its maybe because of your vision" my vision is good but reading texts for long periods of time creates black dots and small er fonts are sometimes hard to distinguish while computer based tests are a combination of photosensitivity and difficulty in distinguishing between alphabets due to small font sizes.
again I am not trying to take advantage of a very important document or hurt any one please be nice thankyou
Ps i absolutely love to have stumbled upon this community it has helped me so much
Any ideas my vision became blurred after the injections when it wasn't before?
Promising clinical trial involving patients with advanced AMD:
https://www.wired.com/story/science-corporation-neuralink-eye-implant-restored-vision-blind-people/
Has anyone had photobiomodulation therapy (lumithera) from valeda - available in asia and Europe?
My mom suffers from macular degeneration. Her eyes are light blue. While sitting waiting for her last appointment she was talking to another person who also has MD.
He mentioned that lighter eyed people were more likely to have MD. I would have asked her doctor but she receives injections in her eye and I am skittish, so I leave before the doctor comes in.
My AMD is getting worse and I feel a bit frightened, I don’t want to be blind.
I saw some early studies that suggested Melatonin could help, as well as HIV drugs (taking PrEP could work for HIV-).
Is there anything else you know about?
I'm writing on behalf of my mom. She was diagnosed with wet AMD a few months ago. She has had 2 injections so far, the first one was awful. She was in so much pain and couldn't get relief. When she cries, I know she means it, and boy did she cry. The second time was a little better, but still painful. She used the Soothe brand gel, which helped slighty, but not enough. Is there anything else she could do to ease the recovery? She wants a numbing gel, but I can't find anything like that otc. Thank you.
Today had my 5th or 6th injection of Eylea. I'd never had the black dots or floaters before. But about 7 hours after the injection today, I suddenly saw a big black round spot - it was moving around on my shirt and it looked so real, like I had a giant tick or spider crawling all over me. Totally freaky.
Anyway, that was a surprise but seems to be diminishing already.
Anything else weird or alarming you wish you'd known about this whole process?! Or other stories or woes to share?
Has anyone heard of a corneal laser treatment for AMD? It's described here by the Bochner Institute in Canada. I am considering making the trek for a consultation, but it seems too good to be true. I searched it up but it looks like only this place offers it.
Hello, I’ve flown out to help my 79 yo friend with macular degeneration set up his life better now the injections aren’t really doing much good anymore.
One of the biggest issues is reading the tabs, icons, etc on the computer. There is much he’s been able to enlarge and he has installed a magnification screen in front of the computer screen. He also has a handheld electronic reader (kind of like a digital magnifying glass. He can place this over the icons at the very bottom under the mag. screen but anything more than an inch up and his hand can’t fit. (Magnifying from the top hurts his neck & shoulders)
I can’t find any way to enlarge these tabs and icons in programs for things like Office 16, internet browsers, email etc. Anybody have any good work arounds or know where these settings are?
(I have TBI—brain damaged leading the blind here 🤪—so simple bulleted instructions will be best for me to help him.)
Thank you so much!
Hi does anyone get eye pressure from supplements?
I have found black garlic.
Is this bad?
Hello! My name is James Blaha and I'm the CEO of an ophthalmic device startup called Vivid Vision. We've been working on a new at-home VR visual field test that is individualized to your specific retinal function for monitoring progression of AMD. We are looking for a couple of people who might be willing to participate in trying out our device and providing feedback. If this sounds interesting to you, shoot me a message. Participants can keep the VR headset that is provided!
People how got diagnosed with MD earlier in life, how do you work? Do you use some special glasses?
Is there moment that you need to retire your job?
Hello! I am a 4th year design student back with yet another survey, this one on the accessibility of upper kitchen cabinets!
The survey is completely anonymous and you can feel free to skip and questions you do not want to answer. Please note that my analysis of the results of the survey will be presented to my professor and classmates.
Thank you!!
https://docs.google.com/forms/d/e/1FAIpQLSejnXjQ6_K3Oi0Ekoaac-4yttcy2g-TpI2LqXlpp-3CgeiPhg/viewform
Hello! I am a 4th year design student doing a research project on how kitchens can be redesigned to be more accessible and functional for everyone! I have put together a short survey and I would really appreciate it if you took the time to fill it out!
The survey is completely anonymous and you can feel free to skip and questions you do not want to answer. Please note that my analysis of the results of the survey will be presented to my professor and classmates.
Thank you!!
https://docs.google.com/forms/d/e/1FAIpQLSdQ3cIRYG_DnupCAOe5oxFWDiAY285Y9V_H_SetUSMrtKqSFw/viewform
Hello- my mother and her mother before her developed MD in their early 70s. I started researching the AREDS2 supplements but just about all of the research that I can find relates to slowing down the progression in diagnosed cases. Does anyone know if there is research on the supplements as a preventative measure? I’m 47M with no symptoms currently; just concern for the future. Thank you!
I hope this clinical trial ends soon. Eye drops for macular degeneration treatment. I wonder if anyone else is participating in the trial.
A close family member might soon be diagnosed with high likelihood of MD. They are only 21 years old. What can we expect with this condition? How will it affect their life? Is there anything they can do to prevent it from getting worse. Basically id like first hand account of what living with this disease is like. No one of our family has ever had this and we are quite scared.
Hi there, I’m 21 years old, I’ve always had pretty bad eyesight especially long distance. I have been going to the opticians quite frequently over the past 4 months. I noticed my glasses were starting to feel quite weak, so I went to the opticians and was prescribed stronger glasses, and was told I have astigmatism? Only in my left eye. Which I had no idea about.
I first noticed during the opticians test that the circles he was showing looked more like ovals. Which really confused me,as I’ve never noticed it before. And it was ONLY in my left eye.
I went home and started to panic, and would test my left eye, and noticed that straight lines looked to have a bump in them, just in one section. I assumed this was the astigmatism and that was causing it.
I got my new glasses and it was still there, I started to panic more and went to the opticians again and explained that lines are having the bump in them, and I was told yes it’s the astigmatism and that they gave me the wrong glasses prescription and had to fix it.
So I waited and finally got my new prescription and the problem is still there. My mind is all over the place because it scares me so much.
I don’t notice any distortion when I have both eyes open, I only see it when I close my right eye. I don’t smoke or drink alcohol, or have any health issues or take any medication. I have severe health anxiety, and just need help.
Any advice?
I found out recently that I have 2 copies of both variants (CFH & ARMS2). I’ve been taking a fertility multi vitamin daily for the past year that includes 15mg zinc. Is this bad and should I stop?
I don’t have symptoms or a diagnosis yet just the knowledge that I’m high risk.
I’m 33, got my eyes checked recently, doctor said I have drusen “but it’s nothing to worry about”, but I notice I have dry eyes A LOT and without my glasses I can’t really see well.
Is MAD inevitable with this given my age?
Is boxing with any form of MD safe? I was diagnosed with Stargardt Disease (an early onset form of MD) and was wondering if I could still box. I’ve been doing it for a while and it would really irritate me if I had to stop. With contacts, my vision is at about 20/80 and is supposed to get worse as time passes. Any recommendations on what to do?
Hello, I'm currently 43 and got wet AMD when I was 24. It came on suddenly and I lost all central vision in my right eye, I got nearly all vision back with 3 lots of laser, just 3 small blind spots.
My eyes have been stable for 20 years but I'm interested in getting corrective laser for my distance vision. Has anyone with wet amd done this?
I’m a single woman in my early 30s with no kids yet who just found am I’m high risk for MD. It’s making me question everything. I was considering being a single mom by choice (sperm donor) prior to this diagnosis but now I’m freaking out about how soon Im going to have vision problems. Praying there will be new treatments available before I need them. Part of me wishes I didn’t do 23andme but I guess I’m grateful I can start having my eyes examined as soon as possible :( fml
Hello, I never really post on reddit and just sorta lurk, so sorry if I'm not in the right place.
I have an eye condition known as Keratoconus as well as a handful of other ocular issues. As such I have issues with driving at night and I don't do well with reflections, glares, etc. So I struggle a bit with paintball, but I find that thermal lenses that are tinted a yellow tend to help me a bit.
My friend has macular degeneration and a handful of other eye conditions much more serious than I do. I know when his vision was better he liked doing paintball. But as he ages his eye site gets worse. For my birthday my friends are all going paintballing and he agreed to come, but didn't want to play. His eyes are still good enough to play video games.
Are there any goggles or masks out there that work best for people with macular degeneration? All I can think of is yellow tinted thermal lenses and maybe a fan to help with fog? I was hoping to maybe suprise him with a new set.
TLDR: what masks/goggles work best for people with macular degeneration?
Thanks